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research-article2014
ISP0010.1177/0020764014537236International Journal of Social PsychiatryMajumder et al.

E CAMDEN SCHIZOPH

Article

International Journal of

‘This doctor, I not trust him, I’m not Social Psychiatry


2015, Vol. 61(2) 129­–136
© The Author(s) 2014
safe’: The perceptions of mental health Reprints and permissions:
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and services by unaccompanied refugee DOI: 10.1177/0020764014537236


isp.sagepub.com

adolescents

Pallab Majumder, Michelle O’Reilly, Khalid Karim and Panos


Vostanis

Abstract
Background: Unaccompanied refugee adolescents are a small but clinically significant group. This group is vulnerable
with physical and psychiatric needs which are often not met. There are several barriers to providing care for this group,
originating with the refugees but also due to service provision.
Aims: The aim of this research is to appreciate the views and perceptions that unaccompanied minors hold about
mental health and services.
Method: Fifteen unaccompanied adolescents engaged with mental health services were interviewed, and thematic
analysis was employed to explore relevant issues.
Discussion: Their views reflected a range of opinions on mental health and the treatments they received, but many held
negative attitudes toward mental health and had a lack of trust in services. This could be explained by their descriptions
of their experiences within their home country of psychiatric care, their experiences of being a refugee/asylum-seeker
or cultural differences.
Conclusion: We argue it is important to engage this group in the development of policy and practice in child mental
health, and in developing services.

Keywords
Refugee adolescents, mental health, stigma, qualitative, perceptions

Introduction
Globally, there are approximately 12 million refugees and of developing mental health problems due to their previ-
asylum-seekers, and in 2012, there were 193,510 refugees ous experiences (Fazel, Wheeler, & Danesh, 2005). They
and 17,170 asylum-seekers in the United Kingdom are likely to need mental health services (Huemer &
(United Nations High Commissioner for Refugees Vostanis, 2010), but struggle to get their needs met (Ellis,
(UNHCR, 2012)). It is recognised that approximately half Miller, Baldwin, & Abdi, 2011). While the reasons are
of the world’s refugees are adolescents, with unaccompa- unclear, several factors implicated include the communi-
nied refugee/asylum-seeking adolescents being defined as ties’ stigma of mental health (Lustig et al., 2004), their
those under the age of 18 years, separated from parents own attitudes and mistrust of authority (Ellis et al., 2011).
and attached to no significant adult (Thomas & Byford, Additionally, appropriate services may be unavailable or
2003). In 2011, 6% of UK applications were from unac- insufficient for their needs (Vostanis, 2010).
companied asylum-seeking adolescents (Refugee Council,
2012), with 11% being under the age of 14 years, 29%
aged 14–15 years and 60% aged 16–17 years (Home School of Medicine, Biological Sciences and Psychology, The Greenwood
Office, 2004). Hence, the majority of this group falls Institute, University of Leicester, Leicester, UK
within the adolescent range.
Corresponding author:
Our understanding of refugees and their service needs Michelle O’Reilly, The Greenwood Institute, University of Leicester,
remains fragmented due to a lack of evidence (Cox, Westcotes Drive, Leicester, LE3 0QU, UK.
2011), but research suggests that this group is at high risk Email: mjo14@le.ac.uk
130 International Journal of Social Psychiatry 61(2)

Table 1. Table of participants.

Number Gender Age in Nature of the mental health problem Country of Immigration
years origin status
1 M 18 Depression, Self-harm Afghanistan Refugee
2 M 15 PTSD, Anxiety Iran Asylum seeking
3 M 17 PTSD, Depression, Anxiety Afghanistan Asylum seeking
4 M 17 Self-harm, Adjustment reaction Afghanistan Refugee
5 (Declined) F 18 PTSD, Substance misuse Somalia Refugee
6 F 17 PTSD, Depression, Self-harm Eritrea Asylum seeking
7 M 15 Learning difficulties, Dissociative disorder, PTSD Afghanistan Asylum seeking
8 M 17 Psychosis Somalia Refugee
9 M 16 Self-harm, PTSD, Anxiety Afghanistan Asylum seeking
10 M 17 PTSD, Depression Afghanistan Refugee
11 M 16 Self-harm, Adjustment reaction Iran Refugee
12 M 17 Self-harm Afghanistan Asylum seeking
13 M 18 Depression, Adjustment reaction Afghanistan Asylum seeking
14 M 15 Depression, Self-harm, Substance misuse Afghanistan Asylum seeking
15 M 18 PTSD, Self-harm Afghanistan Refugee
16 M 18 PTSD, Impaired sleep Afghanistan Refugee

PTSD: posttraumatic stress disorder.

Unaccompanied asylum-seeking/refugee adolescents 2001). Therefore, refugee/asylum-seeking adolescents can


are an especially vulnerable group due to their social/per- affect service design and delivery, and this article seeks to
sonal circumstances and the lack of responsible adults explore their perspectives.
safeguarding their interests (Thomas & Byford, 2003).
Unaccompanied refugee adolescents, in particular, have
greater psychiatric morbidity than the general population
Methods
(Huemer et al., 2009), and up to 47% suffer severe symp- Participants
toms of anxiety, depression and posttraumatic stress
(Derluyn & Broekaert, 2007). This is important as the The adolescents and their carers were referred to a special-
cumulative exposure to traumatic events is associated with ist child and adolescent mental health service (CAMHS)
a range of negative psychological outcomes (Fazel, Reed, for ‘looked-after’ children following problems encoun-
Panter-Brick, & Stein, 2012; Thabet, Karim, & Vostanis, tered at ‘home’ or school. They were recruited through
2006), but despite this, the mental health trajectories of Local Authorities from Central England (Table 1). A total
this group remain diverse (Ellis et al., 2011). of 15 adolescents aged 15–18 years and their carers con-
The stress faced by these young people includes invol- sented (carers’ data represented elsewhere). Participants
untary displacement from their home (Ellis, Kia-Keating, were mostly male, typically from Afghanistan, but also
Yusef, Lincoln, & Nur, 2007) and can also be a conse- from Iran, Somalia and Eritrea. All had English as a sec-
quence of discrimination and resettlement (Montgomery ond language, and while an interpreter was available for
& Foldspang, 2008). A ‘triple stigma’ can arise from (1) all, most chose to speak for themselves.
associations with their refugee/asylum-seeking status, (2)
mental health problems and (3) resultant from their unac- Data collection
companied situation.
Understanding the perspective of unaccompanied refu- Face-to-face semi-structured interviews were audio-
gee/asylum-seeking adolescents with regard to services is recorded to allow an exploration of issues from the partici-
essential so that they can be tailored to meet their specific pant’s perspective. Interviewing continued until data
needs (Rutter, 2003). In contemporary practice, these saturation was achieved (O’Reilly & Parker, 2013a).
young people may receive the appropriate treatments, but
there are concerns that there is sometimes a failure to con-
sider the distress experienced and the adversities encoun-
Data analysis
tered (Ehnholt & Yule, 2006). Even within available Data were analysed using thematic analysis, allowing
services, treatments such as psychological therapies need meaning to be drawn from data through the emergence of
to be adapted, as application of an unaltered Western patterns (Boyatzis, 1998). Data were transcribed verbatim
model of treatment can be meaningless for them (Lynch, and independently coded to improve reliability. Categories
Majumder et al. 131

were examined systematically to identify core issues to their ill health to parts of their body, rather than directly to
address the aims of the research. Due to the language dif- emotions. The interviewer sought clarification, but he was
ficulties, some questions required rephrasing, and some clear that he had no mental health problem. This denial of
answers initially lacked coherence or were fragmented. mental health problems was also shared by Respondent 6:
Therefore, the representation of these answers as direct ‘I’m not mental problem’.
quotations is fragmented in places. In addition to using physical descriptions or denial,
some used terminology that would be considered politi-
cally incorrect in Western culture:
Ethics
Ethical approval was obtained through the National 5. I don’t want anyone say [A] is crazy. And I was very crazy
Research Ethics Service (NRES, UK). actually because I try twice kill myself, I try hung myself.
I cut myself, I really was crazy. (Respondent 11)

Analysis 6. I say no I don’t want to go hospital to be with the mentals


or that kind of people. (Respondent 1)
In relation to mental health, four themes emerged: descrip-
tions of mental health, mental health and asylum-seeking/
7. My friend tell me they can give you an injection and they
refugee status, experiences of using services and opinions send you in the crazy hospital. (Respondent 9)
of treatments.
Even when they acknowledged they had mental health
Theme 1: Descriptions of mental health problems, they still expressed negative attitudes towards
mental health, both for themselves and others. It is not
Adolescents’ definitions of mental health were variable. unusual for young people to use negative concepts to
Some were able to describe mental health along classical describe mental health (O’Reilly, Taylor, & Vostanis,
Western lines; however, others defined it differently, deny- 2009). This is demonstrated by the phrases ‘mentals’,
ing any problems, using a physical explanation of their ‘crazy’ or ‘that kind of people’, which together with the
symptoms or using fairly negative/pejorative language: concept of a ‘crazy hospital’ positions those with mental
illnesses as a socially excluded group. Evidently, the
1. 
Mental health, means when some people’s not happy.
(Respondent 6)
labelling of mental health problems from their perspective
is synonymous with being removed from society and
2. I think I was before going mental very in mind, my brain incarcerated.
wasn’t working seriously. (Respondent 13)
Theme 2: Mental health associated with
Although there were language difficulties, some respond-
asylum-seeking/refugee status
ents were able to relate their mental health directly to their
emotions, ‘not happy’. These descriptions were fairly clear Commonly, mental health problems were associated with
and would enable services to understand them. While their experiences of being asylum-seekers/refugees. These
some were able to clearly articulate their problems, others experiences tended to be grouped into their own personal
described their problems in more abstract ways. This may encounters, fears for their families’ welfare and worries
have been simply due to linguistic issues or may reflect about immigration status:
particular cultural views. Attributing the condition to the
‘mind’ or ‘brain’ allowed them make sense of their experi- 8. Cuz I had a difficult journey and you know for me it was
ences and demonstrates a significant degree of insight. difficult to cope or live alone. (Respondent 10)
Many of the adolescents denied having mental health
problems, even on direct questioning, despite engagement 9. I’m seventeen, I’m alone, I’m scared. (Respondent 14)
with services. These participants tended to describe physi-
cal symptoms as the cause: It is well documented that many asylum-seeking/refugee
young people encounter further trauma or abuse during
3. He says I’m not (.) I am ill because I’ve got a headache and their journey, as well as fears of deportation (Huemer &
my eyes hurt. (Respondent 7: interpreter) Vostanis, 2010). This has potential to impact on mental
health which is oriented to by the respondents who report
4. I don’t have any (.)uh (.) I mean I’m not um (.) mental that they are ‘alone’. In addition to these stresses, some
problem (.) I go (.) I saw the bad dream I didn’t sleep then respondents report having considerable anxiety about the
sometimes. (Respondent 6) welfare of their families/communities left behind:

These respondents are using alternative descriptions for 10. I’m here I don’t know my family about (.) worry about
their mental state. For example, Respondent 7 attributed my family. (Respondent 3)
132 International Journal of Social Psychiatry 61(2)

11. I was thinking about my family so that’s why I was sad. 16. This doctor, I not trust him, I’m not safe. (Respondent 8)
(Respondent 14)
17. I didn’t say to anything about my problem, I didn’t tell it
These responses are entirely appropriate to being unac- to anybody, you know, because I don’t trust anybody.
companied minors who have been separated from their (Respondent 9)
homes. Other respondents describe the hostile environ-
ments in the countries of origin, which contrasts with their Considering the traumatic events and possible exploitation
experience of those in the host country: of these young people, mistrust is entirely understandable
and continues to act as a protective mechanism. However,
12. And my mum feel now died, I feel she died, now is (?), this is another barrier for the adequate engagement with
now my mum is live ….. My brother died. He got gunshot, services. This mistrust can translate into feeling ‘not safe’.
someone kill him, my uncle dead. And my uncle dead, Mental health services perceive themselves as trustworthy,
three uncle dead, my father died. (Respondent 8) but trust is clearly an important issue for these young peo-
ple, and Respondent 16 reports that this is necessary if they
13. I see lots of problems in my age when I was in Afghanistan are to receive the help they need:
so from age ten I been seeing people die in front of me
I’ve seen people killing each other in front of me (.) dead 18. Trust is the most important thing, so what I would suggest
bodies in front of me. (Respondent 1) to [names service] is, I really appreciated their help, at
that time I did really needed help to be honest with you,
Although the experiences of these respondents have been ’cos I was in a very big mess …………… If you keep
extreme, it is difficult to ascertain the relative impact of things to yourself obviously it will never ever help you.
these events on their mental health or whether the subse- (Respondent 16)
quent dislocation and integration into a new environment
may have been more significant. Potentially, it is a cumu- It is perhaps unsurprising therefore that the general per-
lative effect and therefore care needs to be taken when spective of mental health services was negative with many
interpreting multiple layers of events. Most individuals children reporting that they did not like attending their
described multiple traumas which could have contributed appointments and that the interventions were unhelpful:
to their problems. Obviously, in addition to the dislocation
from their home country, there remains uncertainty around 19. When I’m in the meeting I’m like one minute is one hour
the immigration process which may affect their mental (.) I don’t like (laughs). (Respondent 3)
health.
20. I lost my family I had a lot of problem (.) ….. I was telling
her a lot of things ……… but she didn’t help me.
Theme 3: Experiences of using services (Respondent 6)
The respondents talked about their experiences of services
in the United Kingdom, but also care provided in their 21. They ask you one question, they ask you one word like
ten times, they keep asking. They know everything but
home country. Despite this engagement with UK services,
she just keep asking, I said I can’t do this. If you are keep
there was a general distrust of them. Some of this appears doing this … end of 2012 you’re going to kill me, I said
to have a cultural element feeling different from the host I’m going to do it. (Respondent 2)
population:
It is not uncommon for children generally to disengage
14. English people and doctor people, you don’t understand
with interventions or show some form of resistance to
me anything at all for me. (Respondent 8)
mental healthcare (O’Reilly & Parker, 2013b). This can be
problematic for service providers who are charged with
15. Because in here everything is different in England. It’s
like England is very healthy for everybody, like hospitals, safeguarding and promoting mental well-being in these
doctor, family, anyone but, no, in Iran I don’t think is like populations. This is further compounded by the feeling
someone like, if I have problem, I don’t think it’s like that services fail in their duty to provide help for these
someone like help me, is only my parent or someone else. individuals. Obviously, care needs to be taken when work-
(Respondent 11) ing with these young people, as their views about mental
health services may only worsen if they feel their problems
Both respondents felt that the cultural differences are becoming more intense. These young people have
impacted on services’ understanding of them, which responded in a negative way to what is seen in contempo-
may have implications in creating an optimal environ- rary practice which includes a full assessment and clarifi-
ment for any service delivery. Complicating matters fur- cation of the problems in detail. This by definition requires
ther appear to be a more fundamental distrust of health a great deal of questioning and characterises psychiatric
services: practice. Although the respondents typically were negative
Majumder et al. 133

about engaging with services and tended to dislike attend- go through, you know, straight away but in England you
ing, some were able to see benefits: don’t pay. (Respondent 12)

22. Well coming here the doctor helped me and the doctor tell The descriptions of the hospital being ‘like a prison’ and
me the reason (.) I was happy about the reason that is the the comparison of the environment to ‘cage fighting’ is an
most important thing for me. (Respondent 9) unpleasant visual image. The experience is that the label of
mental illness invites mockery or incarceration. It is unsur-
23. He says I’ve seen Doctor [X] twice (.) he has been very prising, therefore, that young people feel uncomfortable
helpful (.) he always help us (.) he’s thanking him. admitting they have mental health issues or engaging with
(Respondent 7: interpreter) treatments. The State-funded services available in the
United Kingdom contrast considerably with the descrip-
This does, however, have to be contextualised against the tions of healthcare in Afghanistan. The economic aspects
rest of the narratives in these interviews where the indi- of healthcare limit what available resources are accessible
viduals, particularly Respondent 7, denied having any by the population, with health declining when it cannot be
mental health difficulties but appears thankful that he has afforded: ‘sleep on the street and go crazy’. Even if initial
been helped. There are clearly some contradictions in their treatment is possible, the ongoing costs become unviable.
accounts of their involvement with services. To contextu-
alise the experiences within a Western health service, it is
useful to explore their experiences of services in the coun- Theme 4: Opinions of treatments
try of origin. In addition to the views expressed regarding the cultural
The respondents were able to describe what their expe- background and services provided within the United
riences or perceptions of mental health services were in Kingdom, the unaccompanied adolescents did have views
their home countries. In general, the adolescents described on the actual treatments that they received. The general
health services as limited or absent. There was also distrust treatment modality within CAMHS is psychotherapeutic
of the professionals involved in these services, which may in nature relying on talk, with medication utilised when
partially account for the limited trust of refugee services: this approach has failed, the symptoms are severe or when
the condition responds only to medication. This therapeu-
24. They different yeah (.) they is different (.) no-one like a tic approach appeared very different to the a priori expec-
feel sick or something in my country give a tablet or tations of the young people. Three broad issues emerged:
something. (Respondent 4)
views on talking therapies, risks of re-traumatisation and
medication:
25. No CAMHS there (.) there is a hospital if he there is a you
know some people trust that some people not trust that.
29. CAMHS is somebody talking to you on that, now I know
(Respondent 9)
what it is, somebody talking to you, if you have any
problem, you can talk to the doctor. (Respondent 9)
The sample represents different countries of origin with
different notions of mental health and treatments. In addi- 30. 
That doesn’t helps me (.) that makes me more hard
tion to not trusting services or experiencing treatment lack- because um the all the time I was talking about the past (.)
ing in any psychological support, one respondent described so every time I went there (.) reminding me after I went
an unpalatable view of their experience of a mental health home again (.) same depression and same problems.
hospital, and another talked about the limited knowledge (Respondent 1)
that appears to exist about mental health:
Opinions on talking therapies were mixed with some
26. I went to see one hospital in Afghanistan I was really appreciating the value of therapy, while others are more
young (.) I was (.) they’re usually kids going to see negative about this modality. These negative views are
mentals problem (.) mental people (.) there’s just like a particularly relevant as many of the adolescents reported
prison they put in there and they’re just inside the cage that reliving the experiences during treatment opened them
fighting with others (.) they’re just like making fun of
to re-traumatisation, making their problems feel worse.
people. (Respondent 1)
Although this may be distressing for the young people,
27. Yeah, in Afghanistan in winter if you got money, you go
sometimes this is part of the therapeutic process which is
to hospital, if you don’t have money then go on street, something that needs explaining to them. However, in
sleep on street. Sleep on street and go crazy, innit. addition to this, it should be appreciated that their immi-
(Respondent 4) gration status and unaccompanied position may reinforce
their feelings of distress, thus affecting the therapy.
28. But there’s one thing is good about Afghanistan is the Given their viewpoints on mental health problems, it is
service is good if you’ve got the money, everything will common for the respondents to request medication for
134 International Journal of Social Psychiatry 61(2)

psychiatric conditions. Some respondents saw the drug et al., 2011). Consequently, mental health and legal issues
treatments as a positive aspect of their care: can be perceived as intertwined, despite the differences
being explained to them. In our sample, the level of trust
31. I have medication, not medication that time, when you did not appear dependent upon their immigration status.
have medication get better. (Respondent 8) However, this was a limited cross-section of this popula-
tion. Thus, the mistrust of strangers could be viewed as
32. Giving me some medicines to keep my low up so that was protective, originating from their adverse experiences or
a bit helping me (.) ……….. so I went back home (.) take culture. Trust is inherently a relational concept, which lies
the medicines and took it and I felt back normal.
between people and events, people and organisations, and
(Respondent 1)
people (Gilson, 2003). Ultimately, therefore, trust involves
a degree of risk derived from the individual’s uncertainty
The full quotation from Respondent 1 described an inci-
of the intentions, motives and future actions of others on
dent where he forgot to take medication for a week and
whom they are dependent (Kramer, 1999). Our respond-
the subsequent negative effects. This illustrated a positive
ents reported finding the host country unfamiliar, which
view of medication as it made him ‘normal’. However,
can affect trust, thus creating a further impediment to
many adolescents failed to understand the reasons for
engagement. Furthermore, the unfamiliar language and
medication, and others sought it as treatment, particularly
limited independent communication may have had some
if they thought their symptoms had a physical origin. This
effect. In many cultures, there is a mistrust of people out-
lack of clarity does raise issues of informed consent which
side of the family unit, and their current situation pre-
needs to be considered carefully in practice.
cludes them from accessing the support of their families,
which they may have accessed if distressed in their home
country. Although not universal, some adolescents in
Discussion Western cultures have also been shown to lack trust in
Conflict in many parts of the world has led to an increase services which would support or enhance their mental
in refugees. Increased recognition that refugees have sig- health (Flisher et al., 1997; Wilson & Deane, 2001). The
nificant physical health, social and mental health needs views of the unaccompanied minors should be seen in this
has meant a development of services for them. Services context; however, their mistrust does seem to be of a
need to be appropriate to the requirements of this popula- greater degree.
tion and recognise their specific requirements. The voices In child mental health, the predominant modality of
of unaccompanied minors need to be acknowledged in treatment remains the ‘talking’ therapies, and alongside
these developments as they are a particularly vulnerable these modalities has been an increased use of medication,
group. despite their effectiveness not being fully evaluated
An understanding of the concept of mental health is (Lustig et al., 2004). Many of the respondents found
often essential in ensuring engagement with treatment. engaging with talking treatment difficult, and they deemed
These concepts were unfamiliar to some of these adoles- pharmacological treatments more acceptable. This may
cents, and many reported negative views of mental health. reflect cultural experiences, where mental healthcare was
Nonetheless, their negative perceptions of mental health limited or absent and treatment was different or a different
are not entirely different from adolescents living in understanding of illness. Explanatory models of illness
Western cultures (O’Reilly et al., 2009). These adoles- have a very strong cultural basis, and while talking thera-
cents either denied them or reconstituted them as physical pies have a well-established framework within a
problems. The participant’s understanding did appear to Westernised healthcare system, this is not universal glob-
be concomitant with their age; however, there were a ally. Talking therapies can also be challenging, due to lin-
number of influences upon this. This may be a reflection guistic limitations (even when using interpreters) due to
of their language difficulties (Lustig et al., 2004), may be the loss of the subtle nuances of communication.
an echo of the cultural attitudes of their home environ- Consequently, psychiatric intervention may be deferred
ment (Lynch, 2001) or their experiences of services back until their language has improved (Huemer & Vostanis,
home. Describing mental health is notoriously difficult, 2010). This is a decision that needs to be balanced against
and most adolescents typically think in terms of mental the risk. Even with appropriate medication, some respond-
illness, rather than being mentally healthy (Svirydzenka, ents lacked clarity regarding their treatment. This does
Bone, & Dogra, 2014). raise concerns around informed consent as they should
While there were reported positive experiences, there understand their treatments.
was general mistrust of services, particularly doctors. Although the unaccompanied adolescents were either
These adolescents appeared cautious of services for sev- of refugee status or asylum-seeking, they had been within
eral reasons, including professionals identified as repre- the United Kingdom for different lengths of time, but they
sentatives of the state, and/or fear of deportation (Ellis had all been under a specialist mental health service for at
Majumder et al. 135

least 6 months. It is difficult to quantify the effects of has transferability. At present, there is limited published
acculturation (the process of cultural change), assimilation literature on the perceptions of mental health services in
(adaption of cultural attitudes of the prevailing group) and British adolescence, particularly in relation to issues such
peer group influences on these young people and therefore as trust, and further work would be beneficial. Larger
whether this process had influenced their understanding of quantitative studies may help to inform service design or
the Western health model. This variability does obviously government policy with the aim of developing interven-
pose challenges for services, which supports the need for tions which will facilitate care.
specialist clinicians who understand these needs.
Fortunately, in this situation, the assessments and therapies Acknowledgements
were provided by such professionals. We would like to thank the young people who consented to par-
The findings from this study have implications for eth- ticipate in this study. We also extend thanks to the social workers
ics and services. Services should have the flexibility and and clinical professionals who made access possible. Finally, we
accessibility to engage the child, and mental health input thank Claire Bone for her comments on earlier drafts.
should always be integrated with welfare, education and
physical health services, thus encouraging consistency
Funding
and acknowledging the ‘therapeutic’ role of those
involved. Their access and engagement can be also This research received no specific grant from any funding agency
improved by utilising the mediation of people who have in the public, commercial or not-for-profit sectors.
already gained their trust (Davies & Webb, 2000).
Importantly, in addition to history of trauma, the impact of References
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