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Special Needs Research Paper
Special Needs Research Paper
Special Needs Research Paper
Erin Taylor
Dental Hygiene IV
Lisa Hebl
In choosing a special need to learn about, I was quickly interested in Fetal Alcohol
Syndrome. As someone who was raised in a family affected by the disease of alcoholism, this is
a topic close to my heart. Fetal Alcohol Syndrome is the most severe diagnosis of the Fetal
Alcohol Spectrum Disorders, commonly referred to as FASDs (CDC and Prevention, 2022).
Some of the less sever diagnosis are Alcohol-Related Neurodevelopmental Disorders (ARND)
and Alcohol-Related Birth Defects (ARBD). To definitively say that a child has Fetal Alcohol
Syndrome they must have documented central nervous system abnormalities, stunted growth,
and facial abnormalities. The facial abnormalities must include all three of the following: small
eye lid openings, a thin upper lip, and a smooth philtrum (National Center on Birth Defects and
Fetal Alcohol Syndrome is unfortunately not a new problem. Even the ancient Greeks
and Romans linked drunkenness to birth defects (Calhoun & Warren, 2007). It has been said that
Aristotle was heard discussing how children born to often intoxicated mothers were different
than their peers. Depending on who you ask, you will hear different answers as to who officially
discovered Fetal Alcohol Syndrome. Some say it was Lemoine, some say Jones and Smith, while
others will argue it was Streissguth and Ulleland. While we may never come to a consensus of
who should take credit, it is clear that the congenital disease develops directly from the
teratogenic effects of alcohol through pregnancy. Just as alcoholism does not discriminate,
neither does its effects. Babies of all genders, races, and ethnicities are affected. There is a
higher incidence of Fetal Alcohol Syndrome in black, Alaskan-natives, and American Indian
communities which may be associated with data gathering methods rather than genetic risk
Depending on when and how much a mother drinks will determine when the fetus will be
affected. The only way to develop Fetal Alcohol Syndrome is with alcohol consumption during
pregnancy, the presence of that circumstance alone is what produces an effected population.
There has been no established safe zone of maternal drinking, nor a point which guarantees the
disorder. Newborns can show the consequences early on with irritability, tremors, low muscle
tone, and even withdrawal symptoms (Itthagarun et al., 2007). As the child ages, more symptoms
become apparent such as stunted height and weight, difficulty learning, and hyperactive behavior
(CDCand Prevention, 2022). While this disease effects fetuses, it is not curable and lasts a
lifetime.
Physically we see babies being born smaller, especially with reduced brain mass
according to John Olney (2004). While the facial abnormalities listed earlier define the
condition, there are other symptoms that can be present in addition to those. Vision problems,
hearing deficits, and orofacial clefts are some of the physical results (Munger, et al., 1996).
Phenotypically we see eyes that slope down, nose tips that point up, and a noticeable overjet.
(Itthagarun et al., 2007) Intellectual concerns are often seen associated with Fetal Alcohol
Syndrome such as difficulty speaking, learning, and reasoning. Lowered IQ, problems with
attention, memory issues, and hyperactivity are also prevalent. Since Fetal Alcohol Syndrome
does not have a treatable cure, all that can be done is to treat the symptoms. Stimulants,
antidepressants, neuroleptics, and anti-anxiety drugs are all methods of aiding in the day-to-day
management. These drugs are known to cause teeth grinding, dry mouth, and recession leading
to compromised oral health in some patients. Since Fetal Alcohol Syndrome is permanent, these
medications are often taken for life and can lead to liver problems as they are metabolized there.
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These medications also pose mental risks as they can increase thoughts of suicide and depression
While a thin upper lip and the lack of a philtrum are not inherently a problem, some of
the secondary symptoms can be more problematic. The orofacial clefts seen in many children
with Fetal Alcohol Syndrome produce lifelong problems with speech and eating. Children with
Fetal Alcohol Syndrome also experience dental crowding, malocclusion, and caries at a higher
rate than nonaffected children. Some researchers suggest the figure is five times more likely
(Auger et al., 2022). These problems are compounded because having crowded teeth alone is
enough to increase the occurrence of dental caries. Not being able to easily clean between tight
spaces increases the risk of decay, then it is intensified by the coordination difficulties and the
reduced intellectual capability often seen in children with the disease. Caretakers often are
responsible entirely for daily oral home care which can become very difficult when paired with
the behavioral problems and intellectual disabilities seen in patients with Fetal Alcohol
Syndrome. With the increased incidence of facial clefts seen in these patients, the problem of
caries is once again exacerbated. The medications discussed previously can contribute to the
caries problem if the side effect of xerostomia becomes more prominent than the excessive
Throughout appointments with children effected with Fetal Alcohol Syndrome it is likely
to see the patient experiencing difficulty sitting in the chair for extended periods of time. The
hyperactivity often seen with the disorder can make appointments difficult to progress. The child
may become aggravated easily and lash out. The short attention span may also pose an issue with
appointments. Modifications can be made to accommodate these challenges such as keeping the
operatory clean and quiet to avoid distraction. Some children may have extreme difficulty
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staying in the dental chair and general anesthesia might be required. At home the same difficulty
may be experienced with daily oral hygiene, resulting in a large accumulation of plaque as tooth
brushing may be inadequate. The crowding of teeth that is often seen is also a contributing factor
to the difficulty keeping these patients’ oral hygiene adequately taken care of.
An important consideration that should be present in the minds of dental care providers is
that children who suffer from Fetal Alcohol Syndrome are at a higher risk of being abused by an
alcoholic. This may present as fearfulness or shyness in a child. This type of patient may need to
be advocated for by contacting the proper social agencies for assistance. Another time that Fetal
Alcohol Syndrome can alter our appointment is when an expectant mother is in our chair. Not
only should we be individualizing our appointments for patients effected with Fetal Alcohol
Syndrome, but it is part of our role to educate patients on the dangers of drinking while pregnant.
Along with that, it is also our role to educate the parents on resources to help their children.
Spending time throughout the appointment to teach the importance, as well as technique for
Caretakers are often a necessity to maintain oral health at home for these patients. While
not every patient suffers with symptoms that leave them unable to effectively complete brushing
and flossing, it is often the case. In these instances, dental hygienists are key in identifying where
improvements need made and educating on how to enact those changes. If a patient is
hygienist should ensure a caretaker is informed of how to administer homecare properly and
safely.
Depending on the specific needs of each patient will determine what modifications can be
helpful. If a patient presents with no intellectual disability, but struggles only with coordination,
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then they may be a candidate for independent care with the help of floss aids or a water flosser. If
a patient instead stuffers with difficulty understanding, then a caretaker can be appointed at home
to take responsibility for daily oral care. Some patients may suffer from merely memory
difficulty. This would be a great opportunity to discuss aids they can keep at home to remind
them of daily tasks to be completed. As dental hygienist, we can offer resources like routine
reminder charts that can help our special needs patients. Routine reminder charts can be helpful
added on the chart to be most helpful for each patient. Patients with more independence may
only need the words “tooth brushing” added to their daily schedule on a poster at home while
other more dependent patients may need images provided to indicate the steps to follow to
Dental aides can be used to help the patient function independently, but also should not
caretakers who struggle with completing effective toothbrushing. Being able to hold a vibrating
brush against the gumline may help remove more plaque than would be possible with trying to
correctly adapt the toothbrush while moving back and forth. Floss aids may help caretakers reach
to the back of the patients’ mouth while keeping their fingers safely out of the mouth to protect
Knowing that dental caries is an increased risk for this population, we want to consider
how to help prevent this in patients. Recommending toothpaste with fluoride is a good place to
start but importance should also be placed on nutritional counseling with caretakers. Patients
with behavioral issues may be receiving sugary treats to help correct behaviors. Ensuring care
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takers are educated about the risks is an important conversation to include in the appointment
time.
overlooked. It is important to remember that not every patient with Fetal Alcohol Syndrome will
require a caretaker. We should take care to prevent blindly expecting every patient to need the
assistance just because they have this diagnosis. Many patients will be full capable of caring for
themselves and should be educated with information on maintaining their oral health at home
independently. These patients can grow old and always remain on a six month recall without
problems. Others may need more support and shorter recall, but that should be decided based on
each individual’s needs, just as everything in health care and dentistry should be.
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References
Auger, N., Low, N., Lee, G., Ayoub, A., & Nicolau, B. (2022). Prenatal substance use disorders and dental
Calhoun, F., & Warren, K. (2007). Fetal alcohol syndrome: historical persepctives. Neuroscience &
Center for Disease Control and Prevention. (2022, January 11). Fetal alcohol spectrum disorders (FASDs).
https://www.cdc.gov/ncbddd/fasd/facts.html#:~:text=To%20diagnose%20FASDs%2C
%20doctors%20look,average%20height%2C%20weight%2C%20or%20both
Itthagarun, A., Nair, R. G., Epstein, J. B., & King, M. M. (2007). Fetal alcohol syndrome: case report and
review of the literature. Oral Surgery, Oral Medicine, Oral Pathology, Oral Radiology, and
Endodontology, 20-25.
May, P. A., & Gossage, J. (2001). Estimating the prevalence of fetal alcohol syndrome. A summary.
Munger, R., Romitti, P., Daack-Hirsch, S., Brns, T., Murray, J., & Hanson, J. (1996). Maternal alcohol use
National Center on Birth Defects and Developmental Disabilities; Center for Disease Control and
Prevention; Department of Health and Human Services. (2004). Fetal alcohol syndrome: guide
Olney, J. W. (2004). Fetal alcohol syndrome at the cellular level. Addiciton Biology, 137-149.
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