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Developing and Implementing Early Intervention Plans For Children With Autism Spectrum Disorders
Developing and Implementing Early Intervention Plans For Children With Autism Spectrum Disorders
Developing and Implementing Early Intervention Plans For Children With Autism Spectrum Disorders
ABSTRACT
Learning Outcomes: As a result of this activity, the reader will be able to (1) define a routines-based interview
and describe its purpose; (2) define three types of support speech-language pathologists provide families during
home visits; (3) define three alternative domains to address when implementing a child’s early intervention
program; and (4) list three strategies teams could use to evaluate the effectiveness of an early intervention plan.
Language, Social, and Cognitive Communication in Children with Autism Spectrum Disorders; Editors in Chief, Audrey
L. Holland, Ph.D., and Nan Bernstein Ratner, Ed.D.; Guest Editor, Patricia A. Prelock, Ph.D., CCC-SLP. Seminars in
Speech and Language, volume 27, number 1, 2006. Address for correspondence and reprint requests: Vanessa Khouri Smith,
Visiting Nurse Association of Chittenden and Grand Isle Counties, 1110 Prim Road, Suite 1, Colchester, VT 05446. E-
mail: zekesmith@tds.net. 1Speech-Language Pathologist, Visiting Nurse Association of Chittenden and Grand Isle
Counties, Colchester, Vermont; 2Developmental Educator, Parent to Parent of Vermont, Williston, Vermont. Copyright
# 2006 by Thieme Medical Publishers, Inc., 333 Seventh Avenue, New York, NY 10001, USA. Tel: +1(212) 584-4662.
0734-0478,p;2006,27,01,010,020,ftx,en;ssl00256x.
10
EARLY INTERVENTION SERVICES FOR ASD/SMITH, DILLENBECK 11
intensified as the prevalence of the disorder underscores the need for effective teaming
increases and professionals and families recog- among professionals to coordinate the evalua-
nize that early intervention supports the long- tion, develop and implement an early interven-
term outcomes for these children. Children tion plan, and evaluate the plan’s success. Team
suspected of having ASD are now being re- approaches reflect best intervention practices
ferred for evaluation at earlier ages, and ASD for children with ASD and their families8,9
can be reliably diagnosed by 2 years of age.2,3 and involve collaboration among individuals
When a child is diagnosed at this young age, who establish a joint purpose and shared goals
the delivery of early intervention services can and are organized to implement these goals.
lead to an increase in social engagement and
language use for the child4 and satisfaction with
family routines for the parents. The Central Role of the SLP
The efficacy of early intervention for chil- As the team forms and identifies child and
dren with differences or delays in development family outcomes, the SLP often assumes a
is well documented5 and early intervention has
early intervention team remain small as she the child and address the needs and concerns
was concerned about being pulled in many of the family.
directions and did not want to be drawn into
additional relationships with different service
providers. Fortunately, the team’s SLP had DESIGNING AND IMPLEMENTING
training and experience with feeding issues in THE EARLY INTERVENTION PLAN
young children. Similarly, the team’s DE was In a review of intervention programs, commu-
well versed in community resources and could nication has been identified as one of the
connect the family with child-care options and primary areas of intervention for children with
sign language classes. Savannah had no cur- ASD.6 When working with families and teams
rent medical conditions. The team selected to develop the early intervention plan, SLPs
the SLP and DE to support the family in should take into consideration the guidelines
designing the early intervention program for characteristic of effective interventions for
Savannah, with the DE to provide both spe- young children presented by the National
Research Council.2 These guidelines include:
Table 1 Process for Designing and Implementing the Early Intervention Plan
Develop the early intervention team.
Develop a comprehensive understanding of the child and family’s strengths and challenges by interviewing
the family about their day-to-day life.
Design early intervention goals based on family priorities and specific daily routines at home and/or day care.
Focus on three alternative domains: engagement, independence, and social relationships within specific
daily routines.
Provide support-based home visits.
Evaluate plan and strategies and revise as needed.
Develop transition plan.
teacher’s and children’s movements and di- child’s interests and strengths within natural
rected his attention to the group during this routines, SLPs and family members can work
cheerful and active time. Together, Liam’s together to create numerous learning opportu-
teacher and SLP developed a set of song cards, nities throughout the day.
with pictures and words, from which the chil-
dren could select the next song to be played. FACILITATING ENGAGEMENT WITHIN A
When the teacher asked Liam to bring the CHILD-DIRECTED ACTIVITY
cards to the group and select the first one, he Ning seemed most responsive to adults during
did and often remained in close proximity for active games that involved jumping, rocking, or
the rest of the activity. In this setting, the SLP swinging. Given this, the adults engaged Ning
was able to design individual adaptations and by singing Row, Row, Row Your Boat while
supports for Liam, augmenting the develop- seated face-to-face on the floor with him,
mentally appropriate and motivating commu- holding hands, and rocking in rhythm with
nication that was already in place. the tune. At the end of the song, much to
time, getting dressed, taking a bath) and iden- recognized this game as an excellent opportunity
tifying a particular component of the activities for supporting Thomas’s social relationship with
that he could be supported in performing in- his brother and turn-taking skills. Thomas had
dependently. For example, Matthew’s family excellent verbal imitation skills and quickly
selected the simple direction of ‘‘get learned how to spontaneously say ‘‘my turn,’’
your____’’ for three routines. By providing and this game became a pleasant experience for
Matthew with visual cues, verbal direction, all family members. The SLP and the family
and direct hand-over-hand support, he was then decided upon additional social phrases that
eventually able to get his own spoon for meals, Thomas could use during this game (e.g., ‘‘This
get his towel for baths, and get his shoes from is fun!’’ or ‘‘Watch me.’’)
the closet for dressing. This met the family’s
goals of helping Matthew follow more direc-
tions and it led toward increased independence. PROVIDE SUPPORT-BASED
HOME VISITS
ASD is invaluable. For one parent of an 8-year- intervention plan. This type of support may
old with autism, along with 54 others in the include equipment, informational materials,
year 2004, that connection came through Pa- and/or financial resources and, again, requires
rent to Parent of Vermont: a nonprofit organ- SLPs to expand their traditional role. Providing
ization that offers a variety of programs and material support may require guiding a family
services that support families with children with through the application for a Medicaid waiver,
special needs. Through Parent to Parent, pa- ordering a Rifton chair (used for trunk sta-
rents may participate in a one-to-one match to bility), or organizing a book to store picture
talk with a parent who has had a similar symbols used for communication. While an
experience. SLP may not be directly responsible for
completing all these tasks, she or he might
EMOTIONAL SUPPORT: VIGNETTE FROM help the family recognize the need for material
MOTHER OF 8-YEAR-OLD WITH AUTISM support and connect them with the appropriate
‘‘When I think back to those awful days after resources.
encompassed both his instructional program her parents. After several months of frustration,
and hours of custodial care. Together, the Zoe’s SLP talked with the family about the
child-care center and the family employed challenges Zoe was having and their frustration
one person to fulfill both roles. with a system that did not work for them. The
SLP suggested use of a voice-output commu-
By addressing both the family’s needs (i.e., nication aid (VOCA). Zoe’s family was willing
for child care while they worked and for to try a VOCA, but expressed concern about
planned intervention while Dylan was in a Zoe becoming less willing to attempt using
social setting) as well as the child-care center’s verbal communication if she used a VOCA.
needs (i.e., for safety and an individualized The SLP provided information to the family
program for Dylan), this early intervention about speech development in children using
team set the stage for constructive intervention augmentative alternative communication. After
between visits by service providers. Before suc- receiving this information, the family decided
cessfully implementing Dylan’s program, the to integrate a VOCA into three daily routines.
visits. SLPs can also be family advocates, ensur- and wishes? Strategies to promote symbolic
ing that family goals are reflected in the early communication using visual supports are prob-
intervention plan. Further, they can provide ably going to be less relevant as a child develops
families with the emotional, material, and in- verbal imitation.
formational support they need and/or help Several methods for evaluating the effec-
families access the resources that can provide tiveness of an early intervention plan are avail-
the needed support. able for SLPs or other service providers to use.
Regularly scheduled team meetings offer op-
portunities for early intervention teams to cel-
EVALUATE THE EARLY ebrate a child and family’s progress, identify
INTERVENTION PLAN new outcomes, and refine current strategies.
Once the early intervention team has conducted Videotaping a child in the home or at child
the Routines-Based Interview and develop- care provides excellent documentation of com-
mental evaluations, families and professionals munication and social interaction skills not
intense early intervention services. Ongoing domains can provide an appropriate individu-
communication between the sending and re- alized early intervention plan that views the
ceiving SLPs, through covisits and the attend- child and his or her family in the context of
ance of preschool service providers at early their daily life. Child and family goals are
intervention team meetings, reduces disconti- identified and addressed using these processes.
nuity and conveys to families a reassuring sense The child’s growth is measured not by disci-
of partnership between the two systems. pline-specific changes, but by global changes in
Families are the most accurate source of the child’s ability to be engaged, independent,
information about how to design a smooth and socially interactive. Families also have
transition between early intervention and spe- their goals addressed and experience greater
cial education services. One parent described satisfaction with their family routines.
her wish for a parent mentor to accompany As families first learn of their child’s diag-
families during their first few meetings with nosis, formal and informal supports are as
school district professionals this way: ‘‘This important for the child and family as is specific
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