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ORIGINAL ARTICLE

Assessing the Quality and Reliability of Patient Information


Regarding First-Aid for Acute Burns on YouTube

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David Parizh, DO , Maleeh Effendi, MD, Elizabeth Dale, MD and Julia Slater, MD

Given ever increasing ease of access to technology, the majority of adults first turn to the internet for medical
advice. The world wide web is filled with user-generated content within multiple social media platforms that lack a
governing body to validate the information’s accuracy and reliability. The authors performed a qualitative review of
first-aid burn resources available on YouTube using two validated scales: Modified Discern and Global Quality Scale.
A search was conducted using the term “burn treatment” on September 18, 2019. Of 120 reviewed videos, 59 met
their inclusion criteria. 36% (n = 21) of the speakers had formal medical training, with only 12% (n = 7) identified
as burn care professionals. The mean views originating from nonmedical speakers (162,675) were more than eight
times that originating from burn centers (14,975). The quality of the videos was compared by video source, speaker,
and specialty. Burn centers had the highest Modified Discern and Global Quality Scale scores, 2.91 and 2.86,
respectively (P < .05). Additionally, the authors were able to demonstrate that there was a statistically significant
higher quality of videos when the speaker was a burn care professional or had formal medical training. Unfortunately,
their review demonstrated that videos originating from hospital systems and burn centers made up a minority of the
online media content. These results illustrate an opportunity for improvement by way of increased content creation
to bolster the online presence of the burn community and provide patients with more accurate information.

Since Tim Berners-Lee invented the World Wide Web in of fire or burn injury patients treated in the emergency de-
1990, the internet has become integrated into our daily lives.1 partment were discharged with outpatient follow-up.7 Given
As of January 2020, there are 2.45 billion active Facebook the high numbers of known outpatient burns, we predict that
(Facebook, Inc., Menlo Park, CA) users and 2 billion active there are even more unknown patients with small, nonlife
YouTube (Google, LLC, San Bruno, CA) users.2–4 These threatening burns that are treating their injuries at home
platforms have reshaped traditional communication and mul- using only internet resources. In an attempt to assess if the
timedia with a shift to large-scale user-generated content burn community was keeping up with virtual patient needs,
across multiple social media platforms. Users are freely able to we conducted a qualitative review of first-aid burn resources
post original content without a governing body to validate the available to patients on YouTube. Our hypothesis was that the
quality and accuracy of information. YouTube is a free video quality of videos would be higher if the speaker was a burn
sharing platform that was started in 2005 and features a wide care provider.
variety of user-generated content ranging from music and
game videos, to educational clips making it a leading online
destination for millions of users around the world. It is owned METHODS
by Google, whose worldwide market share amongst the YouTube is a free video sharing platform that was started in
leading search engines was almost 88% in October 2019.2–4 2005 and features a wide variety of user-generated content
The increased availability of user-generated content has ranging from music and game videos, to educational clips
profound implications in healthcare delivery as 70% of adults making it a leading online destination for millions of users
first turn to the internet to seek out medical information.5,6 In around the world. It is owned by Google, whose worldwide
response to this, social media use by medical professionals has market share amongst the leading search engines was almost
increased in an attempt to advance specialties and improve the 88% in October 2019.2–4 For these reasons, we chose to ex-
quality of patient care delivered. Websites, social media pages, plore this video sharing platform. Using Keywords Everywhere,
and online videos are posted for public viewing by providers a browser add-on for Google Chrome, we crosschecked var-
from nearly all medical specialties. ious phrases and words that patients may use in their search
Most burn injuries are not severe enough to require admis- for information on how to treat a burn. “Burn treatment”
sion to a burn unit. Between the years 2011 and 2015, 91% was found to be the most commonly searched phrase. This
was verified using another product called Google Trends that
From the Department of Surgery, Division of Plastic, Reconstructive, Hand and allowed us to validate an arbitrary search phrase using publicly
Burn Surgery, University of Cincinnati Medical Center, Ohio
available statistical data.
Address correspondence to David Parizh, DO, University of Cincinnati Medical
Center, 231 Albert Sabin Way, OH 45267-0558. Email: parizhdd@ucmail.uc.edu An incognito search on YouTube was conducted on
© The Author(s) 2020. Published by Oxford University Press on behalf of the
September 18, 2019. A digital snapshot of the links was stored
American Burn Association. All rights reserved. For permissions, please e-mail: so that the content would not be altered while being reviewed.
journals.permissions@oup.com. A total of 120 videos or the first six pages of search content
doi:10.1093/jbcr/iraa135 was analyzed. We excluded any duplicates, videos with news

1
Journal of Burn Care & Research
2  Parizh, Effendi, Dale, and Slater XXXX/XXXX 2020

Table 1. Modified Discern tool description


Modified Discern

1. Were aims clear and achieved?


2. Were the sources of information reliable?
3. Is the information balanced and unbiased?
4. Are additional resources to learning provided?
5. Does the video address areas of controversy/uncertainty?

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Total of five questions, a point is allocated for each question answered, yes.

or promotional content, and videos that were not in English.


The total view count, training level, specialty of speaker,
and source of medical information (ie, hospital system, burn
center, or other) were recorded.
The entire set of videos were reviewed independently by
two different physician reviewers (D.P. and M.E.) and scored
using two validated scales—Modified Discern (MD) and
Global Quality Scale (GQS).8–10 The MD and GQS are both Figure 1. Video production source breakdown.
graded on a five-point scale for reliability and quality (Tables 1
and 2). A score of 1 would be least reliable, and a score of 5
would be considered most reliable. The reviewers were Plastic
Surgery Residents, with one of them having formal Burn
Fellowship training. In the event that there was more than
one likert point discrepancy between the two reviewers, the
video would be reviewed by a third reviewer (J.S.) who is a
Burn Surgeon.
Descriptive statistics were computed using a combination
of Microsoft Excel (Spokane, WA) and Stata SE 13.0 (College
Station, TX). Comparison between groups using Student’s
T-test and ANOVA were performed with a P-value threshold
of .05. Inter-rater reliability assessment to determine scoring
consistency among raters was performed using Cohen’s κ.
Furthermore, absolute agreement between raters was calcu-
lated using the recorded GQS and MD scores.

RESULTS Figure 2. Training level of speaker in video breakdown.

Of the 120 videos reviewed, 59 met our inclusion criteria and Table 2. Global Quality Scale tool description
were analyzed. The majority (n = 39, 66%) of the videos were
generated by users outside of the hospital setting (Figure 1). Global Quality Scale
The speaker in the video was considered to have formal med- 1. Poor quality, very unlikely to be of any use to patients
ical training if they were an advanced care provider or a phy- 2. Poor quality but some information present, of very limited use
sician. Only 36% (n = 21) of the speakers had any formal to patients
medical training (Figure 2). Additionally, only 12% (n = 7) 3. Suboptimal flow, some information covered but important
of the speakers were identified as being burn surgeons, 3% topics missing, somewhat useful to patients
(n = 2) were trauma/emergency medicine providers, and the 4. Good Quality and flow, most important topics covered and
remainder were grouped together under the category of other useful to patients
(Figure 3). 5. Excellent quality and flow, highly useful to patients
The mean view count of videos originating from burn
centers was 14,975. Hospital systems had the greatest mean Scored on a scale from 1 to 5, based on the above criteria.
views at 162,675. Taking into account the higher prevalence
of videos from nonmedical sources and performing a weighted with other sources. The quality of the videos was higher if the
average of the view counts, we find that the mean number speaker had formal medical training, MD of 2.43 and GQS
of views per video are as follows: burn center (365), hospital of 2.6 (P < .05). Burn surgeons had the highest MD (2.93)
system (35,267), and other (99,701) (Table 3). and GQS (2.86) scores compared with Trauma/Emergency
The mean MD and GQS were determined for each Medicine providers and other speakers (P < .05).
video and compared by video source, speaker, and specialty Inter-rater reliability analysis using Cohen’s κ revealed κ
(Figures 4–6). Burn centers had the highest MD and GQS values of 0.41 and 0.47 for GQS and MD scoring, respec-
scores, 2.91 and 2.86, respectively (P < .05), when compared tively. Both of these values were found to be statistically
Journal of Burn Care & Research
Volume XX, Number XX Parizh, Effendi, Dale, and Slater  3

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Figure 5. Mean GQS/MD vs Speaker.
Figure 3. Breakdown of physician specialty of speakers in video.

Table 3. Total number of views vs video source depicted as


a mean and weighted mean
Total Number of Views vs Video Source

Mean Weighted Mean

Burn center 14,975 365


Hospital system 162,675 35,267
Other 131,393 99,701

Figure 6. Mean GQS/MD vs Specialty of Physician.

in burn care delivery, including the Emergency Medicine and


first responder teams, all capable of providing comprehensive
patient education through online social media platforms. Our
focus was assessing specifically the social media presence of
the inpatient treating team, as well as the overall quality of the
videos present.
We arbitrarily defined a speaker with formal medical
training as one with a minimum of an advanced care provider
degree. The quality of the videos was higher if the speaker had
Figure 4. Mean GQS/MD vs Video Source. formal medical training (Figure 5). Burn and ED physicians
represent a minority of the speakers in the videos reviewed
with the remainder of the speakers placed in the category of
significant (P < .05). These values of κ represent a “moderate other (Figure 3). The grouping of advanced care providers
amount” of agreement between raters. Furthermore, absolute into this “other” category inflates the quality of videos.
agreement between raters was found to be 58% and 63% for This is likely why in Figure 6, the Trauma/ED physicians
GQS and MD scores, with expected agreement values of 28% had the lowest quality videos present. Unfortunately, videos
and 30%, respectively. generated from individuals outside of the hospital setting had
a mean view count that was more than eight times that of
DISCUSSION burn centers. The true MD and GQS of the majority video
content generated by nonmedical users is even lower than we
The foundation for burn care delivery is in a multidisciplinary demonstrated. The video content created by nonburn care
approach incorporating the expertise of the acute care burn professionals had a tendency to be misleading and inaccu-
surgeon, advanced care provider, nursing, nutrition, rehabili- rate. It is our opinion that the content would lead to a delay
tation, and social work teams. As such, there are many experts of appropriate treatment possibly resulting in infection and
Journal of Burn Care & Research
4  Parizh, Effendi, Dale, and Slater XXXX/XXXX 2020

increased need for admission. Occasionally the content was attempted to validate it as the most popular search term with
directly harmful to the patients by instructing them to apply publicly available search metrics. The video review tools, such
ice directly to their acute burn wounds, risking further tissue as MD and GQS, can be perceived as subjective; however, they
injury at the burn site. have been validated and employed for use in similar studies as
Through our review of video content on YouTube spe- noted. Lastly, we are not able to identify demographics spe-
cific to burn first-aid, we found that burn care professionals cific to our viewers as these data are not readily available to us.
were underrepresented on overall view counts despite having As we continue to become more efficient with our re-
higher quality videos. The majority of the videos available to sources, it is prudent that we take this opportunity and reflect
the public were generated by speakers who were nonburn care how we can grow with the digital times in all aspects of patient

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professionals. That is, of the 59 videos reviewed with a total of care. Investing in patient education empowers us as experts in
6.7 million views, only 164,000 (2.4%) views were generated our field, combating the misinformation created by nonburn
by burn centers. care providers. It not only allows us to provide higher quality
There are 72 burn centers located within the United care, but also promotes the value of our specialty. The power
States that are registered with the America Burn Association. of content creation, branding, and marketing are being
We conducted a search of online resources available to realized across multiple specialties. As the saying goes, “If a
our patients through their respective websites, and found tree falls in a forest and no one is around to hear it, does it
that only 26 (36%) had any digital resources available. make a sound?” If we are providing high quality care for our
Additionally, only 5 (6.9%) had specific video resources avail- patients, shouldn’t they see and know about it? Establishing
able on their websites. a social media presence gives us a platform for education and
Moving forward, there are multiple opportunities for im- a virtual voice to the public; it allows our sound to be heard
provement including an entire field of search engine optimi- in the forest.
zation. The first being content creation, which is something
that we as a community of burn care providers can easily con-
trol. Creation of comprehensive educational videos that entail REFERENCES
basic wound care needs, warning signs, and a direct line of 1. Andrews E. Who Invented the Internet? 2013; available from:
communication to a community burn center in our opinion https://www.history.com/news/who-invented-the-internet. Accessed
May 2, 2020.
would optimize health care delivery and resource usage. 2. Statista. Google Statistics and Facts: Statista; available from: https://
Additionally, there is an opportunity to extend video content www.statista.com/topics/1001/google/. Accessed May 2, 2020.
3. Statista. Internet: Statistics and Market Data about the Internet. 2020;
to incorporate discharge instructions and informed consent. available from: https://www.statista.com/markets/424/internet/.
Secondly, we can increase online foot traffic to our websites Accessed May 2, 2020.
by meeting search engine gold standards. This would increase 4. Statista. YouTube Statistics and Facts: Statista. 2020; available
from: https://www.statista.com/topics/2019/youtube/. Accessed May
your search ranking and includes but not limited to: posting 2, 2020.
often and being current; optimizing keywords; improving the 5. Prestin A, Vieux SN, Chou WY. Is online health activity alive and well or
overall “health” of our website infrastructure by decreasing flatlining? findings from 10 years of the health information national trends
survey. J Health Commun 2015;20:790–8.
links that are nonfunctional; and optimizing our website for 6. Chen AD, Ruan QZ, Bucknor A, et al. Social media: is the message reaching
mobile viewing. The implementation of these changes can the plastic surgery audience?. Plast Reconstr Surg 2019;144:773–81.
7. Haynes HJG. Fire loss in the United States during 2016. 2017; 1:1–37.
be tracked through monitoring of quality metrics such as Available from: https://www.nfpa.org/-/media/Files/News-and-
admissions, clinic visits, length of stay, Press Ganey scores, Research/Fire-statistics-and-reports/US-Fire-Problem/Old-FL-LL-and-
and surveys of staff. Additionally, we can engage the viewer Cat/FireLoss2017.ashx.
8. Bora K, Das D, Barman B, Borah P. Are internet videos useful sources
directly through embedded surveys within the video to judge of information during global public health emergencies? A case study of
real-time the utility and quality of our content. YouTube videos during the 2015-16 Zika virus pandemic. Pathog Glob
There are limitations to this study including the fact that we Health 2018;112:320–8.
9. Kumar N, Pandey A, Venkatraman A, Garg N. Are video sharing web
only examined the YouTube platform. There are many social sites a useful source of information on hypertension? J Am Soc Hypertens
media platforms that gain popularity over time; however, we 2014;8:481–90.
10. Oremule B, Patel A, Orekoya O, Advani R, Bondin D. Quality and relia-
chose to use YouTube due to its ease of accessibility and prom- bility of youtube videos as a source of patient information on rhinoplasty.
inence. The term “burn treatment” is arbitrary; however, we JAMA Otolaryngol Head Neck Surg 2019;145:282–3.
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Figure 3.

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