Professional Documents
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Identity 2024
Identity 2024
CITATION
Botha, S. C. B., & Harvey, C. (2024, January 22). Doing Difference Differently: Identity (Re)Constructions of Adults With
Acquired Disabilities. Rehabilitation Psychology. Advance online publication. https://dx.doi.org/10.1037/rep0000541
Rehabilitation Psychology
© 2024 American Psychological Association
ISSN: 0090-5550 https://doi.org/10.1037/rep0000541
Purpose/Objective: The acquisition of a disability impacts one’s corporeality and has been found to
destabilize one’s sense of personal and social identity. The article explores the psychological and
behavioral adaptation strategies that are employed in response to resisting, incorporating, and/or inte-
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
grating disability into one’s identity. We refer to a study that considered factors that facilitate and/or
This document is copyrighted by the American Psychological Association or one of its allied publishers.
impede disability identification, aiming to investigate the trajectory that the process of identity (re)con-
struction takes. Research Method/Design: Seven individual, in person, semistructured interviews were
conducted with adults with acquired physical and sensory disabilities. Data underwent thematic analy-
sis. To encapsulate the intrapersonal as well as interpersonal dynamics inherent in identity (re)construc-
tion, the analysis was guided by an interpretative phenomenological lens and social identity theory
(SIT). Results: Disability identification is a complex and contradictory phenomenon, with strategies
of resistance, incorporation, and/or integration fluctuating by setting and circumstance. These findings
represent a significant departure from SIT literature—participants rather made use of more collectivist
as opposed to individualistic adaptation strategies. Arguably, progress is being made with regard to dis-
ability pride, opening up a space for more positive and affirming disabled identities. Furthermore, dis-
ability identification is largely facilitated by greater opportunities for political advocacy and social
support—online and in the disabled community. However, stigma—internalized and external—is still
a major inhibitory factor to disability identification. Conclusions/Implications: Recommendations for
rehabilitation programs and psychological professionals working with acquired physical and sensory
disability are proposed.
Keywords: acquired disability, adaptation strategies, disability identity, identity politics, social identity
theory
1
2 BOTHA AND HARVEY
The acquisition of a disability can destabilize one’s sense of per- the group’s “psychological distinctiveness” (Trepte, 2006). This
sonal and social identity. This article explores how adults with drive manifests in a triad of actions which individuals employ
acquired disabilities adapt to being disabled and examines their rela- when constructing their identity: social categorization (group alloca-
tionship to disability identification. “Acquired disability” refers to an tion due to similar characteristics such as one’s disability); social
impairment1 that has “developed during the person’s life course as a identification (allegiance to a disabled or abled4 identity); and social
result of an accident or illness rather than being present at birth” comparison (between in and out groups). Consequently, Dirth and
(Employer Disability Information, 2018, para. 1). Specifically, we Branscombe (2018) contend that intergroup relations largely consti-
focus on acquired physical and sensory disabilities. Exploration tute the psychosocial experience of disability.
into acquired disability is an important research endeavor since the From the position of SIT, persons with acquired disability are
majority of disabilities are acquired, as opposed to congenital2 uniquely of interest because after acquiring their impairment identity
(Dziura, 2015). Focusing on the acquired disability subpopulation may need to be (re)constructed since they may now become mem-
does not imply that lived experiences of disability for individuals bers of the “out-group.5” This position may be one that they affiliate
comprising this group are homogenous. Rather, this attention is a with or resist depending on the identity management strategies
means of narrowing the scope of exploration and the knowledge employed when interacting with different people and settings. As
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
This document is copyrighted by the American Psychological Association or one of its allied publishers.
claims that can be produced about the experience of disability. such, disabled identification should not be confused with impair-
People3 with acquired disability are of interest in exploring disability ment incorporation. Conversely, individuals may disaffiliate from
identity since research implies that this subpopulation is less likely to a disability identity while still having psychologically processed
identify as disabled (Dziura, 2015; Nario-Redmond et al., 2013). and incorporated their impairments into their sense of self (Dunn
Yet, disability identity integration has been found to mediate a & Burcaw, 2013; Nario-Redmond et al., 2013). Disability identity
relationship with greater self-esteem and satisfaction with life, can be orperationalized as the “extent to which one feels shame or
psychological adjustment, psychosocial well-being, and political takes pride in disability; the degree to which one has integrated dis-
advocacy (Bogart, 2014; Bogart et al., 2017). ability into one’s sense of self; and the type of contact, camaraderie,
Research into disability identity is growing; however, the nuanced and engagement one has with the larger disability community”
and distinct areas of focus into disabled identity remain underex- (Forber-Pratt et al., 2019, p. 120).
plored (Bogart, 2014; Dunn & Burcaw, 2013; Rottenstein, 2013).
Disability identity is frequently constructed as a homogenous expe- Identity Management: Psychological and Behavioral
rience for all subgroups, depicting disability as a singular identity Adaptation Strategies
category (Forber-Pratt et al., 2019). Shakespeare (1996a, p. 109)
calls for a shift in disability research “to move away from a unitary According to SIT, groups are ranked in line with a “hierarchy of
and essentialist disabled identity.” There is a need to expand research differentiation.” Individuals in lower-positioned groups utilize adap-
into the different subjectivities which comprise the collective to cre- tation strategies to manage stigmatized identity traits and positively
ate a more nuanced understanding of disability identity. revalue their social identities (Finchilesu, 2006). These adaptation
Research into disability and identity from a psychological lens is strategies manifest in the form of cognitive alternatives. For exam-
underdeveloped (Davis, 2013; Dirth & Branscombe, 2018). Yet the ple, “social mobility” is an adaptation strategy whereby a person
disabled collective comprises one of the world’s largest minorities, adopts the identity of a group member from a higher status to achieve
amounting to approximately 16% (World Health Organisation, a position of greater social standing (Dirth & Branscombe, 2018).
2023). Therefore, this article holds with Davis’ (2013) assertion Individuals with a disability may engage in behavioral adaptive strat-
that disability, as the “new kid” on the minority group block, has egies where they strive to “pass” as abled group members by disguis-
the potential to offer novel and greater understandings into identity ing their impairment. They may also attempt to assimilate—seeking
construction. Furthermore, individuals with acquired disabilities are out a cure or highlighting their abilities and downplaying the signifi-
thought to experience great difficulties when psychologically pro- cance of their impairment to distance themselves from the disabled
cessing their disabled identity (Bogart, 2014; Dziura, 2015). group (Dirth & Branscombe, 2018).
Interpersonally, it is theorized that these difficulties are due to a
shift in social identity status, while personally it may be due to the
stability provided by one’s former identity and the expectations 1
Impairment denotes the physical or sensory condition, while disabil-
attached to an able-bodied future self (Dziura, 2015; Nario- ity is used in accordance with the social model of disability to connate
Redmond et al., 2013). There exists a need for further inquiry into systematic oppression and societal disablement (Shakespeare, 2010).
2
Congenital is a structural or functional disability present from birth
the lived realities of members of this group in a manner that priori- (World Health Organisation, n.d.).
tizes previously marginalized voices (Morris, 1992). Through first- 3
Person-centered language (people with disabilities as opposed to dis-
person accounts of individuals’ psychosocial experiences of their abled people) is deliberately employed given the focus on illuminating the
acquired disability, we meet the “Guidelines for Assessment of subjectivities of these individuals (Bogart et al., 2017). Person-centered lan-
and Intervention with Persons with Disability” (American guage is in accordance with the American Psychological Association (2023)
style guidelines on writing about disability.
Psychological Association, 2022) by providing further depth of 4
“Abled” is used over a decentralization strategy. Previously, decentraliza-
understanding into these psychological experiences. tion strategies have served to invert dominant and subordinate identities by
referring to able-bodied society as “nondisabled.” However, the deliberate
Social Identity Theory (SIT): Adjusting to a New use of abled here seeks to label and demystify the forces of ableism (APA,
Disabled Self 2023).
5
In-groups and out-groups are determined by the prevailing social norms.
SIT postulates that individuals are driven toward finding and iden- Ascribing the disabled group to the out-group category uncovers these power
tifying with a positive social identity, while simultaneously ensuring relations and is not a personal value positioning of the authors.
DOING DIFFERENCE DIFFERENTLY 3
Alternatively, if disaffiliating from the disabled group is not con- group chosen because such individuals are believed to have negoti-
sidered an option due to the “impermeability of group boundaries” ated their young adult stage of development and identity formation
(determined by severity, type, or visibility of the impairment), per- (Arnett et al., 2010). Physical and sensory-acquired disabilities
sons with disabilities may revert to “psychological mobility” strate- were sampled because they manifest in multiple, diverse forms,
gies (Trepte, 2006). These include a cognitive alternative termed thus potentially impacting on adaptation strategies affecting one’s
“social creativity”—a process of rhetorical strategies by which indi- self-identification as disabled (Bogart et al., 2017; Rottenstein,
viduals redefine negatively held assumptions about disability as pos- 2013). All the participants are South African. Grace6 is a 37-year-old
itive (Jackson et al., 1996). This process of reconfiguration could White female who had a bilateral leg amputation at 35 years due to
include utilizing de-euphemistic and language reclamation strate- diabetes. Sarah is a 46-year-old White Lebanese South African
gies—moving away from politically correct language and taking female who underwent an amputation of her right leg through the
ownership of terminology previously used to stigmatize a disabled knee due to cancer at age 45. Ayanda is a 24-year-old black student
individual such as adorning a “crip” identity with pride (Dirth & who described herself as “wheelchair bound” due to complications
Branscombe, 2018). “Social creativity” can also manifest when out- from an operation on her joints when she was 18 years old. Reese is a
groups propose new characteristics for social comparison such as the 28-year-old White individual who identifies as gender fluid7 and
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
This document is copyrighted by the American Psychological Association or one of its allied publishers.
strength and life lessons gained from living with a disability (Dirth & uses a cochlear implant due to childhood hearing loss from menin-
Branscombe, 2018). Lastly, individuals may turn to political activ- gitis. Julia is a 48-year-old White female who acquired a visual
ism by engaging in “direct conflict or competition” with the impairment due to an allergic reaction to medication 6 years prior.
in-groups (Trepte, 2006). The cognitive alternatives that members John is a 61-year-old White male who acquired partial paralysis
employ will be dependent on their social belief structures—involv- from his right knee due to a “botched operation” 11 years ago.
ing one’s personal beliefs about the prevailing social and political And, Mia is a 32-year-old White female who acquired a visual
ideologies which inform how they come to regard the permeability impairment due to an illness at age 14.
of group boundaries, the stability of status hierarchy, and the legiti- Participants’ experiences were collected using individual,
macy of the group’s status (how appropriate and fair one believes the in-person, semistructured interviews.8 Interviews were conducted
criteria used for discrimination and lower group positioning to be; by Shawni C. B. Botha, an abled individual. Clare Harvey has a
Finchilesu, 2006). physical, visible congenital disability. We are both White females.
Thus, identity construction is considered to be a continuous, situa- To manage our positionalities, particularly with regard to issues
tional, and nonlinear process. Identity (re)construction following the such as voice, authorship, and embodiment (Kitchin, 2000) the
acquisition of disability is considered to be a personal yet psychoso- study is firmly embedded within an IP methodology; which
cial process whereby individuals make sense of their subjectivities aims to give voice to participants through privileging their lived
within their new social world. Hence, this article hopes to answer experiences as they understand them (Babbie & Mouton, 2001;
calls to move away from deterministic, homogenous, and unitary Creswell, 2013).
constructions of disabled identity (Botha, 2016; Shakespeare, The interview transcripts were analyzed according to Braun and
1996a), by creating a more nuanced exploration into adaptative strat- Clark’s (2006, 2023) guidelines for thematic analysis. Tajfel and
egies individuals with acquired physical and sensory disabilities Turner’s (1979) SIT functioned as the epistemological framework
employ. guiding the study. Therefore, the study employed a deductive the-
matic approach (Braun & Clarke, 2006), because there was a specific
Method emphasis on coding for participants’ cognitive alternative strategies
presented in the management of their disabled identity. These cog-
The qualitative interpretivist phenomenological (IP) research nitive alternatives include “social mobility,” “social creativity,”
project which this article refers privileged the lived experiences “psychological mobility,” and “direct conflict or competition”
of people with disabilities as they understand them (Onken & (Dirth & Branscombe, 2018; Trepte, 2006). However, the findings
Slaten, 2000; Shakespeare, 1996b). This research design affords also underwent IP analysis and thus there was an emphasis on ana-
a flexibility that is well aligned to exploring processes of meaning- lyzing the participants’ meaning-making of their disabled experi-
making, as well as intra- and interpersonal dynamics of identity (re) ence. Therefore, an inductive approach was also employed,
construction, since it seeks to highlight the interplay between the because additional themes discovered outside of the above theoreti-
individual, their social context, and their subjective meaning cre- cal codes were also elaborated upon in the analysis (Creswell, 2013).
ated about certain phenomena (Creswell, 2013; Lewis & Ritchie, Furthermore, to ensure the trustworthiness of the data, Lincoln and
2003). Guba’s (1985) criteria were adhered to. Specifically, the transferabil-
The study received ethical clearance from the University of ity of the results is established through detailed descriptions of the
Witwatersrand. Nonprobability purposive sampling (Laher & methodology and a purposefully defined sample. Moreover, to pro-
Botha, 2012) was used to recruit seven participants. Thus, particular mote a sense of consensus and dependability among the results, mul-
characteristics in participants were targeted through predetermined tiple quotations from participants are provided. To ensure that the
inclusion criteria, helping to facilitate detailed explorations into
the research phenomena being studied. Various disability support
6
groups specifically for people with acquired disabilities (suggested Participant has been given pseudonyms to ensure confidentiality and
by physiotherapists working with individuals with disabilities) anonymity.
7
An important finding of this research is that language plays a seminal role
were approached because members were hypothesized to have in constructing one’s identity. Thus, we endeavor to employ nonbinary pro-
engaged on some level with the impact of their disabilities on nouns when discussing this participant.
8
their identities. Participants were above 24 years of age; an age Data for this study are available by emailing the corresponding author.
4 BOTHA AND HARVEY
findings are as objectively produced as possible, the conformability into their sense of self; albeit ambivalently at times. Sarah disaffili-
of the data was established at the outset by ensuring that the ques- ates from the term “disabled,” but later demonstrates some accep-
tions in the interview schedule were carefully worded, open-ended, tance of her impairment, “accepted this [her impairment], it’s a
and counterbalanced, thus avoiding leading questions (Potter & part of me.” Similarly, Grace grapples with labeling herself as dis-
Hepburn, 2005). Furthermore, through a process of saturation during abled, “to me is the challenge, to call myself disabled, more than
the analysis phase, themes were established and supported by repet- anything else,” yet expresses a sense of disability pride, professing
itive patterns in the data (Shenton, 2004). Lastly, credibility is pro- that she even “show[s] off” her prostheses. This rupture between dis-
moted by embedding the results in both seminal and current affiliating from a disabled identity yet incorporating an acquired
disability literature, as well as by adhering to a renowned theoretical impairment into one’s sense of self can be postulated to arise as a
framework (SIT) for investigating minority identities and by subject- reaction to society’s predominantly ableist conceptualization of dis-
ing the findings to both authors’ scrutiny (Yilmaz, 2013). ability. Reputedly, society’s negative construction of disability
largely arises due to the hegemony of the medical model which con-
structs disability as a tragedy and deficit (Swain & French, 2000).
Findings and Discussion
Such negative connotations of disability are prominent in what par-
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
ableism when they use the phrase “like a normal person” to connote Similarly, John and Mia self-identify as disabled and engage in
able-bodiedness as a standard for bodily functionality. de-euphemistic strategies in their positioning as such. When asked
As previous members of abled societies, persons with acquired what terminology John feels comfortable using, he is very dismis-
disabilities may have greater awareness of how disability is regarded sive of euphemistic terms: “Well not ‘differently abled’ because
by the in-group and therefore may feel compelled to distance them- that is just a horrible euphemism.” Moreover, Sarah discredits
selves from the disabled label and the social, economic, and political euphemisms through humor: “I am always so entertained by all
oppression which frequently accompanies it. This is poignantly the politically correct stuff people feel they have to use [laughs].”
demonstrated by Mia: “I was actually really shocked when someone Conceivably, both language reclamation and de-euphemistic strate-
called me disabled for the first time because I have that internalised gies are politically transgressive acts, since participants deliberately
ableism.” Therefore, both societal and internalized stigmas are appropriate labels which have previously been used to ostracize and
impeding factors inhibiting identification as disabled. discriminate against their minority group, and reconfigure their
meaning through self-definition (Nario-Redmond et al., 2013;
Reclaiming the “D-Word’: The Politics Involved in Zola, 1993). Anspach (1979, p. 773) supports this interpretation
and asserts that language reclamation and de-euphemistic rhetoric
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
Self-Definition
This document is copyrighted by the American Psychological Association or one of its allied publishers.
There is a massive tension … for people who live with disabilities. I grounds than there has been in the past. Subsequently, some indi-
think the difficulty with acquired disabilities is that many people land viduals with a disability may experience a reduced pressure to
up having disabilities that are quite subtle. So societies … do not provide “pass” and identify as disabled, despite the permeability of group
enough understanding to persons with disabilities. (John) boundaries being more open to them. Furthermore, given the advent
So abled-bodied people just don’t get this … But it is almost like race of social media, there is arguably more opportunity for individuals
and gender, especially in South Africa, almost get top priority. with a disability to create networks of social support, albeit online
Especially, when it comes to resources because they are so much more (Braithwaite et al., 1999); whereas, previously those with disabili-
visible than disability. Disability matters too. (Mia) ties were kept segregated due to poorly accessible built environ-
ments: “Before this [social media], disabled people were kinda
This political factor to self-definition as disabled is consistent with hidden away. The really big difficulty for disabled people is mobil-
previous findings where political advocacy has been found to be a ity and accessibility. How can you have a community when you
facilitating factor in disabled identification (Bogart et al., 2017; can’t be in the same space?” (Mia). Online forums create virtual
Dunn & Burcaw, 2013). Advocacy work promotes a sense of communities and “safe spaces” (Reese) for individuals with disabil-
pride in one’s disability, increasing self-esteem as well as positive ities to receive social support. Notably, social support has been
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
This document is copyrighted by the American Psychological Association or one of its allied publishers.
distinctiveness for one’s minority group through challenging the found to be an integral factor in facilitating disability identification
legitimacy of discrimination and the stability of the status hierarchy (Bogart et al., 2017). Therefore, due to the enabling role of social
(Dunn & Burcaw, 2013; Putnam, 2005). The way in which political support, persons may identify as disabled, despite the permeability
advocacy promotes disabled group identification is reiterated by Mia of group boundaries and opportunities to be regarded as abled.
in her explanation for why she self-identifies as disabled and is evi- Reese, John, and Mia speak to their experiences of social support
denced in her use of the collective pronoun “we”: “It is also a way of received in online spaces and in the disabled community at large.
thinking where you identify with a certain group of people and a par- They emphasize that identifying with the disabled collective pro-
adigm and you feel like we can achieve something together.” vides them with “support” as well as a sense of belonging and “affir-
Moreover, political advocacy speaks back to the cognitive alterna- mation,” as evidenced through terms: “community,” “at home,”
tive “direct conflict or competition” which is invoked when group “tribe,” and “my people”:
boundaries are determined to be impermeable (Jackson et al., 1996;
Being a part of disabled community speaks to me because these are peo-
Tajfel & Turner, 1979). Thus, minority group members challenge
ple whose experiences I resonate with and we share collective terms and
and seek to dismantle the social order of the majority group through collective identities. (Reese)
campaigning for change (Dirth & Branscombe, 2018; Trepte,
2006). Interestingly, the findings of the study referred to in this article I kinda found my “people” and it has been an incredibly affirming expe-
differ from that of the theoretical underpinnings in SIT, since there rience. (Reese)
was little support for the perception of the permeability of group Recently I went to a conference for disability and I felt at home in amidst
boundaries impacting on the cognitive alternative chosen by these those with disabilities. (John)
specific participants. However, Reese, John, and Mia all have rehabil- So with social media a lot of disabled people are starting to speak up for
itative disabilities that are not too severe nor visible. Reese uses a themselves and define themselves. So it does seem like all the rage to
cochlear implant and retains some of their hearing abilities and is find your tribe and it does provide a place where you have support. (Mia)
able to speak as opposed to sign. John has partial paralysis in his
leg from his right knee down, which, with rehabilitation, has meant This political landscape of identity reclamation has found support
that he maintains his mobility and ability to walk. Moreover, Mia for the findings presented in Johnstone’s (2004) review which
describes her acquired visual impairment as “circuitous” because argues that more positive, empowering, and collective identity
the percentage of her vision retained constantly changes. Therefore, types are becoming available to those with disabilities (Bogart
for these participants, the boundaries between abled and disabled et al., 2017). However, the very real experiences of stigma and inter-
groups could be regarded as more permeable given their impairment nalized ableism are not discredited, but rather some of the political
types and severity. Thus, according to SIT, they would more likely progress made in disability rights is spilling over into the realm of
employ individualistic strategies such as social mobility or “passing” identity politics. As such, this has opened up space for the
as able-bodied (Bogart, 2014; Dirth & Branscombe, 2018). However, “D-word” to be reclaimed and positively connotated in politically
they choose to employ more collectivist strategies through deliberately transgressive acts of self-definition. Moreover, political advocacy
identifying with the disabled group, engaging in political advocacy, and social support facilitate this process of self-identifying as dis-
and celebrating, or embracing, their disability. abled (Bogart et al., 2017; Raver et al., 2018).
This divergence between the findings and the theory proposed in
SIT (Tajfel & Turner, 1979), may be due to temporal differences Incorporating the “D-Word”: From Victim to Victor, and
which might manifest due to a shifting climate in the way disability Even “Supercrip”
is being socially perceived. This explanation ties in with Swain and
French’s (2000) Affirmation Model of Disability, which postulates Arguably, there is an important distinction between integrating
that due to political advances gained by the disability rights move- one’s disability into one’s identity, whereby one identifies with the
ment, disability is no longer regarded solely as a personal tragedy or disabled collective through strategies of language reclamation,
medical malformation—while ableism is by no means abolished, pride, and political activism, and incorporating one’s impairment
disability is increasingly celebrated as a form of human and cultural into one’s identity through individualistic strategies (Bogart, 2014;
diversity by those with disabilities. Thus, there may be greater Nario-Redmond et al., 2013). Therefore, although some participants
opportunity to identify with a disabled identity on more positive initially did not self-identify as disabled, this article supports the
DOING DIFFERENCE DIFFERENTLY 7
claim that disability identification may not be an “all or nothing” overlaps with a well-known trope in disability literature termed the
phenomenon (Rhodes et al., 2008). It is proposed that when disabil- “supercrip” (Grue, 2016; Harvey, 2015).
ity can be constructed as a more positive identity trait, even partici- “I can’t run … but I’ll do it one day, I am going to! [holds arms up
pants who disaffiliate from the disabled group come to take with fists and flexes like a superhero].” This quotation and accompa-
ownership of their disabilities and incorporate their impairments nying superhero-esque body language displayed by Sarah can argu-
more positively into their sense of self: “I look at disabled people ably be described as a “supercrip” identity. According to Grue
and I think nobody knows how brave you are! We are not victims! (2016), a “supercrip” is an inspiring individual with a disability,
What battles disabled people have faced.” (Ayanda) whose abilities are glorified and accomplishments valorized due to
Four participants (Sarah, Grace, Ayanda, and Julia) choose to con- them having an impairment. The “supercrip” biography speaks
struct the acquisition of their disability as a “battle,” which they have back to Johnstone’s (2004) review and his proposed typologies of
to endure and overcome in order to derive more concord with their “empowering identities.” However, there exists some debate within
disabled identity. It is argued, participants construct disability acqui- the literature about the “empowering” propensity of the “supercrip”
sition as a “battle” in order to reposition themselves from victims to identity (Grue, 2016; Harvey, 2015). Particularly, what has come
victors—to be regarded as “survivors” (Julia and Sarah). Positioning under scrutiny is the ableist values the “supercrip” identity is said
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
This document is copyrighted by the American Psychological Association or one of its allied publishers.
themselves as such may be a reaction to how disability is commonly to perpetuate, in so far as the successes of persons with disabilities
associated with misfortune and tragedy in society; the identities of are benchmarked against abled standards (Nario-Redmond et al.,
persons with disabilities are subsumed because they are frequently 2013). Mia engages with the “supercrip” debate when she confesses
“fetishized as medical tragedies” (Shakespeare, 1996a, p. 99). her reluctance to draw on “supercrip” identity, but still professes that
Consequently, to retain their self-esteem some of the participants it has a certain appeal to provide her with positive affirmation of her
reject the superimposition of identities of victimhood and (re)con- disabled identity: “I know I shouldn’t encourage the ‘supercrip’ ste-
struct their biographies around the narrative of a survivor. reotype but people are like: ‘You’re a blind artist, that is amazing!’ so
Realigning themselves with traits of endurance, bravery, and hero- like I kinda of like milk it. If you got it, use it.”
ism associated with survivors may be a strategic attempt to evade The “supercrip” identity is adorned by a number of participants
stigma (Johnstone, 2004). The participants are engaging in a similar and empowers them to identify with their disability on more positive
strategy to “social creativity,” whereby they attempt to redefine the terms. Possibly, this is because serving as an “inspiration” to others
negative assumptions commonly held about the disabled group by helps bolster their self-image precisely because of their disabilities
proposing new criteria by which to be evaluated (Jackson et al., and not in spite of them. Thus, the participants are more likely to
1996). However, importantly, some of the participants utilize social claim their disabilities when they are regarded as inspiring or tena-
creativity as an individualistic, and not a collectivist, strategy; rede- cious. Sarah constructs her “supercrip” identity around a “never
fining negative criteria about the disabled group to bolster their own give up” attitude:
self-image and not as a political act for the benefit of the disabled
collective. Individualistic strategies of impairment incorporation Right after I had it done [her amputation], I was back at work. I said that
nothing is going to keep me down, nothing. I came straight back to work
are evident in Sarah, Julia, and Grace’s repetition of the person
and I was myself, even though I was on crutches for weeks, on one leg at
pronoun “I.” These three participants employ the survivor strategy
work. I was not going to let it bring me down. And I’m proud of that.
to take ownership of, “identify with,” or even “show off” their
disabilities: For her strength and determination shown in the face of adversity,
Sarah restores her sense of pride in herself and also receives the
In a lot of ways, I think that I am special and I identify with this[disabil- respect and admiration of others. She implies that serving as an inspi-
ity acquisition]. I think that people see me as someone who went through ration to others helps her incorporate a more positive disabled
this battle … I went to war and these are my battle scars and I survived identity:
and beat cancer. To me my [prosthetic] leg is a trophy, that’s how I try to
look at it. (Sarah) People always tell me that they admire my strength, they do all the time
… And that I inspire them which helps. That’s what I want to be … an
And I think that is just part of being a survivor. I try and be as positive as inspiration.
I can be about my life with a disability, even though I am in a negative
situation. (Julia) I’m proud of my scars because, I think … I think that it is quite a big
thing, to have your leg taken off, it’s not an easy thing to go through.
I love wearing short pants and painting my [prosthetic] toe nails. I show So I think, because people come up to me and they say: “I am so
off my [prosthetic] legs because to me, I am a survivor! I have overcome brave and wow, I admire you.” That kind of stuff helps.
things which other people may not have. (Grace)
A similar tenacious attitude is displayed by Grace in her ascription
to a “supercrip” identity, demonstrated in her assertion that you have
These participants propose that they are “special” because they
to “embrace” and “fight” through the challenges life “throws” at you.
have “beat[en]” or “overcome” their difficulties through battling dis-
Adorning the “supercrip” identity arguably allows her to feel like she
ability in ways others with disabilities “may not have.” Where their
has a choice and thus the agency to empower and redefine her iden-
disabilities can provide them with self-esteem, their impairments are
tity in disempowering circumstances:
not shamefully hidden, but exalted with pride as “troph[ies].” Thus,
disabled identity is reembodied through this strategy, since the par- No matter what the challenge is, embrace it. You can choose to fall flat
ticipants’ impairments and medical aids (e.g., prosthetics) come to on your face and let it get to you, or you can choose to fight through it …
symbolize their strength as “survivors” of disability, as opposed to You need to become a stronger and more positive person, you need to
operating as signifiers of a stigma. Certainly, the survivor identity believe in yourself and then know that you can overcome anything.
8 BOTHA AND HARVEY
Subsequently for Grace, adopting this “supercrip” strategy is contradictory. When disability can be constructed as a more positive
about embracing her disability and using it to inspire others, and identity trait, even participants who disaffiliate from the disabled
in doing so she is able to “embrace” herself more as an individual group come to take ownership of their disabilities and incorporate
with a disability: their impairments more positively into their sense of self. This pro-
cess of incorporation is evidenced in “social creativity” strategies,
I am one of the first female bilateral amputees to have done a motorbike trip
such as the “supercrip” and survivor identity. Therefore, the article
throughout the country, to raise awareness for the [Name] Foundation … I
argues that it is the situational and pendular conceptualizations of
have embraced my disability to help others, and in doing so, I keep myself
inspired and motivated. Seeing the response from the public … how they identity (re)construction that will further our understandings of the
come to me and say: “Thank you, you are an inspiration to me,” that keeps disabled experience for individuals with acquired physical and sen-
me going and is what is pumping me full of adrenaline. sory disabilities (Rhodes et al., 2008). Disabled identification is
found to fluctuate by setting, circumstance, and whether it can be
These findings speak back to literature, as both Grue (2016) and constructed positively or beneficially. Hence, it is proposed that
Harvey (2015, p. 299) propose that “heroic status” is bestowed rehabilitation centers, as well as medical and psychological profes-
upon the achievements of individuals with disabilities. Thus, sionals, move away from linear models and are trained to incorporate
This article is intended solely for the personal use of the individual user and is not to be disseminated broadly.
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10.3233/EFI-2004-22201
Swain, J., & French, S. (2000). Towards an affirmation model of disability. Received July 8, 2023
Disability & Society, 15(4), 569–582. https://doi.org/10.1080/096875900 Revision received October 13, 2023
50058189 Accepted October 18, 2023 ▪