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Disability & Rehabilitation, 2012; 34(18): 1575–1584

© 2012 Informa UK, Ltd.


ISSN 0963-8288 print/ISSN 1464-5165 online
DOI: 10.3109/09638288.2011.650315

REHABILITATION IN PRACTICE

Community involvement, planning and coping skills: pilot outcomes of a


recreational-therapy intervention for adults with schizophrenia

Gretchen Snethen1, Bryan P. McCormick2 & Marieke Van Puymbroeck2


1
Department of Rehabilitation Sciences, Temple University, Philadelphia, PA, USA and 2Department of Recreation,
Park and Tourism Studies, Indiana University, Bloomington, IN, USA
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Purpose: The Independence through Community Access and Implications for Rehabilitation
Navigation (I-CAN) intervention was developed to increase
community participation in adults with schizophrenia spectrum • The Independence through Community Access and
disorders (SSD) through identification of interest-based Navigation intervention uses community-based rec-
recreation activities and supported participation. Method: reation to promote community participation through
Ten individuals consented to participate in a 10-week pilot the development of competence, autonomy and
intervention. Eight individuals participated in the intervention, relatedness.
• The promotion of independent community-based
For personal use only.

during which time they worked with a recreational therapist


to identify interest-based recreation activities, develop recreation participation through supported participa-
participation goals and coparticipate with the recreational tion may increase planning abilities, coping skills and
therapist. At the end of the intervention, seven participants community participation.
were involved in a semistructured interview to understand • An interactive leadership style, where control is bal-
their perceptions of the intervention, including its outcomes anced between therapist and client, may help facilitate
and effectiveness. Therapists’ notes and transcripts from the perceived competence and autonomy.
semistructured interviews were used to understand clients’
perception of the intervention. Results: Thematic analyses SSD experience chronic isolation [3–5], elevated morbidity [6],
of seven exit interviews suggested the primary perceived imprisonment [7], poverty [7–9] and homelessness [7] rates
outcomes of the intervention included: increased community when compared to the general population. Defining character-
involvement; development of planning skills; and the istics of SSD include positive symptoms such as hallucinations,
development of coping skills. These were facilitated by the intrusive thoughts and delusions; negative symptoms such as
therapeutic relationship between the client and therapist. lacking the ability to experience pleasure, lacking the motiva-
Conclusions: This project provides preliminary support for the tion to initiate behavior and lacking the ability to empathize;
I-CAN as a participant-centered method for individuals with and cognitive dysfunctions including disorganized thought,
SSD to develop skills in the community. Implications for practice inability to plan, and memory deficits [10,11]. Additionally,
and future research are presented. individuals with SSD have functional impairments that affect
such things as planning and attending to multiple tasks; pro-
Keywords: Community participation, recovery, recreational ducing and receiving verbal and nonverbal communication;
therapy, schizophrenia spectrum disorders forming and maintaining relationships; self-care; and accessing
community services among others [4,12–15].
Mental illnesses such as SSD are still highly stigmatized
Introduction within the general population and both the real experiences
Schizophrenia spectrum disorders (SSD) are a diagnostic group of stigma and perceived stigma often prevent community
associated with severe and persistent mental illness affecting participation [16,17]. In summarizing the negative effects of
approximately 1% of the general population [1,2]. People with stigma on public health, Link and Phelan [18] suggested that

Correspondence: Gretchen Snethen, PhD, Department of Rehabilitation Sciences, Temple University, 1700 N. Broad, Philadelphia, PA, 19122 USA.
Tel: 215-204-2748. E-mail: gsnethen@temple.edu
(Accepted December 2011)

1575
1576 G. Snethen et al.
internalized stigma can cause individuals with SSD to “act impact, the implementation of interventions targeting func-
less confidently and more defensively with others,” (p. 528) tional improvements should occur in the community [34]. The
ultimately leading to avoidance and isolation. Independence through Community Access and Navigation
In order to address functional impairments, mental-health (I-CAN) intervention [35] is theoretically grounded in self-
professionals have moved toward a recovery model in which determination theory (SDT) which posits the meeting of basic
recovery is viewed as a process and the client is an active par- psychological needs of autonomy, competence and related-
ticipant in his or her treatment [19–22]. Interventions follow- ness is fundamental for motivation and well-being [36,37].
ing this framework often target activities of daily living [17] Autonomy involves people’s abilities to choose and endorse
and employment [17]; however, involvement in recreation the activities in which they are involved [38]. Mancini [20]
and leisure activities is a less-studied treatment area that has reported that autonomy in treatment and participation in
the opportunity to address both social and functional impair- meaningful activities is core to the recovery process.To pro-
ments, while increasing life satisfaction [17,23,24]. mote autonomy, clients were actively involved in decision
making during each stage of the intervention, suggesting an
interactive style between therapist and client, which has been
Leisure and mental health treatment
shown to be effective within this population [27]. Competence
Recreation and leisure activities as treatment areas for SSD refers to an individual’s mastery within given situations and is
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are understudied areas that may have positive benefits with predictive of community participation [2]. The coparticipa-
this population [23]. Recently, Iwasaki, Coyle and Shank [24] tion stage allowed for participants to experience the activity
have proposed meaningful leisure participation as a facilita- in the actual environment with desired support in order to
tor in holistic recovery in individuals with severe mental ill- develop competence for independent participation. Finally,
ness, citing benefits in (1) health (i.e. physical and mental), relatedness involves an individual’s need to be connected to
(2) identity formation, (3) coping, (4) social connectedness, others and includes one’s need to be an equal contributor to
(5) human development and (6) positive emotions. Similarly, relationships. That is, individuals need to receive the benefits
researchers purport the benefits of leisure participation for of social interaction, but also believe their contribution to the
individuals with SSD in improving community functioning, relationship is valuable. Individuals with SSD are often isolated
gaining and practicing social skills, increasing physical skills, [4,5], and Sorgaard et al. [30] suggest leisure activities provide
accomplishing goals and developing competencies [25,26]. individuals with access to others. More specifically, by target-
For personal use only.

Furthermore, individuals with SSD who have high motiva- ing participation in community-based recreational activities
tion to participate in leisure activities are also further in the clients were given access to individuals with common interest,
recovery process [26]. Another study determined that leisure with whom they could form potential relationships. Thus, by
participation had positive impacts on self-efficacy and per- addressing the basic psychological needs of competence, relat-
ceived control [27]. edness and autonomy, the opportunity to promote sustained
Recreation and leisure activities have inherent social quali- improvements in overall functioning exists [38–40].
ties that may provide opportunities for the development of The I-CAN intervention is a recreational-therapy (RT)
social networks [28,29]. Sorgaardand et al. [30] found high intervention modeled after the individualized placement and
social integration and satisfaction with social attachments in support (IPS) model [41]. Central tenets derived from the IPS
adults with SSD was positively correlated with satisfaction model were concepts of client preference, rapid placement,
with leisure activities. Individuals with larger nonkin social providing supports and skill training in vivo and time-unlim-
networks are more likely to have better long-term outcomes ited support [42]. The IPS model was developed in supported
than individuals with social networks comprising primarily employment interventions [42], but has also been used in
family members [31]. This suggests that friendship networks supported education interventions [43]. For this intervention,
may provide individuals with resources familial networks do the IPS model is used to support community-based recreation
not. Furthermore, Evret et al. [32] found social integration participation, matching clients with interest-based activities
to be positively correlated with improved overall function- to promote autonomy and providing onsite training through
ing. Conversely, those who participate in fewer social leisure coparticipation.
activities also experience greater social isolation [4]. This The conceptualization of functioning within the I-CAN
suggests individuals with more diverse social networks have intervention is derived from the World Health Organization’s
higher levels of integration. Social integration of individuals International Classification of Functioning, Disability, and
with SSD is also associated with earlier treatment of symp- Health (ICF) [44]. The ICF provides a model of the interrela-
toms. In addition, among adults with SSD, social interaction tionship of functioning and also provides the background for
is more likely to occur outside the home [33], which provides the targeted areas of rehabilitation and increased participation
support for community-based interventions. [45,46]. The ICF is not population-specific, but rather classi-
fies areas of functioning that are applicable to all individuals.
It is beneficial for rehabilitation professionals to use the ICF
Intervention framework and implementation
as it provides a common language for practitioners to use to
In 2009, the Schizophrenia Patient Outcomes Research Team communicate functional impairments and improvements to
recommended that in order for interventions to have a lasting other professionals [47]. For the purposes of this study, the

Disability & Rehabilitation


Outcomes from the I-CAN intervention 1577
researchers focused on the activities and participation section participation. Clients who expressed interest in the study and
of the ICF, specifically, the functional assessment used for met inclusion requirements met with the lead author who
the I-CAN intervention was developed using activity codes completed the consent and enrollment process. The univer-
from the major life areas (d8) and community, social and civic sity institutional review board and the independent CMHC
life (d9) chapters of the activities and participation section. institutional review approved all study methods.
Furthermore, the activities assessed were specific to the com-
munity in which the intervention took place. Data collection
Data were collected in May–July 2010 in a small city in the
Midwestern United States. The project employed a rolling
Method
enrollment with each participant engaging in the project for
Study design and intervention 10 weeks. Both qualitative and quantitative data were used
The intervention was facilitated by two master’s-level trained to address the research questions of the pilot intervention.
recreational therapists. The lead author, who was involved Individuals participated in a structured interview to confirm
with the initial development of the intervention, was one of diagnosis [52], an initial semistructured interview, nine modi-
the implementing recreational therapists and participated fied day-reconstruction methods (DRMs) [53] interviews and
in training the other recreational therapist. Like the IPS, a final exit interview in combination with the I-CAN inter-
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the I-CAN intervention was designed to be time unlimited; vention. The initial semistructured interview and the DRM
however, due to feasibility constraints, these outcomes of pilot interviews provided data to understand the daily community
intervention took place over a 9-week period with the entire participation that occurred. The DRM interviews occurred
data-collection period occurring over 10 weeks. The recre- three times each during week 1, 4 and 10 of the study and
ational therapists met with each client for approximately 30 required participants to identify types of activity and moti-
hours (excluding data-collection times) over the course of the vation for participation. Table I presents the topical areas
9-week pilot intervention. addressed by the exit interview. The initial and exit semistruc-
The purpose of this study was to pilot test and evaluate the tured interviews lasted 30–45 minutes per interview.
perceived value and effectiveness of the I-CAN intervention Finally, the recreational therapists’ clinical notes were
in adults with SSD receiving assertive community-treatment included as data to provide information about the progress
(ACT) services. Information about the development of the of each individual client. These progress notes included
For personal use only.

intervention and the protocol are described in detail elsewhere information from the initial assessment and throughout the
[35,48]. This project focused on the following key questions: intervention, and identified participants’ initial goals, prog-
(1) What are the perceived outcomes of the intervention? (2) ress and continuing goals. Summaries were provided to the
Are there facilitating or limiting variables that contribute to client’s primary case manager upon completion of the pilot
the outcomes? intervention.

Participants
Analyses
All participants in this study received ACT services from a
local community mental health center (CMHC). ACT is a DRM data were coded by activity location (i.e. home, commu-
best-practice model that serves individuals with severe men- nity, CMHC). These data were summed across participants to
tal illness who experience significant functional impairment. capture an idea of the number of activities participants iden-
ACT services include activities of daily living, vocational tified during the week prior to the intervention, the fourth
assistance, counseling, medication support, supported hous- week of the pilot intervention and the final week of the pilot
ing, financial assistance, social skills and problem-solving intervention. Additionally, data regarding the presence of oth-
skills [49]. While one of the goals of ACT is normalized com- ers was summed across locations, in order to gain an under-
munity functioning, services rarely target essential elements standing of where people with SSD are more likely to be in
of community integration (i.e. social interaction and partici- contact with friends.
pation in meaningful activities) and have demonstrated lim- Using an open coding system to analyze data, the first
ited impact on social functioning [50,51]. Participants were author conducted a thematic analysis of the clients’ perceived
recruited via ACT-team case managers based on inclusion value and outcomes of the intervention and factors influenc-
criteria of (1) diagnosis of SSD, (2) 18 years of age or older and ing outcomes. All analyses utilized the modified version of
(3) no communicable conditions that prevented community the constant comparison method presented by Boeije [54],

Table I. Exit interview topical outline.


Exit interview
Intervention description Intervention perception
Could you describe your involvement in the What are your thoughts about the intervention? About the assessment?
intervention?
What are the things that you did? Would you do this again? Why/Why not?
Why were those things chosen? What do you think the purpose of this intervention was? Is this important to you?
Should this type of program be available to others receiving mental-health services? Why/Why not?

© 2012 Informa UK, Ltd.


1578 G. Snethen et al.
in which initial codes are identified and then compiled into brief description of the participants*. Of the eight participants,
broader categories and eventually themes. Data were analyzed seven had complete data; however, one participant completed
within the individual and then across individuals. The initial only 6 weeks of the intervention owing to incarceration.
interview, conducted during the first week of DRM interviews,
and the initial goals set by participants were analyzed to gain Daily participation
an understanding of the participants’ day-to-day life prior to Throughout the data-collection period, participants identi-
the intervention. The exit interviews were initially coded to fied involvement in few activity episodes during the DRM-
identify preliminary themes to ensure data analysis reflected collection periods. The average number of activities based on
participant perceptions, and then compared to the clinician all end of day DRM reports were M = 3.8 (standard deviation
notes and DRM interviews that directly related to interven- (sd) = 0.95), M = 4.7 (sd = 0.57) and M = 4.3 (sd = 1.1) for
tion procedures to clarify and further expand developing DRM collection during weeks 1, 4 and 10, respectively. Table III
themes. The multi-interview format allowed the researchers presents the location of activity participation for the individuals
to look for perceived changes within the individual and across in this study. In relation to community-based activities, week
the study group. The majority of the data for this article stems 4, which was during the coparticipation phase of the interven-
from the exit interviews and the clinical notes in which par- tion, had the highest number of activities that took place within
ticipants had the opportunity to evaluate the intervention.
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Member checks were conducted after the completion of Table III. Numbera of identified activities by participant.
the final interview to ensure description of daily participation Community Home CMHC
and intended goals of the intervention were accurate; partici- Week 1 4b 10 1 4 10 1 4 10
pants did not identify any issues with the presentation of this Arnie 3 4 4 8 10 6 1 0 2
section of the data. Additionally, a peer reviewer checked the Jerome 3 7 6 9 8 8 2 2 4
coding scheme for credibility. Tracy 4 4 4 11 9 7 0 0 0
Sean 2 5 – 5 2 – – – –
Results Art 1 4 2 9 11 11 1 2 1
Kendra 0 3 0 6 7 11 0 1 0
Participants Mary 2 3 3 7 9 6 1 1 1
A total of 10 ACT consumers with SSD enrolled in this proj-
For personal use only.

Benc 2 4 1 10 9 4 0 0 0
ect; however, two dropped out before the intervention began, Total 17 34 20 65 65 53 5 6 8
one citing health reasons and the other refusing requests CMHC, community mental health center.
aNumber does not reflect duration.
for additional contacts. The remaining five males and three bCoparticipation occurred here.

females ranged from 24–57 years of age. Table II presents a cBen only completed 2 days of week 10 DRM.

Table II. Participant description.


Participanta Sex Ethnicity Age Characteristics
Jerome M African American 30 Jerome had a high frequency experience of intrusive thoughts and delusions of grandeur that often
made community participation difficult. He was eager to learn new things and had a high desire to
meet new people. Jerome had no observable negative symptoms. He admitted to being stigmatized
within the community. Jerome had a history of substance abuse.
Kendra F White 43 Kendra was not currently experiencing positive symptoms; however, she exhibited severe
impairments in initiating behavior and planning, and spent most days in bed or watching television.
She also centered her life around men and often felt used for sex. Kendra had a history of alcohol
abuse.
Mary F White 46 Mary experienced positive symptoms of paranoia. She exhibited communication impairments
such as: difficulty processing information and low verbal-communication skills. She self-identified
having depression and a learning disability. Mary exhibited negative symptoms of flattened affect,
anhedonia and amotivation. She also experienced stigma within the community. Mary had a history
of substance abuse.
Arnie M White 54 Arnie frequently experienced intrusive thoughts that negatively affected his confidence in
performing activities. He exhibited flattened affect, amotivation, difficulty processing information
and experienced severe anxiety regarding new situations.
Tracy F White 27 Tracy frequently experienced positive symptoms (hearing voices) and exhibited flattened affect,
impairments in initiating behavior and planning and anxiety about scheduling activities.
Sean M White 25 Sean frequently experienced positive symptoms (hearing voices) and disorganized thought. He
often had difficulty processing information and verbalizing his thoughts. Sean also had an active
substance-abuse disorder.
Art M White 51 Art experienced delusions he presented as reality. Art had severe negative symptoms and cognitive
dysfunction, resulting in severe impairments in communication, including written and verbal. Art
also had severe impairments in planning and initiating behavior, spending most of his days in bed.
Ben M White 43 Ben experienced positive symptoms of paranoia, hearing voices and delusions. He had difficulty
processing information and verbalizing thought. Ben also had severe impairments in planning and
initiating behavior, and spent most of his time in his apartment. Ben also had an active substance-
abuse disorder.
aPseudonyms
are used in place of the participants’ real names.

Disability & Rehabilitation


Outcomes from the I-CAN intervention 1579

Table IV. Numbera activity instances by location and presence of others.


Alone Friends Providers
Week 1 4 10 Total 1 4 10 Total 1 4 10 Total
Home 43 47 33 123 6 – – 6 5 6 4 15
Community 5 4 5 14 5 15 7 27 1 8 3 12
CMHC – – – – 2 1 4 7 3 2 5 10
Total 48 52 38 137 13 16 11 40 9 16 12 37
CMHC, community mental-health center.
a
Does not indicate the number of individuals present.

the community. It is important to note, these activities neither Table V. Code count by participant.
reflect the duration of different activities nor the specific type of Perceived outcomes Perceived facilitator
activity, only the number and location of activities. Community Therapist/client
During half of the activities listed in the DRM, partici- Participant involvement Planning Coping interaction
pants identified being alone. Community-based activities had Arnie 5 3 4 9
a higher occurrence of participation with friends than any Jerome 8 1 6 1
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other location and home-based activities had a higher occur- Tracy 4 2 4 3


rence of solitary participation. Like community participation, Art 6 0 3 4
activity involvement with friends occurred most frequently Kendra 4 5 1 1
during week 4. Table IV presents a summary of the presence Mary 7 1 2 2
of others by location. Ben 2 2 1 4
Total 36 14 21 24
Perceived outcomes
Participants who completed the exit interview identified three
having activities to do and expanded upon this with the fol-
primary outcomes from the intervention: (1) community
lowing statement:
involvement, (2) planning and (3) coping. These themes were
initially coded from the exit interviews. Table V represents the
For personal use only.

Activities means that you’re not locked up, you know? When
number of times each theme was coded within each partici- the door is out there and you can’t get out, you can’t do nothing.
pant during the exit interview. This table is representative of That’s a reminder that I can get out and do stuff, not locked behind
both the perceived-outcomes themes and perceived facilita- the door.
tors discussed later. It is important to note, these themes were
also further developed through the information from the Prior to the intervention, Jerome’s definition of com-
clinical notes and the DRM interviews. munity was freedom from an inpatient facility and jail; his
All seven individuals who participated in the exit interview description of activities suggests an increased perception in
identified positive outcomes from their participation. In an freedom and greater connection to the community. Tracy,
overarching statement, Jerome identified the following: who was the only participant with her own form of trans-
portation, began to access her community more regularly
I think [the intervention] was very meaningful. Because you’ve for activities other than shopping. By the end of the inter-
shown me that there’s things out there I can do that, if I just try vention, Tracy was going to the pool at least once per week,
certain things, I never know, I’ll probably enjoy them. You showed
me there’s things to do in the community other than just things I’ve
had made plans to go to a free knitting class at the library
been doing…Just find that having somebody to talk to, you know? with her sister and was leading her neighbors in simple yoga
For some things, I got off my chest, you know, that was on my chest techniques learned in a local yoga class in the courtyard of
for a long time and there was nothing I felt like I was able to do their apartment.
about it, you know? I got it off my chest and it made me feel better, The only initial goal Arnie was able to identify was riding
you know? I had fun these past weeks, you know?+
the bus, which, by the end of the intervention, he was able
to do independently. During his exit interview, Arnie also
Perceived outcomes are presented in the following catego-
identified interest in learning to participate in other commu-
ries: community involvement, planning and coping skills.
nity-based activities (i.e. learning to use the computer at the
apartment commons and walking).
Community involvement Finally, even Ben and Kendra, who despite their limited
Based on the participant exit interviews and the therapists’ contact with the recreational therapist because of sleeping
notes, all participants increased their level of community par- through or otherwise missing appointments, believed they
ticipation. At the start of the intervention, Jerome and Tracy increased their participation in the community. Kendra,
were the most integrated into their community, accessing it who could only identify sleeping as the activity she partici-
both for goods and services as well as for interest-based activi- pated in prior to the intervention, identified she went to the
ties. However, even these individuals believed they increased library and “out to get tea” as a direct result of the interven-
community-participation levels. When asked what if he per- tion. More importantly, she identified both an increased
ceived benefits from the intervention, Jerome initially stated desire to participate in the community and the importance

© 2012 Informa UK, Ltd.


1580 G. Snethen et al.
of community participation. Stating, “just talking about the intervention, Mary was able to list activities she could do
my behavior and what I do and what I don’t do. Making both at home and in the community when she was feeling
me realize the things I need to do more of. Regardless of stressed or overwhelmed. This was important for her, as she
whether I sleep one night or not, I need to get out and do had visited the emergency room twice in a 2-week period for
things.” This desire to get out and do things was echoed by psychiatric services, without consideration of other options.
Ben in that he believed it was an avenue to meet others, By the end of the intervention, she had identified the impor-
“Oh, it’s [socializing] so important. It’ll get my mind back in tance of finding activities she could do that helped her feel
order, and I’ll find things to do, different friends, and even- better when feeling depressed.
tually get back into some kind of work hopefully, or study. I When discussing the activities she and the recreational
don’t want to just be lazy.” therapist chose to participate in, Tracy identified the per-
ceived participation benefits, “And they’re helpful. Like yoga is
Planning good for your body. And the pool is good to be in the sun for
From the assessment that occurred at the beginning of the Vitamin D, or whatever…” Similarly, when asked why com-
intervention all participants exhibited functional deficits in munity participation was important to her, Kendra stated, “It’s
the ability to plan and organize their days. Ben and Sean just healthy for you physically and mentally.”
both identified a lack of daily structure and an inability to
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independently structure daily routines. Ben stated, “I’ve Mediating factors


been taking it as it comes, but I’ve been wanting to get a Based on the participant exit interviews, it was found that
set routine,” while Sean stated, “[I’d like] more structured two factors related to the intervention or the study design
activities.” had an impact on the intervention outcomes. The first,
By the end of the intervention, Jerome and Tracy were able therapist/client interaction was a facilitator of outcomes;
to set weekly participation goals. Jerome identified exercising the second, the limiting factors related to the pilot study
5 days/week as one of his weekly goals. While Tracy still had design.
difficulty following through with daily plans, she made prog-
ress in setting weekly goals. Therapist/client interaction
A contributing factor to the intervention outcomes was the
I just do the best I can do but I still don’t know. I was hesitant therapeutic relationship that developed and the coparticipa-
For personal use only.

about making plans because I don’t know [how] I’m going to feel. tion that occurred between the recreational therapist and the
And then like with the yoga and doing it on my own, I could[n’t]
do it on the days that I was laying in bed on the same day I said I clients. All participants identified this theme (see Table V).
was going to do it. But I was able to do it on a day that I felt half This relationship appears to be qualitatively different from
way decent. the relationships clients described with their other mental-
health professionals. Jerome referred to the recreational
At the intervention completion, Ben still identified the therapist as his “therapist sister” identifying that she helped
need to develop his abilities to make and follow through him with his day-to-day well-being. During the assess-
with plans. Ben felt the most structure he experienced was ment, Art identified that he did not enjoy talking to people
in relation to the intervention. While Arnie’s days were because of his speech impairment. When asked if he still felt
structured around activities of daily living, he could not use that way, Art clarified that he still does not feel comfortable
the bus independently prior to the start of the intervention. talking with others, but that he felt comfortable talking to
When asked about understanding the bus schedule, Arnie the recreational therapists involved in the study. Ben felt his
stated, “At the very beginning, there was anxiety big time… recreational therapist motivated him more so than his other
It’s over with now.” Through participation in the interven- mental-health professional.
tion, Arnie was able to overcome his anxiety about the bus
schedule and learn to use the appropriate bus for different Somehow [the recreational therapist] perk[s] me up and make[s]
appointments, “just by you writing down things and stuff… me want to do more things for myself... I think [she was] concerned
about my mental health, and my physical health, and my future.
I need to write down things myself, too. It all works hand How so? I can tell by the way [she] treat[s] me. I think [the recre-
in hand.” ational therapist] has shown me more concern than most types all
the years I’ve been here.
Coping
During the initial interview and the intervention assess- In talking about the therapist/client interaction, five of the
ment, participants identified stress and anxiety as a barrier participants discussed the frequency with which the recre-
to participation, and through participation in the interven- ational therapist encouraged autonomous behavior. The client
tion, reported developing coping skills to manage stress identified the activities focused on within the intervention
and anxiety. Jerome, who often had intrusive thoughts that during the initial assessment; however, these five participants
made him feel depressed,was able to identify an activity to independently discussed having the therapist encourage them
decrease stress and feel better about himself, “I learned I can to make autonomous decisions.
go walk when I’m stressed out. Hop on the bus and go out The presence of the recreational therapist during the copar-
to the trail and go down the trail.” Similarly, at the end of ticipation portion of the intervention was also valued and

Disability & Rehabilitation


Outcomes from the I-CAN intervention 1581
contributed to the intervention outcomes. Arnie summarized Discussion and implications
his experience with learning the bus route in the following
vignette: The results of this study provide provisional support for the
use of the I-CAN intervention in a community mental-health
Then, as days go on and weeks go on, we get on the bus and stuff, setting with adults with SSD, particularly with regard to com-
that means that I was more comfortable with you there with me, munity involvement, planning and coping skills. Additionally,
knowing that where to go and where not to. You’ve been a big help the importance of the interaction between the recreational
to me on the bus route. Now that you’re leaving, I stood there on therapist and participant is discussed in relation to facilitat-
my own on my bus route on my own, what you wrote down, what I
wrote down, too…
ing outcomes. While the results of this pilot study are limited
to the individuals who participated, the consistent outcomes
The involvement of the recreational therapist was also with participants are promising. Additionally, the identified
beneficial during new tasks that required interaction with satisfaction and desire to continue participation is impor-
community members. Sean experienced social anxiety when tant when considering Mancini’s [20] recommendations for
interacting with community-service providers, and admitted autonomy in treatment and involvement in meaningful activi-
to running away after asking for a job application. However, ties as essential to implementing interventions consistent with
during the coparticipation, Sean was able to ask the art the mental-health recovery model. While one of the overarch-
ing aims of this intervention was to increase social interaction
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museum curator questions as well as ask for a scholarship


application from a local community gym. in adults with SSD, the time frame of the intervention did not
Coparticipation was also seen as beneficial for developing allow for maintained social interaction. However, social inter-
confidence in the actual setting. The following excerpt from action during the coparticipation section and community
Tracy’s exit interview not only identified the importance of participation increased during the intervention. Yilmaz et al.
coparticipation for herself, but she also generalized it to the [33] found that individuals with SSD who had access to recre-
broader purpose of the intervention. ational activities within the community also identified having
larger friend networks, suggesting that participation in the
intervention has the potential to increase social interaction.
When you’re by yourself. I know that I was. When I was by–– I
was by myself a lot for awhile. Going to places, whether it be the It is important to note, the average number of activity
hospital or to the store, whatever. And I was scared at first. You episodes identified during the present DRM was consider-
For personal use only.

know you just have all this. You’re just scared. You know some- ably less than those in typical DRM studies, which suggest an
thing. You’re suffering on the inside. And you got to try to make average of 15 activity episodes per day [53]. This speaks to
everybody else think you’re okay… But I think it helps having
the limited variety in activity involvement of the participants
somebody there so that if you like kind of go there. Just like if you
got a kid and you took them somewhere, and then they were able in this study. It is also important to note, the greatest amount
to learn because they got adults or whatever to go on their own.… of community participation occurred during the middle of
And then they were able to learn that that’s the same with mental the intervention, specifically when the recreational therapist
illness. If you go a couple of times with someone, and, then you’ll coparticipated with the client. Similarly, this is when partici-
feel better doing it on your own.
pants identified more frequent interaction with others.
In relation to the SDT constructs, the I-CAN was suc-
This also speaks to the importance of developing skills in cessful in increasing autonomy and competence. While
the community as opposed to strictly in a controlled envi- autonomy may appear to be an easier outcome, it was not
ronment. Identifying the skill in one setting did not always something that participants independently integrated into
transfer to successful participation. Amotivation often the intervention. The RT worked with the client to ini-
made it difficult for individuals to complete tasks on their tially identify interest-based activities; beyond that, the
own. For example, Ben, who had the Young Men’s Christian RT encouraged independent decisions and reinforced par-
Association application prior to the intervention, admit- ticipation based on self-interest, rather than participation
ted he would not have turned the application in without to please the therapist. Given the functional impairments
the support of his therapist. The presence of the therapist and cognitive deficits within this population [12,14,55,56],
gave what Arnie termed “moral support” so the participant developing competence took repetition of the activity.
could develop the skills to eventually complete the activities The coparticipation phase provided the opportunity for
independently. the therapist to provide immediate feedback and encour-
Finally, individuals in transition, particularly transition age participation. Participants who achieved some level
that was unresolved (i.e. eviction, incarceration) had difficulty of independent participation received reinforcement from
focusing on the goals they developed with their recreational the therapist through continued communication and were
therapist. During intervention sessions, Ben was fixated on able to problem-solve concerns for future participation. As
looking for an apartment, and needed an intermittent goals- discussed earlier, the length of the I-CAN pilot interven-
clarification session to explain the role of the recreational tion was not long enough to increase sustained relatedness
therapist. Even though Sean left jail prior to the end of his in participants. Because literature [30] suggests increased
intervention timeline, he was receiving threats from someone community participation, and participation in common-in-
in the community, and was therefore, frequently not available terest–based activities will increase relatedness and partici-
for participation. pants in this pilot study increased community participation,

© 2012 Informa UK, Ltd.


1582 G. Snethen et al.
the researchers suggest that continued participation in the relationships with individuals who have similar interests.
intervention would likely increase relatedness as well. Furthermore, participants identified a desire to increase
community participation, which is particularly relevant,
Implications for practice given the pervasiveness of amotivation and its impact on
The results of this pilot-intervention study point to the functioning [60,61].
possibilities the I-CAN intervention can play in SSD recov- The outcome related to planning was particularly interest-
ery. Integrating interest-based activities and the theoreti- ing. The inability to plan and initiate behavior are functional
cal components of SDT (i.e. competence, relatedness and impairments often related to negative symptoms and cogni-
autonomy) into mental-health interventions can help indi- tive impairments [55,62]. Addressing such deficits through an
viduals with SSD function more successfully within their individualized intervention of this type has the possibility of
communities. developing skills that have clear impact across functional areas
An interactive leadership style promotes increased lev- and can complement other interventions. While not specifi-
els of perceived control [27], which is consistent with the cally targeted, the identification of coping skills is important
findings in this study. The interaction between therapist for this population, as stress and anxiety can trigger psychotic
and client occurred at all stages of the intervention (i.e. goal episodes [63,64].
development, activity participation, goal evaluation), and Implementing this intervention as time unlimited would
Disabil Rehabil Downloaded from informahealthcare.com by University of Queensland on 09/20/13

was cited as a meaningful component of the intervention likely address some of the limiting factors that were identi-
by all participants. This further provides support for the fied. The IPS model identifies unlimited support as one of the
integration of mental-health professionals into the facili- elemental factors [42]. While this was not feasible for this pilot
tation of community-based recreation activities with this intervention, the results presented here provide initial sup-
population. In order to increase competence, it is important port for the implementation the I-CAN as a time-unlimited
that the client perceives the coparticipation phase as close intervention. Furthermore, implementation should focus on
to independent participation as possible, which Austin [57] participation in the community, as opposed to skills training
also provides support for by describing recreational thera- in a clinical environment [65]. Providing ongoing support in
pists as a therapist friend. Similarly, psychiatric literature community participation will likely vary in intensity as indi-
had suggested clients with a good alliance with their thera- viduals become more confident in their abilities to participate
pists are more likely to adhere to treatment recommenda- independently.
For personal use only.

tions [58]. Motivational interviewing has been shown to be


effective with people with SSD and substance-abuse issues Implications for research
[59] and it appears that the elements of the approach can This pilot intervention was an initial step in understanding the
also be effectively applied in enabling community par- perceived outcomes of the I-CAN intervention. Understanding
ticipation. This was evidenced by the use of motivational the outcomes of the I-CAN intervention from the partici-
interviewing during the assessment portion of the I-CAN, pants’ perspectives provides initial groundwork for identify-
which helped the recreational therapist understand indi- ing more objective outcome measures to use in future studies.
viduals’ motivations for participation and facilitated more While the findings suggest lengthening the intervention will
natural interactions during coparticipation. Furthermore, make increased social interactions a more realized outcome,
the coparticipation was an integral part of the intervention, researchers should address how participation in community-
and should be utilized as long as it takes for the individual based activities is related to social interaction and whether or
to develop both the actual and perceived competence to not individuals with SSD increase social interaction through
participate independently. During coparticipation, it was increased community participation. Intervention research
imperative that the therapist provided consistent, positive with a larger sample and experimental controls is necessary
reinforcement. For future implementation, this can help to determine the effectiveness of the I-CAN intervention on
the participant accurately evaluate his or her behavior and, community functioning in adults with SSD.
eventually, recognize mastery experiences.
Given the high rates of unemployment that exist in
Limitations
this population [7,8], providing interventions that address
the development of skills needed to access community in This study was exploratory in nature, and therefore the out-
nonwork-oriented settings is particularly relevant to recov- comes of the intervention should be viewed as limited to
ery. At the end of the pilot intervention, participants in (1) the perception of the participants in this study and (2)
this study would not be considered to be active community potential areas for future research to address. Given the small
participants; however, they demonstrated increased par- sample size, statistical analyses were limited to descriptive
ticipation indicating this intervention can start to increase statistics and should be viewed as complementary infor-
community participation and would likely, with time, mation to the participants’ perception of the intervention.
increase community participation even more. Focusing on Related to diagnosis, it was confirmed that participants in
interest-based activities and developing the skills and com- this study had a SSD; however, no information about the
petence for individuals to participate independently has specific diagnosis, levels of symptoms or medication history
the potential to create lasting change and increase social and adherence were available. Participants were recipients

Disability & Rehabilitation


Outcomes from the I-CAN intervention 1583
of the same level of services, which indicates a similar level 13. Harvey PD, Helldin L, Bowie CR, Heaton RK, Olsson AK, Hjärthag F,
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The authors would like to thank Rachel Smith for her assis- 24. Iwasaki Y, Coyle CP, Shank JW. Leisure as a context for active living,
tance with the facilitation of the Independence through recovery, health and life quality for persons with mental illness in a
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global context. Health Promot Int 2010;25:483–494.


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Declaration of Interest: The authors report no conflict of 26. Lloyd C, King R, McCarthy M. The association between leisure moti-
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