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Nutritional Guide
Nutritional Guide
Nutritional Guide
Nutritional Guide
Day to day life with a stoma presents many challenges
but food doesn’t have to be one of them
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Introduction
4
Urostomies –
Those who’ve had a urostomy are unlikely to need to change
their diet because usually the bowel has not been operated
on, however some people may have an ileal conduit which
involved surgery on their large bowel/colon. There is no strong
clinical-evidence that a reduced fibre or special diet is needed
after ileal conduit surgery, however your Doctor may ask you
to have a low-fibre diet up to 4 weeks after surgery to help
with healing. After this time, you should aim to include higher
fibre options throughout the day to help keep your bowel
movements soft and regular and to not cause pressure on your
conduit and urostomy. All of the information is likely to be
helpful for you, except for the parts that specifically mentions
bowel stomas as this does not include ileal conduit urostomies.
5
URINE PRODUCTION & BOWEL MOVEMENTS
Urine production
HEALTHY 1 2 3
PEE:
DRINK
4 5 6 7 8
MORE:
Colour changes In the first few weeks after urostomy surgery, you will
can be related learn what is a normal urine volume for you. Changing
volumes of urination can be related to diet and lifestyle
to food e.g. factors.
red colouring
from beetroot.
6
Bowel movements
Usually, 4 regular stoma pouches’ worth of stool, with a brown colour is normal.
Colour changes can be related to food e.g. red colouring from beetroot. The stool
texture will vary depending on the type of procedure you have had:
Type 1 Type 5
Separate hard lumps Soft blobs with clear
like nuts (hard to pass) cut edges (passed easily)
Type 2 Type 6
Sausage-shaped Fluffy pieces with ragged
but lumpy edges, a mushy stool
Type 3 Type 7
Like a sausage but with Watery, no solid pieces,
cracks in its surface entirely liquid
7
EATING AFTER YOUR OPERATION
Timings
The typical person will need 2000 calories small-to-medium sized meals and 2-3
(female) or 2500 calories (male) a day. snacks a day is an easy and well-tolerated
Spreading meals is an easier way to eating structure after surgery. There is no
eat than having 1 or 2 large portions of set time that is recommended between
food because it can stop you becoming meals and snacks, but food can take 1-4
too full. More importantly, it means the hours to leave the stomach and hunger
gastrointestinal (GI) system has less bulk levels vary depending on many factors.
to deal with at once. After surgery, some Having something to eat, roughly, every
people have reduced appetites and can 2-4 hours will suit most people; a typical
find it hard to eat as much as they normally day may look like:
could. Eating little and often is a useful
technique after surgery to ensure regular
nutrition that supports healing. ~8am: Breakfast
~10am: Snack
When we eat, the muscles contract ~1pm: Lunch
along the GI system and move food and
fluid along, therefore eating regularly
~3pm: Snack
helps move the nutrition along and can ~7-8pm: Dinner
reduce the risk of blockages. Eating 3 ~9-10pm: Snack
8
Meal structure / healthy eating:
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Porridge
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O il
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Low fat
y o g hu r t
Sauce Be s
an Oil & spreads
s, p tive
Ea ulse rna
so t mor s, fis alte
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Dairy
and t and Choose unsaturated oils
red urced e beans gs, mea
t and other proteins r fa
we tions and use in small amounts
and fish and p se lo
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esse week, one o portions of sustainably lower
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Eat less often and d mea f which is oily. Eat less
t
in small amounts
Per day 2000kcal 2500kcal = ALL FOOD + ALL DRINKS
Source: Public Health England in association with the Welsh Government, Food Standards Scotland and the Food Standards Agency in Northern Ireland © Crown copyright 2016
9
PROTEIN
Protein-based foods
These foods
contain amino
acids, which
are the building
blocks of
our body.
10
Protein-based Important Note: *This guidance is related
standard portions: to understanding how to select the correct
portion sizes. There are some foods that
we have included that may not be suitable
depending on your personal situation.
For example, nuts are often not suitable
for those with an ileostomy. For more
information on how to approach these
problem foods, refer to the fibre and
irritant table on pages 24-25.
Starchy carbohydrates
12
Starchy carbohydrate
standard portions:
13
DAIRY
Approximately 3 servings of dairy foods a Dairy alternatives made with soya, rice,
day, as part of a well-balanced diet, will hemp, coconut and nuts, like almond
provide an adult’s daily calcium. Unless and cashew, can be suitable to include
someone is trying to gain weight, semi- in the diet, but only if they are fortified.
skimmed or low-fat versions of dairy Fortified products have added nutrients
products should be chosen. Dairy and its such as calcium, B12 and vitamin D, that
alternatives contain protein, which helps are present in dairy-based foods but not
with healing after surgery but also repairs naturally present in the dairy alternatives.
our body daily. The amount we need varies Fortified products like non-dairy milks and
depending on age, gender and other yoghurts will have the added nutrients
health factors; adults over 19 years of age included on the nutrition label and it is
typically need 700-1000mg of calcium important to choose these over non-
a day. fortified options. Vegan diets do not
contain B12 unless fortified options are
included; these can be dairy alternatives,
but can also include nutritional yeasts.
Supplements may sometimes be required,
but this is best advised by your Doctor or a
Registered Dietitian.
14
Dairy & alternatives
standard portions:
15
FRUIT & VEGETABLES
16
Fresh, frozen,
tinned, juiced
or dried all count
towards your
‘5 a day’ fruit and
vegetable target...
Fluids
Most people require ~6-8 cups, 1.8-2.4
litres or ~3-4 pints of fluid a day. Almost all
fluids count e.g. water, squash, tea, coffee,
fruit juice, smoothie, milk-based drinks
and sports drinks, but not alcohol. If you
routinely consume less than 3-4 cups of tea
or coffee a day then this is unlikely to be
dehydrating, however if more is consumed
then this can cause extra urination and
possibly looser bowel movements. Swap to
decaffeinated for extra hydration.
18
Salt
19
SUGAR, FAT & ALCOHOL
20
Keeping within the
daily recommended
intake reduces the
effects of alcohol on the
Alcohol can be included as long as it does
body, meaning fewer not interact with any of your medications
symptoms like over- (check with your Doctor or Pharmacist). It
flowing stoma pouches. is recommended to have less than 14 units
of alcohol a week, spread across 3 or more
days and with 2 days alcohol free. A unit of
alcohol is 1 x 25ml spirit measure e.g. gin,
whereas a large glass of ~12% abv wine or
regular strength beer is ~2 units. Alcohol
can stimulate the bowel causing looser,
more frequent bowel movements. Alcohol
causes quicker and larger amounts of urine
to be produced; this along with looser
stools can lead to dehydration. Having 1-2
drinks 3 times a week or less minimises
alcohol’s dehydrating effects.
21
POSSIBLE IRRITANTS
Possible irritants
When the body has recently had surgery (most likely within the first
6-8 weeks) it can be extra sensitive, which can mean some symptoms
occur when consuming certain food or drink products. A sensitive gut
or bladder is more likely to be irritated and this can mean food and fluid
passing through the body quicker than normal; this can cause cramping,
bloating, a more liquid stool, or a higher production of urine.
22
Caffeine is a stimulant and some people are more sensitive
Caffeine to it than others. Some people find that caffeinated
products such as cola-style fizzy drinks, coffee and tea
(including some herbal teas like green tea) can over-
stimulate their bowel and cause food to pass more quickly
through the digestive system. Caffeine does not always
need complete exclusion; up to 3-4 cups of tea or coffee
a day are usually tolerated in those without additional
bowel or bladder issues. Just swapping a few drinks to
some decaffeinated versions (teas, coffees, herbal options
like rooibos etc.), a day can help reduce dehydration
and discomfort.
Dairy and its Yoghurt or cheeses with nuts, Yoghurts or cheeses without nuts, seeds
alternatives seeds, dried fruit and granola- and dried fruit. Yoghurts with fruit pulp*
like cereals*. e.g. Muller® fruit corner.
All types of milk, including cows and
other animals as well as plant-based milks
e.g. soya or almond.
Fruits Dried fruit e.g. raisins, Peeled fruits e.g. apples, grapes, peaches,
sultanas, dried figs etc. Fruit plums etc. Oranges and similar fruits
with skin or that is stringy without the pith (white stringy bits),
and fibrous e.g. non-peeled berries* e.g. strawberries, bananas, melon
apples, oranges with lots and other soft fruits. Tinned, puree or
of pith (white stringy bits), cooked fruit (without skin, pips or stones).
rhubarb, pineapple, figs,
dates and coconut. Under- TIP: Tinned or jelly fruit pots e.g.
ripe fruit e.g. green bananas, fruit cocktail are easy dessert or snack
green mangos. Fruit with choices.
pips or seeds e.g. berries like
raspberries and blackberries*.
This table is non-exhaustive and does not replace tailored dietary advice
from your healthcare professional. Foods marked with an asterisk within
this table can have varying effects on individuals.
24
Food groups Foods to avoid or reduce Foods to choose more of
(higher fibre/irritant) (lower fibre/irritant)
Vegetables Raw vegetables, including Peeled and well-cooked vegetables without
salad e.g. lettuce, celery, seeds e.g. onions, carrots, swede, butternut
raw bell peppers and spring squash, avocados, broccoli or cauliflower
onions. Hard to digest florets (without the stalk), beetroot,
vegetables, including beans parsnip, courgette, aubergine, bell peppers
like butter beans or green/ and cucumber. Cooked, de-skinned and
runner beans, sweetcorn, non-seeded tomatoes e.g. sieved tinned
peas, mushrooms, cabbage, tomatoes or passata.
brussel sprouts, spinach,
kale and spring greens.
Misc. Bombay mix, nuts and Olives, pastry, batter or breadcrumbs, crisps
seeds, chilli flavoured foods, (potato or other types) smooth nut butter,
cake or biscuits with nuts or jelly, jelly with suitable fruit in, chocolate,
seeds in e.g. fruit loaves or ice cream, sorbet, butter, margarines, ghee
garibaldi biscuits. and oils. Soups that have well-cooked
and easy to chew vegetables and other
components. Biscuits and cake (without
dried fruit chunks, nuts or seeds in) e.g.
custard creams, fig rolls or madeira cake.
Crisps, prawn crackers and poppadoms.
Custard powder, semolina, tapioca,
cornflour. Chocolate spread, tahini, tzatziki
and other smooth dips or spreads. Coconut
milk or cream.
TIP: Is it easy to chew and isn’t stringy,
gritty or tough? It’s probably OK to eat!
Lifestyle
There are many dietary and lifestyle factors that can irritate
the over-sensitive gut, such as smoking, carbonated (fizzy)
drinks, eating too quickly, not chewing foods enough before
swallowing, lots of exercise/activity and stress. There are
no health benefits to smoking and it is always advisable to
consider quitting.
26
Eating technique techniques to reduce it can also
- For bowel stomas help reduce over-sensitive guts and
bladders.
Digestion begins in the mouth
with chewing to break food down,
mixing it with the enzymes in
saliva to further break it down and
swallowing to pass food and drink
to the rest of the gastrointestinal
(GI) system. When we eat quickly
and do not chew our food well, the
food requires more digestion lower
in the GI system and we can also
(unconsciously) swallow air. After
bowel stoma surgery, the GI path is
shorter and therefore less digestion
may happen; especially in the first
6-8 weeks of recovery. Taking Smoking
time to eat, chewing food well
and not talking with our mouth Smoking can over-stimulate and
full helps digestion and can reduce inflame the gut and therefore
diarrhoea, cramps, bloating and reducing/quitting smoking is
gas-filled stoma pouches. advised to help reduce the strain
on the bowel. After surgery,
Exercise/activity and stress including urostomies, smoking
slows healing and increases the risk
Exercise or stress can increase of complications. If trying to quit,
stimulation of the gut and bladder, there are nicotine replacement
which can be beneficial in some therapies (NRTs) like e-cigarettes
instances e.g. in helping passing and patches. There is no strong
urine or stools. Alternatively, when clinical evidence that NRTs reduce
being more active and mobile, the the stimulation on the bladder or
increased stimulation on the gut bowel compared to tobacco, but it
and bladder can lead to a quicker may be beneficial to try.
passage of food and liquid – this
can cause looser stools and higher
urine production. You will learn
your body’s reaction to increased
physical activity and stress, and you
may find that reducing possible
irritants can help you. Stress cannot
always be prevented, but being
aware of stress and finding helpful
27
MEAL PLANS
~07:30 40g of muesli with 150ml semi- 40g corn flakes with 150ml
skimmed milk, cup of coffee, semi-skimmed milk, cup of
1 under-ripe banana decaffeinated coffee,
1 ripe banana.
~10:30 Packet of crisps and 500ml bottle Packet of crisps and 150ml
of cola. fruit juice (without bits).
~13:00 1 cereal bowl sized salad with White bread sandwich with
a wholegrain ham, tomato and ham, peeled cucumber,
wholegrain mustard sandwich, smooth mustard, 1 fun-sized
1 fun-sized chocolate bar. chocolate bar.
~15:00 A cup of tea, an apple and 3 A cup of tea, a peeled apple and
garibaldi biscuits. 3 custard creams.
~19:00 75g (dry weight) wholemeal 75g (dry weight) white pasta with
pasta, 150g soya mince, 80g 150g soya mince, ¼ of a well-
mushrooms, 40g cheddar cooked bell pepper, 40g cheddar
cheese, 2 pieces of garlic bread. cheese, 2 pieces of garlic bread.
Apple crumble portion Apple crumble portion
with custard. with custard.
~20:30 Cup of tea and 1 handful of Cup of tea with 2 crackers, each
mixed nuts. with ½tbsp smooth nut butter.
28
Meal plans: low-fibre & low-irritant (2)
~07:30 2 slices of wholegrain toast with 2 slices of white toast with 1tbsp
1tbsp crunchy peanut butter on smooth peanut butter on both.
both. 150ml smoothie (without bits).
30ml chunky smoothie.
~20:30 Cup of tea and mixed fruit salad Cup of tea and 125g Greek-style
(mango, apple, grapes, berries). yoghurt with ½ tin of pears.
29
MAXIMISING NUTRITION
Maximising nutrition
There are adjustments you can make that maximise
the nutrition of your meals to both reduce the risk of
malnutrition and also treat it. ‘Healthy eating’ is subjective,
for most people it means choosing lower-fat options, but
this is not always appropriate. If someone has lost weight
and cannot manage much of their meals, then healthy
eating for them means adding calories (often through
increasing fat and sugar).
~07:30 Chunky-oat porridge made with Fine porridge (e.g. Ready Brek®)
semi-skimmed milk, 2 small plums, made with fortified milk*, 2
cup of tea. peeled plums, milky decaffeinated
coffee.
~13:00 1 bowl of minestrone soup, 1 slice 1 bowl of ‘cream of’ tomato soup,
of wholegrain toast with low-fat with 1 tbsp double cream mixed
margarine, 1 glass of squash. in, 1 small handful
of grated cheese on top,
1 crumpet with thickly spread
butter or margarine, 150ml glass
of fruit juice.
~19:00 Battered fish with deep fried Battered fish (without the skin or
chips and mushy peas. bones), deep fried chips, roasted
A slice of fruit loaf. and peeled carrots and parsnips
(cooked in olive oil), served with
1tbsp mayonnaise.
Plain sponge cake with custard
and 2tbsp squirty cream.
Note: Oral Nutritional Supplement (ONS) drinks provide extra nourishment to help
you recover after surgery - there are lots of different flavours, textures and volumes so
there's something for everyone. If you have any questions, speak to your GP or local
Dietitian team.
32
Meal plans: nutrition-boosting &
low-fibre/low-irritant meal plan (2)
33
FAQs
Common Questions
How can I eat out e.g. at restaurants?
To minimise dehydration:
Common Questions
I have ongoing watery stools, what shall I do?
If you are passing more than 1500ml of stool a day, this is called “high-output”
and means you’re more likelyto become dehydrated. It is best to speak with your
Doctor, Specialist Nurse or Dietitian, but in the interim you can try:
• Ensuring you’re eating good portion meals spread evenly throughout the day and
a third of each meal contains a starchy carbohydrate.
• Increasing your salt; choose saltier foods e.g. cheese, crackers or sauces and also
adding salt to meals (while cooking or at the table)
35
Common Questions
How can I prevent a stoma blockage (& how will I know that I have one)?
Blockages are a risk of any stoma surgery, but with the right knowledge you can
reduce the chances.
Bowel-stomas
Note: If you pass much less stool than normal, or none for a few hours,
contact your Doctor, call the NHS helpline on 111 or if necessary, visit your local
Accident and Emergency department.
Urostomies
Note: If your urine output has significantly reduced and is dark, or you
have pain and swelling, visit your Doctor or call the NHS helpline on 111.
36
I have odour, colour changes etc. – what will help?
Sometimes there may be dietary causes and this table is a summary of common problems, causes and what
you can change to help. These foods and drinks are most commonly linked to these problems, but can be
tolerated in varying amounts; everyone’s tolerance is different and as your body heals your tolerance can
increase – listen to your body and you’ll learn what works for you.
Pouch-inflating Stools – onions, garlic, broccoli, Try eating slower & chewing your food
and bloating cauliflower, brussels sprouts, cabbage, more. Reduce the trigger foods and drinks
beans, chewing gum, fizzy drinks in your diet.
(including beer) and eating quickly.
Pouch odour Stools – onions, garlic, broccoli, Keep a food and symptom diary and see if
cauliflower, brussels sprouts, cabbage, there’s a trend.
beans, fish and eggs.
Urine – dehydration, garlic, Try including: dairy foods and parsley.
asparagus, fish and seafood.
Undigested Stools – not chewing foods enough, bean You may find you get pain after some of
food and sprouts, sweetcorn, popcorn, mushrooms, these ‘trigger’ foods so ensure they’re
blockages fruit or vegetable skins, fibrous fruit/veg. well cooked, you chew well and if needed
e.g. pineapple, raw fruit and veg., nuts then reduce the amount of that food in
and seeds. your diet.
Increased stool Eating quickly, not chewing foods enough, Try including: low-fibre starchy
frequency and more than 2-3 portions of fruit a day or carbohydrates at every meal e.g. peeled
watery stools more than 150ml of smoothies/fruit juice potatoes. Eating 3 marshmallows, 3 times
a day, higher fibre fruits and vegetables, a day (9 in total per day) has been shown
high fluid meals e.g. soups. to help thicken stools.
Colour Red: beetroots and red berries, red wine. Most colour changes are not harmful and
changes Purple/dark blue: Stools – blueberries, do not need you to change your diet.
blackberries.
Urostomy output – being constipated (not Speak with your Doctor or call the NHS
enough fluid or fibre). helpline 111 if:
Yellow/orange/dark brown:
Stools – High fat meals e.g. creamy sauces, • There are drastic smell, consistency
fried foods or a gut infection. or volume changes in your stools
Urine – Dehydration (not enough fluid or or urine.
high dose B vitamins). • You have unfamiliar pain at the
Green: stoma site or in your digestive
Stools – High fat meals e.g. creamy sauces system (anywhere from the mouth
or fried foods. to anus).
Black:
Stools – Taking iron supplements or
bleeding in the digestive system; speak
with your Doctor or call the NHS helpline
111 for advice.
37
FAQS
Common Questions
I have other health conditions, what shall I do?
If you have other health conditions like diabetes, IBS, allergies etc. then some of the advice
provided here may need adapting. This information is not to replace clinical professional
advice from your healthcare member (e.g. Doctor, Specialist Nurse or Dietitian). If you
need more support, speak with your healthcare professional.
Supplements can refer to many different products, like multivitamin tablets, oral
nutritional supplement drinks (ONS), herbal preparations or others. For most individuals
with stomas, no supplements are required. If someone has to adapt their diet then a
healthcare professional, e.g. Doctor or Dietitian, may recommend a particular multivitamin
and mineral preparation. ONS are sometimes recommended when someone has difficulty
maintaining their weight and these will either be from a Dietitian (in hospital) or a Doctor
(e.g. GP). Vitamin-like products and ONS must be recommended by a professional and
should not be bought from health shops, online or without proper advice from those
who are medically qualified. Herbal products are usually not recommended to be taken
if you take any medication as the herbal preparations can interact and cause harm.
A healthcare professional, e.g. Doctor, Specialist Nurse or Dietitian, is highly unlikely
to recommend a herbal product; if you would like to take any herbal products speak with
your Doctor before starting.
38
SOURCES OF SUPPORT
Sources of Support
We are Colostomy UK, a national charity that offers support and advice to people living with stomas, their
families, carers, and friends. We’re here if you have questions, need support or just want to talk to someone
who lives with a stoma.
We also run projects to empower ostomates to return to sports, hobbies and other interests and give them
the confidence to take up fresh challenges. We are advocates for ostomates’ rights and their voice on the
bigger issues. Our campaigns raise awareness and encourage organisations to make their facilities more
inclusive. Supporting and enhancing ostomates’ wellbeing is at the core of everything we do.
Our vision
We want hidden conditions to be understood and accepted by all. Our vision is of communities in which
everyone is empowered to reach their potential.
• 24 - hour Freephone Helpline 0800 328 4257 with fully trained volunteers available to share their
experiences and advice of living with a stoma.
• As well as answering our helpline, our volunteers can also visit you in hospital or at home. We can
match a volunteer to you; age, gender, location or concern.
• Literature – written in collaboration with ostomates and healthcare professionals.
• Our quarterly flagship support magazine Tidings shares hints, tips and real lives stories from individuals,
and articles from healthcare professionals.
• Closed Facebook support group for peer to peer support.
• Our website is packed full of advice, support, and information on living with a stoma.
• We work with communities through individuals and stoma care nurses to set up support groups.
Empowerment: The aim of our day-to-day work, projects and campaigns, is to empower people living
with a stoma to reach their potential.
• Active Ostomates - Improving the wellbeing of ostomates through a range of initiatives including Chair
yoga, art, swimming, and archery.
• Join Team Colostomy UK – For anyone wanting to make a difference through volunteering, fundraising,
rugby league or just helping anyway you can.
• Caring for a person with a stoma – Free workshops that provide a practical guide to caring for
an ostomate.
• Stoma Friendly Society – Campaigning for stoma friendly toilets, working with UK airports make travel
accessible to all.
GET IN TOUCH:
39
Expert guidance on living with a stoma
whilst maintaining a healthy diet
#fittleworthFit
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