Annual Report 2018 19

ANNUAL REPORT
2018 - 2019
INDEX
No. Subject Page No.
1. Index 1
2. Executive Council 2016-19 2
3. Parivaar Introduction 4
4. Annual Report 2018 – 19 6
a. Advocacy with Governments 6
b. Capacity Building of Parent Organizations 8
c. Awareness Building 10
d. Initiatives for Empowerment 14
e. Governance at Parivaar 18
f. Financial Reporting 19
g. Pillars of Support 19
5. Recommendations on draft Education Policy 20
6. Membership Application Form 26
7. Organization Registered with Parivaar 27-38
8. Audit Report FY 2018-19 39-41
1
ANNUAL REPORT PARIVAAR NCPO
2017 - 2018
EXECUTIVE COUNCIL : 2016-19
S.No. Name Designation Tele. No. Email City State Parent Organization
1 Cdr Shrirang N. Bijur President 7387625555 sn_bijur@rediffmail.com Pune MH AWMH, Maharashtra
2 Lt. Col Dr V.K Gautam Immediate Past 9425316402 mailme.vkgautam16@rediffmail.com Ahmedabad Gujarat SWMR
President
3 Mrs Iona Louise Kundu Zonal VP - East 9831004412 mentaid.org@gmail.com Kolkata Bengal Mentaid
4 Mr Amarjit Singh Anand Zonal VP - North 9417006059 amarjitsinghanand@gmail.com Jalandhar Punjab Chaannan
5 Mr M Sukumaran Zonal VP - South 9446257547 wydparivaar@gmail.com Wayanad Kerala Wayanad Parivaar

sukumangalassery@gmail.com
6 Mr. VikasKhalatkar Zonal VP - West 9049639779 vikas5461@yahoo.in Nagpur MH Sweekar
7 Mr H.P Sharma Zonal VP - Central 9425539703 Harihar_kbe@yahoo.com Korba Chhattisgarh Saamarth PA
8 Mr Nabarun Sengupta Zonal VP - NE 9436103471 hinsengupta@yahoo.co.in Shillong Meghalaya MEPAD
9 Mr PS Burde General Secretary 9920447481 psburde@yahoo.com Mumbai MH PODS
10 Mrs. Ranoo Banerjee Jt. Secretary 9810926735 ranoobanerjee@gmail.com Delhi Delhi Muskaan
01126964379
11 Mr Abhay Kumar Dubey Zonal Secretary 9425150672 abhaydubeyjbp@gmail.com Jabalpur MP NVAS

-Central
12 Mr Gourishyam Panda Zonal Secy - East 9437194908 gourishyampanda@gmail.com Sonepur Odisha DAAPWD
dappwd.india@hotmail.com
13 Mr Vijay Shah Zonal Secy North 9044413331 vijayashah111@yahoo.com Varanasi UP Prayas PA
14 Mr G Soundarajan Zonal Secy South 9480585424 deepugsr24@yahoo.co.in Hosur Karnataka KPAMRC
15 Mrs. Mona D Thakkar Zonal Secretary - 9408703599 monathakkar68@gmail.com Surat Gujarat MAVJAT
West 9824700310
16 Mr Akum Ezung Zonal Secy - NE 9862192496 akumezzung123@gmail.com Dimapur Nagaland Dimapur PA
17 Mr Bhanuprasad Chauhan Treasurer 9898594350 bprasad1655@yahoo.com Gandhinagar Gujarat Sadhana PA
18 Mrs. Pooja Patel Member 8128138092 patelridhi007@gmail.com Rajkot Gujarat Prayas PA
19 Mr Mohd Mushtaq Ali Member 9703331622 pawmencap@gmail.com Hyderabad Telangana Pawmencap
20 Mr AK Jena Member 9438586539 Ajaykumar.jena@yahoo.in Bhubneshwar Odisha
21 Mr Madhusudana Rao. P Member 9652864939 Madhu.s.pappala@gmail.com Vizag AP Ashadeep PA, Vizag
22 Mr B.N Rathi Member 9822060075 bnrathi@sify.com Aurangabad MH Navjivan
23 Mr Divakarbhai Shah Member 9826022667 diwakarshah51@gmail.com Indore MP ISMR

avaniagencies@eth.net
24 Mr Sandip Kamal Member 9814213860 sandeepchd@yahoo.com Mohali Punjab Swayam
25 Mr KC Pandab Member 9438187899 shraddha.ra@gmail.com Rourkela Odisha Shraddha
26 Mr PB Balghat Member 9422038029 prakashconcrete@rediffmail.com Satara MH AnandPariwar
27 Mr Sanjeev Kumar Jha Member 9431535390 Jha_sanjeev1972@rediffmail.com Ramgarh Jharkhand BhawishyaKirsan
28 Mr Dileep Redkar Member 9422631417 dilipredkar@yahoo.in Ratnagiri MH Ashadeep PA
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S.No. Name Designation Tele. No. Email City State Parent Organization
29 Mr Dashrath V Parab Member 9322287447 dashrath.parab61@gmail.com Navi Mumbai MH Swami Brahmanand PA
dparab99@gmail.com
30 Dr CS Neelkanta Member 09449302718 m.manasa@gmail.com Tumkur Karnataka PA for ES
31 Mrs. Chaitali Gami Member 9830411480 chaitali.gami@yahoo.in Kolkata Bengal South Kolkata Parasmoni
32 Mr. KS Jaivittal Member 9845540293 Jai.vittal@manipal.edu Udipi Karnataka Udupidist PA
33 Major Sudhakar Pillai Member 9809491187 parivaarpalakkad@gmail.com Palakkad Kerla Parivaar Palakkad
majorpillai@yahoo.com
34 Mrs. Susan Mathews Member 9633470888 susansholam@gmail.com Pathanamthitta Kerala Parivaar Pathanathitta
35 Mr A Umesh Member mithramsoc@gmail.com Ernakulam Kerala Mithram
36 Mrs Neiht Luangi Member 9436365280 ntvangchhia@gmail.com Aizawal Mezoram Spastic Society
37 Mrs. PR Shirke Member 9425553996 snehsampada2007@rediffmail.com Bhilai Chhattisgarh Snehsampada
38 Mr Umesh Sharma Member 9086024375 disabledcarefoundation@yahoo.co.in Jammu J&K disable Care Foundation
39 Mr Subbyo Sachi Samal Member 9437083471 hope.rajgangpur@gmail.com Rajgangpur Odisha Hope
40 Mr VinayTopa Member 9891016400 Vinay.topa@gmail.com Delhi Delhi Muskaan

011 42828743
41 Mr LK Malavia Member 287407272, sankalp_260600@rediffmail.com Nagpur MH Sankalp

9765169262
42 Mr Soumen Upadhyay Member 9434086363 soumenupadhyay1@gmail.com Kolkata Bengal Assn of Parents of

87777253542 Pesons w ASDYes
43 Mrs. Arpita Yadav Co-opted Member 9214415171 arpita34@@gmail.com Jaipur Rajasthan Approach Autism
44 Mr P Sundaram Co-opted Member 9944548739 ponnusundaram@gmail.com Trichurapally TN Parivaar TN
45 Mrs. A Kasturi Co-opted Member 9842964009 m.mppa@yahoo.com Madurai TN Phoenix Madurai Dist PA
46 Ms Sudipta Mishra Co-opted Safi Mem. 8984272970 sonaols@gmail.com Bhubneshwar Odisha President, Safi
47 Mr G. Parthiban Co-opted Safi Mem. 9710542284 parthimaddy@gmail.com Chennai TN Secretary, Safi
Technical Advisors
1 Dr. HT Dholakia Technical Advisor 9819964789 drhtdholakia@rediffmail.com Mumbai MH Parents of MH
2 Dr. Shanti Aulak Technical Advisor 9891386995 Shantiauluck@gmail.com Delhi Delhi Muskaan
3 Dr. RG Gokhale Technical Advisor 9373103254 gokhaleravindra@yahoo.com Nagpur MH Sweekar
4 Mr. MG Prakash Technical Advisor 9448142956 emgipee@gmail.com Bangalore Karnataka KPAMRC
5 Mr. SudeepGoyal Technical Advisor 9414036896, sudeepgo@rediffmail.com Navalgarh Rajasthan Asha KaJharna
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PARIVAAR - National Confederation of Parents’ Organizations

Parivaar was formed in the year 1996 as a National Federation of Parents Association with 22
Parents Associations as its member. Today it has more than 285 parent organization as its
members. Parivaar works and advocates to empower and secure rights of Persons with
Intellectual and Developmental Disabilities (PwIDDs) comprising of Intellectual
disability/MR, Autism, AHSD, Cerebral Palsy, Multiple Disabilities. Parivaar also hand holds
parents and parents’ organizations by sharing experiences and best practices, and creating
awareness about government schemes. Parivaar also practices community based inclusive
development (CBID) to inculcate Self Advocacy among PwIDDs across out the country.
VISION
To empower, secure rights & improve the quality of life of persons with intellectual and
developmental disabilities & their families in the country.
MISSION
Advocacy, Awareness, Sensitization & creating an Iinclusive environment for and on behalf of
persons with intellectual & developmental disabilities (PwIDDs) & their families in the country.
MAIN OBJECTIVES
To plan & execute advocacy and CBID strategies:
• Building parents network across India.
• Building Self Advocacy Forum of India across the country.
• Collaborating , coordinating & networking with NGOs & other cross-disability organisations
• Collaborate with policy formation level of government and implementation agencies of state
and local governments for effective empowerment of grass root beneficiaries (PwIDDs &
families)
• Advocating for equal opportunities, social justice and human rights of PwIDDs with
government and community.
• Sensitizing the Community, Service providers and officials of the local government towards
the rights of PwIDDs.
• Support and grow the no of member organization to plan and implement rehabilitation of
PwIDDs, especially after demise of their parents.
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REGISTRATIONS
Registered under Society Registration Act 1860 : Regn No S 30635/1996 – Delhi
Registered under Section 12A and Section 80G of Income Tax Act 1961 :
IT Order no DIT(E)\2002-2003 P-496/97/2014; PAN no AAATP8059N
Registered under FCRA Act 1976 : Rag No 231660416 Renewed on 7th August 2016
Registered under PwD Act 1995 : Registration no 022 SI NO 251 dated 29th July 2016
Registered with Niti Ayog DARPAN Unique ID : KA/2016/0098714
ADMINISTRATIVE OFFICE
A-1, Green Acres CHS, Salunke Vihar Road, Kondhwa, Pune 411048
Tel : 020-48603437 Email : parivaarncpo@gmail.com
EXECUTIVE OFFICE BEARERS

Cdr. Shrirang Bijur – President Lt Col Dr V K Gautam – Immediate Past President
Mr P.S.Burde – Gen. Secretary Mr Bhanuprasad Chauhan – Treasurer
Mrs. Iona Kundu – Zonal VP East Mr Amarjit Singh Anand – Zonal VP North
Mr M Sukumaran – Zonal VP South Mr H.P Sharma – Zonal VP Central
Mr Nabarun Sengupta – Zonal VP NE Mr Vikas Khalatkar – Zonal VP West
Mrs. Ranoo Banerjee – Jt. Secretary Mr Abhay Kumar Dubey – Zonal Secy. Central
Mr Gourishyam Panda – Zonal Secy. East Mr Vijay Shah – Zonal Secy. North
Mr Mona D Thakkar – Zonal Secy. West Mr Akum Ezung – Zonal Secy. North East
Mr G Soundara Rajan – Zonal Secy. South Ms. Sudipta Mishra – President, Safi (Co-opted)
Mr G Partiban – Secretary, Safi (Co-opted)
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P A R IV A A R
NATIONAL CONFEDERATION OF PARENTS’ ORGANIZATIONS
For Persons with Intellectual and Developmental Disabilities
ANNUAL REPORT: 2018 - 19
The President and Office Bearers of Parivaar are pleased to present 24thAnnual Report
covering activities till September 2019, along with Audited Statement of Accounts for the
financial year 2018 - 19.
ADVOCACY WITH GOVERNMENT AUTHORITIES
India as a nation is going thru a transformation with major paradigm shift in almost every sphere
of life of its citizens. The mantra of “sab ka saath, sab ka vikas” provides us all an opportunity to
get our sons/ daughters [with Intellectual and Developmental Disabilities (IDDs)] become part of
the mainstream, in every sphere of life. Parivaar has been strongly advocating for Inclusion of
Persons with IDD, both among its affiliated parent & non-parent organizations as well in the
social, political and administrative circles. Our advocacy for inclusion includes persons with IDD
[profound, severe, moderate, and mild] in a form that addresses the need of individual person.
This could be achieved when Parivaar parents are at a position where they can have positive
influence during the formation of policies and implementation of schemes.
A. Effective Voice in the Affairs of the National Trust
The Parliament of our country enacted the National Trust Act which created The National Trust,
to meet the specific needs and requirements of Persons with IDDs [Intellectual disability, Autism,
Cerebral Palsy and Multiple Disabilities]. We are pleased to inform you that three Parivaar
members; Ms. Ruby Singh, Mr Abhay Dubey, Ms. Pooja Patel were elected as Parent board
members of the National Trust. Mr P.P Singh, another board member representing Registered
organizations, is also a member of Parivaar. The incumbent parents were identified by the
Executive Council of Parivaar for their articulation, positive temperament and active grass root
level association with the affairs of Persons with IDDs. These leaders have already taken charge
and rearing to bring in a positive transformation in the affairs of the National Trust.
B. Recognizing Special Needs of Persons with Intellectual & Developmental Disabilities
Parivaar has been actively advocating for a national plan to take the cause of Persons with IDDs
further. The ministry of MSJE formed a committee for developing a national plan chaired by Ms.
Aloka Guha and active participation of leaders of Parivaar. The highlight was active collaboration
with ministries of Health and family welfare, Human resource development, Labour (skill
development). One of the offshoots of the committee working was deep sensitization of senior
officials of the Ministry of Social Justice and Empowerment [MAJE] to the needs of persons with
IDD. The deliberations also resulted in focus on inter-ministerial co-ordination for achieving the
inclusive development of persons with IDD.
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C. Recognition of Self Advocacy& Mentors’Training by NIEPID, NIEPMD and RCI

Another milestone in the history of Parivaar advocacy was achieved when Self Advocacy and
Mentor Training requirement and its curriculum was duly recognized by the two national
institutes (NIEPID and NIEPMD) dealing with IDDs. This was culminated with printing of an
exquisite handbook [Hindi & English] for mentors, published jointly by Parivaar, NIEPID &
NIEPMD. Parivaar wishes to place on record the dedicated services of M/S Pranita Madkikar,
Charu Shah, Vijay Kant, Purshotum Burde, Parthy Mandy and many mentors and self
advocates, who over the years formed the knowledge pool culminating into publication of
Handbook for Mentors. This handbook is being extensively used for conducting Mentor training.
Further the Mentor Training was duly recognized by RCI and given CRE status for professionals
working for rehabilitation of persons with ID. For this the credit goes to the efforts of Er. Pankaj
Maru.
D. Miscellaneous Initiatives
For Parivaar advocacy is a continuing activity towards achieving the legitimate requirements of
its beneficiaries; persons with IDD and their parents. Some of the areas where Parivaar has
been active during the year are:
a.With railway board for (1) correcting the nomenclature of disabilities in line with RPwD Act
(2) extending concession to all of disabilities coming in the ambit of Intellectual disabilities
(3) alignment of issue of concession certificate in line with UDID (4) allowing persons with
ID to avail special quota of seats meant for PwDs.
b.With MSJE and the National Trust for revitalizing the guardianship process and its
continued retention in the wake of comment made by UN CRPD
c. With MHRD for inclusion of needs of Persons with IDD towards pre-school and educational
opportunities for social and inclusive development. MSJE is also considering Parivaar
recommendations for inclusion in their note to MHRD.
d. Collaborating with state governments thru respective state leaders of Parivaar for issue of
Rules of Rights of Persons with Disability Act.
e.With Registrar General and Census Commissioner for introduction of modified
Washington Group sets type of questionnaire for generating statistical data on disabilities
f. With MSJE for initiating development of system to monitor assets of Persons with IDD
which are managed by the appointed guardian.
g.With MSJE for promulgating instructions for (i) Assessment of Autism & AHSD (ii) Issue of
disability/ at risk certificate for infants/ young children (iii) instructions for assessment for
persons with high support needs.
h.With National Human Right Commission regarding inhumane and cruel act perpetrated on
a young boy with intellectual disability in Saharanpur, UP.
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CAPACITY BUILDING OF MENTORS FOR IMPARTING SELF ADVOCACY TRAINING

The primary cause of social exclusion of persons with intellectual disability is their lower
cognitive ability resulting in inability to learn in a manner mainstream population learn the
activities of daily living, for social habitation. This limitation further results in dependence and
perceived lack of decision making capacity among the persons with intellectual disabilities. The
inability is further compounded by years of suppression & discrimination that inhibits them to
achieve their potential. Given proper opportunity, guidance and coaching to enhance the
primary Life Skills the persons with intellectual disability can become part of society and
workforce. Such life skill training is termed as “Self Advocacy Training” and is imparted by
“Mentor” volunteers who also acts as friend and guide to his/ her trainee for the future. The
persons with intellectual disability who undergo this training are graduated as “Self advocates”.
A. Capacity Building of CBM Partner DPO to Enable Inclusion of Persons with

Intellectual Disabilities in Livelihood Schemes
In year 2018 CBM organized two workshops in Bhopal and Patna to facilitate sharing of
experience among the partners in implementing rural livelihood programs in CBID format. The
participants belonged to partner organizations from the states of Madhya Pradesh, Bihar,
Jharkhand, Chhattisgarh, Maharashtra, UttarPradesh & Uttarakhand. Parivaar–NCPO also
participated in both the workshops and made a strong plea for including Persons with IDD in the
livelihood schemes. One of the opportunities emerging out of the workshop was to suitably train
persons with intellectual disabilities [in self advocacy] in rural areas after which they can join
livelihood schemes and become earning members of their family. At present their participation in
MGNREGA or SRLM schemes is negligible if not zero. A joint action plan (CBM, BVJF and
Parivaar) was devised at the end of second workshop.
The plan was to train BVJF community organizers/ DPOs to enable them to inculcate Self
Advocacy (skill) among Persons with Intellectual Disabilities, in rural areas. This will enable
persons with IDDs, located in rural areas, to overcome their limitations in joining livelihood
schemes. This would also enable social inclusion of persons with intellectual disabilities which is
a pre-requisite for leading a life with dignity and purpose.
As part of this convergence initiative CBM sponsored three Mentor training workshops. BVJF
embarked on to train 60 no DPOs and livelihood projects’ personnel as Mentors who would
understand the needs of persons with IDD and be able to coach them for inclusion in the
livelihood and SHG programs. BVJF members organized the workshops at Amaravati dist,
Maharashtra, Gorakhpur, Uttar Pradesh and Ranikhet, Uttarakhand. Parivaar NCPO developed
a three day training curriculum for BVJF personnel, out of the Mentor training curriculam.
Parivaar NCPO also provided its master trainers as resource persons for the program.Seventy
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six DPOs/ Community organizers attended the Mentor training workshops along with 21 parents
and professionals. The participants were from CBM partner organizations located in the states of
Bihar, Chhattisgarh, Jharkhand, MP, UP, Uttranchal and Maharashtra. The training was
conducted by 8 master trainers deputed by Parivaar-NCPO.
The component of Self Advocacy training module in the Mentor training curriculum included
activity oriented games, role play, group discussions, communication & speeches, and host of
activities; all dedicated towards inculcating life skills in the trainees (persons with intellectual
disabilities). The life skill focus is on imparting/ enhancing Self Awareness, Awareness about
rights and responsibilities, Listening skills, Managing feelings, Self-protection, Solving small
problems, Interpersonal relationship, Effective communication and Decision making.
The above three days training programs effectively prepared the Community workers/ DPO
members to act as a Mentor for building potential of persons with intellectual disabilities. The
training elicited good response and enthusiasm among the participants who were graduated as
Mentors. Further such aware community organizers and DPO members will also facilitate
advocacy in the community to ensure that persons with intellectual disability are not isolated or
marginalized at home or in the community.
B. Mentors’Training & Self Advocacy Programs in Five states

From 1st January 2019 Parivaar in collaboration with CBM has started implementing Mentor’s
training and Self Advocacy programs in the states of Madhya Pradesh, Rajasthan, Odisha,
Jharkhand and Maharashtra. Following Parivaar partners are acting as nodal state coordinators
for implementing the project in their respective states:
1. Madhya Pradesh - Nishakt Vayahti Abhibhavak Sangh
2. Jharkhand – Bhawishya Kiran
3. Rajasthan – Asha ka Zarna
4. Odisha – DAPPW
5. Maharashtra - Parivaar
The project has progressed as per the plan in first two quarters achieving the milestones as
follows:
No of Mentors trained : 350
No of districts involved in 5 states : 21
No of talukas where training was conducted : 43
During the Mentor training program held at Nagda the Mentor training was awarded CRE status
by RCI.
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BUILDING PARENTS’AWARENESS
Every year NIEPID in collaboration with Parivaar NCPO conducts National Parent Meet (NPM)
and Regional Parent Meets (RPMs) in different parts of the country. These Parent meets are
hosted by local Parent organizations affiliated to Parivaar for which funds are provided by
NIEPID. The Parivaar which is a national federation of Parents’ organizations (NCPO) works
closely with host organizations and support them with know-how and resource persons for the
RPM/ NPM. Together they also identify and motivate the parents of PwIDDs in the region to
attend the meet. The objectives of the regional parent meets is to:
1. Make the parents aware about their critical role in empowering PwIDDs
2. Spread awareness among the parents about the rights of PwIDDs as enshrined in RPwD Act
2016 and The National Trust Act 1999
3. Create awareness among the parents, professionals, NGOs regarding provisions and
schemes of GOI, State government and Local governments for empowerment of PwIDDs at
various stages of their life.
4. Form a network and collaboration among the parents, professionals and state government
teams for achieving empowerment and education & social inclusion of PwIDDs
5. Form local associations of Parents [on community based inclusive development model]
wherein the parents form groups to seek services required by their son/ daughter with ID, with
support from the government.
The theme of RPMs & NPM was SOCIAL INCLUSION AND LIVING LIFE WITH DIGNITY.
During the financial year 2018 – 19 following seven RPMs were conducted by Parivaar in
collaboration
RPM at Bodhgaya, Bihar 8th& 9th August 2018
RPM at Agartala,Tripura 21st& 22nd September 2018
RPM at Imphal, Manipur 13th& 14th October 2018
RPM at Aalo, Arunachal Pradesh 23rd& 24th November 2018
RPM at Mandamerri,Telangana 20th& 21st December 2018
NPM at Bhillai, Chhattisgarh 12th& 13th January 2019
RPM at Kurukshetra, Haryana 12th& 13th March 2019
RPM at Jamshedpur, Chattisgarh 23rd& 24th March 2019
NPM Bhillai : The key note address given by Dr Himganshu Das emphasized on social inclusion
and the role that parents can play to ensure that their child is never discriminated at home or in
public. Over 320 parents participated in the NPM representing 17 states and 2 UTs. Some
parents came with their PwIDD wards. The eminent speakers were Prof RS Murthy, past
Professor NIMHANS, and eminent personalities from diverse fields such as Mr Aneesh Saxena,
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Dr Afshan Jabeen. There was close interaction among the parent, professionals and resource
persons.
No of Parents/Professionals & No of Persons with intellectual Total

Community workers/volunteers and developmental disabilities Participants
Male Female Male Female
128 149 27 17 321
RPM at Bodhgaya : The 1st RPM of 2018-19 had very large participation from Parents since the
last RPM conducted in Bihar was in 2013. Dr Shivaji Kumar, Commissioner of PwDs of Bihar, Dr
Keshwal, Incharge RC NIEPID Kolkata and Dr Rahul Mehta from Parivaar NCPO are all alumini
of NIEPID and spoke on various topics during the RPM. Dr Shivaji Kumar also delivered key-note
address as the chief guest and his presentation set a benchmark for the role of commissioner for
empowerment of PwIDDs. The parents highly appreciated the information exchange in Hindi and
were motivated to form the first parents’ group in Gaya district of Bihar.
Community workers/ volunteers and developmental disabilities Participants
84 52 17 7 160
RPM Agartala: The RPM at Agartala was conducted in a professional manner and was
characterized by emphasis on skill building as a route to social inclusion of PwIDDs. Self
advocacy was also professed by Parivaar and very well received by Parents. They wanted to
have a stronger emphasis on inclusion from local administration which was agreed by the state
government. A mentor training course for volunteers was planned to be conducted subsequently.

67 74 14 9 164
RPM Alo, Arunachal Pradesh : Among all the RPMs, the RPM at Aalo, Arunachal Pradesh
had unique distinction of recording attendance of over 680 delegates attending both days of the
event. These delegates comprised of parents, professionals, Anganwadi sevikas, ASHA
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workers and teachers. During the inauguration the chief guest was Shri Jarkar Gamlin, Minister
of Tourism, Tax & Revenue, Arunachal Pradesh. The guests of honour included Mrs. Shakuntala
D Gamlin, Secretary, DEPwD/ MSJE along with Mrs. Dolly Chakraborty, Joint Secretary, MSJE.
Dr Himangshu Das, Director NEIPMD. Major Ram Kumar, DDA NNIEPID, attended the RPM at
Aalo as the hosts. NIEPID also distributed awareness kits to Anganwadi sevikas during the RPM.
The Parents and local professionals were also briefed about using TLM kits and the kits were
distributed to over 30 children.
Community workers/volunteers and developmental disabilities Participants
207 388 57 35 687
RPM Mandameri, Telangana : The RPM at Manadamari, Telangana, was conducted at BCCI
premises next to the coal mines. It saw many parents belonging to coal field employees and
labourers and agriculture labour from neighboring areas evincing keen interest to know about
early intervention, concept and practice of inclusion and self-help groups. The NIEPID staff and
Parivaar volunteers conducted hands-on Self-advocacy training to motivate the parents to take
Mentor roles. Many illiterate as well as working mothers came forward to form an associations to
take forward the schemes discussed during the RPM.

47 72 18 11 148
RPM Kurukshetra : The RPM had special emphasis on autism/ ASD disabilities since many
parents in the region wanted to know details and supporting measures for these disabilities. Mrs.
Mary Barua and Mrs Chaswal who are the leading autism professionals in India addressed the
meet and answered many queries (individual & group) after their technical sessions. The
professionals from Muskaan, Delhi, talked about skill building and open employment in private
sector, and the mentoring efforts.
Community volunteers and developmental disabilities Participants
77 97 11 6 191
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RPM Imphal : The RPM at Imphal, Manipur, was interesting because of active participation by
local parents. There were many parents of children with Autism and good time was spend by
NIEPID faculty and local professionals to dwell on sensory integration. Mr L Dhaneswar Singh,
local advocate and Dr Ch Noren Singh dwelling on local government initiatives and how parents
can collaborate together to avail more schemes benefitting their children with intellectual
disabilities. There were many community leaders who volunteered to participate in RPM which
had good impact in future for social integration of PwIDDs in Manipur.The children with ID from
Imphal were also very enthusiastic and put up good cultural show in the evening.
47 58 12 15 132
RPM Jamshedpur: The last RPM of the financial year was conducted at Jamshedpur. Here there
are well managed assisted workshop facilities managed by parents. The emphasis was social
inclusion of these adult PwIDDs who work in assisted workshops but did not have opportunity for
inclusive life. Therefore Self Advocacy sessions were taken up in good stride by Parivaar
resource persons and supported by local parents. Subsequent to RPM a strong group of Parents
has emerged which is enabling conduct of Mentor training courses for parents and volunteers in
Jamshedpur and adjoining districts.
81 88 16 4 199
All the RPMs and NPM conducted in year 2018 – 19 achieved the objectives in terms of
awareness generation among parents and initiating CBID for PwIDDs in an aware social
environment. It also gave necessary boost to collaboration among the parents and state
government/ local authorities.
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Approved RPMs/ NPMs in the year 2019-20

Srl City State Month/ Year
RPMs
1 Secundrabad Telangana October 2019
2 Madhubani Bihar November 2019
3 Dharamshala Himachal Pradesh November 2019
4 Thiruvantapuram/ Kozikode Kerala December 2019
5 Kolkata West Bengal December 2019
6 Kakinada Andhra Pradesh January 2020
7 Mangalore/ Manipal Karnataka January 2020
8 Aizwal/ Dimapur Manipur/ Nagaland February 2020
9 Gangtok Sikkim March 2020
10 Banaras Uttar Pradesh March 2020
NPM
1 Ahmedabad Gujarat October 2019
OTHER INITIATIVES FOR EMPOWERMENT

A. Data Collection System to Analytically find out the Reasons for Low Penetration of
Schemes Developed for Persons with ID
Data is the back bone of advocacy. When armed with reliable and authentic statistics the
effectiveness of advocacy multiplies. Therefore Parivaar has developed a portal for collecting
and analyzing data and initiated a data collection drive all over India with the support of its
member organizations.
The data collection format has been made as simple as possible. The organizations have to log in
from Parivaar portal www.parivaarnfpa The entire data entry system is menu driven and the
format is self-explanatory. The system is focused to find out reasons for PwIDDs & their parents
not being able to avail services of government schemes and provisions. There are:
i. Why the child has to go to a Special school or not going to any school
ii. Why child is deprived of play or recreation facilities
iii. Why person with ID has not enrolled into health insurance scheme
iv. Reason for not being able to avail health services
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v. Reason for not having a disability certificate

vi. Why the person with ID is not employed
vii. Reason for not availing disability pension
viii.Reason for not availing bus/ train fare concession
ix. Why guardianship provision not availed, if over 18 years age.
x. How the person with ID going to manage after parents are no more
By getting answers to above queries in a drop down menu format the system provides very
pointed information.
Therefore now it is up to us as Parents & Parent Organizations to ensure that data for each
person with IDD is logged into the system. Those who can not do online data entry can avail off
line data entry [in a excel sheet format] or can fill up data on paper form.] Filled up forms be either
scanned and emailed or paper form posted to Parivaar admin office.
B. Strategy Workshop in Collaboration with NIEPID on Rehabilitation of Persons with ID

after Parents are no more
The strategy workshop was conducted in collaboration with NIEPID in NIEPID, Secundrabad
campus. The objective of the workshop was to brainstorm on important subjects 1)
Prerequisites of residential home 2) Self Advocacy training for enhancing potential of
persons with ID to enable their employment and 3) models of financial management to
make PwIDDs independent in future. These are the subjects that are very critical for parents
but as yet, there are no researched parameters that govern the success of Parent enterprises
providing such services. Thirty two parent leaders representing 22 states and UTs across India
participated in the workshop. The core faculty of NIEPID also participated in the two day
workshop to brainstorm and guide the discussion.
Session 1: Models of Residential Homes:
During the 1st strategy session on 28th Sept 18, following four models of residential homes for
adult PwIDDs (during or after demise of parents) were discussed. There were:
a. Residential homes: In existing formats
b. Group homes: In above format but more inclusive in terms of location and living
arrangements.
c. Integrated Residential homes: In any of above two formats but parents also living in the
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same campus in their own home (flats/unit) and after their demise the flat/unit goes to the
residential home.
d. Independent homes: Where the PwIDD continues to live in his/ her own home and a
Parent Organization running a group home acts as bureau and undertakes to provides
Care giver and type of care required by this PwID, on payment basis. One or more PwID
may be placed in such residences for giving company to person with IDDs, and sharing
cost/ services.
There was extensive discussion on the above models of residential care and also to find reasons
for some residential homes not taking off, as planned. These were:
a. Ego of parents running the centers
b. Financial sustainability not considered
c. Parents not shifting as planned during formation stage
d. Parents not sending their PwIDD ward due to various reasons
e. Inability of parents to pay high fees.
f. Lack of confidence that group home will provide adequate security &
sustainability in long run
A survey was carried out to find the most required attributes of group homes by parents, to have
confidence to keep their ward. Out of 26 attributes listed by parents the following were
categorized as most important:
Attributes & Ranking
a) Safety & Security 1
b) Quality of services 2
c) Availability of care givers 3
d) Parent involvement 3
e) Vision for future 4
f) Medical facility 5
g) Confidence & trust in mgmt. 5
Session 2: Getting PwIDDs Actively Involved In Skill Building and Employment:

In the Strategy Session 2, there was discussion about getting PwIDDs actively involved in Skill
building and employment. The following employment models were discussed
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a. Traditional Assisted workshops

b. Open employment
c. MGNREGA (MG National Rural Employment Guarantee scheme}
d. NRLM/ SRLM ( State/ National Rural Livelihood Mission)
During discussions it was apparent that PwIDDs will have better chances for employment if they
undergo Life Skill building training and Self Advocacy training. Parivaar has pioneered Self
Advocacy training. There was considerable discussion on why Parivaar members, themselves
donot practiced Self Advocacy in a vigorous manner at their respective organizations/ homes.
Many reasons were mentioned. During the round table survey the reasons for not vigorously
practicing Self Advocacy training by Parivaar members came out to be:
Attributes & Ranking
a. Don’t know importance of Self Advocacy which points to Lack of awareness among parents
b. Lack of knowledge/guidance to conduct self-advocacy training
c. Non availability of mentors/trainer
d. Lack of confidence in own son/ daughter who is ID
Session 3: Models of Making PwIDDs Financially Independent:

In the 3rd Strategy sessions various models of making PwIDDs financially independent were
discussed along with how to manage his/ her financial affairs. In case of fiduciary management
following emerging models need careful consideration of parents:
a. Fiduciary management by banks or consortia of banks
b. Formation of private trust
c. WILL and appointment of executor of WILL by parents was considered extremely important
d. National trust as fiduciary manager
e. Using section 13, 14, 15(1), 15(2) of RPwD Act 2016 to plan arrangements through SDM
In the case of regular income the opportunity from EPS/ EPF schemes need to be considered
and applied by Assisted Workshops/ small business employment where at present PwIDs are
employed but not registered for EPS or EPF.
After summing up the recommendations of Strategy meeting the president thanked the
members for their valuable contribution of thoughts during the strategy meet
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GOVERNANCE AT PARIVAAR
Parivaar, like any other progressive organization, has been on a steep learning curve. In order to
bring in simplicity and ease in follow up of governing rules it was decided to develop Office
Operating Manual from the elaborate procedure manual approved by AGM in 2013. The
procedure manual was considered to be complex for skeletal organization and required large
system support, which is not feasible within the HR resources of Parivaar. The simplified Office
Operating manual has been implemented fully along with statutory guidelines.
CBM team carried out an in depth 3 days review of Parivaar administration and governance
practices. CBM team appreciated the Parivaar Office Operating Manual, implemented system,
manpower competence and financial accounting practiced at Parivaar administrative office.
They reviewed the following systems and expressed their satisfaction in their report submitted to
their principles, and copy shared with Parivaar. The major areas reviewed and given positive
report were:
a. Statutory compliances
b. Minimum financial criterion, Financial accounting system and follow up
c. Internal controls
d. Comprehensive double entry financial system, regular internal reviews
e. Budget, Cash flow management, risk management and forecasting
f. Anti-corruption and other statutory policies
g. HR management, job description and management
h. Capacity to manage projects
i. Equal opportunity policy, Rights & Equality of women employees
j. Commented favorably on capacity to manage projects, project delivery, regular reporting
k. Efficient management and supporting Parivaar partners executing the projects
l. Mechanism and resources in place to manage risks
m. Good and competent leadership in place
CBM has given some suggestions for further enhancing and fine tuning the system. These were
incorporated to the satisfaction of CBM within a month of review.
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FINANCIAL REPORTING
A. Audit Report:
The annual audits were conducted for financial year ending 31stMarch 2019 by M/s SPARK and
Company. Copy of the Consolidated accounts with Auditor’s report in Form 10A is attached at the
end of The Annual Report.
PILLERS OF SUPPORT
Parivaar sincerely thank CBM for supporting Networking & Self Advocacy projects, NIEPID for
sponsoring RPMs and NPMs, Sumitra Ramarao Nagarkatti Foundation and Shri PS Burde for
their generous donations for supporting initiatives of Parivaar. Parivaar is much grateful to Mrs.
Anjali Bijur for providing her flat, free of rent, for housing Parivaar AO office during this reporting
year.
In the end I on behalf of office bearers of Parivaar NCPO wish to thank all member organizations,
parents, professionals and Persons with Intellectual and Developmental disabilities (Self
advocates) for their whole hearted support, guidance and encouragement that enabled us to
work towards our objectives, to the best of our ability.
Thank you and Best wishes
Cdr. Shrirang N. Bijur

President, Parivaar NCPO
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ANNEXURE 1
PARIVAAR NCPO OBSERVATIONS & RECOMMENDATIONS ON

NATIONAL EDUCATION POLICY
1. Early Childhood Care and Education [ECCE] for very young children between 3 to 6
years age, while taking cognizance of the difference in the development of their
cognitive abilities.
It is rightly pointed out in the draft policy that 85% of brain development occurs by the age of 6
years. Therefore policy’s emphasis on Self-help skills, Motor skills, Handling anxiety,
Communicating thoughts and feeling; is what children with different abilities can do well with.
The children with lower cognitive & sensory abilities [Intellectual disabilities, Autism/ AHSD,
Multiple disabilities] will require one to one therapeutic care as will be the case with blind,
physical/ neurological and hearing impaired children who have to be given special support for
learning braille/ sign language etc. Compulsory/ special emphasis be provided for the
foundational stage framework [flexible, multilevel, play based, activity based, shape-sound-
movement games, local language, building curiosity-patience-socio-emotional skills etc]. Also
provision should be made in the pre-primary level for children with varying cognitive abilities for
lower pupil teacher ratio (PTR). This would serve the special needs of differently abled young
children for attaining their full potential.
Recommendations:
a) Schools receive pooled therapy resources from National Health Mission/ District early
intervention center (DEIC)/ Composite Rehabilitation Center (CRCs) during ECCE for one
to one sessions with students with special needs.
b) Lower teacher – student ratio during ECCE for children with special needs to enable their
grasp on learning tools [cognitive building, sign language etc]
c) Emphasis on teaching rot skills at pre-school level should be banned by state.
d) Mothers of children with special needs should be employed as resource helpers with
honorarium. To bring out the girl child mothers of girl children with special needs be given
preference over others (to overcoming security inhibitions).
2. Attaining foundational literacy and numeracy for all children.

The draft national education policy entails literacy and numeracy as an immediate national
mission for the country. Indeed it should be the national priority above all. However students with
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intellectual and developmental disabilities, based on their functional level, may have to be
tendered with different priorities. These priorities include learning activities of daily living [ADLs],
communication, recognizing self, sensory integration and social inclusion. These functional
skills are attained by most other students as a learning/ cognitive process. Such students with
special needs may have to spend more time [than the peer students] in pre-literacy and pre-
numeracy functions. Some of them [over 60%] may not be able to attain literacy and numeracy in
real sense. For them the experiential learning leading to understanding of the abstract and social
inclusion is the objective. This needs to be also articulated in the policy to make the policy
inclusive for students with intellectual disabilities [Intellectual disability, Autism, AHSD, Learning
disabilities, neuro-development disabilities].
Recommendation:
a) Objective for students with special needs [Intellectual disability, Autism, AHSD, Multiple
disability] should be to stated in the Education policy to make it an Inclusive National
Education Policy.
3. Co-locating Pre-schools with Primary schools

Some pre-schools for children with special needs [today’s special schools] integrated with
primary schools can work in inclusive school format. Such integrated pre-schools continue to
focus on developmentally appropriate activity based training even after the age of 6 years. The
existing private and government run/ aided special schools be also incorporated in this
framework of integrated Pre-schools & Primary School. This would also provide option to the
child/ parent to select the most appropriate school between an integrated preschool and
mainstream pre-school, as given in Section 31 of Rights of Persons with Disability Act.
Recommendation:
a) All pre-schools, special schools (private or public) be placed under the National Education
policy to benefit from proposed innovative measures.
b) Attach existing special schools with primary schools for transition of students with special
needs in inclusive set up of primary schools, wherever feasible, and where requisite facilities
are available.
c) Special school can provide resources for children with learning disabilities in mainstream
primary schools.
d) All schools should have universal access and disabled friendly toilet should be compulsory,
as a policy.
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4. Safety & Security of Children with Special needs

One of the major reasons why the parents of children with special needs hesitate to send
children to school is safety and transport. Both should be arranged by local government. This is
not clearly stated in the policy.
a) Safety and security of children with special needs is crucial, and one of the reasons why
parents hesitate to send them to school. This should be explicitly covered in the policy.
b) Provision of transport with care taker for children with special needs to access the school.
5. Concept of School Complexes:

The concept of School Complexes to group neighboring schools (for administrative purpose)
with an objective to facilitate the sharing of resources and render school governance more local
flavor, effective, and efficient. The objective of Sharing of Resources will be better fulfilled if each
such school complex has a Special school included which will provide specialist care to the
students with disability studying in the mainstream. In addition such school will take care of the
special needs of students with intellectual disabilities requiring specific care in the below
mentioned abilities. The special school in the School complex can be considered as specialist in
i. Cognition & learning
ii. Social emotional and mental health of students
iii. Sensory & physical needs
iv. Communication & interpersonal interaction
v. Learning disabilities
vi. Para Olympics and Special Olympics sports training
Recommendations:
a) All students with special needs (their parents) get choice of school in the School Complex,
under Section 31 of Rights of Persons with Disability Act 2016.
b) Include pooled special school facilities for children with intellectual disabilities (moderate,
severe, profound) based on their learning potential without limitation on chronological age,
with in each school complex.
c) Special school & teachers act as special resources for all schools in the School complex.
d) All inter-school events and competitions should be inclusive. Special facilities to be provided
to students with special needs for competing in Special Olympics and Para Olympics local for
their respective age groups.
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6. School Governance & Engagement of community ownership:

For the success of educational endeavors it is essential to draw expertise of community
members and parents. As on date School Management Committees (SMC] are not effective
mainly due to the parents being inactive due to various compulsions. The parents [mothers] of
students with disability should be represented in all SMCs and SCMCs because they are the one
who get first-hand information from their child and understand their needs. These mothers
should be compensated for loss of daily wage and payment for transport for attending SCMC/
SMC. The mothers of students with special needs should be also employed as community
workers to assist the teachers for looking after the special needs of the students in the class.
Further the Zilla Shiksha Parishad (District Education Council) should have strong linkages with
District Level Committee (for empowering persons with disabilities).
Recommendations:
a. Parent [mother] of student with disability be included in SMCs and SCMCs and reimbursed
for transport and wage loss for each SMC/ SCMC meeting.
b. District Education council and District level committee for PwDs should have strong linkage
c. Preferential employment to mothers of students with special needs as resource person in the
school.
7. National Curriculum Framework:

The policy explicitly states that every student has innate talents which must be discovered,
nurtured, fostered and developed. This is most relevant for Students with Special Needs.
Therefore the curriculum development for children with special needs [Intellectual, Autism/
AHSD, Learning disabilities] must be differentiated while maintaining comparable milestones of
achievement, as with other students. This would support their education needs thru the age
while not necessarily considering their chronological age as the factor for achieving the
education milestones.
Recommendation:
a. Appropriate NOIS type curriculum for students with special needs but encompassing arts,
sports, computer graphics & art courses etc.
b. Special distance education/ home based education curriculum designed for students with
severe and profound disabilities for their sense of achievement.
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8. Vocational Education & Skill Development in school:

Vocational education and skilling has been given fair importance at curriculum of all stages in the
school education. The draft policy envisages to introduce vocational arts & activities such as
gardening or work with clay etc in the foundational years [6 to 10 years]. For children with special
intellectual and developmental needs [low moderate & severe and profound forming 56%] the
activities of daily needs [ADLs] is a skill set to be developed in & off the school timings. Therefore
for a special and inclusive set up these skills be considered as part of the developmental
curriculum for such students based on their initial assessment. We quote here the draft policy
section 4.6.8.2 which is very relevant for present and future social inclusion of persons with
intellectual and developmental disabilities.
Draft Policy Section 4.6.8.2 Using dustbins, using toilets and leaving toilets clean after use,
standing in queues properly and patiently, helping the less fortunate, being punctual, and always
being courteous and helpful to those around you in general even when you do not know them,
are basic values of social responsibility that will be taught and inculcated in students early and
throughout their school years.
Similarly while imparting knowledge of basic livelihood skills to students in the secondary school
the children with special needs may be given inputs of housekeeping, digital literacy, social
etiquettes appropriate to age, self-protection and social/ group interaction.
Recommendations
a. Soft skill training for children with special needs {intellectual, autism, AHSD, multiple
disabilities] be considered as pre-vocational and skill building training.
b. Vocations appropriate to capacity & competence of students with special needs be
introduced as integral part of high school curriculum.
c. Students with special needs should be able to pursue the vocational training and skill building
in secondary school and not restricted to chronological age.
9. Seeking collaboration of Departments:

The draft policy envisages strong collaboration among the departments of Women & Child
development, Health & Family welfare with Human resource department at every level. An
important stakeholder for Under Represented Groups [URG] is Ministry of Social Justice &
Empowerment / Department for empowerment of Persons with Disabilities (DEPwD) which is
tasked with implementation of Rights of Persons with Disabilities Act [RPwD Act 2016] having
component of education, vocational skill building of persons with disabilities. In addition the
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DEPwD has National institutes and composite regional centers (CRCs) under its fold that are
acting as fountain head of knowledge for education, vocational training & skill building of persons
with disabilities.
Recommendations:
a. Actively consult Dept of empowerment for PwDs/ MSJE in finalizing the policy to include
necessary provisions for children with special needs.
b. Close collaboration with DEPwD/ Samaj Kalyan vibhag/ CRCs at national, state, district and
taluka level for resource pooling and knowledge sharing during the implementation of policy.
10. Four years integrated education training for teachers:

It may be difficult for some students desirous to join teaching profession to go for a four year
under graduate course leading to B.Ed. Besides the teachers in preparatory school, Special
education, Arts & craft would need Assistant/ junior teachers. At Foundational & Preparatory
schools diploma level teachers will be required to act as assistant teachers as is practiced for
play group, early intervention support and experiential learning schools all over the developed
countries. This also helps to maintain lower student – teacher ratio required for these schools;
where the finance become a constraint looking at the fiscal realities. The policy should also
profess equitable pay scales for all B.ED teachers unlike the present situation where the Special
teachers are paid much less in the government aided and private schools as compared to
mainstream teachers. That is to attract the right potential for this stream which requires high
degree of ingenuity and perseverance to obtain desirable results. The present system of Special
education teachers and professionals providing services to students with special needs,
requiring registration with RCI should be done away. Because this becomes a starting point of
discrimination for students with special needs because other category of teachers [Foundational
& preparatory school teachers, Art & Craft teachers, Subject teachers, Physical training
teachers] will not be allowed to teach them for want of their RCI registration.
Recommendations:
a. Keep provision of 2 years Dip.Ed type course for resource persons in preparatory, pre-
primary level for maintaining low teacher – student ratio under budget constraints.
b. Resource teachers for children with special needs [cognitive, sight, hearing, non-verbal,
developmental, sensory] can be diploma trained (for specific impairment). Their purpose will
be to enable the student to become inclusive in the class room and school set-up.
c. Provision for lateral entry of persons with learning disabilities in teaching profession based
on their merit in a subject.
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2018 - 2019 PARIVAAR
NATIONAL CONFEDERATION OF PARENTS’ ORGANIZATIONS
(For Persons with Mental Retardation, Autism, Cerebral Palsy & Multiple Disabilities)
Registered under the Societies Act 1860 Regn. No. S-30635 of 1996
C 4/5, S.D.A.I Floor, Opp. IIT Main Gate, NEW DELHI 110 016, Tel: 26964379
Reply to: PARIVAAR, A-1, Green Acres CHS, Salunke Vihar Road, Pune - 411048. Email: parivaarncpo@gmail.com
APPLICATION FOR MEMBERSHIP Membership No.

(Put tick mark wherever required)
Copy of NGO Registration certificate and Constitution must be submitted with this form
1. Name of the Applicant Organization
2. Complete Address (with Pin Code)
3. Telephone Nos. (with STD code)

Mob No. Email:
4. Parent Association Professionals’ Association Voluntary Organisation
Registered under Society’s Regn. Act Regn. No. Date:
Registered under Public Trust Act Regn. No. Date:
(Enclosed Copies of Regn. Certificates
& a copy of constitution)
5. Disability working for: Intellectual Cerebral Palsy Autism Multiple Disabilities
PwIDDs disability
6. No. of Members : PARENTS & SIBILINGS: NON-PARENTS: PwIDDs
7. Name & Complete Residential Address (with Pin Code) of
President Secretary
Mob.No. Office: Mob.No. Office:

Email: Email:
8. Category of Membership & Membership Fees (April to March)
i) PATRON One time lumpsum Corpus Donation of NOT LESS THAN Rs. One Lakh
ii) MEMBER One time Corpus Donation : Rs. 1000/-
Corpus donation Rs 1000 + Annual FeeRs 1500 = Total Rs 2500
iii) AFFILIATE MEMBER One time Corpus Donation : Rs. 1000/-
Corpus donation Rs 1000 + Annual Fee Rs 1500 = Total Rs 2500
9. DECLARATION: We have read the Constitution of PARIVAAR and agree to abide by the same. Our membership
shall be subject to approval by the Executive Council of PARIVAAR. If admitted, we shall work for fulfillment of
the aims and objectives of PARIVAAR.
10.
Enclosed One time Corpus Donation and Membership Fees of Rs. in Cheque / DD No.
in favour of PARIVAAR NFPA payable at Pune) dated on

(Bank)
Date: _____________Rubber stamp of the Association

Signature of President/Secretary
PLEASE ATTACH FOLLOWING DOCUMENTS WITH APPLICATION
1. Society/ Trust registration certificate
2. Registration certificate with state govt. dept for PwD
3. Copy of Society constitution or trust deed
4. List of members, tel no and indicating Parent or Non parent against each name
FOR OFFICE USE:
Application Recd. on ______________________Receipt No. ______________________ Date __________________
Treasurer’s Signature __________________Date ____________ Gen. Secretary’s Signature ___________________
Membership : APPROVED / NOT APPROVED BY E.C. on at the E.C. Meeting held at _________________________
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ORGANIZATIONS REGISTERED WITH PARIVAAR NCPO

List of Activities : DC-Day care center, EIS- Early Intervention Services,
GH-Group home or Hostel, PA-Parent awareness/ Advocacy, SA-Self Advocacy,
SCH-School, WS-Work shop/ Vocational training, EMP- Employment training
Sr. Reg. Name of Organization City Activity (see List)
Tel. No.
No. No.
CENTRAL ZONE
MADHYA PRADESH
1 MP101 Indore Society for Mentally Challnged Indore 9827205554 SCH,WS
2 MP102 Parents Society of MP for Welfare of Persons
with Disabilities Bhopal 9826938422 SCH,WS,SA,PA
3 MP103 Madhya Pradesh Viklang Sahayta Samiti Ujjain 9685969503 PA,SA,SCH,WS,
EIS,GH,DC
4 MP104 Saraswati Sanskar Bal Kalyan Samiti Indore 9425081824 SCH
5 MP105 Nishakt Vayakti Abhibhavak Sangh Jabalpur Jabalpur 9425150672 PA,SA,WS
6 MP106 Nagda Zenth Social Welfare Society Nagda 9425195626 DC,WS,PA
7 MP107 Adhar Foundation Chindwara 8989173581 SCH
8 MP108 Nishaktjan Adhar Welfare Society Indore 9644441494 WS
9 MP109 Divyangjan Abhibhabhak Sangh Sagar 8319567532 DC,EIS,GH,PA,SA,
Kalyan Samiti ( Life Line Service Society) SCH,WS,EMP
10 MP110 Devvrat Gram Vikas Siksha Samiti Gopal 8770252437 SCH,GH,SA,DC
RAJASTHAN
11 RJ101 Parents Association of M H Dr. K C Bafna Jodhpur 9829888585 PA
12 RJ102 Asha Ka Jharna Nawlgarh 9414036896 SCH
13 RJ103 Support and Advocacy for Helpless People Sansthan Jaipur 8209296292 PA
14 RJ104 Panchsheel Parents Association Udaipur 9680245554 SCH,WS,SA,PA
15 RJ105 Prachya Shodh Peeth Samiti / Prayass Sansthan Udaipur 9351549074 SCH,WS,SA,PA
16 RJ106 Approach Autism Society Jaipur 9214309551 EIS,WS,PA
17 RJ107 Yogesh Shekshik Punarvash Awam Shodh Sansthan Niwai,Tonk 9829316028 EIS,GH,PA,SA,SCH,WS
18 RJ108 Institute for Rural Development Technical
Research (Shramsheela Ashram) Baran 9799925275 SCH,WS,PA
19 RJ109 Sehyog Society Jaipur 7568018500 SCH
20 RJ110 Society For Welfare Of Mentally Handicapped
(Shree Nirmal Vivek School) Jaipur 9649014230 SCH,WS,GH
21 RJ111 Mercy Rehabilitation Society Swaimadhopur
Rajasthan (Muskan Residential Special School) Swai Madhopur 9828810154 SCH
22 RJ112 Marudhara Bal ShikshanSansthan Pipar city,Jodhpur 9460956847 SCH
23 RJ113 Rajasthan Mahila Kalyan Mandal
Sanstha (Vishwamitra Ashram) Chachiyawas,Ajmer 9413223809 EIS,SCH,DC,WS
24 RJ114 Deep Vidhya Mandir Samiti Dausa 9414035821 SCH,WS,SA,PA
25 RJ115 Divyang Parivaar Sewa Samiti Swai Madhopur 9460993191
CHHATTISGARH
26 CH101 Samartha Parents Association for Persons
with Mentally Retarded Korba 9425539703 SCH,PA
27 CH102 Sneh Sampada Vidyalaya for (MC Children) Durg 9425553996 DC,GH,WS
28 CH103 Sarthak Kadam Sansthan Durg 9752099022 SCH,SA,WS
29 CH104 Mansik Awam Vikalang Kalyan abhibhawak Sangh Bilaspur 9827186959 EIS,WS
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EAST ZONE
WEST BENGAL
30 WB101 Association of Parents of Persons with
Autism Spectrum Disorder(West Bengal) Kolkata 8777253542
9434086363
9433246128 PA,SCH,WS
31 WB102 Behala Bodhayan Kolkata 9339751472 DC,GH,PA,SA,
033-24939410 Respite Care WS
32 WB103 Bodhayan-An Assn. of the Parents of Persons Kolkata 033 -24236741 PA PLAY CLINIC
with Mental Retardation 9163877871 RESPITE CARE & WS
33 WB104 Navodit (Parents Assn. Of Asansol Anandam ) Asansol 0341- 2307580
9434215099 PA
34 WB105 Parents of Hope Durgapur Durgapur 8016314617
8918971807
9475543404 PA
35 WB106 Partner - Hooghly Hooghly 033-26319260
9433151396 WS,SA,PA,DC,GH
36 WB107 Prayas Community Living Center Tollygunge Kolkata 8902184912
7890580375 GH,PA,WS
37 WB108 South Kolkata Parasmoni Kolkata 9830411480 WS,PA
38 WB109 Uttarpara Ashraya Bhadrakali,
Uttarpara 9831182790 WS,DC,PA
39 WB110 The Association for the Development of the Kolkata 033 8274011231
Mentally Handicapped (MENTAID) 9831004412 SCH,WS,SA,PA
40 WB111 Speech And Hearing Action Society ( SAHAS) Durgapur 9434009877 0343-2531188PA
41 WB112 Kalyani Life Institute Kalyani 3325828824
9830017416 DC,EIS,PA,SA,SCH,WS
42 WB113 Childlife Preserve Shishur Sevay Kolkata 033-24981120,
9830240182 SCH,GH
43 WB 114 Bhabna Trust Kolkata 9231812292
9836640551 EIS,PA,SA,WS,EMP
44 WB 115 Chinsurah Sense Society Chinsurah 9830832150 EIS,SCH
45 WB 116 Joygram Social Welfare Society North 24 9635606677
Parganas 7980720053 Sch,PA,CBR
ODISHA
46 OD101 Orissa. Assn. of Parents with Special Children Cuttack SA,PA,DC
47 OD102 Shraddha Rourkla 9438187899 SCH,WS,SA,PA
48 OD103 Parents Assn. MR Children Bhubaneshwar 9437141058 SA,PA
49 OD104 Hope Rajgangpur 06624-220131
9437083471 SCH,WS
50 OD105 Dr. Braja Vihari Mohanty Bhubaneshwar 0674-2577921
Memorial MR Benefit Trust 09437075921 GH
51 OD106 Center for Autism Therapy Counselling and Help Bhubaneshwar 0674- 2542327
09937004040 SCH
52 OD107 District Association of Parents and Sonepur 6654 220199
Person with Disability [DAPPWD] 9437194908 SCH,WS,SA,PA
28
ANNUAL REPORT
2018 - 2019
53 OD108 Parents Assn. for the Welfare of the Mentally Retarded Rourkla 91- 6742320960 SCH,SA,PA
54 OD109 Shyam Anu Debaki Memorial Trust (An Organisation
for Old and the Differently Abled) Rourkla 09437196994
9438168361 SCH
JHARKHAND
55 JH101 Parents Association of Mentally Handicapped Jamshedpur, 0657-2231342
of Jamshedpur (PAMHJ) east Singbhum 09234672214 WS
56 JH102 Bhawishya Kiran Parents Association Ramgarh, Ranchi 9431535390
6203274062 DC,SA,SCH,WS
57 JH103 Deepshikha Ranchi 0651-6570685 DC,SCH
58 JH104 Jharkhand Parents Assn Ranchi 8940709028 WS,PA,SA
59 JH105 Narayani Charitable Trust Dhanbad 7004912363 SCH,WS,SA,PA
60 JH106 People For The Advancement of
The Handicapped (PATH) Jamshedpur 0657-2237766 SCH,WS,SA
61 JH107 Divyang Margdarshan Trust Jamshedpur 9308820767
7004719087 PA
BIHAR
62 BH101 Raj Sewa Sansthan Nawada 9709799359 EMP
63 BH102 Akshaywat Sewa Sansthan Nawada 9470494020 EMP
64 BH103 Nav Chetana Vikas Kendra Nawada 9110093788,
9955560024 EMP
65 BH104 Vikalp Foundation Gaya 9430841602 EMP,SA,DC
66 BH105 Pataliputra Parents Assn. of Mentally Handicapped Patana 9431015499 SCH,WS,SA,PA
67 ** Vihar Viklang Adhikar Manch Aurangabad 7543020180
9431251459 PA
NORTH EAST ZONE
ARUNACHAL PRADESH
68 ** Arunachal Pradesh Parents Association
For Disabled (APPAD) Naharlagun 9436861193 PA
ASSAM
69 AS101 (PASS) An Organization of Parents for Welfare of Guwahati 9101337098
Persons with Intellectual and Developmental Disabilities 9435144104 GH
70 AS102 Pragati Parents Association JORHAT 9435247311 SCH
71 AS103 North Eastern Regional Multipurpose School and Dist. Vishwanath 9085969054
Handicapped Training Center 7002030938 SCH,GH
72 AS104 Prayash Parents Association of Disable Silikhaguri 9854753484
73 AS105 Mrinaljyoti Rehabilatation Centre Duliajan 09954487893
09954485193 WS,SCH,PA
MANIPUR
74 MN101 Parents Association for the Differently Abled Imphal 9436039450 GH
75 MN102 All Manipur for Mentally Handicapped
Persons Welfare Organisation Imphal 9856376817 SCH,WS,SA
MEGHALAYA
76 ME101 Meghalaya Parents’ Association of the Disabled Shilong 9436101329 SA,PA
77 ME102 Parents Association For Disabled Nongstoin 9615398454
8787687206 SCH,PA,WS
29
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MIZORAM
78 MZ101 Spastic Society Of Mizoram Aziwal 9436155462 GH
79 MZ102 Shelam Spastic Society SERCHHIP District Serchhip PA,SA
NAGALAND
80 NA101 Nagaland Parents Association for the Disabled Kohima 9856683130 GH
81 NA102 Dimapur District Disabled Parents’Association Dimpur 8794529526
9612163625 SCH,WS,SA,PA
SIKKIM
82 SK101 Spastics Society of Sikkim Gangtok 03592-203321
9847858218 SCH
TRIPURA
83 TR101 Abhoy Mission Aagartala 9436123069
Tel-Fax: (0381) SCH,WS,PA
2338607
NORTH ZONE
DELHI
84 DL101 Muskaan Parents Assn. for the Empowerment of
Persons with Intellectual Disability Delhi 011-41761873 WS,EMP,SA,PA
(MUSKAAN PAEPID)
85 DL102 Udaan Foundation for Spastics & New Delhi 91-22-26446978
Mentally Handicapped Persons 91-11-4162137 SCH,PA,PA
9911901948
86 DL103 Action for Autism New Delhi 011-40540991 SA,PA,SCH
87 DL104 Aradhana Parents Support Group New Delhi 011-22157564
9818854614 WS
88 DL105 Aaroh New Delhi 91-11-26899044
011-26144721 SCH,PA
89 DL106 Athak Prayas Sanstha Delhi 9560390901 PA
90 DL107 Autism Society for Awareness & Rehabilitation New Delhi 9810020930
9810140852 PA
UTTAR PRADESH
91 UP101 Uttar Pradesh Parents Assn. for The Lucknow 9838655461
Welfare of Mentally Handicapped citizens 0522-2352635 SCH,WS,PA,SA
92 UP102 Bundelkhand Mansik Viklang Jhansi 0866-2547074
Kalyan Abhivavak Samiti 9849524249 PA,SA
93 UP103 Prayaas Association of Parents for Special Children Varanasi 9415969909 PA
94 UP104 Sampata Parents’ And Guardian’s Association
of Mentally Challenged Persons Railbareli 9415190420 PA
95 UP105 Creative Education and Development Soc. [CEADS] Etah 9412618076 SCH,DC
96 UP106 Yaduvanshi Janta Shikshan Samsthan Gazipur 9918454611 SCH
97 UP107 Wonder Child Parents Association (Sankalp Day Care) Kanpur 9956079347 SCH
98 ** Rajeshwari Seva Sansthan Auraiya 9452577101 PA
UTTARAKHAND
99 UK101 Inspiration Dehara dun 9837721548 SCH
100 UK102 Latika Roy Memorial Foundation Dehara dun 0135-2761014
2761411 SCH
30
ANNUAL REPORT
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101 UK103 Rosni Society Haldwani (nainiatal) 7500841111

9837018726
8077442909 SCH
PUNJAB
102 PB101 Sapna Parents Assn. for M.R. Hoshiarpur 9417224999 PA
103 PB102 Chaanan Assn. for MR Jallandhar 09417006059
01814631899. WS,PA,SA
104 PB103 Ashirwad (The North India Cerebral Palsy Assn) Ludhiana 0161-2564551 PA
105 PB104 Swami Piara Singh Maharaj International
Humanity Welfare Society Zirakpur 98720 86417 SCH
106 PB105 Amrit Parivaar Parents Association Amritsar 8146520764
9814420764 SCH,GH,SA
107 PB106 Fathegarh Sahib Special Children Fathehgarh 9814850163
Parents Association 09815950301 SCH
108 PB107 Suabhiman Society Moga 9646209000
9238106667 PA
109 PB108 Asha Deep Welfare Society Hoshiarpur 01882-272461 SCH
110 PB109 Global Institute for Childhood Disability Amritsar 9417294911 SCH
111 PB110 Agosh Holding Hands Society Amritsar 9814933657 SCH
112 PB111 Punarjot Charitable Trust Barnala 91-1679-242445 SCH,WS
113 PB112 Swayam Society of Parents Assocaition Of
Person with Disabilities Mohali 9814213860 PA
114 PB113 Scientific Awareness And Social Welfare Sangrpur 9814806387 GH,SCH
115 PB114 Anmol Parents associatation Amritsar 9216913015 PA,SA
116 PB115 Ek Prayas Parents Association for MR Children Fazilka 9501254400 PA,SA
117 PB116 Samarpan society for the Taran Taran 9815258580 SCH,WS,SA,PA
development of mentally disabled
118 PB117 Red Cross Parents Assn. for Welfare Of
Mental Handicapped Children Amritsar 9888517238 SCH
HIMACHAL PRADESH
119 HP101 Udaan Parents / Guardian Society for the
MR Children of Shimla New Shimla 9911901948 SCH
120 HP102 Adhikar Parents Assocation Una Dist. 9418145425
7718079425 PA
CHANDIGARH
121 CN101 Sadhna Society for MH Chandigarh 9440625012 SCH
122 CN102 The Parents / Guardians Society of Children of GIMRC Chandigarh 7696050973 SCH
123 CN103 AshaDeep Welfare Society for PWIDD Chandigarh SCH,WS,SA,PA
JAMMU AND KASHMIR
124 JK101 Humanity Welfare Organisation (HELPLINE) Anantnag, Kashmir 0946064964
01932233141 PA,SA
125 JK102 AASRA Kailsh 9469132913 SCH
126 JK103 Disabled Care Foundation Gandhi Nagar 9419122810 PA,SCH
127 JK104 Parivaar Baramulla Assocition of Parents Baramulla 9469470014 SCH,PA
31
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SOUTH ZONE
KARNATAKA
128 KR101 KPAMRC Bangalore 080-22441289 PA,WS
129 KR102 Swasahaya Samuchhaya Parents Assn. of
Mentally Retarded And Cerebral Palsied Children Mysore 9342836045 SCH,WS
130 KR103 Sneha Bhavan Institute Bangalore 9446227169 WS
131 KR104 Asha Charitbale Trust Bangalore 080-23225279
23230357 SCH
132 KR105 Assoication for Mentally Challenged Bangalore 9845325100 SCH,WS
133 KR106 Shristi Special Academy Bengaluru South 9449002948
9972804021 SCH
134 KR107 Anga Vikalara Poshakara Sangha Davangere 08193-260341
9880649887 SCH
135 KR108 Parents Assn. of M. H. Children Bangalore 080-26566197 WS
136 KR109 WARDS Bangalore 080-25260285 SCH
137 KR110 Parents Assn. of Persons with CP And Associated
Disorders (PAPCP) Bangalore 8025201616 SCH
138 KR111 Belagaum Association of Parents Belguam 9448352894 SCH
0831-2404628
139 KR112 Udupi Parents’ Association for Mentally
Challenged Citizens Manipal 9845540293 GH,WS
140 KR113 Aruna Chetana Parents’ Association Bangalore 9741598443
8151877406
9448312624 SCH
141 KR114 Anupama Parents’ Association for Mental
Retardation “Premakamal” Gulbarga PA
142 KR115 Society for the Autistics in India / 8762780445
Apoorva Centre for Autism Bangalore 9845076140
9448372002 DC
143 KR116 Spastics Society Of Karnataka Bangalore 40745900 SCH
144 KR117 Glory Foundation Bangalore 904972040
9342949755 GH,WS
145 KR118 Autism Society of India Bangalore 080- 41511345
9845953473 PA
146 KR119 Dharithree Trust Bangalore Tel 23567518
9448353888 SCH,GH
147 KR120 Assisted Living for Autistic Adults [ALFAA] Bangalore Tel : 25327762
9741418103 DC,GH
148 KR121 Downs Syndrome Association Of Karnataka Bangalore Tel : 65648745
98455 40303 SCH
149 KR122 Mysore District Parents Association for Empowering
Developmentally Disabled Mysore 9448054272 WS
150 KR123 Asha Kiran Residential School for the
Mentally Challenged Shimoga 08182-240181
9448288487 SCH
151 KR124 Fame India Bangalore 080 - 22446622 SCH,WS
32
ANNUAL REPORT
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152 KR125 Tamanna School for Specially-Abled Children

OPJindal Centre JSW Foundation Bellary 7829906730 SCH
153 KR126 Seva-in-Action Bangalore Tel : 25520347 SCH,WS
154 KR127 Parents Assn. for Differently Abled Adults [PADA] Bangalore 9845941765 WS
155 KR128 Mathru Mandali Shishu Vikasa Kendra Mysore 821-2411300
2513403
9964685131 DC
ANDHRA PRADESH AND TELANGANA
156 AP101 Parents Assn. for M H Persons Godavarikhani 9491141530 SCH,WS,GH
157 AP102 Parents Association for the Mentally Handicapped Karimnagar 986693300
Persons (PAMENCAP) 9960724629 SCH,WS
158 AP103 Lekhadeep Parent Assn. Hyderabad 91-40-3710024
39106636 WS
159 AP104 Parents' Association for the Welfare Of the Mentally
Handicapped Persons. (PAWMENCAP) Hyderabad Tel: 23536902
23590904
9703331622 SCH,GH
160 AP105 Uma Manovikasa Kendram Kakinda 0884-2306039
2307097, 2306439
09848164779 SCH,WS
161 AP106 Dakshinya Parents Association For the
Mentally Handicapped Guntur 91-8632359181 EIS
162 AP107 Prerana Special School Hyderabad 040-65608825
9849629707
9849723994 EIS,SCH,WS
163 AP108 President Aashyam Parents’ Association Telangana 040 27142025
9959244558 WS
164 AP109 Maanasika Viklangula Samkshema Sangam Vishakhapattanam 0891-2742114,
(Parent Organization for the Welfare of the 9866102114 WS,SA,PA
intellectual disabled children)
165 AP110 Swayamkrushi Secunderabad 040-27990741
27992420 SCH,WS
166 AP111 Indian Red Cross Society Nellore 0861-2343483 SCH
167 AP112 Manochetana Warngal 08702550419
09392488514 SCH,WS
168 AP113 Ashadeep, Parents Association
For Mentally handicapped Visakhapatnam 9393100057 WS,PA
169 AP115 People's Action For Social Service Tirupati 8772240262 WS
170 AP116 Parents Association for Autistic Children Secunderabad 9247165760
9440249399 SCH
171 AP118 Sirisha Rehabilitation Centre Kirshna 9441413161
08676-234342 GH
172 AP117 Sadhna Society for MH Hyderabad 9440625012
33
ANNUAL REPORT
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KERALA
173 KL101 Kasargod District-Parivaar Kasargod 9446606176 WS
174 KL102 Mithram Arakkunnam 9388467483 GH,SCH,WS
175 KL103 Parivaar Kerala Thammanam 9446790616 PA
176 KL104 Association of Parents of the Retarded Trivendram 0471 - 2554020
0472-2875237,
0472-3200967 PA
177 KL105 Parivaar Pathanamthitta Pathanmthitta 9447104696
9633470888 SCH,WS
178 KL106 Kollan Dist-Parivaar Thodiyaour 9388403314 PA,SA
179 KL107 Eranakulam District-Parivaar Thammanam 9847765426 PA,SA
180 KL108 Wayanad-Parivaar Wayanad 9446306146 PA,SA
181 KL109 Kottayam–District Parivaar Kottayam 9446379352 PA,SA
182 KL110 Reena Memorial Samrakshane Cochin Tel: 2430 449
9895702491 PA,SA
183 KL111 Alappuzha–District Parivaar Alappuzha 9846110086
9388467483 PA,SA
184 KL112 Kannur–District Parivaar Kannur 9446306146
9446857547 PA,SA
185 KL113 Kozhikode – Parivaar Kozhikode 9656292468 PA,SA
186 KL114 Trivandrum-Parivaar Trivandrum 9562010200 PA,SA
187 KL115 Idukki–Parivaar Chithirapuram, 9447820282 PA,SA
idukki
188 KL116 Thrissur–Parivaar Thrissur 9747765426 PA,SA
189 KL117 Palakkad–District Parivaar Kallekulangara 9447290622 PA,SA
190 KL118 Malappuram District Parivaar Tirur,Malappuram 9495231155 PA,SA
191 KL119 Lovely Hearts Foundation Pathanamthitta 04735252709
9745524362 SCH
TAMIL NADU
192 TN101 Phoneix parents Assn. Madurai 9842964009 WS
193 TN102 Madurai Phoenix Parent Association Madurai 9842964009
9025700400 WS
194 TN103 SAARTHY-PAMMAC Coimbatore Tel : 0422-22702671
9443725925
9994980202 WS
195 TN104 MAITHREE Chennai TEL 044-2483 2026 SCH,WS
196 TN105 Murthuzaviya Special School for the Disabled Chennai 044 - 28546579
28592690 SCH
197 TN106 Dhaya Parents Assn. for the Welfare MR and
Differently Abled Persons Cuddalore 9443317322 SCH
198 TN107 Parents Help Parent’s Assn. of Aikya Chennai 9444960643 PA
199 TN108 Olirum Mottukal C/o Vidhya Prakaasham
School for Special Children Thoothukudi SCH
200 TN109 Parents Association of M.H. (PAMHS) Pondicherry 9442527703
9486747445 PA
34
ANNUAL REPORT
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201 TN110 SPAT (Sirakugal) – Tiruchirappalli Tel: 0431-2457086

Special Children’s Parents Association +91-44-24640160
9944548739 WS
202 TN111 Parents Welfare Trust For Mentally Retarded Children Nagercoil 9443129405 WS
203 TN112 Kanyakumari Rural Develpoment Society (KARD) Nagercoil 04652-279148
9443129405. WS
204 TN113 Parents Association for Upliftment of Salem Tel: 0427-2383230
Mentally Challenged Citizens 09894337883 PA
205 TN114 North Chennai Mentally Retardation Chennai 9710467379
Parents’ Association 9444621574 PA
206 TN115 Karur District PAMMAC Karur 9944298766 SCH
207 TN116 Downs Syndrome Association of Tamilnadu Chennai Tel : 044-24340256
9003058060 PA
208 TN 117 Parents association Of person with Disabilities of
Autism,MR,CP,&MD (PAAMRC) Krishnagiri 9442624458 PA
209 TN 118 Erode District Parents Association (PAMMAC) Erode PA
210 TN 119 OASIS SPECIAL SCHOOL Chettikulam/
Nagercoil 9486559616 PA
211 TN 120 Sadhna Society for MH Thiruvallur 9440625012 PA
212 TN 122 (KARD) OASIS, kanyakunari District parents Welfare
Trust for Mentally Retarded Children Nagercoil 91 44 24719947/
48/49 PA
WEST ZONE
MAHARASHTRA
213 MH101 The Parents of the Mentally Handicapped Mumbai Tel:-022-26134124
9819964789 PA
214 MH102 SAVALI – Assn. for MR & CP Children Pune Tel 020- 2528 2379 GH,WS
215 MH103 SWEEKAR – Assn. of Parents of MR Nagpur 0712-2225766
9823666388 SA,WS
216 MH104 AWMH (Maharashtra) Municipal Marathi School, Mumbai 9833118613
9819964789
9820895774 EIS,SP,SA
217 MH105 Association Of Parents Of Mentally Retarted Thane 9821054369
Children (ADHAR) 25341708
9881479195 GH
218 MH106 Jagruti Parivaar Wai,Satara Ph. 02167-221810
220426
9423340706 SCH,WS
219 MH107 Sanmati Matimand Vikas Kendra Ichalkaranji Ph:0230-2432724 SCH
220 MH108 Sankalp Assn. of Parents With Persons with MR Nagpur Ph.0712-2591783;
Mob:9765169262 SCH,WS
221 MH109 Om Creation Trust Mumbai 9819470544
9833217509 WS
222 MH110 Society for the Voc. Rehab. Of the Retarded Mumbai PH NO.23531128
9323878691 WS
223 MH111 Umed Pariwar Pune 7350128993 GH,PA
35
ANNUAL REPORT
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224 MH112 Asha Deep, MR Children Parent Assn. Ratnagiri 9422631417

8149252218 SA
225 MH113 Prabodhini Palak Sanch Nasik 0253-2580249
2579716
9823492850
0253-2570285
0253-2591972
9422283251 SCH,WS,GH
226 MH114 Parents of Down’s Syndrome Association Mumbai 9920447481
9323401635 GH,SA
227 MH115 Jagruti Palak Sanstha Thane 022-24791268
25472541
9870201685
9322951546 SCH,WS,DC
228 MH116 Swayamsidhha Matrupalak Sanstha for MR & CP Aurangabad 0240-2040027
9822266812 SCH,WS
229 MH117 Swami Brahmanand Parent Assn. Mumbai Ph..022-27570389
9833144341 SCH,WS
230 MH118 Ameya Palak Sanghatana Mumbai 022-25337250
9869227250
9323998600 WS
231 MH119 Shraddha Charitable Trust / Workshop Mumbai 022-222351
For the Autistic and Mentally Challenged 3735/2352/4463
9820904079 WS
232 MH120 Snehalaya Charitable Trust Thane 9820484581
9869547241 WS,GH
233 MH121 Aawhan Palak Sangh Mumbai 9819007617 WS
234 MH122 Anand Parivaar Charitabale Trust Satara 91-9422038029
Ph.02162-221819 WS,GH
235 MH123 Nav Jeewan Palak Sangh Aurangabad 9975596152 SCH,WS
236 MH124 Dilkush Welfare Society Mumbai 9820271003
9929447481 WS,SA
237 MH125 Janeev Jagruti Bahudeshiys Sansta Solapur Tel: 0217-2341096
9420263168
9960875132 WS,EIS
238 MH126 Samvedana Manasik Apang Palak Sangh Sangali 9860031185 EIS,WS,GH
239 MH127 Nirdhar Pratishthan Mumbai Tel: 9324336388
9226304640 GH,WS
240 MH128 Jivala Palak Sanstha Latur Tel: 9158805719
9822439180
9422071570 WS
241 MH129 ‘Samvedana’ RSS Jan Kalyan Samiti Latur 9422072517
9823036025 EIS,WS,GH
242 MH130 Chetana Apangmati Vikas Sanstha Kolhapur 9975131889 SCH,WS
243 MH131 Navkshitij Mulshi 9552547456 WS,GH
36
ANNUAL REPORT
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244 MH132 Kshitij Mumbai 65289958

23080918 WS
245 MH133 Sopan Mumbai 9323202768
022-28328355
022-65043998
022-28328351 WS
246 MH134 Aakar Parents Association Mumbai Tel: 09619668907
9867266148 WS
247 MH135 PAPA Parents Association Yavatmal 9850751395;
9850424657 SCH,WS
248 MH136 Parivartan Shikshan Sanstha Mumbai 9423112939 SCH,WS
249 MH137 Suhit Jeevan Trust Raigad Tel: 02143-253085 WS,GH
250 MH138 Vadakumkara Thomas Chacko Memorial Trust
C/o Vadaketh Development Center Raigad (0233) 2231 73 WS
251 MH139 Swami Brahmanand Pratishthan
Centre For Special Children Mumbai Tel: 27570389
9833144341, SCH
252 MH140 Maharashtra Apang Shikshan Sanstha New Mumbai Tel: 02452-246387 GH
253 MH141 Titlee Foundation Palghar SCH,WS
254 MH142 MBA Foundation Mumbai 022-27795994
022-27795995 EIS
255 MH143 Muskan Foundation For People With Multiple Disabilities Mumbai (022) 26592745 PA
256 MH144 Ekata Parents Association Talegaon Dabhade 9850240873 PA
257 MH145 Punyatma -(Prabhakar Sharma Seva Mandal) Mumbai 022-26601837 PA
258 MH146 Sangharsh Matimand Vikas Sanstha Dhule 9881890898 PA
259 ** Sumitra Ramrao Nagarkatti Foundation Pune 7387685555 PA
260 ** Sundar Jessaram Kataria Foundation Mumbai 9323196610 PA
GUJARAT
261 GJ101 Society for the Welfare of the Ahmedabad 9825005746
Mentally Retarded (SWMR) 9427310530 SCH,GH
262 GJ102 Parents Assn. for Welfare of Junagarh 9825220027
Mentally Handicapped Children 9427310530 WS,GH
263 GJ103 Sahyog Waliy Mandal, Sahyog Kushta Yagna Trust Sabarkantha 02772-254337/537
9825011185 GH
264 GJ104 Sadhna Parents Association Gandhi Nagar 079-23234350
of Mentally Challenged Persons 9879546766
9898594350 SCH,WS
265 GJ105 MAVJAT Parents Association of Mentally Surat 9498703599
Challenged Persons and Charitable Trust 9824700310 SCH,WS
266 GJ106 Happy Children Parents Welfare Society Anand 9913009560
8460745592 SCH,WS
267 GJ107 Pratibha Parent Assn. for Persons with Special Needs Valsad 9825148502
9429278352 EIS,PA
268 GJ108 ANKUR Special School for MR Children Bhavnagar 02782-566956
5730389/ 328286402
9924055897 SCH
37
ANNUAL REPORT
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269 GJ109 Prayas Parents association Rajkot 9825054696

for Persons with Special Needs 9426317763 SCH,WS
270 GJ110 AMBA Angles Parents Assn. Gandhi Nagar 8690775839 WS
271 GJ111 Parishram Charitable Trust UNJHA 9428089033
8487041533 GH,WS
272 GJ112 Shinchan Healing Minds-"karp"
Happy Minds Healing Institue Surat 9825122828 DC
273 GJ113 Astha Academy (Special children) Surat 7820020041 SCH,WS
274 GJ114 BM Institute Ahmedabad 79 2657 8257 GH
275 GJ115 Sabarkantha charitable Trust Sabarkantha 9998828975 PA
276 GJ116 Het Foundation Gandhi Nagar 9429092306
9408685405 PA
277 GJ117 Teena Gautam Charitable Trust, Ahmedabad Ahmedabad 079-26761495
9426446402 PA
278 GJ118 Manav Kalyan Trust-Navsari Navsari 02637-283860
283785
09825081444
09825730937 PA
279 GJ119 J.D.PATEL PRAGATI FOUNDATION Gandhinagar 079 48991550 SCH,EIS,SA,PA,DC
280 GJ120 Jaina Anupam N. Parmar Charitable Trust
(Managed by: Shree Jalaram Manovikas kendra) Valsad 02632-224988 DC,WS,SA,PA,EIS
GOA
281 GA101 CHALLENGE Parents Associations Goa 9421239772
8322443797 PA
38
ANNUAL REPORT
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ANNUAL REPORT
2018 - 2019
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ANNUAL REPORT
2018 - 2019
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ANNUAL REPORT

1 Cdr Shrirang N. Bijur President 7387625555 sn_bijur@rediffmail.com Pune MH AWMH, Maharashtra

5 Mr M Sukumaran Zonal VP - South 9446257547 wydparivaar@gmail.com Wayanad Kerala Wayanad Parivaar

6 Mr. VikasKhalatkar Zonal VP - West 9049639779 vikas5461@yahoo.in Nagpur MH Sweekar

7 Mr H.P Sharma Zonal VP - Central 9425539703 Harihar_kbe@yahoo.com Korba Chhattisgarh Saamarth PA

8 Mr Nabarun Sengupta Zonal VP - NE 9436103471 hinsengupta@yahoo.co.in Shillong Meghalaya MEPAD

9 Mr PS Burde General Secretary 9920447481 psburde@yahoo.com Mumbai MH PODS

11 Mr Abhay Kumar Dubey Zonal Secretary 9425150672 abhaydubeyjbp@gmail.com Jabalpur MP NVAS

13 Mr Vijay Shah Zonal Secy North 9044413331 vijayashah111@yahoo.com Varanasi UP Prayas PA

14 Mr G Soundarajan Zonal Secy South 9480585424 deepugsr24@yahoo.co.in Hosur Karnataka KPAMRC

16 Mr Akum Ezung Zonal Secy - NE 9862192496 akumezzung123@gmail.com Dimapur Nagaland Dimapur PA

17 Mr Bhanuprasad Chauhan Treasurer 9898594350 bprasad1655@yahoo.com Gandhinagar Gujarat Sadhana PA

18 Mrs. Pooja Patel Member 8128138092 patelridhi007@gmail.com Rajkot Gujarat Prayas PA

19 Mr Mohd Mushtaq Ali Member 9703331622 pawmencap@gmail.com Hyderabad Telangana Pawmencap

20 Mr AK Jena Member 9438586539 Ajaykumar.jena@yahoo.in Bhubneshwar Odisha

21 Mr Madhusudana Rao. P Member 9652864939 Madhu.s.pappala@gmail.com Vizag AP Ashadeep PA, Vizag

22 Mr B.N Rathi Member 9822060075 bnrathi@sify.com Aurangabad MH Navjivan

23 Mr Divakarbhai Shah Member 9826022667 diwakarshah51@gmail.com Indore MP ISMR

24 Mr Sandip Kamal Member 9814213860 sandeepchd@yahoo.com Mohali Punjab Swayam

25 Mr KC Pandab Member 9438187899 shraddha.ra@gmail.com Rourkela Odisha Shraddha

26 Mr PB Balghat Member 9422038029 prakashconcrete@rediffmail.com Satara MH AnandPariwar

27 Mr Sanjeev Kumar Jha Member 9431535390 Jha_sanjeev1972@rediffmail.com Ramgarh Jharkhand BhawishyaKirsan

28 Mr Dileep Redkar Member 9422631417 dilipredkar@yahoo.in Ratnagiri MH Ashadeep PA

30 Dr CS Neelkanta Member 09449302718 m.manasa@gmail.com Tumkur Karnataka PA for ES

32 Mr. KS Jaivittal Member 9845540293 Jai.vittal@manipal.edu Udipi Karnataka Udupidist PA

35 Mr A Umesh Member mithramsoc@gmail.com Ernakulam Kerala Mithram

37 Mrs. PR Shirke Member 9425553996 snehsampada2007@rediffmail.com Bhilai Chhattisgarh Snehsampada

39 Mr Subbyo Sachi Samal Member 9437083471 hope.rajgangpur@gmail.com Rajgangpur Odisha Hope

40 Mr VinayTopa Member 9891016400 Vinay.topa@gmail.com Delhi Delhi Muskaan

41 Mr LK Malavia Member 287407272, sankalp_260600@rediffmail.com Nagpur MH Sankalp

42 Mr Soumen Upadhyay Member 9434086363 soumenupadhyay1@gmail.com Kolkata Bengal Assn of Parents of

44 Mr P Sundaram Co-opted Member 9944548739 ponnusundaram@gmail.com Trichurapally TN Parivaar TN

47 Mr G. Parthiban Co-opted Safi Mem. 9710542284 parthimaddy@gmail.com Chennai TN Secretary, Safi

1 Dr. HT Dholakia Technical Advisor 9819964789 drhtdholakia@rediffmail.com Mumbai MH Parents of MH

3 Dr. RG Gokhale Technical Advisor 9373103254 gokhaleravindra@yahoo.com Nagpur MH Sweekar

4 Mr. MG Prakash Technical Advisor 9448142956 emgipee@gmail.com Bangalore Karnataka KPAMRC

PARIVAAR - National Confederation of Parents’ Organizations

EXECUTIVE OFFICE BEARERS

C. Recognition of Self Advocacy& Mentors’Training by NIEPID, NIEPMD and RCI

CAPACITY BUILDING OF MENTORS FOR IMPARTING SELF ADVOCACY TRAINING

A. Capacity Building of CBM Partner DPO to Enable Inclusion of Persons with

B. Mentors’Training & Self Advocacy Programs in Five states

No of Parents/Professionals & No of Persons with intellectual Total

No of Parents/Professionals & No of Persons with intellectual Total

No of Parents/Professionals & No of Persons with intellectual Total

Approved RPMs/ NPMs in the year 2019-20

OTHER INITIATIVES FOR EMPOWERMENT

v. Reason for not having a disability certificate

B. Strategy Workshop in Collaboration with NIEPID on Rehabilitation of Persons with ID

Session 2: Getting PwIDDs Actively Involved In Skill Building and Employment:

a. Traditional Assisted workshops

Session 3: Models of Making PwIDDs Financially Independent:

Cdr. Shrirang N. Bijur

PARIVAAR NCPO OBSERVATIONS & RECOMMENDATIONS ON

2. Attaining foundational literacy and numeracy for all children.

3. Co-locating Pre-schools with Primary schools

4. Safety & Security of Children with Special needs

5. Concept of School Complexes:

6. School Governance & Engagement of community ownership:

7. National Curriculum Framework:

8. Vocational Education & Skill Development in school:

9. Seeking collaboration of Departments:

10. Four years integrated education training for teachers:

Application Recd. on __Receipt No. Date

Treasurer’s Signature Date Gen. Secretary’s Signature _