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I Just Wanted Them To See Me - Intersectional Stigma and The Health Consequences of Segregating Black, HIV+ Transwomen in Prison in The US State of Georgia
I Just Wanted Them To See Me - Intersectional Stigma and The Health Consequences of Segregating Black, HIV+ Transwomen in Prison in The US State of Georgia
Jennifer M. Kilty
To cite this article: Jennifer M. Kilty (2020): ‘I just wanted them to see me’: Intersectional stigma
and the health consequences of segregating Black, HIV+ transwomen in prison in the US state of
Georgia, Gender, Place & Culture, DOI: 10.1080/0966369X.2020.1781795
Article views: 20
Introduction
There is a dearth of research on how transgender prisoners experience their
conditions of confinement (Sexton, Jenness, and Sumner 2010), their treat-
ment by other prisoners and correctional staff (Rosenberg and Oswin 2015),
their access to gender affirming health care (Larsen 2008), or their know-
€mdal et al. 2019,
ledge and practices pertaining to HIV/STI transmission (Bro
3; Clark, White Hughto, and Pachankis 2017). The term transgender refers to
2008). Carceral spaces are highly gendered – at times, in harmful ways. For
example, transgender prisoners commonly experience secondary punishment
from correctional staff if they fail to adhere to heteronormative expressions
of sexuality and/or gender (Agbemenu 2015; Brown 2014; Jenness and
Fenstermaker 2014; Sumner and Sexton 2016; White Hughto et al. 2018) and
transgender women are especially at risk of potential physical and sexual vic-
timization by staff and other prisoners when housed in men’s institutions
(Grant et al. 2011; Sexton, Jenness, and Sumner 2010; White Hughto et al.
2018; Vitulli 2010).
Reflecting the transgender stigma that structures carceral policies and
practices, transgender women report experiencing institutional forms of gen-
der regulation, such as being forced to cut their nails and hair (Rosenberg
and Oswin 2015; Smith 2014), being prohibited from shaving and wearing
makeup, bras or feminine underwear (Rosenberg and Oswin 2015; Smith
2014), and being denied access to hormone replacement therapy (HRT),
which has been found to lead to depression and emotional instability
(McCauley et al. 2018; White Hughto et al. 2018). Failing to restrict one’s fem-
inine self-presentation also commonly results in disciplinary charges (Kirkup
2018; Rosenberg and Oswin 2015; Smith 2014).
These findings reflect the hypermasculine culture of the prison environ-
ment and the social hierarchies amongst both staff and prisoners regarding
appropriate gender performatives that increase the likelihood of negative
attitudes towards and even victimization of transgender individuals (Stohr
2015). This elevated risk of victimization is commonly used as a rationale by
correctional staff to discourage prisoners from expressing their transgender
identity in the name of safety, which has deleterious effects on their mental
health (Clark, White Hughto, and Pachankis 2017, 86; Stohr 2015; Vitulli
2010). Research also demonstrates that not only do transgender prisoners
have an elevated risk of experiencing physical and sexual violence while
incarcerated in comparison to cisgender prisoners (Brown 2014; McCauley
et al. 2018; Stohr 2015; Sumner and Sexton 2016), but that when combined
with the lack of consistent access to harm reduction technologies, this leads
to elevated risks for contracting a sexually transmitted infection – including
HIV (Grant et al. 2011; Larsen 2008; Sexton, Jenness, and Sumner 2010).
While the Prison Rape Elimination Act (PREA) of 2003 requires that staff
have appropriate training concerning transgender prisoners with respect to
communication methods, as well as on how to conduct a pat-down and
search in a professional, respectful, and the least intrusive manner possible –
including the prohibition of genital searches to determine biological sex
(Malkin and DeJong 2019; Stohr 2015), this kind of training has been shown
to be rare (Brown and McDuffie 2009; Clark, White Hughto, and Pachankis
2017; Sexton, Jenness, and Sumner 2010; White Hughto et al. 2018). Their
GENDER, PLACE & CULTURE 5
Methodology
This research was designed to provide a small American comparison to a
national research project in Canada that investigated the views of frontline
workers in AIDS Service Organizations (ASOs) on the criminalization of HIV
nondisclosure and the ways in which this legal approach to managing a
public health concern was affecting their service work. The comparative pro-
ject was situated in the geographic region of Atlanta, Georgia and funded by
a Fulbright Research Chair position for the 2016–2017 year. While the com-
parative aspect of the broader research project involved interviewing staff
who work in community-based HIV/AIDS care (using the same interview
guide designed for the Canadian study), the US based project also expanded
the goals of the initial Canadian study to include interviews with people liv-
ing with HIV (PLWH) so as to better understand how criminalization and
incarceration impacts their health experiences and access to care
and medication.
After receiving ethics approval from my home university’s REB, I relocated
to Atlanta, Georgia to begin the research in January 2017. I contacted the
Executive Directors (EDs) of ASOs located in and around the Atlanta region
and used snowball sampling to identify local community health centres from
which to recruit participants; the EDs forwarded an information sheet to
staff, who emailed the researcher directly to indicate their interest in partici-
pating and assisted in recruiting HIV positive service users. While I also
GENDER, PLACE & CULTURE 7
Intersectional stigma
Goffman (1963, 3) defined stigma is ‘an attribute that links a person to an
undesirable stereotype, leading other people to reduce the bearer from a
whole and usual person to a tainted, discounted one’. In this section I out-
line how participants experienced two forms of stigma – namely, that related
to their HIV positive serostatus and to being transgender – while they were
incarcerated.
8 J. M. KILTY
HIV stigma
Building on Goffman’s (1963) seminal work on stigma, Parker and Aggleton
(2003) conceptualized HIV related stigma as both a manifestation and a
driver of social inequality, arguing that it operates as a structural barrier that
leads to health disparities and negative health outcomes for PLWH. HIV
stigma operates across the personal, social, and structural levels and has
been found to negatively influence the health of incarcerated and formerly
incarcerated people. Notably, transgender women in the US are one of the
highest risk groups for HIV, with Black transgender women being dispropor-
tionately affected (Salazar et al. 2017). All ten participants expressed con-
cerns about the stigma they felt and experienced in relation to their HIV
positive serostatus. Speaking about her feelings when she was first diag-
nosed, Cora stated:
I was withdrawn, I didn’t want anybody around me, I didn’t want to talk to
anybody. I sat in a dark room every day in my apartment, for months, crying,
asking God to take this away, why did this happen to me? You go through all
kinds of crazy emotions. (Cora)
Elaine was similarly passionate when speaking about how HIV stigma affects
her daily life, including how friends and family relate to you due to the
unfounded fears they have about contracting the virus.
Yeah, they treated people like they were dirty. Like, child, please, my family look at
me like I go, I can eat, some people you can’t even go to your people’s house. You
got to eat out of a paper plate. I be like, bitch, please! I’d throw that shit on the
floor and walk away. Uh-huh, be like, this ain’t that, because you can’t contract
nothing just by off of a damn spoon or drinking out of a glass, or giving them a
kiss. You know? (Elaine)
As far as, you know, the virus, we were treated like we were disgusting … They
[correctional guards] can see you coming up to the medical cart and they can see
who’s positive and who’s not. So, you know, it’s, that was kind of, that there made
me feel very uncomfortable. Because of the way they taunted me in jail, I can
imagine what they would do to me out in the street. (Helen)
Transgender stigma
Given that prison settings are segregated according to the normative male-
female sex binary, they are ‘ripe for the production and reification of trans-
gender stigma’ (White Hughto et al. 2018, 80). As Rosenberg and Oswin
(2015, 1278) contend:
the (dis)embodying effects of carceral masculine space are paradoxical, as trans
feminine individuals … experience hyperattention to their bodies. Because the
violence they experience is often attributed to their transness, their bodies are
reinscribed into the prison space as something that cannot be unnoticed or
unseen. Attempts to quell trans feminine embodiment pull invisibilized bodies back
into the prison walls, where they undergo the pull and push between seen and
unseen. (1278)
You don’t need to tell nobody online … you need to be mindful. I’m always in an
open space, in the daytime, where I can see and meet with you and know how
you’re going to react. If you start looking the other way, rolling your eyes,
smacking your lips, that’s a bad vibe with me, so I don’t even go around
you. (Dana)
Both Cora’s and Dana’s statements describe the fear of potential victimiza-
tion that transwomen commonly experience, which is particularly telling of
the affective impact that trans-stigma can have on an individual’s daily life.
Even more pertinent for this paper, the following three quotes illustrate how
HIV and transgender stigmas are connected – or layered – where being
transgender leads to presumptions about HIV seropositivity.
I sit sometimes on buses and trains, and I hear people, and they say, oh, those
crazy, you know, boys that wanna be girls and all that kind of stuff, you know, it’s
crazy and they’re the reason that HIV is here, and it’s so wild and rampant and
everything and stuff. Maybe you should learn about HIV and transgender people
before you just make an irrational decision to hate someone. Because how do you
hate someone that you don’t even know? (Cora)
The reason why I find it difficult is because people are so judgmental. First thing
they’ll judge is that I’m trans. They already think that you have some kind of
sexually transmitted disease. And then the whole way of them thinking and doing
and reacting towards me, sometimes it changes. (Annie)
Yeah, so we have two stigmas. Being that we’re not supposed to be who we are
identity-wise and plus you have this disease, not disease, virus. That’s your life;
when you identify or you come out as a trans woman, this is who you are, HIV and
AIDS. (Dana)
When asked if they had had negative experiences with different authority
figures due to being trans, all ten participants responded in the affirmative.
For example, Ivy stated:
Uh, yes I have. I’ve very much have, not only with police officers and guards. With
the ambulance people too, you know. They can be real shady, you know, just the
attitude or the smirks, the smart comments or the whispers – that aggravates me.
But if I’m going to the hospital, you shouldn’t have to … that’s the last thing that
you should be worried about. And that’s what made me like snap a couple of
times I’ve been to the hospital because it’s supposed to be more professional than
that. That’s the same thing with the police. (Ivy)
Yes, to be isolated like that. I was being isolated because of me being trans; they
were saying they were concerned about my safety. But I was thinking that they
was more concerned of my, just being, well, you’re a trannie, whatever, you have
boobs, and you know what I’m saying, and guys wanna be looking at you in the
shower and we don’t want a problem. So, I just felt like I was being discriminated
against. (Annie)
Cora explains how transgender and HIV positive prisoners are often segre-
gated together in what Helen, above, referred to as the alternative dorm,
illustrating how these two identity locations are commonly conflated. I also
wish to problematize the notion that segregating transgender prisoners is
necessary for their safety. While there is certainly truth to that claim, we
must recognize that it also breathes life into dated rape myths that position
men, writ large, as incapable of controlling themselves sexually and that
blame women for their assaults because of the clothes that they were wear-
ing, or in this case, because of their very bodies. Education and training
about transgender issues for both correctional staff and prisoners is a neces-
sary first step in working toward desegregating transgender prisoners.
When I asked the participants about how being segregated affected them
mentally and emotionally, they expressed that it made it more difficult upon
their release from prison and that they found it hard to be around people,
including friends and family. Many described feeling anxious, depressed and
feeling extra-sensitive to light and sound.
14 J. M. KILTY
It scarred me because it gave me so much time to think about what I was going
through, just having the four walls you know, the darkness and everything, it just
kept repeating the same thing and I slipped into kind of a depression, where I’m
now still taking Trazadone for it, you know, just to keep me stable. And that is why
I still continue seeing my counselor too. And for a long time, even coming home, I
just didn’t want to be around people. You know, because I had been alone for so
long. (Elaine)
It drove me crazy. I was always crying. And I was just like begging for someone to
help me. I just wanted them to see me. That I wasn’t dangerous and that I needed
to be out of the hole. Yeah and I wanted to kill myself because it is like, oh my
God, I don’t want to be here already, and I’m isolated and all I see is a door and
walls, you know? I didn’t get much sleep. I woke up in the middle of night and I
just had to physically lay there, or I would get up and pace back and forth. (Ileana)
It was horrible, because you come out to take a shower once a week, once a day
when you do come out, you cannot make no phone call, couldn’t do nothing. I
was crying a lot.
It was like I shut down. Didn’t want to be bothered, didn’t want to be talked to.
Don’t say anything to me, get out of my face. Yeah, went into a nutshell. (Nina)
higher viral load (VL) – the number of copies of HIV per ml of blood (Pant Pai
et al. 2009). When this occurs, it illustrates a distinct loss in the beneficial
effects of ART compared to those individuals who are able to maintain a con-
tinuous ART regimen (Kemnitz et al. 2017; Larsen 2008; Pant Pai et al. 2009).
While intermittent ART is more beneficial than no ART, it is important to con-
sider the deleterious effects of intermittent therapy and the dangerous possi-
bility of developing treatment resistance (Pant Pai et al. 2009, 5).
When asked if they had consistent access to their HIV and HRT medica-
tions while incarcerated only two of the ten the participants responded in
the affirmative. The other eight participants reported either disruptions to
their medication regimens or outright denial of access to their medications.
The harmful physical side effects of experiencing disruptions to your HIV
medications adherence can be particularly severe, as several of the partici-
pants attested.
I suppose because it was too expensive they just would not opt into giving us our
meds. And like if we got a cold, or you know, everything like that and stuff, we
really didn’t get anything. You laid in your bed and you fought it off, no matter
how long it took, you know, with your body. But I got PCP pneumonia and it bore
three holes in the both sides of my lungs. So fluids was entering and I passed out
and that’s how I ended up in Grady and I stayed in Grady for seven and a half
months and that is where I learned I had zero T-cells, uhm, it was difficult for them
to treat me. (Cora)
Some participants, like Nina, suggested that there was a difference in terms
of access to their medications between their experiences in the local jail and
the prison. Both she and Helen also pointed out that when they did have
access to medications, they were often a different brand than they were tak-
ing in the community.
Not in jail, when I went to prison they [HRT medication] stopped. I had to start all
over, like I’ve been doing it two years now and everything’s coming along and I
was in there six months or three months, and I went back to a flat chest. When I
went to prison, the county said all of my medicine would come, but once we got
over to the prison, they took them. I didn’t get my heart medication, I didn’t get
my HIV medication like I was supposed to. They wanted me to do their medication.
But I’m not going to be a guinea pig for you. Cause I didn’t know what they were
giving me. (Nina)
Sometimes your medication gets messed up, you might not be taking the same
thing that you might be taking out on the street. You may be taking something
totally different. For myself, I take Truvada. I might not be getting Truvada, in jail. I
might be getting something totally different in jail. (Helen)
2012). For example, Ivy spoke to the stress that having your medications
changed can have on the T cell counts of individuals living with HIV.
It just angered me. I mean, if you’re stressing about something when you’re in jail
and you can’t handle it, that just makes it worse. You’re worrying and that’s not
good when you’re HIV positive. Worrying can drop your T cells, yeah I’ve seen a lot
of girls go out like that, worrying. You can’t do all that. It’s your life. (Ivy)
Conclusion
The voices of the participants in this study have much to teach us about the
spatialization of stigma. We may conceptualize the notion of intersectional
stigma as a kind of prism, which, in optics, is a transparent element with flat,
polished surfaces that refract light. Here, we may theorize each identity loca-
tion as a site through which stigma may be refracted. As these sites inter-
sect, the stigma that is refracted becomes layered – subsequently
aggravating the potentiality for forms of disadvantage and marginalization
to occur across different fields and to varying degrees. For example, it is
well-documented that gender-based discrimination is aggravated by both
race and class (Reisner, Bailey, and Sevelius 2014; Sexton, Jenness, and
Sumner 2010; Sumner and Sexton 2016; Vitulli 2010). In this way, Black,
transgender PLWH experience layers of stigma in relation to their various
social identity locations. In carceral environments, the manifestation of inter-
sectional stigma influences how this population was treated by staff, where
they were housed and how their institutional time was managed; in other
words, it contributed to mapping their carceral experience.
Findings from this research echo those of earlier studies and sadly demon-
strate the extent to which intersectional stigma leads to physical and mental
harm for incarcerated transgender individuals living with HIV. The carceral
environment, already a space prone to abuses of power, acts like a pressure
cooker that materializes physical and emotional forms of violence upon the
bodies and minds of transgender and HIV positive prisoners. As the partici-
pant narratives attest, emotional violence flows from isolation in solitary con-
finement and/or the use of alternative dorms for LGBTQ þ people and PLWH
as well as mistreatment by staff, who were found to taunt trans-prisoners
(e.g., using male rather than female pronouns) and to coerce them to sup-
press their gender identity. Physical violence occurred by way of isolation,
medication disruption and denial and by the methods staff used to force the
suppression of gender identity, including cutting some of the women’s hair
and nails without their consent. While used as an administrative mechanism
GENDER, PLACE & CULTURE 17
to try to prevent violence and HIV transmission (Kunzel 2008; Rosenberg and
Oswin 2015; Smith 2012, 700), participants experienced carceral segregation
and interruptions in their access to HRT and/or HIV medications as forms
of punishment.
Despite the negative health and mental health consequences of restricting
transgender people’s access to HRT and HIV medications, restrictive policies
and practices continue to persist in US jails and prisons. Similar to earlier
findings, this research exemplifies how ‘restrictive policies and a culture of
transphobia guided the delivery of care and shaped the healthcare experien-
ces of transgender [and HIV positive] women while incarcerated’ (White
Hughto et al. 2018, 81). For example, participants in the present study like-
wise reported disruptions, delays, and even medications access denial (for
both HIV and HRT), negative attitudes from correctional staff and health care
providers, dismissive comments regarding the importance of maintaining
continuous access HRT, and the ‘prioritization of other medications deemed
to be more medically necessary than hormones (e.g. mood stabilizing medi-
cations, HIV medications)’ that have been reported by other researchers
(White Hughto et al. 2018, 81). While some health care providers claim to
deny HRT as a way to try to prevent gender-based violence, medication
delay and denial is ‘a form of symbolic violence (Valentine 2007), with dire
health implications’ (White Hughto et al. 2018, 81). This research contributes
to the trans and carceral geographies literature and adds a critical health
focus in order to examine the intersection of HIV and transgender stigmas.
While the theoretical implications of this work are important, I conclude with
a short description of the policy implications of this study in order to outline
practical suggestions that would improve the health, safety, and quality of
life for transgender and HIV positive prisoners.
In order to help curb transgender and HIV stigma and discrimination it is
essential to significantly improve correctional staff members and health care
providers knowledge about HIV and transgenderism. Mandatory transgender
and HIV 101 education classes and sensitivity training would help to build
cultural and clinical competence (Clark, White Hughto, and Pachankis 2017).
Sevelius and Jenness (2017, 37-38) outline a series of policy recommenda-
tions that correctional facilities should uniformly adopt in order to prioritize
and protect the health and safety of transgender prisoners, that this research
evidences support for, including: using the name and pronoun preferences
of the individual; determining housing assignments on a case-by-case basis
so as to assess preferences, safety needs, and histories of victimization; pro-
hibiting the use of involuntary segregation; ensuring private bathroom and
shower facility use; provision of undergarments and hygiene products that
correspond with the individual’s gender identity; prohibiting pat-down and
strip searches to determine biological sex; and access to HRT regardless of
18 J. M. KILTY
These types of changes to policy and standard operating procedures can help
to improve the emotional and mental health of transgender and HIV positive
prisoners. Moreover, future research should strive to document the content of
correctional healthcare policies that involve HIV positive and transgender prison-
ers to identify progressive and discriminatory practices currently in operation in
prisons and jails across the country. Researchers should also prioritize conducting
qualitative interviews with staff to better understand how they enforce biased
and discriminatory practices. To conclude, I end this paper with a quote from
Dana, who communicated how remembering that we have a common shared
humanity should help counter transphobia, stigma and prejudice.
We are not demons. We are not Anti-Christ. We are human just like you, we just
happen to love who we love. And identify how we identify. That’s why we are
LGBTQ, we have different identities, we have different preferences. We have
diversity. We’re not the same people, and that’s what people don’t understand. We
are people too. We are human. I bleed just like you. I cry just like you. I smile just
like you. I do all of these things that say that I am human. And me personally, I
demand that I be treated as human. (Dana)
Disclosure statement
No potential conflict of interest was reported by the author(s).
Funding
This research was funded by a 2016-2017 Fulbright Research Chair at Kennesaw State
University, Georgia USA.
Notes on contributor
Jennifer M. Kilty is Associate Professor in the Department of Criminology, University of
Ottawa. Author of numerous articles and book chapters, her edited and authored books
include: Demarginalizing Voices: Commitment, Emotion and Action in Qualitative Research
(2014, UBC Press), Within the Confines: Women and the Law in Canada (2014, Women’s
Press), Containing Madness: Gender and ‘Psy’ in Institutional Contexts (2018, Palgrave), and
the Enigma of a Violent Woman: A Critical Examination of the Case of Karla Homolka
(2016, Routledge).
GENDER, PLACE & CULTURE 19
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