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Tate & Perdices - 2008+brain Impairment - ICF Trees
Tate & Perdices - 2008+brain Impairment - ICF Trees
Address for correspondence: Robyn Tate, Associate Professor, Rehabilitation Studies Unit, PO Box 6, Ryde NSW 1680,
Australia. E-mail: rtate@med.usyd.edu.au
BRAIN IMPAIRMENT
282 VOLUME 9 NUMBER 3 DECEMBER 2008 pp. 282–292
THE ICF IN ACQUIRED BRAIN IMPAIRMENT
provided general overviews of the ICF structure, underpinning the taxonomy (including the intro-
but to date there has been no report that has duction of Contextual Factors), two major differ-
bridged the gap between general description of the ences from the ICIDH comprise (1) the use of
ICF and the minutae of the 1,424 ICF categories. neutral language, and (2) the combining of
The present article aims to meet the need for an Disabilities and Handicaps into a single compo-
intermediate level of detail. A graphical represen- nent (Activities/Participation).
tation of the ICF (‘ICF trees’) is presented as a In terms of nomenclature, the ICF adopts neu-
vehicle to more readily grasp the detail of the ICF tral language, in contrast to the ICIDH in which
structure and contents and facilitate its use in the only the negative experience was described. Thus,
area of acquired brain impairment. Body Function replaces Impairments, Activities
replaces Disabilities, Participation replaces Handi-
caps. Moreover, the ICF allows both ends of the
Structure of the ICF health continuum to be described. The positive
Parts and Components poles are as labeled above (Body Function,
The structure of the ICF is described in the manual Activities, Participation); the negative corollaries
as being hierarchical and nested in a stem–branch– are Impairments, Activity Limitations, Participa-
leaf arrangement. The ICF is divided into two parts: tion Restrictions respectively. Similarly, Contextual
(1) Functioning and Disability, and (2) Contextual Factors can be described from both positive and
Factors. These parts are further subdivided into negative perspectives, by use of the terms ‘facilita-
components. Functioning and Disability contains tors’ and ‘barriers/hindrances’ respectively.
two components: Body Systems (Function and
Structure) and Activities/Participation. Contextual Domains and Categories
Factors also contains two components (Environ- It is at the domain and category levels that clini-
mental and Personal). These components are cians and researchers need to have a good working
defined as follows (WHO, 2001, p. 10): knowledge of the ICF. Domains are described as
• Body functions: Physiological functions of the first level of classification, whereas categories,
body systems (including psychological func- which represent the most detailed level of the ICF
tions) taxonomy, have second, third, and/or a fourth level
of classification (NB: there is some variability in
• Body structure: Anatomical parts of the body, the degree of detail and not all domains have a
such as organs, limbs and their components fourth-level category classification).
• Activity: The execution of a task or action by The component, Body, has eight domains for
an individual each of Body Functions and Body Structures,
• Participation: Involvement in a life situation which are organized according to the body system
• Environmental factors: Physical, social and (e.g., nervous system, cardiovascular system).
attitudinal environments in which people live Each domain of Function corresponds to one of
and conduct their lives Structure (e.g., respectively, Mental Functions
versus Structures of the Nervous System; Neuro-
• Personal factors: ‘The particular background muscular and Movement-related Functions versus
of an individual’s life and living, and comprise Structures related to Movement etc.). The compo-
features of the individual that are not part of a nent Activities/Participation contains a single set
health condition or health state’ (p.17). of nine domains, addressing both individual and
The ubiquitous figure describing the ICF is pre- social aspects of functioning (e.g., mobility, inter-
sented below. It is intended to illustrate the inter- personal interactions and relationships).
action among the components. For example, Within the Contextual Factors part of the ICF,
Environmental Factors (e.g., distracting stimuli or the Environmental Factors component contains
ground texture) can interact with Body Functions five domains, referring to physical, social and atti-
(attention or balance respectively). tudinal environments. The second component,
The ICF thus contrasts with its original ver- Personal Factors, is not yet classified within the
sion, the International Classification of Impair- ICF ‘because of the large social and cultural vari-
ments, Disabilities and Handicaps (ICIDH; WHO, ance associated with them’ (WHO, 2001, p.8) and
1980), which was predominantly a medical model is designated as an area of future development of
of diseases and disabilities. Yet, the ICF repre- the ICF. Figure 2 presents a graphical representa-
sents more than an update of the ICIDH. In addi- tion of the ‘ICF tree’, which depicts the structure
tion to the shift of the conceptual model of the parts, components and domains of the ICF.
283
ROBYN L. TATE AND MICHAEL PERDICES
Health Condition
(disorder or disease)
FIGURE 1
Overview of the International Classification of Functioning, Disability and Health
In comparing Figures 1 and 2, it will be appar- domains exclusively Participation. The middle
ent that there is some discrepancy. Figure 1 sug- four domains (Communication; Mobility;
gests that there is a demarcation between Self-care; Domestic life) are considered ‘to be
Activities/Participation. In the ICIDH such a open to an individual (i.e., as a task or action
demarcation did occur between the predecessors that an individual does) and a societal (i.e.,
of Activities and Participation (viz. Disabilities involvement in a life situation) interpretation’
and Handicaps respectively), but in the main text (WHO, 2001, p.235) and hence are considered
the ICF presents the Activities/Participation com- both Activities and Participation.
ponent as a single listing of nine domains, as • Option 3: Within each domain, the more
depicted in Figure 2. In an annex to the manual, detailed categories (third and fourth-level cat-
the ICF does suggest four separate ways in which egories; e.g., starting a conversation, prepar-
Activities and Participation can be differentiated, ing simple meals) are considered Activities
which ‘if users so wish [they can apply] in their and the broad level of classification (first
own operational ways’ (WHO, 2001, p. 16): [domain] or second-level category; e.g., com-
• Option 1: The domains are considered distinct munication, domestic life) are considered
Participation.
with no overlap; the first four domains
(Learning and applying knowledge; General • Option 4: Total overlap, with each domain
tasks and demands; Communication; Mobility) interpreted as having both Activity (‘individ-
classified as Activities and the second five ual functioning’) and Participation (‘societal
domains (Self-care; Domestic life; Inter- functioning’) aspects.
personal interactions; Major life areas; This recommendation suggesting that the
Community, social and civic life) classified as Activities/Participation domains can be parti-
Participation. tioned in (four) various ways has served to create
• Option 2: There is partial overlap with some confusion among users. Some authors suggest that
domains. The first two domains are consid- the Activities/Participation component should be
ered exclusively Activities, and the last three retained as a single set of domains; others have
284
THE ICF IN ACQUIRED BRAIN IMPAIRMENT
Mental Functions
FUNCTION & Body
Function Sensory & pain
DISABILITY
Voice & speech
Functions of the cardiovascular,
haematological, immunological
& respiratory systems
Neuromusculoskeletal &
movement-related functions
Functions of the skin & related
structures
FIGURE 2
Parts, Components and Domains of the International Classification of the Functioning, Disability and Health
285
ROBYN L. TATE AND MICHAEL PERDICES
provided empirical support regarding the underly- Activities/Participation that are of most relevance
ing structure differentiating Activities and to the area of acquired brain impairment. The cat-
Participation. Jette, Haley and Kooyoomjian egory codes are fully enumerated in the 2001
(2003), for example, collected data from 150 older WHO publication.
people on the Late Life Function and Disability As is apparent from Figure 3, located between
Instrument, which contains items similar to those Domains and Categories are Blocks. According
found in three domains of the Activities/ to the ICF, Blocks are ‘provided as a convenience
Participation component. Using principal compo- to the user and, strictly speaking, are not part of
nents analysis, three components were extracted: the structure of the classification and normally
mobility activities, daily activities and social/ will not be used for coding purposes’ (WHO,
participation. Further study of this fundamental 2001, p. 220).
issue is obviously required. In addition to category codes, the ICF uses
The ICF manual also advises that for surveys qualifiers, without which ‘the codes have no
and health outcome evaluation classification at the inherent meaning’ (WHO, 2001, p. 222). The
second-level category is appropriate, but for spe- qualifiers are numeric descriptors which appear
cialist services, such as rehabilitation, geriatrics following a point after the code, and there can be
and mental health, classification should be con- more than one qualifier. As shown in Table 1, the
ducted at the more detailed fourth-level category. first qualifier is generic, referring to the extent of
The ICF manual provides a listing of the 1,424 the problem (viz. degree of severity). Second and
fourth-level categories over approximately 200 third qualifiers can be used for body structures to
pages. This also encompasses inclusion and designate the nature of the impairment (e.g., par-
exclusion criteria. tial absence) and location of impairment (e.g., left
Additionally, each of the ICF categories is side) respectively. Two qualifiers are used for
assigned a code, using alphanumeric notation: Activity Limitation and Participation Restriction,
commencing with ‘b’ for body functions, ‘s’ for which refer to the environments in which the mea-
structure, ‘d’ for domain (referring to domains of surements occur. The first qualifier refers to per-
the Activities/Participation component, which formance (i.e., what a person actually does in the
alternatively can be referred to as ‘a’ and ‘p’ current or usual environment, including perfor-
respectively if the user so desires) and ‘e’ for envi- mance with the use of assistive devices or per-
ronment. The first digit represents the domain sonal help); the second capacity qualifier is rated
number, the next two digits represent the (second- ‘without assistance in order to describe the indi-
level) category number. Two additional digits are vidual’s true ability which is not enhanced by an
applied for category subdivision at the third and assistive device or personal assistance’ (WHO,
fourth levels. Figure 3 presents category codes to 2001, p. 230). Both of these qualifiers use the
the second-level category subdivision for compo- generic listing. Environmental Factors also uses
nents and domains of Body Function and the same set of generic qualifiers to describe the
TABLE 1
Qualifiers for ICF codes
286
THE ICF IN ACQUIRED BRAIN IMPAIRMENT
COMPONENT DOMAIN
ST
BLOCK CATEGORY
ND
1 LEVEL 2 LEVEL
Voice (b310)
Voice & Speech Articulation (b320)
Fluency & rhythm (b330)
Alternative vocalisation (b340)
Other (b398) (b399)
Power (b730)
Muscle Tone (b735)
Endurance (b740)
Other (b749)
FIGURE 3
Listing of ICF categories and codes in sections pertinent to acquired brain impairment.
287
ROBYN L. TATE AND MICHAEL PERDICES
COMPONENT DOMAIN
ST
BLOCK CATEGORY
ND
1 LEVEL 2 LEVEL
Watching (d110)
Activities & Learning & Purposeful
Applying sensory Listening (d115)
Participation experience
Knowledge Other (d120)(d129)
Copying (d130)
Basic Rehearsing (d135)
learning
Learning to read (d140)
Learning to write (d145)
Learning to calculate (d150)
Acquiring skills (d155)
Other (d159)
Speaking (d330)
Communication Producing nonverbal messages (d335)
Producing
Producing messages in formal sign
language (d340)
Writing messages (d345)
Other (d349)
Conversation (d350)
Use of devices Discussion (d355)
& techniques
Using devices & techniques (d360)
Other (d369)(d398)(d399)
FIGURE 3 (continued)
Listing of ICF categories and codes in sections pertinent to acquired brain impairment.
288
THE ICF IN ACQUIRED BRAIN IMPAIRMENT
Walking (d450)
Walking & Moving around (d455)
moving
Moving around in different locations
(d460)
Moving around using equipment (d465)
Other (d469)
FIGURE 3 (continued)
Listing of ICF categories and codes in sections pertinent to acquired brain impairment.
289
ROBYN L. TATE AND MICHAEL PERDICES
Other (d839)
Other (d859)
FIGURE 3 (continued)
Listing of ICF categories and codes in sections pertinent to acquired brain impairment.
290
THE ICF IN ACQUIRED BRAIN IMPAIRMENT
extent of the barriers; facilitators use the same set Medicine, 2004). Core sets have been published
of codes with a + sign preceding the qualifier. for patients with neurological conditions in the
acute stages of recovery (Ewert et al., 2005) and
post-acute rehabilitation facilities (Stier-Jarmer
Applying the ICF in Clinical Practice et al., 2005). Development of core sets for trau-
and Research matic brain injury is currently in progress. Core
Use of the ICF in clinical practice allows precise sets for stroke were published in 2004 (Geyh et
description of patient status and characteristics, al., 2004), comprising 41 categories from the
which allows comparison among different services Body Functions component, 5 from Body
and centres, both local and worldwide. To illus- Structures, 51 categories from the Activities/
trate, a hypothetical patient, John, with traumatic Participation component, and 33 from Environ-
brain injury, returned to the community brain mental Factors. Thus, taken together, these 130
injury clinic for follow-up. In spite of his overall second-level categories provide a comprehensive
good recovery, investigations revealed selected listing of ICF categories pertinent to stroke and
areas of dysfunction. Computerised tomography represent a considerable savings from the com-
scan showed atrophy in the frontal lobes plete listing of categories. A ‘Brief ICF Core Set’
(s11000.223). The lesions were moderately exten- for stroke reduced the number of categories even
sive (cf. first qualifier), caused partial absence in further to 18 (6 Body Functions, 2 Body Struc-
brain structure (cf. second qualifier), and were tures, 7 Activities/Participation, and 3 Environ-
bilateral (cf. third qualifier). As a consequence, mental Factors).
John experiences mild difficulties with impulse In theory, use of the ICF extends to an analy-
control (b1304.1) and has a mild hemiparesis sis of the instruments clinicians and researchers
(b7302.1). His most pronounced area of difficulty use to document functioning. As yet, limited
is a moderate impairment of planning and organi- research literature is available in this arena, and
sation ability (b1641.2). In everyday terms, John Tate (in press) describes difficulties that are
shows some disruption of informal relationships encountered in mapping instruments used in the
with friends (d7500.1), but he gets along well with area of acquired brain impairment to the ICF.
his family (d760.0). He successfully returned to his There will always be difficulty in mapping instru-
work as a grain and stock salesman (d8451.03), ments that were developed prior to introduction of
and avoids organisational difficulties by keeping a the ICF in 2001. For example, in their comparative
diary of his clients and their orders (cf. first per- review, Perenboom and Chorus (2003) identified
formance qualifier), although without his notebook only two instruments that exclusively addressed the
he frequently makes mistakes (cf. second capacity Participation construct of the ICF. It is expected
qualifier). John experiences mild difficulty walk- that newly developed instruments that use the ICF
ing over uneven ground (d4502.12), even with the as their conceptual structure, such as the World
use of a walking stick (cf. first performance quali- Health Organization — Disability Assessment
fier), without which he has moderate difficulty (cf. Schedule 2 (WHODAS II; http://www.who.int),
second capacity qualifier). Although his hemipare- will provide conceptually based procedures to
sis does not cause any physical access problems in assess functioning after acquired brain impairment
his home (e1550.0), it is a mild barrier in the com- and other health conditions.
munity (e1500.-1). His immediate family is very In conclusion, the ICF has singular advan-
supportive (e310.+3), but he lives in a remote rural tages. It draws upon a comprehensive biopsy-
location, which restricts his ability to access health chosocial model of functioning and health and it is
services (e5800.-2). universally endorsed. Additionally, it has many
As will be evident from the foregoing exam- potential applications. It is therefore surprising
ple, the codes alone are sufficient to describe this that there is so little evidence that the ICF is in
patient’s status. Stineman et al. (2005) also pro- widespread use in an integrated and informed way
vide a worked example of the application of the in the area of acquired brain impairment for either
ICF and their codes in clinical practice. research or clinical practice. We suggest that part
Considerable work has been conducted in of the difficulty may be the inherent detail in the
developing so-called ICF ‘core sets’, which ICF codes, making the ICF overwhelming and
comprise a selected number of codes that are inaccessible. It is anticipated that strategies to
adequate to describe specific health conditions. streamline the ICF without jeopardising its com-
A detailed methodology is undertaken to identify plexity, such as the use of the ‘ICF trees’
the codes relevant to different health conditions described in this paper and core sets, will serve to
(see Supplement 44, Journal of Rehabilitation facilitate use of the ICF.
291
ROBYN L. TATE AND MICHAEL PERDICES
292