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Human Development and Performance Throughout The Lifespan 2Nd Edition Ebook PDF Version All Chapter Scribd Ebook PDF
Human Development and Performance Throughout The Lifespan 2Nd Edition Ebook PDF Version All Chapter Scribd Ebook PDF
Human Development and Performance Throughout The Lifespan 2Nd Edition Ebook PDF Version All Chapter Scribd Ebook PDF
PArT 1 ChAPTer 2
Foundations For Human Performance: the life
understanding Function, course Perspective
disability, and HealtH MARYBETH MANDICH, PT, PhD AND
ANNE CRoNIN, PhD, oTR/L, FAoTA
ChAPTer 1
Introduction / 21
Life Span Behavioral Change / 22
Human Performance: Function Neuroscience and Life Course Development / 23
Genetics and Life Course Development: Nature-Nurture
as an organizing Framework Revisited / 23
MARY BETH MANDICH, PT, PhD AND Developmental Systems Theory / 25
ANNE CRoNIN, PhD, oTR/L, FAoTA Systems Theory of Motor Control / 26
Introduction / 4 Family Systems / 28
Defining Health, Function, and Disablement / 4 Systems and Health: Life Course Theory and Health
Conceptual Frameworks of Disablement / 5 Development Model / 28
The International Classification of Functioning, Disability and Health Professionals and the Knowledge of Human
Health (ICF) / 6 Development / 31
Putting the ICF into Practice / 8 Life Course Theory, the ICF, and Systems / 31
Domains of Performance and Function / 9 Summary / 32
Clinical Frames of Reference / 10 CASE 1: Meredith (at 16 years of age) / 33
The ICF and Rehabilitation / 12 CASE 2: Meredith (at 76 years of age) / 34
Speaking of: Turning Points / 35
vii
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viii Contents
ChAPTer 5
life span communication
ANNE CRoNIN, PhD, oTR/L, FAoTA
PArT 2
CASE 1: Jonathan / 82 liFe stage cHaracteristics
Introduction / 82
Definitions / 83
Communication in the ICF / 84 ChAPTer 8
The Interrelationship between Culture and Communication / 84
Communication Development / 85
Prenatal development
Linguistic Development / 88 ELsIE R. VERgARA, scD, oTR, FAoTA AND
Refining Language Skills / 91 MARY BETH MANDICH, PT, PhD
Metalinguistic Awareness / 91 Introduction / 148
Written Communication / 91 Overview of Prenatal Development / 148
Impact of Language Skills / 92 Prenatal Classification Systems / 152
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Contents ix
Development of Body Structure in the Pre-Embryonic Siblings of Medically Fragile Infants / 231
(Germinal) Period / 153 Fragmentation of Health Care Services / 231
Development of Body Structure in the Embryonic Period / 155 Social and Medical Factors Related to Disability in Infants / 232
Development of Body Structure in the Fetal Period / 162 Common Causes of Disability and Chronic Illness
Prenatal Development of Body Function / 165 in Infancy / 234
Contemporary Medical Issues Regarding Prenatal Chronic and Disabling Diseases in Infancy / 237
Development / 167 Characteristics of the Condition / 238
Summary / 167 Families, Culture, and Coping with Infant Illness / 239
CASE 1: Jeanine / 168 Major Life Areas / 241
CASE 2: Emmett / 169 Early Intervention and Special Education
Speaking of: Genetics and Biology / 170 Service under IDEA / 241
Ethics and Children with a Chronic Condition / 242
ChAPTer 9 Summary / 243
CASE 2: Madison / 244
the newborn Speaking of: Chronic Sorrow / 245
MARYBETH MANDICH, PT, PhD
Introduction / 173 ChAPTer 12
The Term Infant / 173
Activity and Participation / 187
development in the
Environmental and Family Issues / 188 Preschool years
The At-Risk Infant / 189 ANNE CRoNIN, PhD, oTR/L
Preterm Infants / 190 CASE 1: Trevor / 249
Summary / 194 Introduction / 250
Speaking of: Practice in the NICU / 194 Body Structures and Functions / 250
CASE 1: Elise / 195 Development of Self-Care Skills / 263
CASE 2: Kayla / 196 School-Readiness Skills / 264
Summary / 271
ChAPTer 10 CASE 2: Brandon / 272
Speaking of: Chronic Childhood Conditions / 273
infancy
MARYBETH MANDICH, PT, PhD
Introduction / 201
ChAPTer 13
Body Structure and Function: Change over the First Year / 201 childhood and school
The First Year of Life: An Overview / 202 ANNE CRoNIN, PhD, oTR/L, FAoTA
Variations in Development / 219 CASE 1: Elias / 278
The Foundation of Infancy / 222 Introduction / 279
Summary / 222 Body Functions and Structures / 279
CASE 1: Meghan and Amy / 222 Asynchronous Development / 289
CASE 2: Manuel / 223 Activities and Participation / 290
Speaking of: The Parent-Infant Bond / 224 Summary / 298
CASE 2: Chloe / 299
ChAPTer 11 Speaking of: School Challenges / 300
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x Contents
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Contents xi
PArT 3
MARYBETH MANDICH, PT, PhD AND
ANNE CRoNIN, PhD, oTR/L, FAoTA AND
ToBY LoNg, PhD, PT
sPecial toPics in HuMan Introduction / 498
Models of Assessment / 499
develoPMent and PerForMance Tests and Measures / 506
Overview of Common Assessments by ICF Dimension / 509
ChAPTer 21
Assessment as a Guide to Treatment / 511
The ICF, Health Outcomes, and Health Policy / 514
Public Policy and Health care Summary / 514
CASE 1: Andrew / 515
BARBARA L. KoRNBLAu, JD, oT/L, FAoTA, DMAsPE, CASE 2: Bill / 516
ABDA CCM, CDMs, CPE AND
Speaking of: Measuring the Unmeasureable / 517
ANNE CRoNIN, PhD, oTR/L
Introduction / 476 Glossary / 521
Social Justice / 478 Index / 553
Policy on an International Scale / 479
National Policy / 481
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Preface
The purpose of this text is to provide entry-level students who plan to work in health
care, especially in the rehabilitation disciplines such as occupational and physical therapy,
an overview of normative life tasks and roles across the life span. The Joint Commission
requires that all health care providers be able to deliver age-appropriate plans of care. The
unique aspect of this text is, in addition to providing information about typical human
development life tasks, it discusses the impact of disease or disability on human occupa-
tions. Finally, the foregoing information is embedded in the World Health Organization’s
International Classification of Functioning, Disability and Health (ICF), which has now
been the standard of health outcomes for over a decade, and is the foundation to the text.
Other key guiding documents and concepts include the life course model (adopted as
an organizing framework by the Bureau of Maternal and Child Health), Healthy People
2020, the discipline of occupational science, and updated theoretical models from the per-
tinent literature of multiple disciplines. The text also serves as a resource for practicing
professionals, especially those who were not educated in the conceptual framework of newer
models, such as the ICF. Each chapter includes current, research-based scientific findings
that offer insight into aspects of human development that may expand on earlier learning.
Since the 1960s, there has been a significant, perhaps revolutionary, change in clinical
and sociologic perspectives of disability that has impacted both health services and public
policy. One evidence of this impact is the passage of many pieces of legislation guarantee-
ing individuals with a disability the right to participate in society, including the right to
education and the right to employment. In addition, as discussed in Chapter 20, the notion
of health-related quality of life has become an accepted metric for judging the outcome of
biomedical and psychosocial interventions. In summary, health is increasingly viewed as the
ability to participate in normal and desired life roles to the maximum extent possible.
The education of health professionals, especially in the rehabilitation disciplines, must
prepare professionals to deliver successful interventions in this context. Although it is often
stated that there is a disconnect between academic theory and clinical practice, this text
is designed to help bridge that gap with the extensive use of both clinical case studies and
examples of theory applications for rehabilitation professionals. Our hope is that this com-
pilation of science, theory, and clinical cases facilitates the learning of future generations
about how to promote full participation outcomes in those individuals we serve.
xiii
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xiv Preface
NEED FOR THIS TEXT including the ICF, the life course model, and traditional
developmental theories. Successful health interventions require
practitioners who are culturally competent and who can apply
As mentioned previously, our experience shows there is cur-
learning and communication strategies in their therapeutic
rently not an available resource that integrates information
interventions. Finally, the impact of environmental contexts
from a number of core disciplines to permit easy under-
on health and participation are considered in this section.
standing of the newer concepts of health and participation.
The second part of the book, “Life Stage Characteristics,”
Professionals such as occupational and physical therapists
follows a traditional developmental framework; however,
have always studied life span human development. They have
basic physiologic content is presented in every chapter as an
also studied medical sciences, psychology, sociology, and pro-
introduction, as well as the developmental characteristics of
fessional roles. However, the paradigm shifts just described
the particular life stage. Few texts combine the 360-degree
will demand that rehabilitation professionals of the twenty-
approach to the study of human development across body
first century will be able to integrate knowledge of norma-
systems, as well as dimensions of performance (motor, psy-
tive developmental life roles or tasks with other information
chologic, and sociologic), as this text does. Interspersed in this
to assist individuals with disabilities to participate in desired
section are chapters addressing the impact of disability at vari-
societal roles. The ICF model forms the conceptual foun-
ous life stages. The final section of the book, “Special Topics
dation for the text, with a secondary developmental frame-
in Human Development and Performance,” presents some
work. Particular attention has been made to include many
contemporary topics for occupational and physical therapists,
of the basic constructs in the field of occupational science
as well as others. Chapter 20, “Wellness, Prevention, and
throughout this text. The study of human occupations must
Health Promotion,” prepares readers to analyze the responsi-
be inherently grounded in the understanding of human
bility of health care professionals to do more than treat disease
development, and this text offers a strong adjunct to this
and instead to participate in prevention and health promo-
foundation for students in this field of study.
tion. The ICF contextual factor of health policy is discussed
This text meets the needs of entry-level professionals by
in Chapter 21, “Public Policy and Health Care.” Finally,
preparing them to view both health and disability from a life
Chapter 22, “Assessment of Human Performance across the
tasks perspective on activity and participation. Although life
Life Span,” introduces readers to the concept of accountability
span development has traditionally been considered founda-
for evidence-based practice with documentation of outcomes
tional knowledge upon which to build an understanding of
at the level of activities and participation.
various health conditions, recent social and legislative trends
have demanded an increased application of developmen-
tal information in setting goals and planning interventions.
Increasingly, reimbursement for rehabilitation, especially FEATURES OF THE TEXT
occupational and physical therapy, is based on the ability to
reflect and document goals directed at functional outcomes The text provides readers with a large amount of information
that promote individuals’ health-related quality of life by par- on life span development, organized around the concep-
ticipation in interpersonal, social, and environmental roles. tual framework of the ICF. All chapters have case stud-
No prior knowledge of human development or disabil- ies based on true clinical situations, which help students
ity models is required to use this text, commensurate with apply the information in the text to the practical setting.
the entry-level target audience. However, exposure to basic In addition, most chapters have a section called “Speaking
anatomy, psychology, and physiology will help students of. . . .” These sections are informal notes from individuals—
understand the structure-function sections of each chapter. both professionals and family members of individuals with
Prior courses in life span human development and sociol- disabilities—about the application of content in the chap-
ogy will allow students to apply previously learned theory to ter. They bring to life the real challenges and experiences
their education as health care professionals. of individuals who have unique perspectives on the issues
discussed in each chapter. These notes are intended to help
readers with the “emotional intelligence” aspect of learning.
ORGANIZATION OF TEXT
The text is organized into three main parts: Foundations for
NEw TO THIS EDITION
Understanding Function, Disability, and Health; Life Stage
Characteristics; and Special Topics in Human Development Chapter 1
and Performance. The foundational section introduces read- ● Completely revised to the latest terminology and
ers to contemporary conceptual and theoretical models in the
organizational frameworks in the field and the most
field of health and disability. The first three chapters in this
current ICF and practice frameworks
section provide an introduction to the core frames of reference
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Preface xv
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xvi Preface
Chapter 11 Chapter 15
● Formerly Chapter 9 ● Formerly Chapter 13
● Discussed the social and economic factors related to ● Expanded discussion of learning and intellectual dis-
disability and illness in children abilities as well as traumatic injury
● Introduces common disabilities and common ● Integration of theoretical materials introduced earlier
illnesses in infancy into aspects of family and child functioning
● Expands focus on the family and the impact of infant ● Expanded coverage of family stress and resilience in
illness or disability of parental and sibling occupations the contexts of child illness and disability
● Presents the best-practice standard of family-centered
care
Chapter 16
Almost completely new, reflecting the changing expe-
Chapter 12
●
● Formerly Chapter 12
● New title, Late Adulthood, focuses on ages 65 to
80 years old
● Completely rewritten and reorganized around an
ICF framework
● Reorganized around the ICF framework
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Preface xvii
Sign In.
● Formerly Chapter 20, completely revised and ● Search for your book by author, title, or ISBN.
updated
● Select the book and click Continue.
● Presents the United Nations’ Convention on the Rights
● You will receive a list of available resources for the
of Persons with Disabilities and the World Report on
title you selected.
Disabilities in terms of potential impact on health
policy ● Choose the resources you would like, and click Add
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● Updated content on U.S. legislation that impacts
An instructor’s manual with two main components
both individuals with disabilities and health profes-
accompanies this text. The first component is the critical-
sions
thinking guide. For each chapter, a minimum of three
● Enhanced discussion of HIPPA questions have been selected to guide the students’ thinking
● Adds information about the Affordable Care Act and about the content presented. The questions are suitable for
its implementation in-class discussion, small-group work, or essay questions on
tests. The second component of the instructor’s manual is
the active learning experiences designed to enhance learn-
Chapter 22 ing of chapter content. They include such activities as web
searches and analysis of current literature. Where laboratory
● Almost completely rewritten and reorganized from activities are suggested, laboratory guides are presented.
the former Chapter 21 These components have been carefully designed to provide
● Discusses the latest assessment tools available in the instructors with key tools to help facilitate student compre-
fields hension that will follow them into their professional lives.
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xviii Preface
FEEDBACK
The authors welcome comments and feedback about this text and may be contacted at the following addresses:
Anne Cronin, PhD, OTR/L, FAOTA MaryBeth Mandich, PT, PhD
Division of Occupational Therapy Division of Physical Therapy
PO Box 1939 PO Box 9226
West Virginia University West Virginia University
Morgantown, West Virginia 26506-9139 Morgantown, West Virginia 26506-9226
acronin@hsc.wvu.edu mmandich@hsc.wvu.edu
ACKNOwLEDGMENTS
We would like to acknowledge all those who provided professionals and who did an outstanding job in their work
us assistance in writing this text. First, to West Virginia on this text. Second, to all the therapists who provided
University, which provided time and support for this en- case studies from their practical experience—you helped to
deavor. Second, a special thanks to our faculty colleagues make the text applicable and relevant. Finally, to therapists
who helped by taking on extra tasks so that we could be free and family members of individuals with disabilities who
to write. wrote “Speaking of . . .” sections and who told us “the rest
We would like to thank all those who contributed to of the story”—the effort would have been much less mean-
this book. First, to our chapter authors, who are all busy ingful without your contribution.
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Contributing Authors
Anne Cronin, PhD, OTR/L, FAOTA Associate Dean, Professional and
Associate Professor Undergraduate Programs
Division of Occupational Therapy West Virginia University
West Virginia University Morgantown, West Virginia
Morgantown, West Virginia
Susannah Grimm Poe, EdD
Garth Graebe, MOT, OTR/L Associate Professor
Assistant Professor Department of Pediatrics
Division of Occupational Therapy WVU School of Medicine
West Virginia University WG Klingberg Center for Child Development
Morgantown, West Virginia Morgantown, West Virginia
Barbara L. Kornblau, JD, OT/L, FAOTA, Winifred Schultz-Krohn, PhD, OTR, BCP,
DAAPM, CCM, CDMS FAOTA
Coalition for Disability Health Equity, Professor of Occupational Therapy
Arlington, Virginia San Jose State University
Florida A & M University, Tallahassee, Florida San Jose, California
Toby Long, PT, PhD, FAPTA Ralph Utzman, PT, MPH, PhD
Associate Professor, Department of Pediatrics Associate Professor
Associate Director for Training, Center for Division of Physical Therapy
Child and Human Development West Virginia University
Director, Division of Physical Therapy, Morgantown, West Virginia
Center for Child and Human Development
Georgetown University Elsie R. Vergara, ScD, OTR, FAOTA
Washington, DC Associate Professor (retired)
Occupational Therapy Program
MaryBeth Mandich, PT, PhD Department of Rehabilitation Sciences
Professor and Chairperson Sargent College, Boston University
Division of Physical Therapy Boston, Massachusetts
xix
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Contributors:
Case Studies and “Speaking of . . . ”
xxi
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xxii Contributors: Case Studies and “Speaking of . . .”
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About the editors
Anne Cronin, PhD, OTR/L, FAOTA, has been practicing pediatric occupational therapy
for many years. She received her BS in occupational therapy from the University of Missouri
and an MA in health services management from Webster University in St. Louis, Missouri.
Her PhD was received from the University of Florida in medical sociology. Dr. Cronin has
taught extensively, including content in human development, research, and clinical practice
of occupational therapy, with an emphasis on practice with children and youth. Her research
interests include community integration of children with disabilities, routines and time use
in parenting, the establishment of healthy habit patterns in children with developmental
differences, and the efficacy of occupational therapy interventions with pediatric popula-
tions. Dr. Cronin has been a leader in the exploration of assistive technology applications to
support people with disabilities across the life span. In addition, Dr. Cronin has served as a
member of the Board of Directors of the American Occupational Therapy Association and
the Rehabilitation Engineering Society and Assistive Technology of North America. She has
been a Fulbright senior specialist in Chile, Mexico, and Sri Lanka, providing occupational
therapy consultation. Dr. Cronin is currently an associate professor of occupational therapy
at West Virginia University.
MaryBeth Mandich, PT, PhD, has been practicing pediatric physical therapy for many
years. She received BS and MS degrees in physical therapy from the Medical College of
Virginia/Virginia Commonwealth University. She went on to receive a PhD in develop-
ment psychology from West Virginia University, with a major area of emphasis in infancy
and a minor area of emphasis in developmental neurobiology. Dr. Mandich has taught
extensively, including content in neuroanatomy and neurophysiology, embryology, human
development, and pediatric and adult neurologic rehabilitation and research. She teaches
students from many other disciplines, such as medicine, education, occupational therapy,
and nursing about neuroplasticity and the importance of early intervention and rehabilita-
tion. Her own research interests have focused primarily on premature, high-risk infants. She
has published studies on both outcome and effects of therapeutic intervention for this popu-
lation. She maintains an active clinical practice in high-risk infant follow-up. Dr. Mandich
is currently associate dean for professional and undergraduate programs in the School of
Medicine at West Virginia University. She holds an appointment as professor and chairper-
son of the Division of Physical Therapy.
xxiii
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Part 1
Foundations for
Understanding
Function,
Disability, and
Health
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ChaPter 1
Human Performance: Function
as an Organizing Framework
Mary Beth Mandich, PT, PhD,
Professor and Chairperson,
Division of Physical Therapy,
Objectives
West Virginia University, Morgantown,
West Virginia Upon completion of this chapter, readers should be able to:
and
Anne Cronin, PhD, OTR/L, FAOTA, Define quality of life, and relate the definition to health outcomes;
Associate Professor, Division of
Occupational Therapy, West Virginia Define the concept of disablement and apply the concept to practical
University, Morgantown, West Virginia situations;
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4 Chapter 1
Key Terms
activity environmental factor nonnormative
activity limitation facilitator nonnormative influences
activity of daily living (ADL) frame of reference normative
affective domain function occupations
age-normative influence health occupational model
barrier history-normative influence participation
body functions instrumental activity of daily personal factors
body structure living (IADL) psychomotor domain
capacity International Classification of quality of life
cognitive domain Functioning, Disability and risk factor
contextual factor Health (ICF) social model
disability interprofessional education (IPE)
disablement medical model
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Human Performance: Function as an Organizing Framework 5
Incorporated, 2014). In 1965, a sociologist named Nagi, in the problem. The focus of intervention is medical care, and
a landmark paper, proposed that function was not inherent in the principal feature of intervention is to change health
a given disease or health condition. For example, two people care policy. Therapy clinicians working within the medi-
might have the health condition known as chronic low back cal model will identify impairments such as weakness, and
pain. One of these people may have been accommodated to develop strategies to improve the individual’s abilities or
the workplace and life activities, and may continue to partici- to help him learn to compensate for the impairments. For
pate in the accommodated environment. Another person may example, in the case of a person with a spinal cord injury, a
become quite sedentary, removed from normal roles such as therapist offers activities to strengthen muscles at the same
vocation, and hence may be very depressed. Therefore, the time she is training the person in new ways to complete
functional status of these individuals is not defined by the activities of daily living. Activities of daily living (ADL) are
medical condition, that is, chronic low back pain. the daily self-care activities within any of an individual’s
This premise that disease or health condition is a factor, routine environments (home, leisure, work, and so on).
but not a determinant, of function is a sociologic concept Special equipment such as wheelchairs and adapted vehicles
known as disablement. Disablement is a sociomedical concept are examples of additional compensations. This is the tra-
describing disability as the product of the impact of a health ditional approach presented in the rehabilitation literature.
condition on function, taking into account personal and en- The social model views the loss of function associated
vironmental factors that serve as risk factors, interventions, with a disease, trauma, or health condition, as an attribute
or exacerbators (Verbrugge & Jette, 1994). A risk factor is of the social environment, which is managed by change
a personal or environmental factor that diminishes health, in social policy. For example, using the person with the
leaving an individual less likely to realize their full develop- spinal cord injury example again, this model would argue
mental potential (UHHS, 2010). Disability is a term used that the individual becomes disabled, not by the spinal
to encompass problems with various dimensions of human cord injury itself, but because he cannot access local stores,
function, activity, and participation (WHO, 2001b). public transportation, and theaters. The focus on the prob-
lem is change in social policy. An example of such policy in
the United States is the 1990 Americans with Disabilities
conceptual Act (ADA), which assures accessibility and civil rights to
frameworks of individuals with potentially disabling health conditions.
In another illustration, perhaps the person with a spinal
dIsablement cord injury needs an adapted motor vehicle to be able to
drive to work or school but is unable to obtain the finan-
The concept of disablement merges two core conceptual cial resources necessary to purchase such a vehicle. Access
frameworks traditionally used to discuss health. The first to adequate financial resources is a social condition, not a
is the medical model, which emphasizes the person, and medical condition. Figure 1-1 offers two images of a young
that person’s impairments, as a cause of disease, trauma, or man with a spinal cord injury. The picture on the left
some other health condition (World Health Organization, illustrates a caring but contextually limited medical model.
2001b). Within the medical model, disability is a feature The picture on the right shows the young man as an active
of the person that requires medical care provided in the participant in a valued activity within a community setting.
form of individual treatment by professionals to “correct” This second picture illustrates the social model.
© mirounga/Shutterstock.com
© auremar/Shutterstock.com
A B
Figure 1-1 A. The Medical Model B. The Social Model
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6 Chapter 1
tHe InternatIonal Figure 1-2 This model reflects the ICF view of the interactive
classIfIcatIon of relationship between health conditions and contextual factors.
Source: Towards a Common Language for Functioning, Disability, and Health (ICF), World Health
and HealtH (Icf) The current ICF model can be imagined as a matrix
with major two components: (1) health condition and
The World Health Organization has long been the recognized (2) contextual factors (environmental and personal). These
source for universal classification of disease, with the are illustrated as the top and the bottom of Figure 1-2.
International Classification of Disease (ICD) serving as the As illustrated, disability and functioning are viewed as
basis for reimbursement coding in the United States health outcomes of interactions between health condition and
care system. The ICD is a health care classification system that contextual factors. At the center of the diagram is the
provides codes to classify diseases and a wide variety of signs activity that the individual wishes to engage in.
and symptoms, as well as social circumstances and external
causes of injury or disease. This ICD was the first in the
WHO Family of International Classifications (WHO-FIC) BODy STRuCTuRe AnD FunCTiOn
and was designed to promote international comparability
in the classification and presentation of international health Body structures are anatomically categorized by body part,
statistics (World Health Organization, 2014). such as the nervous system or structures related to move-
In 2001, WHO member nations endorsed a new classifi- ment. Body functions, as the name implies, are physiologi-
cation system, representing the culmination of several decades cal in nature and organized by functional system, such as
of attempts to classify disablement for purposes of research, mental functions, cardiovascular functions, or movement-
reporting, and establishment of benchmarks. WHO (1993) related functions (WHO, 2001b). Table 1-1 is a summary
had developed its own precursor model in 1980, known as of Body Structures and Functions as presented in the cur-
the International Classification of Impairments, Disability, rent ICF model (WHO, 2001b).
and Handicap (ICIDH); however, by the end of the century,
it had rejected that model in favor of a newer model, entitled
the International Classification of Functioning, Disability
ACTiviTieS AnD PARTiCiPATiOn
and Health, known by the acronym ICF. Unlike previous Activity is defined as the execution of a task by an indi-
classifications, the ICF has the stated purpose of emphasizing vidual, and an associated construct is the notion of capacity.
health and de-emphasizing the concept of disability, hence Capacity is a construct related to an individual’s ability to
the acronym ICF does not include the term disability as part perform a task in a controlled environment, such as a reha-
of the title. The WHO (2001a) states, on its ICF home page, bilitation setting. Capacity represents, as the term implies,
that any human can have a decrement in function at any time, what an individual could do in an optimum setting with
thereby “mainstreaming” the notion of disability. Therefore, extrinsic factors controlled. The second level of human
a continuum of function is the underlying construct, which functioning, participation, is involvement in a life situa-
avoids previous negative connotations associated with the tion, most typically life tasks or actions. Performance is a
term disability. In addition, the ICF acknowledges the impact construct related to the actual environment in which the
of factors on function that can be attributed to an individual task is usually executed (WHO, 2001b). Consider the situ-
(person) or to an environment (social and physical). A final ation of an individual with a severe traumatic brain injury
note is that the ICF helps to operationally define components (TBI). At some point in the rehabilitation hospital experi-
of health and related quality of life. ence, professionals will work to assure the individual can
Copyright 2016 Cengage Learning. All Rights Reserved. May not be copied, scanned, or duplicated, in whole or in part. Due to electronic rights, some third party content may be suppressed from the eBook and/or eChapter(s).
Editorial review has deemed that any suppressed content does not materially affect the overall learning experience. Cengage Learning reserves the right to remove additional content at any time if subsequent rights restrictions require it.
Human Performance: Function as an Organizing Framework 7
walk, talk, and perform self-care activities. However, the COnTexTuAL FACTORS
fact that the individual can dress herself under the supervi-
sion of an occupational therapist in the rehab setting does One of the most notable aspects of the ICF is the incorpora-
not guarantee that, once at home, the individual will get tion from the social model of the notion of Contextual Factors
up every day and perform self-care routines independently. as the second part of the classification. Contextual factors
Therefore, the individual has the capacity for indepen- are shown in relationship to activity and the ICF model in
dence in some functional tasks, but performance will only Figure 1-2. Contextual factors may be either personal (intrinsic)
be assured once the individual is doing the activity within or environmental (extrinsic). Personal factors include attributes
a typical environmental context, without the support of of the individual that impact health, including such things as
the professionals and routines encountered in rehabilita- motivation, cultural perspectives such as fatalism, or personal-
tion. Table 1-2 summarizes the Activities and Participation ity. Environmental factors include the physical, social, and
dimensions of the ICF (WHO, 2001b). attitudinal environmental context in which an individual lives.
Table 1-3 lists some examples of environmental factors as they
are described in the ICF. Personal factors may include individual
characteristics such as age, gender, education, profession, coping
TABLe 1-2 Activities and Participation style, faith, social background, past, and current experiences.
Learning and Applying Knowledge
General Tasks and Demands iCF QuALiFieRS AnD CODing
Communication
Because the ICF is a coding system, qualifiers are applied to
Mobility each component along the continuum of functioning and
Self-Care
disability.
Body structures and functions are qualified by a gen-
Domestic Life eral scale indicating extent or nature of impairment ranging
Interpersonal Interactions and Relationships from none to complete, with the negative qualifier termed
impairment. Body structures also have a qualifier for nature
Major Life Areas
of the change in the body structure, such as whether there are
Community, Social, and Civic Life deviations in structure such as a malformation (for example,
a club foot) versus absence of the part in question (for exam-
Source: Towards a Common Language for Functioning, Disability,
and Health (ICF), World Health Organization (2002). ple, amputation). There is also a location qualifier for body
structure, indicating limbs or sides of the body affected.
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Editorial review has deemed that any suppressed content does not materially affect the overall learning experience. Cengage Learning reserves the right to remove additional content at any time if subsequent rights restrictions require it.
8 Chapter 1
Adapted from—Source: Towards a Common Language for Functioning, Disability, and Health (ICF), World Health Organization (2002).
Activities and participation are represented on a con- (2009) suggest that gait velocity, that is, how fast some-
tinuum of function, which is biased towards “functioning” one walks, should be considered a “vital sign.” The
when the qualifiers are positive and towards “disability” authors base this premise upon research demonstrat-
when the qualifiers are negative. Activity is qualified by the ing correlations between how fast someone walks and
general magnitude scoring scale, with the positive quali- other aspects of independence. To be considered able to
fier being function and the negative qualifier termed activ- walk in the community, which underlies participation,
ity limitation. In the ICF, activity limitation is a descriptor a person must walk about 3.1 miles per hour. Physical
which moves the continuum of function into the range of therapists often time a 10-meter walk in the clinical
disability. setting. To be ambulatory in a community, a person
Likewise, Participation is qualified by magnitude, with should be able to walk 10 meters in about 7 seconds.
the positive qualifier being Performance and the negative The time taken to do a 10-meter walk in the clinical (or
qualifier termed a participation restriction. Like its counter- standard) setting represents the capacity of the person
part of activity limitation, the negative qualifier of partici- for ambulation activity. If the person has the capacity
pation restriction implies the individual is functioning in to be a community ambulatory, participation would
the range of disability. By employing ICF codes and quali- be determined by other factors, such as motivation,
fiers, it is possible to avoid focus on disability per say, but opportunity, or terrain. These are also contextual factors.
rather to objectively describe the individual’s activities and Performance is the actual ambulation in the community
participation as a snapshot on a continuum of function. setting, which reflects both capacity and contextual fac-
Contextual factors are qualified in a dichotomous tors. Furthermore, Fritz and Lusardi (2009) make a con-
system as either barriers or facilitators (WHO, 2001b). A vincing argument that not only does gait velocity relate
barrier is a factor, such as low socioeconomic status, which to ability to move about and participate in community
limits the individual’s access to factors that support health. functions, it also relates to other aspects of activity and
Conversely, a facilitator is a factor that supports healthy participation such as ADL independence. These inter-
participation. A high socioeconomic status, for example, relationships are summarized in Figure 1-3.
may permit an individual who has lower extremity paralysis Activities and participation as defined in the
to live quite independently in his own home because he can ICF focus on normative behaviors of adulthood. In
afford to modify the home for his needs. 2007, the World Health Organization introduced a
version of the ICF especially focusing on children and
youth, which is known as ICF-CY (WHO, 2007).
puttIng tHe Icf Into The framework of the ICF-CY mirrors that of the
ICF, but it addresses children in the context of their
practIce developmental continuum. It attempts to capture
impacts of physical and social environment, such as
A simple application of ICF principles that has appeared malnutrition, and permits the inclusion of children with
recently in the physical therapy literature is in reference developmental delay in the classification system (Lollar
to the function of walking or gait. Fritz and Lusardi & Simeonsson, 2005).
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Editorial review has deemed that any suppressed content does not materially affect the overall learning experience. Cengage Learning reserves the right to remove additional content at any time if subsequent rights restrictions require it.
Human Performance: Function as an Organizing Framework 9
Discharged to Skilled
Discharged to Home
Nursing Facility
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Editorial review has deemed that any suppressed content does not materially affect the overall learning experience. Cengage Learning reserves the right to remove additional content at any time if subsequent rights restrictions require it.
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DANCE ON STILTS AT THE GIRLS’ UNYAGO, NIUCHI
I see increasing reason to believe that the view formed some time
back as to the origin of the Makonde bush is the correct one. I have
no doubt that it is not a natural product, but the result of human
occupation. Those parts of the high country where man—as a very
slight amount of practice enables the eye to perceive at once—has not
yet penetrated with axe and hoe, are still occupied by a splendid
timber forest quite able to sustain a comparison with our mixed
forests in Germany. But wherever man has once built his hut or tilled
his field, this horrible bush springs up. Every phase of this process
may be seen in the course of a couple of hours’ walk along the main
road. From the bush to right or left, one hears the sound of the axe—
not from one spot only, but from several directions at once. A few
steps further on, we can see what is taking place. The brush has been
cut down and piled up in heaps to the height of a yard or more,
between which the trunks of the large trees stand up like the last
pillars of a magnificent ruined building. These, too, present a
melancholy spectacle: the destructive Makonde have ringed them—
cut a broad strip of bark all round to ensure their dying off—and also
piled up pyramids of brush round them. Father and son, mother and
son-in-law, are chopping away perseveringly in the background—too
busy, almost, to look round at the white stranger, who usually excites
so much interest. If you pass by the same place a week later, the piles
of brushwood have disappeared and a thick layer of ashes has taken
the place of the green forest. The large trees stretch their
smouldering trunks and branches in dumb accusation to heaven—if
they have not already fallen and been more or less reduced to ashes,
perhaps only showing as a white stripe on the dark ground.
This work of destruction is carried out by the Makonde alike on the
virgin forest and on the bush which has sprung up on sites already
cultivated and deserted. In the second case they are saved the trouble
of burning the large trees, these being entirely absent in the
secondary bush.
After burning this piece of forest ground and loosening it with the
hoe, the native sows his corn and plants his vegetables. All over the
country, he goes in for bed-culture, which requires, and, in fact,
receives, the most careful attention. Weeds are nowhere tolerated in
the south of German East Africa. The crops may fail on the plains,
where droughts are frequent, but never on the plateau with its
abundant rains and heavy dews. Its fortunate inhabitants even have
the satisfaction of seeing the proud Wayao and Wamakua working
for them as labourers, driven by hunger to serve where they were
accustomed to rule.
But the light, sandy soil is soon exhausted, and would yield no
harvest the second year if cultivated twice running. This fact has
been familiar to the native for ages; consequently he provides in
time, and, while his crop is growing, prepares the next plot with axe
and firebrand. Next year he plants this with his various crops and
lets the first piece lie fallow. For a short time it remains waste and
desolate; then nature steps in to repair the destruction wrought by
man; a thousand new growths spring out of the exhausted soil, and
even the old stumps put forth fresh shoots. Next year the new growth
is up to one’s knees, and in a few years more it is that terrible,
impenetrable bush, which maintains its position till the black
occupier of the land has made the round of all the available sites and
come back to his starting point.
The Makonde are, body and soul, so to speak, one with this bush.
According to my Yao informants, indeed, their name means nothing
else but “bush people.” Their own tradition says that they have been
settled up here for a very long time, but to my surprise they laid great
stress on an original immigration. Their old homes were in the
south-east, near Mikindani and the mouth of the Rovuma, whence
their peaceful forefathers were driven by the continual raids of the
Sakalavas from Madagascar and the warlike Shirazis[47] of the coast,
to take refuge on the almost inaccessible plateau. I have studied
African ethnology for twenty years, but the fact that changes of
population in this apparently quiet and peaceable corner of the earth
could have been occasioned by outside enterprises taking place on
the high seas, was completely new to me. It is, no doubt, however,
correct.
The charming tribal legend of the Makonde—besides informing us
of other interesting matters—explains why they have to live in the
thickest of the bush and a long way from the edge of the plateau,
instead of making their permanent homes beside the purling brooks
and springs of the low country.
“The place where the tribe originated is Mahuta, on the southern
side of the plateau towards the Rovuma, where of old time there was
nothing but thick bush. Out of this bush came a man who never
washed himself or shaved his head, and who ate and drank but little.
He went out and made a human figure from the wood of a tree
growing in the open country, which he took home to his abode in the
bush and there set it upright. In the night this image came to life and
was a woman. The man and woman went down together to the
Rovuma to wash themselves. Here the woman gave birth to a still-
born child. They left that place and passed over the high land into the
valley of the Mbemkuru, where the woman had another child, which
was also born dead. Then they returned to the high bush country of
Mahuta, where the third child was born, which lived and grew up. In
course of time, the couple had many more children, and called
themselves Wamatanda. These were the ancestral stock of the
Makonde, also called Wamakonde,[48] i.e., aborigines. Their
forefather, the man from the bush, gave his children the command to
bury their dead upright, in memory of the mother of their race who
was cut out of wood and awoke to life when standing upright. He also
warned them against settling in the valleys and near large streams,
for sickness and death dwelt there. They were to make it a rule to
have their huts at least an hour’s walk from the nearest watering-
place; then their children would thrive and escape illness.”
The explanation of the name Makonde given by my informants is
somewhat different from that contained in the above legend, which I
extract from a little book (small, but packed with information), by
Pater Adams, entitled Lindi und sein Hinterland. Otherwise, my
results agree exactly with the statements of the legend. Washing?
Hapana—there is no such thing. Why should they do so? As it is, the
supply of water scarcely suffices for cooking and drinking; other
people do not wash, so why should the Makonde distinguish himself
by such needless eccentricity? As for shaving the head, the short,
woolly crop scarcely needs it,[49] so the second ancestral precept is
likewise easy enough to follow. Beyond this, however, there is
nothing ridiculous in the ancestor’s advice. I have obtained from
various local artists a fairly large number of figures carved in wood,
ranging from fifteen to twenty-three inches in height, and
representing women belonging to the great group of the Mavia,
Makonde, and Matambwe tribes. The carving is remarkably well
done and renders the female type with great accuracy, especially the
keloid ornamentation, to be described later on. As to the object and
meaning of their works the sculptors either could or (more probably)
would tell me nothing, and I was forced to content myself with the
scanty information vouchsafed by one man, who said that the figures
were merely intended to represent the nembo—the artificial
deformations of pelele, ear-discs, and keloids. The legend recorded
by Pater Adams places these figures in a new light. They must surely
be more than mere dolls; and we may even venture to assume that
they are—though the majority of present-day Makonde are probably
unaware of the fact—representations of the tribal ancestress.
The references in the legend to the descent from Mahuta to the
Rovuma, and to a journey across the highlands into the Mbekuru
valley, undoubtedly indicate the previous history of the tribe, the
travels of the ancestral pair typifying the migrations of their
descendants. The descent to the neighbouring Rovuma valley, with
its extraordinary fertility and great abundance of game, is intelligible
at a glance—but the crossing of the Lukuledi depression, the ascent
to the Rondo Plateau and the descent to the Mbemkuru, also lie
within the bounds of probability, for all these districts have exactly
the same character as the extreme south. Now, however, comes a
point of especial interest for our bacteriological age. The primitive
Makonde did not enjoy their lives in the marshy river-valleys.
Disease raged among them, and many died. It was only after they
had returned to their original home near Mahuta, that the health
conditions of these people improved. We are very apt to think of the
African as a stupid person whose ignorance of nature is only equalled
by his fear of it, and who looks on all mishaps as caused by evil
spirits and malignant natural powers. It is much more correct to
assume in this case that the people very early learnt to distinguish
districts infested with malaria from those where it is absent.
This knowledge is crystallized in the
ancestral warning against settling in the
valleys and near the great waters, the
dwelling-places of disease and death. At the
same time, for security against the hostile
Mavia south of the Rovuma, it was enacted
that every settlement must be not less than a
certain distance from the southern edge of the
plateau. Such in fact is their mode of life at the
present day. It is not such a bad one, and
certainly they are both safer and more
comfortable than the Makua, the recent
intruders from the south, who have made USUAL METHOD OF
good their footing on the western edge of the CLOSING HUT-DOOR
plateau, extending over a fairly wide belt of
country. Neither Makua nor Makonde show in their dwellings
anything of the size and comeliness of the Yao houses in the plain,
especially at Masasi, Chingulungulu and Zuza’s. Jumbe Chauro, a
Makonde hamlet not far from Newala, on the road to Mahuta, is the
most important settlement of the tribe I have yet seen, and has fairly
spacious huts. But how slovenly is their construction compared with
the palatial residences of the elephant-hunters living in the plain.
The roofs are still more untidy than in the general run of huts during
the dry season, the walls show here and there the scanty beginnings
or the lamentable remains of the mud plastering, and the interior is a
veritable dog-kennel; dirt, dust and disorder everywhere. A few huts
only show any attempt at division into rooms, and this consists
merely of very roughly-made bamboo partitions. In one point alone
have I noticed any indication of progress—in the method of fastening
the door. Houses all over the south are secured in a simple but
ingenious manner. The door consists of a set of stout pieces of wood
or bamboo, tied with bark-string to two cross-pieces, and moving in
two grooves round one of the door-posts, so as to open inwards. If
the owner wishes to leave home, he takes two logs as thick as a man’s
upper arm and about a yard long. One of these is placed obliquely
against the middle of the door from the inside, so as to form an angle
of from 60° to 75° with the ground. He then places the second piece
horizontally across the first, pressing it downward with all his might.
It is kept in place by two strong posts planted in the ground a few
inches inside the door. This fastening is absolutely safe, but of course
cannot be applied to both doors at once, otherwise how could the
owner leave or enter his house? I have not yet succeeded in finding
out how the back door is fastened.