Facts

Rett Syndrome affects 1 in

10,000 girls
Rett Syndrome
Regresses at 6 - 18 months By: Hope Hill
into life

What is Rett Syndrome? Symptoms

Early symptoms (Begin 6 - 18 months
Rett Syndrome is a neurological old)
disorder with physical symptoms. It’s Loss of Muscle tone
more prevalent in girls due to it being Jerkiness in limbs
cause by a X chromosome mutation Difficult to crawl, walking and feeding
called MECP2. All individuals with Rett Later Symptoms
Syndrome experience different Seizures
symptoms but it affects them all Scoliosis
physically. Apraxia
Handwringing
Loss of mobiltiy and motor functions
Apps
My Rett Ally Treatments?
Free Online Web App for
Rett Syndrome is not treatble but symptoms
tracking
can be managed through medications and
information for Individuals
therapies
with Retts. Keep up to date
daily needs, medical info
Medications
and symptoms.
Daybue Oral Solution (Trodinetide) Age 2+
Reduces brain swelling and increases
WheelMate
protein in the brain.
Therapies
Occupational Therapy
Physiotherapy
Speech therapy
Hydrotherapy

Online Resources
Reference
International Rett Syndrome Foundation
Page
Ontario Rett Syndrome Association
Rett Syndrome Resarch
Assignment Understanding Rett Syndrome