Patient Awareness and Role in Attaining Health - 2021 - International Journal of

You might also like

Download as pdf or txt
Download as pdf or txt
You are on page 1of 6

International Journal of Africa Nursing Sciences 14 (2021) 100278

Contents lists available at ScienceDirect

International Journal of Africa Nursing Sciences


journal homepage: www.elsevier.com/locate/ijans

Patient awareness and role in attaining healthcare quality: A qualitative,


exploratory study
Wudma Alemu a, *, Eshetu Girma b, Tefera Mulugeta a
a
Department of Nursing, School of Nursing and Midwifery, College of Health Sciences, Addis Ababa University, P.O. Box: 4412, Addis Ababa, Ethiopia
b
Post Graduate Unit, School of Public Health, College of Health Science, Addis Ababa University, P.O. Box: 378, Addis Ababa, Ethiopia

A R T I C L E I N F O A B S T R A C T

Keywords: Background: Healthcare quality, a critical component of healthcare services, is a demanding product of the joint
Hospital efforts of the healthcare stakeholders; yet, the quality of health care is often lower than expected. It has been
Patients reported that patients who feel empowered play an important role in the quality of care delivery. In Ethiopia, no
Quality
study has examined healthcare quality from the patient’s perspective. In this study, we explored whether or not
Ethiopia
patients were aware of healthcare quality, as well as their role in improving the quality of care.
Method: This descriptive, exploratory study included in-depth interviews with 12 inpatients using a semi-
structured interview guide. Participants were recruited from the inpatient units of a large referral hospital in
Addis Ababa, Ethiopia using purposive sampling with maximum variation. Field notes were collected and in­
terviews were audio-recorded. Data were coded, transcribed verbatim, translated into English, and analyzed
thematically using OpenCode.
Results: All participants were aware of problems with healthcare quality and occurrence of medical errors. Most
participants rated healthcare quality as poor or marginally good. Participants did not know their role in the
pursuit of healthcare quality; most assumed a passive role in care delivery.
Conclusion: Overall, study participants were not satisfied with the quality of their care during hospitalization.
Patient satisfaction can be improved through patient empowerment and engagement in the care delivery process.

1. Introduction right plan of care or execution of a wrong care plan (WHO, 2009).
Medical errors are a threat to patient safety and care quality, and are
The World Health Organization (WHO) (2009) has defined the among the leading causes of patient morbidity and mortality globally
quality of healthcare as, “The extent to which healthcare services pro­ (Jha et al., 2013; Slawomirski et al., 2017). Medical errors result in a
vided to individuals and patient populations improve desired health substantial increase in healthcare cost due to extended lengths of stay
outcomes…,” a meaning that differs considerably among patients and and additional treatments as well as an increase in poor patient out­
care providers (Guijarro et al., 2010; Hartnell et al., 2006; Mazor et al., comes and death (Kobewka et al., 2017; Welzel, 2012). Reports suggest
2012). Over time, hospitals appear to have improved the quality of care that 8%–12% of hospital admissions result in a medical error (WHO
compared to past years due to the evolving knowledge of disease pro­ Europe, 2017); other reports suggest that medical errors account for
cesses, the establishment of reliable healthcare systems, and advance­ more than 5% of in-hospital deaths (Kavanagh et al., 2017; Kobewka
ments in biotechnology (AHRQ, 2019; Garrett and Craig, 2007; Tran et al., 2017; Matlow et al., 2014). Further, on average, 10% of patients
et al., 2016). Yet, some hospitals continue to struggle to maintain an who experience a medical error will require a prolonged length of stay,
acceptable level of healthcare quality (Donabedian, 2003; Duffy, 2013; which considerably increases healthcare costs (Welzel, 2012; WHO,
Hughes, 2008) and, as a result, many patients question the quality of 2017).
care that they receive (Mazor et al., 2012). How we measure quality has been a topic of debate, but recently,
Quality metrics typically include the frequency of medical errors or medical cost financers (such as patients and health insurance com­
an unexpected outcome, which is often attributed to deviations from the panies) and hospital administrative personnel have focused on patient

* Corresponding author at: Department of Nursing, School of Nursing and Midwifery, College of health sciences, Addis Ababa University, P.O. Box: 4412, Addis
Ababa, Ethiopia.
E-mail address: wudma.alemu@aau.edu.et (W. Alemu).

https://doi.org/10.1016/j.ijans.2021.100278
Received 31 May 2019; Received in revised form 1 December 2020; Accepted 11 January 2021
Available online 16 January 2021
2214-1391/© 2021 The Author(s). Published by Elsevier Ltd. This is an open access article under the CC BY-NC-ND license
(http://creativecommons.org/licenses/by-nc-nd/4.0/).
W. Alemu et al. International Journal of Africa Nursing Sciences 14 (2021) 100278

satisfaction as a metric in their quest for quality (AHRQ, 2018, 2020; wards: medical, surgical, gynecology and obstetrics, oncology, and or­
British Medica Journal, 2009; Duffy, 2013; Wachter, 2008; WHO, 2018). thopedic wards. The participants were recruited through purposive
Though many believe that patient satisfaction is subjective, others have sampling with maximum variation: chosen from both sexes, wide age
begun to use this metric widely. There is some consensus that patient range (from 19 to 74 years), several inpatient units, variable illness types
satisfaction is partly driven by the extent to which patients are involved and severity, and at different time of the day (morning, lunchtime and
in the process of care (Grøndahl et al., 2018; Siriwardena and Gillam, afternoon). The inclusion criteria for the participants were that they
2014). The practice of shared decision making between patients and were 18 years or older, admitted to in-patient units, understood
care providers has been linked to improved patient outcomes (Castro Amharic, and able to make decisions and provide informed consent. The
et al., 2016; Gillespie & Reader, 2018; Harvard School of Public Health, data were collected from 10 June to 17 July 2019.
2014), mainly through improvements in patient satisfaction scores
(Grøndahl et al., 2018; Weingart et al., 2011). Shared decision making 2.2. Data collection tool
improves one’s ability to identify and report (Brabcová et al., 2014;
Davis et al., 2012; Harvard School of Public Health, 2014; Spath, 2004) A study team, composed of three authors, collected the data through
and manage medical errors (Brabcová et al., 2014; Hibbard et al., 2005; in-depth interviews using a semi-structured interview guide adapted
WHO, 2016), which ultimately contributes to improvements in the from earlier studies (Burroughs et al., 2007; Harvard School of Public
overall quality of care (Groene, 2011; Weingart et al., 2011; WHO, Health, 2014; Hibbard et al., 2005; Mazor et al., 2009). The guide
2016). Despite evidence that nearly all patients are willing to participate contained eight general, open-ended questions that explored patient
in a shared decision-making process (Schoenfeld et al., 2018), 35–53% awareness surrounding the quality of hospital care, medical errors, and
of patients report that they are not consulted in the process of care roles that they, as patients, could play in the reduction of medical errors.
(European Patient’s Forum, 2017; Gillespie & Reader, 2018). Back translation was used to prepare the interview guide: it was pre­
Patient empowerment is critical for a successful shared decision- pared initially in English, and then translated to Amharic (local lan­
making process, especially in the detection and management of medi­ guage) and then back to English. The Amharic version was used for the
cal errors (European Patient’s Forum, 2017; WHO, 2016). This is final study.
because empowerment increases patient awareness regarding the pro­
cess of care, including the possibility of medical errors and the associ­ 2.3. Data collection procedure
ated sequelae (IHI, 2017; Mazor et al., 2009) as well as the role of
patients in the reduction and elimination of medical errors (Karch, 2015; Two interviewers were involved in each interview by alternating the
Schoenfeld et al., 2018; Wilde-Larsson & Larsson, 2008). This process authors. The interviews were conducted in the inpatient units of the
includes an educational component, wherein patients are informed of hospital where the participants were receiving care. Upon entering the
their disease process as well as specific diagnosis and treatment options participants’ rooms, the interviewers greeted the patient, introduced the
(Britten, 2009; Muhrer, 2014). study, and then asked if he/she would like to take part in this study. The
Few studies in Africa have examined patients’ perspective about the participants were also asked if they would like to take some time to
quality of healthcare, satisfaction with the care, and medical errors. decide whether to participate, but none of them took more than five
Recent scholarship show that most patients treated in Africa believed minutes to decide.
they were receiving poor quality care (Katuti, 2018; Teshome et al., Those who agreed to participate in the study and met the inclusion
2019). One study, for example, revealed that over two-thirds of patients criteria were briefed about the purpose of the study. It was explained to
knew about medical errors; nearly half believed that medical errors them that they had the right to participate, refuse, or withdraw from the
occurred to them and knew that the errors could have serious health study at any time; and that all information collected would be kept
consequences (Ushie et al., 2013). confidential. In addition, it was explained to the patients that refusing to
The quality of healthcare is a major concern for healthcare facilities, participate or withdrawing from the study was their right as research
system administrators, patients and families alike. Nonetheless, no study participants and would be an acceptable option (Annex A). Moreover,
so far has examined patient involvement in the care process nor their the participants were allowed to decide on the presence or absence of
roles in care quality in Addis Ababa, Ethiopia. We, thus, conducted this their relatives during the interview, where 11 of them preferred to be
study to explore patients’ knowledge base and the degree of involve­ interviewed in the presence of their relatives. Then, those who fully
ment in the quest for care quality and the reduction or elimination of understood their rights and agreed to participate in the study were asked
medical errors in hospitals in Addis Ababa, Ethiopia. to sign an informed consent form. The interviews were conducted in the
This study considered healthcare quality as an outcome of collective absence of care providers. The interviewers paused the interview if it
efforts by patients, care providers and healthcare systems. It, thus, was time for a patient to receive treatment, or would like to take break or
assumed that patients could play key roles in realizing optimal care recover from any discomfort.
quality. The roles, in turn, depend heavily on the patients’ under­ The 8-question, semi-structured interview guide was used for each
standing of the care quality as well as the value of their contribution to study participant. The interviewers used the open-ended questions to
materializing the quality. This study, therefore, explored the patients’ elicit specific participant responses, and followed with probing for
perception of and contribution to care quality using the interactive further clarification if needed. The interviews were conducted on a one-
multidimensional (patient-provider-hospital) theoretical model (Azam to-one basis at different times (morning, lunchtime, and afternoon) of
et al., 2012; Brown et al., 2018; Mosadeghrad, 2012, 2013, 2014). the day and lasted 45 min on average. Eleven participants allowed their
responses to be audio-recorded, and field notes were taken in addition.
2. Materials and methods Two participants did not allow their responses to be audio-recorded: for
these interviews, detailed field notes were taken. However, one of the
2.1. Approach, setting and participant recruitment two field notes lacked sufficient details and was excluded from the
analysis. The interview process concluded with one more interview after
This was a descriptive, exploratory study that examined patients’ reaching data saturation, as evidenced by redundancy of information.
knowledge of healthcare quality, medical errors and role in the man­
agement of medical errors. It was conducted in a purposely selected, 2.4. Data management and analysis
800-bed referral hospital in Addis Ababa. The hospital has an annual
capacity of treating around 400,000 patients referred from all over the Upon completion of the interview process, two of the study team
country. The study interviewed 12 in-patients recruited from five major members assigned a unique code to each record (audio recording and

2
W. Alemu et al. International Journal of Africa Nursing Sciences 14 (2021) 100278

field notes) taken from each interview. The recordings from each 3.1. Demographic characteristics of participants
interview were kept in a separate folder. Each folder was coded
uniquely, and then deposited in a repository. The coding team checked Participants ranged in age from 19 to 74 years, half were women, and
each other’s coding for accuracy. Whenever there was a discrepancy in roughly two-thirds reported that they had completed a secondary or
their coding, the coders would discuss and resolve it. The audio- tertiary education program. Three-quarters of the participants were in­
recordings were transcribed verbatim, and then translated into En­ patients in medical, oncology, and surgical wards (Table 1).
glish. All the interview transcriptions were entered into OpenCode for
coding and analysis.
3.2. Patient awareness about care quality
Data analysis involved both quantitative and qualitative methods
(Denzin and Lincoln, 2018; Flick, 2014). The quantitative analysis of
The study team assessed the knowledge base of the study participants
responses to some concepts such as perception of care quality and
on care quality by asking them to describe care quality in their own
severity of medical errors as they originally appeared would make the
words, and to list the criteria they use to choose a hospital for their
subsequent findings difficult to understand and use. Hence, the analysis
healthcare needs. Then, we compared their descriptions conceptually
grouped similar responses into one to make the findings simple for
and literally with that of the WHO. The majority of the study partici­
comprehension and use. The qualitative analysis explored the partici­
pants were able to describe care quality using at least one of the key­
pants’ awareness about care quality, medical errors and managing the
words and phrases that are in the WHO standard definition, such as
errors. The quantitative analysis measured the patients’ level of
safety, effectiveness, cordial reception, timeliness, and active involve­
awareness about care quality, magnitude of medical errors and role in
ment (WHO, 2009).
managing medical errors: it estimated the proportion of responses per
All the participants listed care quality, the reputation of a hospital,
code, categories, and sub-themes.
safeness of care or a combination of these as criteria for selecting hos­
After repeatedly listening to five of the audio recordings, along with
pitals. For example, when a 49-year-old male cancer patient was asked
reading the translations and field-notes carefully, two of the researchers
about the criterion he uses for choosing a hospital, he replied, “I mostly
developed codes representing similar or identical responses. The codes
use the quality of care as a criterion.” When asked to elaborate on what he
were developed deductively by tracing the topics in the interview guide.
meant by “quality of care,” he said, “If a doctor properly identifies my
Conceptually similar codes were unified into a category, categories into
problem and gives me the right treatment, then that is quality care. If the
a sub-theme, and sub-themes into a theme. Codes and themes were
treatment does not cause me any injury or discomfort, that also is quality
refined, modified and even changed as more data were included in the
care. If the treatment eradicates my health problem, it is quality care. It also is
analysis.
quality care if the professionals treat me like a human rather than like a
subject or an object.”
2.5. Rigor of the study
Another participant, who reported using “reputation” as a criterion
for choosing a hospital, described “reputation” as, “…If a hospital has
Several measures were taken to ensure the rigor of the study: the
good reputation, it means that it is working hard… Good reputation is
participants were recruited through purposive sampling with maximum
tantamount to high-quality care. If the care is high quality care, it is safe. …”
variation to increase the depth and breadth of the patients’ views. The
Similarly, one other participant, who reported using “safety of care” as a
study guide was adapted from previous studies and pilot tested with
main criterion for choosing a hospital, described “safety” as, “… the
three in-patients at a regional hospital in Addis Ababa, Ethiopia. The
professionals do not make mistakes while performing procedures on me…I
pre-test led to the removal of one redundant question and slight changes
mean, getting harm-free care.”
to the content of almost all the general questions, including adding an
alternative word (‘describe’) to the first guiding question, and splitting
the third guiding question into two (Annex B). It also helped the team to 3.3. Patient satisfaction
reconsider the interview approach.
The first draft of the study report was sent to two of the participants Using a 5-point Likert type scale, the interviewers asked the partic­
to find out if it sufficiently represented their views, which they positively ipants to rate the quality of care they received in the current hospital.
affirmed. Furthermore, two colleagues compared the final report with The possible responses on the scale ranged from “bad” to “very good,”
the interviews and concluded that the final report adequately repre­ and were condensed into three categories: “satisfactory,” “neutral” or
sented the opinions of the participants. A record of the authors’ onto­ “unsatisfactory.” Accordingly, the ‘very good’ and ‘good’ responses were
logical and epistemological viewpoints was also compiled to bracket out put under the first category, ‘indifferent’ under the second (which had
researcher biases from preconceptions. The interviews were augmented
with notes taken during the interview. Table 1
Demographic characteristics of participants (n = 12).
2.6. Ethics of the study Variables Categories Frequency (%)

Age In year <20 1 (8.33)


All the study participants were protected, as required for human 20–30 3 (25)
subjects. The report kept the identity of the hospital confidential at the 30–40 2 (16.67)
hospital administrators’ request. The IRB of the College of Health Sci­ 40–50 2 (16.67)
ences at Addis Ababa University cleared the study of any ethical con­ 50–60 2 (16.67)
2 (16.67)
cerns (letter Ref. No: Prv/048/11). The team initiated the interview
>60
Sex Female 6 (50)
after the hospital under study permitted the study to move forward as Male 6 (50)
planned. Educational status Unable to read/write 1 (8.33)
Primary education 3 (25)
3. Results Secondary education 5 (41.67)
Tertiary education 3 (25)
Wards (Dx) Medical 3 (25)
The findings are organized around four subsections. Obstetrics/Gynecology 2 (16.67)
Oncology 3 (25)
Orthopedic 1 (8.33)
Surgical 3 (25)

3
W. Alemu et al. International Journal of Africa Nursing Sciences 14 (2021) 100278

zero count), and ‘bad’ and ‘very bad’ under the third. Based on these errors be?” Their responses ranged from a mere financial cost to death:
categories, nearly half of the participants rated the quality of care in the these were grouped into “severe” or “very severe” category. Responses
current hospital as “unsatisfactory.” One participant described the that included death were assigned to the latter category, to which 10 of
quality of care he received as, “Not bad. I do not feel good about the length the 12 responses belonged. When the above question was posed to a
of time I waited to get treatment. Even after such a long wait, the quality of cancer patient, she replied, “…it could be fatal. I may die soon if I do not get
care I got is not satisfying.” How participants rated the quality of care they the treatment I need. You know cancer is a deadly disease if not treated in
received varied by inpatient units. Patient satisfaction was the lowest in time. I may not survive even after getting a treatment if the disease spread to
the oncology unit, where a 49-year-old cancer patient, for example, other parts of my body…”
rated it as, “Not good. It took me many weeks to get treatments… I am still
waiting, but the disease is progressing. My hope for a cure has died out little by 3.8. Management of medical errors
little.”
In this study, management of a medical error is defined as the pre­
3.4. Patients’ awareness about medical errors vention of an error occurrence, and once an error occurs, mitigating its
consequences. We assessed the patients’ understanding of their role in
This study assessed patients’ awareness of medical errors by the management of medical errors through assessing their understand­
exploring their understanding of errors, the existence of errors and the ing of three constructs: 1) the role they play in the management of
consequences of errors. medical errors, 2) the importance of an accurate description of an
illness, and 3) the significance of their active involvement in the care
3.5. Patients’ understanding of medical errors delivery process.
To assess the participants’ understanding of their role in the man­
Participants’ responses on their understanding about medical errors agement of medical errors, we asked them, “How much do you think you
were grouped into “aware” or “unaware” categories. A response was can contribute to the prevention and control of medical errors?” The
assigned to the “aware” category if it described a medical error as a subsequent responses were measured on a 7-point Likert type scale, and
professional mistake, a wrong act, a wrong procedure, or patient harm then categorized into “significant” or “insignificant” contribution. The
due to an erroneous diagnostic or therapeutic procedure. Eight of the 12 “significant” category is composed of responses with which the re­
responses met these criteria, and thus went to the aware category. spondents described their “contribution” as “a lot,” “substantial,”
Among the responses in this category include that of a 23-year-old “important” or “very important.” In the “insignificant” category, the
participant who described a medical error as, “… when the care pro­ respondents stated their contribution as “little,” “no” or “I do not know.”
viders give you a wrong medicine or suture-close a surgical opening by leaving Accordingly, in half of the responses, the participants considered their
materials inside or conduct surgery on the wrong site…” Similarly, a 39- “contribution” to the management of medical errors as ‘insignificant.’
year-old participant, with a response in the aware category, described For instance, a surgical patient replied to the above question as, “… I
a medical error as, “…when a patient gets harmed because of a mistake the have no role to play in it.” When probed why, he said, “Because, it is the
health professionals make…” result of mistakes committed by the health professionals. Only they know
The remaining four responses went to the ‘unaware’ category. The about it, including its treatment…”
responses under this category showed that the responders either had The participants were also asked, “How important is a precise
never heard about a medical error or had heard but were unable to description of your illness for the proper diagnose and treatment?” to
describe it. For example, a 65-year-old patient replied, “I’m not sure explore their understanding of the contribution of a proper description
about it…I have never heard about it before.” Likewise, another participant of illnesses to medical error prevention and control. Their responses to
replied, “…not sure that I am aware of it. I think I heard about it on TV or this question were a binary measure of “contributes” or “does not
radio, but not aware of what it actually means.” contribute.” Seven of the 12 responses fell under the “does not
contribute” category. A patient in this category said, “… The care pro­
3.6. Patients’ views on occurrence of medical errors viders touched me, took and examined blood, urine… samples to determine
my illness. I do not think that what I tell them about my illness would impact
As to the occurrence of a medical error, three-quarters of the par­ my diagnoses or treatment.” Similarly, another patient said, “… I do not
ticipants presumed that it occurs in the current hospital. When a 74- think that the story I tell about my illness can affect my diagnosis or
year-old cardiac patient was asked for his remark on occurrence of treatment…”
medical errors in the current hospital, he stated, “Yes, it occurs in every In the end, the participants were asked about their level of involve­
hospital, including this one. Its humans who work in here, and all humans ment in the care process. The subsequent responses were dichotomized
make mistakes…” Likewise, a 29-year-old patient replied to the above into “active” or “passive” involvement categories: those responses that
question as, “Yes. Why not? … Its occurrence is inevitable despite the indicated the involvement of responders in the shared decision-making
industrious efforts the health professionals make to avoid it.” process were assigned to the active category, and otherwise to the pas­
The study participants were additionally asked if they had experi­ sive. Accordingly, 11 of the 12 responses belonged to the latter category.
enced a medical error or heard of other patients who sustained medical One participant stated, “The health professionals never involved me in the
errors. Seven participants reported either having a history of or heard of planning or implementation of my treatment. They only gave me orders
other patients who sustained medical errors. For example, a 27-year-old saying do this or that, take this or that medicine… I have been here for a
respondent replied to the ‘experience’ related question by saying, “Yes, it while. I underwent surgery twice. They did not inform me that I was about to
happened to me. Because of a lag in initiating my therapy, the disease is undergo surgery for the second time. I can hear English. … I heard a physician
progressing and tormenting me… The care providers, who referred me to this telling his students… that another surgery was imminent. They did not tell me
hospital, took a lot of time on treating me for other illness, as they did not why I had to undergo surgery for the second time. What they told me was not
know that it was cancer… If they had soon identified it correctly and referred to eat and drink until the next morning.”
me right away, my chance of cure could have been much higher.” It was, though, apparent that many of the study participants were
confused by the question. A 35-year old cancer patient, for example,
3.7. Patients’ perception of severity of medical errors replied to the above question, saying, “They consulted me very well in
every procedure they do on me.” However, when questioned further about
As part of our interviews, the study participants were challenged whether the health professional told him about diagnostic and thera­
with the question, “how serious could the consequences of medical peutic options or his right to refuse treatment, he stated, “No, not in that

4
W. Alemu et al. International Journal of Africa Nursing Sciences 14 (2021) 100278

way. They told me to do something, and I did it… When I said they consulted improved care outcomes (Cornejo, 2018; iSalus, 2018; NHS England,
me, I did not mean that they involved me in the processes of planning or ND; Vahdat et al., 2014). Despite all these recommendations, we found
executing my treatment but let me know their decision.” Another partici­ that the majority of patients were passive recipients of care, as they
pant, who claimed to be actively involved in his care, reacted to a lacked understanding of role and empowerment in the management of
probing question, saying, “… Not like that. They only told me that they errors.
needed to take this or that sample or take this or that drug. I am just a patient.
They know the best treatment for me. I did whatever they told me to do…” 4.1. Limitation of the study

4. Discussion This study has both limitations and strengths. The limitation of the
study included: first, that it was limited to one hospital in Addis Ababa,
This descriptive, exploratory study examined how well patients un­ Ethiopia, and findings might not be generalizable to patients in other
derstand healthcare quality, medical errors, and their role in the man­ hospitals and other countries. Second, that it was conducted at only one
agement of errors. Based on our findings, patients had an adequate point in time, and there could be seasonal factors that might influence
understanding of quality, which were similar to those reported by WHO patient responses. Third, that the study hospital was a referral facility
(2009) and much of the developed world (European Patient Forum, with patients diagnosed with chronic, severe, or complicated illnesses,
2017). Participant responses showed the importance of healthcare which could affect patient responses. Despite these limitations, we
quality, as all the participants used it as a criterion for choosing a believe that this study provides evidence that could be the foundation
hospital. for improvements in quality of healthcare and patient satisfaction in
The quality of healthcare is often measured through measuring pa­ hospitals in Addis Ababa, Ethiopian.
tient satisfaction with their care (Grøndahl et al., 2018; WHO, 2018). We
found that over half of our study participants reported that they were 5. Conclusion
dissatisfied with the quality of care they received. Our finding is similar
to that reported by the Lancet and others on global health care access Although patients appear to comprehend the concept of healthcare
and quality, in which Ethiopia scored as one of the lowest (28.1 out of quality, they have not identified their role in achieving it. They have not
1000) globally (Katuti, 2018; Lozano, 2018; Teshome et al., 2019). actively engaged in the care process either. Empowering patients and
We found that two-thirds of the study participants were aware of actively engaging them in the care process can result in improved care
medical errors, and three-fourths believed that medical errors occur in outcomes and increased patient satisfaction, both of which are beneficial
the hospital in which they were receiving care. Likewise, over half of the to patients, providers, and the health care system. Finally, we strongly
participants believed that medical errors happen to patients, and most of suggest further investigation of the possible causes of 1) the low level of
them believed that the consequences of such errors could be very severe, patient satisfaction, 2) the lack of patient awareness about their part in
a finding that was also reported in Nigeria (Ushie et al., 2013). These attaining care quality, and 3) the absence of active involvement of pa­
beliefs held by our study participants could very well contribute to pa­ tients in the caring process.
tient dissatisfaction with the quality of care, since it is widely known
that medical errors undermine quality of care (Jha et al., 2013; Kobewka Declaration of Competing Interest
et al., 2017; RiskAnalytica, 2017; WHO, 2017). High levels of patient
dissatisfaction can result in the avoidance of modern health care services The authors declare that they have no known competing financial
(Bazie and Adimassie, 2017; Birhane et al., 2011; Wellay et al., 2018; interests or personal relationships that could have appeared to influence
WHO, 2018), which leads to poor health outcomes, quality of life and the work reported in this paper.
productivity (Bazie and Adimassie, 2017; Birhane et al., 2011; Wilde-
Larsson and Larsson, 2008; WHO, 2018). Acknowledgements
The proper management of medical errors is one of the most effective
strategies for enhancing the quality of care and patient satisfaction. We, the authors of this study, would like to thank the study partici­
Patients play a major role in the proper management of such errors pants for the study could not be realized without their participation. We
(WHO, 2018, 2019). Nonetheless, the patients’ level of role is dependent also are grateful to the hospital officials for allowing us to carry out the
on their level of understanding their role (Britten, 2009; Karch, 2015; study. Our warm gratitude goes to Dr Mirgisa Kaba (a professor of
Wilde-Larsson and Larsson, 2008) and involvement in the care process. qualitative study at College of Health Sciences, Addis Ababa University)
In this regard, we found that half of our participants believed they had for his unreserved assistance on the analysis of the study, and Dr.
little or no part to play in the management of medical errors, and more Cimiotti, Jeannie P. (a professor at Emory University) for editing the
than half poorly understood the importance of properly describing ill­ paper for language use and grammar.
nesses for the proper diagnoses and treatment. Thus, it appears as re­
ported by others that our participants could not identify their role in the
Authors’ contributions
prevention of medical errors or mitigating the consequences of the
stated errors (Britten, 2009; European Patient’s Forum, 2017; Muhrer,
All the three authors (Mr. Wudma Alemu, Dr. Eshetu Girma, and Mr.
2014; WHO, 2016).
Tefera Mulugeta) took part in conceiving, designing, conducting and
Patients contribute to quality of care when they are actively engaged
analyzing the study; writing up the report; developing and revising the
in the process. Active engagement provides patients with a better un­
manuscript; and approving the final manuscript for submission.
derstanding of the etiology of medical errors (iSalus, 2018; Karch, 2015;
NHS England, 2018) and provides them with a mechanism to contribute
Appendix A. Supplementary data
to error management (European Patient’s Forum, 2017; WHO, 2016).
These, in turn, allow patients to be instrumental in the attainment of
Supplementary data to this article can be found online at https://doi.
care quality (Davis et al., 2012; Harvard School of Public Health, 2014;
org/10.1016/j.ijans.2021.100278.
Institute for Safe Medication Practices, 2012; Karch, 2015; iSalus, 2018;
NHS England, 2018; Institute for Safe Medication Practices, 2012).
References
Allowing patients to be active participants in all aspects of the care
delivery process will result in high levels of patient satisfaction AHRQ. (2018). Talking Quality: Six Domains of Health Care Quality. Retrieved from
(Grøndahl et al., 2018; Lozano, 2018; Siriwardena & Gillam, 2014) and http://ahrq.gov/talkingquality/measures/six-domain.html.

5
W. Alemu et al. International Journal of Africa Nursing Sciences 14 (2021) 100278

AHRQ. (2019). Patient Safety Network: Patient engagement and safety. Retrieved from observational studies. BMJ, 22, 809–815. https://doi.org/10.1136/bmjqs-2012-
https://psnet.ahrq.gove/premers/premer/17/patient-engagement-and-safety. 001748.
AHRQ. (2020). Patient Safety: Understanding Quality Measurement. Retrieved from Karch, A. M. (2015). Preventing medication errors by empowering patients. American
http://ahrq.gove/patient-safety/quality-resources/tools/chtoolbx/understand/ Nurse Tuday, 10(9), 18–23.
index.html. Katuti, C. S. (2018). Patient level of satisfaction with perceived health service quality in
Azam, M., Rahman, Z., Talib, F., & Singh, K. J. (2012). A critical study of quality nyandarua county referral hospital. Kenyatta University.
parameters in health care establishment: Developing an integrated quality model. Kavanagh, K. T., Saman, D. M., Bartel, R., & Westerman, K. (2017). Estimating hospital-
International Journal of Health Care QA, 25(5), 387–402. related deaths due to medical error: A perspective from patient advocates. Journal of
Bazie, G. W., & Adimassie, M. T. (2017). Modern health services utilization and Patient Safety, 13(1), 1–5.
associated factors in North East Ethiopia. PLOS One, 12(9), 1–10. Kobewka, D. M., van Walraven, C., Taljaard, M., Ronksley, P., & Forster, A. J. (2017).
Birhane, W., Giday, M., & Teklehaymanot, T. (2011). The contribution of traditional The prevalence of potentially preventable deaths in an acute care hospital: A
healers’ clinics to public health care system in Addis Ababa, Ethiopia: A cross- retrospective cohort. Medicine, 96(8), e6162.
sectional study. Journal of Ethnobiology and Ethnomedicine, 7(39), 1–7. https://doi. Lozano, R. (2018). Measuring performance on the Healthcare Access and Quality Index
org/10.1186/1746-4269-7-39. for 195 countries and territories and selected subnational locations: A systematic
Brabcová, I., Bártlová, S., Tóthová, V., & Prokešová, R. (2014). The possibility of patient analysis from the Global Burden of Disease Study 2016. Lancet, 391, 2236–2271.
involvement in prevention of medication errorMožnosti zapojení pacienta do Matlow, A. G., Baker, G. R., Flintoft, V., Cochrane, D., Coffey, M., Cohen, E.,
prevence medikačního pochybení. Kontakt, 16(2), e65–e70. Cronin, C. M. G., Damignani, R., Dube, R., Galbraith, R., Hartfield, D.,
British Medica Journal (BMJ) Books. (2009). Health Care Errors and Patient Safety. (B. Newhook, L. A., & Nijssen-Jordan, C. (2014). Adverse events among children in
Hurwitz & A. Sheikh, Eds.). West Sussex, UK: Blackwell Publishing Ltd. Canadian hospitals: The Canadian Paediatric Adverse Events Study. Canadian
Britten, N. (2009). Medication errors: The role of the patient. BJCP, 67(6), 646–650. Medical Association Journal, 184(13), E709–E718.
https://doi.org/10.1111/j.1365-2125.2009.03421.x. Mazor, K. M., Goff, S. L., Dodd, K., & Alper, E. J. (2009). Understanding patients’
Brown, A., Dickinson, H., & Kelaher, M. (2018). Governing the quality and safety of perceptions of medical errors. Journal of Communication in Healthcare, 2(1), 34–46.
healthcare: A conceptual framework. Social Science and Medicine, 202(February), Mazor, K. M., Roblin, D. W., Greene, S. M., Lemay, C. A., Firneno, C. L., Calvi, J., et al.
99–107. https://doi.org/10.1016/j.socscimed.2018.02.020. (2012). Toward patient-centered cancer care: Patient perceptions of problematic
Burroughs, T. E., Waterman, A. D., Gallagher, T. H., Waterman, B., Jeff, D. B., events, impact, and response. Journal of Clinical Oncology, 30(15). https://doi.org/
Dunagan, W. C., et al. (2007). Patients’ concerns about medical errors. Joint 10.1200/JCO.2011.38.1384.
Commission Journal on Quality and Patient Safety, 33(1), 5–14. https://doi.org/ Mosadeghrad, A. (2012). A conceptual framework for quality of care. Materia Socio
10.1016/S1553-7250(07)33002-X. Medica, 24(4), 251. https://doi.org/10.5455/msm.2012.24.251-261.
Castro, E. M., Regenmortel, T. V., Vanhaecht, K., Sermeus, W., & Hecke, A. V. (2016). Mosadeghrad, A. M. (2013). Healthcare service quality: Towards a broad definition.
Patient Education and Counseling Patient empowerment, patient participation and International Journal of Health Care Quality Assurance, 26(3), 203–219. https://doi.
patient-centeredness in hospital care : A concept analysis based on a literature org/10.1108/09526861311311409.
review. Patient Education and Counseling. https://doi.org/10.1016/j. Mosadeghrad, A. M. (2014). Factors influencing healthcare service quality. International
pec.2016.07.026. Journal of Health Policy and Management, 3.
Cornejo, Corinna. (2018). Patient Engagement and the Promise of Better Outcomes. Muhrer, J. C. (2014). The importance of the history and physical in diagnosis. The Nurse
Retrieved from https://www.wegohealth.com/2018/01/patient-engagement/. Practitioner, 39(4), 30–125.
Davis, R. E., Sevdalis, N., Neale, G., Massey, R., & Vincent, C. A. (2012). Hospital NHS England. (ND). Involving people in their own care. Accessed online. Retrieved from
patients’ reports of medical errors and undesirable events in their health care. https://www.england.nhs.uk/ourwork/patient-participation/.
Journal of Evaluation in Clinical Practice, 1–7. https://doi.org/10.1111/j.1365- NHS England. (2018). Involving patients in their own health and care. Statutory
2753.2012.01867.x. guidance for clinical commissioning groups and NHS England. The NHS guidance,
Denzin, N. K., & Lincoln, Y. S. (2018). The SAGE Handbook of Qualitative Research. (N. 2–30.
K. Denzin & Y. S. Lincoln, Eds.) (Fifth). California, USA: SAGE Publications, Inc. RiskAnalytica. (2017). The Case for Investing in Patient Safety in Canada.
Donabedian, A. (2003). An Introduction to Quality Assurance in Health Care: Selecting Schoenfeld, E. M., Goff, S. L., Downs, G., Wenger, R. J., Lindenauer, P. K., Science, P.,
approaches to assess performance. In R. Bashshur (Ed.). New York, USA: Oxford et al. (2018). A qualitative analysis of patients’ perceptions of shared decision-
University Press. making in the emergency department: “Let me know I have a choice”. Academic
Duffy, J. R. (2013). Quality caring in nursing and health systems: Implications for clinicians, Emergency Medicine, 25(7), 716–727. https://doi.org/10.1111/acem.13416.A.
educators, and leaders (2nd ed.). New York, USA: Springer Publishing Company LLC. Siriwardena, A. N., & Gillam, S. (2014). Patient perspectives on quality. Quality in
European Patient’s Forum. (2017). Patients’ Perceptions of Quality in Healthcare. 30–31. Primary Care, 22, 11–15.
Flick, U. (2014). The SAGE Handbook of Qualitative Data Analysis. London, UK: SAGE Slawomirski, L., Auraaen, A., & Klazinga, N. (2017). The economics of patient safety:
Publications Ltd. Strengthening a value-based approach to reducing patient harm at national level.
Garrett, S. K., & Craig, J. B. (2007). Medication administration and the complexity of Spath, P. L. (2004). Participating with patients to reduce medical errors. AHA Press.
nursing workflow. South Carolina, USA. Teshome, G., Abate, W. Y., & Atnafu, M. T. (2019). Patients’ perception of quality of
Gillespie, A., & Reader, T. W. (2018). Patient-centered insights: Using health care nursing care; a tertiary center experience from. BMC Nursing, 18(37), 1–6.
complaints to reveal hot spots and blind spots in quality and safety: Using complaints Tran, B. X., Nguyen, L. H., Nong, V. M., & Nguyen, C. T. (2016). Health status and health
to improve quality and safety. The Milbank Quarterly, 96(3), 530–567. service utilization in remote and mountainous areas in Vietnam. BMC, 14(85), 2–9.
Groene, O. (2011). Patient centredness and quality improvement efforts in hospitals: Ushie, B., Salami, K., Jegede, A., & Oyetunde, M. (2013). Patients’ knowledge and
Rationale, measurement, implementation. International Journal for Quality in Health perceived reactions to medical errors in a tertiary health facility in Nigeria. African
Care, 23(5), 531–537. Health Sciences, 13(3).
Grøndahl, V. A., Kirchhoff, J. W., Andersen, K. L., Sørby, L. A., Andreassen, H. M., Vahdat, S., Hamzehgardeshi, L., Hessam, S., & Hamzehgardeshi, Z. (2014). Patient
Skaug, E., et al. (2018). Health care quality from the patients’ perspective: A involvement in health care decision making: A review. Iranian Red Crescent Medical
comparative study between an old and a new, high-tech hospital. Dovepress Journal Journal, 16(1), 2–11.
of Multidisciplinary Healthcare, 11, 591–600. Wachter, R. M. (2008). Understanding Patient Safety. New York, USA: McGraw-Hill
Masso Guijarro, P., Aranaz Andres, J. M., Mira, J. J., Perdiguero, E., & Aibar, C. (2010). Companies, Inc.
Adverse events in hospitals: The patient’s point of view. Quality and Safety in Health Weingart, S. N., Zhu, J., Chiappetta, L., Stuver, S. O., Schneider, C., Epstein, A. M., et al.
Care, 19(2), 144–147. (2011). Hospitalized patients’ participation and its impact on quality of care and
Hartnell, Mackinnon, N. J., Jones, E. J. M., Genge, R., & Nestel, M. D. M. (2006). patient safety. International Journal for Quality in Health Care, 23(3), 269–277.
Perceptions of Patients and Health Care Professionals about Factors Contributing to Wellay, T., Gebreslassie, M., Mesele, M., Gebretinsae, H., Ayele, B., Tewelde, A., et al.
Medication Errors and Potential Areas for Improvement. Canadian Journal of Hospital (2018). Demand for health care service and associated factors among patients in the
Pharmacy, 59(4), 177–183. community of Tsegedie District, Northern Ethiopia. BMC Health Services Research, 18
Harvard School of Public Health. (2014). The public’s views on medical error in (697), 1–9.
Massachusetts (pp. 2–34). Massachusetts, USA: Harvard University. Welzel, T. B. (2012). Patient safety: Minimizing errors. AJOL, 30(11), 406–409.
Hibbard, J. H., Peters, E., Slovic, P., & Tusler, M. (2005). Can patients be part of the WHO. (2009). World Alliance for Patient Safety Taxonomy: The Conceptual Framework
solution ? Views on their role in preventing medical errors. Medical Care Research for the International Classification for Patient Safety. Geneva, Switzerland.
and Review, 62(5), 601–616. https://doi.org/10.1177/1077558705279313. WHO. (2016). Patient engagement: Technical series on safer primary care. Geneva: World
Hughes, R. (2008). Patient Safety and Quality : An Evidence-Based Handbook for Nurses. Health.
Agency for Healthcare Research and Quality. WHO. (2017). Patient Safety: Making health care safer. Geneva: Switzerland.
Institute for Healthcare Improvement. (2017). Americans’ experiences with medical errors WHO, World Bank and OECD. (2018). Delivering quality health services: A global
and views on patient safety (pp. 1–6). USA: IHI/NPSF Lucian Leape Institute & NORC. imperative for universal health coverage.
Chicago University. World Health Organization (2019). Maternal, newborn, child and adolescent health.
Institute for Safe Medication Practices. (2012). Patients: Last defense in preventing Online publication. Retrieved from https://www.who.int/maternal_child_
medication errors. Pharmacy Today, 18(7), 88. Retrieved from https://www. adolescent/topics/quality-of-care/definition/en/.
pharmacist.com/patients-last-defense-preventing-medication-errors. WHO Regional Office for Europe. (2017). Patient safety: Data and Statistics. Retrieved
iSalus Healthcare Blog. (2018). Five benefits of Patient Engagement in 2018. Available from http://www.erro.who.int/en/health-topics/Health-systems/patients/data-and-
online. Retrieved from https://isalushealthcare.com/blog-all/postid/433/5- statistics#.
benefits-of-patiet-engagement-in-2018. Wilde-Larsson, B., & Larsson, G. (2008). Patients’ views on quality of care and attitudes
Jha, A. K., Larizgoitia, I., Audera-lopez, C., Prasopa-plaizier, N., Waters, H., & towards re-visiting providers. International Journal of Health Care Quality Assurance,
Bates, D. W. (2013). The global burden of unsafe medical care: Analytic modelling of 22(6), 605–609.

You might also like