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Crises of
Identifying
Negotiating and Mediating Race, Gender,
and Disability Within Family and Schools
A volume in
Educational Leadership for Social Justice
Jeffrey S. Brooks, Series Editor
This page intentionally left blank.
Crises of
Identifying
Negotiating and Mediating Race, Gender,
and Disability Within Family and Schools
Dymaneke D. Mitchell
National Louis University
Part I
Trying to Attain Essence 1
v
vi Contents
Part II
Intercontextuality 35
Part III
Significance of Research 95
8 Emerging Themes.......................................................................... 97
Introduction: Kindred Connections.............................................. 97
Theme 1: Performance.................................................................... 97
Theme 2: Identity Hierarchy......................................................... 102
Theme 3: The Contextuality of Self............................................. 107
by Jeffrey S. Brooks
I am pleased to serve as series editor for this book series, Educational Lead-
ership for Social Justice, with Information Age Publishing. The idea for this
series grew out of the work of a group committed to leadership for scholars,
associated with the American Educational Research Association’s (AERA)
Leadership for Social Justice Special Interest Group (LSJ SIG). This group
existed for many years before being officially affiliated with AERA, and has
benefited greatly from the ongoing leadership, support, and counsel of Dr.
Catherine Marshall (University of North Carolina-Chapel Hill). It is also
important to acknowledge the contributions of the LSJ SIG’s first chair, Dr.
Ernestine Enomoto (University of Hawaii at Manoa), whose wisdom, stew-
ardship, and guidance helped ease a transition into AERA’s more formal
organizational structures. This organizational change was at times difficult
to reconcile with scholars who largely identified as non-traditional think-
ers and push toward innovation rather than accept the status quo. As the
second chair of the LSJ SIG, I appreciate all of Ernestine’s hard work and
friendship. Moreover, I also thank Dr. Gaetane Jean-Marie, the third chair
of the LSJ SIG for her visionary leadership, steadfast commitment to high
standards and collaborative scholarship and friendship.
I am particularly indebted to my colleagues on the LSJ SIG’s first Pub-
lications Committee, which I chaired from 2005 through 2007: Dr. Denise
Book Overview
Although there has been an increase in literature regarding the lived ed-
ucational experiences of African American, Latino, and Asian children
with disabilities, it mainly focuses on children with intellectual disabilities
(i.e., learning disability, Down syndrome, autism, dyslexia, etc.) in a pub-
lic school setting. This book includes the lived familial and educational
experiences in public, private, and institutional school settings, at various
levels (i.e., elementary, secondary, and/or postsecondary), of five African
American adults who have disabilities associated with deafness, blindness,
cerebral palsy, and speech impairment. It provides insights into ways these
adult African Americans construct and give meaning to their experiences
of being Black, female/male, and disabled within their family and schools.
More specifically, this book is based on research that involves an exami-
nation of ways that family and school perpetuate and reiterate social and
cultural constructions, essentialist discourses as well as power and privilege
dynamics regarding race, gender, and disability.
With one of the biggest challenges facing special education being the
overrepresentation of minorities and students of color, there is a need to
determine how crises influence or are a result of intrapersonal and/or in-
terpersonal relations among students, teachers, families, and schools. This
book not only highlights how these five African Americans with disabilities
negotiated and mediated their lived experiences within familial and educa-
tional contexts but it also focuses on how their remediation and renegotia-
tion of their experiences within their family and different school contexts
instigated crises of identifying that served as catalysts for leadership quali-
ties they exhibited early, as young adults, and later, in their personal and
professional lives.
by their families and schools, this book “contributes to the fields of special
education and disability studies by capturing involved people’s perspec-
tives and by adding to our understanding of discourses that shape social
life in schools [and families] and society” (Brantlinger, Jimenez, Klingner,
Pugach, & Richardson, 2005, p. 202).
This book can also serve as a literary resource to academics and as an
informational guide for parents, teachers, administrators, and paraprofes-
sionals of children with disabilities regarding the significance of leadership,
self-advocacy, and identification development on the lived experiences of
children within familial and educational contexts including complex dy-
namics that exist within and between families and schools. Although this
book focuses on the lived experiences of adult African Americans with dis-
abilities, the complexities and contextual dynamics associated with crises of
identifying take on many forms and include social and cultural constructs
associated with various dimensions of identity; therefore, this book can ben-
eficial to a variety of people with and without disabilities. It is hopeful that
this book will provide parents, teachers, administrators, and caregivers with
an understanding and comprehension of the complexities concerning dis-
ability, gender, and race within family and schools and including their as-
sociation with crises of identifying, essentialist discourses, and power and
privilege dynamics.
In addition, this book could be an educational resource for pre-service
and in-service teachers, administrators, and special educators that are in-
terested in exploring and examining how their roles and practices within
schools and interactions with children of color with disabilities influence
their lived educational experiences including their educational achieve-
ment and their perception of themselves as intelligent, worthy, productive
members of society. Teachers, special educators, and administrators’ en-
gagement and interaction with these children will either reinforce or coun-
teract what they are learning and understanding about themselves within
their familial context (and other contexts) as children of color with dis-
abilities. They need to understand how they and schools can be complicit in
perpetuating and reifying negative perceptions of children of color with dis-
abilities; this book could help them to begin to understand their complicity.
Discussing, exploring, and examining their understandings of the affect of
complicity will be especially beneficial for teacher candidates enrolled in
special education, teacher preparation, and urban education courses and
programs at the undergraduate level as well as students enrolled in disabil-
ity studies, educational and instructional leadership, and curriculum and
instruction courses and programs at the graduate and doctoral levels.
xiv Preface
I am thankful for the many people who have helped make this book pos-
sible. I am grateful for the support and love of my parents, to my Uncle
Kennedy for pushing me to exceed my own expectations, and to all of the
friends and colleagues who have helped and encouraged me throughout
this journey.
I want to thank Drs. Natalie Adams, Nirmala Erevelles, Rodney Hopson,
Kagendo Mutua, John Petrovic, Stephen Tomlinson, and Jerry Rosiek for pro-
viding me with wisdom, guidance, and opportunities throughout this journey
that have challenged and strengthen me personally and professionally.
I want to thank Drs. Noelle Arnold, Jeffrey Brooks, and Katherine McK-
night for believing in this book.
Last, but not least, I thank God for replenishing my spirit and nourish-
ing my soul throughout this journey. He is the source of all of my blessings.
Introduction: Background
Schools are spaces where student and teacher interactions, experiences,
relationships, and multiple identities intersect. These intersections create
challenges for educators that affect the way they educate “different” stu-
dents. In particular, there are concerns within the educational field about
the inclusive and exclusive nature of education and its effects on the teach-
ing, learning, retention, and matriculation of certain students. According
to Clough (1999),
Note that Clough relates the selectiveness of inclusive and exclusive prac-
tices in schools to the discriminatory processes through which certain iden-
tities are defined, perpetuated, and maintained by them as well.
There are many challenges facing PreK–12 and postsecondary educa-
tors. Some pertain to theoretical and practical issues that they and their
students face concerning race, gender, and/or disability as well as edu-
cational training, development, and/or preparation. In 2007, approxi-
mately 83% of PreK–12 teachers were White (National Center for Educa-
tion Statistics, 2008a) whereas approximately 37% of the national public
school population consisted of Black and Hispanic students, with Black
students representing approximately 15% of the total (National Center
for Education Statistics, 2009a). Black students who were ages 3 to 21
represented approximately 18% of students served under the Individuals
with Disabilities Education Act (IDEA) (National Center for Education
Statistics, 2007). The 18% of Black students being diagnosed with “any
disability” in 2007 was higher than the total Black student population at
15%. According to Artiles,
it has been argued that because there is a higher rate of poverty in minority
communities, it is not surprising that African Americans and Native Ameri-
cans, for example, and in some regions of the country, Latinos and Latinas,
are disproportionately placed in special education. It is further argued that
minority student special education placement is understandable because
students from these communities possess significant deficits due to their
upbringing and so forth. (cited in Chamberlain, 2005, p. 110)
our [e.g., administrators, faculty, and staff] practice has not always been in
sync with the changing populations on our college campuses. For us to hear
and care, we need to challenge our presupposed ideas, biases, and preju-
dices about how we teach, practice, and interact with our students and col-
leagues. (p. iv)
more participants believed they understood to the greatest extent the cul-
ture of students who were members of their racial group, had more interac-
tions with this group, felt most prepared to teach this group, and knew more
about the contributions of this group. No student teachers believed that
they were “very much prepared” (highest possible rating) by their teacher
education program (TEP) to teach any group including CLD [culturally
and linguistically diverse] students with disabilities. They acknowledged
a need for more content in the areas of human growth and development
from a cross-cultural perspective, historical knowledge about various cul-
tures, and accessing family and community resources. (p. 18)
6 Crises of Identifying
These findings illustrate not only that the curricula and courses of teacher
education programs are failing to adequately train and prepare pre-service
teachers with regards to race and disability but also that there is a demand
to learn how to better understand students and their races and disabili-
ties in relation to their family and community. This further highlights the
failure of postsecondary educational institutions in meeting the needs of
diverse students, with and without disabilities.
Green (2005) reveals how “the effects of the overrepresentation of Af-
rican American students in special education damage not only individual
students, but families and communities as well” (p. 34). This revelation
highlights a connection between students’ educational experiences and
the family. It further emphasizes the need for more educational studies
and research like Bennett’s (1988), which involved people of color with
disabilities and the relationships between their educational and familial ex-
periences. Even more so, bearing in mind that teachers in the United States
are predominately White (Parkay, 2006; Spring, 2006), and that some of the
small number of African American pre-service teachers only feel comfort-
ably prepared to teach students from their own culture, it is no wonder that
the overrepresentation of students of color with and without disabilities at
the K–12 level is high, whereas their matriculation and retention at both
K–12 and postsecondary levels is low (Howard, 1999; What the Numbers
Say, 2005; Wortham, 2006).
for interactionists, humans are pragmatic actors who continually must ad-
just their behavior to the actions of other actors. We can adjust these actions
only because we are able to interpret them, i.e., to denote them symboli-
cally and treat the actions and those who perform them as symbolic ob-
jects . . . .The process is further aided by our ability to think about and to
react to our own actions and even our selves as symbolic objects. (p. 1)
Personified Leadership
Crises of identifying could also serve as catalysts that propel the renegotia-
tion and remediation of lived experiences so that acts of negotiating and
mediating really reflect complex, contentious, decisive, but continuous
processes of living, being, becoming, and/or existing. As a result, I argue
Negotiating and Mediating Identities and Contexts 9
interacting with families who have children with disabilities can teach school
leaders invaluable lessons, and the nature of such interaction plays a key
role in the quality and depth of the learning that takes place . . . .The inclu-
sion of disability narratives in school leadership training is, at the same time,
a diversity issue and a social justice issue. As a diversity issue, the inclusion of
disability narratives and experiences contributes to the meaning-making of
leaders. As school leaders (present and future) interact with people with dis-
Negotiating and Mediating Identities and Contexts 11
even the most historically protected spaces can’t be contained. They remain
dynamic and open to other possibilities. Space is not a fixed entity . . . .The
homogenization of space is thus contradictory, as space carries properties
which are simultaneously open to transformation, just as much as they are
sedimented. (pp. 1–2)
Like space, identities and contexts are experienced fluidly and mutually, as
well as discrepantly and contentiously.
12 Crises of Identifying
there are roles played by the extended family in addition to the school that
are mediated by community culture. Therefore, two young African Amer-
ican students with similar abilities, familial, and school backgrounds can
come to the college participation decision differently based on the commu-
nity’s [or family’s] perception of the value-added nature of postsecondary
education. (Freeman, 2005, p. 186)
the experience of disability is mixed in with the experience of living with im-
pairment effects . . . together with the consequences of living out lives which
are simultaneously gendered, “raced,” sexed, aged, and so forth. ‘Lived ex-
perience’ is thus rich and multi-dimensional, where already complex fea-
tures of impairment effects and disability meld together with other facets of
our social identities. (Thomas, 1999, pp. 48–49)
I posit that the idea of voice is a metaphor of resistance drawn from the
hearing world by which silences become a choice and not a consequence of
the oppression and debilitating power dynamics of the dominant group. In-
stead of voice being a reflection of one’s thoughts and feelings, the expres-
sion of voice via speech is the focus. By positioning voice synonymously with
speech or one’s ability to articulate a voice, the speech (and any obvious
impairments), and not the voice, becomes an indicator of an individual’s
rationality and personality (Charlton, 1998; Clear, 1999; Erevelles, 2002;
Gabel, 2005; Garland-Thomson, 1997; Goodley, 2004; Linton, 1998). Un-
fortunately, most research involving people with disabilities is conducted
on them instead of with them; their voices are not at the forefront of the
research—the researcher’s analysis is. According to Gabel (2005),
After meeting and interacting with several African Americans with dis-
abilities inside and outside of academia over the course of four years, I
realized that I was not alone in experiencing crises of identifying. These in-
teractions involved conversations about our challenges and experiences of
being African Americans with disabilities. More particularly, challenges to
healthy identification development and the paucity of research on people
of color with disabilities by researchers who have disabilities became appar-
ent in our conversations. These conversations included stories about crises
we experienced regarding our race, disability, and gender within familial
and educational contexts. It was these conversations and my own experi-
ences that provided me with the background, rationale and participants for
this research. And although the background of this research was based on
a thin slice of the human experience, this study can be used to illuminate
a broader spectrum of the human experience for the betterment of every-
one. Chapter 2 examines research, scholarship, and theoretical underpin-
nings that informed this study.
2
Universalism and Intersectionalities
Fuss does not address how systems of domination already at work in the acad-
emy and the classroom silence the voices of individuals from marginalized
groups and give space only when on the basis of experience it is demanded.
She does not suggest that the very discursive practices that allow for the as-
sertion of the “authority of experience” have already been determined by a
politics of race, sex, and class domination. Fuss does not aggressively suggest
that dominant groups—men, White people, heterosexuals—perpetuate es-
sentialism . . . .And when [marginalized] groups do employ essentialism as
a way to dominate institutional settings, they are often imitating paradigms
for asserting subjectivity that are part of the controlling apparatus in struc-
tures of domination. (p. 81)
Universalism and Intersectionalities 21
the dominant cultures in the world produce images of normality and abnor-
mality, of beauty and ugliness, or superiority and inferiority. These images
are projected by their producers to influence opinions and preferences.
The sick/deformed body is stuck at the intersection where science and im-
age meet. (p. 62)
This quote offers insight into how crises of identifying or a person’s identi-
fication with multiple identities is connected to his realization, in one sense
or another, that his claim or disclaim and avowal or disavowal of his identi-
ties is influenced, among other things, by limitations and oppressions as-
sociated with essentialist discourses. People of color with disabilities have
especially been institutionally affected by essentialist discourses, in particu-
lar relation to identities like race, gender, and disability (Bennett, 1988;
Connor, 2006; Hehir, 2005; Lott, 2001). Research and scholarship often
do not consider how these multiple identities significantly influence each
other—so much so that it is difficult to really understand them in relation
to one identity without having some insight into the others. Disability, race,
and gender are not experienced separately in a vacuum. People of color
with disabilities do not have the option of choosing one or the other(s); we
have to be one and the other(s).
Alston et al. (1996) point out that
African Americans with disabilities are not able to choose and should not
have to choose between identifying with members of their racial group and
Universalism and Intersectionalities 23
individuals who share their disability. These individuals have achieved an in-
.
Whereas race, class, gender, and other dimensions of identity can be ex-
perienced and lived without including disability, the fact is, disability can-
not be experienced and lived without including these other dimensions of
identity. Being an African American with a disability particularly produces
very convoluted experiences that are difficult and sometimes self or life
altering. However, this particularity is by no means intended to represent
or promote a universal or essential way of being an African American with
a disability. It is only an acknowledgment of an African American with a
disability’s intersectional experiences of being an outsider within as well as
an outsider-within.
Thomas (1999) clarifies that
the term “Disability Studies” is used to refer to those academics, writers and
researchers who, in studying the disability, explicitly align themselves with
the social movement for the advancement of the social and political rights
of disabled people. (p. 8)
However, the field of disability studies has been frequently accused of be-
ing “too lily white” and/or mostly inclusive and representative of visible
disabilities, by prominent and up-and-coming culturally relevant disability
studies scholars with and without disabilities (Bell, 2005; Drazen, 2006).
With research and scholarship concerning the lived experiences of people
of color absent from the field of disability studies, the international devel-
opment of more disability studies programs and courses, and the influx
of up-and-coming culturally relevant scholars and graduates in this field,
there is a need for scholarship and research that constructs, develops, and
promotes a disability identity and disability culture that is actually inclusive
and embracive of various diversities. This need has led to a call for a second
wave of disability studies research and scholarship that particularly engages
disability within the broad context of social differences and multiple identi-
ties (Bell, 2005).
Because there is a lack of literature directly associated with the identity
development (let alone identification development) of African Americans
with disabilities (Alston et al., 1996; Castle Works, 2003; Connor, 2006; Lott,
24 Crises of Identifying
literature on racial identity began appearing in the early 1970s and concen-
trated almost exclusively in counseling psychology and psychotherapy jour-
nals. It was hoped that if practitioners could understand the process by which
the Black client “becomes” Black, they would be more sensitive to the racial
issues confronting the client in therapy. Numerous researchers explored and
continue to explore this concept from several perspectives. (p. 12)
from writing books to dropping out of school, has been read as symptom.
Under the hegemonic control of the medical model, disabled persons are
deciphered not understood” (p. 162). Even Kirby (2004) asserts that the
medical model normalizes species-typical functioning, which “tends to con-
ceal the contingent nature of human functioning” (p. 231). In particular
reference to the essentialization of disability, he reveals that “essentialism
about disability is the view that categories of disability and ability refer to
‘natural human kinds’” (Kirby, 2004, p. 236). According to Thomas (1999),
in the way it has been conceived, organized, and conducted, as well in the
nature and use of results, traditional disability research in medicine, reha-
bilitation, psychology, sociology and social policy has been carried out by
representatives of professional groups with little or no consultation with,
or involvement of, disabled people themselves. The consequence of much
of this research, it is argued, is not just to alienate disabled people but to
positively reinforce disablism in society. (p. 152)
Special Education, like so many other reforms won by the [Disability Rights
Movement], has been transformed from a way to increase the probabili-
ty that students with disabilities will get some kind of an education into a
badge of inferiority and a rule-bound, bureaucratic process of separating
and then warehousing millions of young people that the dominant culture
has no need for. While this process is uneven, with a minority benefiting
from true inclusionary practices, the overarching influences of race and
class preclude any significant and meaningful equalization of educational
opportunities. (p. 33)
studies are needed which attempt to define more clearly the strength of
association between psychosocial adjustment to disability . . . and racial iden-
tity attitudes among African Americans . . . .In addition, investigations are
recommended which measure African American clients’ perceptions of the
relative influence between disability membership and minority membership
on self-concept and psychological functioning. (p. 13)
Alston et al.’s (1996; Alston & Bell, 1996) suggestion confirms that this book
and its research would be significant in contributing to literature concern-
ing the lived of experiences of African American with disabilities. Even
more so, unlike Alston et al.’s (1996), this research includes a study of both
African American females and males with disabilities, which could provide
insight into intersectionalities involving gender, disability, and race as well
as the influences of gender dynamics on the identification development of
African Americans with disabilities. Wendell (1996) recognizes
I have read that when the little plants are young, the
blades of the wheat and the blades of the tares are so much
alike that it is difficult to tell them apart.
* * * * *
But the younger son was restless, and got tired of being
quietly at home. He had heard something about the world
outside, and he thought it must be a very fine place by all
accounts.
Very soon he had spent all his father had given him,
and had nothing left in his purse.
His father had been very sad all the time his boy had
been away. His heart had ached terribly, though his son had
never thought of that.
Every day he looked out for his lost one, and watched
for him along the roads and over the mountains till it grew
too dark to see.
But one day, when the son was yet a great way off, his
father saw him coming! Then the dear father ran to meet
him, and fell on his neck and kissed him.
* * * * *
And then the Pharisee thought of how he understood all
about God's law, and how he did not need anyone to teach
him what was written in the Scriptures.
But he did not know two things which would have made
him a different man—he did not know his own heart, and he
did not know God's heart.
He did not know that his own heart was full of pride and
love of self; he did not know that God's heart was full of
pity and tender love towards sinful men who came to Him
to be forgiven.
* * * * *
* * * * *
* * * * *
And as she stood there and thought of all His love and
compassion, she began to weep, and her tears fell down
over His feet as He reclined at the table.
Then she wiped His feet with her hair, and anointed
them with the sweet ointment.
But the Pharisee who had invited the Lord Jesus looked
on with anger. He thought if Jesus were a great teacher, He
would not have allowed a woman from the city to come and
wash His feet with her tears.
But Jesus knows all our hearts, and He could see that
the poor woman loved Him so much that she would go away
and try never to grieve Him any more.
And then the teacher gave a bright look, and she said,
"Yes, Charlie, you are right! And so are the others with their
'No's' all over the room. For unless the cup is mended, it is
of no use. The cup is a picture of our characters! If there is
a flaw in them, a crack that gets wider and wider, then the
cup is of no use, is it?"
She turned her face to the little boy, and a smile came
over his features as he answered, "There's a china-mender
comes down our road every week—he could do it!"
Just before this, the Lord came down the side of the
Mount of Olives, and in turning a corner of the steep path a
sight of the beautiful city of Jerusalem burst upon their
view. It says in the Gospel of Luke—
Jesus wept for all the sorrow that was coming on the
beloved city, and because the Jews would not have Him as
their Saviour.
This was indeed like the fig tree, which had leaves, but
no fruit.
The next day Jesus and His disciples passed by that fig
tree again, and it had begun to wither and dry up; and the
disciples said, "How soon is the fig tree withered!"
Do not let our dear Lord, Who died for us, come and
look into our hearts and find no fruit, but only leaves!
And what do you think the servant who had only one
did with his Talent? He went away and digged in the earth,
and hid his lord's money!
At length the time came for his return, and he called his
servants and reckoned with them.
The one who had traded with ten Talents brought ten
Talents more to his lord; and the man with five brought five
more; and the man with two brought two more. And the
lord was very pleased with these faithful servants, and said,
"Well done!" to each of them, and gave them great rewards.