Professional Documents
Culture Documents
Aguilar-Gaxiola S. INGLÉS
Aguilar-Gaxiola S. INGLÉS
ers, researchers, and policy advisors—who are diverse Another model, grounded in academic and com-
in many ways, including geographic location, race and munity partnerships and CBPR, framed the interplay
ethnicity, nationality, disability, sexual orientation, and between contexts, partnership processes, interven-
gender identity (see Box 1). This effort aims to provide tion research, and intermediate (e.g., policy environ-
community-engaged, effective, and evidence-based ment, sustained partnership, shared power relations
tools to those who want to measure engagement to in research) and long-term (e.g., community transfor-
ensure that it is meaningful and impactful, emphasiz- mation, social justice, health/health equity) outcomes
ing equity as a critical input and outcome. As work be- (Wallerstein et al., 2020). While this model includes
gan on the project, the Organizing Committee realized health equity as an outcome, the inputs and some out-
the need for a conceptual model illustrating the dy- comes are focused on academic-community research
namic relationship between community engagement partnerships. None of the identified models examined
and improved health and health care outcomes. This opportunities to assess community engagement and
commentary will describe how the Organizing Commit- the influence and impact it could have in health and
tee arrived at the conceptual model, the critical content health care policies and programs broadly, incorpo-
that the model contains and expresses, and how the rating diversity, inclusion, and health equity into the
model can be used to assess meaningful community framework. The Organizing Committee felt strongly
engagement. that an additional model was needed to reinforce ex-
isting conceptual models—one that provides a para-
Background on the Development of the digm for the factors needed to assess the quality and
Conceptual Model impact of meaningful community engagement across
The Organizing Committee identified the need for a various sectors and partnerships and one that simul-
new conceptual model that could be used by a range of taneously emphasizes health equity and health system
stakeholders, including federal, state, and local agen- transformation.
cies; tribal communities; advocacy and community-
The Process and Methodology for Designing the
based groups; funders, philanthropists and financiers;
Conceptual Model
academic institutions; care systems, health centers,
To guide the design and refinement of the new con-
and hospitals; and payers, plans, and industry. The Or-
ceptual model for assessing meaningful community
ganizing Committee additionally highlighted important
engagement, the Organizing Committee focused on
considerations for the conceptual model design and
eight foundational standards. An effective conceptual
development process.
model will:
The Need for a New Conceptual Model
An analysis of the peer-reviewed literature and organi- • Define what should be measured in mean-
zational websites for frameworks and conceptual mod- ingful community engagement, not what is
els of engagement identified over 20 examples. Several currently measured. On the premise that so-
models explicitly focused on partnership processes ciety “measures what matters most,” and “what
and levels of engagement. Other models connected is measured gets done,” the Organizing Com-
engagement to factors influencing health, interven- mittee wanted the conceptual model to focus
tions, policy making, community-based participatory on the outcomes needed to guide the measures
research (CBPR), and patient-centered comparative and metrics of meaningful community engage-
effectiveness research. Only a few models associated ment, not being limited by what already exists in
engagement to outcomes, indicators, or metrics. One the literature. The development of the concep-
model, drawing from CBPR evaluation, connected part- tual model and areas for assessing meaningful
nership characteristics, partnership function, partner- community engagement leveraged the wealth of
ship synergy, community/policy-level outcomes, and knowledge, expertise, and experience of the Or-
personal-level outcomes (Khodyakov et al., 2011). ganizing Committee and were not constrained
However, this model did not identify the role of diver- by whether the metrics were available. This con-
sity, inclusion, and health equity as core components ceptual model represents the Organizing Com-
of partnership characteristics and functioning, did not mittee’s aspirational ideal of what matters, what
include health equity as a key outcome or goal of part- should be measured, and what should be done
nerships, and was developed to support research part- to support meaningful community engagement.
nerships.
NAM.edu/Perspectives Page 3
COMMENTARY
health and well-being (Roy, 2018). Often, refer- and measure these processes to achieve de-
ences to health are only aligned with physical sired outcomes. However, the conceptual model
health. The conceptual model should consider is being developed to support outcome-based
that health is not just about being free of dis- accountability. If stakeholders cannot achieve
ease or infirmity, but that individuals and com- meaningful community engagement based on
munities have the right to thrive—to reach “the the selected agreed-upon outcomes, modifying
enjoyment of the highest attainable standard of or changing their engagement process should
health” (WHO, n.d.). be considered. The main purpose of this con-
• Allow the community to see itself in or iden- ceptual model is to reflect the dynamic relation-
tify with the language, definitions, and con- ship between engagement and outcomes, not
text. The conceptual model should make sense present or address processes for engagement.
to the community, be usable by the community, • Present a range of outcome options for vari-
and be written in language familiar to the com- ous stakeholders. As many are committed to
munity. The model and the language used in it assessing the impact of community engagement
should allow communities to see themselves on health and health care policies and pro-
in it and emphasize the positive aspects of the grams, the conceptual model should be relevant
community. At the same time, the Organizing to and usable by the range of aforementioned
Committee recognized that all communities are stakeholders. This conceptual model should
not monoliths. The conceptual model should be explain the connection between community en-
adaptable to the needs of the communities us- gagement and outcomes, and the Committee
ing it—each community and its partners should insisted that a range of options be provided for
be able to review the terms and measurement assessing community engagement to reflect lo-
areas presented in the model and collabora- cal priorities and interests rather than assume
tively decide on how to define, apply, modify, or that all communities want or need the same
implement them to support their needs. outcomes. In other words, different communi-
• Embed equity throughout the model. Equity ties will want to focus on different outcomes.
must be the central focus for every decision re- Additionally, the model should support various
lated to conducting meaningful community en- stakeholders (e.g., federal, state, and local agen-
gagement and thinking about person-centered cies; tribal communities; advocacy and commu-
health and health care (Simon et al., 2020). Eq- nity-based groups; funders, philanthropy, and
uitable and continued engagement with those financiers; academic researchers and institu-
traditionally left out of conversations and deci- tions; and payers, plans, and industry) looking
sion making about the health and health care to evaluate the impact and influence of engage-
systems, programs, interventions, and policies ment with the community in health and health
that affect them opens a pathway to true health care policies and programs.
system-wide transformation. The conceptual • Communicate the dynamic and transforma-
model should reflect that transformation is not tive nature of engagement. The Organizing
possible without systematically embedding eq- Committee believed that the conceptual model
uity into its core components, not just its out- should place community and community en-
comes. gagement at the center and that all impact and
• Emphasize outcomes of meaningful commu- influence should accelerate toward meaningful
nity engagement. The Organizing Committee outcomes that ultimately ensure health equity
underscored the importance of the processes, through transformed systems for health. The
strategies, and approaches used in engage- image and shape used to depict the relation-
ment. Each community is different and wants ship between community engagement and out-
to be engaged in various and multiple ways. The comes should be dynamic, reflecting the move-
Organizing Committee recognized that there are ment toward equity and system transformation
myriad toolkits, reports, articles, and examples when communities are actively and meaning-
on how to engage communities. Certainly, more fully engaged.
work is needed to understand the influence of
A three-stage methodological process that leverages stage three, the entire Organizing Committee was re-
these foundational and guiding standards was used engaged to review, refine, and agree on the resulting
to design the conceptual model. In stage one, a subset conceptual model presented in this commentary.
of 14 Organizing Committee members, including com-
munity leaders, researchers, and policy advisors, iden- Review of the Conceptual Model
tified the key overarching components and outcomes The conceptual model titled Achieving Health Equity and
to include in the model over the course of several dis- Systems Transformation through Meaningful Community
cussions. In stage two, extensive in-depth interviews Engagement, and also known as the Assessing Com-
were conducted with a select group of Organizing munity Engagement (ACE) Conceptual Model, centers
Committee members, representing 11 community community engagement and core engagement prin-
leaders not involved in stage one, which generated a ciples (see Figure 1). Four “petals” or “propellers” em-
dozen iterations of the model. The community leaders anate from the center and radiate from left to right,
detailed specific terms, phrases, language, and addi- reflecting major meaningful domains and indicators
tional components needed to ensure that the concep- of impact that are possible with community engage-
tual model was authentic to community perspectives, ment. Impact in these domains leads to the fundamen-
easy to understand, aligned with other efforts on com- tal goal of health equity and systems transformation
munity engagement, complementary to existing mod- and is contextualized by the drivers of health; drivers
els, and recognizable by those who would benefit the of change; and social, political, racial, economic, his-
most by using the model. The community leaders also torical, and environmental context. While the ACE Con-
discussed and modified the relationships between the ceptual Model can be viewed as linear and sequential,
key components and appropriate alignment among end users also have the flexibility to focus on specific
outcomes. During this stage, community leaders re- indicators depending on needs and interests. Below is
viewed outcomes identified in a preliminary literature a description of the details and definitions of all the key
search to see if elements were missing from the model. components of the conceptual model.
Only one additional outcome was added at this time. In
NAM.edu/Perspectives Page 5
COMMENTARY
Community Engagement and that can be used to assess if the engagement tak-
Community engagement is the linchpin or central focus ing place is meaningful. The Organizing Committee
of the conceptual model. Engagement of the commu- identified metrics associated with meaningful com-
nity, as defined above, represents both the start and munity engagement through a literature review and
the hub of movement toward outcomes. It is only with aligned them with the indicators presented on the con-
community engagement that it is possible to achieve ceptual model. Given the space limitations in the con-
and accelerate progress toward the goal of health eq- ceptual model, only domains and indicators are listed;
uity through transformed systems for health. the metrics identified in the literature and associated
with the indicators will be made available later.
Core Principles Ultimately, with community engagement and its
The core principles identify attributes that should be core principles embedded into all collaborations and
present in the process of community engagement. partnerships, movement and progress should occur in
Those involved must ensure that community engage- multiple domains and indicators present in the model.
ment is grounded in trust, designed for bidirectional Below are explanations on how the Organizing Com-
influence and information flow between the commu- mittee characterized the domains and indicators in the
nity and partners, inclusive, and premised on cultur- conceptual model.
ally centered approaches. The core principles also
include equitable financing, multi-knowledge, shared Strengthened Partnerships and Alliances
governance, and ongoing relationships that contin- The first assessment domain identified by the Organiz-
ue beyond the project time frame and are authentic ing Committee relates to strengthened partnerships
and enduring. Engagement should be co-created, and and alliances, which the Committee defines as how
participants should be considered coequal. Principle- participants emerge from engagement with new or
informed community engagement creates a readiness improved relational benefits that are carried forward.
that can propel teams into productive motion and ac- This domain also reflects the qualities of leadership
celerate engagement outcomes and the ultimate goal that allow alliances and partnerships to be strength-
of health equity and systems transformation. ened, and it has the following eight indicators:
• Diversity and inclusivity
Domains and Indicators of Meaningful Engagement • Partnerships and opportunities
With community engagement and the core principles, • Acknowledgment, visibility, and recognition
it is possible to understand if meaningful engagement • Sustained relationships
is taking place by assessing some or all of the outcomes • Mutual value
based on the needs and interests of the community. • Trust
Therefore, the Organizing Committee developed a tax- • Shared power
onomy to classify, describe, and standardize outcomes • Structural supports for community engagement
to assess community engagement (Aguilar-Gaxiola,
2014). The taxonomy used in the ACE Conceptual Mod- Diversity and inclusivity ask for constant consideration
el considers domains, indicators, and metrics. of the representation, inclusion, and lived experi-
The conceptual model posits four broad categories ences of those engaged in the efforts. Representation
or domains of measurable outcomes: should be intentionally diverse, comprising multicul-
• Strengthened partnerships and alliances tural, multiethnic, and multigenerational perspectives,
• Expanded knowledge particularly those not traditionally invited or involved
• Improved health and health care programs and in improving health and health care policies and pro-
policies grams. Perspectives should reflect the composition of
• Thriving communities the community, be based on the culture of the com-
munity, and reflect multidisciplinary expertise from
Under each domain are potential and relevant indica- the community. Diversity and inclusivity should also be
tors. The conceptual model presents 19 mutually ex- reflected in the intentional integration of the interests
clusive indicators divided across the four domains. As and, importantly, in knowledge, resources, and other
indicators are not yet quantifiable, each indicator is, in valuable entities from all community members during
turn, associated with specific metrics. These metrics conversations and deliberations.
are the questions that are both supported by results
Partnerships and opportunities ensure that those en- Shared power is fundamental to strong and resil-
gaged are fully benefiting from participation through ient partnerships with the community. Shared power
deepened and mutually supported relationships. This reflects that community participants are involved in
indicator assesses whether participants have benefit- leadership activities such as codesigning and develop-
ed from bidirectional mentorship or other forms of ing the partnership’s shared vision, goals, and respon-
professional investment; gained access to new finan- sibilities. It emphasizes that community members have
cial or nonfinancial opportunities; received certificates, influence and can see themselves and their ideas re-
earned degrees, or otherwise benefited from skills de- flected in the work. Shared power includes true equita-
velopment; or shared and connected to an expanded ble partnership and governance structures that ensure
network of partners, influencers, and leaders. community partners occupy leadership positions and
Acknowledgment, visibility, and recognition reflect wield demonstrable power equivalent to other part-
how community participants are seen and recognized ners. Shared power relies on collaborative and shared
as contributors, experts, and leaders and can benefit problem solving and decision making, joint facilitation
from their participation. This indicator encompasses of activities, and shared access to resources, such as
public acknowledgment of participant contributions information and stakeholders.
and recognizes the legitimacy of the partnership. Structural supports for community engagement pro-
Sustained relationships require that the community, vide the infrastructure needed to facilitate continuous
institutions, and relevant disciplines maintain continu- community engagement. This indicator asks about
ous and ongoing conversations that are not time-limit- operational elements for engagement such as estab-
ed or transactional. The community should be engaged lished and mutually agreed-upon financial compensa-
at the beginning of an effort and normalized as an es- tion for community partners, requirements for equita-
sential stakeholder. Involvement and engagement of ble governing board composition, protocols to ensure
the community should have depth and longevity. integration of community partners into grant writing
Mutual value ensures that communities engaged and management, and equitable arrangements for
are equitably benefiting from the partnership. This data sharing and ownership agreements, among oth-
indicator requires balanced engagement between the ers. These structural supports ensure the longevity of
community and others involved in the partnership, as community engagement and the partnership’s sustain-
marked by reciprocity that considers how the com- ability over time.
munity will benefit from, not just contribute to, the
effort. The value exchange can be financial or nonfi- Expanded Knowledge
nancial but must be defined by, not prescribed for, the The second domain, expanded knowledge, refers to
community. Mutual value is grounded in the need for the creation of new insights, stories, resources, and
understanding and respect for the community and all evidence, as well as the formalization of respect for ex-
partners. It requires valuing the knowledge and exper- isting legacies and culturally embedded ways of know-
tise of all individuals, agreeing to a shared set of defi- ing that are unrecognized outside of their communities
nitions and language, and committing to bidirectional of origin. When co-created with community, expanded
learning. knowledge creates new common ground and new
Trust is a core component of engagement. It requires thinking, and can catalyze novel and more equitable
showing up authentically, being honest, following approaches to the transformation of health and health
through on commitments, and committing to trans- care. The three indicators under expanded knowledge
parency in order to build a long-lasting and robust include new curricula, strategies, and tools; bidirec-
relationship. Genuine partnerships grounded in trust tional learning; and community-ready information.
require change on the part of all partners. Trust also New curricula, strategies, and tools are formal prod-
requires that entities engaging communities commit ucts of community engagement that encapsulate new
themselves to being trustworthy. Mistrust among com- knowledge and evidence in ways that allow it to be
munities of representatives of health care and other disseminated, accessed, replicated, and scaled. This
systems is often an adaptive response to historical and indicator looks for the development of new curricula,
contemporary injustice perpetrated by these systems. strategies, and tools that enable other partnerships
A foundational component of building trust with com- to learn from, build on, and advance new practices in
munities is demonstrating that community trust is war- their community engagement.
ranted and will not be abused or exploited.
NAM.edu/Perspectives Page 7
COMMENTARY
munity should be both visible and valued. Importantly, structural systems. The Organizing Committee believes
resiliency must not be invoked as a backstop for initia- that with meaningful community engagement, it is pos-
tives that perpetuate trends of a lack of external invest- sible to motivate health equity through transformed
ments, protections, and support for the community. systems for health and significantly transform and pos-
In other words, resilience is valuable for the internal itively alter these contextual factors. A feedback loop
benefits and strengths that it generates among com- is created and reflected through the arrows that move
munity members; it is not, however, a replacement for from community engagement, the core principles, and
adequate and tangible external investments in the re- the domains of meaningful engagement through to
sources that communities need to thrive. these contextual factors.
Life quality and well-being refer to improvements in
the drivers of health (e.g., education, economic and Conclusion
racial justice, built environment). Life quality and well- The United States health and health care system reflects
being highlight the ability to heal, hold hope for the fu- origins and a history that did not center communities
ture, and experience greater joy, harmony, and social as true partners in designing, implementing, evaluat-
equity. ing, and redesigning the system. The Organizing Com-
mittee believes that community engagement is not a
Health Equity through Transformed Systems for supplement to enacting better health and health care
Health policies but rather its foundation. The increased focus
When community engagement takes place with core on community engagement in the health and health
principles guiding its processes and activities, it pro- care system over the years represents an opportunity
pels strengthened partnerships and alliances, ex- for change to ensure meaningful and sustainable im-
panded knowledge, improved health and health care pact. The Organizing Committee believes now is the
programs and policies, and healthier communities. Im- time to catalyze and accelerate the paradigm shift to-
provements in these domains and their associated in- ward engagement to ensure system transformation
dicators create motion and catalytic action that moves and equity. Sustained and widespread changes toward
us toward health equity and well-being through trans- improved health and well-being cannot occur until sys-
formed systems. tems change, and that cannot happen without the en-
gagement of those closest to the challenges and the
Drivers of Health; Drivers of Change; and Social,
solutions. The processes to engage the community are
Political, Racial, Economic, Historical, and Environ-
essential, and assessing and evaluating the engage-
mental Context
ment is just as essential to understanding whether and
The domains and indicators that align with meaning-
how true impact occurs. Without this critical step, it is
ful community engagement and lead to health equity
impossible to truly understand where to focus efforts
through transformed systems for health are influenced
to transform the health system. Health and health care
by several contextual factors. Drivers of health, many
stakeholders must measure what matters—commu-
of which align with the social determinants of health,
nity engagement—and ensure that it is meaningful.
expand far beyond “traditional” factors like health sta-
The ACE Conceptual Model is only one major ele-
tus and health care into food, transportation, housing,
ment of the work needed to ensure that stakeholders
community attributes, affordable child care, and eco-
can assess the engagement with community. As part of
nomic and racial justice, among many others. Drivers
this effort, the Organizing Committee will also be:
of health extend to the factors that ultimately influence
• Developing impact stories told through videos
and impact well-being (Lumpkin et al., 2021; NASEM,
and other creative modes to demonstrate how
2017; NCIOM, 2020). Drivers of change are the key le-
different partnerships have assessed their en-
vers that influence stakeholder action, including data-
gagement, the influence that engagement has
driven, evidence-based practice and policy solutions;
had on their communities, and the alignment of
grassroots organizing; regulations; and financial incen-
their outcomes with the domains and indicators
tives, to name a few. The relevant social, political, racial,
in the conceptual model. These impact stories
economic, historical, and environmental context also un-
will highlight what is possible and how transfor-
derpins all community engagement efforts. It is critical
mation can take place at a community, hospital,
to understand that the dynamic relationship between
health system, and state level.
meaningful community engagement and health and
health care policies and programs exists within these
NAM.edu/Perspectives Page 9
COMMENTARY
• Conducting a literature review search using er to Improve Population Health. Academic medi-
PubMed and other databases, as well as inclu- cine: Journal of the Association of American Medical
sion and exclusion criteria, to identify specific Colleges 89(4), 564–572. https://doi.org/10.1097/
metrics or individual survey questions, tools, or ACM.0000000000000198.
questionnaires (referred to as instruments) that 2. Carman, K. L., and T. A. Workman. 2017. Engag-
were developed, implemented, or evaluated ing Patients and Consumers in Research Evi-
with community engagement. dence: Applying the Conceptual Model of Patient
• Synthesizing assessment instrument sum- and Family Engagement. Patient Education and
maries that identify instruments that align with Counseling 100:25-29. http://dx.doi.org/10.1016/j.
the domains and indicators in the conceptual pec.2016.07.009.
model. These summaries, based on findings 3. Centers for Disease Control and Prevention (CDC).
from a literature review, will include informa- 2011. Principles of Community Engagement. Avail-
tion on how engagement was used to develop able at: https://www.atsdr.cdc.gov/community-
or implement the instrument, populations, and engagement/pdf/PCE_Report_508_FINAL.pdf (ac-
communities involved in using the instrument, cessed October 15, 2021).
psychometric properties (i.e., validity, reliability, 4. Facilitating Power. 2020. The Spectrum of Commu-
and feasibility), the instrument’s questions, and nity Engagement to Ownership. Available at: https://
alignment with the domains and indicators in d3n8a8pro7vhmx.cloudfront.net/facilitatingpow-
the conceptual model. er/pages/53/attachments/original/1596746165/
• Developing a framework to support end us- CE2O_SPECTRUM_2020.pdf?1596746165 (ac-
ers who want to measure community engage- cessed October 15, 2021).
ment using the conceptual model and instru- 5. Khodyakov, D., S. Stockdale, F. Jones, E. Ohito,
ments identified. A. Jones, E. Lizaola, and J. Mango. 2011. An Ex-
ploration of the Effect of Community Engage-
The ACE Conceptual Model presented in this commen- ment in Research on Perceived Outcomes of
tary is drawn from the active engagement and embed- Partnered Mental Health Services Projects. So-
ding of perspectives from community leaders, academ- ciety and Mental Health 1(3):185-199. https://doi.
ics, researchers, and policy makers. While testing the org/10.1177/2156869311431613.
conceptual model is needed to understand the most 6. Lumpkin, J. R., R. Perla, R. Onie, and R. Selig-
effective context and circumstances for its use, this son. 2021. What We Need To Be Healthy—And
model presents an additional resource for end users to How To Talk About It. Health Affairs. Available at:
support the assessment of meaningful community en- https://www.healthaffairs.org/do/10.1377/fore-
gagement. Further, the model reflects what the Orga- front.20210429.335599/full/ (accessed October
nizing Committee believes are necessary elements of 15, 2021).
meaningful engagement that should be measured and 7. National Academies of Sciences, Engineering,
evaluated early and often. This model is evolving and and Medicine (NASEM). 2017. Communities in
not stagnant, much like the movement depicted in the Action: Pathways to Health Equity. Washington,
shape of the model. It represents a guiding framework DC: The National Academies Press. https://doi.
to catalyze meaningful community engagement and org/10.17226/24624.
radically propel the U.S. toward health equity through 8. North Carolina Institute of Medicine (NCIOM).
systems transformation. 2020. Healthy North Carolina 2030: A Path Toward
Health. Morrisville, NC: North Carolina Institute
References of Medicine. Available at: https://nciom.org/wp-
1. Aguilar-Gaxiola, S., S. Ahmed, Z. Franco, A. Kis- content/uploads/2020/01/HNC-REPORT-FINAL-
sack, D. Gabriel, T. Hurd, L. Ziegahn, N. J. Bates, Spread2.pdf (accessed October 15, 2021).
K. Calhoun, L. Carter-Edwards, G. Corbie-Smith, 9. Roy, B., C. Riley, L. Sears, and E. Y. Rula. 2018. Col-
M.M. Eder, C. Ferrans, K. Hacker, B.B. Rumala, A. lective Well-Being to Improve Population Health
H. Strelnick, and N. Wallerstein. 2014. Towards a Outcomes: An Actionable Conceptual Model
Unified Taxonomy of Health Indicators: Academic and Review of the Literature. American Journal of
Health Centers and Communities Working Togeth- Health Promotion 32(8):1800-1813. https://doi.
NAM.edu/Perspectives Page 11
COMMENTARY
Correspondence
Questions or comments about this paper should be di-
rected to leadershipconsortium@nas.edu.
Disclaimer
The views expressed in this paper are those of the au-
thors and not necessarily of the authors’ organizations,
the National Academy of Medicine (NAM), or the Na-
tional Academies of Sciences, Engineering, and Medi-
cine (the National Academies). The paper is intended to
help inform and stimulate discussion. It is not a report
of the NAM or the National Academies. Copyright by
the National Academy of Sciences. All rights reserved.