Professional Documents
Culture Documents
Snethen 2012
Snethen 2012
REHABILITATION IN PRACTICE
Purpose: The Independence through Community Access and Implications for Rehabilitation
Navigation (I-CAN) intervention was developed to increase
community participation in adults with schizophrenia spectrum • The Independence through Community Access and
disorders (SSD) through identification of interest-based Navigation intervention uses community-based rec-
recreation activities and supported participation. Method: reation to promote community participation through
Ten individuals consented to participate in a 10-week pilot the development of competence, autonomy and
intervention. Eight individuals participated in the intervention, relatedness.
• The promotion of independent community-based
For personal use only.
Correspondence: Gretchen Snethen, PhD, Department of Rehabilitation Sciences, Temple University, 1700 N. Broad, Philadelphia, PA, 19122 USA.
Tel: 215-204-2748. E-mail: gsnethen@temple.edu
(Accepted December 2011)
1575
1576 G. Snethen et al.
internalized stigma can cause individuals with SSD to “act impact, the implementation of interventions targeting func-
less confidently and more defensively with others,” (p. 528) tional improvements should occur in the community [34]. The
ultimately leading to avoidance and isolation. Independence through Community Access and Navigation
In order to address functional impairments, mental-health (I-CAN) intervention [35] is theoretically grounded in self-
professionals have moved toward a recovery model in which determination theory (SDT) which posits the meeting of basic
recovery is viewed as a process and the client is an active par- psychological needs of autonomy, competence and related-
ticipant in his or her treatment [19–22]. Interventions follow- ness is fundamental for motivation and well-being [36,37].
ing this framework often target activities of daily living [17] Autonomy involves people’s abilities to choose and endorse
and employment [17]; however, involvement in recreation the activities in which they are involved [38]. Mancini [20]
and leisure activities is a less-studied treatment area that has reported that autonomy in treatment and participation in
the opportunity to address both social and functional impair- meaningful activities is core to the recovery process.To pro-
ments, while increasing life satisfaction [17,23,24]. mote autonomy, clients were actively involved in decision
making during each stage of the intervention, suggesting an
interactive style between therapist and client, which has been
Leisure and mental health treatment
shown to be effective within this population [27]. Competence
Recreation and leisure activities as treatment areas for SSD refers to an individual’s mastery within given situations and is
Disabil Rehabil Downloaded from informahealthcare.com by University of Queensland on 09/20/13
are understudied areas that may have positive benefits with predictive of community participation [2]. The coparticipa-
this population [23]. Recently, Iwasaki, Coyle and Shank [24] tion stage allowed for participants to experience the activity
have proposed meaningful leisure participation as a facilita- in the actual environment with desired support in order to
tor in holistic recovery in individuals with severe mental ill- develop competence for independent participation. Finally,
ness, citing benefits in (1) health (i.e. physical and mental), relatedness involves an individual’s need to be connected to
(2) identity formation, (3) coping, (4) social connectedness, others and includes one’s need to be an equal contributor to
(5) human development and (6) positive emotions. Similarly, relationships. That is, individuals need to receive the benefits
researchers purport the benefits of leisure participation for of social interaction, but also believe their contribution to the
individuals with SSD in improving community functioning, relationship is valuable. Individuals with SSD are often isolated
gaining and practicing social skills, increasing physical skills, [4,5], and Sorgaard et al. [30] suggest leisure activities provide
accomplishing goals and developing competencies [25,26]. individuals with access to others. More specifically, by target-
For personal use only.
Furthermore, individuals with SSD who have high motiva- ing participation in community-based recreational activities
tion to participate in leisure activities are also further in the clients were given access to individuals with common interest,
recovery process [26]. Another study determined that leisure with whom they could form potential relationships. Thus, by
participation had positive impacts on self-efficacy and per- addressing the basic psychological needs of competence, relat-
ceived control [27]. edness and autonomy, the opportunity to promote sustained
Recreation and leisure activities have inherent social quali- improvements in overall functioning exists [38–40].
ties that may provide opportunities for the development of The I-CAN intervention is a recreational-therapy (RT)
social networks [28,29]. Sorgaardand et al. [30] found high intervention modeled after the individualized placement and
social integration and satisfaction with social attachments in support (IPS) model [41]. Central tenets derived from the IPS
adults with SSD was positively correlated with satisfaction model were concepts of client preference, rapid placement,
with leisure activities. Individuals with larger nonkin social providing supports and skill training in vivo and time-unlim-
networks are more likely to have better long-term outcomes ited support [42]. The IPS model was developed in supported
than individuals with social networks comprising primarily employment interventions [42], but has also been used in
family members [31]. This suggests that friendship networks supported education interventions [43]. For this intervention,
may provide individuals with resources familial networks do the IPS model is used to support community-based recreation
not. Furthermore, Evret et al. [32] found social integration participation, matching clients with interest-based activities
to be positively correlated with improved overall function- to promote autonomy and providing onsite training through
ing. Conversely, those who participate in fewer social leisure coparticipation.
activities also experience greater social isolation [4]. This The conceptualization of functioning within the I-CAN
suggests individuals with more diverse social networks have intervention is derived from the World Health Organization’s
higher levels of integration. Social integration of individuals International Classification of Functioning, Disability, and
with SSD is also associated with earlier treatment of symp- Health (ICF) [44]. The ICF provides a model of the interrela-
toms. In addition, among adults with SSD, social interaction tionship of functioning and also provides the background for
is more likely to occur outside the home [33], which provides the targeted areas of rehabilitation and increased participation
support for community-based interventions. [45,46]. The ICF is not population-specific, but rather classi-
fies areas of functioning that are applicable to all individuals.
It is beneficial for rehabilitation professionals to use the ICF
Intervention framework and implementation
as it provides a common language for practitioners to use to
In 2009, the Schizophrenia Patient Outcomes Research Team communicate functional impairments and improvements to
recommended that in order for interventions to have a lasting other professionals [47]. For the purposes of this study, the
the I-CAN intervention was designed to be time unlimited; vention. The initial semistructured interview and the DRM
however, due to feasibility constraints, these outcomes of pilot interviews provided data to understand the daily community
intervention took place over a 9-week period with the entire participation that occurred. The DRM interviews occurred
data-collection period occurring over 10 weeks. The recre- three times each during week 1, 4 and 10 of the study and
ational therapists met with each client for approximately 30 required participants to identify types of activity and moti-
hours (excluding data-collection times) over the course of the vation for participation. Table I presents the topical areas
9-week pilot intervention. addressed by the exit interview. The initial and exit semistruc-
The purpose of this study was to pilot test and evaluate the tured interviews lasted 30–45 minutes per interview.
perceived value and effectiveness of the I-CAN intervention Finally, the recreational therapists’ clinical notes were
in adults with SSD receiving assertive community-treatment included as data to provide information about the progress
(ACT) services. Information about the development of the of each individual client. These progress notes included
For personal use only.
intervention and the protocol are described in detail elsewhere information from the initial assessment and throughout the
[35,48]. This project focused on the following key questions: intervention, and identified participants’ initial goals, prog-
(1) What are the perceived outcomes of the intervention? (2) ress and continuing goals. Summaries were provided to the
Are there facilitating or limiting variables that contribute to client’s primary case manager upon completion of the pilot
the outcomes? intervention.
Participants
Analyses
All participants in this study received ACT services from a
local community mental health center (CMHC). ACT is a DRM data were coded by activity location (i.e. home, commu-
best-practice model that serves individuals with severe men- nity, CMHC). These data were summed across participants to
tal illness who experience significant functional impairment. capture an idea of the number of activities participants iden-
ACT services include activities of daily living, vocational tified during the week prior to the intervention, the fourth
assistance, counseling, medication support, supported hous- week of the pilot intervention and the final week of the pilot
ing, financial assistance, social skills and problem-solving intervention. Additionally, data regarding the presence of oth-
skills [49]. While one of the goals of ACT is normalized com- ers was summed across locations, in order to gain an under-
munity functioning, services rarely target essential elements standing of where people with SSD are more likely to be in
of community integration (i.e. social interaction and partici- contact with friends.
pation in meaningful activities) and have demonstrated lim- Using an open coding system to analyze data, the first
ited impact on social functioning [50,51]. Participants were author conducted a thematic analysis of the clients’ perceived
recruited via ACT-team case managers based on inclusion value and outcomes of the intervention and factors influenc-
criteria of (1) diagnosis of SSD, (2) 18 years of age or older and ing outcomes. All analyses utilized the modified version of
(3) no communicable conditions that prevented community the constant comparison method presented by Boeije [54],
Member checks were conducted after the completion of Table III. Numbera of identified activities by participant.
the final interview to ensure description of daily participation Community Home CMHC
and intended goals of the intervention were accurate; partici- Week 1 4b 10 1 4 10 1 4 10
pants did not identify any issues with the presentation of this Arnie 3 4 4 8 10 6 1 0 2
section of the data. Additionally, a peer reviewer checked the Jerome 3 7 6 9 8 8 2 2 4
coding scheme for credibility. Tracy 4 4 4 11 9 7 0 0 0
Sean 2 5 – 5 2 – – – –
Results Art 1 4 2 9 11 11 1 2 1
Kendra 0 3 0 6 7 11 0 1 0
Participants Mary 2 3 3 7 9 6 1 1 1
A total of 10 ACT consumers with SSD enrolled in this proj-
For personal use only.
Benc 2 4 1 10 9 4 0 0 0
ect; however, two dropped out before the intervention began, Total 17 34 20 65 65 53 5 6 8
one citing health reasons and the other refusing requests CMHC, community mental health center.
aNumber does not reflect duration.
for additional contacts. The remaining five males and three bCoparticipation occurred here.
females ranged from 24–57 years of age. Table II presents a cBen only completed 2 days of week 10 DRM.
the community. It is important to note, these activities neither Table V. Code count by participant.
reflect the duration of different activities nor the specific type of Perceived outcomes Perceived facilitator
activity, only the number and location of activities. Community Therapist/client
During half of the activities listed in the DRM, partici- Participant involvement Planning Coping interaction
pants identified being alone. Community-based activities had Arnie 5 3 4 9
a higher occurrence of participation with friends than any Jerome 8 1 6 1
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Activities means that you’re not locked up, you know? When
number of times each theme was coded within each partici- the door is out there and you can’t get out, you can’t do nothing.
pant during the exit interview. This table is representative of That’s a reminder that I can get out and do stuff, not locked behind
both the perceived-outcomes themes and perceived facilita- the door.
tors discussed later. It is important to note, these themes were
also further developed through the information from the Prior to the intervention, Jerome’s definition of com-
clinical notes and the DRM interviews. munity was freedom from an inpatient facility and jail; his
All seven individuals who participated in the exit interview description of activities suggests an increased perception in
identified positive outcomes from their participation. In an freedom and greater connection to the community. Tracy,
overarching statement, Jerome identified the following: who was the only participant with her own form of trans-
portation, began to access her community more regularly
I think [the intervention] was very meaningful. Because you’ve for activities other than shopping. By the end of the inter-
shown me that there’s things out there I can do that, if I just try vention, Tracy was going to the pool at least once per week,
certain things, I never know, I’ll probably enjoy them. You showed
me there’s things to do in the community other than just things I’ve
had made plans to go to a free knitting class at the library
been doing…Just find that having somebody to talk to, you know? with her sister and was leading her neighbors in simple yoga
For some things, I got off my chest, you know, that was on my chest techniques learned in a local yoga class in the courtyard of
for a long time and there was nothing I felt like I was able to do their apartment.
about it, you know? I got it off my chest and it made me feel better, The only initial goal Arnie was able to identify was riding
you know? I had fun these past weeks, you know?+
the bus, which, by the end of the intervention, he was able
to do independently. During his exit interview, Arnie also
Perceived outcomes are presented in the following catego-
identified interest in learning to participate in other commu-
ries: community involvement, planning and coping skills.
nity-based activities (i.e. learning to use the computer at the
apartment commons and walking).
Community involvement Finally, even Ben and Kendra, who despite their limited
Based on the participant exit interviews and the therapists’ contact with the recreational therapist because of sleeping
notes, all participants increased their level of community par- through or otherwise missing appointments, believed they
ticipation. At the start of the intervention, Jerome and Tracy increased their participation in the community. Kendra,
were the most integrated into their community, accessing it who could only identify sleeping as the activity she partici-
both for goods and services as well as for interest-based activi- pated in prior to the intervention, identified she went to the
ties. However, even these individuals believed they increased library and “out to get tea” as a direct result of the interven-
community-participation levels. When asked what if he per- tion. More importantly, she identified both an increased
ceived benefits from the intervention, Jerome initially stated desire to participate in the community and the importance
about making plans because I don’t know [how] I’m going to feel. tion that occurred between the recreational therapist and the
And then like with the yoga and doing it on my own, I could[n’t]
do it on the days that I was laying in bed on the same day I said I clients. All participants identified this theme (see Table V).
was going to do it. But I was able to do it on a day that I felt half This relationship appears to be qualitatively different from
way decent. the relationships clients described with their other mental-
health professionals. Jerome referred to the recreational
At the intervention completion, Ben still identified the therapist as his “therapist sister” identifying that she helped
need to develop his abilities to make and follow through him with his day-to-day well-being. During the assess-
with plans. Ben felt the most structure he experienced was ment, Art identified that he did not enjoy talking to people
in relation to the intervention. While Arnie’s days were because of his speech impairment. When asked if he still felt
structured around activities of daily living, he could not use that way, Art clarified that he still does not feel comfortable
the bus independently prior to the start of the intervention. talking with others, but that he felt comfortable talking to
When asked about understanding the bus schedule, Arnie the recreational therapists involved in the study. Ben felt his
stated, “At the very beginning, there was anxiety big time… recreational therapist motivated him more so than his other
It’s over with now.” Through participation in the interven- mental-health professional.
tion, Arnie was able to overcome his anxiety about the bus
schedule and learn to use the appropriate bus for different Somehow [the recreational therapist] perk[s] me up and make[s]
appointments, “just by you writing down things and stuff… me want to do more things for myself... I think [she was] concerned
about my mental health, and my physical health, and my future.
I need to write down things myself, too. It all works hand How so? I can tell by the way [she] treat[s] me. I think [the recre-
in hand.” ational therapist] has shown me more concern than most types all
the years I’ve been here.
Coping
During the initial interview and the intervention assess- In talking about the therapist/client interaction, five of the
ment, participants identified stress and anxiety as a barrier participants discussed the frequency with which the recre-
to participation, and through participation in the interven- ational therapist encouraged autonomous behavior. The client
tion, reported developing coping skills to manage stress identified the activities focused on within the intervention
and anxiety. Jerome, who often had intrusive thoughts that during the initial assessment; however, these five participants
made him feel depressed,was able to identify an activity to independently discussed having the therapist encourage them
decrease stress and feel better about himself, “I learned I can to make autonomous decisions.
go walk when I’m stressed out. Hop on the bus and go out The presence of the recreational therapist during the copar-
to the trail and go down the trail.” Similarly, at the end of ticipation portion of the intervention was also valued and
know you just have all this. You’re just scared. You know some- ably less than those in typical DRM studies, which suggest an
thing. You’re suffering on the inside. And you got to try to make average of 15 activity episodes per day [53]. This speaks to
everybody else think you’re okay… But I think it helps having
the limited variety in activity involvement of the participants
somebody there so that if you like kind of go there. Just like if you
got a kid and you took them somewhere, and then they were able in this study. It is also important to note, the greatest amount
to learn because they got adults or whatever to go on their own.… of community participation occurred during the middle of
And then they were able to learn that that’s the same with mental the intervention, specifically when the recreational therapist
illness. If you go a couple of times with someone, and, then you’ll coparticipated with the client. Similarly, this is when partici-
feel better doing it on your own.
pants identified more frequent interaction with others.
In relation to the SDT constructs, the I-CAN was suc-
This also speaks to the importance of developing skills in cessful in increasing autonomy and competence. While
the community as opposed to strictly in a controlled envi- autonomy may appear to be an easier outcome, it was not
ronment. Identifying the skill in one setting did not always something that participants independently integrated into
transfer to successful participation. Amotivation often the intervention. The RT worked with the client to ini-
made it difficult for individuals to complete tasks on their tially identify interest-based activities; beyond that, the
own. For example, Ben, who had the Young Men’s Christian RT encouraged independent decisions and reinforced par-
Association application prior to the intervention, admit- ticipation based on self-interest, rather than participation
ted he would not have turned the application in without to please the therapist. Given the functional impairments
the support of his therapist. The presence of the therapist and cognitive deficits within this population [12,14,55,56],
gave what Arnie termed “moral support” so the participant developing competence took repetition of the activity.
could develop the skills to eventually complete the activities The coparticipation phase provided the opportunity for
independently. the therapist to provide immediate feedback and encour-
Finally, individuals in transition, particularly transition age participation. Participants who achieved some level
that was unresolved (i.e. eviction, incarceration) had difficulty of independent participation received reinforcement from
focusing on the goals they developed with their recreational the therapist through continued communication and were
therapist. During intervention sessions, Ben was fixated on able to problem-solve concerns for future participation. As
looking for an apartment, and needed an intermittent goals- discussed earlier, the length of the I-CAN pilot interven-
clarification session to explain the role of the recreational tion was not long enough to increase sustained relatedness
therapist. Even though Sean left jail prior to the end of his in participants. Because literature [30] suggests increased
intervention timeline, he was receiving threats from someone community participation, and participation in common-in-
in the community, and was therefore, frequently not available terest–based activities will increase relatedness and partici-
for participation. pants in this pilot study increased community participation,
was cited as a meaningful component of the intervention likely address some of the limiting factors that were identi-
by all participants. This further provides support for the fied. The IPS model identifies unlimited support as one of the
integration of mental-health professionals into the facili- elemental factors [42]. While this was not feasible for this pilot
tation of community-based recreation activities with this intervention, the results presented here provide initial sup-
population. In order to increase competence, it is important port for the implementation the I-CAN as a time-unlimited
that the client perceives the coparticipation phase as close intervention. Furthermore, implementation should focus on
to independent participation as possible, which Austin [57] participation in the community, as opposed to skills training
also provides support for by describing recreational thera- in a clinical environment [65]. Providing ongoing support in
pists as a therapist friend. Similarly, psychiatric literature community participation will likely vary in intensity as indi-
had suggested clients with a good alliance with their thera- viduals become more confident in their abilities to participate
pists are more likely to adhere to treatment recommenda- independently.
For personal use only.
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