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Gateway ref: 13845
title Clean, Safe Care – reducing infections and
saving lives
author Department of Health
Publication date 31 March 2010
target audience Service users, carers and health and social care
practitioners
Circulation list Voluntary Organisations/NDPBs
Description This document draws together recent initiatives
to tackle healthcare associated infections and
improve cleanliness and details new areas
where the NHS should consider investing to
ensure that patients receive clean and safe
treatment whenever and wherever they are
treated by the NHS.
Cross reference Winning Ways - working together to reduce
healthcare associated infection in England
Towards cleaner hospitals and lower rates of
infection – a summary of action
Superseded documents N/A
action required N/A
timing N/A
Contact details HCAI Briefing and Management Unit
Department of Health
Richmond House
79 Whitehall
London SW1A 2NL
for recipient’s use
2. One-page profiles 11 �
3. Person-centred reviews 14 �
Acknowledgements 33 �
1
Introduction
This workbook describes good practice in the time of their assessment or latest
using person-centred approaches with young review.2
people as they move into adulthood.
●● Only 65% of adults with learning
It is intended to show how person-centred disabilities are in settled accommodation,
thinking, planning and reviews can be useful and few of these live in their own homes.
in schools and in transition, to ensure that Most live with their families. Most of the
young people with disabilities are listened to remaining 35% are in residential care.3
and leave school or college for paid
employment and full lives. ●● Health outcomes for people with learning
disabilities are comparatively poor. A
The Independent Living Strategy, the cross- number of reports have highlighted the
government strategy on independent living for problems. Equal Treatment: Closing the
disabled people, stated that ‘16 to 17 year old Gap4 and Death by Indifference5
young disabled people are twice as likely, and respectively described failings in ensuring
18 to 19 year old disabled people three times access to healthcare and appropriate
as likely, as young non-disabled people, to be treatment, and the circumstances around
not in education, employment or training. By the deaths of six people with learning
the age of 26, young disabled people are disabilities while in the care of the NHS.
nearly four times as likely to be unemployed
or economically inactive, as young non- ●● Many people with learning disabilities
disabled people.’1 report isolation and a lack of opportunities
to make and sustain friendships and other
In particular, we know that people with relationships.6
learning disabilities do not have equal life
chances. For example: Person-centred planning and approaches offer
powerful ways of listening to young people
●● Only 7.5% of adults with learning and enabling them to plan their futures.
disabilities aged 18–64 and known to Person-centred planning is rooted in inclusion
councils with adult social services and equal rights and can be used to enable
responsibilities were in paid employment at
1 Youth Cohort Study, Parliamentary Briefing (2007), Disability Rights Commission, quoted in
Independent Living Strategy (2008), Office for Disability Issues.
2 Social Care and Mental Health Indicators from the National Indicator Set: Further Analysis 2008/09
(2009), Health and Social Care Information Centre.
3 Valuing People Now (2009), Department of Health.
4 Equal Treatment: Closing the Gap, Disability Rights Commission (2006), quoted in Valuing People
Now (2009), Department of Health.
5 Death by Indifference, Mencap (2007), quoted in Valuing People Now (2009), Department of Health.
6 Valuing People Now (2009), Department of Health.
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Advice for using person-centred thinking, planning and reviews in schools and transition
disabled young people to have the same life Setting the context
chances as their non-disabled peers.
Research has shown that the statutory special
Good person-centred transition planning educational needs processes, designed to
provides young people and their families with support young people, are experienced as
information about how they can be supported ‘confusing and complex and that there are too
to move into adulthood and to do the things few opportunities for young people leaving
they want. When used in conjunction with school’.7
personal budgets and the right support in key
areas such as employment, it enables people Aiming High for Disabled Children launched a
to have equal life chances and full lives. transformation programme for disabled
children’s services and introduced the Transition
Person-centred planning is most successful Support Programme.8 The Transition Support
when used within organisations that have Programme will help disabled children and
embedded a person-centred culture that raises their families benefit from intensive, co-
the expectations and aspirations of young ordinated support and person-centred
people, their families and the staff who work planning. There is a particular emphasis on
with them. These organisations learn from and the involvement of young people and their
use information from person-centred reviews families in review meetings so that young
to improve the way they deliver services for people’s aspirations can be explored. Aiming
children and adults. The workbook therefore High cites the Valuing People person-centred
includes examples of how person-centred transition review programme as one example
approaches can be used to inform the of best practice.
performance of organisations (for example
through school development plans) and Research into good practice in transition
inform commissioning and delivery. planning for young people with disabilities
suggests that:
While this workbook focuses mainly on
transition, it acknowledges that person- ●● the process for managing transition needs
centred approaches are most effective when to be individual to the needs and
used from birth. When used in the early years aspirations of the young person;
and in schools, person-centred thinking and
approaches enable agencies to listen to what ●● the process needs to be spread out over a
is important to each individual person and number of years, starting at the transition
what that person brings to society. They help review following the young person’s 14th
children and families learn how to determine birthday, with reviews held annually;
their lives and they challenge stereotypes of
low expectations. ●● statutory processes for transition need to
be used consistently; and
4
Advice for using person-centred thinking, planning and reviews in schools and transition
●● adult and children’s services need to work disability partnership boards. In relation to
together to ensure that young people young people moving into adulthood, it
maximise their life chances as they enter recommends that every young person with a
young adulthood.9 learning disability and with a statement has
regular person-centred reviews between the
Aiming High also emphasises that ‘Transition ages of 14 and 19.
planning and transition services need to be
seen as a way to enable and support disabled It also recommends that the transition plan
young people to move towards and onto a has clear actions around health, housing,
new stage of life rather than from one service employment and friends.
to another. Much good practice exists – but it
needs to be pulled together and made Valuing Employment Now sets out the
consistent.’10 ambitious vision of radically increasing the
number of people with moderate and severe
The effectiveness of personalised approaches learning disabilities in employment by 2025.12
is one of the five overarching themes of the The Government aspires to closing the gap
second year of the Transition Support between the employment rate of people with
Programme. The other focus areas are: learning disabilities and that of disabled people
generally. If that gap were closed today, 48%
●● the participation of disabled young people of people with moderate to severe learning
and their families; disabilities in England would be in real jobs.
This means that around 45,000 additional
●● joint assessment processes within children’s
people with learning disabilities would be in
trusts and adult services;
employment.
●● realistic post-16 opportunities for living
life; and The strategy recognises the importance of
supporting young people with learning
●● strategic joint partnership working. disabilities in planning for work while they are
at school. This means providing good person-
Person-centred thinking and planning, and centred transition planning, work experience,
person-centred reviews, have been shown part-time work and support for employment.
to help to support these focus areas. It also recognises the importance of raising
aspirations and expectations.
Valuing People Now is the updated national
strategy for people with learning disabilities.11 Person-centred thinking and planning and
It sets out what is expected of local learning person-centred reviews are important ways
9 � Aiming High for Disabled Children (AHDC): Better Support for Families (2007), HM Treasury and
Department for Education and Skills.
10 Aiming High for Disabled Children (AHDC): Better Support for Families (2007), HM Treasury and
Department for Education and Skills.
11 �Valuing People Now (2009), Department of Health.
12 Valuing Employment Now: Real Jobs for People with Learning Disabilities (2009), Department
of Health.
5
Advice for using person-centred thinking, planning and reviews in schools and transition
6
CHAPTER 1 �
Using person-centred approaches
in schools and in transition
The Every Child Matters: Change for Children One of the ways in which people can
programme is focused on giving every child contribute to society is through paid work.
the support they require, whatever their Personalised learning is central to raising
needs, abilities, background or standards and is critical in working towards a
circumstances.13 This objective ties in closely society where a child’s chances of success are
with the emerging emphasis on personalised not limited by socio-economic background,
learning, which is a key aspect of the New gender, ethnicity or any disability. The new
Relationship with Schools. Every Child Matters personal learning and thinking skills
and the government’s personalisation agenda framework seeks to develop the qualities and
require schools to explore ways to focus on skills that learners need for success in learning
keeping the child at the centre of the and in life. One way to deliver this is through
curriculum and of school life as a whole. If using person-centred thinking. Person-centred
Every Child Matters is to be an integral part of thinking tools have emerged from person-
the curriculum, it needs to be built into every centred planning, which the government
aspect of school life. There needs to be an wants to make available for everyone.14
emphasis on personal development,
promoting learners’ well-being and enabling The following table summarises some of the
them to develop their potential as healthy, most common person-centred thinking tools
enterprising and responsible citizens. and how they can be used with children and
young people.
Person-centred What this tool can do How it can be used with How it can be used
thinking tool children and young within schools and
people colleges
What is Identify what matters To create a one-page To create one-page
important to to the young person profile that captures profiles for staff as part of
you and what is and what is important what matters to them supervision and appraisal
important for for them to stay and how best to support as the basis of a person-
you? healthy and safe, and them, along with what centred team plan.15
find a balance people like and admire
between them. about the young person.
This can then form the
basis of a person-centred
plan.
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Advice for using person-centred thinking, planning and reviews in schools and transition
Person-centred What this tool can do How it can be used with How it can be used
thinking tool children and young within schools and
people colleges
What is Capture young As an opportunity to To develop a vision of
important in people’s ideas and share information about what is important in the
the future? aspirations about what is possible (e.g. future for the school.
their future. paid work) and an
To develop a display of
important part of a
dreams and aspirations.16
person-centred review.
What is Explain the To build a personal To discover and record
important importance of profile that can be used individual strengths,
about work? contributing through and added to throughout interests and skills that
work. the young person’s will be useful to a future
journey through work employer; and to provide
experience and paid jobs information about
to a life-changing career. funding and support to
facilitate successful entry
into work.
What is Help young people to As a way to look at To inform the school’s
working/not reflect on their life issues from different improvement plan (see
working? and school perspectives, including description of Working
experience and to those of the young together for change on
agree on actions to person, families, staff page 26) and its Disability
continue what is and other professionals. Equality Scheme and
working and change Access Plan.
To enable us to share
what is not working.
and build on what is As a part of consultation
Help to prevent us working and to identify process – asking young
from inadvertently what is not working, people and families what
changing aspects of a who it is not working for, is working and not
young person’s life and what can be done working about elements
that are working and about it, as part of a of school life.
are important to person-centred review.
them.
16 www.helensandersonassociates.co.uk/norrisbankschool/2009/10/
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Advice for using person-centred thinking, planning and reviews in schools and transition
Person-centred What this tool can do How it can be used with How it can be used
thinking tool children and young within schools and
people colleges
Like and admire Provide a way to To create ‘feel good’ To recognise and
appreciate the folders for young people appreciate the qualities of
positive qualities of a that describe what other team members.
young person. people appreciate about
them. This helps staff
working with the young
person to understand
what other people like
and admire about the
young person and
counter a focus on what
is ‘wrong with’ them, as
part of a one-page
profile and person-
centred review.
Relationship Provide a way to To identify relationships To identify key
circle identify who is in a that can be strengthened stakeholders in
young person’s life. and developed. connection to the school,
as part of strategic
planning.
Communication Provide a way to To provide vital Helps the class explore
charts describe in a simple information where the different ways that
chart how the young young people do not use they communicate with
person communicates words to communicate. one another.
through their
behaviour, and how
people communicate
with them.
The doughnut Identify specific As a way to clarify who As the basis of home–
responsibilities – what is responsible for what in school agreements.
is core, where people a young person’s life.
To clarify roles and
can use their Helps learning support
responsibilities in a staff
judgement and assistants, teachers and
team.
creativity, and what is other staff to know what
not part of the job of their core responsibilities
paid staff. are and where they can
use creativity and
judgement in relation to
an individual young
person.
9
Advice for using person-centred thinking, planning and reviews in schools and transition
Person-centred What this tool can do How it can be used with How it can be used
thinking tool children and young within schools and
people colleges
Learning log Record what As a way of recording For reflection on and
happened and what situations that focus on evaluation of progress
was learned. learning. Could be used and learning with a
as a structure for young person around a
communication books specific issue (e.g. for a
with families, recording, young person who is
for example, what the having difficulties at
young person did, who lunchtime).
was there, what did the
young person like/not
like about the activity,
and what needs to be
different next time.
‘Using person-centred thinking in mainstream schools enables staff to understand and respond
to the needs of the young person as an individual and enables working partnerships with
greater understanding. Person-centred thinking puts us in a position to shape and have
influence over our own lives.’
Linda Jones, teacher consultant, Birmingham Educational Psychology Service
10
CHAPTER 2
One-page profiles �
As well as improving the review process, thinking and planning, and she developed
person-centred reviews also generate enough Jennie’s plan. The plan has been used in school
person-centred information to compile a and now college, and added to and updated
one-page profile. A one-page profile is one over the last five years.
way to begin a person-centred plan.
11
Advice for using person-centred thinking, planning and reviews in schools and transition
‘I like to see my friends outside of school and Linda Jones, a teacher consultant with
I like playing basketball with them. Everyone Birmingham Educational Psychology
knows this now because of my profile. Also, Service, has been working with a member
my friends read my profile so it helps them of staff from the Behaviour Support Service
understand me better.’ to train staff from the Pupil Referral Units.
Adam, a young person who has They are using the person-centred thinking
a one-page profile tools ‘What is important to you and what is
important for you?’ and ‘What is working/
‘One-page profiles have taught me how to not working?’ to include young people’s
really listen. Beforehand I thought I was views in their IEPs. They have also
listening to young people but I wasn’t. One- introduced the idea of using one-page
page profiles are about really getting to the profiles to replace IEPs and developed ideas
core of what makes young people tick and with staff in the units about using person-
then takes that and moves it forward. This centred thinking to work with children and
work also throws up things you would have young people as they come to the centres
never known about the young person and and as they are supported back into
would never have thought of.’ mainstream school.
Deputy head, Abbey Hill School,
Stoke-on-Trent
Using one-page profiles to
Person-centred thinking and contribute to personalised
Individual Education Plans learning
One-page profiles are also beginning to form Abbey Hill School in Stoke-on-Trent uses
the basis of Individual Education Plans (IEPs), one-page profiles in the planning and
providing a stronger focus on what matters to delivery of the school curriculum. Each
the young person’s education from their point child’s profile is posted on the wall, with
of view. The IEP is then built on as the young actions related to it highlighted. The actions
person moves towards transition. form the basis of some of the children’s
school targets.
Jack Tizard School in London has made
one-page profiles a formal target in its At Jack Tizard School, staff have been
school development plan. Strategic target 2 linking person-centred thinking to their
is ‘To enable pupils to develop personally’ curriculum. For example, in the personal,
and this year’s target is ‘to develop one- social, health, citizenship, environmental
page profiles to feed into the school education (PSHCEE) curriculum they have
development plan as the learner’s voice’. been using the information from a young
person’s one-page profile about what they
love to do in their local community. As
young people experience different learning
opportunities and try different things in
their PSHCEE modules, the learning is also
fed into their one-page profile.
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Advice for using person-centred thinking, planning and reviews in schools and transition
In a mainstream school in Stockport, the through the curriculum and further person-
deputy head and inclusion adviser have centred reviews. Person-centred plans and
been using one-page profiles and person- one-page profiles address fundamental
centred thinking as part of the social and questions: What do people like and admire
emotional aspects of learning (SEAL) about the person? What is important to the
curriculum. person now and in the future? What is the
best way to support them? Other headings
and information can be added to the profile
Growing and developing the in relation to what is important to and for
information from a one-page the child or young person from a range of
profile perspectives. Julie’s 9.00 – 3.15 plan (see
below) is an example of a more detailed plan
One-page profiles are not a replacement for a that includes other person-centred thinking
person-centred plan but a way to get started. tools and describes what is important to Julie
They can be started in class or based on a and how best to support her during the
person-centred review. They can be developed school day.
JULIE
9 – 3.15 Person Centred Plan
First draft – April 2006, for review in June 2006
Sometimes Julie will ‘copy’ the behaviour of other children (even negative) You
need to know that she often sees this as a game. If you see her doing this,
distract her with an activity that she likes.
www.helensandersonassociates.co.uk Page 1
About staying healthy and safe…
Julie needs someone with her at all times (both indoors and outside)
Julie needs you to help her across the road. She also can
find it difficult to distinguish between the road and the pavement. Therefore if you
are walking with Julie, make sure that you are walking on the road side, and that
she is close to you.
Julie sometimes finds it difficult to sleep which means she can feel tired during
the day. When she feels tired things like walking can be difficult for Julie (see
communication chart)
When tired Julie can also get upset and won’t respond to what you would like her
to do.
Julie has hypothyroidism which means she experiences lethargy and tiredness
sometimes.
www.helensandersonassociates.co.uk Page 4
13
CHAPTER 3
Person-centred reviews �
17 Wertheimer A, Persons Centred Transition Reviews (2007), Valuing People Support Team.
14
Advice for using person-centred thinking, planning and reviews in schools and transition
●● What do we appreciate about the person? The headings used are important, as they are
(This may be called ‘Like and Admire’.) used by commissioners to inform strategic
commissioning around transition and can also
●● What is important to the person now? be used by schools to inform the school
improvement plan. This approach is described
●● What is important to the person in the future? more fully in recently published DH guidance.19
●● What is ‘best support’ for the person, to Person-centred reviews are opportunities to
enable them to stay healthy and well? explore and act on what is possible for young
people. The Valuing People Support Team
(VPST) commissioned a DVD called After
18 Working together for change: using person-centred information for commissioning (2009),
Department of Health.
19 Working together for change: using person-centred information for commissioning (2009),
Department of Health.
15
Advice for using person-centred thinking, planning and reviews in schools and transition
School – What’s Possible specifically for young discussed and agreed by everyone, and
people and their families to watch before their therefore the targets would pinpoint the real
Year 10 reviews.20 The DVD shows young areas of concern. The meeting can be
people and their families talking about their summed up in the words of the class teacher
lives, and what it is like to have paid work, go who stated, “I found the meeting amazing. I
to mainstream college, use person-centred feel like I have turned a corner with him.”
thinking and planning, employ a support After the meeting, the minutes have to be
broker and have your own home. typed up on the official paperwork and
submitted to the authority. But more
Jennie (see Chapter 2), her mum Suzi and her important for us is the immediate impact
circle of support are featured on the DVD. the meeting had on all of us. Having this
At Jennie’s Year 10 review, one of the actions opportunity to really open up was very
identified was to create a circle of support for liberating. It means that targets are really
Jennie. The circle met with Jennie and her personalised and meaningful, as well as
family every few months to discuss her future, being clearly understood by all involved
and what was possible for her. They used a with the pupil. We will develop a more
person-centred planning tool called Planning detailed one-page profile from the review
Alternative Tomorrows with Hope (PATH), information to support the pupil on a daily
which focuses on the future. Jennie now has basis, and especially for when new teachers
her own flat (and mortgage!), and is leaving and adults come in to work with him. This
college shortly after her 19th birthday next one-page profile will clearly reflect the
year. She is using her personal budget to strategies that do work best, and gives
purchase support from a local provider, who adults and the pupil the chance to work at
will employ her staff and work with her circle. their very best.’
Her one-page profile has grown into a detailed
person-centred plan over the last five years.
Innovative special and mainstream schools are
Her circle used her person-centred reviews to
now delivering person-centred reviews for all
begin to put together a support plan for her
their pupils.
personal budget.
20 After School – What’s possible? Person Centred Transition Reviews, Helen Sanderson Associates, CSIP,
Valuing People, In Control, London Borough of Newham. Available from Inclusion Distribution at:
www.inclusiononline.co.uk/videos_aone.html.
16
Advice for using person-centred thinking, planning and reviews in schools and transition
17
CHAPTER 4 �
Person-centred reviews and indicative
allocations
Person-centred transition planning helps
young people and their families prepare for
Learning and Living Now project
the future. Young people with disabilities can
The Learning and Living Now project,
have a direct payment from age 16. Direct
funded by the Learning and Skills Council
payments are received instead of social
(LSC), aimed to explore and pilot a holistic
services, and individuals can use them to pay
approach to supporting young people with
for the services and support they need. This
a learning disability between the ages of 16
could include paying for someone to help
and 25 that would help them to plan and
them with a job plan or support plan. Once
manage the funding they are entitled to
18, they may be eligible for a personal budget
from a range of sources. The project was
from the local authority along with funding
based on the seven-step Self Directed
from Department for Work and Pensions
Support model, and focused on linking the
(DWP) funding streams (for example, Access
resource allocation system and support
to Work).
planning process to the individual’s learning
aspirations and needs (see diagram on
Ideally, a young person and their family will be
page 18).
informed about their indicative resource
allocation before their Year 10 person-centred
This model enabled young people to use
review. The Year 10 review can therefore
their combined social care, health and
trigger the formation of a support plan, which
learning budgets (including LSC funding,
will be developed and then agreed as the
health funding, Independent Living Fund
young person leaves school with their personal
(ILF) and other funding streams) in the best
budget. This approach has been piloted in
way for them, while also meeting the
Lambeth, where young people and their
expectations of the funding agencies. This
families began to develop their support plans
created a personalised and cost-effective
on the basis of the person-centred information
approach to learning and living support.
gathered at their Year 10 reviews. Families
then had the opportunity to use the ‘Planning The project was delivered in two LSC
Live!’ process to complete their support plans regional areas, and was co-ordinated by
in real time over two days alongside other Mencap working with national and local
young people and families.21 partners as well as young people and their
families. The project focused on three key
areas:
18
Advice for using person-centred thinking, planning and reviews in schools and transition
19
Advice for using person-centred thinking, planning and reviews in schools and transition
Jamie is 19 years old and is one of the The support planning process helped Jamie
young people being supported by the and his family to get all the funding he was
Hamelin Trust, a small local support entitled to, and he now receives funding
provider in Essex, as part of the Learning from the local authority, LSC and the ILF as
and Living Now project. His family, with well as an income through his benefits. The
the support of the Connexions service, Hamelin Trust and Thurrock College
applied to out-of-county specialist developed an Individual Service Fund for
residential colleges because of the lack of Jamie to make sure that his funding is used
local specialist learning provision. Jamie flexibly and cost-effectively to provide the
was turned down by these colleges because learning and living support he wants and
they felt unable to meet his everyday needs.
personal support needs.
20
CHAPTER 5
Person-centred transition planning
and employment �
The person-centred approach provides a premise that severely disabled people can
framework within which we can increase work, but are unlikely to be able to compete
the life chances of disabled young people. in the open labour market, even with
In relation to employment, it is vital that adjustments. Instead of trying to find a
transition planning is combined with best suitable existing vacancy, a job coach analyses
practice in terms of supported employment. job descriptions to identify unmet employer
If schools and colleges as well as families need. During a process of ‘discovery’, the job
include in young people’s activities specific coach finds out which tasks the individual
tasks and skills in areas such as good time could do and enjoy. They look for unmet
management, team working, completing/ employer need in these areas and broker a job,
finishing work and/or problem solving, and then supporting the person in work.22
record what they can do in these areas, they
will be well on the way to supporting these Customised supported employment is based on
young people in planning for an ideal sound supported employment practice. It
employer and job. Many of these young involves using additional person-centred and
people, however, will still require some employer-led approaches to discover and
support to get and keep the career they want. negotiate new job descriptions based on the
strengths of the individual job seeker and of the
Supported employment particular needs of the employer.
Supported employment refers to systematic For a variety of reasons, some people may
ways of listening to individuals and supporting prefer to become self-employed after
them in getting paid jobs. The supported discovering what they are really good at and
employment process includes developing a what they have to contribute through
vocational profile, individualised job searching, employment. Self-employment involves
matching jobs to individual strengths and running your own business and taking
interests, and helping the person to learn and responsibility for its success or failure. It
perform the job successfully. It may include includes having several customers at the same
systematic instruction. time, deciding how, when and where you do
your work, hiring other people to work for
For those people who are furthest from you or help you and providing the main items
employment, supported employment services of equipment to do your work.23
need to be able to deliver customised
supported employment. This combines Research has indicated that the combination
supported employment with techniques from of well-structured work awareness training
person-centred planning, and is based on the provided through schools and/or colleges, and
22 Definition of customised supported employment taken from Valuing Employment Now: Real Jobs for
People with Learning Disabilities (2009), Department of Health.
23 Bates K, In Business: Quick guide to self-employment (2009), Foundation for People with Learning
Disabilities.
21
Advice for using person-centred thinking, planning and reviews in schools and transition
24 Beyer S, Kaehne J, Sheppard K, Meak A, What works? Transition to Employment for Young People
with Learning Disabilities (2008), Shaw Trust.
22
Advice for using person-centred thinking, planning and reviews in schools and transition
It made me think: why did Rob get work at At the review, we got a few dreams from
when he was 14 or 15? Well, he wanted Chris:
guitar lessons and with our help and
contacts he started various jobs. In the ●● to go to America;
beginning he made mistakes and there were
a few tears, but we supported him and ●● to see the wrestlers; and
helped him make decisions – we never said
●● to be a drummer.
he couldn’t work and that he wasn’t mature
enough. The work over the next few years,
Why don’t we all take it seriously? – Why
especially the full-time work after leaving
did we say, ‘Wouldn’t we all like to go to
school, really brought out the best in him,
America’? Why does he have to be limited
and I saw him mature and become more
to Butlins and drumming on the Wii (though
confident with others – he started having
we did suffer wrestling at Butlins one year;
conversations with us at the table! He then
which he loved). We need to make sure that
changed paths and decided to go to music
we revisit these person-centred plans – and
college. He chose – and he got the help and
act on them.
advice he needed to do this and live away
from home. Now Rob wants to go to see Berkeley
College in Boston – and he will go one day –
So then I thought, Chris doesn’t really ask
because he will keep talking about it in
for things, but when he did want, say, a
conversations and he will make it happen.
Playstation game, why didn’t he work for it?
Why don’t we all try to help Chris think Chris still needs lots of support – he is still
ahead and about the future? What is the learning. I am not going to be unrealistic: his
point of reviews, and what does Chris gain speech is unclear, he doesn’t like to answer
at these meetings where we are filling in a questions to unfamiliar people, he can still
form for the local authority? only count from 1 to 20 (but he loves grid
references!), he doesn’t know how to sort
At the meeting in Taunton, Mark from Pluss
out problems/challenges... the list is endless.
(a supported employment service) was on
my table and he has helped me ever since to But he has brightened my day for 18 years
stay positive about Chris working. With with his smile, and he could do this in a
Anne’s help, we wrote a profile – and this workplace.
was such a positive thing to do, because as a
parent of a teenager with special educational
needs you can easily get ‘bogged down’ at The Getting a Life programme
this stage of life and focus on all that they
can’t do. Getting a Life is a cross-government
programme, funded by the Department of
Through the Getting a Life programme, we Health (DH), the Department of Children,
were able to change the next school review Schools and Families (DCSF), the Department
and make it more person-centred – and so for Business, Innovation and Skills (BIS), the
the journey to paid work and adulthood Department for Work and Pensions (DWP)
started. and the Office for Disability Issues. It was set
up in April 2008 to find out about the barriers
23
Advice for using person-centred thinking, planning and reviews in schools and transition
facing young people with learning disabilities available to enable young people to move
leaving school or college and getting paid jobs into work.
and full lives.
All of the young people in the Getting a Life
Getting a Life is working in 12 local authority programme have person-centred reviews from
areas around the country. Each demonstration Year 9 onwards, and are thinking about what
site has a multi-agency project team, which type of jobs they want. The employment
includes people with learning disabilities and pathway, which is based on the experience of
their families, and representatives from local sites, recommends that once this
children’s and adult services, Jobcentre Plus, planning is done, young people have
Connexions, Learning and Skills Councils and meaningful, community-based work
supported employment agencies. experience in Year 10, chosen on the basis of
their career choices. Their career plans are
Each team is working with 30 young people then amended and developed in the light of
with severe learning disabilities between the the work experience.
ages of 14 and 25 who are helping the system
to learn about what needs to change. The It is vital that in Year 11 there is a thorough
teams are working directly with young people exploration of what the young person will do
and their families to plan their careers and next to maximise their chances of getting a
lives so that they can go into full-time job that they want. It is important that local
employment and have equal life opportunities. services work to enable young people to
The programme aims to open up effective access the full range of college curricula and
local pathways into employment and full lives. especially courses that are linked to the jobs
that they plan to do. The Getting a Life sites
The following are some of the key messages are looking at how to develop the range of
from the programme: post-16 options. Possibilities include:
24
Advice for using person-centred thinking, planning and reviews in schools and transition
severe learning disabilities to secure and keep Work and work experience
full-time paid permanent jobs.
Sharon’s one-page profile shows how knowing
Young people can use their personal budgets what young people with learning disabilities
to pay for support from a local supported find important and what support they want
employment service such as a job coach. The can help them to lead meaningful and
job coach can then help them to plan for their enjoyable working lives.
employment after school. In order for this to
be successful, supported employment agencies Young people can use their personal budgets
need to be able to work with young people to pay for support from a local supported
during transition. In addition, local systems employment service job coach. The job coach
have to identify how the individual’s can then help them to continue planning for
person-centred transition plan and career plan their employment after school.
will inform the support plan for their personal
budget and other funding streams that can be
used for training and employment support,
such as Access to Work and Additional
Learning Support. The Getting a Life sites are
identifying ways to make this happen at a
local level.
25
Advice for using person-centred thinking, planning and reviews in schools and transition
26
CHAPTER 6
Using person-centred information to
inform school development plans,
transition strategies and local services
Person-centred reviews can create change for young people is about. Every Child Matters:
young people, provide the information needed Change for Children talks about participation
as the foundation for support plans and for with children and young people. This means
getting work, and contribute information for asking them what works and doesn’t work
strategic change in schools and colleges. This and what could be better in involving them
process is known as Working together for in the design, delivering and evaluation of
change.25 In addition, it has been used in services on an ongoing basis.26 Working
several schools to inform transition planning together for change is one way to achieve this.
and contribute to school development plans. The process uses information from person-
centred reviews under the following headings:
Every Child Matters: Change for Children
states that true participation with children and
25 Working together for change: using person-centred information for commissioning (2009),
Department of Health.
26 Every Child Matters: Change for Children (2004), HM Government.
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Advice for using person-centred thinking, planning and reviews in schools and transition
‘What works?’, ‘What doesn’t work?’ and One of the issues raised was that employment
‘What is important to you in the future?’. was not often mentioned in reviews, and the
group spent time thinking about the reasons
The example opposite shows what some for this. Some feedback indicated that people
young people said was not working about involved in Year 9 and Year 10 reviews didn’t
communication, and how this information know what was possible in terms of supported
was used to agree targets for change. employment or understand the positive
impacts of having a job.
The Getting a Life programme demonstration
sites are using the Working together for The group identified actions to address this
change model to find out how local services problem, including:
and systems need to change in order to ensure
that young people go into paid employment ●● employing a transition support
and lead full lives when they leave school or employment officer who would attend
college. reviews from Year 9;
The team in North Tyneside looked at the ●● reviewing the person-centred planning
person-centred transition reviews of 30 young process in Year 9 to initiate a career plan;
people aged between 14 and 25, and and
identified key themes in each case: what was
working for the person; what needed to ●● working with the local multi-agency
change; and what was important for them in Getting a Life team to provide accessible
the future in relation to employment. Young information for young people and families
people, families and senior decision-makers about the possibilities and positive aspects
responsible for supporting young people in of work and how to get help locally.
gaining jobs (for example in education,
Connexions, Jobcentre Plus, local authority
children’s and adults’ services, employment
services and LSC) shared this information at a
co-production event.
28
Advice for using person-centred thinking, planning and reviews in schools and transition
29
CHAPTER 7
How will you know if you are
successful?
The information for this section has been developed through the Getting a Life programme.
30
Advice for using person-centred thinking, planning and reviews in schools and transition
31
Links to useful resources �
Books Getting a Life programme
Sanderson H, Murray P, Developing Person www.gettingalife.org.uk
Centred Approaches in Schools (2007), HSA
Press. Available from Inclusion Distribution at: The website of the Getting a Life programme
www.inclusiononline.co.uk gives more information about the programme,
along with news and stories of young people
Person-centred Reviews (in press) who are getting a job and getting a life.
32
Acknowledgements �
With thanks to:
33
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