Professional Documents
Culture Documents
Ariss 2019
Ariss 2019
Jessica J. Ariss, Alison Gerlach, J.B. Baker, Keith Barry, Lyn Cooper, Theressa
L. de Vries, Kevin Halligan, Monica Lacroix
Abstract
Background: Personal recovery is an individualized process Results: The PRs produced and analyzed 24 pieces of arts-
through which people develop a positive identity and live based media and 5 hours of transcribed narrative data
a meaningful life, with symptoms of mental illness. Few describing their artworks’ relationship to therapeutic recre-
studies have explored the role of recreation therapy in the ation and recovery. The PRs identified seven salient themes
recovery process from the perspectives of individuals with through the participatory data analysis process: providing a
lived experience of mental illness. safe place, promoting hope, finding balance, developing self-
wisdom, increasing enjoyment, building confidence, and
Objectives: To understand how community-based recreation
encouraging self-determination.
therapy can support mental health recovery, from the per-
spectives of people diagnosed with mental illness, and to Conclusions: Service recipients’ unique preferences and
guide the development, delivery and evaluation of recovery- perspectives must be integral to service development to
oriented mental health services. deliver therapeutic recreation interventions that are truly
recovery-oriented. The research findings will be used to guide
Methods: Guided by the principles of participatory action
the delivery of innovative, collaborative, person-centered
research (PAR) and photovoice, six participant researchers
programming in community-based mental health settings.
(PRs) generated arts-based media and narrative data in
response to the research question: How can therapeutic
recreation, in a community mental health center, support Keywords
the recovery of individuals diagnosed with mental illness? Community-based participatory research, leisure activities,
The research group analyzed the qualitative data through a education, sociology and social phenomena, mental health
participatory data analysis process. services, recreation therapy, mental health recovery
T
he focus of mental health rehabilitation services has promotion strategies.2–4 Mental health service providers are
shifted away from the traditional goals of treating and striving to develop and implement services that are recovery-
eliminating symptoms of mental illness. The recent oriented. Individuals with mental illness have described the
conceptualization of mental health recovery focuses, instead, process of recovery5–7 and a clear framework is emerging
on creating a life of dignity and empowerment in which the from the evidence.8 Currently, little is known about the
service user defines his or her life choices and works toward role of therapeutic recreation in recovery. Participation in
a meaningful existence regardless of symptoms or setbacks. 1
community-based swimming groups, nature walks, and social
This concept of recovery, as defined by service recipients, is club activities involving games and crafts has been found to
emphasized in Canadian, American, and international health improve self-esteem and mood in individuals diagnosed with
Progress in Community Health Partnerships: Research, Education, and Action Summer 2019 • vol 13.2
awareness, social skills, leisure activity skills, and knowledge 163
Table 1. Participant Researchers’
of leisure resources; and 3) recreation participation—support
Demographic Characteristics
service users to develop self-determination in leisure.29
Characteristics N %
The primary author is a recreation therapist at Waypoint
Gender
with more than 10 years of practice and teaching experience, Male 3 50
never employed at the HERO Centre. Before developing the Female 3 50
research proposal, the primary author consulted with HERO Age (years)
Centre clients and peer support workers during two planning 41–50 2 33.3
51–60 3 50
meetings to elicit feedback about favorable research methods >60 1 16.7
and outcomes. HERO Centre clients reasoned that using Employment status
creative research methods and involving service users would Employed 5 83.3
Unemployed 1 16.7
align the research project with the principles of recovery and
Education level
have a positive impact on the development of services.
High school 5 83.3
College diploma 1 16.7
Recruitment and Sample Population
The primary author presented a brief description of the action plans and communicating results to decision makers.20
study to the HERO Centre clients and peer support workers The HERO Centre clients expressed support for photovoice,
at a planning meeting and subsequently posted a recruitment but suggested a research process that would provide more
poster on the center’s bulletin board. Clients contacted the opportunities to express personal choice and individuality
primary author directly to learn more about the study and in the research methods. In response to this feedback, the
consent process. This purposeful sampling method recruited primary author used research methods guided by the structure
six PRs who met the inclusion criteria of being over 19 years of photovoice,20 but with a broader scope to incorporate any
of age, diagnosed with mental illness, residing within the artistic medium selected by the PRs.
North Simcoe community, and using therapeutic recreation The research group (composed of the primary author
services at the HERO Centre within the past year. The primary and the six PRs) met for five 1- to 2.5-hour meetings at the
author discussed the consent process and obtained informed public library over a 6-week period. During the meetings, the
signed consent from each PR individually before data collec- research group established the study’s goals, determined the
tion. The consent process was revisited before hosting the nature of the arts-based assignments, discussed the artwork
research exhibit. in group interviews, and analyzed the data corpus composed
The six PRs were all high school educated, primarily of the PRs’ artwork, narratives, and selections of the primary
employed, and over the age of 41. A summary of the PRs’ researcher’s field notes. The PRs were provided with materials
demographic characteristics can be found in Table 1. for a variety of arts-based methods including photography,
poetry, painting, and drawing, and were asked to create at
Methods of Data Collection least one piece of art, using any medium, in response to the
The primary author developed the research methods in research question: How can therapeutic recreation services,
response to feedback from the HERO Centre clients and peer in a community mental health center, support the recovery
support workers in the initial planning meetings. During of individuals diagnosed with mental illness?
the second planning meeting, the primary author suggested The PHOTO technique, which has been used successfully
photovoice as a method frequently used in PAR, and briefly in a number of studies to elicit PRs’ narratives,20 provided a
explained the steps of a typical photovoice study: identify- series of structured questions that were used to generate PRs’
ing community members’ priorities, recruiting participants, narrative descriptions of their artwork in relation to the purpose
camera training and distribution, photo assignments, discus- of the research project. The questions were: (1) Describe your
sion of participants’ photographs, data analysis, developing piece; (2) What is happening in your piece?; (3) Why did you
Progress in Community Health Partnerships: Research, Education, and Action Summer 2019 • vol 13.2
3. Consolidating. Collaboratively, the research group re- knowledge translation—collaboration between service provid- 165
read narrative data aloud and engaged in discussion and ers and researchers to promote the application of research
analysis to refine the preliminary themes. findings.35 The exhibit was attended by mental health service
4. Making sense of the data. The PRs discussed and users and providers who reported they found the art, narra-
debated potential theoretical connections and the tives and findings to be relevant and meaningful; this positive
meaning of different terms in order to determine the
feedback adds credibility to the findings.
wording of each theme.
5. Telling the story. The PRs generated suggestions for
recovery-oriented therapeutic recreation services. FINDINGS
The research group hosted an art exhibit to share the The PRs identified seven salient themes through an itera-
artwork, poetry, and associated narratives. tive dialogical process as described above. What follows is a
summary of the PRs’ perceptions of how community-based
Rigor recreation therapy can support the mental health recovery
Reflexivity, characterized by a researcher’s continual process.
analysis of their personal involvement in the research pro-
cess, increases the dependability of research findings.31 The Offering the Freedom to Choose
primary author encouraged the PRs to consider their own The PRs emphasized the importance of providing oppor-
positionality in relation to the data. For example, the PRs tunities for personal choice and self-determination in mental
discussed their personal viewpoints of the term “recovery” health services. One PR, Lyn, articulated this theme when dis-
and acknowledged how their unique lived experiences could cussing her desire for community-based mental health centers
influence their understanding of the terminology used in the to provide diversity in materials and recreational opportunities:
data. The primary researcher aimed to attenuate the posi-
There would be avenues to explore, maybe leather-
tion of power she occupied in the research relationship by
work, wood burning, or clay and a kiln . . . I’d love
emphasizing the significance of lived recovery experiences
to see a sewing machine there and remnants of
and collaborating with the PRs to make research decisions. All
fabric . . . [This] would give me a reason to get out
research decisions were clearly documented by the primary
of bed and express myself through my art and . . . my
researcher in an audit trail. Maintaining an audit trail can
mental illness would not define me.
increase the transparency of the research process and improve
the findings’ dependability and confirmability.32 Another PR, Keith, dealt with this subject matter through
Achieving triangulation, by including two or more investi- a poem that depicts a romantic relationship between two indi-
gators or methods, promotes rigor in qualitative research and viduals receiving mental health services. The words of Keith’s
can increase the credibility of the findings.33 By collecting data poem emphasize the importance of creating a therapeutic
through multiple methods including field notes, narrative, environment that respects the expression of personal choice
and arts-based methods, triangulation was accomplished. in intimate relationships: “Johnny and Annie were filthy
Investigator triangulation was achieved through the par-
34
rich, nothing to do with money, just a thread and a stitch.
ticipatory data analysis process that incorporated multiple Forbidden fruit, forbidden love, jumping jacks beneath the
researchers’ perspectives. The PRs reviewed this research cracks. Wilted flowers and touch me nots reflecting on their
manuscript before publication to provide feedback and ensure souls.” When contemplating the message of the poem Keith
their perspectives were accurately represented. stated, “Love conquers all, right?”
The PRs decided to host the research exhibit in the lobby
of Waypoint’s in-patient facility because they felt it was Providing a Safe Place Where Clients are Listened to
important to share a hopeful message about recovery with Several PRs highlighted the need for community-based
individuals currently receiving in-patient treatment. The mental health centers to feel like a safe place or a second home.
exhibit’s location also facilitated opportunities for integrated In discussing her involvement with community-based, peer-run
Progress in Community Health Partnerships: Research, Education, and Action Summer 2019 • vol 13.2
between being in shut-down mode and spinning in 167
all directions.
Developing Self-wisdom
When selecting a label for this theme, the research
group engaged in discussion to deconstruct the term “self-
wisdom.” Keith explained how the word ‘wisdom’ conveys
the learning that occurred during each of his meaningful life
experiences. The group of PRs identified with his reasoning.
Lyn discussed the personal insight she developed through
life experience:
• Listen to service users and deliver person-centered services themes generated through the research process seem to be
according to each individual’s unique preferences. aligned with previous writings on personal recovery.
• Build and maintain a trusting therapeutic rapport. The CHIME framework8 depicts recovery as five intercon-
• Provide open access to a wide variety of recreational/leisure nected processes involving the development of connectedness,
opportunities and supplies.
hope, identity, meaning, and empowerment. Three of the
• Communicate in ways that are positive and encouraging, but
themes identified by the PRs correspond directly with the
never condescending, to build confidence,
processes identified in the CHIME Framework8: “fostering
• Include peer support workers and client volunteer positions in
service delivery. growth and hope” parallels “hope”; “developing self-wisdom”
• Laugh more. resembles “identity”; and “building confidence” corresponds
with “empowerment.” Although the PRs did not explicitly
To highlight the key messages within the research findings, identify social “connectedness” as a significant theme, the
the PRs developed a list of recommendations for the provision importance of peer and family support was mentioned
of recovery-oriented therapeutic recreation services (Table 2). throughout the narrative and arts-based data. The theme
“offering the freedom to choose” is closely related to the
DISCUSSION AND PRACTICE IMPLICATIONS CHIME process of “meaning” because the PRs emphasized
The viewpoints discussed represent the perspectives of the importance of choosing recreational pursuits that are
six individuals diagnosed with mental illness who have par- personally meaningful.
ticipated in community-based recreation therapy. The small During the research group’s analysis of the “balance/
group size and narrow scope are limitations of the present middle ground” theme, the primary author considered the
study; however, this structure allowed each individual’s concept’s relationship to Csikszentmihalyi’s theory of flow.38
opinions to be heard, considered, and discussed. The modi- The primary author shared the central tenets of the theory with
fication of traditional photovoice techniques may limit the the PRs and they agreed the theory of flow38 could provide
validity of the method, as the questions used in the PHOTO a theoretical underpinning for the “balance/middle ground”
technique20 were adapted from their initial structure and the theme identified in the data. Csikszentmihalyi explains, “flow
PRs used a variety of media to tell their stories. The photovoice is a subjective state that people report when they are com-
modification was initiated by HERO Centre members and pletely involved in something to the point of forgetting time,
is supported by research that has successfully incorporated fatigue, and everything else but the activity itself.”38 Recreation
other mediums into photovoice methods.36,37 Considering therapists purport individuals can reach this heightened state
the limitations of the methods and data analysis, these find- of focus and immersion in an activity when one’s level of skill
ings may be generalized to similar community-based mental matches the activity’s level of challenge.29 This study’s findings
health settings providing therapeutic recreation services and endorse the existence of “flow” and demonstrate how embody-
a peer-run social club. The PRs felt the themes were relevant ing a state of flow can support the mental health recovery
to service recipients and providers in Waypoint’s inpatient process. Flow has been discussed throughout therapeutic
setting. The feedback from the research exhibit indicates the recreation29,39 and positive psychology38,40 literature. In the
findings can inform therapeutic recreation services across the field of therapeutic recreation, these discussions are largely
full range of mental health care, from health promotion strate- focused on ways to construct a balance between challenge and
gies to inpatient and community-based settings. From the skill in order to promote a state of flow. The importance of self-
perspectives of the PRs, community-based recreation therapy determination in leisure was a prominent theme throughout
Progress in Community Health Partnerships: Research, Education, and Action Summer 2019 • vol 13.2
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