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Family Empowerment: Supporting Language Development in Young Children Who Are Deaf or Hard of Hearing
Family Empowerment: Supporting Language Development in Young Children Who Are Deaf or Hard of Hearing
Family Empowerment:
Supporting Language
Development in Young
Children Who Are Deaf or
Hard of Hearing
jean L. Desjardin, Ph.D.
The current model of early intervention with children who are deaf or hard of
hearing emphasizes parental self-efficacy and involvement. The purpose of this study
was to investigate the relationships hetween mothers' self-efficacy beliefs and involve-
ment and childretj's language skills in a group of mothers of children who are deaf or
hard of hearing and wear hearing aids (N = 32). Mothers completed a questionnaire
(Scale of Parental Involvement and Self-Efficacy), and mother-child interactions were
videotaped. Mothers' self-efficacy beliefs related to developing their children's speech
and language were positively associated with higher level facilitative language tech-
niques (recast and open-ended question), and one lower level technique (closed-ended
question). Perceived involvement was also positively related to lower level techniques.
Regression analyses indicated that the same higher level techniques were associated
with children's language skills. Findings present early intervention implications for
professionals who zvork with families and children who are deaf or hard of hearing.
Introduction
Families of young children who are deaf or hard of hearing have many
more opportunities today than in years past to develop a child's spoken
language skills. In the past, parents may have felt isolated in their search for
resources related to hearing loss, with parent-professional partnerships tra-
ditionally marked by "power over" relationships that are defined by profes-
sionals presuming a higher sense of competence and greater knowledge than
parents (Turnbull, Turbiville, & TumbuU, 2000). The present model of early
intervention, referred to as the empowerment model (TumbuU & TumbuU,
lean Desjardin. Ph.D., is an adxmnced research associate in the Children's Research and
Evaluation (CARE) Center at House Ear Institute in Los Angeles, Calif.
Parental Self-Efficacy
Parental self-efficacy beliefs are defined as one's sense of knowledge and
abilities to perform or accomplish daUy parenting tasks and roles. According
to self-efficacy theory (Bandura, 1997), parental self-efficacy beliefs should
incorporate (1) the level of specific knowledge pertaining to the behaviors
involved in child-rearing and (2) the degree of confidence in one's own ability
to carry out the specific parental role. For example, Conrad, Gross, Fogg, and
Ruchala (1992) noted that mothers' increased knowledge alone did not result
in better interactions with their young children. Increased knowledge and
confidence together, however, resulted in more effective interactions with
their hearing toddlers.
A key component of self-efficacy theory states that parents' efficacy beliefs
are linked to the goals they have for their children (Bandura, 1989). These
goals may translate into parental practices that support their children's ability
and persist untU the goals are attamed (Brody, Flor, & Gibson, 1999; Desjar-
din, 2004). In other words, a person who is self-efficacious both knows about
and persists in atten:ipting a given task until success is achieved, whereas
self-inefficacious individuals may have the knowledge needed, but may be
unable to persist because of self-doubt. Thus, parents of children who are deaf
or hard of hearing need the knowledge and skills necessary to buUd their
children's spoken language abilities, but, to achieve confidence in those skills,
they also need to use those skills daily as they interact with their children.
Indeed, maternal self-efficacy beliefs may influence mother-child interac-
tions, ln a sample of mothers and their hearing infants, Teti and Gelfand
276 Desjardin
(1991) found that maternal self-efficacy mediated the negative relationship
between mothers' depressive symptoms and mothers' behaviors reflecting
responsiveness (e.g., warmth and sensitivity) to their infants. Maternal self-
efficacy also remained positively associated with maternal responsiveness,
after controlling for all other factors (e.g., income level, perceptions of infant
difficulty and social-marital support). These findings suggest a link between
mothers' belief in their own abilities and maternal behavior.
The link between mothers' self-efficacy and maternal behaviors may need
to be tailored to the specific needs of children who are deaf or hard of hearing.
As suggested by Bandura (1989), parental perceived knowledge and confi-
dence of specific skills must be measured for a particular population. Al-
though there are parenting scales that tap into parents' self-efficacy for other
populations of children with disabilities (Akey, Marquis, & Ross, 2000; Triv-
ette & Dunst, 2003), ortly one has been specifically designed for parents of
young children who are deaf or hard of hearing (Scale of Parental Involve-
ment and Self-Efficacy [SPISE]; Desjardin, 2003). Using this particular mea-
sure, Desjardin (2004) examined a sample of 24 mothers with preschool
children with cochlear implants (mean age = 3.7 years). Mothers' perceived
self-efficacy in terms of developing their children's language at the first time-
point in data collection (Time 1) related positively to children's receptive and
expressive language skills one year later (even after controlling for their
child's language skills at Time 1).
In that same study at Time 2 (Desjardin, 2004; Time 2), with the inclusion
of eight more mother-child dyads (N = 32), mothers' sense of efficacy also was
related to specific facilitative language techniques employed during mother-
child interactions. Mothers who perceived themselves as more knowledge-
able and competent in developing their children's language skills provided
their children with higher level language techniques (recast and open-ended
questions). These same techniques were associated with better child language
outcomes. Conversely, mothers who perceived themselves as less knowl-
edgeable and competent in terms of developing their children's language
used lower level language techniques (linguistic mapping, directives and
imitations). Although there is evidence to suggest that lower level techniques
support language learning in hearing children with severe expressive lan-
guage delays (Girolametto, Weitzam, Wiigs, & Pearce, 1999), these techniques
did not seem to support preschool children with cochlear implants whose
language ages were approximately 2 1/2 years. Consistent with Bandura's
model, mothers' self-efficacy beliefs appear related to the developmental lan-
guage goals endorsed for their children that may link to the ways in which
parents interact with their children.
Parental Involvement
Parental involvement is another pivotal feature in present-day early inter-
vention programs. Over the past several years, researchers have found that
278 Desjardin
Mothers' sense of involvement may also influence language techniques
whUe interacting with their children who are deaf. Findings from a longitu-
dinal study of 24 mothers of children with cochlear implants (Desjardin, 2004)
suggest that mothers' perceived involvement in their children's language
development at Time 1 was related to higher level faciUtative language tech-
niques (parallel talk, recast anci open-ended questions) one year later. Even
after controlling for their children's language ages at Time 1, these same
techniques were also associated with their chUdren's language outcomes.
Conversely, mothers who felt less involved in their children's language pro-
gram exhibited lower level language techniques (Unguistic mapping, imita-
tion and directive). Such lower level techniques, in tum, related negatively to
their chUdren's language skills for this population of mothers and preschool
children who are deaf and use cochlear implants. Furthermore, at Time 2, and
with the inclusion of eight more mother-child dyads (N = 32), higher level
language techniques, recast and open-ended questions remained predictor
variables for children's receptive and expressive language skills, respectively,
even after controlling for children's length of cochlear implant use for this
group of mothers and their young children who use cochlear implants (Des-
jardin, 2006).
Although there is theoretical and empirical support for self-efficacy and
involvement in parents of young children and, specifically, children with
cochlear implants, we do not know if the same holds true for mothers of
young children who use hearing aids. The goal of the present study was to
examine the relationships between mothers' perceived self-efficacy and in-
volvement, and children's language outcomes, in a group of mothers and
children who use hearing aids. This study addresses two research questions:
(1) Are perceived maternal self-efficacy and involvement associated with
facilitative language tecliniques during mother-chUd interactions? and (2)
What are the matemal predictor variables for children's language outcomes?
Method
Participants
The author recruited mothers and children from the Children's Auditory
Research and Evaluation (CARE) Center, located at House Ear Institute in Los
Angeles. The CARE Center serves chUdren ages birth to 18 years and their
famUies, providing a range of clinical services that include initial diagnosis of
hearing loss and audiological foUow-up services.
Mothers
Thirty-two mothers and children who are deaf or hard of hearing partici-
pated in this study. As shown in Table 1, mothers averaged 36 years of age
Mean; (SD)
Mothers' Characteristics Range: 23-53 years
Age 36.3; (6.25)
Education level Elementary: 0; (0.0%)
High School: 7; (21.9%)
Some Coiiege; 3; (9.4%)
Bachelor's Degree: 7; (21.9%)
Postgraduate: 15; (46.9%)
Household income <$15,000 = 5 (15.6%)
$15,000-$29,000 - 2 (6.3%)
$30,000-$49,000 = 5 (15.6%)
$50,000-$74,000 = 5 (15.6%)
$75,000-$100,000 = 5 (15.6%)
>$100,000 = 10 (31.3%)
Ethnicity Caucasian: 17; (53.1%)
Latino: 11; (34.4%)
Asian-American; 2; (6.3%)
Other: 2; (6.3%)
Primary home language English 31 (96.9%)
Spanish 1 (3.1%)
Marital status Married 29 (87.5%)
Single 2 (9.4%)
Divorced 1 (3.1%)
(range = 23-53), most had some level of college experience (78.2%) and the
majority was in the upper middle-income level (62.5%) or above, with an
average yearly income level of $50,000. Most of the mothers were Caucasian
(53.1%) and spoke EngUsh (96.9%).
Children
All of the children presented with bilateral sensorineural hearing loss, were
hearing aid users and had been enrolled in a family-centered intervention or
school-age program for at least three months. As noted in their medical
charts, none of the children had an additional disability or developmental
delay. As displayed in Table 2, this is a heterogeneous group of children who
ranged in age from 1.1-6.0 years (M = 3.0 years). As a group, the children were
identified with hearing loss and enrolled in a family-centered early interven-
tion program at approximately 12 months and received hearing aids at ap-
proximately 18 months. At the time of testing, 25 children used an auditory/
oral modality of communication and seven children used auditory/oral with
some sign support. As per the Reynell Developmental Language Scales, chil-
dren's mean receptive and expressive language skills were 29 months and 25
months, respectively.
280 Desjardin
Table 2. Demographic Characteristics of Children (N = 32)
Mean; (SD)
Children's Characteristics (Range in months)
Measures
282 Desjardin
the data analyses because almost all of the children had standard scores that
were below the floor of 63 or 64. There was, however, sufficient variability in
the raw scores for meaningful statistical analysis.
(3) Mother-Child interactions. Mothers and children engaged in free play
and storybooks together. During free play, mothers were asked to engage
their children with two Mr. Potato Head (Lerner, 1952) fun activity kits (one
kit designed to construct a female potato and one kit designed to construct a
male potato) for seven minutes. The Mr. Potato Head activity kits came with
various parts to engage the children in fantasy play (e.g., scuba goggles,
dress-up shoes, various hats). Mothers were instructed to "play with your
child as you would normally do at home when you have free time" and to
interact with their children using whatever mode or modes of communication
they use normally at home (auditory/oral or auditory/oral with sign sup-
port).
Following free play, mothers were provided two storybooks, What Next,
Baby Bear! by Jill Murphy (1983) and Frog, Where Are You? by Mercer Mayer
(1969). What Next, Baby Bear! is a relatively short, colorfully illustrated book
appropriate for preschoolers with a fantasy narrative about a little bear's
travel preparations for a trip to the moon. This book has been used in several
other mother-child interaction studies with young hearing children (Weiz-
man & Snow, 2001). Frog Where Are You? is a relatively short, wordless picture
book and has been used in more than 150 studies studying children acquiring
50 different languages and investigating children's narrative language devel-
opment (Berman & Slobin, 1994; Hoff-Ginsberg, 1997). Mothers were in-
structed to "read with your child as you would normally do at home when
you have time," choosing either book to begin and then continuing with the
other book when they were finished with the first book.
Procedures
Data Preparation
All speech, vocalizations and signs produced by the mother and child were
transcribed in full by the author, using the Codes for the Human Analysis of
Transcripts (CHAT) transcription system. To establish inter-rater reliability of
transcription, a speech-language pathologist from the CARE Center tran-
scribed, in full, 10% of the randomly selected videotaped data. The calculation
of word-by-word correspondence yielded a high reliability between tran-
scribers, ranging from 95-98% agreement for mothers and children's intelli-
gible verbal utterances and 88-93% reliability for mothers' and children's
utterances that also contained some signs. The analyses used mother and
child vocal and signed utterances.
Each mother's transcribed utterance — linguistic phrase or sentence — was
coded for one higher level and lower level facilitative language technique
(during both free play and storybook conditions, as defined in Tables 3 and
4, respectively). Proportional scores of each facilitative language technique
were calculated and used in the analyses to avoid penalizing less talkative,
yet very responsive, n:iothers. Accordingly, proportional data were calculated
by dividing the total number of each language technique by the overall num-
ber of mothers' linguistic attempts. The CARE Center speech-language pa-
thologist coded 25% of the transcripts, randomly selected to establish test-
retest reliability. A line-by-line analysis revealed high agreement between
coders, ranging from 94-98% reliability.
Results
284 Desjardin
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286 Desjardiu
Table 5. Relationships Between Maternal Self-Efficacy Subscale Items and Mothers'
Language Techniques
lower level technique, closed-ended queshon (r = 0.46; p < 0.05), and a nega-
tive relationship emerged with the lower level technique, directive (r = -0.57;
p < 0.01).
Relationships Between Maternal Perceived Involvement and Fadlitatwe
Language Techniques
Two self-efficacy subscale items (sensory device use and speech-language
development) were correlated with the 10 facilitative language techniques. As
Table 6 illustrates, perceived involvement in terms of the child's sensory
device related positively with one higher level technique, open-ended ques-
tion (r - 0.41; p < 0.05), and had a negative association with one lower level
technique, directive (r = -0.65; p < 0.01). There were no statistically significant
associations between mothers' perceived involvement of their child's speech-
language development and any higher level techniques; however, perceived
involvement related positively to two lower level techniques, closed-ended
question (r = 0.48; p < 0.05) and imitation (r = 0.38; p < 0.05).
Further correlation item analyses with the questions pertaining to this par-
ticular parental involvement subscale revealed statistically significant posi-
tive and negative relationships between the subscale items and lower level
techniques. Mothers' perceived notion of difficulty to check and listen to the
children's hearing aids on a daily basis related positively to the use of the
imitation technique, {r = 0.37; p < 0.05). There were also positive relationships
between mothers' perception of how much speech-language therapists or
early interventionists demonstrate listening-language activities and mothers'
comfort level in performing listening-language techniques in their homes
without a professional present, and the use of the lower level technique,
closed-ended question (r = 0.40; p < 0.05 and r - 0.51; p < 0.01, respectively).
288 Desjardin
Table 7. Summary of Regression Models for Mothers' Linguistic Input and
Childrt'n's Receptive Language Skills
Significance in
Regression Models R R' Change in R^ F Change
Discussion
Early intervention practices for young children focus on empowering fami-
lies and building their sense of self-efficacy and involvement as they support
their children's early development (Desjardin, 2005; McWilliam & Scott, 2002;
Sandall et al., 2000; Turnbull & Turnbull, 2001). Despite these recommended
practices, few studies have investigated parents' sense of self-efficacy and
involvement in their children's early intervention program for families of
children who are deaf or hard of hearing. Of particular interest were the
relationships between maternal facilitative techniques and children's recep-
tive and expressive language skills. Results from this study generally confirm
previous findings among young children who are deaf (Desjardin, 2004) in
terms of the positive associations between maternal perceived self-efficacy
and involvement, and facilitative language techniques. In essence, early in-
tervention implications may be further generalized to a larger population of
young children who are deaf or hard of hearing.
Similar to the Desjardin (2004) study on preschool children with cochlear
implants, findings from this study provide evidence that maternal perceived
self-efficacy and involvement in terms of developing children's speech-
language development (rather than sensory device use) relates to specific
higher level facilitative techniques during mother-child interactions for chil-
dren with hearing aids. These same techniques are also associated with chil-
dren's language skills. Furthermore, these higher level techniques have been
noted in prior research to facilitate later language skills in preschool hearing
children (Baumwell, Tamis-LeMonda, & Bornstein, 1997; Kaiser & Hancock,
2003).
Significance in
Regression Models R R' Change in R~ F Change
290 Deslardin
level. As children approach the two-to-three-word stage of language devel-
opment, particular techniques are essential for them to develop more complex
language. Facilitative language techniques such as parallel talk (Yoder, Mc-
Cathrcn, Warren, & Watson, 2001), recast (Fey et al., 1999) and open-ended
questions (Lilly & Green, 2004) encourage conversation, eliciting more com-
plex grammar and syntactic skills. These techniques are used more frequently
after children achieve a more advanced level of lexical and grammatical un-
derstanding (Hulit & Howard, 1997). Conversely, techniques such as linguis-
tic mapping, imitation and closed-ended questions are more didactic in
nature and necessary for children who are at the prelinguistic and one-word
level of language development (Yoder et al., 2001).
Implications far Family-Centered Early Intervention
Early intervention programs emphasize the importance of supporting fam-
ily strengths and collaborating with caregivers to facilitate better interactions
with their children (Chidress, 2004; Roper &: Dunst, 2003). By tailoring their
behaviors to the strengths of individual families, interventionists hope to
provide caregivers with a sense of confidence and competence — self-
efficacy — about their children's current and future learning and develop-
ment (Dunst, 2000; Sonnenstrahl-Benedict & Raimondo, 2003). In tum, pa-
rental self-efficacy of certain skills (e.g., facilitative language techniques) may
enhance children's language learning (Desjardin, 2006). Thus, encouraging a
mother's sense of efficacy in developing her child's language skills is an
important goal in early intervention and should be taken into consideration
when formulating an Individual Family Service Plan (IFSP) or individual
Education Plan (IEP).
One way to enhance parents' self-efficacy is to employ a mentorship ap-
proach. In a mentorship model, parents receive hands-on training and prac-
tice with constructive and encouraging feedback based on the parent's
strengths and needs. Providing caregivers continual feedback er\hances their
generalization of newly learned techniques across various activities and set-
tings (Woods, Kashinath, & Goldstein, 2004). Ultimately, the goal of any
mentorship relationship is for parents to achieve independent, confident use
of techniques that will enhance their children's language development.
Through a mentorship model, parents would also receive ongoing demon-
strations of skills. A finciing of great concem from this study was the signifi-
cant positive relationship between mothers' sense of involvement in their
children's speech-language development and lower level language tech-
niques. Further analyses of the data suggested that mothers' perception of
how much early intervention professionals or therapists demonstrate listen-
ing-language activities was related to mothers' use of lower level language
techniques. Early intervention programs highlight the importance of embed-
ding language tecliniques in naturally occurring interactions with children
within daily routines and activities (Dunst, 2000; Fewell & Deutscher, 2004;
Study Limitations
292 Desjardin
that the mothers received different services and, possibly, different instruc-
tions, regarding intervention language techniques. Future work controlling
for the different types of family-centered intervention programs will be fruit-
ful.
Third, the SPISE is a self-report measure of self-efficacy and involvement in
parents. Previous research has suggested that, for many social constructs,
self-report measures may not necessarily reflect what the parents actually do
in their homes (Akey et al., 2000). Although self- reports of how people
perceive their knowledge and competence may be reasonably valid, self-
reports of participatory behavior may show less consistency (e.g., parents'
involvement in the development of their children's IFSP). Nevertheless, the
SPISE offers researchers and practitioners valuable information in terms of
parents' perception of specific skills related to their children's sensory device
and speech-language development (see Desjardin, 2003, for further research
on and practical use of the SPISE).
Summary
Both the Individuals with Disabilities Education Improvement Act (IDEIA, 2004)
and the Division of Early Childhood (DEC) Recommended Practices in Early In-
tervention/Early Childhood Special Education state the importance of not only
family involvement, but also early intervention practices implemented in a
manner that strengthens parents' sense of competence in guiding their chil-
dren's early development. Findings from this study highlight the influence of
parental self-efficacy and involvement on children's spoken language devel-
opment. Families of children who are deaf or hard of hearing could benefit
from early intervention programs that capitalize on parents' sense of efficacy
and facilitative language techniques that are tailored to their children's lan-
guage level.
Acknowledgments
Tlie author wishes to express a very special thank you to the mothers and
children who participated in this study. Support for this research was pro-
vided by the National Institute on Deafness and Other Communication Dis-
orders (NIDCD) of the National Institutes of Health, grant #R01DC006238.
The author would like to thank Laurie Eisenberg, Ph.D. for her valuable
contributions throughout this project. Gratitude is also expressed to the
CARE Center's research language consultant. Donna Thai, Ph.D., who pro-
vided expertise and guidance in videotape analyses, and Kathleen Lehnert,
M.A., CCC-SLP, for transcription and videotape coding.
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