Fulmer Et Al 2021 Actualizing Better Health and Health Care For Older Adults

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Age-Friendly Health

By Terry Fulmer, David B. Reuben, John Auerbach, Donna Marie Fick, Colleen Galambos, and
Kimberly S. Johnson doi: 10.1377/hlthaff.2020.01470
HEALTH AFFAIRS 40,
NO. 2 (2021): 219–225
This open access article is
C o m m e n ta ry distributed in accordance with the
terms of the Creative Commons

Actualizing Better Health And Attribution (CC BY-NC-ND 4.0)


license.

Health Care For Older Adults

Terry Fulmer (terry.fulmer@


ABSTRACT By 2030 more people in the United States will be older than johnahartford.org) is president
and CEO of the John A.
age sixty-five than younger than age five. Our health care system is Hartford Foundation, in New
unprepared for the complexity of caring for a heterogenous population of York, New York.

older adults—a problem that has been magnified by the coronavirus


David B. Reuben is director of
disease 2019 (COVID-19) pandemic. Here, as part of the National Academy the Multicampus Program in
Geriatrics Medicine and
of Medicine’s Vital Directions for Health and Health Care: Priorities for Gerontology and chief of the
2021 initiative, we identify six vital directions to improve the care and Division of Geriatrics at the
University of California Los
quality of life for all older Americans. The next administration must Angeles Center for Health
create an adequately prepared workforce; strengthen the role of public Sciences, in Los Angeles,
California.
health; remediate disparities and inequities; develop, evaluate, and
implement new approaches to care delivery; allocate resources to achieve John Auerbach is president
and CEO of Trust for
patient-centered care and outcomes, including palliative and end-of-life America’s Health, in
care; and redesign the structure and financing of long-term services and Washington, D.C.

supports. If these priorities are addressed proactively, an infrastructure Donna Marie Fick is director
can be created that promotes better health and equitable, goal-directed of the Center of Geriatric
Nursing Excellence in the
care that recognizes the preferences and needs of older adults. College of Nursing at the
Pennsylvania State University,
in University Park,
Pennsylvania.

Colleen Galambos is the Helen

I
n 2018 the US population ages sixty-five motion and disease prevention and receive equi- Bader Endowed Chair of
and older numbered 52.4 million, with table, person-centered, high-quality care. Effec- applied gerontology at the
older adults representing 15.6 percent of tive policies are needed that can bridge the gaps University of Wisconsin–
the population.1 By 2030, 20 percent of between public health, health care, and other Milwaukee, in Milwaukee,
Wisconsin.
Americans will be age sixty-five or older. sectors of the economy, focusing on social deter-
The most striking aspect of this population is its minants of health and preventive measures to Kimberly S. Johnson is an
heterogeneity. In 2017, 23 percent of older Amer- reduce the burden of chronic disease while also associate professor in the
icans were members of racial and ethnic popu- providing person-centered care to those with se- Division of Geriatrics at the
Duke University School of
lations, and this percentage will increase by an rious illness. Online appendix exhibit A1 illus- Medicine, in Durham, North
estimated 135 percent between 2017 and 2040, trates this approach.3 Carolina.
compared with 36 percent for the non-Hispanic In 2016, as part of the National Academy of
White population.2 And although stereotypes Medicine’s Vital Directions for Health and
portray older people as frail, disengaged, and Health Care initiative, an expert panel wrote a
cognitively impaired, many are industrious, cre- paper that provided guidance for preparing the
ative, and intelligent into the tenth decade of life. nation for the realities of an aging population.4
Because of momentous advances in science Since the publication of “Preparing for Better
and technology, the knowledge and skills exist Health and Health Care for an Aging Population:
to provide excellent preventive and clinical care A Vital Direction for Health and Health Care,”5
to this cohort. What is now needed is the policy, emerging trends have included more personal-
and the will, to take collective action to ensure ized approaches to care; greater elicitation of
that all older adults are engaged in health pro- goals and preferences from those receiving care;6

F e b r ua ry 2 0 2 1 40:2 H e a lt h A f fai r s 219


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Age-Friendly Health

and growing sophistication in the use of elec- ternships, as well as efforts to train professionals
tronic health records (EHRs) to identify risk, and direct care workers who are already in the
classify subpopulations, and direct appropriate workforce.
interventions. Alternative payment models and Strengthen The Role Of Public Health
Medicare Advantage have created flexibility that Congress and the administration should mobi-
permit innovation in care delivery and promote lize and fund the Centers for Disease Control and
more efficient and higher-quality health care. Prevention (CDC) and state and local health
The CAPABLE (Community Aging in Place— agencies to make healthy aging an essential com-
Advancing Better Living for Elders) model is ponent of public health. The Department of
a good example of this flexibility: Section 1915 Health and Human Services (HHS) should en-
Medicaid home and community-based services sure that public health efforts for older adults are
waiver dollars are used for home repairs and in- aligned with those in the health care and com-
home care that improves safety and health out- munity-level services sectors at local, state, and
comes for older adults.7 federal levels.
Yet most older people remain insured under Remediate Disparities And Inequities The
traditional fee-for-service Medicare, which in- administration and Congress should support the
centivizes profit-generating services. Policy establishment of a cross-agency, cross-secretari-
changes such as bundled, capitated, and other at committee to develop and implement policies
value-based payments are urgently needed to and programs that eliminate the social, structur-
promote the delivery of care that addresses the al, and economic obstacles to the optimal health
social determinants of health, encompasses life- and well-being of older adults. Such interven-
style modifications, recognizes the diversity of tions will require integration of federal, state,
the older population, and provides needed ser- and local government agencies, as well as public
vices for elders with serious illnesses. health and community-based organizations to
The 2016 Vital Directions authors expressed address the full spectrum of social determinants
deep concerns regarding health care disparities, of health. In addition to a continued focus on
inequality, structural racism, and the resulting social needs such as housing, food security, and
disproportionate risk for adverse outcomes transportation, new attention should be given to
among those who are disadvantaged and most addressing social isolation among older adults.
at risk. In 2020 these concerns are even more Develop New Approaches To Care Delivery
grave, and they present an opportunity for re- Congress and CMS should work toward optimiz-
newed assessment and policy directions for ad- ing the balance in payment between remote and
dressing persistent issues. Further, the corona- in-person care for older adults and should pro-
virus disease 2019 (COVID-19) pandemic has mote policies that ensure education and resourc-
exposed fundamental problems in the US health es for the integration of telehealth into existing
care system that specifically affect older people. and new evidence-based practice models. En-
In this article, as part of the National Academy couraging innovation and increasing access to
of Medicine’s Vital Directions for Health and EHRs for older adults and caregivers is impor-
Health Care: Priorities for 2021 initiative, we tant, as is increasing broadband access to all
identify six vital directions to improve the care communities.
and quality of life for all older Americans. The Allocate Resources To Palliative And
National Academy of Medicine invited this au- End-Of-Life Care Congress and the administra-
thor group, from diverse professional back- tion, including HHS and CMS, should expand
grounds, to iteratively generate policy recom- access to and use of palliative care for older
mendations for the next administration. We adults. Serious illness care, dementia care mod-
provide the following agenda for policy makers els, and other evidence-based programs that fo-
to actualize better health and health care for cus on improving quality of life, including end-
older adults. of-life care, should be prioritized. Access to such
programs should be based on need instead of
being tied to prognostic estimates.
Recommendations Redesign Long-Term Services And Sup-
Create An Adequately Prepared Workforce ports Government entities including HHS,
The Health Resources and Services Administra- CMS, state Medicaid programs, the Administra-
tion (HRSA) and the Centers for Medicare and tion for Community Living, and the CDC should
Medicaid Services (CMS) must strategically plan test and adopt successful innovations and con-
for and support the creation of a robust, quali- comitant payment models to expand services to
fied workforce across settings through a coordi- improve the quality of care in nursing homes
nated interdisciplinary approach that includes and home and community-based services. Older
scholarships, loan forgiveness, and clinical in- adults should be able to choose whenever possi-

220 Health Affairs F e b r u a ry 2 0 2 1 40:2


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ble between aging in place and residing in an care spectrum.15,16 The 4Ms framework has been
institutional setting. adopted by the HRSA Geriatrics Workforce En-
Taken together, these recommendations call hancement Program and should be embedded
for a major reform of the current health-related into other federal training programs for health
systems and payment structures to create value, care professionals.17
reduce waste, and better serve older adults. We Strengthen The Role Of Public Health His-
next describe background and approaches for torically, older adults have benefited from ad-
the six vital directions. vancements in public health such as vaccination
programs and smoking cessation, but public
health has not focused on aging services or pro-
Approaches To Change grams. However, recent work directed at creat-
Create An Adequately Prepared Workforce ing age-friendly public health systems (in coor-
An expanded and better-trained workforce for dination with the Age-Friendly Health Systems
older adults is needed. In 2008 a report from movement) that leverages public health skills
the Institute of Medicine8 proposed a three- and capacity is gaining momentum. Attention
pronged approach to strengthening the health- to the need for an age-friendly public health sys-
related workforce. Recommendations included tem recognizes aging as a core public health
enhancing the competence of all providers responsibility and leverages the system’s skills
who deliver health care, increasing the recruit- and capacities to improve the health and well-
ment and retention of geriatrics specialists, and being of older adults.18 Age-friendly public health
redesigning models of care for more efficient systems create the conditions at the national,
deployment of the existing workforce. As a re- state, and community levels that older adults
sult, the HRSA-funded Geriatric Education Cen- need to live safely, healthfully, and productively.
ters, established to improve competence in geri- Programs and policies that ensure access to fresh
atric care, evolved into the Geriatrics Workforce food, exercise, and social engagement are exam-
Enhancement Program, which maximizes pa- ples. A 2017 pilot program in Florida, led by Trust
tient and family engagement.9 for America’s Health, showed the potential of
However, the strategy of training more geriat- these systems.19 Among the core elements of
rics specialists from all disciplines has been a this work are targeted data collection and analy-
failure, with barely any change from the 2008 sis; adaptation of existing programs, including
report.10,11 The incentives and potential rewards emergency preparedness, to meet the needs of
of professional careers focused on the care of older adults; and improved coordination and
older adults have been insufficient to attract collaboration with Area Agencies on Aging and
graduates, who are frequently burdened with key health care providers. A follow-up call for
substantial debt and are often uncomfortable additional state pilot programs has garnered sig-
with the complexity of care for this population. nificant interest, and standards are being devel-
Scope of practice and compensation parity de- oped for certification. A proposal to expand this
bates are ongoing. pilot work has been introduced in Congress with
Creative education and training approaches bipartisan support. Federal funds would support
such as simulation and virtual learning can ac- grants to states and localities, create a Healthy
celerate mastery of geriatric care principles for Aging program at the CDC, and provide the req-
all students. It is essential to educate, support, uisite technical assistance.
and monitor all care providers using these same Remediate Disparities And Inequities The
geriatric care principles and strategies, not just World Health Organization defines social deter-
providers choosing a career in geriatrics. minants of health as “the conditions in which
Since the publication of the 2008 Institute of people are born, grow, live, work and age…
Medicine report,8 new models of care have been shaped by the distribution of money, power
created for conditions that affect those with and resources at global, national and local lev-
dementia,12 falls,13 and depression.14 The Insti- els.”20 Harmful social determinants of health can
tute for Healthcare Improvement’s Age-Friendly have lifelong impacts, exposing those affected to
Health Systems initiative is an example of system higher risks of morbidity, mortality, suffering,
reform and is now in present all fifty states and and economic costs. Black older adults who grew
several countries. The model promotes the adop- up during the Jim Crow era and who have en-
tion and spread of geriatric care principles dured structural and systemic racism through-
through reliable use of evidence-based best prac- out their lives are likely to be at greater risk for
tices in a “4Ms” framework (what matters, men- poor health and have fewer opportunities to
tation, medication, and mobility). This approach achieve optimal well-being.21,22 The COVID-19
has resulted in improved care, reduced harm, pandemic caused the greatest harm in commu-
and fewer low-quality services across the entire nities with poor conditions for health.23

February 2021 40:2 Health A ffairs 221


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Age-Friendly Health

CMS expanded coverage via Medicare Advan- tiveness of the use of telehealth for dementia
tage plans to include benefits that relate to the care, which should be adopted broadly.30
social determinants of health, such as air condi- Approaches to optimizing telehealth should
tioners for people with asthma, healthy groceries include efforts outside health care (for example,
for people on medically prescribed diets, and expanding broadband access and including
home-delivered meals for people who are immu- older adults and diverse populations31 when de-
nocompromised.24 This type of coverage should signing and testing new portals and apps) and
be expanded for all older adults who are dually within health care (for example, routinely asking
eligible for Medicare and Medicaid. Efforts to older adults about their access to technology,
promote racial equity should include ensuring incorporating sociodemographic and literacy
access to comprehensive health insurance and metrics, and increasing patients’ and caregivers’
high-quality care, implementing programs and access to EHRs). For people with cognitive, sen-
policies such as criminal justice reform, and fa- sory, and functional impairments, adaptive sol-
cilitating meaningful partnerships with commu- utions such as remote cognitive assessment to
nity-based organizations that serve people of detect change and video monitoring to assist
color. with safe medication management have been
Social isolation is caused or exacerbated by valuable clinical tools.
social, economic, and environmental condi- Although telehealth may improve care coordi-
tions. Isolation is an underappreciated health nation and access by connecting community-
concern that is associated with an increased risk based organizations with health care systems,
for premature mortality that is comparable to barriers remain, including privacy concerns re-
that of smoking, obesity, and physical inactivity. lated to the Health Insurance Portability and
Up to 24 percent of community-dwelling older Accountability Act (HIPAA) of 1996 as well as
adults experience social isolation, and up to lack of infrastructure, interoperability, and ex-
43 percent of adults ages sixty-five and older pertise at these organizations.
report being lonely. Difficult and abusive rela- OpenNotes, a movement aimed at ensuring
tionships also are known to increase isolation, that all patients can access and edit their care
loneliness, and elder mistreatment.25 records as needed, encourages communication
Referrals to agencies that provide in-home and transparency among older adults, families,
support can help address social isolation and and providers through shared access to notes.32
loneliness. Isolation can be reduced or prevented Open access to health care records was mandated
by the development of innovative housing op- in the 21st Century Cures Act of 2016.33 The next
tions, recreational and employment opportuni- priority should be to pass federal legislation al-
ties, and improved transportation and public lowing patients and authorized family caregivers
safety measures.26 The secretary of housing and to modify and edit their own health records to
urban development should be directed to fund improve care and outcomes.
housing models that promote equity and address Access to tools such as Zoom videoconferenc-
the social determinants of health. ing and FaceTime have been shown to be helpful
Develop New Approaches To Care Delivery in reducing social isolation and improving mo-
Policy changes to Medicare and Medicaid during bility and mood.34,35 Such technologies have been
the COVID-19 pandemic have reduced barriers shown, for example, to decrease agitation and
to telehealth access and promoted its use.27 Pro- behavioral problems such as excessive vocaliza-
fessional medical societies have endorsed tele- tion in older adults with dementia. Remote sen-
health, whereas telehealth experts have docu- sors may improve safety and reduce falls in peo-
mented improved patient health outcomes.28 ple with dementia.36 The advent of robotics,
However, with the growth of telehealth and oth- including robotic pets for therapy, holds prom-
er virtual services, technology must be continu- ise for improving care for older adults.37
ously adapted to the needs and capabilities of all Technology can improve workflow in nursing
older adults. Advances in telehealth and technol- homes and other institutional settings (for ex-
ogy should be promoted through regulatory ac- ample, delivering linens and patient food trays
tion, payment incentives, federal and state dem- could be automated), allowing the workforce to
onstration projects, and the development of focus on tasks that require a human touch.38
public-private partnerships. Allocate Resources To Palliative And
The lack of access to technology, low digital End-Of-Life Care Many older adults are living
health literacy, and design barriers in patient with serious illness, defined as “a health condi-
portals and apps have disproportionately affect- tion that carries a high risk of mortality AND
ed older adults, especially those in underserved either negatively impacts a person’s daily func-
communities.29 The National Institute on Aging tion or quality of life, OR excessively strains their
has funded research that documents the effec- caregivers.”39 Only a small proportion of older

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adults report that they have taken steps to plan ly composed of people of color, are paid low
for serious illness.40 Most will live for years with wages with poor or no job benefits.52
their illnesses, resulting in a high burden of It is time to redesign long-term care to facili-
physical and psychological distress, functional tate older adults’ remaining at home and aging in
dependence, poor quality of life, high acute care place, whenever possible, and to create better
use, loss of savings, and caregiver distress. Mem- options for residential long-term care. Such re-
bers of racial and ethnic minority groups are form will require new models that match services
disproportionately affected.41,42 with the needs of specific patient groups, such as
Because cures are rarely possible for such peo- dementia facilities that are staffed by people
ple, the approach should shift from disease- trained to provide that care. Postacute rehabili-
oriented care to patient-centered care, defined tation care could be provided in the acute care
as “respectful of and responsive to individual setting, decreasing excess transitions of care and
patient preferences, needs, and values[,]…en- providing better care continuity. Reimburse-
suring that patient values guide all clinical deci- ment would need to be appropriately adjusted.
sions.”43 Such care elicits and seeks to meet in- In the summer of 2020 CMS commissioned an
dividual health goals5,44 and priorities45,46 across expert panel to review why nursing homes were
a variety of dimensions (for example, symptoms, so disproportionately affected by the COVID-19
physical functional status, and social and role pandemic and to make recommendations for the
functions). future.53 The panel called for increasing organi-
Palliative care is an evidence-based model that zational capacity to improve safety and quality in
improves outcomes for people with serious ill- nursing homes and developed twenty-seven rec-
ness, but it is underused in many regions of the ommendations including reexamination of in-
country, with generally poorer access in commu- fection control practices, staffing, and the physi-
nity-based settings and for some racial/ethnic cal design of facilities. Potential reforms include
minority groups.47 Additional efforts are needed increased regulation around infection control,
to expand access to and use of these services expanded availability of telemedicine visits,
across settings and throughout the course of and increased on-site treatment of minor ail-
serious illness, regardless of prognosis. The Na- ments in congregate settings. The National Acad-
tional Academy for State Health Policy has docu- emies are currently undertaking a study on safety
mented improved care and reduced unnecessary and quality in nursing homes, which can build
costs for people with serious illness who used on the expert panel’s recommendations.
palliative care.48 Community-based long-term care will also
In addition to expanded access to palliative need new models and financing to bring commu-
care specialists, older adults need front-line nity-based organizations and health systems to-
clinicians with adequate training in “primary gether to provide comprehensive care, particu-
palliative care skills” with a focus on communi- larly for people who are frail and have functional
cation and symptom management; all front- dependencies.
line clinicians should receive training in these
skills.49 Education, policies, and initiatives
should be designed and evaluated to ensure Summary
equitable access to palliative care for diverse Dramatic changes are needed in the US policy
populations of older adults living with serious agenda to address the health and well-being of
illness. the growing older adult population. We propose
Older adults with serious illness are at greatest a concerted, coordinated effort to advance six
risk for problems with care coordination across vital directions. Despite long-standing barriers
health systems. Multiple care transitions can to their adoption, the next administration and
lead to medication errors, lack of follow-up care Congress—in partnership with state and local
and referrals to necessary services, and disrup- government entities—should tackle them with
tions in care planning and treatment, resulting new vigor.
in poor care and often harm. Such fragmented The next administration and Congress should
care can be mitigated by established transitional articulate and establish clear priorities and pro-
care approaches, use of advance directives, and vide relentless federal leadership to enact the
honoring older adults’ wishes for end-of-life necessary regulatory and legislative change. Ear-
care.50,51 ly action is needed to strengthen the workforce
Redesign Long-Term Services And Sup- to facilitate the coordination of care across all
ports The US health care system fails to ade- settings. Scope-of-practice arguments and pay-
quately support the long-term care workforce. ment thresholds will be obstacles but can be
At this time, nursing home staff and the in-home overcome. Other early initiatives are needed to
paid caregiver workforce, which is predominant- incentivize public-private partnerships to accel-

Fe br uary 202 1 40: 2 Health A ffairs 223


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Age-Friendly Health

erate technology solutions, bolster efforts to in- across traditional silos, a commitment to pro-
tegrate Medicare and Medicaid financing for du- longing optimal health and independence, the
ally eligible older adults, and advance legislation restructuring of financing, and unwavering sup-
and funding for healthy aging programming at port for person-centered care. The changes will
the CDC and other federal and state agencies. not come easily. But the burgeoning demo-
The current fragmentation of care, disregard graphics and the critical needs of the older adult
for prevention, and disparate approaches to care population make the challenge urgent and com-
can be resolved. It will take a willingness to work pelling. ▪

The authors acknowledge the editorial Gretchen Alkema (The Scan Foundation). provided the original work is properly
support of Jessica Marx (National This is an open access article cited, not altered, and not used for
Academy of Medicine), Marcus distributed in accordance with the terms commercial purposes. See https://
Escobedo, Jennifer Phillips (The John A. of the Creative Commons Attribution creativecommons.org/licenses/by-nc-nd/
Hartford Foundation), Wendy Huang and (CC BY-NC-ND 4.0) license, which 4.0/. [Published online January 21, 2021.]
Jinghan Zhang (Columbia University), and permits others to distribute this work

NOTES
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benefits. Private Payers News [serial 34 Padala SP, Jendro AM, Orr LC. Face- goal-oriented patient care into
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