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Community Leaders' Perceptions of Depression and The Perceived Barriers in Seeking Mental Health Services For Older Korean Americans
Community Leaders' Perceptions of Depression and The Perceived Barriers in Seeking Mental Health Services For Older Korean Americans
To cite this article: Eunhye Kim, Tiffany R. Washington & Rosalyn Denise Campbell (2022)
Community leaders’ perceptions of depression and the perceived barriers in seeking mental
health services for older Korean Americans, Ethnicity & Health, 27:7, 1483-1500, DOI:
10.1080/13557858.2021.1910627
a
Department of Social Science, Augusta University, Augusta, GA, USA; bSchool of Social Work, University of
Georgia, Athens, GA, USA
CONTACT Eunhye Kim ekim1@augusta.edu Department of Social Science, Augusta University, 1120 15th St,
AH223, Augusta, GA 30912, USA
© 2021 Informa UK Limited, trading as Taylor & Francis Group
1484 E. KIM ET AL.
Introduction
Although depression is not a normal part of aging (Alexopoulos et al. 2001), it is a preva-
lent mood disorder among older adults (Valiengo, Stella, and Forlenza 2016). This is pro-
blematic because depression in later life negatively impacts one’s quality of life by
increasing risk of cognitive decline, dementia, and suicide (Brailean et al. 2016). As a con-
sequence, it increases the likelihood of requiring institutional services (Harris 2007) and
mortality (Bogner et al. 2012). Disparities in mental health still remain a large concern in
our society, particularly in older minority populations with mental health problems
(Abe-Kim et al. 2007; Centers for Disease Control and Prevention 2012). Depressive
symptoms are also more prevalent among ethnic minority populations than non-Hispa-
nic Whites (Kuo, Chong, and Joseph 2008; Sue et al. 2012). Ethnic minority populations
consistently have substantially unmet needs for mental health services (Jang et al. 2019;
Barrio et al. 2008), especially older Asian Americans.
deeper understanding of the role of the community and its leaders on older Korean
Americans’ use of mental health services.
Methods
This study employs qualitative methodology to explore the community leaders’ perspec-
tives and experiences regarding depression among older Korean Americans. Specifically,
this study uses the descriptive approach in which participants’ responses were interpreted
organically with attention to their voice and contexts. This approach stresses the impor-
tance of understanding less-understood populations. Ethical approval was obtained by
1486 E. KIM ET AL.
the researcher’s university Institutional Review Board (IRB). Participants received a $30
gift card as compensation at the end of the interview.
Data collection
In-depth interviews were the data collection method of choice because they are particu-
larly effective in allowing Asian American participants to freely express opinions in their
own words without the restriction of close-ended data collection instruments (Iwamasa
and Sorocco 2002). To further encourage this freedom of expression, all interviews were
conducted in Korean, as interviewing the community leaders in their first language helps
the researcher to explore in greater depth the experiences of participants. The interviews
were conducted at a place and time that was convenient for the participants, and the
audio-recorded interviews were transcribed verbatim in Korean.
Data analysis
The first author conducted a thematic analysis on the interview transcriptions using
NVivo 12. Thematic analysis allows the researcher to identify, refine, and discover
themes within the data. The first author followed six phases of the analytical process
developed by Braun and Clarke (2006): (1) read the interview transcripts thoroughly
to familiarize oneself with data, (2) generate preliminary codes, (3) sort similar codes
and construct themes, (4) review the themes, selecting those that best reflect the data,
(5) define and refine themes so that they capture the essence of each theme and the
aspect of the data captured, and (6) report the results. In the process of transcription orig-
inal meaning and the nuance of words can be easily lost (Smith, Chen, and Liu 2008). To
maintain the participants’ own nuances and meaning in translation in qualitative studies,
interviews were transcribed verbatim first in Korean and used for data analysis; specific
paragraphs of Korean transcription were translated later to English to present direct quo-
tations. The first author then worked with bilingual social workers and native speakers of
ETHNICITY & HEALTH 1487
English to ensure translations were understandable in English, while retaining their orig-
inal nuance and meaning.
Results
Sample characteristics
Twelve participants were interviewed to better understand community leaders’ perspec-
tives about depression and barriers to service use among older Korean Americans. To
represent a diverse group of voices of community leaders who serve older Korean
adults, participants were recruited from three main services: five participants from
healthcare agencies, four participants from community service agencies, and three par-
ticipants from senior academic centers that are commonly provided by religious organ-
izations. Participants ranged in age from 40 to 81 years, with a mean age of 61.3 years.
Almost 60% of participants identified as male, and 40% as female. A majority of partici-
pants had at least a bachelor’s level education, and 75% of them earned their final degree
in the United States. All participants were born in South Korea and preferred to use the
Korean language as their primary language. On average, they had resided in the U.S. for
30.6 years, with a range from 12 to 46 years.
In the aging process, due to hormone change, every older adult can have depression. I
recommend to them that they simply accept their depressed feelings and consider them
as friends. Sadness and depressed feelings are a part of our life. Older adults often feel fru-
strated because they cannot achieve what they plan or want. So they need to get used to
losing their abilities and giving up and also accept that depression is a normal part of
getting older. (Participant 6)
Prevalence of depression among older Korean Americans. Most community leaders per-
ceive that depression among older Korean Americans is common and prevalent. Leaders
demonstrate a lack of awareness of depression:
Older adults do not express that they are depressed, but I know a lot of older Koreans suffer
from depression in this area. Depression among older adults is fairly common in Korean
communities. (Participant 5)
Another leader who works at the healthcare facilities stated that they observed high
prevalence of depression, but the clients tend to strongly deny and do not admit they
have depression:
Depression among older adults is pretty common in Korean communities. Almost 60 to
70% of older adults in my agency suffer from depression. They are slightly aware of
their depression, but they never admit they are depressed. They are taking an anti-
depressant pill, but they believe that they are taking it for their general health, not
for mental health problems. Older adults do not believe they have depression. (Partici-
pant 12)
Lack of experience with depression in older adults. Most community leaders fre-
quently interact with older Korean Americans through their work and social activities
and also acknowledge the severity of depression among older Korean Americans.
However, community leaders who primarily serve older adults in community service
programs stated that they had not seen many people suffer from depression in these
settings:
I have committed this agency to serve Koreans for over ten years. I haven’t seen anyone who
suffers from depression in our program. These people do not come out to seek help, instead
staying at home. We have provided free counseling for people who suffer from mental health
issues, but no one came to here to use the services. (Participant 3)
ETHNICITY & HEALTH 1489
Another participant stated the lack of contact with older adults with depression
because of the characteristics of their services:
I know many older adults suffer from depression and they need help. We need to go to out-
reach to support them; however, there is no channel to contact those people unless someone
refers them to us. Actually, it is hard to meet older adults with depression because our
agency provides services for active adults. (Participant 8)
Another participant expressed that she had depression for six months because of her
spouse’s sudden death, and it was helpful for understanding how people with depression
survive from it:
I never understood why people with depression struggled to such an extent to overcome it
before I had it. I had depression for six months after my husband passed away. I lost my
appetite, it was hard to sleep, and all I did was lay down all day. I didn’t have energy to
do anything. (Participant 9)
Confusion with other diseases. Participants confused depression with dementia and
expressed increasing interest in dementia among older adults. A participant expressed:
I think if depressive symptoms become severe, it develops into dementia. Lethargy and loss
of memory can be symptoms of Parkinson’s disease as well. All these types of conditions
begin with depression. (Participant 6)
Another participant stated the strong connection between depression with dementia
and an increasing interest in dementia:
When people stay alone at home without working, they become absorbed in oneself and
have delusions and then cannot get restful sleep at night. When those symptoms become
severe, it is a beginning sign of depression. So they become more isolated and have demen-
tia. Many older adults are interested in dementia, so I also provide information regarding
dementia. (Participant 1)
In addition, participants were aware of the need for dementia treatment in Korean
communities and expressed the importance of support for people with dementia:
Depression is a problem among older Korean Americans. However, many older adults have
dementia, and older adults are more interested in preventing it. The president of the senior
academic program maintained his position over 20 years and awarded presidential recog-
nitions, but he cannot come to this program anymore because of his dementia. I do not
know anyone who suffers from depression, but I know many people with dementia. We
need to pay more attention to dementia. (Participant 5)
1490 E. KIM ET AL.
Another participant stated that older Korean Americans who immigrated later in life
struggle to make this transition, which results in isolation:
I guess there are many older Korean Americans suffering from depression. Many older
Korean Americans came to the United States to reunite with their adult children. In the
case of immigrating to the U.S. over 60 years old, their lives are limited to home or their
families, so they only take care of their grandchildren and do some house chores. When
grandchildren grow up and do not need care from their grandparents, their adult children
let their parents live independently. Thus, many older adults live alone in senior apartments.
They think they are abandoned by their children and have chronic illnesses, so they become
depressed. (Participant 6)
Lack of family support. There is strong emphasis on the importance of family among
Korean Americans. Participants believe that family members’ care is important and lack
of care from their children contributes to depression. A participant stated the importance
of family support:
I think family members have a responsibility to take care of their families. I don’t understand
how their family members let them suffer from depression. Family members need to express
how much they care about them and give them more attention. (Participant 5)
ETHNICITY & HEALTH 1491
Another participant valued filial piety and said that lack care from their children con-
tributes to depression:
Everyone can be depressed, particularly because depression can often come from loneliness.
Older adults are less likely to be depressed when their children live to close to them and they
get support from them. On the other hand, older adults living alone tend to feel more lonely,
so they try to resolve it by drinking alcohol, smoking or crying at night. Older adults who are
able to come to an adult daycare center are much better, but the other older adults, who
couldn’t come, tend to be more severe in their symptoms and struggle to manage their
depression. (Participant 12)
Another participant stated that a lack of expressed feeling in Korean culture is aggra-
vated through the challenge of immigrant life:
I think Korean women suffer from depression more than other populations because they
have been influenced by Confucianism and always oppressed by others. Korean culture
pushes them to sacrifice their lives to support their husband and children and even
society. Communication is critical to them to express their repressed feelings; however,
they may feel frustrated because they cannot communicate with their adult children and
grandchildren due to language barriers. (Participant 4)
Attributing blame to elderly personality. Participants expressed that older adults with
depression have personality problems. They believe depression is caused by individual
personality and can be overcome by changing their attitudes:
The problem is older adults do not admit they are old. They also do not listen to other’s
advice. They need to change their mindset. However, they are so stubborn and don’t
want to talk with others. Older adults need to change themselves to treat the depression.
If they do not have an open mind to others, they cannot change nor overcome depression.
(Participant 1)
Symptoms of depression
Common symptoms of depression in older adults include experiencing depressed mood
or loss of interest in most activities for at least two weeks . However, most participants
connect depressive symptoms to negative behaviors.
1492 E. KIM ET AL.
Negative bias toward depressive symptoms. Most participants view depressive symp-
toms and behaviors negatively. They feel that older adults with depression show negative
behaviors against others and struggle to interact well with others:
People who are suffering depression do not trust others, are extremely self-defensive, protect
themselves, do not get along with others and are agitated. They drink a lot of alcohol to over-
come depression. They are hard to make eye contact with and shake their body while they
are talking. (Participant 12)
However, one participant expressed that two key factors can lead to the need to see a
doctor:
As I know, symptoms of depression vary, even the causing factors. Most common symptoms
are difficulty sleeping, experiencing unexplained physical pain, and having extreme
emotional swings, and so on. They need to see a doctor if these symptoms last over two
or three weeks (Participant 8).
Another participant stated that in case of acknowledging their illness, older Koreans
do not admit that they feel depressed or have symptoms of depression:
Almost all older adults deny or do not admit they are depressed. Korean people believe when
people see psychiatric doctors or take pills regarding mental illness, they think they are a
crazy person. Among 10, only one or two older adults talk to us about their depression.
Sometimes, they will joke and say, ‘I’m depressed,’ but they are hardly aware that it is
severe, and they need to see a doctor or take pills to treat it because of the stigma attached
to mental illness. (Participant 6)
Stigma with depression. Stigma is strongly attached to mental illness in Korean culture.
Stigma along with pride prevent older Korean Americans from admitting their struggles
with depression:
Older Koreans believe that depression is a sort of severe psychiatric problem and feel embar-
rassed to tell someone their illness because of the stigma associated with depression. They
are the first generation of immigrants and have worked so hard to settle down in the U.S.
ETHNICITY & HEALTH 1493
Some older adults did not graduate from elementary school and are sensitive to the thought
of being looked down upon by others. They do not admit or disclose their struggles with
anyone because having mental health problems can be stigmatized and cause one to be
looked down upon by others. (Participant 12)
Another participant expressed that older adults’ perception regarding mental illness is
strongly stigmatized and that it is hard to refer them to services:
I think our understanding of depression and psychiatrists is quite different from the older
adults’ understanding. We think that a psychiatrist is another type of doctor; however, older
adults believe they only see the psychiatrist when they are really crazy or maniacs. It is hard
to refer them directly to the doctor, so I usually talk with their adult children first. (Partici-
pant 11)
Hiding depression. Most participants expressed that even though some older adults are
aware of their illness, they do not seek help or express their depression:
Older adults need to admit they are depressed. Older adults heavily rely on antidepressants.
However, they tend to refuse to talk about or express their depression. Older adults experi-
encing depression come to me and talk a little about their depression but told me ‘It’s secret
and please do not to talk to anyone about my illness’. (Participant 10)
Another participant stated that Korean culture prevented them from seeking help:
Saving face is dominant in Korean culture. People with depression never express their
depression nor admit it. These people do not seek help from professionals and do not
openly talk about depression. (Participant 9)
Lack of professionals with their native language. Given the cultural stigma against
depression, Korean professionals need to support older adults with depression. Partici-
pants stated that there are no mental health professionals who speak Korean and
deeply understand Korean cultures in their communities. The scarcity of the needed pro-
fessionals was expressed:
I know many mental health clinics and treatment centers that serve for native speakers, not
for Korean speakers. If they want to see a doctor, they need to bring a translator to under-
stand English. It is hard to take a translator whenever they see the doctor. There are subtle
gaps in meaning and understanding symptoms and illness between doctors and older adults
because of different cultures and language barriers. Even their children cannot take their
parents to the clinic because of their work. (Participant 12)
Another participant stated that they do not prefer to see a doctor in treating
depression because of the lack of availability of Korean doctors in their communities:
I know this community well, so I would not even consider seeing Korean professionals
because there are no Korean mental health professionals or doctors. I would rather to
seek help from a religious organization. It will be extremely hard to get support or treatment
1494 E. KIM ET AL.
because there is a lack of community resources regarding mental health treatment or pro-
grams. I would seek help, but I cannot get help from professionals in Korean communities in
my native language. (Participant 8)
Discussion
This study examined community leaders’ perceptions of depression and the barriers in
seeking help for mental health services among older Korean Americans. Four emerging
themes include depression as seen by Korean communities, causes of depression in a
Korean context, symptoms of depression, and barriers to professional help-seeking are
overlapping and thus are discussed together.
Beliefs and expression about mental illness vary based on a person’s social and cultural
environment (Kleinman 1980; Kirmayer 2001). Korean community leaders had recog-
nized the severity and prevalence of depression among older Korean Americans;
however, their understanding of the severity of depression was inconsistent with clinical
criteria. The leaders understood the socio-cultural contexts contributing to the experi-
ence of depression in older Korean Americans (Lee, Moon, and Knight 2005), but
lacked knowledge about the clinical manifestations of depression. This is particularly
concerning because undetected or misdiagnosed depression in older adults may
prolong feelings of hopelessness, fatigue, or other common symptoms. The community
leaders, like many older Korean Americans, believed that depression in late life is a
natural process of aging, and older adults should accept it as a chronic illness or a part
of their lives (Jang, Gum, and Chiriboga 2011). Indeed, older adults have an increased
risk for depression, but it is not an automatic consequence of aging (Centers for
Disease Control and Prevention 2017). This lack of recognition of depression as a
mental health problem is concerning because the leaders frequently interact with older
Korean Americans through their services and communities, but there are likely missed
opportunities to address depression. It is good that leaders acknowledge that older
Korean Americans are susceptible to having poor mental health issues because of
losing independence in the immigration process because the majority of older Korean
Americans lived alone in low-income. Older Korean Americans immigrate to the U.S.
to reunite with their children, but in the period of adjustment, they recognize their
dependency brings a burden to their children, causing them to decide to live alone. Find-
ings of this study showed that community leaders believed that isolation and losing inde-
pendence are two of the primary reasons older Korean Americans experience depression.
Living alone, older adults are likely to have higher rates of depression (Lee and Holm
2011; Park et al. 2013). In addition, findings revealed that older adults have a lack of
support from their adult children and tend to have family conflict. Older adults living
with their children also experience disruption of relationships and are likely to have
emotional stress because of the conflict of traditional family values (Lee 2007; Lee and
Holm 2011). Similar to previous studies, the leaders believed that older adults having
family conflict is a substantial factor in having depression among older Korean Ameri-
cans (Guo and Stensland 2018; Chung, Jeon, and Song 2016; Lee, Moon, and Knight
2005). Furthermore, the community leaders believed that emotional repression due to
patriarchal gender roles is a profound reason for depression among older Korean Amer-
icans (Jang, Kim, and Chiriboga 2011).
ETHNICITY & HEALTH 1495
Community leaders have knowledge about depression from a cultural perspective, but
lacked recognition of it as a disease to be treated medically in spite of their high awareness
of the prevalence of depression. Knowledge of mental health is strongly related to the use
of mental health services among older Korean Americans (Kim et al. 2017). The findings
showed that leaders heavily rely on personal experiences to understand depression. Con-
sistent with previous literature, older adults with higher depression literacy obtain
knowledge through informal methods (Baird et al. 2019). Regardless of their fields in pro-
viding services, the leaders have not had any educational training regarding mental
illness. All community leaders offer services to older adults, but they had not participated
or had mental illness training, nor are they seeking educational training.
In addition, the findings showed that the leaders wanted to provide general health
information for older adults and were less likely to discuss depression or other mental
health issues. Community leaders perceived that hiding mental illness is prevalent in
Korean communities because of shame and cultural stigma. These cultural stigmas nega-
tively influence people with mental illness from seeking help or using mental health ser-
vices (Park et al. 2013, 2015). The findings of this study indicated that the leaders also
have negative attitudes toward older adults with depression. Regarding the symptoms
of depression, the leaders believed that depressed older adults have personality problems
such as distrust, self-defensive tendencies, and anger management issues. Thus, the
leaders believed that older adults should change their personalities themselves to cope
with depression. Such negative attitudes and perceived cultural stigma not only
prevent the leaders from providing or referring older adults with depression to mental
health services but also make older adults reluctant to consult or seek help from pro-
fessionals. As community leaders are also service providers, they are the first point of
contact for many in the target population. However, due to the prevalence of stigma
in their population regarding mental health and previous negative experiences with care-
givers and the older adults, the leaders are more likely to avoid open discussion and
support for mental healthcare. It is important to help community leaders overcome
stigma and provide appropriate support for older adults.
Furthermore, the leaders also pointed out the low awareness of depression among
older adults is prevalent. Similar to previous studies, low level of awareness of
depression and failure to perceive the need for professional help prevent older
adults from using mental health services (Lee-Tauler et al. 2016; Park et al. 2013).
In this regard, the findings suggest that providing culturally tailored education about
depression for community leaders on how to communicate with older adults about
mental health problems is essential. In addition, offering training on ways to incorpor-
ate information about depression into their programs providing general health infor-
mation is effective by decreasing the avoidance of discussing mental health
problems. Lastly, community leaders addressed the lack of bilingual and culturally
competent professionals in their communities. The findings indicated that an increase
in Korean and Korean-language professionals may not overcome the deeply rooted cul-
tural differences and attitudes that currently discourage usage of mental health services.
In this regard, these results suggest that community-based interventions are vital for
older adults and educational sessions not only for the community leaders and older
adults are essential to increase the understanding of depression. In addition, local
states and health care providers need to collaborate with community leaders by
1496 E. KIM ET AL.
Conclusion
This study’s findings expand our understanding of how both older Korean Americans
and their community leaders share the lack of knowledge of mental illness and the
resources needed to address mental health problems. Community leaders also share
the same deep-rooted cultural stigmas on depression, leading them to fail to advocate
for older Korean Americans with depression or mental illness. Our findings on
ETHNICITY & HEALTH 1497
Acknowledgements
This work was supported by a graduate grant from the University of Georgia Dean’s Award.
Disclosure statement
No potential conflict of interest was reported by the author(s).
Funding
This work was supported by a graduate grant from the University of Georgia Dean’s Award.
ORCID
Rosalyn Denise Campbell http://orcid.org/0000-0001-6251-841X
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