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Using Drawings of Pain-Related Images To Understand The Experience of Chronic Pain: A Qualitative Study
Using Drawings of Pain-Related Images To Understand The Experience of Chronic Pain: A Qualitative Study
Abstract
Introduction: This study aimed to use drawing as a means to explore the content of pain-related images in a sample of people
with chronic pain.
Method: Adults (n ¼ 90) attending three United Kingdom National Health Service pain clinics were asked to bring to mind and
draw an image of their pain. Drawings were analysed using critical visual analysis methodology.
Results: Fifty-four participants drew a picture of their pain. Drawings were vivid, emotionally charged and included catastrophic
interpretations of pain. Image content was described using three main themes: pain as an attacker, the nature of pain (pain
sensations, timeline, pain location) and the impact of pain (pain as a barrier, being trapped by pain and the future with pain).
Drawings reflected different perspectives taken in the image, with images of the person themselves in pain (as if seen through the
eyes of an observer) evoking a sense of helplessness and isolation.
Conclusion: Pain-related images can provide a valuable insight into people’s pain worlds, with images reflecting pain cognitions
and barriers to recovery. Clinicians may find drawing a helpful tool in the assessment and management of chronic pain, enabling a
visual and shareable language for pain.
Keywords
Chronic pain, imagery, drawing, illness perceptions, cognitions
Therefore, accessing information about such beliefs has as a means to explore whether such drawings could con-
important implications for tailoring treatment tain rich information about the pain experience, beyond
interventions. that accessible through verbal language.
The cognitive process of imagery has been found to
feature across a range of presenting problems (Brewin
et al., 2010), and has received increasing attention within Method
anxiety disorder research and cognitive therapy advances
(Hackmann et al., 2000, 2011; Speckens et al., 2007).
Design
Indeed, clinical observations and recent research in the This qualitative study was nested within a larger cross-
field of chronic pain indicate that a substantial number sectional study, with an overarching aim to explore the
of pain sufferers experience imagery related to their pain role of pain related imagery in the experience of chronic
(Gillanders et al., 2012; Jamani and Clyde, 2008; Philips, pain. This current paper focuses on the qualitative content
2011; Wintercrowd et al., 2003). Clinical descriptions of of the pain-related drawings.
such images suggest four main image ‘types’ that typically
comprise images of the pain itself, the person in pain,
relationships with others (for example, being misunder-
Participants
stood) and, finally, images of a future with pain Participants were recruited from three National Health
(Wintercrowd et al., 2003). Early findings indicate a link Service (NHS) pain management programme (PMP)
between pain-related images (PRI) and pain catastrophiz- services in greater London. All eligible new referrals
ing (thinking negatively about pain) (Gillanders et al., and follow-up patients attending the PMP services
2012). Pain-related images may have a powerful role to during the recruitment time frame (September 2010
play in contributing to fear-avoidance cycles in chronic to May 2011) were invited to participate. In line
pain (Jamani and Clyde, 2008), therefore impacting with the services’ referral criteria all participants were
upon subsequent adjustment and having valuable implica- adults experiencing chronic pain, and had malignant
tions for pain management interventions. Accruing evi- causes of pain excluded. Participants were excluded
dence suggests people are able to pictorially represent from the study if they did not have sufficient
how they ‘see’ a specific health condition in their mind’s English to complete the questionnaire. Participants
eye, using methods such as drawing and photography. were approached in the waiting room by either the
Studies have included pictorial representation of heart researcher or the receptionist and approximately (due
failure (Reynolds et al., 2007), cancer (Harrow et al., to some data not being recorded at one site) 200
2008), headaches (Broadbent et al., 2009), myocardial people chose to take away a questionnaire pack and
infarction (MI) (Broadbent et al., 2004) and chronic 90 completed questionnaires were returned. Of those
pain (Henare et al., 2003; Padfield, 2003). Resulting pic- 90 participants, 54 provided a drawing of their pain-
torial representations have been found to be linked with related image and comprise the study sample reported
recovery; for example, the extent of heart damage drawn here. The study was approved by the NHS Research
was found to predict recovery better than medical indica- Ethics and the relevant Research and Development
tors in MI patients (Broadbent et al., 2004). Further find- committees.
ings indicate that pictorial representations can be valuable
as a communication tool to enhance understanding
between the person and their health professional, and in
Measures
enabling the sufferer an opportunity to reflect upon and Items were developed in collaboration with a pain man-
make sense of their pain experience (Henare et al., 2003; agement specialist and were piloted by four individuals
Maclean, 2009). with chronic pain. Demographic information collected
Recent research has therefore highlighted a potential included gender, age and ethnicity. Participants also com-
role for visual imagery across a number of chronic con- pleted quantitative measures of their pain experience.
ditions including chronic pain. Furthermore, studies sug- They then took part in a drawing task to elicit their pain
gest that imagery may be related both to the patients’ related imagery.
experience of their condition and their subsequent recov-
ery. In addition, it has been argued that imagery may be
a useful communication aid for health professionals to
Pain experience
use during the consultation. To date, however, little is Participants indicated the pain location (for example,
known about the ways in which people with chronic lower back, upper back and head) and if they had a diag-
pain visualize their pain. Therefore, in line with this, nosis to explain their pain (Yes/No), with a yes response
the present study aimed to explore whether people prompting elaboration. Pain duration was described in
with chronic pain can spontaneously generate pain- years and months. A Visual Analogue Scale (VAS) mea-
related imagery when asked to draw an image of their sured present pain intensity, a widely used, validated and
pain. Furthermore, using a qualitative approach and sensitive self-report measure (Jamison et al., 2002). The
critical visual analysis the study aimed to offer an in- VAS consisted of a 10 cm line anchored either end by
depth insight into the content and nature of such images two descriptors no pain and worst possible pain, resulting
406 British Journal of Occupational Therapy 78(7)
in a score from 0 to 100 with a higher score reflecting those which prioritize the patients’ experience and prefer
greater pain. non-medical approaches where possible.
Theme 1: Pain as an attacker. Almost one-third of the pic- The person being attacked by pain. Pictures drawn from
tures primarily represented pain as an attacker. These an observer perspective depicted the person themselves
images were interpreted as having two different image per- being attacked in the image. Pictures included people
spectives. First, an image of pain as an externalized being stabbed, squeezed and shot with arrows; expressing
threatening object or other, and second, images drawn a fight with pain, of being beaten and of the person being
from an observer perspective, depicting the person being one of pain’s victims. One participant drew a series of four
attacked by pain (see Figure 1). images creating a powerful picture narrative. The story
reflects a metaphor of the person as a happy floating bal-
Pain as an externalized threatening object or loon who becomes scared by threatening arrows of pain
other. Pictures reflected pain as something external and falls to the ground deflated and in agony having been
to the person, and this was felt to be threatening. hit by the pain arrows. The participant annotated the story
Pictures represented pain as a dragon, a monster, as with: ‘A balloon is floating happily then an arrow (pain)
spiky shapes, a vicious set of teeth, and a box with sharp comes and ruins everything! The balloon is me! And it
points tied with string. Weapons were portrayed in many (pain) wins. I see it coming and I am (the balloon) left
of the pain image drawings (for example, swords, arrows, feeling deflated and defeated’ (Sarah).
sharp objects, nails and knives). Verbal descriptor words
used to annotate drawings also included frequent reference Theme 2: The nature of pain. Almost half of the pictures
to weapons. The pictures were large, filling the page and were interpreted to represent the nature of pain, reflecting
creating a sense of pain as an enemy and a dominating participants’ beliefs relating to pain sensations, time line
force. and location (see Figure 2).
Pain sensations. Pictures contained metaphorical the pain was or drew a painful body part. Isolated pictures
images and used colour and texture to describe pain sen- of body parts were felt to reflect attentional focus on that
sations. For example, pictures included fireworks, flames, area and their perceptions on cause and prognosis; for
lightning, pins and needles, hot and cold taps and broken example, one participant drew their shin bone and com-
glass. Colour was used to communicate the felt sense of mented ‘see pain as blackened and rotting bone as if gone
intensity and heat, with red being used to create a vivid bad’ (Rachel). Another participant drew their back and
drawing of flames, and a sun which was annotated to be commented: ‘I only picture the damaged body parts and
‘burning and throbbing’ (Amy). One participant wrote how much worse they may get, also how anybody can put
‘the worse my pain is, the stronger the colours are in my them right again as they will continue to wear out when I
mind’ (Amy). Texture in the picture was reported by one use them’ (Caroline).
participant to relate to tension levels.
Theme 3: The impact of pain. For a proportion of partici-
Time line. Pictures representing perceptions of the time pants the PRI drawings reflected concerns and beliefs
line of pain conveyed pain as constant, although varying about pain’s impact, with the pictures expressing the
in intensity. One participant drew a series of graphical sense of pain as a barrier, being trapped by pain and the
representations of their pain levels over time, illustrating future with pain (see Figure 3).
high pain peaks. Another participant pictured pain as a
weather forecast, annotating their drawing with the Pain as a barrier. Pictures represented pain as an exter-
description ‘continuous bearable pain but more severe at nal blocking object, such as a wall or a bolt through the
regular intervals’ (Sally). The pictures further expressed a neck. The pictures expressed the consequences of pain
sense of pain as having no end, and of the person having stopping the person from engaging with valued activities,
little control of their pain. and reflecting pain as blocking the person communicating
emotional distress. The experience of having the image
Pain location. Pictures represented pain location. was reported as intense, with one participant annotating
Participants either drew a person and indicated where their picture of a grid like structure to say ‘it was not so
much a vivid image as a feeling of the image that was were consistent with the four types suggested by
intense’ (Hannah). Wintercrowd et al. (2003) reflecting images of pain itself,
the person in pain and images of a future with pain.
Being trapped by pain. Participants reported images of Images relating to the fourth image type, ‘relationships
darkness, conveyed through pictures of black shapes), with others’, were reflected less so in the present study.
black holes and dark clouds. One participant drew them- A small sample of the pictures reflected a sense of hope
selves stuck in a hole, and two participants described in for the future.
words images of pain being chained to them (for example, Three main themes emerged from the drawn pain
image of a ball and chain and a tight metal shackle). The images: pain as an attacker, the nature of pain and the
pictures appeared to express fears of isolation and a sense impact of pain. Images largely painted a vivid picture of
of helplessness and hopelessness. pain as an enemy and as an isolating and hopeless experi-
ence. Frequent reference was made to weapons, both
The future with pain. A small number of PRI repre- through the use of drawing and annotation of the
sented perceptions about a future with pain. The pictures images. Colour (and lack of colour), shading, size and
reflected threats to identity, a fear of being a burden, and both literal and metaphorical images portrayed pain as a
death (for example, drawing of a gravestone engraved with threatening and dominating experience.
RIP). One participant commented ‘I see a bed and me Many of the image drawings encompassed the nature of
almost unable to get out of it and then to be a burden pain, reflecting illness beliefs and perceptions as proposed
to my family’ (Maeve). However, images for this partici- within the common-sense model of illness (Leventhal
pant and one other expressed a sense of hope for their et al., 1997). Images represented pain sensations or symp-
future, with the above participant commenting ‘but I am toms, and the timeline of pain. For some, pain was por-
strong and I wish to fight this happening’ (Maeve). trayed as uncontrollable and images also depicted the
consequences of pain. A number of images focused upon
painful body parts and conveyed the person’s beliefs about
Discussion and implications the cause of their pain (for example, ‘blackened’ and ‘rot-
The present study aimed to explore whether people with ting bone’), and the belief that pain was worsening due to
chronic pain could spontaneously generate an image of wear and tear.
their pain and to offer an in-depth characterization of Images which portrayed the impact of pain comprised
the content and nature of such images using visual ana- emotive content and illustrated a picture of pain as an
lysis. Primarily, the results demonstrated that a high pro- overpowering and dark force. Within these images, par-
portion of participants were able to deliberately evoke a ticipants saw themselves as being trapped and held back in
pain-related image in response to a questionnaire item, their lives by pain (sometimes as if a prisoner to pain).
and visually represent this image by drawing it. With the exception of a couple of participants, these
Furthermore, as anticipated, the pain drawings generated images painted a bleak outlook on a future with pain.
rich data, providing an idiosyncratic representation of What emerged of particular relevance was the perspec-
pain perceptions and an insightful journey into people’s tive taken in the image. Participants pictured pain as an
pain worlds. externalized object or other (as if seen through their own
The images paralleled clinical experience and reports of eyes) or pictured themselves in pain (as if seen through the
images from people with chronic pain. Pictures were vivid, eyes of an observer). In accordance with the suggestion by
emotionally charged, and reflected catastrophic interpret- Hackmann et al. (2011) the perspective taken may have
ations and beliefs about pain. Broadly speaking, images clinical significance. Pain images drawn from an observer
410 British Journal of Occupational Therapy 78(7)
perspective were felt to represent the person as a vulner- positive narrative; for example, imagining themselves
able victim of pain, evoking a sense of helplessness, isola- taking control of pain by perhaps using pain management
tion and of feeling ‘beaten’ by pain’s vicious and tools to blunt pain’s arrows, throw water over the flames
unpredictable attack. or strengthen the outer layer of the balloon. This could
The study has its limitations, such as the process of help to enhance the patient’s sense of agency and shift
completing a PRI drawing task within the remit of a ques- them to a position of empowerment. The person may
tionnaire, as participants did not then have an opportunity then find it helpful to rehearse the new image. It is
to discuss it and its associated meaning with the hoped that this might exert an impact through increasing
researcher. Therefore, the reported meaning encapsulated confidence to manage when pain strikes and by reducing
within the pictures was informed by picture content and the threatening image impact, therefore enabling the
annotations only. Furthermore, and in line with all quali- person to feel less scared of pain and more likely to
tative methods, this approach is open to the specific per- return to previously avoided activities. In this way,
spective and disciplinary perspective of those carrying out direct image interventions may enhance a person’s confi-
the analysis. All researchers are psychologists which may dence to take control of the pain, to reduce the impact of
well have influenced the meanings attached to the images pain in their lives and enable them to find their way out of
and the ways in which they were interpreted. Furthermore, the darkness often created by pain by eliciting hope.
the use of colour features as important in the analysis of
visual material (Rose, 2007), yet, the questionnaire
instructions did not encourage the use of colour and
Conclusion
people were limited to whatever drawing materials were The present study’s key message can be summed up as
available to them in their home setting. ‘a picture paints a thousand words’. Images about pain
Pain-related images have the potential to provide direct contain valuable information about the chronic pain
access into the pain experience thereby communicating experience. Facilitating people with chronic pain to see,
information about pain cognitions, the person’s relation- paint and repaint their pictures of pain has exciting impli-
ship with pain and inherent emotions. This has implica- cations for clinical practice. Drawing provides a means to
tions for both research and clinical practice. In terms of access people’s pain imagery, providing a simple yet uni-
research, further studies are needed on a larger scale to versal and powerful assessment tool. Such self-generated
explore the representativeness of the current findings and pictures of pain have the potential to overcome communi-
to enable an assessment of differences in imagery accord- cation and cultural barriers, and to identify unhelpful pain
ing to factors such as age, gender, time since pain onset beliefs. In this way, pain drawings defy the inability of
and types of treatments attempted. In addition, research language to articulate the often abstract pain phenomena,
could evaluate the usefulness of using imagery in practice thus providing a visual and shareable language for pain.
in terms of improving both communication between
health professional and patient and the patient’s own Key findings
experience of their pain. In terms of clinical practice,
there are implications for both assessment and treatment. . Most chronic pain patients were able to evoke and
First, in terms of assessment, using imagery could enhance draw an image of their pain.
information collected during an assessment process . The images provided insights into their pain experi-
increasing an understanding of the patient’s own beliefs ences above and beyond the use of words.
and sense-making processes. Furthermore, asking the
patient to draw their pain may be useful for those who
find it difficult or distressing to articulate their pain experi- What the study has added
ence verbally, creating a visual tool to be used by both the Asking patients to draw an image of pain may be a
patient and clinician. Second, pain imagery may also be useful forum for both the assessment and treatment
useful for treatment. For example, a recent study has pion- of chronic pain.
eered the way in evaluating direct image work in pain
sufferers using images as the basis for re-scripting. In par- Acknowledgements
ticular, participants were asked how they would prefer We would like to thank our participants for taking part in the study
their pain image to be and then to generate a rescripted and sharing their experiences. Thank you to the team members at the
image. The results showed reductions in negative emo- pain services involved for their expertise and assistance with data
collection. We would also like to thank David Gillanders and Clare
tions, appraisals and pain during the recall of the
Philips for sharing their early work in this field.
rescripted image (Philips, 2012).
In line with this, an example of how images could be
used in practice follows. First, a patient with pain could be Research ethics
asked to evoke and draw an image of their pain. Using the The study was approved by the NHS Research Ethics and the rele-
image from one participant in the current study as an vant Research and Development committees (Rec No: 10/H0803/75).
example, this might be of themselves as a balloon left
defeated and deflated by the arrows of pain. The clinician Declaration of conflicting interests
could then encourage the person to try to generate a more None declared.
Phillips et al. 411