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Full Download Book Research Ethics in Behavior Analysis From Laboratory To Clinic and Classroom PDF
Full Download Book Research Ethics in Behavior Analysis From Laboratory To Clinic and Classroom PDF
Edited by
David J. Cox
Institute for Behavioral Studies, Endicott College, Beverly,
MA, United States
Noor Y. Syed
SUNY Empire State College and the Center for Autism Advocacy:
Research, Education, and Supports, Saratoga Springs, NY, United States;
Anderson Center International, Staatsburg, NY, United States; Endicott
College, Beverly, MA, United States
Matthew T. Brodhead
Department of Counseling, Educational Psychology, and Special
Education, Michigan State University, East Lansing, MI, United States
Shawn P. Quigley
Melmark, Andover, MA, United States; Berwyn, PA, United States;
Charlotte, NC, United States
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Notices
Knowledge and best practice in this field are constantly changing. As new research and
experience broaden our understanding, changes in research methods, professional prac-
tices, or medical treatment may become necessary.
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ISBN: 978-0-323-90969-3
xiii
xiv Contributors
The fact that you are reading this book suggests you might be like usdresearch
and ethics junkies interested in how research and ethics intersect for the behavior
analytic scientist and practitioner. But, you may ask, “Why do we need a book
about research ethics in behavior analysis? Research ethics and behavior analysis
have both been around for a while. What possibly can be gained by adding
another book to this mix?” We invite you to explore these questions with us now
as we dive into the unique attributes of behavior analytic research.
First, behavior analysis is somewhat unique among scientific fields that span
research and practice. Many areas of human subjects research emphasize ran-
domized controlled trials and other group designs to study intervention effec-
tiveness. Here, the methods employed by researchers differ significantly from the
methods used by practitioners to evaluate interventions for individual patients
(e.g., medical doctors, licensed psychologists). As a result of this difference in
methodological approaches between researchers and practitioners, authors
writing about research ethics will often address the ethical conduct of group
design research and ethical claims around generalizing group design research to
individuals within the studied populations. In contrast, the methods used by
behavior analytic researchers can be directly replicated by practitioners who
seek to employ empirically supported methodologies for behavior change. The
generalizability of research methods (e.g., single-case research design) to
practice creates unique ethical challenges and questions specific to the behavior
analytic community that traditional research ethics texts often fail to address (see
Normand & Donohue, in press). This book attempts to fill that gap.
Second, research ethics can sometimes feel like a set of rules we need to
follow, a set of Institutional Review Board (IRB) boxes we need to check, and a
series of responses that allow us to avoid contacting aversive contingencies.
Often, these regulatory actions can seem annoying or counterproductive to the
research process. In fact, anyone who has conducted research can probably share
with you at least one story of IRB oversight gone awry (see Briggs, 2022, for a
particularly notable rant)! Once the regulatory boxes are checked, researchers
often feel they can get on with the real work in knowing what they are doing is
“good.” But ethics involves claims about what’s right and what’s wrong; ethical
decisions are made daily and throughout the research process; and ethics is also
about inspiring and helping us do better. Thus, this book attempts to highlight
how claims about right and wrong are woven into the fabric of decisions that
xvii
xviii Preface
researchers make throughout the research process. This book also highlights how
ethical research conduct can lead you to conducting higher quality research with
greater impact.
As editors of a textbook centering around ethical research practices, we
believe that higher quality research first comes by acknowledging biases within
the research process, both covert and overt. The ability and opportunity to engage
in research is a social privilege and carries many associated costs for actually
conducting research and having the free time to write and publish papers. The
behavior analytic field is composed primarily of practitioners, many of whom
dedicate their careers towards improving the lives of others. The emotional,
physical, and mental strain, coupled with other responsibilities, may leave
practitioners with little time or energy to engage in the research and publication
processes. Such processes are generally a significant time commitment, which
may not be feasible for all. Too, research tools, such as statistical analyses
platforms and literature databases, are typically a high cost and can only be
accessed by those who have funding sources or an institutional affiliation. IRB
requirements can also be expensive, as these often require certifications that are
not free or widely available. In one editor’s rant, while doing research with
colleagues in Kenya, they found that the cost of certification and Kenyan IRB
came to an amount that was the average equivalent of almost two month’s na-
tional salary! Such an amount that would not be feasible for most without
external funding.
It is critically important that we acknowledge the current criticisms, and
subsequent challenges, the field is facing. As this text is going to press, over 70%
of certified behavior analysts identify as working in the field of autism (BACB,
n.d.), yet we are hearing strong outcries against applied behavior analysis from
members of the autism and autistic communities. Further, most behavior analytic
research has been conducted in North America, primarily in the United States,
which limits the inclusivity and applicability of our research. These disparities
and challenges can lead to a gap between what we know and what we do, a
phenomenon often referred to as the know-do gap in implementation science
framework (e.g., Booth, 2011; Pakenham-Walsh, 2004). Without bridging these
gaps, we may begin to question whether our research is truly socially significant.
Though such logistical challenges may feel disheartening, shining a light on
areas for growth in our research ethics helps us identify how to move forward.
These criticisms have been an impetus for important discussions centering how
to engage in community-based and compassionate research in behavior analysis.
We can begin conditioning the reporting of participant and research identities as
a reinforcer, create research teams that represent the broader community, and
engage in participatory research to increase social significance of our goals,
acceptability of our treatments, and perhaps, the generalizability of our findings.
Most importantly, however, we may find that these strategies will begin bridging
the inclusivity research gap in our field, therefore, creating an equitable culture
that continues to be the heart of behavior analysis.
Preface xix
Finally, many existing texts on research ethics focus on broad ethical theories
and principles. As a result, the reader is often left to independently generalize
those topics to the unique and varied situations they encounter while conducting
research. This can be a challenging exercise, especially for newer researchers.
Thus, rather than organize this text around a theory (or three), we sought to
organize this text around researcher behavior. Specifically, this text follows the
prototypical research pipeline to demonstrate how every stage in the research
process involves ethical considerations, ethical traps, and opportunities to be
better researchers. As a result, we hope the book helps you to become fluent in
identifying the relevance of ethical conversations in your daily empirical work
and become enthusiastic about seeking them out. To slightly tweak for emphasis
an oft-quoted phrase stemming from Herrnstein (1970): All research behavior
involves ethical choice. We hope, by the end of this text, you agree.
To close, we would be remiss if we failed to use this space to thank the many
contributors to this book. If you have not yet seen, the table of contents is packed
with a stellar group of individuals who each have pushed the boundaries of
current conversations at the intersection of research in behavior analysis and
research ethics. Their thoughtful, reflective, and insightful prose left us inspired
and energized to be better researchers and stewards of this beautiful science we
call “behavior analysis.” We hope you enjoy reading this text as much as we
enjoyed bringing it into your home.
eDavid, Noor, Matt, and Shawn
REFERENCES
BACB (n.d.). About behavior analysis. Retrieved from: https://www.bacb.com/about-behavior-
analysis/.
Briggs, R. (March 23, 2022). The abject failure of IRBs. The Chronical of Higher Education.
https://www.chronicle.com/article/the-abject-failure-of-irbs.
Booth, A. (2011). Bridging the ‘Know-do gap’: a role for health information professionals?. Health
information and libraries journal, 28(4), 331e334. https://doi.org/10.1111/j.1471-1842.2011.
00960.x.
Herrnstein, R. J. (1970). On the law of effect. Journal of the Experimental Analysis of Behavior,
13(2), 243e266. https://doi.org/10.1901/jeab.1970.13-243.
Normand, M. P., & Donohue, H. E. (2022). Research ethics for behavior analysts in practice.
Behavior Analysis in Practice. https://link.springer.com/article/10.1007/s40617-022-00698-5.
Pakenham-Walsh, N. (2004). Learning from one another to bridge the “know-do gap”. British
Medical Journal, 329(7475), 1189. https://doi.org/10.1136/bmj.329.7475.1189
Chapter 1
* Portions of this manuscript were completed as part of the first author’s dissertation for the PhD
in Health Services Research with a concentration in Behavior Analysis at the University of
North Texas.
Behavior analysts not only engage in behaviors and practices related to the
research process but are also “members of the social systems within which
they conduct research” (Pritchett et al., 2021, p. 17; see also Goldiamond,
1978, 1984). This dual role, created through a recursive relationship between
social behavior and practices and the social environment, creates the condi-
tions under which “the individual [researcher] acquires from the group an
extensive repertoire of manners and customs . all of which depend in part on
the practices of the group [scientific community] of which he is a member”
(Skinner, 1953, p. 415). For instance, the behaviors and practices that exem-
plify the purpose of research evolve, as do the behaviors and practices related
to how and why research questions emerge in a given scientific community.
There is a recursive relationship between the social behaviors involved in
conducting research with humans and the social environment that selects these
behaviors and practices, both of which are constantly changing over time and
in relation to one another.
Simultaneously, this dual role creates a dual obligation for behavior
analytic researchers. The research-related behaviors and practices “generate
ethical behavior and the extension of these practices to manners and customs
. A culture [the social environment] . is thus enormously complex and
extraordinarily powerful” (Skinner, 1953, p. 419) in determining our behaviors
and practices, including those of the researcher in behavior analysis. Notably,
this recursive relationship affects the behaviors of the researchers and the
environmental selecting events (e.g., motivating contexts, resources and con-
ditions, consequences; see also Mattaini, 2013). They contribute to why ex-
periments are conducted, how and why we ask and pursue different research
questions, how research and its findings are communicated to scientists and
society, and the practices and directions of our research ethics.
Conceptualizing research as social behavior suggests that, while behavior
analysts strive to engage in research that advances our understanding as to how
to improve conditions for people, they also operate within systems that have
other goals and contingencies (Pritchett et al., 2021; see also Goldiamond,
1978, 1984). The behavior analyst’s obligations to the research participant,
society, and the institutions in which they work have the potential to create
competing contingencies (Bandura, 1978; Stolz, 1978), especially in cases for
which there are acknowledged or hidden vulnerabilities or power imbalances.
Ethical dilemmas . arise when the professional and the individual whose
behavior is to be changed are from different social classes or have different
statuses (and hence have different values for differential access to reinforcers),
when the voluntary nature of the involvement of the persons whose behavior is to
be changed is compromised in any way, when their competence to enter into an
agreement regarding the intervention is questionable, or when people are sub-
jected to interventions they do not realize are in effect.
(Stolz, 1978, p. 18)
4 Research Ethics in Behavior Analysis
Benjamin (2013) describes a parallel tension in the life sciences and the
biotech sector:
The life sciences and the burgeoning biotech industry are especially vulnerable
to conflicts between commercial, medical, and broader social interests, as the
application of commercial logic to (and commodification of) the human body
leads us full circle to the dangerous medical practices of World War II e and
even prior to that, to American chattel slavery.
(p. 4)
Such responsibilities are further highlighted when we consider the
implications and development of ethics in relation to consent. There are many
cases of persons, discussed in detail later in this chapter, in marginalized
positions in society, who were involuntarily forced to participate in biomedical
and behavioral researchdindividuals such as Mrs. Henrietta Lacks (Skloot,
2011), the subject in Fuller (1949), and the men in Tuskegee (Tuskegee
University, n.d.). In each of the cases, subjects were treated as if their lives
were less; they were considered subhuman. The information and un-
derstandings gained from these research programs and the research subjects
became commodities that produced profits. Those whose bodies and behavior
produced the knowledge did not profit from the knowledge, and in most cases
neither did the marginalized communities to which they belonged. The
commodification of the knowledge gained was a direct product of the
diminished value of their lives relative to the lives and rights of other members
of society; they were used to benefit others. It was not until much later that
advocacy and outrage for these individuals produced several, sometimes
simultaneous global responses, and society responded with counter controls
and protections that are now built into the research process (cf., Stolz, 1978;
Wood, 1975).
TABLE 1.1 Key events related to ethical codes and protections outside of
and within behavior analysis.
Continued
6 Research Ethics in Behavior Analysis
TABLE 1.1 Key events related to ethical codes and protections outside of
and within behavior analysis.dcont’d
TABLE 1.1 Key events related to ethical codes and protections outside of
and within behavior analysis.dcont’d
Continued
8 Research Ethics in Behavior Analysis
TABLE 1.1 Key events related to ethical codes and protections outside of
and within behavior analysis.dcont’d
TABLE 1.1 Key events related to ethical codes and protections outside of
and within behavior analysis.dcont’d
Continued
10 Research Ethics in Behavior Analysis
TABLE 1.1 Key events related to ethical codes and protections outside of
and within behavior analysis.dcont’d
Language: English
By HENRY SLESAR
Illustrated by SCHELLING
When the baby was brought into the room, cooing softly and trying
her new tooth against a thumbnail, Deez took the infant into his lap
and studied its small, chubby face with an air of solemnity that
troubled Ky-Tann and his wife. After a moment, Deez smiled painfully.
"What luck," he said. "She looks like you, Devia. It would have been
awful if she had looked like Ky."
Devia laughed, but they could see that Deez had labored to make the
joke. She took the infant from him, and let Su-Tann crawl about the
heated floor. Deez watched her progress and then looked up, flashing
his old grin. "But I suppose you're waiting to hear about my great
Discovery? Think of it, Ky! A dead planet, a genuine lost civilization!
Not a hoax this time...." He spoke avidly, but his eyes were
bewildered, the eyes of a man injured in battle.
"It can wait," Ky-Tann said. "You're tired, Deez."
"I'll tell you now," Deez said.
"We skedded across this dry ocean floor a distance of some two to
three thousand amfions, and found its peaks and valleys marvelous
to behold but utterly devoid of vegetation. Gi-Linn made some cursory
examinations of mineral specimens during our flight, and reported
that the planet's crust was an astonishing mixture of various layers,
ranging in geological age from millions of years to mere thousands. It
was further evidence that this world hadn't always been a barren
rock, that a cataclysmic volcanic upheaval had altered its terrain,
sifted and blended its strata, had dried its oceans and swallowed its
continents. For the first time, we began to look upon this particular
planet with more than routine interest.
"And then we saw it.
"At first, Totin, our navigator, swore it was only an optical trick, an
illusion of the sort we had encountered on other worlds. Once, on a
planet in the Casserian system, we had each of us seen a herd of
cattle grazing peacefully in a green field—this on a planet of
interminable yellow dust. But there was nothing dreamlike about the
great metallic ruin that came into our sight, this giant who seemed to
lift its shattered arm to us in greeting.
"I have seen terrors, and beasts, and horrors of the flesh, but I tell
you now that never before have I experienced such a pounding of the
heart as when that alien monument came into view. For not only was
it plainly a remnant of a forgotten civilization, the first we had ever
found, but it was also apparent that the ancients who had lived—and
died—on this world had been cut from the same evolutionary cloth as
we of Illyri.
"The figure was that of a woman."
Devia, who had been listening open-mouthed, said:
"A woman! Deez, how thrilling! It's like some marvelous old fable—"
"She stood some ninety amfs high," Deez said, "buried to the
shoulder in the arid soil of the planet. Her right arm was extended
towards the heavens, and clutched within her hand was a torch
plainly meant to symbolize the shedding of light. Her headpiece was
a crown of spikes, her features noble and filled with sadness. She
was blackened with the grime of centuries, battered by time, and yet
still wonderfully preserved in the airless atmosphere.
"We were thrilled by the sight of this ancient wonder, and speculated
about its builders. Had they been giants her size, or had they erected
her as a Colossus to celebrate some great deed or personage or
ruler? What did she mean to her builders, what did her uplifted torch
signify? What aspirations, hopes, dreams? Could we find the answer
beneath that dry soil?"
"Did you dig?" Ky-Tann said, his eyes shining with excitement. "You
weren't equipped for any major excavation work, were you?"
"No; the most we could have done was scratch the surface of the
planet, perhaps enough to free the entire figure of the Colossus. But
that wasn't enough; we burned with curiosity to know what lay under
our feet, what buried cities, people, histories.... Totin set up a signal
station, and beamed our message to the space station on Briaticus.
After a few days, we made contact, and relayed our story. There was
skepticism at first, but they finally agreed to dispatch all available
manpower and excavation equipment to the planet Earth."
"The planet what?" Devia said.
"Earth," Deez said, with a wan smile. "That was its name, eons ago,
and the builders, who were called Earthmen, lived within natural and
artificial boundaries called nations, empires, states, dominions,
protectorates, satellites, and commonwealths. That empty globe had
once housed as many as three billion of these Earthmen, and their
works were prodigious. Their science was advanced, and they had
already thrust their ships into the space of their own solar system...."
Ky-Tann was plainly startled.
"Deez, you're really serious about this? It's not another hoax?"
"I've seen the ruins of their cities, I've touched their dry bones, I've
turned the pages of their books...." Deez' eyes glowed, pulsating
eerily. "We found libraries, Ky, great volumes of writing, in languages
astonishingly varied and yet many that were swiftly encodable....
We've seen their machines and their houses, their working tools and
their play-things. We found their histories, records of their bodies and
voices, their manners and morals and sometimes mad behavior ...
Ky!" Deez said, his voice choked. "It'll take a hundred years to
understand all we've found!"
Devia rose quickly at the sound of his agitated voice, and went to his
side. "Try not to overexcite yourself," she said. "I know how you must
feel...."
"You can't. You can't possibly," Deez muttered. "To know the
overwhelming—greediness I felt—turned loose in an archeological
treasure house—I began waking up at night, sweating at the thought
that I might die before I had seen all there was to see on that planet,
read all its books, learned all its secrets—"
"And what did you learn?" Ky-Tann said.
Deez stood up slowly. He crossed the room to the view-glass, but
they knew his eyes looked out at nothing.
"I learned," he said bitterly, "that it was a world which deserved to
die."
The screen refocused. Now Woodward saw the injured "man" more
closely, saw the face blue in the moonlight, saw the lacerations on his
cheek and forehead. Then the "camera" traveled downwards,
towards the ribs, almost as if it were exploring the extent of the
injuries for diagnosis (later, he learned this was true).
"Well, come on," he said gruffly. He took his coat and instrument bag
from the hall closet, and shut the door on Panacea's hysteria. When
he was outside with his visitor, he saw his face for the first time. Then
he knew that the face he had seen in the tiny screen hadn't merely
looked blue in the moonlight. It was blue. A smoky, almost lavender
blue. Those who came to hate the aliens described it as purple, but
Borsu, his dying companion, and all the aliens who followed were
blue-skinned.
Woodward was in a fever of excitement by the time he reached the
scene of the crash, in the woods some five hundred yards from his
home. He understood its significance by now, knew that the fallen
vessel had been some kind of space craft, that its dual occupants
were visitors from another world. The fact that he had been first on
the scene thrilled him; the fact that he was a doctor, and could help,
gratified him.
But there was nothing in his black bag which could aid the crash
victim. His black-pupiled eyes rolled in the handsome blue head, and
his fine-boned blue hand reached for the touch of his companion's
fingers in a gesture of farewell. Then he was dead.
"I'm sorry," Woodward said. "Your friend is gone."
There was no grief evident in the placid blue face that looked down at
the body. Once again, the alien lifted the metal box and forced the
doctor's attention on the diamond-shaped screen.
The picture was that of Woodward's house.
"You want to come home with me?" Woodward said. Then he gasped
as he saw himself on the screen, entering the house, alone. Then he
realized that the scene typified a request—or a command. The man
from space wanted the doctor to return home.
"All right," he said reluctantly. "I'll go home, my friend. But I can tell
you right now—don't expect me to keep all this a secret."
He turned, and limped through the woods.
Woodward had just entered the house when the woods burst with
light, one incredible split-second of white fire that lit the world for
miles. It was the alien's funeral pyre.
Then the alien came back. When the doctor answered the door, he
strode into the room purposefully, and placed his strange visual aid
on a table top. He looked squarely at Woodward, and then placed a
finger in the center of his smooth blue forehead.
"Borsu," he said.
The doctor hesitated. Was the alien identifying himself by name?
Indicating himself by the most vital organ, his brain?
The doctor pointed to his own forehead.
"Carl," he said.
Then he looked about, and his eyes fell on the book he had been
reading. He picked it up, and tapped its cover.
"Book," he said.
The stranger took it from his hand.
"Book," he said. "Borsu, Carl. Book."
And the alien smiled.
The Secretary stood up, and came to the front of the desk to face the
doctor.
"Dr. Woodward," he said, "your story is an incredible one, but for the
moment I'll assume that everything you've said is true. Naturally,
visitors from another planet—who mean us no harm, and who can
impart knowledge to us—would be more than welcome on Earth.
They would be celebrated by every man of Science on this planet."
"Borsu understands that. But it's not the scientists whose welcome
they seek. It's the people of Earth."
"Doctor, I cannot speak for the people of Earth." Ridgemont frowned,
and rubbed his forehead. "Where would these aliens of yours want to
live? How would they live? Assimilated among the peoples of Earth?
In their own community, a nation reserved for them alone?"
"I can't say. These are questions to be decided by others—"
"Does this Borsu expect us to guarantee this welcome? To assure
them that they will be received with open arms? People are strange.
Once the initial excitement of their arrival is over, who can say how
ordinary citizens will react?"
"You must understand that they come in peace and friendship. They
are tired, weary of searching for a home. They need our help—"
"You say they're blue, doctor." Ridgemont's eyes were penetrating.
"Do you think the world can withstand still another race problem? Do
you?"
"I don't know," Woodward said miserably. "I'm only Borsu's friend, Mr.
Ridgemont, his emissary. I can't answer questions like this. I thought