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Creating spaces

with everyone in mind:

Designing for
non-visible disability

1
Contents

Introduction & scope 06


Seeing what’s often non-visible 06
Personas 11
  Alex (she/her) 12
  Jacob (he/him) & David (he/him) 16
  Carole (she/her) 20
  Charlie (they/them) 24
Common Challenges, triggers or sensitivities 28
Putting it all together 32
Why is this important for us as designers and engineers? 38
Being more inclusive, makes us more Future Ready 40
Next steps 43
Appendix 46
 Acknowledgments 46
  About the authors 47
 References 48

2
14.1 million people in the UK 96% of illnesses are
have a disability non-visible
(Equal Engineers, 2020) (ADHD Foundation, 2021)

1 in 5 of the population are There are currently around


neurodiverse 850,000 people with dementia
(ADHD Foundation, 2021) in the UK, which is projected to
rise to 1.6 million by 2040
(Alzheimer’s Society, 2021)

More than 4 in 10 adults said 2/3 of passengers with a


their well-being was affected disability report consistently
by the COVID-19 pandemic experiencing at least one
(Office for National Statistics, 2020) problem during their rail
journey
(Department for Transport, 2019)

Approximately 1 in 4 people in Anxiety is a very common


the UK will experience a mental co-occurring condition in the
health problem each year neurodiverse community.
(Mind, 2017) About 20 to 30% of male adults
with Autism have anxiety
disorder and females have
even higher rates
(Standford, 2021)

3
209,600 will develop dementia 1 in 4 adults (25%) reported
this year, that’s 1 person every feeling lonely either often or
3 minutes always during the pandemic
(Alzheimer’s Society, 2021) (Office for National Statistics, 2020)

4
People who feel that they People living in cities have a
belong less strongly to their 40% higher risk of depression,
neighbourhood reported 20% higher rates of anxiety
feeling lonely more and twice the risk of
(Office for National Statistics, 2018) schizophrenia
(Centre for Urban Design and Mental
Health)

5
Introduction & scope

Typically, the dimensions and measurements that Seeing what’s often


govern our standards are established for the
majority first and retrospectively for marginalised non-visible
groups. This leaves many facing barriers within
society and our built environment as a result of it As designers and engineers, we can often be
not being designed with them in mind. solution led. This means we can jump to solving a
problem from what we can first see without taking
Despite an estimated 1 in 7 people in the UK being in the full picture of a challenge. In terms of more
neurodivergent (GOV. UK, 2021) and a further 1 in 4 accessible design, a physical barrier may appear
experiencing a mental health problem (Mind, 2021), easier to find a resolution to, for example providing
there is very little to show how we consider such a appropriate handrails at the correct heights. These
significant demographic when designing our places challenges and aspects of poor design continue to
and spaces. Thankfully, we find ourselves in a time impact people with physical disabilities, and it is
of growing advocacy and inclusion of neurodiverse often the case that barriers for those with
voices and experiences across so many areas of our neurodiversities or non-visible disabilities are not
daily lives. Conversations about mental health and considered. This is in part due to a lack of
wellbeing, disability equality and cognitive understanding of the causes and effects of problems
difference are, rightly so, picking up rapid speed in or barriers people may experience.
the public domain and across our industry.
It is estimated that today, around 1 in 5 people in
Yet, when casting an eye over a cityscape, a town the UK have a disability (Family Resources
square or even a local train station – how well can Survey, 2019). What constitutes as a ‘disability’ is
we say we have we applied these thoughts and an ever-evolving discourse with many nuances.
lessons to the spaces we all use every day? It is important to note an individual’s preference
over identification and use of terminology relating
As a matter of not only social inclusivity through to their neurodiversity, impairment, condition or
design, but also of sustainable development, it is disability as this may not always match up with
crucial that we gain momentum around the legal terminology. Broadly speaking, the Equality
conversation and application of designing for Act 2010 understands that you have a disability
cognitive difference. Creating a world in which “if you have a physical or mental impairment that
everybody can attain equal levels of access, utility has a ‘substantial’ and ‘long-term’ negative effect
and most importantly, enjoyment from our shared on your ability to do normal daily activities”. The
spaces, should be the fundamental goal. potential negative connotations centred around the
idea of capability or aptitude within this
This report seeks to highlight how important it definition can mean that many people dislike the
is to consider the mind – and more specifically, term ‘disability’ being used to describe their
everyone’s minds when designing our cities and physical or cognitive impairment. This is why it is
infrastructure for a more sustainable and equitable always best to check with the groups or
future for all. individuals you are working alongside or
designing for how they would like to talk about
these topics, as a means of supporting each other
 By keeping everyone in mind, we can become to become better practitioners and most
Future Ready. importantly, allies of neurodiversity.

6
The UK charity Scope states that such a view can be There are many forms of neurodiversity, some
understood as a ‘medical’ model of disability that perhaps more commonly recognised than others. It
“looks at what is ‘wrong’ with the person, not what is important to note intersectionality here too. An
the person needs” as “people are (seen as) disabled individual can be neurodivergent in multiple ways
by their impairments or differences” (Scope, 2021). and may also experience additional impacts to their
Like Scope, we believe that to be Future Ready, physical or mental wellbeing that are connected to
design thinking needs to centralise around an their condition.
understanding of the ‘social’ model of disability,
which says that “people are disabled by Commonly recognised types of neurodivergence
include, but are not limited to:
barriers in society, not by their impairment
or difference” (Scope, 2021). • ADHD (Attention Deficit Hyperactivity
So, how may we recognise some of these barriers Disorder)
for people with non-visible conditions or cognitive • Autism (Autism Spectrum Disorder, ASD)
differences? A good place to start is by exploring a
few terms. • Asperger Syndrome (Asperger’s Syndrome,
Asperger’s Disorder)
First, let’s explore Neurodiversity.
• Bipolar Disorder
Neurodiverse, neurodivergent and
neuro-atypical all refer to the diversity of the • Dementia
human brain and the differences in cognition that
occur from person to person. First coined by • Developmental Language Disoder
sociologist Judy Singer in the 1990’s, the term
“neurodiversity” recognises the normality and • Epilepsy
value of cognitive variance as an integral part of
society, rather than isolated differences that • OCD (Obsessive Compulsive Disorder)
create a sense of othering or exclusion. • Tourette Syndrome
Neurodiversity embodies the idea of embracing
every strength and challenge that comes with any • Learning difficulties such as Dyslexia,
combination of traits a person’s mind can have. Dyscalculia and Dyspraxia

Many Learning Disabilities are often considered as


Neurodiversities too.
Rooted in the social model UK charity Mencap define ‘learning disability’ as “a
of disability, neurodiversity reduced intellectual ability and difficulty with
everyday activities – for example household tasks,
sees disability as entrenched socialising or managing money – which affects
in society rather than the someone for their whole life. People with a learning
disability tend to take longer to learn and may need
individual, and proponents of support to develop new skills, understand
the neurodiversity movement complicated information and interact with other
people” - Mencap, 2021
want to make it easier for all
neurodiverse people to be able
to contribute to society as they
are
– (Green, M. 2020)

7
Many people with a learning disability will have Mental Health
multiple diagnoses or a commonly associated
condition that may impact the way in which they Everybody has mental health, and it is as import-
engage with, understand and respond to the world ant as physical health to our overall wellbeing. The
around them. The term ‘learning disability’ is often World Health Organization (2004) defines mental
confused with the term ‘learning difficulty’, which health as: “a state of well-being in which every
individual realises his or her own potential, can
may be a condition such as dyslexia or dyspraxia.
cope with the normal stresses of life, can work
As the cause and effect of a given learning productively and fruitfully, and is able to make a
disability varies from person to person, the level of contribution to her or his community.” This
support a person may require is dependent on the definition is relevant for urban designers because it
individual and cannot be generalised. also reflects key components of a thriving, resilient
urban population.

Mental health refers to our mental well-being by


considering our thoughts and feelings, our
emotions, our ability to solve problems and
overcome difficulties, our social connections, and
our understanding of the world around us. In
contrast, a mental illness affects that way people
think, feel, behave, or interact with others.
Aligning with the Government’s definition for
disabilities, these can also be called mental health
disabilities as they have “a ‘substantial’ and
‘long-term’ negative effect on your ability to do
normal daily activities” (GOV. UK, 2021).
Some examples are:

• Depression

• Anxiety disorders

• Obsessive-compulsive disorder

• Bipolar disorder

• Post-traumatic stress disorder

• Schizophrenia

In the UK, there’s currently around


1.5 million people with a learning
disability of some kind
– (Mencap, 2021)

8
Statistics show that rates of reported mental health with other wider stress caused by the pandemic. We
disabilities in the UK are rising exponentially. While have not yet seen the full impact this will have had
this is partly due to an increasing awareness and across society and longer-term challenges this will
reduction of stigma surrounding mental health, it create. This gives even more reason to create
could also be attributed to other growing challenges flexible and adaptable designs for better mental
in our environments such as increased stress and health.
loneliness. Mental health disabilities are now the
4th highest reported disability, with a dramatic There are some current trends and practices that
increase from 2013 in the number of people with a we have adopted during COVID-19 which have
mental health disability (Department for work and bought multiple benefits from a neurodiverse
pensions, 2020). perspective. For example, the introduction of
one-way walkways can help reduce the cognitive
Unfortunately, the social barriers individuals with overload experienced when moving through crowds
disabilities face can cause anxiety, stress and or navigating through a space. These are often
exclusion which leads to even greater instances of simple solutions that require only minor changes,
poor mental health. 27% of people with a disability (ie signage) as opposed to large, expensive revisions
report experiencing additional mental health to design. Now that many of these practices have
difficulties (ONS, 2019) in connection to the effects become commonplace, it would be beneficial to
of their condition. keep them as part of a ‘new-normal’, to extend their
benefit after COVID restrictions no longer apply.
The COVID-19 pandemic has introduced new
anxieties and caused further strain for those with
existing conditions. Isolation and social distancing
have had negative impacts on mental health along

9
The Hidden Disabilities Sunflower
Benefits for all
Looking beyond the neurodiversities, learning
disabilities and mental health conditions we have
outlined, there is a case for more inclusive design
for the benefits it brings across all society. While
accessible design relies on standards and guide-
lines to assist people with a specific disability, it
can often overlook those who are marginalised by
factors such as age, gender, health requirements or
a temporary disability. In contrast, inclusive design
can consider all these factors by instead looking at
diversity of experience. This report will show that
as there are many barriers in the built environment
Wearing the Hidden Disabilities Sunflower that affect many different people, there can also be
lanyard discreetly indicates to people around, solutions that offer a benefit for the majority. Some
including staff, colleagues and health examples we have found include:
professionals, that the wearer may need
additional support or a little more time when
using a service (Hidden Disabilities, 2020). The • Logical wayfinding that helps reduce the
exposure for non-visible disabilities from the cognitive load for all – such as one-way
campaign has led to transport hubs likes systems, colour-coded directional cues,
Manchester Airport providing support services pathways or entrances that are guided by trees
and creating ‘The Sunflower Room’; a space or shrubbery
away from the noise, bright lights and crowds
of the main Departure Lounge (Manchester • Clear pictorial signage which is easy for the
Airport, 2021). The sunflower symbol is now visually impaired or non-English speakers to
also recognised across Europe, the Middle East understand, with as little text as possible
and US.
• Soft, warm-toned lighting and natural colour
palettes that create a sense of calm
• Frequent opportunities for contact with or
closeness to nature, which has stress-relieving
benefits

10
Personas

Everybody has different experiences across of the built environment. The characteristics
many different spectrums, which is what makes and journeys we have referenced are based on
neurodiversity such a special part of being human. a series of interviews that have been bolstered
However, as the experiences and manifestations of by secondary research. We sought first-hand
hidden disabilities vary so greatly from experiences from individuals, carers and family
person-to-person, incorporating them into members in addition to a variety of industry
designing and planning is perhaps in many experts who have experience working with these
ways, more complex than incorporating physical neurodiversity themes. As the spectrums and
impairments. intersectionalities that occur between the many
neurodiversities are personal and will alter the
We have created four personas based upon our way in which each person experiences the world,
research to represent a small cross section of these personas highlight common experiences and
neurodiverse individuals and their experience challenges to outline opportunities for change.

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1st Persona Tap over the Characteristics, Triggers, Navigation
Alex (she/her) - Autism spectrum and Beneficial Design Contributions icons below to
find out more
Alex is 25 years old and is on the Autism spectrum.
She lives with her parents and works at a local
office in town. Alex loves socialising with friends
and being out and about exploring the world.

Characteristics

Triggers

Navigation

Beneficial Design contributions


I’m often playing catch-up with my
brain

I don’t like sudden transitions in light


and sound

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ASPECTSS Design index for
Autism
The 7 guidelines have been developed with the aim
to design spaces that are better equipped for people
on the Autism spectrum, with a focus on stress
reduction, safety and encouraging social
engagement (ASPECTSS, 2021).

The guidelines are:


• Acoustics – reducing sound

• Spatial sequencing – arrange all aspects in a


chronological or linear order
• Escape – creating a space to go to

• Compartmentalisation – break spaces down


into small manageable areas
• Transition space – as we move through
buildings create a smooth transition with
space to adjust

• Sensory zoning – high stimulation spaces


together, low stimulation together
• Safety – high level of safety

14
Case Study
Residential housing for
people with Autism –
Sweetwater Spectrum,
California
Clear navigation and wayfinding on flat, broad
paths

Natural elements and materials evenly spaced out


across the area and buildings

Muted, natural colour palettes

Thresholds between spaces allow independent


choice over levels of interaction with others

Open windows, entrances and walkways allow for


natural, indirect light and clear visibility
between spaces to help anticipate transitions
between areas

Images: Marion Brennar, Dezeen

15
2nd Persona Tap over the Characteristics, Triggers, Navigation
Jacob (he/him) & David (he/him) and Beneficial Design Contributions icons below to
find out more
Jacob, 17, has Down’s Syndrome and is assisted by
his carer, David, 34. The pair typically travel and
explore the local area together, using both bus and
train services. Jacob has a supported internship
working 3 days a week via a Workfit scheme.

Characteristics
Having a human presence will always
be helpful

Triggers

Navigation

Beneficial Design contributions

If Jacob becomes stressed and


overwhelmed when we’re out and
about, sometimes I do too

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Taking inspiration from
healthcare: Co-designing
with carers
‘Experience-based co-design’ is a model of design
research and development created for and
alongside the NHS as a means of better
understanding professional and patient needs
within the healthcare space (Royal College of
Physicians, 2016). Created with the aim to reduce
complaints and improve wellbeing across various
points of care and service delivery, the process
involves the likes of patients, doctors and carers as
service users in the complete design process. As a
result, participants better understand each other’s
perspectives, and design outcomes can better align
with the service users’ genuine needs rather than
what may be predicted needs.

You can only really address


what people need by asking
them directly and then
exploring how to address that
with them
– (Catherine Dale, Programme manager
of patient centred care, King’s Health
Partners Comprehensive Cancer Centre)

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Universal design and used to the greatest extent possible” (Centre
for Excellence in Universal Design, 2021). Crucially,
The 7 Principles of Universal Design were the principles prioritise the longevity and
developed in 1997 by a working group of sustainability of designs from multiple
architects, product designers, engineers and perspectives and look to maximise benefits to the
environmental design researchers (Centre for individual, society and business too.
Excellence in Universal Design, 2021).

Equitable use – useful for all people with diverse


abilities

Flexibility of use – accommodates a range of


individual preferences and abilities

Simple and intuitive use – easy to understand


regardless of experience, knowledge, language or
concentration

Perceptible information – communicates


information effectively to the user

Tolerance for error – minimises hazards and


adverse consequences of accidents

Low physical effort – can be used efficiently and


comfortably with minimum fatigue

Size and space for approach and use – size and space
for approach, reach, manipulation for all users

These principles channel the understanding that


incorporating the requirements of marginalised
groups at the outset of the design process will
facilitate the development of “inclusive
environments that can be accessed, understood

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3rd Persona Top over the Characteristics, Triggers, Navigation
Carole (she/her) - Living with Dementia and Beneficial Design Contributions icons below to
find out more
Carole, 72, was diagnosed with dementia two years
ago. Carole is active, enjoys her independence and
attends weekly art classes at her local community
centre. She currently lives with family, but as her
condition is still in the fairly early stages and is
sometimes asymptomatic, many people often do
not realise she has dementia.

Characteristics

Triggers

Navigation

Beneficial Design contributions

Don’t just assume a design will speak


for itself – offer clear instructions and
pictorial guidance

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Dementia and Town
Planning
(Royal Town Planning Institute, 2020)

The Alzheimer’s Society and RTPI have shared


insight for how to design spaces to be more
dementia friendly and support individuals’
independence for as long as possible. For those with
dementia, about 120,000 live alone in their own
homes, and this is predicted to double to around
240,000 by 2039. To be able to live alone, proving the
right practical and emotional support, and housing
choices is vital to enabling people with dementia to
live a safe and enjoyable life. It is crucial that people
with dementia stay as physically, mentally and
socially active as possible. The report highlights
some key focus areas to help this:

• Opportunities for social interaction are


important
• The value of green spaces

• Within a building it is important to consider


the safety, visual clues, noise, and natural light
• Outside our community spaces should be
familiar, clear, distinctive, accessible and
comfortable

22
Case Study
Improving the lives of people with dementia through urban
design: a series of illustrations of dementia-friendly design
features - by Barbara Pani, Journal of Urban Design and
Mental Health

23
4th Persona Tap over the Characteristics, Triggers, Navigation
Charlie (they/them) - has mixed anxiety and Beneficial Design Contributions icons below to
and depressive disorder find out more

Charlie, 50, has mixed anxiety and depressive


disorder; experiencing symptoms of both conditions
that vary in intensity. They have a fast-paced,
high-stress job, and commute into the city daily for
work.

Characteristics

Triggers

Navigation

Beneficial Design contributions

Unwritten rules are really hard to


negotiate

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Mind the GAPS framework:
The Impact of Urban Design
and Mental Health and
Wellbeing
(UDMH, 2021)

The Mind the GAPS framework has been created


in response to the growing understanding of the
effects of urban environments on mental health and
wellbeing, and vice-versa. The framework focusses
on two key areas; firstly, to help people with
mental health disabilities get around more easily
and secondly, to make urban places less likely to
create or worsen poor mental health.

With growing urban populations comes the


increased risk of the intensity and frequency of
mental health conditions and their cumulative
effects on broader social factors such as healthcare
costs, economic performance and social capital.

• Green places - Facilitating the benefit to mental


health from frequent, easy and serendipitous
access to nature by incorporating green spaces
throughout neighbourhoods, transport routes
and public spaces

• Active places – Embedding opportunities to par-


take in both active and passive exercise or phys-
ical activity at frequent interventions in public
spaces, along transport routes and outdoor spaces

• Pro-social places – Encourage safe, positive, ac-


tive and passive interactions to foster a sense of
community and connectivity among all people by
creating public spaces that offer flexibility of use,
unrestricted access and inclusivity of different
physical and cognitive needs – designed alongside
the community that will use the space
• Safe places – Supporting a sense of safety and
security for all people through effective design
interventions that reduce the likelihood of events
such as getting lost, being in a dimly lit area, or
becoming injured or harmed by vehicles and
other people. Ensuring safety alongside complete
agency and choice require a balanced and
equitable approach

26
Case Study
‘Pocket Parks’, Athens
Across the city of Athens, developers have been transforming unused, degraded, grey plots of land into
‘Pocket Parks’. Filled with trees, grass, shrubbery and places to sit, the lots have been created to help
tackle pollution and heat levels across the city. Beyond this, designers envisioned the parks becoming new
points of reference for navigation and recreation, whilst increasing the frequency of natural, quiet and
calming areas throughout densely populated and urbanised areas. By incorporating elements of biophilic
design into multiple spaces across a wide area, the parks have an expansive benefit to social wellbeing
that is dispersed across Athens. In addition to the environmental benefits, the social benefit of the parks
is multi-faceted, as they offer an antidote to the often isolating experience of urban living by providing
spaces to socialise, decompress and be outside without having to be around crowds.

Image: Kolonos Pocket park, Greek Travel Pages

Image: Pocket park in Ano Kypseli Image: Paley Park, New York City
27
Common Challenges, triggers or
sensitivities

Our research found that for the many intricacies and individual experiences of neurodiverse people, there
can also be commonalities in experiences, behaviours and reactions to certain design elements in the built
environment. There may be individuals with a condition who may experience some or all of the following or
may not be impacted at all. These are summarised in the table in the next page, showing typical experience
from our research.

Within the commonalities in design elements, we have considered:


Design aspects: Disruptions and alterations – some people
Light - bright, flashing and complex lighting can be experience difficulty in adjusting to unplanned
distressing, disorientating and cause sensory situations or changes to their routine
over-stimulation
Unfamiliarity of places/people – some people
Noise – loud and complex sounds with lots of experience discomfort when in unfamiliar places or
reverberation or echoing can be distressing, with unknown people, causing them to feel unsafe
distracting and cause sensory over-stimulation and anxious

Patterns – busy, clashing and irregular patterns in Alternatives and solutions – some people
the same space can cause confusion and experience difficulty in independently seeking
disorientation alternatives or solutions to problems

Bright colours/surfaces – overuse of bright, Memory loss – some people experience challenges
clashing or reflective colours and light reflecting in remembering their plans, routes and how to do
from shiny surfaces can cause sensory familiar tasks
over-stimulation
Risk awareness - some people may not recognise
Tactile surfaces/textures – can cause additional common risks by themselves, or may be unable to
visual and physical stimulation, which can be sense an upcoming hazard or potential danger
calming and help people to stay focussed on their
surroundings Sensory overload – some people may experience
feelings of being completely overwhelmed by
Sudden ambient transitions – between areas of sensory stimuli, which can trigger the fight, flight,
contrasting light, sound or sensory appeal can or freeze response and may make an individual feel
cause sensory over-stimulation, confusion and unsafe and anxious
obstruction from an area
Discoordination - some people may experience this
Narrow walkways – can feel confining and may in response to anxiety, disorientation, completing
make it difficult for an individual and carer to pass new tasks or ones that increase cognitive load
comfortably
Disorientation – some people may experience this
Human aspects: in response to anxiety, becoming lost, not
Reading signs – text-only signs may be difficult for understanding instructions or directions or in
the individual to read or understand if not reaction to sensory over-stimulation, impacting
supported by pictures, symbols or simplified words decision-making and wayfinding

Using money – some people experience difficulty


handling money, understanding transactions or
paying bills

28
29
Condition Light Noise Patterns Bright Tactile Sudden Narrow Reading Using money
colours/ surfaces/ ambient walkways signs
surfaces textures transitions

ADHD

Alzheimer’s

Anxiety

Autism

Aspergers

Bipolar
disorder

Dementia

Depression

Down’s
Syndrome

Dyslexia

Dyscalculia

Global
developmental
delay
Prader Willi
Syndrome

Sensory overload and stimuli sensitivity


Overarching • discomfort and avoidance which becomes a
source of exclusivity

recurring • cognitive load

themes
• focus on transitional changes

• natural colours, textures, gradients,


materials and finishes

• decompression areas

30
Disruptions Unfamiliarity Alternatives Memory Risk Sensory Discoordination Wayfinding
and of places/ and loss awareness overload
alterations people solutions

Universal pictorial languages Consultation, collaboration and co-cre-


ation
• text increases cognitive load
• workforce representation and inclusivity
• pictures assist identification, wayfinding and security
• neurodiverse perspectives

• individuals, carers, external organisations and


Familiarity future trends
• routine and planning

• predictability and anticipation Societal acceptance and understanding


• safety and inclusion • education and awareness

31
Putting it all together

Providing clear lines of sight to create a sense of


order and enable intuitive wayfinding that eases
orientation and accessibility

Include biophilic design with natural materials


and patterns, water, light and vegetation as well as
sounds, smells and views of nature

Spacious walkways with reduced obstructions and


clutter in the environment to prevent confusion
and disruption

Large clear signage which can be seen at a distance

Multiple and connected methods of wayfinding,


for example arrow matching and the signage, with
pictures and words and maps

Clear zones of usage without ambiguity for


example the seating area is clearly defined

32
33
Quiet zone designed into the space with seating and
biophilic elements to allow those who need it to get
away from crowds and sensory overload

Strong contrast in colour and texture between walls


and floors

Natural light where possible, and appropriate


artificial light where required

Gradual transitional changes between areas of light


and dark

Matte walls to reduce light reflection

Large, clear, eye-level and easy to follow signage

Different levels are distinctive to aid navigation - for


example, here the 4th floor is clearly marked and
has blue walls

Wayfinding maps should be clear, show the


person’s whereabouts in the building and be free
from unnecessary information

Provide the option of quiet, lower sensory shopping


access hours

34
35
Benches form spaces to sit down, rest, plan routes
and engage in casual social exchanges

Neutral colours where possible, and brighter


colours for warning signs

Accessible seating with backs and arm rests

User prioritisation of the space – pedestrian areas


first, then wider and segregated lanes for cyclists,
and a reduction of car dominance

Designed to last so there is a reduced need for


maintenance and retrofitting over time, which also
creates added noise and disturbance

Training for bus drivers and transport operatives


around neurodiversity awareness

Real-time information and digital screens (powered


by solar energy) for transport updates

36
37
Why is this important for us as
designers and engineers?

“Design must accommodate more people who


• Supports everybody to participate in society in
are outside the average…because in reality, no a way that they decide
one is actually average” - Avery Trufelman,
2016, 99% Invisible • Promotes equality and equity of places,
services and products for all people regardless
Although the topics discussed in this report are of their age, health, ability or disability
embedded within a wider issue of societal
understanding and acceptance of neurodiversity, Benefits to business:
as designers and engineers, we can make a real
difference to the way in which society perceives • Enhanced user experience, satisfaction and
and understands cognitive difference in all its retention
forms. If we prioritise listening to the experiences • Increased market reach and access to a wider
and understanding the barriers people who are range of customers
neurodiverse may encounter, we can begin to
better incorporate their requirements in the initial • Reduced costs for retrofitting and redesigning
stages of design thinking and planning. To do this, in response to incidents, complaints and
we can look towards Universal Design principles to unsuitability of designs
guide our approach to designing for everybody in • Positive public and industry perception as a
a way that will elicit multiple benefits: function of corporate social responsibility
Benefits to the individual: • Creating spaces, services and products that are
in line with customer expectations of
• Design features created in a way that is accessibility and inclusivity
responsive to the needs of different user
categories – from a person who is unable to By adopting a multi-benefit, full lifecycle view to
use a product or service at all, up to a person designing the built environment, we can create
who does not experience significant problems. spaces in which everybody feels safe, comfortable
As a result of this, everybody will receive a and crucially – happy to be in that space. Like
varying degree of benefit when accessibility designing for physical disability, designing for the
and usability is in mind. mind requires us to firstly remove our perceptions
and assumptions of what may constitute as a
barrier or problem for somebody who is
Benefits to society:
neurodivergent. Beyond this, it is critical that to
create inclusive places for everybody, that we
• Supporting growing populations to live gather as many thoughts, feelings and
independently long into their lives experiences of people with non-visible disabilities
• Understands ability as a continuum which may when designing, as we may not be able to notice
change overtime these barriers ourselves.

38
The social model of disability helps us recognise barriers
that make life harder for disabled people. Removing these
barriers creates equality and offers disabled people more
independence, choice and control

– (Scope, 2021)

39
Being more inclusive makes us
more Future Ready

At WSP, Future Ready TM is our global innovation It is clear to us that our changing demographics
programme that aims to see the future more impact what we need from our built environment
clearly and design for it today. We observe how now and far into the future.
trends intersect to create a bigger picture of some
of societies’ most pressing issues and analyse them Developments in technology will bring with it a
whole host of new opportunities and challenges
to create sustainable societies with lasting
for an inclusive environment. For example, the
benefits. We’re motivated by exploring how we, as
rise of silent electric vehicles can add further
engineers and designers, can help to tackle
dangers to those who may already be distracted
intersectional challenges such as social and
while navigating our streets, however, as vehicles
disability inequality, an ageing population and become more autonomous safety increases due to
mental health through improving equity within less human error. How we balance such benefits
the built environment. and issues will be a defining feature in how we
integrate these new technologies.

During interviews, we asked whether an


• A recent study found that people who have a autonomous vehicle would provide benefit to
disability are significantly disadvantaged in individuals with the conditions we have
six key areas of life: education, work, researched. It became apparent that although this
standard of living, health and care, justic could provide a benefit in many instances, a
and detention, and participation and human element was often still required to aid the
identity (The Equality and Human Rights individual getting into the vehicle and
Commission, 2017). ensuring they were comfortable ahead of the
journey. Across the majority of participants, it was
acknowledged that connectivity and better use of
• By 2043 the population of 85+ is expected to
data will bring benefits. This could be in the form
almost double, and from resource
of developing apps to further help individuals or in
availability to healthcare, an ageing
creating larger data sources to create better
population will bring with it many
designs. The rise of virtual reality has the
challenges (Office for National Statistics,
potential to allow an individual to virtually test a
2018).
space, ensure the signage is clear and ambience
suitable before the design is finalised and
• Mental health overall is an indisputable construction begins. With a rise in smart cities
significant stressor on our collective comes the opportunity to adapt and better
wellbeing, as it has been found to be the respond to an individual’s needs.
primary driver of disability worldwide
(Lozano, R., 2012). Linking to our role as engineers and designers, we
must continue to improve our understanding of
designing for neurodiversity. Some ways to

40
achieve this could be increasing training to embed While the disability employment gap is a product
this thinking within our projects and to increase of many factors and barriers, the way our built
the number of digital specialists who work in our environment excludes many people with
sector. To increase people-focused design we must disabilities significantly impacts the level to
also improve the diversity of our workforce, which which some people with disabilities can actively
will then widen our pool of diversity of thought.
participate in society, and our economy. It is esti-
Not only will this benefit our industry, but it will
be conductive in narrowing the disability mated that a 10th of the UK’s working population
employment gap. that have a disability are economically inactive -
a term referred to as ‘economic disability’. While
the UK skills shortage is costing organisations
£6.3 billion (Open University, 2018), there is a po-
In 2020, 52.3% of people with disabilities tential untapped pool of talent of individuals with
were in employment in comparison to an abundance of in-demand skills. As a result of
81.1% people who are not disabled (House the skills shortage, businesses are
of Commons, 2021). In contrast, the reporting being less agile to political, econom-
difference between obtaining a degree as ic and technological and climate changes. If we
the highest qualification is much smaller work to empower neurodiverse people through
with 23.0% of disabled people aged 21 to employment, training and education in our field,
64 years having a degree in comparison we can create designs that better engage with
to 39.7% of non-disabled people these challenges and can help improve these
(Office for National Statistics, 2020). statistics. Now more than ever adaptability is
essential.

41
In the context of the United Nations Sustainable interviews, a more inclusive design will be built to
Development Goal 11, the trends we have last throughout our lifespans and changing needs.
analysed become even more prominent, By considering and including all within a commu-
highlighting that older people, those with learning nity more value is found for everyone.
disabilities and mental health difficulties have less
equitable experiences within the built To create Future Ready spaces, we must channel
environment than those who are not made more our understanding and advocacy of neurodiverse
vulnerable by their health status. The core values experiences to design in celebration of cognitive
of a sustainable society arose repeatedly across differences, not simply in response to them.

SDG 11 - Sustainable cities and communities: Make cities and human settlements
inclusive, safe, resilient and sustainable

42
43
Next steps

Moving forwards, it’s important to consider


cognitive difference when designing the built
Elements of co-design with people
environment as part of a more equitable and
with disabilities
sustainable future for all.
There are many ways to approach
To make necessary progress in creating
and execute co-design activities
environments that are more inclusive, we must
alongside people with disabilities. The
continue to build on our shared understanding of
steps and processes taken will depend on
the experiences, challenges and requirements of
what resources are available and what
people who are neurodiverse or have non-visible
design outcomes are in mind, but these
disabilities. Although we acknowledge that
elements (PWDWA, 2018) are a good
everybody experiences every space differently, it
place to start:
is clear that there are frequent commonalities of
triggers, barriers and experiences for many
1. Engage – create meaningful
people.
relationships with people with
Focussing on finding and understanding any disabilities to build understanding
commonalities can be an effective starting point
of the design and planning process. To do this, we 2. Plan – identify and establish
can look towards research tools and principles common goals for design
such as co-design that allow service users and 3. Explore – experiences and
designers to work towards solutions together. requirements of different services
Organisations such as Mind support co-design as and touchpoints
a way of designing to better consider cognitive
difference, and it’s also a method being
4. Develop – ideas and improvements
increasingly used to design products and services
alongside people with disabilities
for people with disabilities.
5. Decide – from acquired
understanding the priorities for
design and the methods through
which they can be created
Co-design, or participatory
design, is about the meaningful 6. Change – noting the changes in
involvement of end users in experiences and outcomes from the
designs to continue to improve
the design process. By taking understanding
account of a wider range of
perspectives and experiences,
we can design more inclusive
-more innovative-solutions,
products and services that are
better suited to users’ needs
– (Mobility, Mood & Place 2016)

44
We must:

• Continue to raise awareness for cognitive difference within our society, and better consider
non-visible disabilities when making decisions that will impact everybody
• Challenge the status-quo of the practices and guidelines that we use every day on the grounds of
accessibility and inclusion of neurodiversity
• Focus on improving our built environment in a way that will create better access to jobs, education
and services for the people with a disability and neurodiverse, while also improving workforce
inclusion across the engineering sector
• Engage with neurodiverse groups, ask them about the challenges and barriers they face, and listen to
their experiences to more effectively understand and respond to their challenges
• Look to incorporate principles such as Universal Design and Co-design into existing practices to
improve inclusivity and diversity through design

Image: Palmer, V. 2018

45
Appendix

Acknowledgements
• Ludo Pittie, Head of Landscape & Urban
We would like to formally thank all of our Design, WSP UK
contributors for giving their invaluable support
• Sarah Taylor, Communication and Knowledge
and insight to the report. Across our research, we
Management, WSP UK
spoke to many individuals whose personal
experiences and industry expertise have shaped • Abigail Frost, Diversity & Inclusion Manager,
this report. In addition, we would like to WSP UK
acknowledge the reviewers and graphics team who
• Jane Grant, Director of Learning, Development,
dedicated time this report.
Diversity & Inclusion, WSP UK
• Janet Scourfield • Hema Gowintharaj, Landscape Architect, WSP
India
• Bill Scourfield
• Melenee Purnell, Occupational Health and
• Steve Matthews Safety Advisor, WSP UK
• Duncan Jones • Nicola McMillan, Client Account Marketing
Manager, WSP UK
• Alice Buckingham
• Richard Isle, Marketing Campaign Manager,
• Charlotte Pyke WSP UK
• Martin Gordon • Natalie Redford, Principal Architectural
Lighting Designer, WSP UK
• Russell Warman
• Kevin Mainwaring, Stations Project Manager
• Anna Robak, director of Research & and DIA Superuser, WSP UK
Innovation, WSP Canada, and mother of a
child with a disability • Danielle Cairney, Wellbeing Advisor, WSP UK

• Clinton Martin, care work professional of 20+ • Carol Stitchman, Rail Technical Director, WSP
years UK
• Paul Meadows, someone with a disability, a • Kathy Wilson-Ellis, Human Factors Associate,
father of a child with disability and founder of WSP UK
SENDS 4 Dad group
• James Knoll-Pollard, Future Mobility
• Terri Hargreaves, Diversity & Inclusion Behavioural Design Lead, WSP UK
Advisor Sellafield Ltd. and their Nuclear
Autism Support Network • Peter Bornhardt, Head of Climate Adaptation &
Urban Development, WSP Denmark
• Fraser Steedman, EqualEngineers
• Peter Bassø Duus, Chief Advisor Climate
• Beccy Pleasant, Ana Fernandes and Mat Parker Adaptation and Urban Development, WSP
from the ECITB’s IDEA Taskforce Denmark
• Stephen Pyke, Senior Environmental Engineer, • Adam Stone, Technical Transport Training
WSP Canada lead, WSP UK
• Ian Patey, Head of Profession ITS, WSP UK • David Symons, Future Ready Lead, WSP UK

46
About the authors

Stephanie Barton is a Future Ready Business


Analyst at WSP. She is future-focused with a passion for
applying trend analysis to ensure her trusted advice to
clients is fit for the future. She supports the embedding
of Future Ready across the UK and globally with the
production of resources, development of training and
elevation of engagement. Steph is a keen ambassador
for designing more inclusively and the wider benefits
this brings to all.

Stephanie.Barton@wsp.com

Beth Williams is currently studying for an MSc in


Sustainability and Consultancy at the University of
Leeds. Her academic background in Marketing and
Design has provided her with a keen interest in how
inclusive, empathetic, and informed business and design
solutions focusing on social issues can benefit
everybody but, most crucially, society’s most
marginalised members. With this report, she hopes to
have contributed valuable insight into this crucial area
of research that will underpin the design of spaces and
places that deliver equitable social value for a more
sustainable future.

beth.williams@wsp.com

47
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WSP is one of the world’s leading engineering professional services consulting
firms, bringing together talented people from around the globe. We are technical
experts who design and provide strategic advice on sustainable solutions,
engineering projects that will help societies grow for lifetimes to come

50

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