Lidman 2017

You might also like

Download as pdf or txt
Download as pdf or txt
You are on page 1of 9

Scandinavian Journal of Occupational Therapy

ISSN: 1103-8128 (Print) 1651-2014 (Online) Journal homepage: http://www.tandfonline.com/loi/iocc20

How children with cerebral palsy master bimanual


activities from a parental perspective

Git Lidman, Kate Himmelmann, Gunilla Gosman-Hedström & Marie Peny-


Dahlstrand

To cite this article: Git Lidman, Kate Himmelmann, Gunilla Gosman-Hedström & Marie
Peny-Dahlstrand (2017): How children with cerebral palsy master bimanual activities
from a parental perspective, Scandinavian Journal of Occupational Therapy, DOI:
10.1080/11038128.2017.1337807

To link to this article: http://dx.doi.org/10.1080/11038128.2017.1337807

Published online: 09 Jun 2017.

Submit your article to this journal

Article views: 1

View related articles

View Crossmark data

Full Terms & Conditions of access and use can be found at


http://www.tandfonline.com/action/journalInformation?journalCode=iocc20

Download by: [University of Regina] Date: 13 June 2017, At: 14:00


SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY, 2017
https://doi.org/10.1080/11038128.2017.1337807

ORIGINAL ARTICLE

How children with cerebral palsy master bimanual activities from a parental
perspective
€ma and Marie Peny-Dahlstranda,b
Git Lidmana,b, Kate Himmelmannb,c, Gunilla Gosman-Hedstro
a
Institute of Neuroscience and Physiology at the Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden;
b
Regional Rehabilitation Centre, Queen Silvia’s Children’s Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden; cDepartment
of Pediatrics, Institute of Clinical Sciences at the Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

ABSTRACT ARTICLE HISTORY


Background: During childhood, children learn the daily life activities they want and need to do. Received 19 October 2015
Children with unilateral spastic cerebral palsy often have difficulties performing activities requir- Revised 19 May 2017
ing two hands. Accepted 26 May 2017
Aim: To describe parental reasoning on how children with unilateral spastic cerebral palsy learn
to master the performance of bimanual activities in everyday life. KEYWORDS
Material and methods: Sixteen parents participated in focus groups, a qualitative research Activity performance;
approach with its own methodological criteria and research methods. bimanual; hand;
Results: One overall theme emerged from the analysis: ‘Finding harmony between pleasure occupational therapy;
and effort is the key to learning’. This overall theme arose as a synthesis of four themes: parent; learning; qualitative
‘awakening of the inner drive’, ‘trying on one’s own’, ‘enabling things to work’ and ‘it must be research method; upper
worth the effort. The parents described when an activity woke their childrens inner drive to per- limb; cerebral palsy
form. Their children also strived to develop their own way to perform an activity, sometimes
with the support of others, still, some activities were not possible to learn.
Conclusions: Occupational therapists and others in the children’s environment have an import-
ant mission to support the children to find their own harmony between pleasure and effort and
their individual key to success in learning bimanual everyday activities.

Introduction This is not always the case in children with a neuro-


logical dysfunction.
Children learn new activities during childhood
Cerebral palsy (CP) is the most common motor
through play and by participating in Activities of
impairment in children and occurs in two per 1000
Daily Living (ADL) [1]. The acquisition of occupa-
live births in western Sweden [8]. More than one
tional skills has been described from a dynamic sys-
third of these have unilateral spastic CP (USCP), with
tem perspective [2]. In this perspective, occupational
consequences such as impaired development of hand
development occurs via a dynamic interaction
function, increased muscle tone, and decreased
between multiple determinants within the person, the
strength, speed, coordination and sensation affecting
task and the environment. Humphry [3] describes this one of the child’s two hands [7,9]. This implies diffi-
as a self-organized process when children participate culties in performing activities with both hands coop-
in shared activities. Skills are learned both by observ- erating in a smooth and coordinated manner. Islam
ing and doing things with others, but it is also neces- et al. [10] also indicate that, when the impaired hand
sary to try to do things oneself. To enable learning is used, there is often a negative effect for the non-
activities, it is furthermore essential to find activities affected hand. This indicates that using both hands
that stimulate children’s own interest and motivation does not necessarily improve performance, which can
[4,5]. The role of the active child is emphasized in explain why children with USCP sometimes choose
most contemporary theories of development [6]. only one hand in typical bimanual activities and why
Typically developed children gradually learn to use they may choose alternative approaches.
their hands and to handle objects by adjusting the use Children develop skills by carrying out various
of their hands in increasingly complex activities [7]. activities independently [11]. This provides a sense of

CONTACT Git Lidman git.lidman@vgregion.se Institute of Neuroscience and Physiology, Sahlgrenska Academy at the University of Gothenburg,
Box 455, SE-405 30, G€oteborg, Sweden
ß 2017 Informa UK Limited, trading as Taylor & Francis Group
2 G. LIDMAN ET AL.

who they are and what they can become. Enabling the each child were given the opportunity to participate.
learning of different activities at an early age is there- Seventeen parents of 12 children accepted, and one
fore invaluable. Parents of children with USCP follow canceled on the day that the group was scheduled.
their children’s development from their early years Thus 16 parents, five men and 11 women, participated
and observe aspects of the learning process and how in the study. The median age of their children was
they master new activities. The parents often have nine years (range 6–12 years). All children attended
experience of home programs associated with different mainstream schools, with the exception of one child
treatment methods such as botulinum toxin, hand who attended a special education class. One child had
surgery, goal directed therapy or constraint induced an additional neuropsychiatric diagnosis. The children
therapy [12,13]. Still, the ways in which young chil- were classified from levels I–III according to the
dren with USCP learn everyday activities that require Manual Ability Classification System (MACS) [17].
the use of both hands and how parents support this
learning has not been studied. Procedure
In this sense the new information that this study,
The families received an invitation letter with infor-
integrated with the existing knowledge, will generate
mation about the study. Written consent was
new understanding that can be used in occupational
obtained. Focus group discussions were conducted in
therapy practice. The aim of this study was to describe
2013 at the Regional Rehabilitation Center in
parental reasoning on how children with USCP learn
Gothenburg, Sweden. The participants were familiar
to master bimanual activities in everyday life.
with the clinical context. Each group met on one
occasion and the discussions were recorded on audio-
Material and method
tape and lasted 1.5 to 2 hours. The groups were com-
Focus group method posed with the aim to achieve a broad representation.
The focus group method is a specific type of qualita- Four focus groups were formed, consisting of three to
tive research with its own methodological criteria and five parents who were homogeneous in the sense that
research methods [14]. The group process encourages all had children with USCP. At the same time, the
participants to clarify what they think and provides groups were heterogeneous as there was a spread in
opportunities to develop how and why they think a their children’s ages and MACS level [17]. The five
certain way. The data in a focus group are generated men participated in three of the four groups.
through the interaction in the group, and this distin- The main author was the moderator and the coau-
guishes its form compared to other types of methods thors were present one at a time, making notes in the
[15]. The analysis combines many different elements group discussions. The moderator began by clarifying
of qualitative research and includes the complexity of the purpose of the study, and the participants were
group interaction [16]. The composition of the group reminded that all information would be treated as con-
is important. It must in some sense be both homoge- fidential. The participants briefly presented themselves
neous and heterogeneous. Homogeneity in a focus and their children. The moderator guided the discus-
group study means that participants have the topic sion, in which the participants opinions were treated
under study in common, which serves to stimulate respectfully. The participants were asked gently to
the discussions. Equally important is heterogeneity, in express their experiences about the subject as freely as
the sense that the discussions should capture a certain possible.
amount of variation regarding aspects of the topic. The five key questions were: What are your experi-
ences of what has been important when your child
Ethics learned new bimanual activities? How would you
describe the various factors that are important for the
The study was approved by the Regional Ethical
learning process? How would you describe how the
Review Board at the University of Gothenburg,
child is able to increase skills in a familiar activity?
Sweden (Reg. No. 665-12).
What possible obstacles have you experienced when
your child was learning bimanual activities?
Participants
Data analysis
Parents of 20 children with USCP were invited to par-
ticipate in this study, a convenient sample of parents The audio-taped sessions were transcribed verbatim.
known from an earlier study [13]. Both parents of The transcript was analyzed with a method
SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY 3

developed for focus group discussions described by over again, which results in increasingly efficient
Krueger et al. [14,16]. In the first step the main performance.
author (GL) listened to the audio recordings, and P1 It must be interesting things, like playing
all authors read the transcript numerous times. To computer games. That’s very interesting. My son
become familiar with and to understand the mean- loves that, and then he can ‘double-hop’ with that
ing of the material, it was necessary to study the hand, just because it’s such fun. He thinks that is so
data in context, which meant that the raw data super cool, he has to use both hands for that. You
can’t get them to cut out just anything, but you have
were used as long as possible. All quotes in the raw to find an interesting thing to cut out.
data relevant to the research purpose were identified
and sorted into different themes by the four authors P2 Yes, that’s right.
separately. The level of agreement was very high,
which indicated good trustworthiness of the results P1 Because nobody wants to practise just cutting out,
[18]. Disagreement was resolved by consensus dis- do they?
cussions leading to the final outcome. In the second
P3 My daughter loves to keep busy, ‘scrap-booking’,
step the main (GL) and the last (MPD) author, did she loves cutting out and pasting, that’s what she
a systematization of the raw data in the themes thinks is fun. (Group 1)
into categories based on condensed meaning and
illustrated with quotations selected from the raw
Being inspired by watching others
data. In the third and final step all the authors
summarized the categorized data in combination Looking at others doing activities creates a desire
with an interpretative phase that aimed to provide and inspiration to do things. This give the children
understanding, resulting in the overall theme. The the stimulus to try to overcome challenges necessary
English translation of the quotations was carried out to learn new activities. They want to manage things
by a native English speaker after completion of the that others do because it looks so appealing to
interpretation. them.

Want to fit in
Results
The parents noticed that the activity in itself is not
The analysis of the discussions in the focus groups always the most important thing, but it was embar-
resulted in four themes of parental reasoning for rassing for their children if they could not perform
learning: ‘awakening of the inner drive’, ‘trying on the activities like other children. They want to fit in
one’s own’, ‘enabling things to work’ and ‘it must be and not be different from other children. This driving
worth the effort’. Each theme contained two or three force is so strong that they overcame difficulties by
categories. training and obstinacy and finally performed the
activity on their own, even if the activity itself was
not so appealing.
Awakening of the inner drive The parents described that learning took place
The parents described situations in which their child- when the activity itself aroused their children’s
ren’s own inner drive stimulated activity performance interest or when they saw playmates or siblings
and made it possible to conduct activities with a high doing activities. A desire not to differ from others
degree of difficulty. The theme ‘Awakening of the or anxiety over not fitting in could also prompt the
inner drive’ resulted in three categories: ‘kindles children.
the inner drive’, ‘being inspired by others’ and ‘want to
fit in’.
Trying on one’s own
The parents reasoned that they have to provide space
The activity kindles the inner drive
for self-development for their children and give them
The children’s own interest in testing new activities is the opportunity to find their own solutions to prob-
an important stimulus and can in itself ‘work won- lems. Sometimes the children also needed to be left
ders’. The activity itself captures them because it is alone, without anyone seeing them practice. ‘Trying
such fun, thus initiating and spurring the children’s on one’s own’ resulted in two categories: ‘their own
inner drive to do it. They repeat the activity over and way’ and ‘time to oneself’.
4 G. LIDMAN ET AL.

Their own way children were able to learn on their own since the
parents created space and time.
The parents described how the children find their own
strategies, their own solutions to how the activity can
be performed, which was encouraged by the parents. Enabling things to work
P1 And it’s the same with jackets, she finds a way … . The parents discussed their children needing their
it looks very unusual and I would never do it like that, parents’ support in different circumstances. Sometimes
but she has found her own way. So when I tried to
it was enough to give the children encouragement and
help her, to hold the jacket, it was no help at all. Then
her own way was much faster and more effective. praise. In other situations, when the aim was to develop
new skills, the parents also exposed the children to
P2 He found a way of dressing himself, especially activities that gave rise to an appropriate challenge for
with the foot that he has problems with. He places it them. A third alternative that the parents described was
behind, like this … (Group 2) to simplify the activity so that it was feasible or that the
children got help with all or part of the activity.
Time to oneself The theme Enabling things to work contains
three categories describing parental strategies:
Opportunities arose when the parents endorsed the ‘encouragement and praise’, ‘challenges and someone
children’s chances to learn things without their pres- who urges them onandactivities are adjusted.
ence. The children were left to be by themselves and the
activity was allowed to take the time it took without Encouragement and praise
anyone observing the child and avoiding a stressful
situation. The parents described how they gave the children
reassurance to do activities. They let the children try
P2 No, but I thought, because I’ve devoted very, very,
different activities even though they could turn out to
very much time to training, training, training so he
was very tired of me, and I was very tired as well, be difficult. They noticed that the children gained
and then he got a little brother, and then I didn’t self-confidence and dared to test more activities.
have time any longer … I’ve not noticed whether it’s P3 And lots of encouragement!
that he’s been left in peace to fix things himself, if it’s
maybe that that has done it … P1 Yes, that happens a lot, you encourage them so
they think they are world champions …
P1 We talked about swimming before, didn’t we,
when I was not there, then she learns more, and later P2 Yes.
we were actually at horse riding lessons – sometimes
then – she’s allowed to ride by herself. Then it P1 … but it’s good as long as he believes it, I feel …
sounds a bit like this: ‘Oh how clever she is! ‘When I yes, then they dare to go on.
walk beside her she can’t do anything, but when she
rides by herself, then she can. It’s a bit … . P2 Yes, that’s it. My son still believes that he will play
with Zlatan, so. (Group 1)
P2 … .and then when they get to practise it
themselves in peace and quiet, it goes better. I don’t well-known Swedish football player
know …

P3 I know, when he was smaller, he had easy clothes Challenges and someone who urges them on
and we lay them on the bed, at weekends, then he
wanted to put them on himself and then he went in The parents described how they tried to take advan-
and we did not understand how he did it, but he had tage of situations arising in everyday life. They pro-
the clothes on when he came out. (Group 3) vided appropriate challenges in activities that their
Parents’ experience shows that children often had children otherwise preferred assistance with, activities
their own way of learning an activity; they still often reasonable to expect the children to manage
used both hands, but the solutions differed from the themselves.
solutions the parents would have chosen. They gave P1 He rides, getting the horse to turn right is easy,
their children the opportunity to try, and they trusted but turning left is a bit harder, then you have to do
something with your left hand and he can do that
their child’s ability. Sometimes the children were left
in peace to practice an activity and, even if it some- There was no other way, it certainly works, but we
times took a long time, they learned to do it. The didn’t talk about any other way, but ‘Take out your
SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY 5

left hand and the horse will turn’, so there was no be worth the effort; otherwise the children would not
other alternative. take part. The theme ‘It must be worth the effort’
holds three different categories: ‘the degree of difficulty
P2 Then it worked, otherwise the horse went in
must be reasonable’, ‘their energy has to last’ and it
another direction?
must take a reasonable amount of time.
P1 Exactly. So, I’ve noticed that quite a lot, if you
have to, then it can work, if you don’t have to, then The degree of difficulty must be reasonable
it doesn’t happen, hmm … (Group 3)
The parents felt that the right degree of difficulty was
important. The children did not want to take part or
Activities are adjusted did not think the activities were fun when the degree
The parents tried to adapt demanding activities with of difficulty was too high.
respect to the degree of difficulty, the time spent and P3 My son also did that actually, he was very good
how much energy and cognitive stress the activities on the violin, and it’s a difficult instrument too, and
required of the children. They should fit into other daily he took the hand that was already bad and should do
this (shows) and it went very well, to a certain level,
activities, and various types of compromises occur, but but then we couldn’t put pressure on him, it gets too
repeating the same activities in the same order facili- difficult then, he had to give it up, but it works to a
tated learning and could provide opportunities to grad- certain limit otherwise it has to be something that
ually increase the difficulty of some activities. you think is such fun, otherwise they will give up.

P1 That they do the same thing all the time gives you P2 Yes, that’s how it is.
feeling of security I suppose. It’s like a monotonous
job, well, you can do it see, then you do without P3 And you have to accept that.
… thinking. It’s perhaps the same thing if you do the
same things. P4 It’s a bit like that with my son, he’s clever at
skating and playing indoor bandy, but he finds it very
P2 That’s how it is, when they are learning something difficult to put his socks on, then it’s awfully difficult.
anyway, that’s how it is probably. a necessity. But (Group 1)
then you can probably build on it … .

Moderator Then you can be more flexible? Their energy has to last

P2 Then you can be more flexible, when you’ve sort The parents described a tiredness in their children that
of gotten used to it. they believe depends on the fact that more energy is
demanded of them in performing activities as compared
P3 Only the last two years have been quite different. with other children. The amount of energy required for
It’s just a matter of getting up in the morning, you the activity must be worth the result achieved.
get up and you get dressed. He has been … like
routine … . (Group 4) P2 She gets tired very quickly, whatever she’s
doing … With clothes and everything, then she’s
The parents performed activities together with their completely finished when she has to jump into the
children and talked about having an awareness of or a car and get to school. It’s obvious that they …
kind of intuitive feeling to enable things to work for
them in everyday life. They tried to stimulate the P5 That they have to spend more energy when they
have to do something.
child’s desire to learn activities by giving them
encouragement or appropriate challenges to do things P1 Yes.
they would otherwise hesitate to perform. Complex
activities were adjusted to match the children’s ability P3 Yes. (Group 1)
and to gradually make it possible for these to be per-
formed automatically. It must take a reasonable amount of time
The parents reasoned that the children were able to
It must be worth the effort manage certain activities, but that it took a long time.
The parents described that some of the activities were The time factor could mean limitations.
too demanding and took too much energy and time in P4 Putting on clothes – he’s probably the last or
relation to the children’s efforts. The activities must nearly the last from the gym hall or at breaks … …
6 G. LIDMAN ET AL.

or doesn’t bother to button up and then he freezes, of important aspects in human activities has also been
course, it takes a longer time, everything takes longer. described by Persson et al. [5]. Many of the activities
mentioned by the parents were play activities, for
P1 You show her how to tie shoe-laces and she tries,
you show her and she tries and tries, but it does not
example computer games. Play includes many dimen-
work, there’s a little limit of course to how often and sions according to Blanche [19], such as being arous-
how long you do this. We all have children of school ing, motivating and making it possible to dream away
age. Or if we have to be off somewhere, she can go from reality for a while. Parallels can be drawn from
on for 20 minutes, but in the end we have to, we the parents’ reasoning to the concept of ‘flow’, which
have to get on, it’s like that unfortunately. (Group 3) describes an experience that arises where the individ-
The parents described obstacles that are difficult to ual forgets himself, time and space and where the per-
overcome and, for those reasons, the children had to formance and performer come together to form one
abandon demanding activities or were given assistance unit [20]. Bimanual activities often require a great
in doing them. deal of effort in a child with USCP and according to
The analysis of the discussions in the focus groups the parents they seemed to be easier to perform if
resulted in one overall theme, Finding harmony they fulfilled the concept of play or flow [19,20].
between pleasure and effort is the key to learning. Persons in the children’s context provided inspiration,
This overall theme arose as a synthesis of the four and the children made an effort not to stand out as
themes describing how the parents strive to balance being different. They wanted to do the same things as
different aspects in the multifaceted learning of others do, achieve a sense of belonging or a sense that
bimanual activities. occurred when the children were part of a group of
others in close relationship with each other. This feel-
ing is similar to the description of H€annik€ainen called
Discussion
‘togetherness’ [21]. This importance of the socially
This study resulted in one overall theme,Finding har- interactive dimension of learning is described by the
mony between pleasure and effort is the key to parents and is well known in occupational therapy; it
learning. The results summarize parents’ experiences is emphasized in a study by Lawlor [22] as helping
of what may promote learning of bimanual activities children to develop as occupational beings [3].The
in children with USCP. The parents describe the children in our study were often dependent on their
learning of bimanual activities as demanding and parents to give them support or guidance to refine
complex. The results showed that the children learned their performance and introduce them to other chal-
many of the activities they had to do and wanted to lenging activities. The parents discussed that they had
do, but that this required a daily amount of effort developed a way of sharing activities, shaped by hav-
from them and furthermore consideration from their ing a child with a disability, i.e. a readiness to take a
parents. The four themes describe the parents’ reason- step back or give support. This is earlier described in
ing about how the children mastered the learning of the literature as a capacity of co-occupation with
new activities. The results describe whether the child- others [23,24]. The parents know when the support is
ren’s interest was piqued and that the activity itself needed in different circumstances, but also when their
then started the child’s inner drive to learn. children are ready to manage by themselves. When
Sometimes they wanted to develop their own way of the children tried on their own, solutions emerged
carrying out an activity and at other times they that the parents had not considered before, and it was
needed support from their parents. However, accord- evident that the children had adapted their perform-
ing to the parents, there were some activities that ance to suit their own abilities and limitations. This
were not possible to learn, or were consciously omit- was often discovered accidentally by the parents, but
ted, because they were too difficult to integrate into through this experience they started to promote their
the child’s everyday life. children’s own problem-solving skills. Similar to this
The parents described activities that the children description is the therapeutic approach developed by
enjoyed and that were initiated by the children them- Polatajko et al. [25] where the importance of giving
selves, and repetition of these activities resulted in children the opportunity to develop their own strat-
more skilled performance in their children. An activ- egies is emphasized and thus strengthens the findings
ity must arouse interest and give the child the reward in the present study.
of pleasure from doing it; the child would then repeat The result of this study may facilitate a develop-
the activity by her- or himself. Meaning and value are ment of intervention programs appropriate for
SCANDINAVIAN JOURNAL OF OCCUPATIONAL THERAPY 7

children with USCP. Hopefully it may give rise to situation. The discussions became lively and genuine
new aspects how these programs can be adapted to and there was a confident atmosphere in the groups.
challenges in home and school environment. This is The trustworthiness of the results in reflecting the
especially important, as many intervention programs parents experiences was assured by the separate ana-
require a considerable commitment on the part of lyzes by the four authors and through the implemen-
parents to implement training programs with their tation of the three steps in the method [14,16,18].
children. The results have given us knowledge about One limitation of this study is the absence of the
how children interact in the everyday environment, children’s own experience of learning activities that
including both the opportunities and the requirements require two hands and is hence an important subject
that arise there. for future research.
In the clinical setting, occupational therapists need
to expose children to activities that can promote their
internal motivation, prompt them to discover new Conclusions
activities on their own and help them to become their
Emerging from the parents reasoning, important
own problem-solvers. Co-occupation is equally
aspects of the learning process in performing every-
important, as described by Price, ‘a synchronous dance
day activities among children with USCP became evi-
back and forth between the occupational experiences of
dent. The activity itself could awaken the children’s
the individuals involved, the action of one closely shap-
internal motivation to perform activities. The chil-
ing the action of the other’ (24, p 180). The occupa-
tional therapist should encourage children to find dren could become problem-solvers by finding their
their own solutions in performing bimanual activities; own ways to pursue activities. The assistance of the
according to the parents’ experience, the children parents was important for the children, but it was
often found a different and better solution. They fre- also important to continue to expose them to chal-
quently used both their hands and took their own lenging activities. Still, it must be acknowledged that
specific reduced ability into account. There must also this learning process includes a cost for the children,
be an understanding that some activities takes an and there are activities that are too demanding for
unreasonable amount of time or can be too demand- them to perform in relation to the effort they
ing: avoiding them could sometimes instead be require.
described as energy- and time-saving. The parents We conclude that the occupational therapist and
describe those activities as not being worth the effort others in the children’s environment have an import-
for the children to perform. This suggests that, when ant mission to support the children to find their own
children with USCP are learning new activities, it is harmony between pleasure and effort and their own
important to strive for reasonable demands in relation key to success with each individual’s unique process
to the effort and pleasure they bring to the child. The of learning to master bimanual everyday activities.
occupational therapist, parents and other persons in
the children’s environment have a challenging and
important mission to strengthen the children’s own Acknowledgements
inner drive, enabling their own solution, but they We would like to sincerely thank all the parents who par-
must also be there to give them support or challenges, ticipated in this study, and Marika Persson, occupational
and they must also be understanding when an activity therapist, who assisted with the children during the focus
becomes too demanding. group discussions.

Methodological strengths and limitations Disclosure statement


The focus group methodology was highly suitable for The authors report no conflict of interest.
the aim of this study. Our intention in employing this
methodology [14,26] was to use group interaction as a Funding
tool to capture a subject that is not always easy to
This study was financially supported by the Petter
verbalize, where parents of children with USCP had
Silfverski€
old Memorial Fund, the Swedish National
great experience and where their expertise was crucial Association for Disabled Children and Young People: the
for the results. The focus group discussions enabled RBU Research Foundation, the Linnea and Josef Carlsson
the parents to verbalize these experiences, feeling con- Fund, the Swedish Association of Occupational Therapists
fident in their being with other parents in a similar Scholarship Fund and the Fund Samariten.
8 G. LIDMAN ET AL.

ORCID [12] Novak I, McIntyre S, Morgan C, et al. A systematic


review of interventions for children with cerebral
Marie Peny-Dahlstrand http://orcid.org/0000-0002-6026- palsy: state of the evidence. Dev Med Child Neurol.
1136 2013;55:885–910.
[13] Lidman G, Peny-Dahlstrand M, Nachemson A, et al.
Botulinum toxin A injections and occupational ther-
apy in children with unilateral spastic cerebral palsy:
References a randomized controlled trial. Dev Med Child
[1] Davis J, Polatajko H. Occupational development. In: Neurol. 2015;7:754–61.
Christiansen C, Townsend E, editor. Introduction to [14] Krueger R, Casey M. Focus Groups. A practical
occupation: the art of science and living. New Jersey: guide for applied research. California: Sage
Prentice Hall; 2010.p. 135–174. Publication; 2009.
[2] Law M, Cooper B, Strong S, et al. The person-envir- [15] Morgan D. Focus groups a qualitative research.
Thousand Oaks: Sage Publication; 1997.
onment-occupation model: a transactive approach to
[16] Krueger R. Analyzing and reporting focus group
occupational performance. Can J Occup Ther.
results. California: Sage Publication; 1998.
1996;63:9–23.
[17] Eliasson AC, Krumlinde-Sundholm L, R€ osblad B,
[3] Humphry R. Young childen’s occupations: explicat-
et al. The Manual Ability Classification System
ing the dynamics of developmental processes. Am J
(MACS) for children with cerebral palsy: scale devel-
Occup Ther. 2002;56:171–179.
opment and evidence of validity and reliability. Dev
[4] H€annik€ainen M. Playful actions as a sign of
Med Child Neurol. 2006;48:549–554.
togetherness in day care centers. Internat J Early
[18] Curtin M, Fossey E. Appraising the trustworthiness
Years Educ. 2001;9:125–134.
og qualitative studies: guidelines for occupational
[5] Persson D, Erlandsson L, Eklund M, et al. Value
therapists. Aust Occ Ther J. 2007;54:88–94.
dimensions, meaning, and complexity in human [19] Blanche E. Doing with-not doing to: play and the
occupation: a tentative structure for analysis. Scand J child with cerebral palsy. In: Parham LD, Fazio L
Occup Ther. 2001;8:7–18. editors. Play in occupational therapy for children. St.
[6] Siegler R. The rebirth of children’s learning. Child Louis: Mosby; 1997. p. 202–218.
Dev. 2000;71:26–35. [20] Csikszentmihalyi M. Finding flow. New York: Basic
[7] Charles J. Typical and atypical development of the Books; 1997.
upper limb in children. In: Eliasson A, Burtner P, [21] H€annik€ainen M. Togetherness: a manifestation
editor. Improving hand function in children with of day care life. Early Child Dev Care. 1999;
cerebral palsy: theory, evidence and intervention. 151:19–28.
London: MacKeith Press; 2008. p. 147–159. [22] Lawlor M. The significance of beeing occupied: the
[8] Himmelmann K, Uvebrant P. Function and neuroi- social construction of childhood occupations. Am J
maging in cerebral palsy: a population-based study. Occup Ther. 2003;57:424–434.
Dev Med Child Neurol. 2011;53:516–521. [23] Humphry R, Thigpen-Beck B. Parenting values and
[9] Gordon A, Bleyenheuft Y. Pathophysiology of attitudes: views of therapists and parents. Am J
impaired hand function in children with unilateral Occup Ther. 1998;52:835–842.
cerebral palsy. Dev Med Child Neurol. 2013;55: [24] Price P, Miner Stephenson S. Learning to promote
32–37. occupational development through co-occupation.
[10] Islam M, Gordon A, Sk€ old A. Grip force coordin- J Occup Science. 2009;16:180–186.
ation during bimanual tasks in unilateral cerebral [25] Polatajko H, Missiuna C, Miller L, et al. Cognitive
palsy. Dev Med Child Neurol. 2011;53:920–926. orientation to daily occupational performance (CO-
[11] Rodger S, Zivani J. Occupational Therapy with OP): part III-the protocol in brief. Phys Occup Ther
children. Understanding children’s occupations Pediatr. 2001;20:107–123.
and enabling participation. In: Mandich A, Rodger S [26] Dahlin-Ivanoff S, Hultberg J. Understanding the
editors. Doing, being and becoming: their import- multiple realities of everyday lie: basic assumptions
ance for children. Oxford: Blackwell Publishing; in focus-groups methodology. Scand J Occup Ther.
2006. p. 115–135. 2006;13:125.

You might also like