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"We'Re Afraid To Say Suicide" - Stigma As A Barrier To Implementing A Community-Based Suicide Prevention Program For Rural Veterans
"We'Re Afraid To Say Suicide" - Stigma As A Barrier To Implementing A Community-Based Suicide Prevention Program For Rural Veterans
The Journal of Nervous and Mental Disease • Volume 208, Number 5, May 2020 www.jonmd.com 371
(i.e., the level of readiness within a community to participate in an interven- clearly defining the issue and the community (Stanley, 2014), the inter-
tion; Allen et al., 2009; Edwards et al., 2000). The community readiness view guide was modified to assess veteran suicide prevention in this rural
model conceptualizes a community's readiness as being at one of nine community. Interview questions assessed community knowledge of local
stages of change (i.e., no awareness, denial, vague awareness, preplanning, efforts to address veteran suicide and of the issue of veteran suicide, lead-
preparation, initiation, stabilization, confirmation/expansion, professionali- ership, and the community climate, as well as resources related to veteran
zation; Edwards et al., 2000). A community's level of readiness has direct suicide prevention within the community. Example questions included
implications as to whether an intervention can be implemented (Edwards the following: “Using a scale from 1 to 10, how much of a concern is vet-
et al., 2000) and for understanding what initial intervention components eran suicide in [the community]… please explain; What are the primary
should entail. For example, higher levels of preintervention community obstacles to efforts addressing veteran suicide in [this community]? How
readiness are associated with stronger postimplementation community knowledgeable are [community] citizens about veteran suicide?” Com-
health impacts (Kostadinov et al., 2015). Thus, identifying factors that im- munity readiness interviews were audiorecorded and transcribed. Inter-
pede community readiness is essential for determining which initiatives views were subsequently scored by two or more reviewers, who met to
may be necessary prerequisites to facilitate the success of subsequent achieve consensus on their community readiness scores. All participants
interventional efforts (Donnermeyer et al., 1997; Edwards et al., provided verbal consent to participate in this project, which was approved
2000). Although a number of factors can impact community readiness by the local institutional review board.
(e.g., awareness that a problem exists, understanding of how to address
a problem), stigma has not been examined explicitly with respect to Qualitative Analysis
community readiness among rural veterans. An abductive approach, composed of both inductive and deduc-
Thus, knowledge regarding the role of stigma in community read- tive processes, was used to analyze interview transcripts for the pres-
iness for rural veteran suicide prevention programming is needed. The ence and manifestation of stigma. Analysis was deductive in that
overarching aim of this manuscript was to explore the role of stigma in transcripts were examined for mentions of stigma specifically, while
community readiness for the implementation of a community-based sui- also inductive because we did not have predetermined or a priori codes.
cide prevention program for rural veterans (i.e., TWV). Patterns and themes within the interviews were identified through thematic
analysis (Braun and Clarke, 2006). Two or more coders independently
METHODS coded each transcript, using descriptive and in vivo coding methods. De-
scriptive coding assigns labels to data to summarize in a word or short
Participants phrase the basic topic discussed, while in vivo coding uses words or short
Community leaders running a TWV demonstration program in a phrases from participants' own language as codes (Saldaña, 2016). The
rural community identified and recruited participants following the team met to achieve consensus regarding themes that emerged from the in-
guidelines of the Community Readiness for Community Change manual terviews. During consensus meetings, codes and categories were carefully
(Stanley, 2014). Community readiness interviews were conducted with examined, and overarching themes were identified. Results were then orga-
13 individuals in a US community who were identified by community nized around the broader themes that described stigma surrounding veteran
leaders as representing essential perspectives regarding veteran suicide pre- suicide in the community. The main themes that emerged are presented be-
vention within the community. These included individuals representing low, with individual quotes provided for additional context. Identifying in-
veterans service organizations, healthcare, public health, government, law formation has been removed.
enforcement, the judicial system, emergency response, media, religious
and spiritual leaders, and local businesses. This is consistent with recom- RESULTS
mendations for assessing community readiness (Stanley, 2014), which Overall, results revealed a low level of community readiness. Re-
suggest interviewing a broad range of individuals who have knowledge sults also indicated both direct and indirect mention of stigma. Overall,
of the community. there was a lack of awareness of the issue of veteran suicide and wide-
In terms of the community itself, data were obtained from multi- spread lack of knowledge surrounding resources and efforts to address
ple sources, including state- and county-level public health depart- veteran suicide within the community. The broad themes that emerged
ments, as well as the VA (e.g., National Center for Veterans Analysis were as follows: 1) lack of community awareness of veteran suicide;
and Statistics) to characterize the community. These data sources re- 2) lack of discussion related to suicide; and 3) stigma about suicide.
vealed that the community is highly rural, ethnically diverse, and situ- These are described below.
ated in a sparsely populated region characterized by persistent poverty
and poor health outcomes. Furthermore, veterans comprised a higher
Theme 1: Lack of Community Awareness of
proportion of the community's population compared with both the state
and national averages. In addition, the suicide rate within the commu- Veteran Suicide
nity exceeded the national suicide rate. To protect the identity of both Lack of Knowledge and Prioritization
participants and the community, further details are being withheld. Many participants described a general lack of awareness that sui-
cide among veterans was an issue in their community. Relatedly, com-
Procedures munity members described a lack of community awareness of local
Individuals suggested by community leaders as being knowledge- suicide prevention efforts for veterans. For example, one participant
able regarding the community were contacted by our team to invite them stated the following regarding suicide prevention efforts for veterans
to participate in the interview and to facilitate scheduling. The majority of within the community: “My guess is that most people just don't know
individuals identified participated, with the exception of one individual, that much. But I don't know that most people are very much aware…
who could not participate due to scheduling difficulties. All interviews possibly veterans are, veterans and their families….” When asked about
were conducted within the community by individuals on our team. community members' knowledge of veteran suicide, another participant
For this manuscript, we relied upon secondary data analysis of stated: “I don't think too many people would know or even have an
qualitative data collected during the TWV needs assessment phase. Spe- idea.” This individual described several other issues community mem-
cifically, community readiness interviews were conducted to assess the bers considered to be local concerns for veterans, but questioned the ex-
community's level of readiness (Stanley, 2014). Following guidelines tent to which the community prioritized suicide as a concern: “I don't
for conducting community readiness assessments, which recommend know if specifically suicide is really considered a concern or an issue.
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I think it's how do we help [veterans] integrate, get them a job, do the unless you know the family or you know because you have lived in
housing part. If someone comes back without an arm, how do you help [the community] a long time and you know what has happened, no
them with that, that kind of thing. I just don't know if suicide… I'm sure one else knows…like I said, word is not out that this is a problem that needs
it's there, but I don't know if that is the primary for most people.” to be fixed.” This individual further elaborated on the need for local efforts
focused on recognizing veteran suicide as an issue within the community:
Awareness Limited to Subsets of the Population “We need something here in [this community], but we need something that
Participants also suggested that community members generally is out there that puts it out in the forefront, not just something on the na-
would not be as supportive or knowledgeable about community efforts tional TV that is ‘oh this war veteran commits suicide…’ That is detached
to prevent veteran suicide unless they personally had been affected by from [the community]. That's nothing, but when [the community] knows
suicide and/or knew veterans or were veterans themselves. “I would there are people here that are suffering, that they need help and we have this
say, unless it has affected them, particularly in their family, they are group here, we can get them to…then it's personal and we gotta [sic] make
probably not aware of those services.” Another respondent suggested this veteran's problem personal to [the community].”
that this also applied to gatekeeper training (i.e., training nonspecialists
to recognize, respond to, and refer individuals at risk for suicide to ap- Theme 3: Stigma About Suicide
propriate care; Yonemoto et al., 2018): “Other times the people who are
attending [gatekeeper trainings] have had suicide affect them in one Preference Not Talk to About It
way or another—they either know somebody, a family member.” Sim- A few participants suggested that, rather than there being a lack
ilarly, another interviewee indicated that community members would of community awareness of veteran suicide, community members sim-
likely be more knowledgeable about veteran suicide and efforts to ad- ply preferred not to talk about suicide: “So there is awareness, but there
dress it within the community if they personally had family or friends is also the knowledge that we don't talk about it. So we may know about
who were veterans: “…people who have more veterans in their families that, that there are a lot of people that commit suicide, and veterans are
and in their immediate circle of friends, I would imagine would have a at higher risk, but…we don't talk about it…. It goes back to ‘we know
much higher level of awareness and therefore concern about it.” Results about it, we just don't want to talk about it.’” Others also made state-
indicated that personal knowledge or connection to veterans increased ments suggesting that stigma about suicide existed within their commu-
awareness and prioritization of this issue. nity and that it posed a barrier to discussing and preventing veteran
suicide. Participants' statements suggested that there was an overall
sense of discomfort within the community in talking about suicide,
Theme 2: Suicide Is Not Discussed such that people did not want to talk about suicide or were uncomfort-
Not Talked About Within the Community able doing so. One participant described suicide as “kind of a new
The general lack of awareness of veteran suicide within the word…it's been around. It's been a concern for a while or historically,
broader community seemed to relate to the lack of discussions taking but I think recently, I don't think it's been a whole lot.” For these partic-
place within the community about veteran suicide. “It's not something ipants, a community-wide preference to avoid the topic contributed to
that I hear people talk about very often in my particular circles.” An- lack of discourse and minimal local efforts to address veteran suicide.
other participant described: “It's not that people don't care, but at least
from my perspective, it's not anything I hear about.” An implication Fear
of community members not talking about veteran suicide was a lack Relatedly, fear of talking about suicide was described as a major
of recognition that veteran suicide was an important problem within reason that people within the community were not talking about veteran
the community, as described by another individual: “I don't think the av- suicide. “Suicide is one of those more… we're afraid to say suicide
erage citizen here would recognize [veteran suicide] as being a big [whispers]. You know, it's the ‘S’ word. And people are afraid. If I say
problem… because it's not put in the forefront…a lot of this stuff is ‘suicide,’ someone is going to kill themselves, you know? Or if we talk
put on the back burner and if you don't see it, you don't want to about it, it's going to bring that into people's minds, and if we just leave
acknowledge it.” it alone, they won't think about it.” Fear of talking about suicide was
identified as a major barrier to preventing veteran suicide in the com-
Rarely in the Local Media munity. When asked about barriers to implementing suicide prevention
In addition to not hearing community members talk about vet- programming in the community, one participant stated: “The fear. The
eran suicide, the majority of participants specifically noted that they people are afraid to, you know, suicide… ‘We shouldn't talk about sui-
were not reading or hearing through local media outlets about veteran cide.’ It's not something that people talk about, especially with veterans,
suicide within their community. “I don't see anything in the newspaper. and it's just the opposite. We should absolutely be talking with veterans
I don't see a lot. I almost have the impression that some veterans are about suicide all the time and making sure that they are supported and
aware. But I don't see it out there, like there's nothing. There's no flyers, that they have the resources that they need.” Another individual de-
there's nothing in the newspaper. There are small events here or there. scribed the pervasiveness of stigma within the community: “There's al-
But I'm not seeing it.” Another community stakeholder described the ways a stigma…there's a stigma around mental health or seeking care or
dearth of local media coverage on veteran suicide within the commu- being depressed or suicidal…so when we get away from having that
nity: “You hear things once in a while, but it's not a constant message.” conversation about stigma to saying it's a norm, I'd say we got there.
This was considered a major factor contributing to the lack of awareness But it's still there for sure.”
in the community about the issue of veteran suicide. “I am not hearing
about it from my standpoint. I am unaware there are veterans commit- Suicide as More Stigmatized Than Other Mental
ting suicide in [this community] or attempting to.” Health Conditions
Some participants acknowledged hearing about veteran suicide Another potential indication of the stigma associated with suicide
nationally, but described the limitations of only hearing about it on a na- within the community was that suicide was considered more stigmatizing
tional level: “There's a problem, but it's happening outside of [this com- than other mental health conditions. One interviewee suggested that com-
munity]…we don't know if we have any here in [town], but I haven't munity members would be more open to seek treatment for depression
heard of anybody…we hear about it on TV from happening in other than suicide. “I think depression is one of those things where, I don't
states or maybe in the big cities, but in these small rural communities, know if it's more, I want to say it's more common…but there is more
© 2019 Wolters Kluwer Health, Inc. All rights reserved. www.jonmd.com 373
awareness maybe to it right now. There is more openness to seek help for increase knowledge regarding suicide among individuals who have not
depression versus suicide.” had exposure to suicide (Batterham et al., 2013).
Furthermore, there was a culture of not talking about suicide,
Preference to Seek Help Through Family and Friends even when there was awareness of the issue. Community members
Rather Than Mental Health Professionals feared that speaking of suicide increased its acceptability and could lead
Relatedly, participants conveyed the belief that veterans in their to more suicides, despite evidence that asking and talking about suicide
community would be reluctant to seek help from mental health profes- may actually prevent suicidal self-directed violence (Dazzi et al., 2014).
sionals if they became suicidal, believing that they would be more likely This finding is consistent with the literature at large, which suggests
to seek care for other mental health concerns. Participants stated that that, although mental health stigma has steadily decreased, stigma sur-
family and friends would be the first people that veterans seeking help rounding suicide has remained relatively stable (Sudak et al., 2008), in-
for suicidal thoughts would likely turn to within their community. cluding among rural veterans (Stotzer et al., 2011). Moreover, it seems
“Family…because I think historically when people have had trou- that help-seeking for mental health concerns (e.g., depression) was per-
ble…their first reaction is to go to family.” Similarly, another individual ceived to be more likely and acceptable than seeking help when suicidal.
speculated: “Maybe they would keep [suicide] more internal and talk to This is also consistent with prior research suggesting that suicide-related
their family or friends…. They rely a lot on their family and friends.” stigma may be more severe and persistent than mental health-related
Alternately, one participant stated: “You'd think they'd turn to family stigma (Sheehan et al., 2017; Sudak et al., 2008). As stigma can deter
and sometimes they just don't ‘cause they are afraid to show that weak- help-seeking (Corrigan, 2004) and is associated with increased rates of
ness. Some will turn to family, some will turn to your VA…most won't suicide (Schomerus et al., 2015), determining the most effective means
turn to anybody.” Consequently, informal sources of support were gen- of decreasing suicide-related stigma in rural communities is essential.
erally considered the first lines of support that veterans in the commu- Reducing stigma through public awareness and education, as well
nity would reach out to if suicidal and seeking help. This seemed to be as gatekeeper training, may be important suicide prevention strategies in
due to general help-seeking norms and suicide-related stigma within rural communities (Mann et al., 2005). Multilevel suicide prevention ap-
the community. proaches that incorporate destigmatization have demonstrated effective-
ness in decreasing stigma and increasing mental health help-seeking
Privacy behavior (Knox et al., 2003, 2010), although initiatives specific to rural
veterans warrant further evaluation. Mass media campaigns can reduce
The perceived reluctance to seek professional help when suicidal stigma regarding mental health and treatment-seeking, while increa-
may have also derived from a general wariness of mental health care, sing knowledge regarding seeking help (Clement et al., 2013;
due to concerns about privacy and mistrust. In this way, the preference Niederkrotenthaler et al., 2014; Wakefield et al., 2010). In addi-
to seek help from family and friends, combined with the emphasis on tion, stigma can be further reduced when individuals perceive there to
privacy, seemed to be an indication of stigma. “Trying to get people be more relevance or similarity with the individuals depicted (Caputo
to want to discuss their issues with someone they don't know… I would and Rouner, 2011). Thus, given the reluctance and fear of talking about
characterize it as a deep-seated desire for privacy.” This participant elab- suicide within this rural community, mass media could help to combat
orated further regarding “the privacy concerns of the veterans. It's rare suicide-specific stigma, address erroneous stereotypes and assumptions,
for veterans to identify themselves as veterans in any context. I don't and improve knowledge within communities. Destigmatization efforts
think they see much advantage to it…. You may know who is a veteran, through mass media could be further reinforced at an individual-level
but you may not know whether or not they are having any repercussions by healthcare providers, who could provide education regarding suicide
as a result.” The closeness of the small rural community seemed to exac- and ways to prevent it. Stigma can also be reduced by increasing contact
erbate the desire for privacy: “Close-knit family community, and that has with stigmatized individuals (Corrigan and Kosyluk, 2013) and utilizing
its strength and weaknesses. The weaknesses being that everybody strategies to deflect biases (Schmader et al., 2013). These multipronged
knows everything about everything and everyone.” Another participant efforts could help to reduce stigma, increase knowledge of suicide risk,
indicated that, “Also, it's really hard building trust out there because there and ultimately increase help-seeking (Niederkrotenthaler et al., 2014).
is a little paranoia …they are really leery of people going out there.” There were also concerns regarding privacy, which centered
around the belief that individuals would lose privacy and that others
would find out about their problems if they were to seek professional
DISCUSSION mental health care when suicidal. Such concerns may be exacerbated
Qualitative analysis of community readiness interviews yielded a in small rural communities where maintaining privacy and confidential-
number of themes indicating significant barriers to implementing com- ity can prove more difficult (e.g., being recognized or seen at a mental
munity-based suicide prevention programming for rural veterans. In health provider's office; Stotzer et al., 2011). One strategy to mitigate
particular, lack of knowledge and awareness, combined with stigma, this concern is to emphasize the importance of developing trust when
emerged through interviews with community members. In some cases, discussing suicide, particularly with veterans (Ganzini et al., 2013).
suicide was not recognized as a local issue warranting concern within For example, healthcare providers could ensure that their patients un-
the community, which may relate to underestimation in the prevalence derstand that disclosure of suicidal ideation will be held confidential
of mental health concerns common in rural communities (Bartlett and will not in itself necessitate hospitalization, except in imminently
et al., 2006). Conversely, suicide was minimized in comparison to other life-threatening circumstances.
problems. Although many participants readily stated the community's Such an approach may be particularly pragmatic for addressing
interest in implementing a suicide prevention program for veterans, further underlying, erroneous beliefs regarding mental health treatment that are
questioning revealed significant barriers to community readiness. These re- common among rural and veteran populations (Stark et al., 2011; Vogt,
sults extend prior research regarding stigma and suicide (Schomerus et al., 2011). Erroneous perceptions of the consequences of disclosing suicidal
2015) by suggesting that stigma may play a key role in rural communities' thoughts and behaviors may serve as barriers to suicide prevention in the
level of readiness to engage in suicide prevention programming. community. For example, as problems are kept private and isolated from
Given the lack of knowledge and awareness regarding suicide general awareness, individuals and the system itself may only acknowl-
and suicide prevention efforts in the community, the recommended edge and recognize veteran suicide as a national issue. This may dampen
course of action is increasing awareness of the issue of veteran suicide a community's readiness to address veteran suicide, as the problem may
within the broader community. Suicide literacy campaigns may help to seem to be less prominent or locally widespread.
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