Self-report needs assessment

questionnaires in cancer
survivors: a systematic review
of measurement properties
Group 4: Nguyen Thi Dan (阮氏民)
Rilani Riskiyana (李拉尼)
Presentation Date: 2022/12/29
 ➢ Introduction
➢ Part A. Perform the literature search
Outlines ➢ Part B. Evaluate the measurement properties
➢ Part C. Select a patient-reported outcome
measure

2
 Introduction
• Burden of cancer in the world:
estimated number of new cases
from 2020 to 2040, both sexes,
age (0-85+)
=> increasing, especially in Asia.
(WHO, 2020)

3

Probability of premature death from cancer per year
All cancer in the world. (WHO, 2020)
Introduction
• Cancer survivor: anyone who
has ever been diagnosed with
cancer no matter where they are
in the course of their disease.
(American Cancer Society)
• As early detection methods
and cancer treatments have
gotten better, the number of
people who have had cancer has
gone up greatly over the time.
=> Increasing survival rates.
4
Introduction
• Cancer has a profound impact on
lives of patients and their families.
• Cancer survivors have a wide
range of needs.
• Identify and manage the unmet
care needs of cancer survivors
effectively to improve their quality
of life.

(Tian et al, 2019)

5
 Introduction
Research significance

Evaluate the available tools in assessing

the needs of cancer survivors

Beneficial to improve nursing response,

leading to more effective cancer care
management

6
Knowledge gaps
KNOWN:
• Cancer survivors have a diverse
and different types of needs.
• Ability to identify and manage the
needs will improve the quality of
life of cancer survivors.
• Studies had identified the needs of
cancer survivors.
UNKNOWN:
• Differential tools to appropriately
address specific needs, specific
types of cancer.
• Strict critique for quality of tools to
measure the needs of cancer
survivors.
7
Part A. Perform the literature search

1 2 3 4

Step 1. Step 2. Step 3. Step 4. Select

Formulate Formulate Perform a abstracts and
the aim of eligibility literature full-text
the review criteria search articles

8
Step 1: Formulate the aim of the review
Aim: To critically appraise, compare and summarize the quality
of the measurement properties of all self-report needs
questionnaires for cancer survivors.
CONSTRUCT Needs assessment
POPULATION Cancer survivors/patients
TYPE OF INSTRUMENTS Self-report questionnaire
MEASUREMENT All properties
PROPERTIES
9
Step 2. Formulate eligibility criteria
Inclusion criteria: Exclusion criteria:
• Self-report needs questionnaire • Not self-reported questionnaires
• Adult (≥18 years of age) cancer survivors/patients • Not evaluate psychometric
• Originally aimed to develop questionnaire of properties of measurements or
construct, or evaluate the cross-cultural adaptation used the measurements to measure
of the original questionnaire the outcomes
• Reported the psychometric properties (content • Qualitative study, literature review,
validity, reliability, floor and ceiling effect, guideline, discussion paper
interpretability, responsiveness) • Abstract only.
• Written in English
• Full-text available.

10
 Step 3. Perform a literature search
✓ Online search strategies, 5 electronic databases
✓ Search terms: “colorectal cancer”, “colorectal
neoplasm”, “patients”, “survivors”, “needs
assessment”, “supportive care needs”,
“psychometric properties”, “reliability”, “validity”.

11
 Step 4. Select abstracts and full-text articles

✓Screen by EndNote X9.3.3 software

✓Based on eligibility criteria

12
Part B. Perform the literature search

1 2 3

Step 5. Evaluate Step 6. Evaluate Step 7. Evaluate

content validity internal structure the remaining
measurement
properties

13
Part C. Select a patient-reported outcome measure

1 2 3

Step 8. Describe Step 9. Formulate Step 10. Report

interpretability recommendations the systematic
and feasibility review

9/3/20XX Presentation Title 14

Step 5: Evaluate content validity

15
Step 5: Evaluate content validity

16
Step 5: Evaluate content validity

17
Step 5: Evaluate content validity

9/3/20XX Presentation Title 18

Step 5: Evaluate content validity

19
Step 5: Evaluate content validity

9/3/20XX Presentation Title 20

Step 5: Evaluate content validity

21
Step 5: Evaluate content validity

22
Step 6 – 7 – 9:
Recommendation

9/3/20XX Presentation Title 23

Step 6 – 7 – 9:
Recommendation
A

24
Step 6 – 7 – 9:
Recommendation

25
Step 6 – 7 – 9:
Recommendation
A
A

B
9/3/20XX Presentation Title 26
Step 6 – 7 – 9:
Recommendation

A
B

B
9/3/20XX Presentation Title 27
Step 6 – 7 – 9:
Recommendation

C
A
B
A
A
B
B
A

A
9/3/20XX Presentation Title 28
Step 6 – 7 – 9:

Recommendation

29
Step 6 – 7 – 9:

Recommendation

30
Step 10. Discussion
➢The search strategy was effective to gather the intended articles
based on the inclusion and exclusion criteria.
➢There characteristics of the instruments regarding the purpose
are as follows:
● Assessing all types of needs for all types of cancer
● Assessing all types of needs for specific types of cancer
● Assessing specific type of needs for all types of cancer
● Assessing specific types of need for specific type of treatment.

9/3/20XX Presentation Title 31

Step 10. Discussion
➢The degree of evidence quality varied but most of the instruments shows
good measurement properties with the recommendation level of A and
B, and two instruments were rated C (SCNS-ST9-English and NEQ).
➢Gaps in the Finding
• No instrument was found that assess specific type of need for specific
type of cancer.
• Instrument assessing specific type of need for specific type of cancer is
needed to accommodate the uniqueness of the experience faced by
patients or survivor suffering from specific type of cancer.

9/3/20XX Presentation Title 32

 ➢ There were wide variety of instruments
measuring the needs of cancer patients or
survivors.
➢ Most of the instruments showed good
Conclusion validity and reliability.
➢ There is a gap in the literature about
instruments measuring specific type of
need for specific type of cancer.

9/3/20XX Presentation Title 33

 Welcome
feedback & questions
Thank you!
Dan & Rilani

34
References:
• Webb, M.E, Murray, E., Younger, Z.W. et al. (2021). The
Supportive Care Needs of Cancer Patients: a Systematic
Review. J Canc Educ 36, 899–908
• Tian, L., Cao, X., & Feng, X. (2019). Evaluation of psychometric
properties of needs assessment tools in cancer patients: A
systematic literature review. PloS one, 14(1), e0210242

35