Professional Documents
Culture Documents
Jabaself Advocacy88
Jabaself Advocacy88
Jabaself Advocacy88
Handicapped persons have had a history of seg- ters in the United States recommended to the Na-
regation and discrimination in our society for more tional Council on the Handicapped that the latter
than a century (De Jong, 1983; Wolfensberger, "explore the extension of independent living prin-
1972). Traditionally, legal advocacy for persons ciples to disability groups not currently adequately
with handicaps has been undertaken by family represented in the independent living movement,
members, friends, advocacy committees, nonlegal including developmentally disabled, mentally re-
professionals, and attorneys (Herr, 1983). In recent tarded, and mentally ill persons" (U.S. Department
years, as part of the independent living movement, of Education, 1984).
persons with physical handicaps have begun to as- Despite initial efforts by persons with disabilities
sert their legal rights and challenge the stereotyped to assert their own rights, there is a paucity of
view that persons with handicaps cannot speak for research demonstrating effective strategies to teach
themselves. Although persons with developmental self-advocacy skills to this group. There is a need
disabilities and mental retardation have faced a for empirically validated instructional programs that
similar history of discrimination and segregation, teach persons with handicaps their legal rights, as
they have participated minimally in self-advocacy well as what action they can take if their rights are
activities, perhaps because many have not acquired violated. Legal awareness, however, is one of the
the necessary discriminations and verbal skills to least common topics in independent living skills
advocate on their own behalf in the natural envi- training programs (Iceman & Dunlap, 1984).
ronment. In response to this need, we developed and eval-
In recognition of the common needs of all per- uated an instructional program to teach adults with
sons with handicaps, the Independent Living Cen- mild handicaps (a) to discriminate whether or not
their legal rights have been violated in certain in-
This research was supported, in part, by a National In- terpersonal situations, and (b) a general complaint
stitute of Handicapped Research Distinguished Research Fel- process to redress rights violations.
lowship to the second author.
We would like to express our appreciation to the staff and
clients at the Evaluation and Developmental Center, to Mar- METHOD
tha Kyle who served as a secondary observer, and to Anne
Fulkerson for validating the instructional content. Participants
Requests for reprints may be addressed to Anthony J.
Cuvo, College of Human Resources, Southern Illinois Uni- Four male and four female ambulatory dients
versity, Carbondale, Illinois 62901-4322. of a rehabilitation facility served as participants. All
299
300 ANN L. SIEVERT et al.
were referred for services because they lacked the exercised) relevant to the target population was
skills to obtain employment and function indepen- generated based on a review of the disability rights
dently in the community. They ranged in age from literature (e.g., Kerns et al., 1981; Mickenberg &
19 to 27. Participants' WAIS-R Full Scale IQs Dickson, 1979). The rights and accompanying con-
and additional disabilities cited in their case files ditions were subdivided into four general categories
were as follows: Trina (average IQ, cerebral palsy, (i.e., personal, community, human services, and
speech impairment), Katie (IQ = 78, mentally consumer rights) as shown in Table 1.
retarded), Sue (IQ = 69, learning disabled), Matt Scenarios. For each of the specific rights, scen-
(IQ = 77, learning disabled, psychoneurosis, de- arios were developed that described hypothetical
pressed type with secondary diagnosis ofpersonality interpersonal situations in which participants were
disorder), Cindy (IQ = 76, character disorder with denied a request. Some scenarios exemplified re-
antisocial features), Rob (IQ = 112, psychoneu- quests that were justifiably denied (e.g., because
rosis), Bill (IQ = 83, mentally retarded), and Ken the participant failed to meet a condition such as
(IQ = 71, mentally retarded). The first eight clients getting a blood test or paying a fee when applying
referred to the facility that had not already partic- for a marriage license). These were termed non-
ipated in the pilot study were enrolled in the main violation scenarios. Other scenarios, termed viola-
study. All eight participants demonstrated a skill tion scenarios, illustrated the denial of participants'
deficit in legal knowledge during an independent requests without justification (i.e., the participant
living assessment given to all new facility clients. either met all the necessary conditions for a con-
ditional right or it was a right with no conditions).
Settings Two parallel sets of scenarios (100 per set) were
Discrimination training and testing were con- developed according to general case programming
ducted in several dassrooms at participants' reha- guidelines (Homer, Sprague, & Wilcox, 1982).
bilitation facility. Training and testing of redressing The parallel pairs pertained to the same specific
rights violations were conducted in a dassroom at right. Parallel scenarios for conditional rights also
the rehabilitation facility (dassroom role-play) and varied the specific conditions that were or were not
a case manager's office at the facility (in vivo). met. From each of these parallel pairs of scenarios,
Additionally, role-play training and testing were one was chosen randomly for training and the other
conducted in three community settings (a living for testing (e.g., testing scenario: "You and your
unit in an apartment building for handicapped fiance want to get a marriage license. Neither of
persons, the recreation room at the apartment you like doctors; therefore, you did not get blood
building, and a discount department store). tests. You knew you were both in good health
anyway. The person behind the counter at the City
Materials Clerk's Office refused to give you your marriage
An overhead projector, screen, transparencies, vi- license." Training scenario: "You and your boy/
deocassette recorder, telephone, and a telephone girlfriend went to the Courthouse to get a marriage
directory provided to all clients of the rehabilitation license. You both remembered to get blood tests
facility (i.e., a six-page directory of telephone num- and also filled out all the forms and answered all
bers of agencies frequently used by persons with the necessary questions. You both spent the last of
disabilities living in the community) were used dur- your money for the bus fare. The person at the
ing training and testing. counter refused to give you a marriage license.").
Redressing rights violations. After a review of
Instructional Content literature describing various consumer complaint
Legal rights and conditions. A list of 30 legal processes, a three-step sequence to respond to a
rights and their accompanying conditions (i.e., re- rights violation was developed. Participants should
quirements that must be met for the right to be first assert their rights to the person who directly
TRAINING SELF-ADVOCACY 301
praise was provided and the second question was 1. Subsequently, participants received interspersal
presented (i.e., either "Why?" or "Why not?"). training for all specific rights in that general rights
Procedures for correcting errors to the second ques- category. Remedial training was conducted in the
tion were the same as for the first question. same fashion as previously described.
As can be seen in Table 2, interspersal training
was conducted at Steps 6 and 8. Previously trained Procedures for Redressing Legal
scenarios were reintroduced for additional instruc- Rights Violations
tion. During Within Rights Category Interspersal After legal rights discrimination training, par-
training (i.e., Step 6), all scenarios from the general ticipants were taught a general sequence of behavior
rights category previously instructed were presented to redress rights violations.
again. Participants had to meet a performance cri- Baseline. Baseline consisted of individual ses-
terion for each specific right within that one general sions testing participants' abilities to redress rights
category. The required number of consecutively violations. Probes were conducted prior to, im-
correct scenarios from each legal right is indicated mediately after, and 1 and 3 months subsequent
on Table 1 following each right. The criterion was to training. Assessments were conducted in a re-
set higher for specific rights with several conditions. habilitation facility classroom and in five commu-
For Between Rights Category Interspersal train- nity locations (i.e., a discount department store, a
ing (i.e., Steps 8, 10, and 12 in Table 2), scenarios living unit at an apartment building for people
were presented from all previously trained general with handicaps, the recreation room at that apart-
rights categories. Two scenarios were arbitrarily cho- ment building, and a case manager's office at the
sen (one exemplifying a rights violation and one a rehabilitation facility). Testing involved role-played
nonviolation) from each specific right in all general responses to scenarios depicting rights violations.
categories previously trained. During dassroom role-play assessments, partic-
At the beginning of each training session, all ipants were tested individually. The trainer read a
specific rights initially taught in the preceding ses- scenario aloud, then gave a written copy to the
sion were reviewed. Participants took turns naming participant to study for 1 min. The trainer told the
those rights until all were stated. The trainer named participant to assume the rights violation actually
specific rights participants omitted. In addition, at happened, and then asked, "Would you do any-
the end of each session, all new specific rights taught thing in response?" If the answer was "Yes," the
that session were reviewed in the same manner. trainer asked, "What would you do?" When a
Posttest. Subsequent to meeting the perfor- response induded a reference to another person
mance criterion for the final Between Rights Cat- (e.g., "I would talk to the store derk"), the trainer
egory Interspersal training (Step 12 in Table 2), interrupted and said she would play that role. The
the legal rights discrimination test given during participant then was asked to act out what he or
baseline was readministered. Participants were re- she would do. Except when the trainer played the
quired to meet a 90% correct performance criterion role of a staff member of a community advocacy
for each of the four general rights categories on that agency (the final step in the behavioral sequence),
test. Response-contingent feedback was not pro- she used negative voice tones and facial expressions,
vided. and refused to assist the participant. When playing
Remedial training. If participants fell below the role of the community advocate, however, the
the 90% criterion on any general rights category, trainer always agreed to help participants. Only
remedial training was provided. Initially, repeated noncontingent praise for partcipation was admin-
practice was given only on those specific rights on istered. For a scenario illustrating a violation of
which errors occurred. A performance criterion was legal rights to be scored correctly, participants had
set one response above the criterion shown in Table to role-play without error all responses on a re-
304 ANN L. SIEVERT et al.
dressing rights violation checklist. The percentage selor, and other confederates were trained to role-
of scenarios role-played correctly was the dependent play before testing. They were given feedback re-
variable. garding the accuracy of their verbal responses and
Role-play assessments in community settings their nonverbal behavior (i.e., stern voice tone and
were the same as those in the classroom except that negative facial expressions). In addition, the former
a confederate unknown to participants assumed the two personnel practiced scoring responses, and the
role of whomever participants had requested (e.g., trainer provided corrective feedback.
store derk who stepped behind the complaint Training. Written instructions regarding how
counter at the discount store and said, "Can I help to redress rights violations were presented on over-
you?"; landlord who knocked at the door of the head transparencies, and the trainer read them aloud.
apartment and informed participants they had to The first textual cue stated the sequence of persons
move out by the end of the week). If participants to whom participants should speak when respond-
requested to talk to someone from a community ing to a rights violation. The second transparency
advocacy agency while at the store, the telephone stated the verbal. components that should be in-
call was role-played when they returned to their cluded in the description of the problem to each
rehabilitation facility. of the above personnel. The third transparency pre-
During in vivo testing in the case manager's sented a checklist of behaviors to redress a rights
office, the trainer was not present. Instead, partic- violation that chained the responses from the first
ipants were temporarily deceived and presented a two transparencies. After the trainer removed the
situation in which their case manager ostensibly third transparency, she asked participants questions
violated their rights (i.e., case manager said she had regarding how to redress a rights violation. Correct
shown client records to a third party without ob- and incorrect responses received the same conse-
taining consent). Because case managers regularly quences as during legal rights discrimination train-
met with clients to discuss their progress and often ing.
obtained consent to share information with other Next, a videotape was presented portraying re-
agencies, this meeting should not have signaled a habilitation staff role-playing how to redress rights
data collection session. violations for one scenario from each of the four
Participants had the opportunity to respond to general rights categories. Participants were given
this deception immediately. If participants asserted the redressing rights violations checklist for each
their rights (e.g., "You had no right to do that videotaped scenario and were told to mark each
without my consent"), the case manager responded response on the checklist as it occurred on the tape.
with uncooperativeness (e.g., "I feel I did the right The videotape was stopped at the end of the role-
thing"). After participants left the case manager's play for each of three parties (i.e., offending indi-
office, she recorded their performance on the re- vidual, that person's supervisor, and a community
dressing rights violations checklist. If participants advocate) and the trainer asked whether all role-
contacted the Chief Rehabilitation Counselor, she played responses were completed correctly.
also responded with uncooperativeness (e.g., "I think Following the videotaped role-plays, participants
your case manager did the right thing") and re- individually engaged in behavioral rehearsal. The
corded responses on the checklist. Regardless of trainer chose participants with whom to role-play
whether or not participants complained to the Chief and presented scenarios and role-played as during
Rehabilitation Counselor, at the end of the day all testing. Those who were not actively participating
participants were informed that their case manager observed the role-play while completing the re-
did not show the records without consent. Partic- dressing rights violation checklist.
ipants were asked to state what they should do if Participants were given specific verbal feedback
this deceptive situation actually happened. on errors made during role-play to each of the three
Case managers, the Chief Rehabilitation Coun- parties. Following feedback, participants role-played
TRAINING SELF-ADVOCACY 305
the step again. If participants still did not perform the sequence of persons with whom to speak when
correctly, the trainer modeled the correct responses, redressing a rights violation, as well as the verbal
and participants imitated. During correction, spe- components that should be induded in the descrip-
cific verbal praise was provided for steps performed tion of the problem. The booster session did not
correctly. If corrective feedback was not necessary, indude a review of legal rights and their conditions.
praise was withheld until participants completed During booster training, participants individually
the entire role-play. The acquisition criterion was engaged in behavioral rehearsal, as previously de-
correct role-play performance of all responses of the scribed, until they attained the performance crite-
redressing rights violations checklist without assis- rion used during training.
tance for three consecutive scenarios from each of After 3 months, direct trainer assistance was al-
the four general rights categories. most entirely eliminated. Participants were pre-
Subsequent to training redressing rights viola- sented a written permanent prompt, a Legal Rights
tions for each ofthe four categories of general rights, Handbook, that contained the four general rights
a combination of violation and nonviolation scen- categories, all specific legal rights and accompa-
arios from the four general categories was presented nying conditions, and the sequence of steps to take
for training. This instruction promoted mainte- to redress a rights violation. The trainer described
nance of the legal rights discriminations already the major sections of the Handbook and informed
learned and acquisition of the redressing legal rights participants that they could refer to it during test-
role-play. Training procedures were the same as ing. The conditions of this follow-up test were
previously described. The acquisition criterion was intended to simulate natural conditions in which
two consecutive violation scenarios and two con- people in our society use written materials as cues
secutive nonviolation scenarios answered correctly when necessary. Permanent prompts such as these
from each of the four general rights categories. frequently are used by persons without disabilities
Posttest. Following training, two tests were ad- when performing low-frequency behaviors.
ministered. The first was conducted as during base- The 1- and 3-month follow-up tests were con-
line. Because this test involved only rights violations ducted in the dassroom, community, and in vivo
scenarios, a second test was given to assess whether settings as described previously. During the 1-month
or not participants had maintained the discrimi- in vivo condition, however, participants were pre-
nations between violation and nonviolation scena- sented a different deception (i.e., case managers
rios. This latter test consisted of scenarios arbitrarily informed participants they could not attend their
sampled from those that had not been presented next staff meeting). The 3-month in vivo tests,
on previous redressing rights violation tests. Par- however, were not conducted because most of the
ticipants were required to discriminate whether or participants had completed their rehabilitation pro-
not their rights had been violated and, if they had, grams and had moved into independent living.
to emit the behavioral chain to redress a rights
violation. Response-contingent feedback was not Experimental Design
provided. A multiple probe design across the four general
Follow-up. Follow-up assessments were con- rights categories was used to demonstrate experi-
ducted 1 and 3 months after training. Because legal mental control during the discrimination of legal
rights violations are a low-rate stimulus condition rights component. A multiple probe design across
in the natural environment, it was expected that two groups of participants was used during training
participants would not have had the opportunity redressing rights violations.
to practice the target behaviors. Therefore, a limited
booster session was conducted before the 1 month Interobserver Agreement
follow-up assessment. During this booster session, A second observer recorded data simultaneously
participants were given brief verbal instructions on and independently of the trainer on 25% of the
NI
0I
306
0 t
cc
w
w
II
CO
cn
CUl
w
1--
cc
lU
0
>
LU
I'
74
IC
ocC.
SCa.
IC) 4SCI0.
I4c
10
L 5 o4l
UxINI.
Co ,0go.go.
C.)
xa~
40
4
30.
C.I
10]
401
:.1
NI-
°°
Oil0-
)01
0.1
0.1
10.1
w:1
ONIO
10
I
WANAOTRAINO
GASSI
*
N
i i i i 5 6
OICI1ON TASNNO
O."o
4
II
::
II
i,..-..
l
I-
::
.F
-
.
jI
POST-TRAINO
7 7 KATIE
II
II
*l
.
_,_
II
of
i
CINDY
.. ...
- I
II
6
--
S 10
1001
a
so 5-0
401
NI4
10I
4
0.
I0
10
*o
|0
04
20 4
40'
BASEINE 4
I
tO /_
0
.
so
.
ANN L. SIEVERT et al.
DINANATION TRAINNO
II
II
II
II
II
If
.
POST-TRAINING
I *'
:I
\0-0*_
IONCMMNATIONTPROMIN
BASELINE
O'
II
1.
.
T
4
II
II
- I.
II
_ _
_-
.
~~~II4to
ls
._---210 1~~~~~
10~
_
a-I
10-
.. ..
11
*s
-
-
II
POST-TPAINING
Iio
T
I
_
-
BILL
II
_ I0
*I
::I
SUE
..
0
S
,
.
100-
800
40.
40.
201
.la
1 III
10
eo *.
:0I
)D -
|0
100-
so
40.
-0
IC )01
IC
10
....
Ol 0j
04
*M%
j
*;
DOMM"ITN TRSINNO
BAELNE 4
.
II,
1--
.0
POST-TRAINING
GINIAOTRAMNN
B LIN
II
I
2
.
II
II
II
II
is
i.
I
No
II'
11
II
,,
;
I
S
II:
Is
40
:I
.
:I,
I
i:
5i
I
,
_
.
; i ;
POST.AMINI IC
I
a.
- |
I;--
,
0_-
~~II
:~~ 4
-.-.
I
I
KEN
~~~~~II 40~~~~
MATT;
ito
100,
40
NI01
I
o
a0-
ID
@0
so
oi
WSOTINA4
GASELNE 4
]
.
*-
.
ONTRAMM
-
PT-TPRA0NI
BASELINE 4a
i
0
.
i i; i s
S
::
II
SI
':o
.
I
II
..
I..;......
, __ I
0
.
_
*
--
I\ .
..
POSTr-TRAWING
TI NO
IO
.
i; i
TRINA
.
/1
~ROB
I
. .
rio
NI- II
cn S*% 0
." 1
0.~~~~ *ve_ I
I- 11-
- 0 .
.3
I I
00. II0 100- ,* * 1CO
cn -
I- so1ol I---II
I
- -
-
I
w
w UI II *\. _. * I go. II *' @
CO)
w L 401I 440
0 t . ..
II
.'....
.1- Ov
40.
.
\*
. . * *
11
1
.
1ng.
. . .
40. N.-
,- .~~~~~g
..
a. *so.0 ,\ ; ",
100, l. ~~~II
.=me
5 150.
.' 0 *41 II II
II *% / I1I,
so. ;, *o III
40.
. .
0- _3
I |I1 *0
N-IO
0 o-.
so0
1 3 4 5 0I 10 i i i 4 i 10
I a 304 S 7
gII 9 10 1 M4 S 7 190
WEEKS WEEKS WEEKS WEEKS
Figure 1. Percentage of correct scenarios on discrimination of legal rights tests during pretraining and posttraining
conditions for the four general rights categories.
test probes across all phases of the experiment for nation questions or steps on the redressing rights
all participants. Interobserver agreement was cal- violation checklist as correct or incorrect. Interob-
culated by taking the number of agreements di- server agreement scores for testing discrimination
vided by the number of agreements plus disagree- of legal rights ranged from 86% to 100% (M =
ments, and multiplying by 100%. Agreements were 98%) on the personal rights category, 86% to 100%
defined as a scenario in which both observers re- (M = 98%) on the community rights category,
corded the participant's response to all discrimi- 93% to 100% (M = 98%) on the human services
TRAINING SELF-ADVOCACY 307
REDRESSING VIOLATIONS TRAINING
category, and 75% to 100% (M = 97%) on the IBSLN POST-TRAINING FOLLOW-UP
100- I II A0 1 0--0
consumer rights category. Interobserver agreement
for testing redressing rights violations was 100%
60
40
]0-GROUP II I
20- | g | ROB
on each trial. A.I I
100- I £O6|
A-00-- -£0
80-
RESULTS 60-
2o0 MATT
o-
Discrimination of Legal Rights
100 -
A o I__
Figure 1 shows the percentage of scenarios dis- 80-
601-
I A----O