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BRIEF REPORT

Four Decades of Population Health Data


The Integrated Health Interview Series as an Epidemiologic Resource
Pamela Jo Johnson,a,b Lynn A. Blewett,a Steven Ruggles,b Michael E. Davern,a,b and Miriam L. Kingb

Moreover, pooling multiple years of data provides sufficient


Abstract: The National Health Interview Survey (NHIS) is a pri-
mary source of information on the changing health of the US sample size for analysis of subpopulations of interest.23,24
population over the past 4 decades. The full potential of NHIS data The NHIS is the longest-running US health survey,
for analyzing long-term change, however, has rarely been exploited. with annual microdata from 1963 to the present. This broad
Time series analysis is complicated by several factors: large num- chronologic coverage makes these data uniquely suited for
bers of data files and voluminous documentation; complexity of file studying changes in health over time. Yet, cross-temporal
structures; and changing sample designs, questionnaires, and vari- analyses of these important data have been uncommon, par-
able-coding schemes. We describe a major data integration project ticularly by researchers outside the National Center for
that will simplify cross-temporal analysis of population health data Health Statistics.25 Use of NHIS data has increased in recent
available in the NHIS. The Integrated Health Interview Series (IHIS) years, most notably after the 2001 release of data files on the
is a Web-based system that provides an integrated set of data and
Internet. However, use of these complex data in time-series
documentation based on the NHIS public use files from 1969 to the
present. The Integrated Health Interview Series enhances the value
analyses remains rare. The purpose of this paper is to intro-
of NHIS data for researchers by allowing them to make consistent duce this resource to the epidemiologic community.
comparisons across 4 decades of dramatic changes in health status,
health behavior, and healthcare. The Data Integration Project
The Integrated Health Interview Series (IHIS) project is
a well-documented cross-sectional time series based on the
T he National Health Interview Survey (NHIS) is a leading
source of data on the health of the American population.1
These data are used to monitor the health of the US popula-
National Health Interview Survey. We make these data freely
available through a user-friendly Web-based data dissemina-
tion system (available at http://www.ihis.us) to facilitate in-
tion,2 track progress toward Healthy People 2010 objectives,3
formed analysis of this valuable source of information about
and evaluate the quality of health care in the United States4
the nation’s health. The IHIS builds on the model of the
The rich array of data have also been valuable for a broad
Integrated Public Use Microdata Series (IPUMS), a harmo-
range of population health research. NHIS data allow exam-
nized set of US Census data from 1850 to 2000.26 There are
ination of conditions such as cancer, diabetes, hypertension,
3 components to the IHIS data integration project: (1) har-
asthma, and functional limitations. Data are also available on
monization, (2) documentation, and (3) dissemination.
preventive care utilization, including cancer screening5–7 and
immunization,8,9 and on health behaviors such as diet,10,11
physical activity,12–14 and tobacco use.15–17 A wealth of Harmonization
sociodemographic information permits examination of social Discontinuities in National Health Interview Survey
disparities in access to care, morbidity, and mortality.18 –22 variables complicate analysis of change over time. Harmoni-
zation is the process of taking original variables with different
coding schemes and creating a new variable that is compa-
rable over time. The “translation table” is the foundation of
Submitted 22 August 2007, accepted 18 March 2008.
From the aDivision of Health Policy & Management, University of Minne- this harmonization work. It is a tool (in spreadsheet format)
sota and bMinnesota Population Center, University of Minnesota, Min- for laying out the various coding schemes for each year and
neapolis, MN. then aligning the coding schemes into a single integrated
Supported by Grant Number R01HD046697 from the National Institute of
Child Health and Human Development. scheme.
Supplemental material for this article is available with the online version of In some cases, the original variables are completely or
the journal at www.epidem.com; click on “Article Plus.” nearly compatible, and recoding them into a common classi-
Correspondence: Pamela Jo Johnson, Division of Health Policy & Manage-
ment, University of Minnesota, School of Public Health, 2221 University fication is relatively straightforward. For example, marital
Ave SE, Suite 345, Minneapolis, MN 55414. E-mail: johns245@ status is nearly identical over time, although with small
umn.edu differences. Table 1 shows selected sections of the mari-
Copyright © 2008 by Lippincott Williams & Wilkins
ISSN: 1044-3983/08/1906-0872 tal status translation table. In the first 2 columns, the final
DOI: 10.1097/EDE.0b013e318187a7c5 integrated coding scheme and value labels are listed with the

872 Epidemiology • Volume 19, Number 6, November 2008


Epidemiology • Volume 19, Number 6, November 2008 Integrated Health Interview Series

TABLE 1. Portions of a Translation Table Using a Simple Coding Scheme for Harmonization for Legal Marital Status
(MARSTAT)
IHIS Code IHIS Label 1969 NHIS Code 1982 NHIS Code 2004 NHIS Code

0 Not in universe 0 ⫽ ⬍17 yr 0 ⫽ ⬍14 yr Blank ⫽ ⬍14 yr


1 Married 1 ⫽ married 3 ⫽ married
2 Married-spouse present 1 ⫽ married-spouse in
household
3 Married-spouse not in 2 ⫽ married-spouse not in
household household
4 Married-spouse in household
unknown
5 Widowed 2 ⫽ widowed 3 ⫽ widowed 5 ⫽ widowed
6 Divorced 4 ⫽ divorced 4 ⫽ divorced 2 ⫽ divorced
7 Separated 5 ⫽ separated 5 ⫽ separated 1 ⫽ separated
8 Never married 3 ⫽ never married 6 ⫽ never married 4 ⫽ single/never married
9 Unknown marital status 7 ⫽ unknown 9 ⫽ unknown marital status

original (unharmonized) codes for each year in the remaining detailed descriptions of each variable, the IHIS also includes
columns. general documentation (such as user notes about the original
For other variables, it is impossible to construct a single NHIS source data, sample design, and sampling weights) and
uniform classification without losing information. Some guidance on analysis and variance estimation.
years provide more detail than others, and using the “lowest For each variable, we consulted the survey descriptions,
common denominator” of all years would discard important codebooks, questionnaires, and interviewer instructions for
information. In these cases, we construct composite coding each year, as well as documented discussions of survey
schemes. The first digit(s) of the code provide information methodology, concepts, and sample selection.28 –33 We reor-
available across all years. The next digits provide additional ganized this information by putting all essential facts relating
information available in a broad subset of years. For example, to one variable over time into a single narrative.
the variable for self-reported main race uses a variety of Variable-specific documentation covers the meaning of
coding schemes over time. Table 2 shows selected sections of a variable, years available, universe definitions, codes, and
the translation table, and eFigure 1 (available with the frequency distributions. We also provide discussions of
online version of this article) shows a partial screenshot of cross-temporal comparability for each variable. We have
the IHIS codes available for this variable. The utility of com- noted potential problems in combining multiple years of the
posite coding can be seen in the case of Asian or Pacific variable and offer suggestions for maximizing comparability
Islanders. Codes 400 through 430 are all subclassifications of and for choosing appropriate weights. The variable de-
this group. Using the first digit (4) provides the broadest scriptions also reference related variables, with informa-
comparable grouping over time. Using the second digit dis- tion accessible via hyperlinks. When variables cannot be
tinguishes Asian (41) from Pacific Islander (42). Researchers fully harmonized, the documentation explains the limita-
interested in even finer distinctions can use the 3-digit values. tions of comparability.
Harmonization also allows us to address sample design Response category codes and frequencies can be ac-
discontinuities. We constructed the IHIS survey design vari- cessed from the variable availability grid or from a link on
ables to be usable when examining data from 1 year or from each variable description. Codes and frequencies are dis-
many years. We employed the concatenated design period played so researchers can see which categories are repre-
pooling approach suggested by Korn and Graubard27 for sented in each available year. Codes can also be viewed in
pooling data from 1 survey over multiple years and sample “case count” format, with unweighted sample size for each
designs. Strata and primary sampling unit (PSU) variables response category displayed by year. eFigure 2 in the online
are constructed so researchers need do no additional re- appendix shows both the category availability view and the
coding of these variables, regardless of which years of data case count views for one IHIS variable.
are analyzed.
Dissemination
Documentation User-friendly data dissemination is an integral compo-
The Integrated Health Interview Series provides docu- nent of this effort. We distribute these data and documenta-
mentation designed to enhance researchers’ ability to work tion through a Web-based data access system that is available
with the data as a cross-sectional time series. Along with free of charge (http://www.ihis.us). For each data extract, the

© 2008 Lippincott Williams & Wilkins 873


Johnson et al Epidemiology • Volume 19, Number 6, November 2008

TABLE 2. Portions of a Translation Table Using a Composite Coding Scheme for Harmonization for Self-Reported
Main Racial Background (RACESR)
IHIS Code IHIS Label 1978 NHIS Code 1992 NHIS Code 2000 NHIS Code

100 White 4 ⫽ White 1 ⫽ White 1 ⫽ White


200 Black/African American 3 ⫽ Black 2 ⫽ Black 2 ⫽ Black/African
American
300 Aleut, Alaskan Native, or 1 ⫽ Aleut, Eskimo, or 3 ⫽ Indian (American),
American Indian American Indian Alaska Native
320 Alaskan Native 4 ⫽ Eskimo
330 Aleut 5 ⫽ Aleut
340 American Indian 3 ⫽ Indian (American)
400 Asian or Pacific Islander 2 ⫽ Asian/Pacific Islander
410 Asian
411 Chinese 6 ⫽ Chinese 10 ⫽ Chinese
412 Filipino 7 ⫽ Filipino 11 ⫽ Filipino
413 Korean 9 ⫽ Korean
414 Vietnamese 10 ⫽ Vietnamese
415 Japanese 11 ⫽ Japanese
416 Asian Indian 12 ⫽ Asian Indian 9 ⫽ Asian Indian
417 Other Asian 15 ⫽ Other Asian
420 Pacific Islander
421 Hawaiian 8 ⫽ Hawaiian
422 Samoan 13 ⫽ Samoan
423 Guamanian 14 ⫽ Guamanian
430 Other Asian or Pacific 15 ⫽ other API
Islander
500 Other race 5 ⫽ Another group not listed 16 ⫽ other race 16 ⫽ other race
600 Multiple race, no primary 6 ⫽ Multiple entry-unknown 17 ⫽ multiple race 17 ⫽ multiple race
race selected which is main race
900 Unknown 7 ⫽ unknown 99 ⫽ unknown

researcher specifies the file type (hierarchical or rectangular), link additional variables from the original NHIS public use
data format (SAS, Stata, SPSS), years to be included, and files to an IHIS data extract. A user note with guidance on
variables for analysis. The researcher can provide a short linking, and syntax files for merging are provided on the
description of the extract, which is numbered and displayed website.
for future reference in the researcher’s personal download IHIS data can be used by population health researchers
history (accessible at every subsequent log-in). When the data in numerous ways. The data can document trends over time in
extract is ready for download, an e-mail is sent to alert the the incidence of conditions such as diabetes, the prevalence
researcher. of health behaviors such as smoking, or disparities in cancer
For each extract submitted, the researcher downloads a screening. Exposure-outcome relationships such as socioeco-
compressed ASCII data file, an extract-specific codebook, nomic indicators (eg, education, income, or poverty status)
and a command file with syntax to convert the ASCII data to and cause-specific mortality can be examined for the years
the preferred file format. At any time, the researcher can 1986 –2000. Pooling multiple years of IHIS data can provide
return to the personalized data download Web page to sufficient sample size to study small subgroups such as
revise or resubmit a previously created extract request. American Indians, farmers, or new immigrants.
Users who encounter difficulties can e-mail IHIS user We are making available links between the original
support for assistance.
NHIS survey text and each IHIS variable description. We are
Project Status and Future Plans extending the time series backward by including new public
The Integrated Health Interview Series currently con- use files for 1963–1968 (these files have recently been re-
sists of more than 1000 integrated variables selected from leased by National Center for Health Statistics staff). We are
NHIS data files for 1969 to the present. However, this is only also in the process of developing new features for the Web
a fraction of the total variables available in NHIS. Additional site, including on-line tabulation and a search engine to help
variables are steadily being added. Furthermore, users can users efficiently locate variables.

874 © 2008 Lippincott Williams & Wilkins


Epidemiology • Volume 19, Number 6, November 2008 Integrated Health Interview Series

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