Destigmatizing Borderline Personality Disorder - A Call To Action For Psychological Science

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1100464

research-article2022
PPSXXX10.1177/17456916221100464Masland et al.Perspectives on Psychological Science

ASSOCIATION FOR
PSYCHOLOGICAL SCIENCE

Perspectives on Psychological Science

Destigmatizing Borderline Personality 1­–16


© The Author(s) 2022
Article reuse guidelines:
Disorder: A Call to Action for sagepub.com/journals-permissions
DOI: 10.1177/17456916221100464
https://doi.org/10.1177/17456916221100464

Psychological Science www.psychologicalscience.org/PPS

Sara R. Masland1 , Sarah E. Victor2 , Jessica R. Peters3 ,


Skye Fitzpatrick4 , Katherine L. Dixon-Gordon5 ,
Alexandra H. Bettis6 , Kellyann M. Navarre7 , and
Shireen L. Rizvi8
1
Department of Psychological Science, Pomona College; 2Department of Psychological Sciences,
Texas Tech University; 3Department of Psychiatry and Human Behavior, Alpert Medical School of
Brown University; 4Department of Psychology, York University; 5Department of Psychological and
Brain Sciences, University of Massachusetts Amherst; 6Department of Psychiatry and Behavioral Sciences,
Vanderbilt University Medical Center; 7Department of Psychology, Cleveland State University; and
8
Department of Clinical Psychology, Rutgers University

Abstract
Despite recognition that borderline personality disorder (BPD) is one of the most stigmatized psychological disorders,
destigmatization efforts have thus far focused on the views and actions of clinicians and the general public, neglecting
the critical role that psychological science plays in perpetuating or mitigating stigma. This article was catalyzed by
recent concerns about how research and editorial processes propagate stigma and thereby fail people with BPD and
the scientists who study BPD. We provide a brief overview of the BPD diagnosis and its history. We then review
how BPD has been stigmatized in psychological science, the gendered nature of BPD stigma, and the consequences
of this stigmatization. Finally, we offer specific recommendations for researchers, reviewers, and editors who wish
to use science to advance our understanding of BPD without perpetuating pejorative views of the disorder. These
recommendations constitute a call to action to use psychological science in the service of the public good.

Keywords
borderline personality disorder, stigma, psychological science

Borderline personality disorder (BPD) has long been and that, as a woman’s “hotness” increases, so does her
stigmatized in academic work, clinical practice, and the “crazy.” A woman must be attractive but not too attrac-
broader mental-health discourse. Although most efforts tive. At the “right” attraction level, a man can tolerate
to assess and address this stigmatization have focused some level of apparent crazy in a woman. To assess
on mental-health clinicians, researchers commonly per- how crazy interacts with hotness to influence men’s
petuate stigma in the scientific literature. A recent dating preferences, Blanchard et al. (2021) substituted
example highlights the need for efforts to improve edu- “BPD traits” for “crazy.” A critique of this article is avail-
cation and research practices with regard to BPD. In able elsewhere (Olino et al., 2020), but this work is not
March 2020, Personality and Individual Differences alone in its use of pejorative, sexist language to describe
published an article online titled “Testing the Hot-Crazy people with BPD.
Matrix: Borderline Personality Traits in Attractive
Women and Wealthy Low Attractive Men Are Relatively
Favoured by the Opposite Sex” (Blanchard et al., 2021).
Corresponding Author:
In brief, this work used an Internet-derived “theory” Sara R. Masland, Department of Psychological Science, Pomona
called the “hot-crazy matrix” that postulates first that College
all women are “at least a 4 crazy” on a 10-point scale Email: sara.masland@pomona.edu
2 Masland et al.

Negative biases and connotations of BPD unfortu- history of the diagnostic label. The term “border line”
nately remain a consistent theme across decades of was originally intended to be descriptive—connoting the
clinical lore, written work, empirical research, and pub- disorder’s existence at the edge, or border, of psychosis
lic sentiment. As a group of concerned scientists who and neurosis (Knight, 1953; Stern, 1938). The diagnosis
study BPD and related processes, we encourage our- quickly evolved to mark patients deemed “untreatable”
selves and the field to advance beyond pejorative, stig- (Knight, 1953) and was wielded as a pejorative marker
matizing understandings of BPD. In this article, we or literal stigma, primarily against women who were
provide a brief overview of BPD and the history of the considered “difficult” (Stern, 1938; Stone, 1977) or “prob-
diagnosis, discuss how BPD has been stigmatized with lematic” (see Gunderson, 2001).1 Its inclusion in the
a focus on peer-reviewed psychological research and Diagnostic and Statistical Manual of Mental Disorders
other academic texts, describe the gendered nature of (DSM) catalyzed research efforts and the development
this stigma, and explicate its consequences. Finally, we of clinical interventions. However, BPD remains under-
outline recommendations for addressing stigma in studied compared with other psychological disorders
research and publication processes. (Zimmerman & Gazarian, 2014). Moreover, the diagnostic
criteria for BPD have not changed in the more than 30
Borderline Personality Disorder: years since the DSM-III-R (APA, 1987) despite significant
research and treatment advances and substantive changes
History, Negative Attitudes, and Stigma to many other DSM diagnoses. This reflects that evolving
Given its prevalence in the general population (1%–2%; knowledge about BPD has not been well integrated in
Lenzenweger et al., 2007) and in clinical settings (as the nomenclature.
high as 22.6%; Korzekwa et al., 2008), most people are BPD is highly stigmatized among mental-health pro-
likely to know someone with BPD, and most clinicians fessionals, perhaps more so than other disorders (e.g.,
will treat many people with BPD. Likewise, many Bodner et al., 2011; Deans & Meocevic, 2006; Dickens
researchers will include people with BPD in their stud- et al., 2016; Juurlink et al., 2019; McKenzie et al., 2021;
ies, whether or not the diagnosis is actually assessed Nehls, 1998; Servais & Saunders, 2007). However, one
or recognized. The disorder manifests as a pervasive study found that negative attitudes have improved over
pattern of instability in behavior, mood, identity, and the past 15 years (Day et al., 2018). Clinicians across
relationships (American Psychiatric Association [APA], disciplines commonly express less sympathy, empathy,
2022). People with BPD use mental-health care more and optimism about, and more hostility toward, patients
frequently than people with other mental illnesses with BPD than those with other disorders (Brody &
(Paris & Zweig-Frank, 2001), make an average of 3.4 Farber, 1996; Deans & Meocevic, 2006; Dickens et al.,
lifetime suicide attempts (Soloff et al., 1994), and die 2016; Fraser & Gallop, 1993; Holmqvist, 2000; Lam et al.,
by suicide at high rates (10%; Black et al., 2004; Oldham, 2016; Markham & Trower, 2003; McKenzie et al., 2021;
2006; Paris & Zweig-Frank, 2001). The disorder is asso- Servais & Saunders, 2007). Common descriptors of peo-
ciated with significant distress and impairment yet has ple with BPD include “manipulative,” “difficult,” “atten-
a hopeful course (Choi-Kain et al., 2020) and effective tion seeking,” “undesirable,” and “dangerous” (Deans &
treatment options (Choi-Kain et al., 2017). Meocevic, 2006; Gallop & Wynn, 1987; Nehls, 1998;
The diagnosis of BPD has been heavily stigmatized, Servais & Saunders, 2007; Stone et al., 1987; Woollaston
meaning that it has come to serve as a marker of socially & Hixenbaugh, 2008). These attitudes likely foster dis-
undesirable traits or behaviors. For BPD and other men- crimination and contribute to poor treatment outcomes
tal illnesses, this stigmatization occurs at several levels, (see Aviram et al., 2006; Rüsch et al., 2008). For exam-
including self-stigma (internalized stigma related to ple, clinicians self-report that they are less likely to
one’s mental-health difficulties), public stigma (stereo- engage in helpful behaviors when working with people
types and consequent discriminatory behaviors with BPD compared with other disorders (Forsyth, 2007)
endorsed by society at large), and structural stigma and that they are more likely to use “overly custodial
(how institutional policies intentionally or unintention- interventions” that deprive patients of their autonomy
ally lead to adverse consequences for people with men- (e.g., lengthy hospitalizations, frequent use of mental-
tal illness; see Corrigan & Bink, 2016). We touch on health legislation) for people with BPD (Krawitz &
each of these levels of stigma in reviewing the history Batcheler, 2006). Moreover, they are more likely to avoid
of BPD’s stigmatization. treating patients with BPD entirely (Black et al., 2011;
Stigma toward BPD is especially longstanding and Markham, 2003; Servais & Saunders, 2007; Westwood &
pervasive across clinical and research contexts ( Juurlink Baker, 2010). People with BPD commonly report experi-
et al., 2019; McKenzie et al., 2021; Nehls, 1998 Servais ences of discrimination or feeling that they are not being
& Saunders, 2007). This is likely due in part to the respected or taken seriously by clinicians ( Juurlink
Perspectives on Psychological Science XX(X) 3

et al., 2019; Lawn & McMahon, 2015). Some research act of “deliberately influencing or controlling the behav-
has identified that clinician attitudes about BPD can be ior of others to one's own advantage by using charm,
modified with training (e.g., Keuroghlian et al., 2016; persuasion, seduction, deceit, guilt induction, or coer-
Masland et al., 2018; Shanks et al., 2011), but to our cion” (Hamilton et al., 1986, p. 191), requires determin-
knowledge no work has addressed the modification of ing the individual’s intent and goals, yet these constructs
these attitudes in other spheres, including research and are rarely explicitly measured in BPD research.
editorial processes. The frequent use of the term “manipulation” in refer-
Negative attitudes about BPD are also pervasive out- ence to people with BPD and their symptoms is puz-
side of clinical contexts (e.g., among police; Martin & zling given the findings of empirical work. Although
Thomas, 2015; in employment settings; Juurlink et al., several studies have shown that health-care providers
2019; in the press; Bowen, 2019). As clinicians, we cau- perceive people with BPD to be manipulative (Deans
tion our patients to be careful about how they search & Meocevic, 2006; Stroud & Parsons, 2013; Woollaston
for information online or in print resources labeled as & Hixenbaugh, 2008), evidence suggesting that people
“self-help” because such resources commonly include with BPD actually intend to manipulate others is lack-
stigmatizing and/or equivocal content. Likewise, nega- ing. Studies have presented mixed evidence with respect
tive and/or inaccurate depictions in film and television to specific manipulative behaviors, namely sexual coer-
(e.g., Fatal Attraction) result from and advance a public cion (Centifanti et al., 2016; Khan et al., 2017), with
narrative of BPD as nefarious, manipulative, and dan- some suggesting that people with BPD are less likely to
gerous, which harms people with BPD in their interac- “use charm, grace or sex appeal to achieve something”
tions with others. Despite recent public acknowledgments (Mandal & Kocur, 2013). Recent work supports the idea
by well-known figures of their experiences with BPD that the fear of abandonment may contribute to harmful
(e.g., Carey, 2011; Carollo, 2011; Todd, 2021), much sexual compliance among women rather than manipula-
education is still needed to rectify misunderstandings tion (M. Willis & Nelson-Gray, 2017). Another study
about the disorder. Indeed, one study found that par- labeled specific types of interpersonal behaviors often
ticipants were more likely to label vignettes describing expressed by people with BPD (e.g., begging, threaten-
BPD symptoms with depression or anxiety than BPD, ing to end relationships) manipulative but did not evalu-
showing little community understanding of this disorder ate the intention motivating those behaviors (Mandal &
(Furnham et al., 2015). Kocur, 2013).
Often the discourse on BPD’s stigmatization stops Given that sensitivity to perceived rejection and inter-
here, with the message that clinicians and the general personal conflict is a hallmark of BPD (Foxhall et al.,
public endorse and perpetuate misguided negative atti- 2019), behaviors perceived as manipulative may reflect
tudes about people with the disorder. Yet these discus- direct consequences of dysregulated emotions and
sions ignore how researchers and scientific literature efforts to alleviate distress rather than intentional manip-
create and further entrench these negative attitudes. ulation. All people engage in behaviors that could be
Mental-health professionals must reckon with how they called “manipulative” to meet their needs in their social
may cause harm to the very people they seek to help, environments, including alleviating distress. These
but so too must researchers across subdisciplines, start- behaviors are typically those that have been previously
ing with clinical science and psychiatry, by critically reinforced by virtue of being effective. Notably, for many
examining how our methods and language contribute people with BPD, engaging in extreme behavior pat-
to stigmatizing discourse. terns may have been the only effective means to have
their needs met in the invalidating, chaotic, or neglectful
environments common in their early lives (Fossati et al.,
Stigma in the Research Literature
1999; Laporte et al., 2011). Moreover, it is possible that
Beyond the specific research article that catalyzed the the labile presentation of BPD symptoms leads people
current article, pejorative terms and attitudes around to assume that the variability in their presence over time
BPD permeate academic work. One particularly com- is due to an intentional shift over which individuals with
mon example in academia is the ascription of negative BPD have personal control (Markham & Trower, 2003).
intentions to people with BPD. For example, peer- However, researchers interested in BPD are aware that
reviewed articles frequently ascribe manipulative intent this instability has a variety of known causes outside of
to people with BPD (e.g., Allen & Whitson, 2004; Bailey one’s control (e.g., emotion dysregulation, hormonal
& Shriver, 1999; Goodman et al., 2009; Harvey & Watters, changes; Peters & Eisenlohr-Moul, 2019).
1998; Kush, 1995; Láng, 2015; Lansky & Rudnick, 1987; In addition, people with BPD are frequently identified
McEnany & Tescher, 1985; McGlashan, 1983; Rowe, as “attention-seeking” in academic texts (e.g., Bandelow
1984; Schweitzer, 2015). Measuring manipulation, or the et al., 2010; Butler et al., 2002; Fossati et al., 2016;
4 Masland et al.

Gunderson, 1996). For example, Bandelow and col- populations than for men, heterosexuals, and/or cisgender
leagues (2010) suggested that people with BPD often people (Bresin & Schoenleber, 2015; Liu et al., 2019).
wear attention-seeking, “provocative” clothing or seek Taken together, little to no evidence exists to support
attention by choosing artistic careers. We are not aware commonly used pejorative assumptions regarding the
of any empirical literature that suggests BPD is associ- intentions of people with BPD despite their propaga-
ated with particular types of clothing or particular inten- tion throughout academic texts. Unfortunately, the
tions regarding clothing choices. Further, despite routine belief that people with BPD are manipulative or atten-
descriptions of people with BPD as attention-seeking, tion-seeking has also reached proposals for diagnostic
minimal research has tested this construct in relation to nosology: The DSM-5 Alternative Model of Personality
the disorder. One study suggested that people with BPD Disorders (AMPD; APA, 2013) treats “manipulativeness,”
are elevated in attention-seeking because they exhibited “attention seeking,” and “deceitfulness” as lower-order
greater endorsement of the belief that “people will pay antagonism traits that may characterize BPD and other
attention only if I act in extreme ways” than those with personality pathology. More broadly, many of the trait
other personality disorders (Butler et al., 2002). However, labels in the AMPD are pejorative prima facie and, if
holding the belief that acting in extreme ways will get not paired with careful explanation, have the potential
attention does not assess the tendency to engage in to further embed stigma into future nosology. This
attention-seeking behavior explicitly or the motivation would likely have negative cascading consequences for
for such behavior. Furthermore, such a belief may be people with BPD.
accurate in the abusive, invalidating, or neglectful envi- The enduring misapplication of these terms to BPD
ronments from which people with BPD so commonly has also intersected with a broader culture that ques-
originate (e.g., Fossati et al., 1999; Golier et al., 2003; tions the credibility of distress, particularly when it
Laporte et al., 2011; Linehan, 1993). pertains to women and sexual-assault survivors. For
BPD symptoms themselves, especially self-injury, sui- example, Engle and O’Donohue (2012) argued, without
cide attempts, and frantic efforts to avoid abandonment, supporting data, that people with BPD are likely to
are often pejoratively reduced to attention-seeking. make false allegations of sexual assault partly as a
Although nonsuicidal self-injury (NSSI) is prevalent for result of manipulativeness and attention-seeking.
people in the general community (approximately 5.5% of Another study (Bailey & Shriver, 1999) examined “alter-
adults and up to 17.2% of adolescents; Swannell et al., native explanations” for why childhood sexual abuse
2014), it is extremely common (90%–95%) in BPD (see is commonly reported by people with BPD, noting that
Reichl & Kaess, 2021). Clinical science suggests that “BPD patients are frequently manipulative, and thus
motives for this behavior are very rarely to manipulate may be more likely than other patients to fabricate a
and more likely include expressing anger, relieving ten- history of sexual abuse in order to gain sympathy or
sion or unpleasant feelings, punishing oneself, generating escape responsibility” (p. 47). This study is more than
normal feelings, and distracting oneself (Brown et al., 20 years old, and it is rare to find rhetoric that so
2002; Hooley & Franklin, 2018; Kleindienst et al., 2008, explicitly questions the credibility of sexual-assault
Taylor et al., 2018). Even when a person with BPD report- survivors’ experiences in more recent academic work.
edly seeks attention with unhealthy strategies, it is impor- However, in our collective clinical experience, we have
tant to consider that people with BPD experience found that these harmful ideas continue to thrive.
significant distress and emotion dysregulation (Gratz Moreover, older texts may have enduring effects in
et al., 2015). These behaviors may therefore reflect rein- propagating harmful societal and legal rhetoric that
forcing feedback loops (i.e., positive and negative rein- sexual-assault survivors with BPD still feel today. The
forcement), attempts to meet one’s needs, or attempts to myth that sexual-assault allegations are often false is
regulate emotions in the absence of other strategies (see commonly endorsed (McGee et al., 2011), and police
Hooley & Franklin, 2018). Thus, pejoratively reducing are especially likely to question the credibility of peo-
BPD symptoms to attention-seeking overlooks more likely ple reporting sexual assault when they have a mental
reasons for the behavior, which are well studied and illness (O’Neal, 2019). Pejorative, victim-blaming ideol-
thoughtfully considered in the functional assessment of ogy within academia may contribute to a harmful
behaviors in other psychological conditions (e.g., sub- health-care context for people with BPD in which their
stance use; Bresin & Mekawi, 2019). Attributing manipula- traumatic experiences are automatically disbelieved
tive or attention-seeking intent to BPD symptoms, and their intentions maligned. This ideology exacer-
particularly NSSI, may also have differential impacts for bates mental-health difficulties and reinforces the
women, as well as sexual- and gender-minority individu- invalidating early experiences that often contribute to
als, given that it is a more common behavior for these BPD (e.g., Crowell et al., 2009; Linehan, 1993).
Perspectives on Psychological Science XX(X) 5

The Gendered Nature of BPD Stigma diagnostic responses from clinicians. Feminized views
of BPD may also discourage men with BPD from seek-
The stigmatization of BPD has disproportionately ing help.
affected women with the label, even before it was a Differences between general prevalence and diag-
formal diagnosis (Stone, 1977). Negative attitudes about nostic rates may also be due in part to a glaring prob-
BPD live at the intersection of sexist attitudes toward lem with our science: Most BPD studies have used
women more broadly and negative attitudes toward almost exclusively White female samples, which per-
emotionality and mental illness (see Becker, 1997). Mes- petuates the myth that BPD is a “women’s disorder” and
sages from media, public discourse, and clinical and neglects potential differences across the gender spec-
academic settings suggest a woman’s physical attrac- trum. Most BPD-treatment clinical trials have been con-
tiveness, sexuality, and mental illness are intertwined. ducted exclusively with women with BPD or are
For example, in a memoir published by a physician populated mostly by women (see Cristea et al., 2017).
about his marriage to a woman with BPD, the book Few studies to our knowledge have examined whether
description states that “he can’t understand how such BPD treatment outcomes vary by gender, and it is
a beautiful, sexy young woman would want to kill unclear whether BPD treatments work as well or the
herself” (Walker, 2008). Here, the implication is that same for individuals who are not cisgender women.
sexy and attractive women have no reason to want to There is also a lack of representation of sexuality in
kill themselves. Despite the glaring misconceptions and BPD research. Although people with BPD are more
harmful depictions of BPD outlined even in just the likely to identify as LGBTQ than those without BPD
book’s description, it received positive reviews. These (Reich & Zanarini, 2008), most research examining rela-
sexualized ideas about BPD do harm in clinical settings. tionship processes in people with BPD and their inti-
Although anecdotal, the current authors recall clinical mate partners has been conducted in exclusively
supervisors during their training describing a physical heterosexual samples in which the women have BPD
profile of “borderlines” as thin and attractive. This rhet- (e.g., Bouchard et al., 2009; de Montigny-Malenfant
oric serves to stigmatize women with BPD and make it et al., 2013; Miano et al., 2017). Consequently, consider-
difficult for women to seek and receive validating and ably less is known regarding how BPD processes may
effective mental-health support. Even more concerning influence the relationships of people identifying as
is the fact that these deeply sexist and stigmatizing LGBTQ and/or male.
ideas have been perpetuated in scientific research, as Words such as “manipulative” and “attention-seeking”
demonstrated in the article that spurred this critical are easy to single out because they are clearly pejora-
commentary (Blanchard et al., 2021) and its depiction tive. However, it is critical to be thoughtful and precise
of “hot, crazy” women. about more subtle language choices we use to describe
Gendered and sexualized ideas about BPD are also the symptoms and experiences of people with BPD.
likely to harm men. Epidemiological research (which Subtle word choices can serve to amplify stigma, even
is notably limited by the use of a gender binary) sug- if done unintentionally. For example, the word “dra-
gests that prevalence rates of BPD in men and women matic” is commonly used to describe people with BPD
are roughly equal in the community (e.g., Lenzenweger (e.g., Brazandeh et al., 2018), as are “immature” (e.g.,
et al., 2007; Torgersen et al., 2001). Studies in clinical Brazandeh et al., 2018) and “hysterical” (Kramer et al.,
populations, albeit somewhat dated, have similarly sug- 2013). Other examples of problematic language choices
gested a lack of prevalence differences by gender include “flailing” (Conklin et al., 2006; Southward et al.,
(Carter et al., 1999; Golomb et al., 1995; Sansone & 2018) and the choice to describe suicide attempts or
Sansone, 2011) or that personality disorders in general statements as “gestures” (see Heilbron et al., 2010),
may be more common in men (Grilo, 2002; Grilo et al., which suggests a lack of seriousness, attention-seeking,
1996, 2002; Jackson et al., 1991). However, the disorder or manipulation.
is disproportionately diagnosed in women (APA, 2022),
and women with a BPD diagnosis are more likely to
receive psychiatric and/or psychological treatment
Consequences of Stigma
(Dehlbom et al., 2022). This may be due to sampling Stigma may be particularly harmful for people with BPD
bias (Skodol & Bender, 2003) and a number of clinician who already struggle with a high degree of shame and
and assessment biases (Crosby & Sprock, 2004). Men generally negative self-concept (Rizvi et al., 2011; Rüsch
with BPD often present with more antisocial and narcis- et al., 2007). They may be more susceptible to self-
sistic traits, whereas women present with more depres- stigma, which is associated with both experienced pub-
sive, anxious, and somatic symptoms (Silberschmidt lic stigma and anticipated public stigma (Hing &
et al., 2015). These differences may evoke differential Russell, 2017). The attribution of negative experiences
6 Masland et al.

to aspects of one’s identity is a key characteristic of illness (Tusiani-Eng & Yeomans, 2018). Additionally,
shame (Tangney, 1995), which potentially explains asso- lack of expertise in BPD and public stigma may lead
ciations between shame-proneness and greater self- clinicians to refrain from diagnosing BPD when it is
stigma related to mental-health problems (Hasson-Ohayon present. Indeed, clinicians are often reluctant to diag-
et al., 2012). Thus, people with BPD are exposed to both nose BPD (Paris, 2007) or to disclose the diagnosis.
the magnified public stigma of BPD and an escalating Many patients with BPD (38% in one study; Lawn &
cycle between self-stigma and the shame they commonly McMahon, 2015) carry a diagnosis for years without
experience. receiving an adequate explanation for what it means.
Stigma also has other, more tangible consequences for Although some may argue that diagnostic labels inher-
these individuals. For instance, self-stigma and antici- ently stigmatize, when delivered appropriately, the BPD
pated stigma can impede help-seeking and disclosure diagnosis often provides validation and relief and is
among people with mental illness (Corrigan, 2004; identified by patients as crucial to conceptualizing their
Heflinger & Hinshaw, 2010). Indeed, many people may experiences (Ng et al., 2019). It is also critical for con-
avoid seeking treatment to avoid the label of mental ill- nection to appropriate treatment and forming realistic
ness (Corrigan & Bink, 2016), whereas lower internalized expectations (Gunderson et al., 2006).
stigma is linked to seeking care (Cooper et al., 2003). People with BPD also face significant barriers to other
Moreover, deleterious effects of stigma on help-seeking forms of care, including medical interventions. Signifi-
may be differentially impactful across ethnic groups cant consequences in medical settings for people with
(Horwitz et al., 2020; Loya et al., 2010) that are notably BPD and comorbid disabilities result from the notions
historically excluded in BPD research and clinical science that people with BPD are manipulative, attention-seeking,
more broadly. Importantly, disclosure about negative life and uncredible reporters of their experience. One
events and their emotional consequences protects against research review, written to provide pain-management
longer-term emotional distress among people with BPD recommendations for medical practitioners who treat
(Schoenleber et al., 2014), so stigma-induced barriers to people with comorbid BPD and chronic headaches or
disclosure may be particularly harmful. related painful phenomena, described them as patients
Structural stigma likewise has concrete negative con- who manipulate, exaggerate, and distort (Saper & Lake,
sequences for people with BPD, such as limiting access 2008). This type of belief is particularly concerning in
to appropriate care. Although people with BPD are light of evidence that BPD is associated with a higher
overrepresented (9%) among emergency-department prevalence of disabilities and chronic illnesses such as
visitors (Pascual et al., 2007), emergency departments arthritis, diabetes, cardiovascular disease, stroke, and
and other medical providers are not often trained to chronic pain conditions (Barber et al., 2020; Chen et al.,
identify BPD or provide appropriate referrals (Cases 2017; El-Gabalawy et al., 2010; Sansone & Sansone,
et al., 2020). Furthermore, although evidence-based 2011), as well as higher rates of other physical-health
treatments for BPD are difficult to access for a range of symptoms, such as colds and coughs (Gratz et al.,
reasons (e.g., treatment duration, cost, waiting lists; 2017). The exclusion of disability-informed research
Lawn & McMahon, 2015; Tusiani-Eng & Yeomans, 2018), and widespread stigma may contribute to medical
pervasive pejorative professional attitudes toward BPD neglect and poor quality of medical care for people
can also interfere with access to specialized care. For with BPD.
instance, low treatment access is further exacerbated Clearly, nonpejorative, compassionate, rigorous
by a dearth of trained providers because relatively empirical work focused on BPD and its treatment is
fewer trainees pursue specialized training in treatment needed. Yet the profound stigma associated with BPD
for BPD than for other disorders (Iliakis et al., 2019; may extend beyond patients themselves and may even
Tusiani-Eng & Yeomans, 2018). This may be due to the hamper the production of such empirical work. This
cost and time associated with learning BPD treatments. may be due to “courtesy stigma,” also referred to as
In addition, trainees are likely also discouraged from “stigma by association,” whereby stigma accrues to an
pursuing training because of negative connotations individual or community because of a connection to a
associated with the diagnosis that are perpetuated stigmatized group (Goffman, 1963). Although not well
not just in clinical settings but also through academic studied, such stigma by proxy could also impact
texts and commentary offered by faculty and clinical researchers who study stigmatized diagnoses or groups,
supervisors. leading to negative evaluations of BPD-related research.
Pejorative professional attitudes may also contribute Research on BPD is substantially underrepresented in
to systemic barriers to accessing BPD diagnoses or terms of studies funded by the National Institutes of
treatment. For instance, some have asserted that several Health (NIH; Zimmerman & Gazarian, 2014). For exam-
insurers in the United States will not accept BPD as a ple, although BPD and bipolar disorder are comparably
billable diagnosis or classify it as a serious mental prevalent, impairing, and life-threatening, research
Perspectives on Psychological Science XX(X) 7

focused on BPD has received less than 10% the amount whether invocations of BPD in theories rely on
of NIH funding relative to bipolar disorder (Zimmerman, actual diagnostic criteria of BPD (e.g., affective
2015; Zimmerman & Gazarian, 2014). Pejorative attitudes instability) or prior empirical research (e.g., find-
toward BPD and their consequences permeate all levels ings of heightened levels of subjective experi-
of research and care, from the grant funding that informs ences of shame, anger, and rejection sensitivity
treatment development, to treatment researchers, and in BPD). If not, it is worth considering whether
the clinicians who administer treatments. the theory invokes unfounded stereotypes of
Such negative attitudes may even extend to the indi- BPD (e.g., “people with BPD are manipulative”).
viduals conducting BPD research. Just as mental illness This is especially important when the academic
stigma hampers disclosure broadly (Corrigan et al., work is not challenging that idea (e.g., a study
2016), institutional stigma associated with BPD may questioning whether a commonly held stereo-
inhibit those within the field from disclosing personal type is actually valid) but rather stating it as a
experience in professional contexts, thus increasing the presupposition to a different hypothesis (e.g.,
apparent divide between people living with BPD and testing a theory about a “hot/crazy” matrix with
the researchers who study them. Lived experience of the assumption that BPD features are prototypes
psychopathology is common for researchers and clini- for the “crazy” label).
cians and can be in many ways a valuable asset (Victor 2. Avoid sex- and gender-related biases in theories,
et al., 2022). Recently, a scholar summarized a range of research design, and language. Does the framing
publications advising graduate school applicants not to of BPD-related work hold up if applied to more
disclose personal experiences of mental illness gener- than one gender? If the language does not gen-
ally and speculated that “me-search,” a pejorative term eralize well to men, for example, it may indicate
referring to conducting research related to one’s own biased ideas or language. If components of the
experience of illness, may have been a “kiss of death” study are explicitly gendered, is there an empiri-
for his research proposal (Devendorf, 2022). Indeed, it cal reason for that choice, or is it based on
was only toward the end of her extraordinary research assumptions? Consider also whether the work
career that Marsha Linehan, a groundbreaking BPD pathologizes behaviors that might be considered
researcher and developer of dialectical behavior ther- dysfunctional only in the context of some gen-
apy, publicly acknowledged her own personal history ders (e.g., having more sexual partners in women)
of mental illness (Carey, 2011). It may be harder for or behavior that might represent a valid sexual
people with BPD to trust the science and treatments orientation or gender identity (e.g., framing being
arising from a community that does not seem to include bisexual or gender-fluid as identity disturbance;
their voices, and this false dichotomy might discourage Eubanks-Carter & Goldfried, 2006; Rodriguez-
some in the field from being open about their personal Seijas et al., 2020). Moreover, it is readily appar-
experiences with BPD. ent that the majority of research on BPD, from
basic to applied studies, has focused almost
exclusively on White women who are (or are
Recommendations
presumed to be) heterosexual and cisgender. The
It is clear that negative, pejorative, and often sexist inclusion of other gender identities and sexual
views of BPD continue to proliferate in ways that stymie orientations in research samples is critical for
research progress and further harm people with the moving beyond gendered notions of BPD and
disorder. What can be done? Moving forward, research- helping people across the gender spectrum.
ers, authors, reviewers, and editors in clinical psychol- When gender distributions are skewed at the con-
ogy and other subdisciplines can take active steps to clusion of data collection, this should be recog-
study the important topic of BPD without exacerbating nized as a limitation, and researchers should
its stigmatization. Likewise, those who are responsible consider whether they are adequately powered
for research training are in positions to combat stigma to detect gender differences. Researchers should
development during formative times. also assess gender comprehensively (for guide-
lines, see Puckett et al., 2020), recognizing that
even if underpowered to detect differences
Recommendations for researchers
between groups, it is still important to allow par-
1. Research on BPD should be grounded in robust, ticipants to accurately describe their gender and
empirically sound theories and hypotheses that to describe samples correctly.
are not influenced by judgment, stereotypes, or 3. Use targeted recruitment methods to broaden rep-
biases. Researchers are encouraged to consider resentation of minoritized and underrepresented
8 Masland et al.

populations. In addition to recommendations for 6. Seek collaboration with people who have high
including gender and sexual diversity, we urge levels of experience working with people with
researchers to focus on underserved populations. BPD, as well as people with lived experience.
We know very little about differential impacts, Interest in including service users in psychologi-
mechanisms, treatment outcomes, and experi- cal science has increased in recent years (e.g.,
ences of BPD for non-White populations, a prob- Brown & Jones, 2021; Jones et al., 2020, 2021;
lem that is not limited to BPD but persists more Moreno et al., 2020). It is critical that services
broadly in clinical science (Adams & Miller, 2022; users with BPD are included in this push. We
Wilkins et al., 2020). This recommendation also suggest this for all academics, particularly those
applies to those researchers interested in stigma new to the topic of BPD. Collaborate in all
itself because stigma likely has significant inter- aspects of work, from study design and imple-
sectional influences. mentation to reviewing language and framing
4. Avoid language with a moralistic or otherwise choices. If BPD is a central component to a study,
judgmental approach to labeling behavior. As it likely improves the study to involve these
scientists, we are most accurate and clear if we voices from the beginning of the project, espe-
frame our work in nonjudgmental, functional cially if the investigative team lacks clinical
language that is as close to the evidence as pos- expertise and either lived experience or close
sible. For example, regarding “manipulative” contact with communities with personal experi-
behavior, we can consider whether that label ence. Researchers should also consider collabo-
goes beyond the evidence. If we are describing rating with professional organizations (e.g.,
someone’s repeated behavior that has a negative National Education Alliance for BPD, Emotions
impact on others but do not know the intent or Matter) with BPD expertise. These organizations
degree of forethought behind the behavior, may facilitate connections to people with lived
surely it serves our understanding of the disorder experience and/or provide consultation to ensure
and of psychology best to use the most precise that research is sensitive and nonstigmatizing.
language to operationalize what we observe. 7. It is important for all researchers to understand
Labeling these behaviors as maladaptive, urgent, that asking an empirical question and producing
reactive, or even aggressive may be more accu- scientific knowledge are not neutral actions and
rate and allow for better consideration of the not inherently useful pursuits. Rather, asking help-
phenomena and its impact on others and, ful questions, with sensitivity and benevolence, is
accordingly, lay the foundation for better sci- a characteristic component of good research. For
ence. BPD researchers may wish to draw on example, one could ask how BPD and perceived
work from forensic psychology, in which the attractiveness interact to influence men’s dating
avoidance of inappropriate inferences about cli- preferences. However, asking this question may
ents’ intentions is a central component (G. M. legitimize sexist and pejorative ideas about
Willis, 2018). BPD, especially if alternative hypotheses are not
5. Particular care and consideration should be included. Researchers are encouraged to consider:
given to the impact of titles and abstracts, includ- Who is impacted by my asking this question? Does
ing their impact when considered outside of the answering this question help people or advance
context of the full article. Although as academics science meaningfully? Have I ruled out alternative
our hope is always that people read the entirety explanations for this finding?
of our work, we need to accept the reality that 8. Do not exclude participants on the basis of per-
our article titles and abstracts carry particular sonality disorders or histories of self-injurious
weight given that many people will only go that behaviors. If clinical science is to inform prac-
far in their engagement or may not have access tice, this is critical given the prevalence of BPD
to full articles. If paragraphs within the article in clinical settings. Moreover, excluding partici-
are needed to contextualize a title or abstract as pants on the basis of personality disorders or
not harmful or pejorative toward a vulnerable self-harm not only risks misrepresenting the
group, then we suggest rewording, even if the complex nature of mental illness but also sends
resulting title is less attention-grabbing. One sug- an implicit message that people with these his-
gestion is to write titles and abstracts with the tories are somehow “other” or to be avoided.
full expectation that participants in the study, or Likewise, it is important to assess for the pres-
a loved one with BPD, will read them. ence of BPD when characterizing clinical
Perspectives on Psychological Science XX(X) 9

samples in which this diagnosis is likely to be have outlined useful recommendations for engag-
overrepresented (e.g., in research on popula- ing service user participation in the mental-health
tions with trauma histories). system (e.g., Brown & Jones, 2021; Daya et al.,
9. Researchers who work with trainees at any level 2020). In the context of BPD specifically, organi-
(e.g., undergraduate students, graduate students, zations that center people with the disorder (e.g.,
interns, residents, fellows) should avoid perpetu- National Education Alliance for Borderline Per-
ating biases about BPD, and clinical researchers sonality Disorder, Emotions Matter) may be useful
should ensure that training includes accurate for connecting to people with lived experience.
information about BPD. In our experience, stig- Because the BPD community is large and diverse,
matizing myths about BPD are often transmitted consultation should include multiple voices.
in training environments through both subtle These individuals could be called on to help
and overt messaging. Careful attention to the craft language guidelines, screen policies for sen-
validity and tone of discussions about BPD is sitivity, suggest research areas to spotlight, and
warranted. Researchers should strive to use non- brainstorm additional measures to eliminate stig-
judgmental and behaviorally specific language. matization. Journals could also consider develop-
In addition, given the prevalence of BPD, clinical ing their own work group or board dedicated to
researchers are extremely likely to work with integrating lived experience perspectives into
people with BPD even if they attempt to exclude research, as was initiated by Psychiatric Services
participants on the basis of personality disorders this year.
(a practice we do not recommend). Exposure to 3. For any article about BPD or that uses it as a
accurate information about BPD should be an phenotype, at least one reviewer should have
integral component of training curricula. BPD expertise, even for journals in other sub-
disciplines. Consideration should be given as to
whether a clinical perspective may be important,
Recommendations for the editorial even for a nonclinical article. Moreover, given
process the extent to which BPD is often stigmatized
1. Journals should provide specific guidance with more so even than other mental illnesses, a
respect to nonstigmatizing language around all broad clinical perspective may not suffice—BPD-
mental-health conditions, including BPD, and specific expertise should be sought from
instructions to peer reviewers should include researchers and/or clinicians who have a dem-
reference to these guidelines. Pejorative lan- onstrated history of nonstigmatizing practices.
guage and ideas should be evaluated during peer 4. Clinicians, researchers, and editors should make
review and, if not addressed through the revision use of existing journal mechanisms to call atten-
process, serve as grounds for manuscript rejec- tion to problematic research practices. Most jour-
tions. Further, if pejorative language is identified nals have options to write letters to the editor
after publication, clear editorial policies should (which may or may not be published) as well as
exist such that readers who identify problematic commentaries on published articles. As a com-
language have a way to indicate this to the edito- munity of researchers, we should all help to hold
rial board for correction. In addition, although ourselves and each other accountable by using
many journals provide guidance regarding the these mechanisms to draw attention to stigmatiz-
need for respectful and professional language, ing research that makes it through the editorial
little clarity exists for how these guidelines are process and encouraging our community to do
interpreted, applied, and enforced. For this rea- better. Where possible, this should be done in a
son, journals should develop training for edito- manner that calls the researchers and editors into
rial teams who oversee peer review. the conversation as collaborators in improving
2. People with BPD and other mental-health condi- the research process.
tions should be consulted in the development of
such policies and approaches. For journals regu-
Conclusion
larly publishing content about personality disor-
ders, creating a consulting board of people with Many of the people with BPD in our personal lives or
lived experience, with compensation, may be the with whom we have worked professionally are among
most ethical and appropriate way to involve the most caring, bright, fun, and creative people we
these key voices in this conversation. Others know. As is true for people with any psychological
10 Masland et al.

disorder, they deserve research dedicated to the better- evidence. Although a name change will not likely eliminate the
ment of their lives and reduction of suffering. Although convergence of structural, public, and self-stigma, changes to
psychological science has made important advances in other disorder names have been useful. For example, changing
understanding and treating BPD, the field must come the name of schizophrenia in Japan to more accurately reflect
the modern concept resulted in nearly twice as many patients
to terms with a long-standing history of stigmatizing
receiving the diagnosis within 3 years (Sato, 2006). We have
language, study framing, and research practices. Clinical
not included arguments about the name of the disorder here,
psychological science and psychiatry should take the primarily because we believe the push for name change should
lead in correcting this history given their proximity to arise from a collaborative effort that includes people with bor-
BPD, yet other subdisciplines also play a critical role. derline personality disorder and is informed by their prefer-
Many of the recommendations we have made will not ences and evolving evidence.
only help to destigmatize BPD and BPD symptoms but
also are likely to make research more robust and impact- References
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