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Remedial and Special Education

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Diverse Approaches to Parent Advocacy During Special Education Home−−School Interactions :


Identification and Use of Cultural and Social Capital
Audrey A. Trainor
Remedial and Special Education 2010 31: 34 originally published online 9 October 2008
DOI: 10.1177/0741932508324401

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Article Remedial and Special Education
Volume 31 Number 1
January/February 2010 34-47
© 2010 Hammill Institute on
Disabilities
Diverse Approaches to Parent Advocacy During 10.1177/0741932508324401
http://rase.sagepub.com

Special Education Home–School Interactions hosted at


http://online.sagepub.com

Identification and Use of Cultural and Social Capital


Audrey A. Trainor
University of Wisconsin

Home–school partnerships in special education often include parent advocacy that at times requires specific and specialized
knowledge, skills, and attitudes. Parent participation is shaped by access to cultural and social capital resources and is crit-
ical to assessment and service delivery. This study explores the types of capital resources parents perceived necessary to
their participation via five focus groups of participants from a range of socioeconomic, disability, and racial or ethnic back-
grounds through 27 in-depth interviews. NVIVO7 was used to analyze data; categorical meaning and relational themes were
coded recursively. Results indicated that intercultural and intracultural differences existed among parents. Advocacy on
behalf of one student also required different capital resources than did advocacy for systems change. Discussion focuses on
implications of parent advocacy on educational equity.

Keywords: parent involvement; diversity

T hroughout the history of the public education of


youth with disabilities, many parents have tirelessly
advocated to ensure that the educational rights, and ulti-
(Eccles & Harold, 1996). Recent meta-analyses of the
effects of parent involvement on student achievement of
youth (without specific regard to disability status) indi-
mately the civil rights, of their children are being met. cate that some types of increased parent involvement
Whereas parents have enjoyed collaborative roles with correlate with increased student achievement or growth
policy makers, school administrators, and teachers as (Jeynes, 2003, 2007). The relationship between achieve-
well as special education researchers and teacher educa- ment of students with disabilities and parent involvement
tors, they have often worked against forces and groups has yet to be systematically collected and analyzed. Both
that have resulted in discrimination against individuals the No Child Left Behind Education Act of 2001
with disabilities. Parents were, and continue to be, major (NCLB) and IDEA employ specific language to codify
contributors to the shaping of landmark legislation such the roles of parents and underscore the expectation that
as the Education for All Handicapped Children parents actively participate in the educational experi-
Education Act of 1975 (now known as IDEA, most ences of their children, simultaneously mandating that
recently reauthorized in 2004 as the Individuals With educators make efforts to include parents in the educa-
Disabilities Education Improvement Act). In addition to tion of their children (H. R. Turnbull, 2005).
fulfilling typical parenting responsibilities, parents of
youth with disabilities often find it necessary to become
Advocacy: A Special Type of Participation
deeply involved in the school experiences of their
children.
Although the role of parent as collaborative partner
Parent involvement in the education of their children
exists in policy, research, and practice in the general edu-
is generally considered to support and benefit children’s
cation setting (Epstein, 1996), partnerships between
educational experiences and opportunities (Epstein,
home and school on matters relative to special education
1996; Jeynes, 2003). Involvement includes a wide range
of parent activities including childrearing practices, Author’s Note: Please address correspondence to Audrey A. Trainor,
communicating with school personnel, maintaining a University of Wisconsin, 432 North Murray Street, Room 404,
presence at school, and supporting learning activities Madison, WI 53706-1469; e-mail: aatrainor@wisc.edu.

34 Downloaded from rse.sagepub.com by Teguh Santosa on September 21, 2010


Trainor / Parent Advocacy 35

include additional responsibilities for both educators and relegating the responsibility of advocacy to parents. A
parents. Early disability rights literature described advo- gap in the research makes it difficult to document the
cacy as the act of speaking and acting on behalf of extent to which such conflicts present barriers to teacher
another person or group of people to help address their advocacy; however, research regarding parents’ percep-
preferences, strengths, and needs (Wolfensberger, 1977). tions that teachers do not effectively respond to parents’
Advocacy has historically been a key responsibility of advocacy efforts abound (for examples, see Harry &
parents of children with disabilities who have sought to Klingner, 2006; Hess, Molina, & Kozleski, 2006; Rueda,
provide their children with appropriate and inclusive Monzo, Shapiro, Gomez, & Blacher, 2005; Zoints,
educational opportunities (A. P. Turnbull & H. R. Turnbull, Zoints, Harrison, & Bellinger, 2003).
2001). Although distinguishing between the terms parent The language of advocacy is not similarly absent in
advocacy and parent participation in special education research and practice. Several key findings are pertinent
processes is germane to this discussion, making such a to the discussion of parent advocacy. Much of parents’
distinction is challenging. One important distinction advocacy efforts have been directed toward securing
between the two terms is that, in federal statute as well inclusive education settings and classroom accommoda-
as many regulatory and guiding documents, participa- tions (Leiter & Krauss, 2004; Leyser & Kirk, 2004).
tion rather than advocacy is used exclusively to describe Supportive factors such as the establishment of positive
the role of parents. The term advocate, as a verb or any relationships with individual teachers contribute to
other form, does not appear in IDEA. parents’ confidence and willingness to advocate (Blue-
An absence of the terminology of advocacy is con- Banning, Summers, Frankland, Nelson, & Beegle, 2004;
spicuous. Advocacy is arguably a specific type of parent Hess et al., 2006). Supportive factors beyond individual
participation implied by the language used in IDEA relationships, such as professionals’ access to informa-
(A. P. Turnbull & H. R. Turnbull, 1982). This point is tion and consistent membership on IEP teams, also affect
clearly illustrated in sections of the statute that describe parents’ advocacy (Park, Turnbull, & Park, 2001).
parents’ rights and responsibilities when seeking due Additionally important is parents’ access to information
process, which is by definition an act of advocacy. For about special education processes, rights, and responsi-
example, Section 615 (b) (7) (A) (ii) (III & IV) of IDEA bilities included in IDEA (Leiter & Krauss, 2004). Yet
states that parents (or their attorneys) filing a complaint Fitzgerald and Watkins (2006) found that the readability
must describe “the nature of the problem of the child of parents’ rights handbooks exceeded the reading skills
relating to such proposed initiation or change, facts relating of many parents, creating a potential barrier to some
to such problem [and] a proposed resolution of the problem parents’ ability to advocate. Lian and Fontánez-Phelan
to the extent known to the party at the time.” Whereas the (2001) found that language barriers also affect parents’
term participation is widely used, it can invoke a range of participation and advocacy. Parents in their study who
involvement comportment, from passivity to adversarial, were dominant in languages other than English needed
which may or may not include advocacy. access to bilingual information about assessments, edu-
Furthermore, the content of IDEA implies that parents cational approaches, and special education documents as
will advocate to secure appropriate educational services. well as bilingual personnel presence during meetings.
For example, in determining eligibility for special edu- A perusal of articles published in the past 3 decades in
cation services, parents or any member of the periodicals such as Exceptional Parent, Education
Individualized Education Program (IEP) team can Unlimited, and Preventing School Failure has guided
request or suggest the consideration of an independent parents to actively participate and advocate for their
educational evaluation during eligibility determination children with disabilities. Furthermore, these articles
deliberations. Ideally, teachers and other school person- support the notion that without parent advocacy the
nel also advocate on behalf of children with disabilities. implementation of IDEA in schools might be less con-
Yet early conceptualizations of disability rights advocacy sistent and/or less comprehensive (for examples, see
address the inherent conflicts when professionals are Ferguson, 1984; Luetke-Stahlman & Hayes, 1994; Rice,
expected to both deliver services and advocate on behalf 2006). Additional evidence can be found in Website pub-
of youth with disabilities and their families (Biklen, lications and reports from national disability organiza-
1976; Wolfensberger, 1977). Because teachers, adminis- tions such as Parent Advocacy Coalition for Educational
trators, and social service providers must respond to both Rights and the National Center for Learning Disabilities,
the needs of the organization they represent (e.g., to pro- to name only a few, that inform parents of education policy
vide cost-effective services to multiple constituents) and and explain how parent advocacy augments the education
the needs of individuals, conflicts of interest may arise, of children (for example, see Cortiella, 2005).

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36 Remedial and Special Education

Variation in Approaches to Advocacy thwarted by structural barriers, resulting in inappropriate


placement and service delivery decisions. Furthermore,
The expected outcome of parent advocacy, ensuring the legacy of racism and historical disenfranchisement of
that the educational rights of youth with disabilities are some groups (e.g., African Americans and other people
being met, is an enormous responsibility. H. R. Turnbull of color, people from low socioeconomic backgrounds)
(2005) argued that under the current reauthorization of influence home–school interactions, affecting the per-
IDEA the rights of parents are inextricably related to the ceptions and experiences of both parents and educators
responsibilities of parents in this era of accountability. (Harry & Klingner, 2006; Lareau & Horvat, 1999;
Yet parent participation responsibilities and rights out- Valenzuela, 1999). Frustration resulting from disrespect-
lined in IDEA contain deeply embedded assumptions ful and prejudicial treatment among immigrant and
about parents’ values and beliefs as well as their knowl- African American parents has been documented in sev-
edge and skills with regard to both special education and eral qualitative studies (Harry, 1992; Harry et al., 1995;
social interactions required for advocacy (Kalyanpur, Zoints et al., 2003).
Harry, & Skrtic, 2000). These assumptions represent the Research on parent participation and advocacy has
dominant culture’s value and prioritization of the notion resulted in calls for increasing parent training and access
of normalization (Kalyanpur & Harry, 1999). The idea to information (Council for Exceptional Children, 2001).
that a person with a disability is entitled to experiences Yet calls to examine and, if necessary, deconstruct sys-
that are typical, or considered to be normal of people temic barriers to equitable parent participation have been
without disabilities, has been fundamental to the disabil- less common in special education. General education
ity rights and advocacy movement since its inception studies of equity and parent involvement, however, have
(Wolfensberger, 1977). addressed this issue via an examination of both the cul-
A large body of cultural studies of parenting, educa- tural and social capital resources parents and teachers
tion, disability, and participation in special education, value, acquire, and use as they interact with one another
however, documents the fact that the normalization prin- (Horvat et al., 2003; Lareau & Horvat, 1999). What
cipal, among other values and beliefs, is not universal. follows is a brief discussion of cultural and social capital
This lack of conformity among parents may account in and their relevance to parent participation and advocacy.
part for variation in approaches that parents use when
they interact with teachers and administrators. For
example, whereas parents from low socioeconomic Advocacy and Cultural and Social Capital
backgrounds valued education in ways similar to their
middle- and upper-class counterparts, they tended to be Based largely on the work of sociologist Pierre
more likely to leave the responsibility of educational Bourdieu, educational researchers have questioned the
decisionmaking up to teachers and rely on kinship con- unequal distribution of power and status among different
nections to solve school-related problems (Horvat, subgroups of the population as it pertains to acquiring
Weininger, & Lareau, 2003; Lareau, 1987). Furthermore, education (Mahar, Harker, & Wilkes, 1990). Bourdieu
linguistic differences, beliefs about disability, and defer- (1986), who focused on class-based structures and
ence to educators as experts may affect Asian American inequity, identified three types of capital—economic,
and Latino parents’ approach to IEP meetings and other cultural, and social—that are central to a person’s ability
home–school interactions (Garcia, Perez, & Ortiz, 2000; to garner status and power in society. Whereas economic
Harry, 1992; Kasahara & Turnbull, 2005; Park et al., capital is a straightforward concept, cultural and social
2001; Rueda et al., 2005; Salas, 2004). capital need explication. Cultural capital, according to
Additional variation in parent participation, including Bourdieu (1986), consists of material items as well as
parent advocacy, is attributable to marginalization and dispositions and knowledge that inform the way a person
unequal distribution of power among families and school thinks and acts. Application of this definition to parent
personnel (Harry, Allen, & McLaughlin, 1995). Teachers advocacy in special education processes is illustrated in
and administrators are more likely to accept and encour- the following example: After gaining information from a
age involvement of parents whose requests and partici- parents’ rights handbook and other documents, a parent
pation are in agreement with school policy and teacher who accepts and understands her role in an IEP meeting
beliefs (Dornbusch & Glasgow, 1996; Lareau & Horvat, attends the meeting with several ideas or requests regard-
1999; Lawson, 2003). Harry and Klingner (2006) found ing the educational program of her child. During the IEP
that, despite participation and advocacy, parents’ efforts meeting, the parent uses communication demonstrating
were often disregarded by school personnel and/or her ability and willingness to collaborate and advocate.
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Trainor / Parent Advocacy 37

Social capital, according to Bourdieu (1986), is com- Valenzuela, 1999) found that relationships between
prised of relationships and social networks among parents and teachers are not illustrative of partnership. In
people that afford the interchange of information and fact, power and status among groups of parents based on
cultural goods (i.e., cultural capital), economic capital, race or ethnicity and socioeconomic status have not been
and additional social capital. To extend the above illus- equal, in part because of differences in the valuation,
tration, prior to attending the IEP conference the parent acquisition, and use of capital resources. Parents with
joins a support group and connects with other parents access to all three types of capital resources (cultural,
who are experienced and knowledgeable regarding advo- social, and economic) have been able to secure quality
cacy and special education processes. Through these education for their children to varying degrees, which
connections, she garners additional information as well indicates a positive correlation. In other words, more
as emotional and social support that influence her advo- capital effectively means increased access to education
cacy efforts. opportunity, a troubling concept in a society where edu-
Bourdieu (1974) contended that capital resources cation is public, free and appropriate, and a cornerstone
function together, resulting in social reproduction. In in our democratic way of life.
other words, people who have numerous and varied cap- The historical record is clear; through acts of advo-
ital resources are able to gain access to additional cacy, many parents of youth with disabilities have
resources, whereas those who do not have such struggle acquired and used power to change the U.S. education
to gain access to important stock (e.g., quality educa- system (A. P. Turnbull & Turnbull, 2001). Yet key stud-
tional experiences). Two additional foundational con- ies have illustrated that cultural and social capital
cepts to this version of capital theory include field and resources affect special education processes, particularly
habitus. Field, akin to a frame of reference, is the setting because parent participation is critical to assessment and
in which sociocultural interactions take place (Mahar et al., service delivery (Harry & Klingner, 2006; National
1990). In this discussion, the field would be home– Research Council, 2002). The purpose of this study was
school interactions, as they occur at school, at home, or to examine cultural and social capital parents use while
in the community. Location itself is not central to field. advocating for their children with disabilities to broaden
Rather, space and time in which interaction occurs com- researchers’ understanding of advocacy, its actors, its
prise the field. beneficiaries, and its outcomes in the context of special
Habitus, or “a system of cognitive and motivating education home–school interactions.
structures” (Bourdieu, 1990, p. 53), refers to the rules
and social contingencies under which people operate.
Explicit rules and guidelines for IEP meetings including Method
circumstances under which such a meeting is arranged,
who is invited, how invitations are distributed, and what This study included focus group and individual inter-
topics are discussed are contained in both IDEA and views designed to explore parents’ perceptions regarding
states’ guidelines for its implementation. Implicit rules their participation in special education processes. As is
regarding communication and interaction provide addi- typical with qualitative research studies, early stages of
tional structure to such meetings, contributing to the both data collection and analysis provided additional
habitus of both formal and informal special education directions for the course of the study (Schensul,
home–school processes such as IEP meetings. Important Schensul, & LeCompte, 1999). Following the first two
to note is that habitus, like the word sounds, is habitual focus group interviews, I became aware of participants’
and often operates under the radar of its actors, remain- emphasis on their efforts to advocate for systemic
ing unquestioned or unexamined (Bourdieu, 1986). change, leading me to probe this topic specifically.
Habitus also includes teachers’ perceptions and actions Whereas interviews with parents encompassed the use of
during home–school interactions, including expectations cultural and social capital during all types of participa-
of parents as advocates as well as teachers’ attitudes, tion, the focus of this article is parents’ use of capital
knowledge, and skills regarding special education. resources for the purpose of advocacy. Three research
Although Bourdieu developed his theoretical posi- questions guided this inquiry: What types of cultural and
tions decades ago, they remain instrumental tools in social capital do parents perceive to be necessary to
understanding inequity, as is evidenced by contemporary advocate for their children who receive special education
studies of education. Lareau (1987) and others (Horvat et al., services? When advocating on behalf of all children with
2003; Lareau & Horvat, 1999; Stanton-Salazar, 2001; disabilities and their families, do parents employ additional

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38 Remedial and Special Education

or different capital resources? How do parents’ percep- recruitment phase, I made many efforts to establish rap-
tions of their roles as advocates vary within and across port and trust among community members, which is crit-
groups based on race or ethnicity, socioeconomic status, ical to the implementation of ethnographic research
and disability category of children served? (Schensul et al., 1999). As a European American
woman, I was racially and ethnically an outsider to many
Participants of the groups with whom I met. I do speak Spanish and
I conducted interviews of Spanish-speaking parents in
Because I was interested in the extent to which the presence of a native speaker of Spanish who aided in
parents’ perceptions of capital resources differed across translation and helped moderate. Mindful of my outsider
and within diverse groups of participants, I used a wide status, I engaged in reflexive practices throughout the
range of strategies to recruit participants, such as includ- project by keeping both detailed field notes and debrief-
ing announcements in school newsletters as well as post- ing through journaling.
ing flyers in schools, disability and public service
agencies, retail businesses, and nonprofit organizations. Focus groups. Because focus groups tend to be more
Printed materials were distributed in Spanish and productive if participants have some experiences and
English. An announcement about the study was read on characteristics in common (Morgan, 1996), groups
the local public radio station in Hmong, Spanish, and included participants with similar racial or ethnic back-
English. Additionally, I submitted messages to listservers grounds. One member each of the Native American
of disability-related parent support groups and encour- Indian and the African American focus groups was
aged parents to share the information about the study and European American; both were mothers of children of
invitations to participate with other parents. Lastly, I met color and were invited by other group members. The
with community leaders, district personnel (e.g., social socioeconomic backgrounds of participants did vary
workers, liaisons to special populations), asking them to within groups.
tell parents about the study. Participants received a $25 Five focus group interviews resulted in approximately
grocery store gift certificate for each of two interviews. 10 hours of recorded conversation. Interview questions
All people (provided their children received special were designed to elicit parents’ perceptions about cul-
education services) who expressed interest were inter- tural and social capital because these terms are not in the
viewed. Participants included 33 adults from 27 families vernacular of most parents. For example, the question
(some interviews included married couples) representing “To whom do you go when you need help or support
36 children who received special education services in a resolving disagreements with school personnel?”
large Midwestern school district. Disability categories of prompted discussion about parents’ social capital.
participants’ children varied. Eligibility for free and Questions were also designed to be open ended for the
reduced cost lunch (FRCL) was used as an indicator of purpose of allowing participants to speak broadly about
socioeconomic background. Socioeconomic background their experiences (Rubin & Rubin, 2005). Open-ended
varied within racial and ethnic groups, but no Latinos interviewing is useful for gaining a breadth of knowl-
who were ineligible for FRCL participated in the study. edge on a topic, for making meaning of its subcompo-
All of the Latino participants were Spanish-language nents, and for generating responses that reflect
dominant. Despite efforts to involve Asian American intergroup and intragroup differences (Schensul et al.,
parents, none expressed interest in being interviewed. 1999). Other questions were “What types of services
See Table 1 for a complete list of participants. have been most beneficial for your child?” and “Where
do you get information or help regarding school matters
Interview Procedures for your child with disabilities?”
In preparing the focus group interview guide, I met
individually with area leaders who were involved with Individual interviews. Following focus group inter-
educational issues at the district, including members of views, I interviewed each participant individually. In an
the Latino, Hmong, international, African American, and attempt to be culturally responsive, I encouraged partic-
Native American Indian communities who provided ipants to invite other family members who they felt could
feedback on the culturally responsiveness of research contribute important information about their experiences
materials (e.g., recruitment materials and interview ques- with special education services. Adult family members,
tions) and procedures. I also met with parents who were including spouses, siblings, and members outside the
from disability-related support groups. During the immediate family, accompanied participants in four

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Trainor / Parent Advocacy 39

Table 1
Participants, Race or Ethnicity of Family, Free and Reduced Cost
Lunch Eligibility, and Children’s Disabilities
Race or Ethnicity Free and Reduced Cost Children’s
Name of Family Lunch Eligibility Disabilitya

Alejandra Latino Y Autism


Bette European American N CD
Blanca & José Latino Y OHI
Bonnie & Bernice (sibling) European American N CD
Brigid European American N CD
Calli European American N Autism
Cora African American Y LD, EBD
Dani Multiethnic N HI/LD
Darcy Native American Indian Y LD, SLI
Della Multiethnic N EBD
Diandra African American Y EBD
Donna & Lou European American N CD
Fawn African American N Autism
Heloise European American N CD
Jackie Multiethnic N Autism
Jennifer Native American Indian N EBD, LD
Jillian African American N Autism
Joy & Shawn Native American Indian Y OHI, EBD
Kari European American N OHI
Lori Multiethnic N EBD
Marge European American N Autism
Marissa European American Y EBD
Melissa European American Y EBD, LD
Millicent European American Y Autism
Morrie & Lydia European American N OHI
Nanette & Gloria (aunt) African American N OHI/CD
Patricio & Serita Latino Y CD
Renée & Travis Native American Indian Y EBD, SLI

Note: CI = cognitive disability; OHI = other health impairment; LD = learning disability; EBD = emotional or behavioral disability; HI =
hearing impairment; SLI = speech or language impairment.
a. A slash between two disability categories indicates a dual diagnosis for one child. A comma denotes instances where parents have multiple
children with disabilities.

interviews. Protocols for individual interviews were qualitative analysis software package. Computerized
based on participants’ comments during focus groups analyses of qualitative data allow researchers to store,
and provided a mechanism for member checking organize, and analyze large sets of data (Richards, 2005).
(Brantlinger, Jiminez, Klingner, Pugach, & Richardson, Initial categorical coding efforts preceded axial (the-
2005). During these in-depth interviews, I spent time in matic and relational) coding; however, analysis was
many participants’ homes or offices, interacting with recursive (Coffey & Atkinson, 1996). I established broad
their children and other family members. These experi- categories (codes) based on the focus group protocol. For
ences allowed me to better understand parents and to example, IEP Participation was a category I anticipated
contextualize interviews and my interpretations. based on a question about parents’ interactions with
school personnel during these procedures. In addition to
deducing meaning, I coded inductively, identifying
Data Analysis
themes that emerged from the data (Harry, Sturges, &
Verbatim transcriptions of each interview were cre- Klingner, 2005; LeCompte & Schensul, 1999).
ated as text documents for each digitally recorded inter- For example, in the category of IEP Participation,
view, resulting in more than 1,000 pages of interview parents’ comments revealed many instances of advocacy
data. Each document was uploaded into NVIVO7, a during IEP meetings. Individual nodes (i.e., categories)

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40 Remedial and Special Education

were then created to capture the variety of types of such The Intuitive Advocate
advocacy (e.g., advocating for an individual accommo-
Intuitive knowledge encompasses perceptive insights
dation or advocating for systems change). As I reflected
parents develop through relationships with their
on these, I took notes regarding my interpretations and
children. Whereas all parents discussed intuitive knowl-
created additional nodes to represent more complex con-
edge regarding the preferences, strengths, and needs of
cepts. For example, nodes were created to capture the
their children in the context of school, a subset of parents
extent to which parents acquired and used cultural and
said they relied heavily on this type of information when
social capital during advocacy. At times codes were
interacting with educators. Intuitive advocates empha-
established en vivo by using participants’ language to
sized the importance of “knowing my child” and of
create categories. For example, Calli and Donna shared
being in the best position to understand or accurately
the perceptions that school personnel considered some
assess their children’s needs. Marissa and Diandra, both
parents to be troublemakers. Realizing the potential
parents from low socioeconomic backgrounds who had
implications of being considered a troublemaker on the
young sons with emotional or behavioral disabilities,
expenditure of cultural and social capital, I used the term
said that they communicated their understanding of the
to name a node that eventually contained relevant com-
behavioral challenges of their children to teachers on
ments of other participants.
multiple occasions, at times asking for specific accom-
Interview cases were initially coded by selected attrib-
modations. Marissa said, “I know my son has behavior
utes of participants (e.g., race or ethnicity, socioeco-
issues.” Her tactic was to address teachers preemptively
nomic background, disability category of children) so
at the beginning of the school year, asking them to call
that data based on demographic characteristics of speak-
her if her son’s behavior warranted her attention. She
ers could be aggregated and compared. In the example
said that teachers were “responsive” to this request. This
node, Troublemaker, a query revealed which parents,
was a recent victory for Marissa, who said that in the past
based on race or ethnicity, socioeconomic background,
she unsuccessfully advocated for her son to remain at
and/or disability, perceived that teachers described them
school rather than be suspended on numerous occasions.
as such. Following broad categorical and open coding of
Intuitive advocacy, however, was not always a power-
interview data, axial coding was used to theorize about
ful approach. Diandra and other parents across racial,
the relationships among data (LeCompte & Schensul,
ethnic, and socioeconomic groups perceived that
1999). Next, these categories became part of a frame-
teachers often disregarded this type of information,
work to explain how participants acquire and use capital
resulting in thwarted advocacy. For instance, Diandra
as well as their perceptions of factors that inhibit or facil-
tried to advocate based on her intuition regarding her
itate its expenditure during advocacy.
son’s escalating behavior problems. As she spoke, her
frustration and worry were palpable. She said,
Results
If it ever got to the situation where Montrez seriously hurt
Parent advocacy occurred across groups based on race one of them teachers or one of those kids in that school,
or ethnicity, socioeconomic background, and disability what is it going to lead to? That’s what I’ve been trying to
category. Some parents discussed advocating for educa- get the school to understand. If he seriously hurt some-
tional systems change but the majority focused on their body in the school because of his behavior, and [teachers]
efforts to advocate on behalf of their children to address are not trying to respond to me and listen to what I’m
individualized preferences, strengths, and needs. telling you. . . . “Give him the one-on-one. Trust me.”
Parents’ prioritization and use of resources while engag-
ing in advocacy spanned a breadth of formal and infor- Other parents reported similar frustrations that resulted
mal types and sources of material and dispositional from advocacy based on knowledge of their individual
knowledge as well as social relationships and networks. children. This was true whether parents were advocating
In the following presentation of interview data, I focus in response to behavioral or academic concerns and
on the four approaches to parent advocacy that emerged regardless of whether the home–school interactions
from interview data. Parents acted as intuitive advocates, occurred within the context of informal or formal special
as disability experts, as strategists, and as agents for sys- education interactions. Darcy described an IEP meeting in
temic change. As the data illustrate, these approaches which teachers disagreed with her request for her son to
were not always mutually exclusive; some parents used repeat the fifth grade, a request she based on her knowl-
multiple approaches. edge of his individual social and intellectual development.

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Trainor / Parent Advocacy 41

I felt like they were saying I just wanted to hold Vincent [Withholding placement information until the first day
back and keep him safe, whatever. And I’m like, okay, of school] is one of the things I want to convince them
one, yes, I do. But two, I’ve seen him. He was reading to change. I think it makes a difference for our kids. Like
on a third-grade level, and his math skills aren’t that now, this week we’re starting to go to school, so that he
strong either. He has a hard time focusing. But in this can get used to the transition, show him where the bath-
year, he’s finally connected with his teachers. He’s room is for third grade. I show him all third grade and
finally connected to some kids, you know? I just didn’t [explain that] “one of these will be your classroom.” So
see what the harm was on holding him back 1 more year, that he can transition and not be nervous.
just to give him that extra foundation.
Although parents who focused on their roles as dis-
Although parents who were eligible for FRCL discussed ability experts during advocacy spanned racial or ethnic
intuitive approaches to advocacy more than did their groups and socioeconomic backgrounds, parents of
peers from higher socioeconomic backgrounds, some youth with autism emerged as a group who focused
parents from the latter group used this approach and effort on this approach. Calli, Jackie, and Jillian all used
experienced similar results. For example, Donna was phrases such as “discreet trial” and “Lovaas,” words they
concerned about the treatment of her daughter and advo- said they tried to include on IEPs as a way of ensuring
cated for teachers to change approaches to managing what they perceived to be quality instruction. These
instruction and behavior. She said, parents attended workshops, met with national experts,
and shared expert information with school personnel.
I can’t tell you how many times she would spend in the Alejandra and Fawn also reported that research on
hallway in middle school, and I would go in and say, autism influenced choices for their sons’ current educa-
you’ve got to give her a span of time. Tell her to do tional program as well as ideas about their sons’ transi-
something and give her time to process it. If you’re
tion to adulthood. Parents who used a disability expert
going to give her something new that’s out of the norm
approach were more likely than intuitive advocates were
of her routine, you have to give her time to process it.
And it would never happen. She would spend the whole to relay stories of successful advocacy.
day sitting on the steps because nobody wanted to deal With the exception of parents of color whose children
with it. Well, what kind of an education is that? had been diagnosed with autism, parents from Native
American Indian, Latino, and African American back-
An emphasis on knowledge specific to their children grounds discussed sentiments that disability categories
was more common among parents who had limited were imprecise or were incorrectly assigned to their
access to complex information about disability or special children, perhaps explaining their infrequent use of the
education. Often, parents who used this approach to disability expert approach. Despite the fact that Shawn
advocacy were eligible for FRCL. Furthermore, few agreed that his two eldest children struggled in school,
parents who used an intuitive approach gave examples of he wondered about the accuracy of the diagnoses of
their use of additional approaches to advocacy. attention deficit and hyperactivity disorder for both
children. For this reason, he said, he advocated against
The Disability Expert the use of medication, which had been strongly sug-
gested by teachers and administrators.
Some parents incorporated knowledge about disabili- According to parents across groups, the disability
ties as they advocated for their children. These parents expert approach was limited for other reasons.
said that they developed such expertise from sources out- Discussions of disability-related needs made parents feel
side of school contexts such as doctors, disability-specific vulnerable to teachers’ deficit views. Lydia said she felt
organizations, and commercially available texts and Websites. overwhelmed by discussions that consistently revolved
Jillian, Jackie, Fawn, Lori, and others discussed at length around her daughter’s challenges. Melissa received
their efforts to study disability and to use that informa- mixed messages regarding how much to reveal about her
tion when advocating for their children. For example, son’s emotional disability in school contexts. She per-
Fawn said she approached the principal at her son’s ceived that some teachers wanted her to share specific
school and advocated to receive information about her information about mental illness, but she said that the
son’s classroom and teacher for the new school year. principal advised her not to “tell anybody that Jonathan
Fawn saw this as an accommodation and associated her has OCD [obsessive compulsive disorder].” Nevertheless,
son’s difficulty processing changes in routines with his knowledge of disability often connected parents to others
autism diagnosis. She said, whose children had similar disabilities.

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42 Remedial and Special Education

Across groups based on race or ethnicity, parents education curriculum and was not making progress
identified disability support groups as important toward her IEP goals, documented these problems over
resources. Some groups communicated via the Internet the course of a school year. Based on the argument that
while others met in person. Support group participation the current school could not meet her daughter’s needs,
facilitated parents’ expert approach. Parents like Lori Brigid then requested a transfer to a school that she con-
said that local chapters of national disability organiza- sidered to be more inclusive and staffed with expert
tions provided numerous supports that helped her advo- teachers and a principal who was knowledgeable about
cate for her son’s needs during IEP meetings as well as special education. Although her request for transporta-
afforded her information regarding the Family and tion was not included on the IEP, she considered the
Medical Leave Act. In addition to providing access to result a partial victory because her daughter was allowed
information about disabilities, parents said group mem- to transfer out of district.
bership augmented their attitudes, knowledge, and skills The IEP, according to parents who strategized, was an
regarding advocacy. Many Native American Indian and important document that functioned as a record of what
Latino families joined support groups for parents of should be happening at school. Many also indicated that
children with disabilities who shared cultural and lin- they understood the emphasis in special education
guistic backgrounds. Alejandra, a Latina mother of a son processes on written communication. If teachers agreed to
with autism, perceived that a benefit of contact with deliver a specific service or accommodation, these parents
other parents was learning what services were available would assure that a written version of this plan appears in
so that she could ask for them to be added to her son’s the IEP. Parents reported, however, that such advocacy
IEP. This notion surfaced in the Native American Indian strategies were not infallible. As Dani reported, sometimes
focus group as well. Jennifer believed that discussion teachers did not agree to an IEP goal. She said,
among parents was an effective way of gaining knowl-
edge about services and tips for advocacy. She said, One of my priorities for my child is that she really needs
help learning how to function in social groups. She can’t
I want to know what another child that’s kind of like process that fast, and she doesn’t know how to respond to
mine, what kind of services did they get because there’s things. One of our goals has been that we want her to have
nothing really explaining what services are. And I’ve some, and the teachers all agree with this, we all want her
learned from other parents. I heard from other parents to have some help working on her social skills. That’s a
because my son had the anxiety and kind of mental very valid thing to put in an IEP. I was told that it’s not
health. They started talking about what they [received], going to happen because the people who would really work
their experience. Their kid is out of college now, so I on that are the social worker and the school psychologist.
said, “Really? You can do that? Really?”
Whereas the majority of parents who strategized advo-
Social relationships established through support cacy efforts were European American parents who were
groups and other affiliations afforded parents access to ineligible for FRCL, parents from other groups did call
information and ways of approaching special education upon this approach. In the example below, Shawn
processes, often resulting in a more strategic approach to explains his strategy of using technical information
advocacy. about special education processes, familiarity with the
IEP, and knowledge of his daughter’s needs. He said,
The Strategist When we first started kindergarten with her, the occupa-
A small group of parents, most of whom were not eli- tional services weren’t there. The physical therapy wasn’t
gible for FRCL, combined their understanding and sense there. We asked the teachers about that, and they said,
“Well, there wasn’t anything suggested about that [from
of disability and their children’s unique strengths and
early intervention].” “Well, we’d like to get that into this
needs with their knowledge about special education.
IEP, because she needs that.” My wife and I both made
Parents who strategized often used sophisticated knowl- special points to make sure that was known. We showed
edge about IDEA, including their understanding of spe- them how her feet are overlapping each other every time
cial education documents, procedures, and parental she walks and how she’s tripping and everything.
rights to engage in advocacy. Strategists understood the
role they could potentially play in making decisions In another example, Diandra worried about her second
about referrals and evaluations, services and accommo- grader’s behavior at home and at school and prepared a
dations, and inclusion. For instance, Brigid, who per- list of accommodations she felt were reasonable based on
ceived that her daughter was not accessing the general her first-hand knowledge of special education services.
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Trainor / Parent Advocacy 43

I had suggested to them, because I was a special ed kid from the dominant group. Patricio said, “It’s not like
too when I was my son’s age but I grew out of it, and I we’re going to speak to the principal.”
was explaining to them how the difference was because Many parents who used strategic approaches con-
I had the one-on-one. I had a teacher that would come nected the struggle to meet the needs of their children
into the classroom and help me with my work. I thought with the need for change in the educational system. As
that was helpful for me because I wasn’t capable to deal
data from the next section illustrate, these parents
with a large group of kids. Then I suggested that another
thing that helped me out was I went from like 8:00 to
accepted additional responsibilities in their roles as
12:00. They told me that there wouldn’t be a possibility advocates.
that he could get a half a day of school because by law
the school wants him in school every day. I’m saying The Change Agent
he’ll still be in school every day. It would just be a little
bit shorter than the regular kids.
A number of parents, all of whom were ineligible for
FRCL, discussed concerns about the level of complex
Parents who strategized also shared perceptions of knowledge and social networking required to advocate
implicit norms and rules for communicating with for their individual children, motivating them to advocate
teachers and administrators. Many parents believed that for systemic change. Parents who were interested in acti-
communication styles influenced the success of their vating systems change had to understand educational
advocacy. Parents perceived that teachers disliked systems’ functions as well as special education specific
parents who were demanding and held teachers account- knowledge. Additionally, this type of advocacy required
able for the implementation of their children’s IEPs. investments of time to establish relationships between
Marge said, “Honestly, I just get this feeling that it’s like parents, teachers, and administrators. Yet distinctions
we’re being too aggressive, and we’re demanding too between individual advocacy and advocacy for systems
much, and that if we’re going to pull in the big guns, then change was not always clear. Morrie said,
they’re really going to dig in.” Jillian and others empha- As we started having conversation, it just felt like, and
sized the importance of being respectful and using we’re not huge advocates. It doesn’t feel like, you know,
restraint during frustrating situations. She said, we’re going to go picket. What about those parents that
are single parents or have high school educations or
I treat them all respectfully because I know that even if whatever that are being told the same story and are
I did have to go through due process, that if I won, then going, “Oh, okay.” It was really about Constance. But
who would I have to work with? It’s still them. And it’s we did have a little part of our brain that said, “If we
like, for me it’s like being in a marriage. So I really work can’t do it, it’s going to be a hell of a lot harder for
hard to think of my wording when I’m talking to them. people that don’t have these resources to try.”

To offset negative images of being too demanding, Access to economic resources was an integral component
parents like Nanette, Kari, Jillian, and Jackie increased of advocacy for the systems change approach. Parents
their presence in the school by volunteering or just by who were change agents used the word privileged to
dropping in and getting to know faculty and staff. Nanette describe their access to informational resources and per-
said, “The staff at that school know me very well, being sonal connections to teachers and administrators. Lori, a
quite visible. And they saw me as an active parent. The bilingual mother of three children, worked with Spanish-
more you’re involved, the more you’re appreciated and speaking families to develop parent advocacy skills after
they know how serious you are about your child’s educa- leaving her first career at the peak of her son’s illness. She
tion.” Despite fears of being perceived as troublemakers, said her family relied on her partner’s income for living
parents also reported strategies that included citing legal expenses as well as “tens of thousands” of dollars for her
precedence to teachers and monitoring the delivery of son’s mental health care. After resigning from her job, she
services. Although this strategy was mentioned occasion- worked in a different capacity educating herself and her
ally by parents (most of whom were African American family about depression, locating appropriate mental
and European American and not eligible for FRCL), health care, attending therapy sessions at a facility more
implicit threats to seek legal assistance or to appeal to a than an hour’s drive from home, filing insurance claims,
higher authority were not discussed by parents who were and advocating with teachers regarding his IEP and home
eligible for FRCL. Although Patricio and Serita, who and hospital services. She said,
relied on an intuitive approach to advocacy, felt strongly
that the requests they made to teachers were often I think it’s very disappointing that [quality of education]
ignored, they eschewed strategies common to parents is so dependent on the parent because that’s what skews
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44 Remedial and Special Education

the social economic thing. Because, you know, poor another and that’s great. But for me it’s not enough. I feel
parents love their kids as much as rich parents love their like I need to have bigger goals because when we spend
kids, but they don’t get the same opportunities at all. I the time there I want to see a bigger sort of payoff. And
mean, you know, I’ve been very fortunate, I can pay the not necessarily for Billy but for just in a broader sense.
doctors, and I can go out and find resources, and, you
know, if insurance doesn’t cover it, I pay it. And it’s just
a luxury. But I just think it’s so unfair that, you know, Discussion
other kids don’t get that same chance.
Interviews with parents reveal important aspects of
These parents said they considered it part of their personal advocacy and access to information (i.e., cultural capital)
mission to create easier paths for other parents of children and relationships and connections between people (i.e.,
with disabilities to receive what they considered to be fair social capital). The data also illustrate the use of distinct
treatment and quality education services. Many provided capital during advocacy for individuals and advocacy for
examples of their work fighting for systems change. When systemic change. Analysis across groups also demon-
Brigid’s daughter struggled to learn to read, she researched strates that race and ethnicity, socioeconomic back-
available programs and advocated to a local agency to ground, and disability intersect in complex ways, making
cover cost of training teachers, who subsequently tutored salient influences on parents’ approaches to advocacy
her daughter and other children in reading. She said, difficult to identify and understand. Nevertheless, pat-
terns of parents’ approaches to advocacy illuminate
I do feel like in most systems that aren’t working per- cross-group comparisons. Several limitations of the
fectly, every family sort of reinvents the wheel. I’ve
study must be considered. Participants volunteered, cre-
known too many families that have gone in and worked
ating the possibility of a narrow sample; however, these
really hard in a school and gotten a really decent experi-
ence with their own, but no other kid in that school is participants do represent a range of disability categories,
experiencing that. So it’s been really important to me to races and ethnicities, and socioeconomic backgrounds.
think about “Where can we effect change?” Outside of member checking, I did not attempt to check
the veracity of parents’ stories. This study represents
Parents who were eligible for FRCL did not provide both my interpretation and the coconstructed meaning
examples of advocating as change agents. Among those between the participants and myself regarding their
who did adopt this approach to advocacy, several noted experiences as advocates (LeCompte & Schensul, 1999).
that advocating for all children with disabilities was I have made efforts to represent a range of key issues
motivating but also challenging. Calli said, using participants’ words as well as to present sufficient
detail to provide transparency to my methods.
And it just seems like your whole life is that way, you know, Bourdieu’s (1974) theory that class distinctions include
you have to dig your feet in, and you have to fight for every differences in the acquisition and use of both cultural and
inch that you get for everything to do with your child. And social capital and that these are inextricably intertwined with
sometimes you just have to take it and put it on the back access to economic capital manifests in this study. Parents
burner and say, you know what, I can’t fight today, I just from low socioeconomic backgrounds had limited access to
can’t. I have to just coast today. Tomorrow, I’ll fight again.
cultural and social capital when compared to parents who
were not from low socioeconomic backgrounds. Across
Despite frustration, political action was not a distant goal racial and ethnic groups, parents who were eligible for
for some parents. Nanette, Brigid, and Bette all volun- FRCL relied heavily on cultural capital that was intuitive.
teered with parents throughout the school district, help- Their efforts to advocate were heavily informed by knowl-
ing inform them of school board issues relative to edge of their children as individuals. Parents who were not
disability and interacting with administrators on advi- eligible for FRCL shared this type of cultural capital but they
sory boards. Bette felt that these connections strength- also employed a larger array of capital resources, particularly
ened her legitimacy when advocating for her own son as technical information regarding IDEA and its implementa-
well as for other families. She said, tion. Furthermore, parents who were not eligible for FRCL
And our common mission is really to troubleshoot and to accessed multiple sources of social capital beyond immedi-
make sure that, you know, we are getting good, coordi- ate family, service providers, and teachers, as has been
nated information to families and also making sure that, documented in existing general education research (Horvat
you know, that the school district is responsive to et al., 2003; Stanton-Salazar, 2001).
parents’ needs. The goal of a lot of support groups is to The educational implications of class distinctions in
talk about what’s going on to see how you can help one approaches to advocacy are important to consider
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Trainor / Parent Advocacy 45

because, as these data illustrate, some approaches garner Glasgow, 1996). The extent to which teachers accept or
more success than others do. Although no approach was reject parents’ advocacy efforts is based on congruency of
always effective, intuitive approaches to advocacy were approaches between home and school is worthy of further
less likely to result in parents’ desired outcomes. As study. Parents of youth with emotional or behavioral dis-
parents gathered more expertise (via cultural and social abilities were more likely to discuss advocacy efforts that
capital), they were able to advocate using approaches were thwarted by teachers’ responses to behavior prob-
that were more likely to result in success. In need of fur- lems at school, indicating a disconnect between home and
ther study is the extent to which services, accommoda- school. Intragroup differences also complicate discussion
tions, and access to the general curriculum differ for of advocacy approaches and the acquisition and use of
youth in relation to advocacy approaches used by capital resources based on socioeconomic background,
parents. Although teachers share the responsibility of race and ethnicity, and disability. Future research should
advocacy (Blue-Banning et al., 2004), documenting the examine teachers’ perceptions of parent advocacy and the
effect of parent advocacy may provide insight into dis- cultural and social capital they expect parents to have and
parities in access to quality education. use during special education processes.
Other sociocultural issues emerge from analysis of Change advocates employed multiple cultural and
these interviews. Parents of color who share a history of capital resources that fueled a variety of approaches to
educational experiences marred by racism and discrimina- advocacy. Whereas advocates for systems change
tion may also share reluctance to use advocacy approaches spanned groups based on race and ethnicity, they shared
that emphasize disability categorization. Parents of color a common socioeconomic background. Advocacy for
in this study communicated uncertainty about the accu- system change requires parents to devote time and
racy and/or usefulness of disability characterizations and energy to such projects. As Brigid, Bette, and Lori indi-
labels, possibly contributing to their unlikely use of a dis- cated, they were able to make room in their schedules for
ability expert approach to advocacy. Also important to advocacy by sharing their family and parenting responsi-
note, a range of attitudes about disability labels and iden- bilities with other people (for example, spouses and paid
tification existed within groups. None of the parents I service providers). Jennifer, Dani, and others were able
spoke to doubted that their children were experiencing dif- to take on advocacy as part of their responsibilities at
ficulty in school; however, some questioned the fit of the work, incorporating a cause important to them with their
label and, consequently, related approaches (e.g., use of opportunity for paid employment. The social capital
medication) to solve these difficulties. Also, parents ques- established through both types of relationships allowed
tioned the extent to which academic difficulties were a change agents to develop additional cultural and social
result of disabilities rather than problems within the class- capital resources that served them as they advocated for
room and/or instructional method. These concerns were both their individual children and for systems change.
far more common among African American, Latino, and Diversified capital resources may facilitate access to
Native American Indian parents. other informational or relational capital, but more impor-
Disability categorization also influences approaches to tantly, diversification may also facilitate access to power
parent advocacy. Parents of youth with autism shared and status. For advocacy to be fruitful and bring about
common approaches to advocacy that included stances of desired results, key players must have equal power
disability expertise and strategy. Outside of parents of (Biklen, 1976). Historically, parents, who have been less
youth with autism, parents whose children shared other powerful than teachers during special education
disabilities (for example, emotional or behavioral disabil- processes, have garnered power by coming together and
ities) exhibited a wider range of approaches to advocacy creating systems change in the form of legislation (A. P.
and the use and acquisition of related capital resources. Turnbull & Turnbull, 2001). Although IDEA contains
Yet parents of youth with autism, across racial, ethnic, both a framework and a legal precedence for parents-as-
and socioeconomic backgrounds, shared more examples partners equity, data from these interviews demonstrate
of advocacy efforts that led to their desired outcomes of that partnerships in which parents advocate require com-
home–school collaborations. Perhaps parents in this plex resources of all types of capital, which as Bourdieu
group were well versed in the language of special educa- (1986) argued, are interrelated. As parent interviews
tion and disability, matching teachers’ approaches to herein indicate, having lots of capital does not necessar-
problem solving. Past research has demonstrated that ily mean having lots of power. Parents across groups had
teachers are more likely to encourage and accept parent experiences in which their equal status with teachers was
involvement when they believe that parents share their challenged and their efforts to advocate were ignored.
values and are not critical of their work (Dornbusch & Nevertheless, parents did prevail in many instances.

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46 Remedial and Special Education

How do parents come to successfully challenge the use of capital resources. This line of research has the
structures that have effectively prevented equal opportu- potential to inform practice as educators work with people
nity in schools for their children with disabilities? from a variety of ability, socioeconomic, linguistic, cul-
Strength and efficacy in advocacy seemed to stem from a tural, and racial and ethnic backgrounds that ebb away
combination of specialized cultural capital (i.e., knowl- from and flow toward teachers’ identities.
edge of IEP content and parents’ rights) and social capi- Because parent participation is a lynchpin of special
tal in the form of relationships between key players (e.g., education, being culturally responsive includes commu-
extended family, other parents with children with disabil- nicating and collaborating with parents. Effectively edu-
ities, teachers and disability service providers, and cating diverse groups of youth using culturally responsive
administrators). Bourdieu has been criticized for adhering pedagogy is ultimately about working toward a society in
too closely to a structuralist position without examining which equality and social justice prevail. One does not
the role of individual agency (Adkins, 2005). Further want to promulgate a system where one provides a set of
study of advocacy that includes a full ethnographic case services or a standard of quality educational opportunities
examination may illuminate these issues. This study sup- for youth with disabilities whose parents are effective
plied evidence of the importance of capital resources but advocates and another for those who are not.
continued work needs to examine the expenditure of cap-
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