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The Bounds of Responsibility 1St Edition Tadeusz Lewandowski Elisabeta Gabriela Ilie Online Ebook Texxtbook Full Chapter PDF
The Bounds of Responsibility 1St Edition Tadeusz Lewandowski Elisabeta Gabriela Ilie Online Ebook Texxtbook Full Chapter PDF
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The Bounds of Responsibility
Probing the Boundaries
Series Editors
Dr Robert Fisher Lisa Howard
Dr Ken Monteith
Advisory Board
2014
The Bounds of Responsibility
Edited by
Inter-Disciplinary Press
Oxford, United Kingdom
© Inter-Disciplinary Press 2014
http://www.inter-disciplinary.net/publishing/id-press/
ISBN: 978-1-84888-315-4
First published in the United Kingdom in eBook format in 2014. First Edition.
Table of Contents
Introduction vii
Tadeusz Lewandowski and Elisabeta Gabriela Ilie
Gavin Fairbairn
Abstract
In the paper I presented at Inter-Disciplinary.Net’s first conference on suicide in
2010, I discussed the question of where responsibility lies when ‘attempted
suicide’ goes wrong. My interest in that question was sparked by the story of
Claire Burchell, who in 2005 was awarded damages of £2.8 million when a UK
ambulance service admitted having taken too long to reach her after an emergency
call by her husband when he discovered that she had taken an overdose. I was
intrigued by the idea that responsibility for the devastatingly poor state in which
Mrs Burchell ended up could be laid solely at the door of those who had failed to
reach her in time. It seems to me that in Mrs Burchell’s case there was good reason
to consider that responsibility for that outcome might justifiably be shared more
widely. In particular it seemed (and seems) to me that in any suicidal or apparently
suicidal act, the protagonist, and in that instance Claire Burchell, must carry a
significant degree of responsibility for their fate, whether they live or die. In this
chapter I continue my exploration of responsibility in suicide, but expand my area
of interest to include successful as well as unsuccessful suicides. In doing so I
focus mainly on two questions: 1) Who is responsible for the results of a suicidal
or apparently suicidal act? 2) Can others be responsible for the suicidal act of one
who kills or tries to kill himself?
*****
Who is responsible when one person kills another in cold blood, having set out
to do so, because he wants the other person dead? In most countries, the answer
would be the same: the person who, for example, pulls the trigger of the gun,
poisons the drink or wields the knife that inflicts the fatal wound. Where the person
who does the killing does so with malicious or evil intent, he is guilty of murder,
because he is both causally and morally responsible for bringing about another’s
death, and did so with bad intentions. He is also responsible for other results of his
crime, including the distress experienced by the victim’s family and friends, and by
anyone else who is somehow touched by her death.
Suicide is like murder, because in each a person is killed, but it differs from
murder, because in suicide the person who dies also does the killing, or arranges
that his death occurs. Suicide is also akin to murder in the matter of responsibility,
because as in murder, in suicide the person who does the killing is causally and
2 Suicide and Responsibility
__________________________________________________________________
morally responsible both for the death he brings about, and for the distress that it
causes.
The suicidal and apparently suicidal acts in which people engage, raise
questions about the meaning of life and about the motivations that might underpin
a person’s act in ending or trying to end his life, or intentionally acting in such a
way that others believe that he tried to kill himself. They also raise a range of
interesting and important questions about responsibility, including the question of
whether suicide can sometimes be, not just a legitimate choice for an individual,
but a responsible one. Those who think that it can clearly believe that killing
oneself can be a valid choice in responsible living. They might argue, for example,
that someone who had reason to believe that she was a physical, emotional and
financial burden on her family, could both live and die responsibly by killing
herself, in order to relieve them of the worry for which her living was responsible.
More plausible examples of responsible suicide, to my mind, might be provided by
the stories of individual who arrange their deaths in order to draw attention to
matters of social and political importance. One well known example is the death in
Wenceslas Square in Prague, of Jan Palach, the Czech student who, in August
1968, suicided by setting fire to himself, to protest against the Soviet Union’s
invasion of Czechoslovakia. 1
In this chapter I want to devote most of my space to two other questions:
2. Can Others Be Responsible for the Suicidal Act of One Who Kills or Tries
to Kill Himself?
Earlier I addressed the question of whether another person can be held
responsible, because, for example, he did not prevent another person acting so as to
end his life, or did not act in ways that saved his life after he had taken such action.
I want, finally, to turn to situations in which we might be inclined to consider
another or others responsible for pushing a person towards suicidal action. There
are many instances of this kind in history and in literature.
For example, in Shakespeare’s play Romeo and Juliet, 14 Juliet, in an effort to
avoid a marriage she does not want, drinks a potion that allows her to feign death
by sending her to sleep in a way that conveys to others the impression of death.
6 Suicide and Responsibility
__________________________________________________________________
Her ruse is so successful that when Romeo hears the tragic news of her ‘death,’ he
goes to the crypt, drinks the poison he has bought to kill himself and dies beside
her. Finding him dead when she wakes up a short time later, Juliet kisses him in the
hope that enough poison remains on his lips to kill her, and then finishes the job by
stabbing herself with a dagger.
Juliet was responsible for Romeo’s death and he was responsible for hers,
though neither intended to drive the other to suicide. There are, however, situations
in which individuals are deliberately driven to suicide by others. In German the
term ‘Jemanden selbstmorden,’ literally to self-kill or suicide somebody, describes
the kind of situation I have in mind here. 15 A recently broadcast Belgian crime
drama, entitled Salamander 16 in English, featured several examples of the kind of
thing I have in mind, in which public figures, faced with the prospect of a life
ruined by exposure for serious and/or embarrassing misdemeanours, often of a
personal kind, suicide, rather than living with the results of such exposure. And in
history one situation in which it is claimed that an individual was ‘suicided’ by
others is found in the death of the composer Peter Illyich Tchaikovsky, who some
people, including Holden, 17 believe was driven to suicide by a so called ‘court of
honour’ convened by a group of friends from the school he had attended. These
friends, it is alleged, were so affronted by his homosexual inclinations and
behaviour, and by the disgrace that they believed it brought on the school they all
attended and on them as former students, that they drove him to suicide.
So far the situations I have examined, in which one person has responsibility
for another’s suicide, because he induces or even drives the other to kill himself,
have come either from fiction or from history. However, there are a great many
examples in real life and in the present day, of situations in which people of all
ages, kill themselves because of the ways they are treated by others, and in drawing
to a close I want, briefly, to draw attention to some examples. The first concerns
Ania, a 14 year old girl in Gdańsk, Poland, who killed herself following an incident
at school on October 20, 2006, when she was hideously attacked by a group of
boys. Reporting the incident, Domańska writes:
It was on the day after this incident that Ania used a skipping rope to hang herself
in her home.
Bullying, such as that suffered by Ania occurs everywhere and it is more and
more common for mobile phones and the internet to be involved, as in her story
and that of Holly Grogan, a 15 year old pupil at an English public school. On 16
Gavin Fairbairn 7
__________________________________________________________________
September 2009, Holly, who was said to have had a ‘zest for life,’ was killed by
oncoming traffic after jumping 30ft from a bridge onto a dual-carriageway, to
escape from the bullying she had suffered via her Facebook page. 19 Finally, and
moving to the US, in September 2010, is the story of Tyler Clementi, an 18-year-
old student at Rutgers University, who jumped to his death from the George
Washington Bridge, when he found that his roommate had secretly streamed over
the internet, a romantic encounter he had had with another man. 20
Romeo and Juliet were each responsible for the suicide of the other, though
neither acted from bad intentions. By contrast, from the account I have shared,
Tchaikovsky may have been the victim of a so-called ‘court of honour,’ who
pushed him into killing himself to satisfy their sense of what is right, and were thus
responsible for his death. The three present day stories about young people who
killed themselves after being bullied mercilessly by peers, are all, like the story of
Tchaikovsky, examples of situations in which it seems clear that the bullies who
drove them to suicide are responsible for the fact that they died. I think this is the
case, regardless of how many people were involved in the bullying and regardless
of their part in it, or how a court of law would assess their part in driving another
person to suicide.
Notes
1
Charles University Multimedia project, Jan Palach, accessed 7 June 2014,
http://www.janpalach.cz/en.
2
Gavin Fairbairn, ‘Who Is Responsible When “Attempted Suicide” Goes
Wrong?’, in Making Sense of Suicide, eds. Kathy Mackay and Jann E. Schlimme
(Oxford: Inter-Disciplinary Press, 2014); Gavin Fairbairn, ‘Suicide, Assisted
Suicide and Euthanasia: When People Choose to Die, Does It Matter What We
Call It?’, Roczniki Psychologiczne [The Annals of Psychology] 12 (2009): 97-120;
Gavin Fairbairn, Contemplating Suicide: The Language and Ethics of Self Harm
(London: Routledge, 1995).
3
Fairbairn, ‘Suicide, Assisted Suicide and Euthanasia’, 93.
4
W. Pavia, ‘Mother Wins £2.8 After Suicide Bid’, Times Online, 6 June 2005,
accessed 17 September 2009,
http://www.timesonline.co.uk/tol/news/uk/article746142.ece.
5
John Bateson, The Final Leap; Suicide on the Golden Gate Bridge (Berkeley and
Los Angeles: University of California Press, 2012).
6
Ibid., 40-41.
7
Ibid., 40.
8
Ibid., 55-57.
9
Ibid., 57.
10
Ibid.
8 Suicide and Responsibility
__________________________________________________________________
11
Ibid., 67-70.
12
Ibid., 69.
13
Ibid.
14
Jonathan Bate and Eric Rasmussen, William Shakespeare: The Complete Works,
(Basingstoke: Palgrave MacMillan, 2008).
15
David Daube, ‘The Linguistics of Suicide’, Philosophy and Public Affairs 1
(1972): 387-437.
16
Ward Hulselmans, Salamander (Skyline Entertainment, 2012).
17
Anthony Holden, Tchaikovsky: A Biography (New York: Random House, 1995).
18
Anna Domańska, ‘The Shadow in Our Schools’, Warsaw Voice, 20 December
2006, accessed 28 October 2009, http://www.warsawvoice.pl/view/13372/.
19
Daily Telegraph, ‘Pupil, 15, Fell to Death after Accusation She Slept with Girl’s
Brother’, accessed 7 June 2014,
http://www.telegraph.co.uk/education/educationnews/7369402/Pupil-15-fell-to-dea
th-after-accusation-she-slept-with-girls-brother.html.
20
Ed Pilkington, ‘Tyler Clementi, Student Outed as Gay on Internet, Jumps to His
Death’, accessed 4 June 2014,
http://www.theguardian.co,/world/2010/sep/30/tyler-clementi-gay-student-suicide.
Bibliography
Bate, Jonathan, and Eric Rasmussen. William Shakespeare: The Complete Works.
Basingstoke: Palgrave MacMillan, 2008.
Bateson, John. The Final Leap: Suicide on the Golden Gate Bridge. Berkeley and
Los Angeles: University of California Press, 2012.
Daily Telegraph. ‘Pupil, 15, Fell to Death after Accusation She Slept with Girl’s
Brother’. Accessed 7 June 2014.
http://www.telegraph.co.uk/education/educationnews/7369402/Pupil-15-fell-to-de
ath-after-accusation-she-slept-with-girls-brother.html.
Fairbairn, Gavin. Contemplating Suicide: The Language and Ethics of Self Harm.
London: Routledge, 1995.
———. ‘Suicide, Assisted Suicide and Euthanasia: When People Choose to Die,
Does It Matter What We Call It?’ Roczniki Psychologiczne [The Annals of
Psychology] 12 (2009): 97–120.
Pavia, W. ‘Mother Wins £2.8 after Suicide Bid’. Times Online, June 2005.
Accessed 17 September 2009.
http://www.timesonline.co.uk/tol/news/uk/article746142.ece.
Pilkington, Ed. ‘Tyler Clementi, Student Outed as Gay on Internet, Jumps to His
Death’. Accessed 4 June 2014.
http://www.theguardian.co,/world/2010/sep/30/tyler-clementi-gay-student-suicide.
Abstract
Within the inclusive urban design debate, the mainstream research steps away from
traditional urban design ideals of place-making and deals predominantly with the
physical accessibility and free use of the built environment. This research
challenges commonly accepted notions of city-making, particularly urban
inclusivity by design, and the actual extent of this inclusion in the case of
marginalised groups. The chapter builds on sociological theories of socio-cultural
production of space/place and of the body in space in order to explore an
alternative to traditional approaches to inclusive urban design. The proposed
conceptual framework assumes the knowledge sprung from the in-place, lived-in
experiences of individuals to be invaluable to an inclusive urban design process.
The intent is to introduce imaginary geographies, personal embedded constructions
of the urban reality and one’s place in it, as potential disciplinary working
concepts. To probe this, the research uses the case of the homeless as an example
of urban marginalised groups. The underlining aim is to introduce the adopted
sociological toolset into the urban design discipline. The research starts from field-
collected urban narratives surrounding the urban homeless, which are subsequently
translated into a specific visual urban design language characterised by tracing and
mapping uses, significations, and appropriations of (public) space. Homeless
narratives constitute, as a result, the prime material to inform inclusive urban
design theory towards practices that are more empowering and involving of
contemporary excluded social groups at all stages of the urban design process. The
aim is to create a conceptual framework aware of a diversity of urban users, a
framework that supports and facilitates self-expressions of marginalised
individuals at different times in different places in the city.
*****
4. Discussion
The urban design discipline, in its present theoretic-methodological framework,
provides little account of how place is created by those living outside the
established social norms and mainstream cultural representations; moreover, the
city as a multi-layered discursive construction of marginalised groups appears to be
little understood and integrated into urban design processes. Such gaps in urban
knowledge need to be addressed in order to account for a diversity and plurality of
urban users and to actively design for urban inclusivity.
For inclusive urban design to be successful it implies not merely a change in
the physical form of the city, but a change in urban discourses, in popularised
images of the city and, ultimately, a change in societal attitudes.
Turning on to understandings and experiences of the city formed outside of
mainstream society, carries an unexplored ideological resource outside the
designer’s frame of thought. The urban reality is a cultural product constructed
from within, as well as from without, by means of in-place imaginaries; the urban
individual, as both result and co-producer of the city – image and materiality. In
order to document the knowledge along with lived-in experiences of the urban and
consequently translate them in a language familiar to the (inclusive) urban design
discipline, there is a need for an appropriate and coherent conceptual research
framework.
The present research places the concept of imaginary geographies at the core of
discussions on urban marginalisation/inclusion and, consequently, at the
foundation of urban design as the city/place-making debate.
In the particular case of the urban homeless, the unsuccessful outcomes of
projects and policies indicate an insufficient knowledge of the subject group and a
faulty set of tools adopted by decision makers. Therefore, more effective and
empowering modes to tackle homelessness are yet to be explored. Laying the
ground for a different approach requires a better understanding of those facing
homelessness, what constructs their reality, and how this reality takes form and
what characterises it. Engaging with the homeless from an urban design
perspective is to a certain extent an act of empowerment and has the potential to
lead to a higher quality inclusive urban environment, as far as this particular group
is concerned.
18 Shaping Imaginary Geographies into Inclusive Cities
__________________________________________________________________
Notes
1
CABE, The Principles of Inclusive Design (They Include You) (London:
Commission for Architecture and the Built Environment / CABE, 2006), accessed
10 March 2013,
http://webarchive.nationalarchives.gov.uk/20110118095356/http:/www.cabe.org.u
k/files/the-principles-of-inclusive-design.pdf.
2
Ibid.
3
Ali Madanipour, ‘Roles and Challenges of Urban Design’, Journal of Urban
Design 11, No. 2 (2006): 173-193, accessed 9 November 2011,
http://dx.doi.org/10.1080/13574800600644035.
4
DCLG, Statutory Homelessness (London: Department for Communities and
Local Government – Homeless Pages, 2011), accessed 10 December 2013,
https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/264
836/Statutory_Homelessness_3rd_Quarter__Jul_-Sep__2013_England__2_.pdf.
5
Michael Savage, Gaynor Bagnal and Brian J. Longhurst, Globalization and
Belonging (London: SAGE, 2005), accessed 19 October 2013,
http://books.google.co.uk/books?hl=en&lr=&id=hjxLAU2YjzsC&oi=fnd&pg=PP1
&dq=Globalization+and+belonging&ots=JagUuRJCed&sig=2zF-Xyz68jSlrXdEu
y-1q-sUezA#v=onepage&q=Globalization%20and%20belonging&f=false.
6
Paola Jiron, ‘Mobility on the Move: Examining Urban Daily Mobility Practices
in Santiago de Chile’ (PhD Thesis, London School of Economics and Political
Science, 2008), accessed 5 March 2014,
http://vivienda.uchilefau.cl/extension/pdfs/PHD_Thesis_Jiron_Paola.pdf.
7
Jürgen Habermas, The Theory of Communicative Action: Lifeworld and System:
A Critique of Functionalist Reason Volume 2, trans. Thomas McCarthy (Boston:
Beacon Press, 1989).
8
OECD, Oslo Manual: Guidelines for Collecting and Interpreting Innovation Data
(Paris: Organisation for Economic Co-Operation and Development: Statistical
Office of the European Communities, 2005), accessed 5 January 2013,
http://www.uis.unesco.org/Library/Documents/OECDOsloManual05_en.pdf.
9
Michele Lancione, ‘How Is Homelessness?’, European Journal of Homelessness
(FEANTSA 2013): 239, accessed 14 November 2013,
http://www.feantsaresearch.org/IMG/pdf/ml_tp.pdf.
10
Gustavo Capdevila, Human Rights: More Than 100 Million Homeless
Worldwide (Geneva: Inter Press Service News Agency, 2005), accessed 7 February
2013,
http://www.ipsnews.net/2005/03/human-rights-more-than-100-million-homelesswo
rldwide/.
Elisabeta Gabriela Ilie 19
__________________________________________________________________
11
Teresa Gowan, Hobos, Hustlers, and Backsliders: Homeless in San Francisco
(London: University of Minnesota Press, 2010).
12
Lancione, ‘How Is Homelessness?’, 237.
13
Paul Cloke et al., ‘Ethics, Reflexivity and Research: Encounters with Homeless
People’, Ethics, Place and Environment 3, No. 2 (2000): 133-154, accessed 8
November 2011, http://www.tandfonline.com/doi/pdf/10.1080/713665889; Gowan,
Hobos, Hustlers, and Backsliders.
14
Cloke, et al., ‘Ethics, Reflexivity and Research’.
15
Lancione, ‘How Is Homelessness?’, 238.
16
Dragana Avramov, ed. Coping with Homelessness: Issues to Be Tackled and
Best Practices in Europe (Aldershot: Ashgate Publishing, 1999); Gowan, Hobos,
Hustlers, and Backsliders; Samira Kawash, ‘The Homeless Body’, Public Culture
10, No. 2 (1998): 319-339, accessed 21 January 2013,
http://publicculture.dukejournals.org/content/10/2/319.full.pdf.
17
Catarina de Albuquerque and Virginia Roaf, On the Right Track: Good Practices
in Realising the Rights to Water and Sanitation (Lisbon: United Nations, 2012),
accessed 7 April 2013,
http://www.ohchr.org/Documents/Issues/Water/BookonGoodPractices_en.pdf.
18
Alexandra Zavis, ‘Housing Project for Hard-Core Homeless Pays Off’, Los
Angeles Times (2012), accessed 23 May 2013,
http://articles.latimes.com/2012/jun/08/local/la-me-0608-homeless-savings201206
08.
19
Ali Madanipour, ‘Marginal Public Spaces in European Cities’, Journal of Urban
Design 9, No. 3 (2004): 267-286, accessed 9 December 2013,
http://dx.doi.org/10.1080/1357480042000283869.
20
Marc Auge, ‘From Places to Non-Places’, in Non-Places: Introduction to an
Anthropology of Supermodernity, trans. John Howe (New York: Verso Books,
1995), 75-115.
21
Jiron, ‘Mobility on the Move’.
22
Elizabeth Burton and Lynne Mitchell, Inclusive Urban Design: Streets for Life
(London: Routledge, 2013).
23
Cloke, et al., ‘Ethics, Reflexivity and Research’; Paul Koegel, ‘Through a
Different Lens: An Anthropological Perspective on the Homeless Mentally Ill’,
Culture, Medicine and Psychiatry 16, No. 1 (1992): 1-22, accessed 29 October
2011, http://link.springer.com/article/10.1007/BF00054437.
24
Cloke, et al., ‘Ethics, Reflexivity and Research’; Kawash, ‘The Homeless Body’.
25
Henri Lefebvre, ‘The Right to the City’, in Writings on Cities, trans. Eleonore
Kofman and Elizabeth Lebas (Oxford: Blackwell Publishers, 1996), 63-181.
20 Shaping Imaginary Geographies into Inclusive Cities
__________________________________________________________________
26
Judith Butler, Gender Trouble: Tenth Anniversary Edition (New York:
Routledge, 1999).
27
Michel de Certeau, The Practice of Everyday Life: Living and Cooking, trans.
Steven Rendall (Los Angeles: University of California Press, 1988).
28
Jon Anderson, ‘Talking Whilst Walking: A Geographical Archaeology of
Knowledge’, Area 36, No. 3 (2004): 254-261, accessed 1 November 2013,
http://onlinelibrary.wiley.com/doi/10.1111/j.0004-0894.2004.00222.x/pdf;
Habermas, The Theory of Communicative Action.
29
Jiron, ‘Mobility on the Move’.
30
Stan Lester, ‘An Introduction to Phenomenological Research’, Stan Lester
Developments (1999): 1, accessed 15 August 2013,
http://www.psyking.net/HTMLobj-3825/Introduction_to_Phenomenological_Rese
arch-Lester.pdf.
31
Jiron, ‘Mobility on the Move’.
32
Anderson, ‘Talking Whilst Walking’.
33
Ibid.
34
Filipa Matos Wunderlich, ‘Walking and Rhythmicity: Sensing Urban Space’,
Journal of Urban Design 13, No. 1 (2008): 126, accessed 28 March 2014,
http://www.walk21.com/papers/Zurich%2005%20Matos%20Walking%20and%20r
hythmicity%20sensing%20urban%20space.pdf.
35
Ibid.
36
Caroline Wang and Mary Ann Burris, ‘Photovoice: Concept, Methodology, and
Use for Participatory Needs Assessment’, Health Education and Behavior 24, No.
3 (1997): 369-387, accessed 7 September 2013,
http://heb.sagepub.com/content/24/3/369.full.pdf+html.
37
Caroline C. Wang, Jennifer L. Cash and Lisa S. Powers, ‘Who Knows the Streets
as Well as the Homeless? Promoting Personal and Community Action through
Photovoice’, Health Promotion Practice 1, No. 1 (2000): 81-89, accessed 7
September 2013, http://hpp.sagepub.com/content/1/1/81.full.pdf+html.
38
Emily Paradis and Janet Mosher, DO Something (Toronto: The Canadian
Homelessness Research Network Press, 2012), accessed 2 October 2013,
http://homeless.samhsa.gov/ResourceFiles/CBPRwomenhomeless_report.pdf.
Bibliography
Avramov, Dragana, ed. Coping with Homelessness: Issues to Be Tackled and Best
Practices in Europe. Aldershot: Ashgate Publishing, 1999.
Burton, Elizabeth, and Lynne Mitchell. Inclusive Urban Design: Streets for Life.
London: Routledge, 2013.
Butler, Judith. Gender Trouble: Tenth Anniversary Edition. New York: Routledge,
1999.
Capdevila, Gustavo. Human Rights: More Than 100 Million Homeless Worldwide.
Geneva: Inter Press Service News Agency, 2005. Accessed 7 February 2013.
http://www.ipsnews.net/2005/03/human-rights-more-than-100-million-homelesswo
rldwide/.
Cloke, Paul, Phil Cooke, Jerry Cursons, Paul Milbourne, and Rebekah
Widdowfield. ‘Ethics, Reflexivity and Research: Encounters with Homeless
People’. Ethics, Place and Environment 3, No. 2 (2000): 133–154. Accessed 8
November 2011. http://www.tandfonline.com/doi/pdf/10.1080/713665889.
De Albuquerque, Catarina, and Virginia Roaf. On the Right Track: Good Practices
in Realising the Rights to Water and Sanitation. Lisbon: United Nations, 2012.
Accessed 7 April 2013.
http://www.ohchr.org/Documents/Issues/Water/BookonGoodPractices_en.pdf.
22 Shaping Imaginary Geographies into Inclusive Cities
__________________________________________________________________
Jiron, Paola. ‘Mobility on the Move: Examining Urban Daily Mobility Practices in
Santiago de Chile’. PhD Thesis, London School of Economics and Political
Science, 2008. Accessed 5 April 2014.
http://vivienda.uchilefau.cl/extension/pdfs/PHD_Thesis_Jiron_Paola.pdf.
Kawash, Samira. ‘The Homeless Body’. Public Culture 10, No. 2 (1998): 319–
339.
Lefebvre, Henri. ‘The Right to the City’. In Writings on Cities, 63–181. Translated
by Eleonore Kofman and Elizabeth Lebas. Oxford: Blackwell Publishers, 1996.
———. ‘Roles and Challenges of Urban Design’. Journal of Urban Design 11,
No. 2 (2006): 173–193.
Elisabeta Gabriela Ilie 23
__________________________________________________________________
OECD. Oslo Manual: Guidelines for Collecting and Interpreting Innovation Data.
Paris: Organisation for Economic Co-Operation and Development: Statistical
Office of the European Communities, 2005. Accessed 5 January 2013.
http://www.uis.unesco.org/Library/Documents/OECDOsloManual05_en.pdf.
Zavis, Alexandra, ‘Housing Project for Hard-Core Homeless Pays Off’. Los
Angeles Times, 8 June, 2012. Accessed 23 May 2013.
http://articles.latimes.com/2012/jun/08/local/la-me-0608-homeless-savings201206
08.
Wang, Caroline, and Mary Ann Burris. ‘Photovoice: Concept, Methodology, and
Use for Participatory Needs Assessment’. Health Education and Behavior 24, No.
3 (1997): 369–387. Accessed 7 September 2013.
http://heb.sagepub.com/content/24/3/369.full.pdf+html.
Wang, Caroline C., Jennifer L. Cash, and Lisa S. Powers. ‘Who Knows the Streets
as Well as the Homeless? Promoting Personal and Community Action through
Photovoice’. Health Promotion Practice 1, No. 1 (2000): 81–89. Accessed 7
September 2013. http://hpp.sagepub.com/content/1/1/81.full.pdf+html.
Elisabeta Gabriela Ilie is an urban design researcher with UCL’s Bartlett School
of Planning. Her current interests focus on place-making processes and
negotiations of socio-culturally produced identities in the urban context. Her PhD
dissertation deals with the inclusive urban design debate.
‘I Dream to Live on My Own Away from Family’: From
Dependence to Freedom, a Shared Dream by Teens and Young
Adults with Cognitive Disabilities
*****
- Being independent
- Choosing a partner
- Feeling disabled
A. Being Independent
B. Making a Living
The issue of finding a job and making money kept on coming up in our
conversations. In the US, people with disabilities are entitled to Supplemental
Security Income (SSI), which is around $850 a month. The group as a whole,
including my daughter, comes from middle-class families and had thus enjoyed the
better side of life, without economic struggles. Access to college is precarious for
students with disabilities. Some colleges around the country offer programmes that
include students with cognitive disabilities. The types of jobs open to people with
cognitive disabilities are usually at the lower end of the salary scale.
Without hesitation, all wanted to find a well-paid job. During our discussion, I
realised many did not quite grasp the meaning of money’s value well enough. Most
of them were still under parental supervision and seemed to get cash as needed.
However, Eric told us that he would like to take an aptitude test. He wanted to
further his education. He said: ‘Go to school and take classes plus learn about what
28 ‘I Dream to Live on My Own Away from Family’
__________________________________________________________________
the requirements are to know about having a certain job.’ He added: ‘I need to
make sure that this job makes a good amount of money to pay off the bills.’ This
realisation furthered my thoughts on the fact that we as a society still hinder their
growth. Based on our experience with Thavory, while she is not paying all her bills
at this point, she is mastering the concept of bills and how much to spend per week
in order to live. This learning has happened mostly because she lives on her own.
She has had to learn about being overdraft and how to deal with the situation.
When she got an overdraft, she was in tears – ‘I am so ashamed of myself.’ While I
consoled her, telling her that this is the learning curve as we grow up, remembering
that in my youth, I had been overdraft once or twice.
There is much work to do on this specific domain to support independence in
money management and locating a job.
C. Making Friends
A few months ago, when Thavory came to do a presentation about her life, her
last slide read:
As soon as she read this sentence, a voice rose: ‘I feel you!’ The group started
to talk about the feeling of loneliness and wanting to make more friends. The
discussion was painful to follow, as many expressed the fear of being alone and
having to rely on their families as a social network. I started to think about all the
dinners that I had at my house, filled with different people sharing laughter, stories,
and heated discussions that came up randomly around the table. I realised that
Thavory spends many evenings alone watching TV, using Facebook, and longing
for someone to share her physical and emotional space. As many young adults in
the group, most of her social-life is still very much linked to ours.
The group felt that making friends was a difficult task. I suspect that they have
low self-esteem, which seems to be the lot for many within the group. How do we
support the growth of self-esteem and love of self, regardless of abilities?
D. Choosing a Partner
Many would like to find a life-partner and some would rather stay alone, for a
while at least. While most state that they are straight, one is lesbian who happens
to be labelled as having autistic tendencies, which presents its own challenge as
described by Emily Brooks. In this specific case, finding a girlfriend is a huge
challenge. It seems that one possible option would be online dating. The challenge
is still on, not to mention the difficulty in talking about sexuality with people with
cognitive disabilities. A very important subject to tackle, which is not just about
safe sex, is getting a better grasp of the meaning of long or short term
29 Laurence Emmanuelle Hadjas
_______________________________________________________
relationships. Marc is keen on finding a woman without a disability. When I asked
him why, he replied:
Reflecting on Marc’s comment, I realise how looks and unsaid words can be as
powerful as mean words. Another issue to ponder in a more critical way is how
stigmatisation operates despite some of our best collective efforts to eliminate it.
Eric and Vanessa favoured partners with similar interests, who would be good
friends. Vanessa shared with the group:
I was surprised by what was not said, such as: ‘I would like a partner that could
please my family.’ I could feel the distance between their aspirations and their
families’ expectations, revealed by this new, open conversation, in which each of
the young adults was there to think and wonder about themselves as a single unit.
E. Getting Married
It all started with a laugh and a question: ‘Hey, Laurence, are you married?’ My
‘Yes’ made the whole group giggles. Due to the laughs and such, we pulled out our
writing tablets and pens to start writing about marriage. Marc started the
conversation: ‘Having a family is a big responsibility and a lot of stress, and while
we are on the subject, I am not sure I want to have children, I don’t really like to
deal with kids!’ Eric replied to him:
We all paused and looked at Eric. His voice was soft and calm, but we could all
feel his desire to live a ‘normal’ life. Sophie jumped in and added:
By Ebb
Please don’t stare when you see me walking by
I can’t help being born differently
When people look at me like I’ve committed many crimes
Nobody is perfect and fault cannot be seen
But mine is on show to everyone because of an undeveloped
gene
But please don’t stare and leer at me cos inside my heart does
cry 5
F. Children
Naturally, our conversation went from marriage to children. I shared with the
group that I am the mother of three girls and being a mom was my favourite job.
They asked me multiple questions about birth, taking care of babies, and what to
do with school and homework. The nature of their questions was as enlightening as
the answers they gave about the subject: the desire to have children and parenting.
Aside from Vanessa, most seemed keen to have a family that would include
children. Eric explained that having children would be a good experience. He also
added: ‘I will love my kids no matter what, and would let them make their own
decisions.’ Eric’s comment made me think about parenting in general. It would be
nice if all of us were able to love our children as they are, and let them make their
31 Laurence Emmanuelle Hadjas
_______________________________________________________
own decisions without any reservations. Sophie wanted to have a boy and girl
because she felt it would give her an opportunity to do what she likes: being girly
with a girl and doing sports with a boy. Gender lines are clear for Sophie. It is also
crucial to point out that mainstream America has clear gender lines for the most
part! Overall, our conversation about having a family brought us to the topic of our
families, and it how was growing up.
One can start thinking: What to do? One side wants freedom; the other side wants
to make sure that their grown-up children are safe. Based on my experience, letting
go is a hard venture, but it also comes with great rewards for all!
Overall, the group agreed that their families could become a tool toward
independence. They all felt loved by their parents, but they were too present in
their lives, which in turn kept on infantilising them and discouraging them from
making choices pertinent to their aspirations, dreams, and sense of being.
H. Feeling Disabled
We will all be disabled at some point. However, being born with a cognitive
disability is a life condition. When asked what kind of disabilities were represented
in the group, most were able to say that they learned differently, but had no clear
explanation about their disability. The consensus seemed to cover learning
differences, which is true, but lacks clarity. Without knowing exactly what their
disabilities are about, they cannot teach others about their needs. Knowing about
themselves would help others better support them in their process towards
freedom.
32 ‘I Dream to Live on My Own Away from Family’
__________________________________________________________________
I had made sure my daughter would be able to articulate notions about her
disability in order to empower her. Another idea to get to the road of independent
living is having the ability to name, and not point out!
Notes
1
Laurence E. Hadjas, ‘What Will My Child and I Learn Today?’ The Struggle of a
Parent of a Disabled Child (PhD diss. University of Illinois at Chicago, 2005).
2
Paul K. Longmore, Why I Burn My Book and Other Essays on Disability
(Philadelphia: Temple University Press, 2001), 258.
3
Max Van Mannen, Researching Lived Experiences. Human Science for an Action
Sensitive Pedagogy (Albany, NY: State University of New York Press, 1990).
4
Albert Camus, Resistance Rebellion and Death: Essays, trans. Justin O’Brien
(New York: Vintage Press 1995 [1960]), 103.
5
Ebb, Please Don’t Stare, accessed 12 November 2013, http://www.disabled-
world.com/communication/poetry/, 2011.
6
Margret A. Winzer, The History of Special Education: From Isolation to
Integration (Washington, D.C.: Gallaudet University Press, 1993).
Bibliography
Camus, Albert. Resistance Rebellion and Death: Essays. Translated by Justin
O’Brien. New York: Vintage Press, 1995 [1960].
Hadjas, Laurence E. ‘What Will My Child and I Learn Today?’ The Struggle of a
Parent of a Disabled Child. PhD diss. University of Illinois at Chicago, 2005.
Leavy, Patricia. Fiction as Research Practice Short Stories, Novellas, and Novels.
Walnut Creek, CA: Left Coast Press, 2013
Smith, Robin, M., and Nirmala Erevelles. ‘Towards Enabling Education: The
Difference that Disability Makes’. Educational Researcher 33, No. 8 (November,
2004).
Van Mannen, Max. Researching Lived Experiences. Human Science for an Action
Sensitive Pedagogy. Albany, NY: State University of New York Press, 1990.
*****
1. Jan’s Story
A few months ago we received a phone call from a young friend who wanted to
talk about an upsetting incident in her workplace. Jan works with adults who have
learning disabilities. She loves her work and is well thought of by her colleagues,
so we were surprised when she told us about having been criticised by two
colleagues for using children’s’ songs in the singing groups she runs as part of her
work. Their criticism had been so unexpected, so direct, and delivered in such an
authoritative way that she had felt unable to question what they had said, even
though she has significantly more knowledge and experience than they have in the
area on which their criticism was focused.
Another random document with
no related content on Scribd:
LIV.
True science finds its own by kindlier quest,
Nor lowers itself to torture’s loathsome test;
Multiplies not the sentient being’s pain,
But makes a keener lens of man’s own brain;
Seeks not by outrage dire a soul to grasp,
Or dimly trace its agonising gasp;
But surer learns what fire that soul may move,
Not wrung with deathly pang, but thrilled by breath of love.
LV.
To touch of love alone will Nature pour
The choicest treasures of her occult store;
Into the ear of love alone repeat
The secret of the song our pulses beat;
To eye of love alone, with joyance bright,
Shows she her form suffused in living light;
To heart that loves her, Nature gives to know
How from Love’s might alone all thoughts of Wisdom grow.
LVI.
So opes a vaster knowledge to the view,
Love points the way and woman holds the clue;
Nature on her the trustful office laid,
And arbiter of human fortune made;
With woman honoured, rises man to height,
With her degraded, sinks again in night;
Yet still the wayward race has sluggish been
To learn the fealty due to Earth’s advancing queen.
LVII.
For long, in jealousy for corporal power,
Had man contemned his sister’s worthier dower;
What time his ruder feelings held the sway,
With little hope or hint of truer way;
Till on a wistful world has dawned benign
The prescience of a potency divine
Sleeping, unrecked of, deep in woman’s heart,
Waiting some kiss superne, into full life to start.
LVIII.
Woman’s own soul must seek and find that fay,
And wake it into light of quickening day;
Man’s counsel helpful in that track shall be
For all his learning rich return and fee;
His philosophic and chirurgic lore,
To her imparted, swell her innate store;
Till, clothed with majesty of mind she stand,
Regent of Nature’s will, in heart, and head, and hand.
LIX.
Each sequent life shall feel her finer care,
Each heir of life a wealthier bounty share;
Those lives allied in equal union chaste
A sweeter purpose, purer rapture, taste;
Both parents vindicate the duteous name,
The troth and kinship of their linked claim;
The only rivalry that moves their mind,
How for their lineage fair still larger fate to find.
LX.
Their task ineffable yields wondrous gain,
Their energies celestial force attain;
Their intermingled souls, with passion dight,
In aspiration soar past earthly height;
Nor fades their prospect into void again,—
Woman has gift the vision to retain,
And mould their dreams of love, with conscious skill,
To human living types supreme of form and will.
LXI.
The psychic and the physical at one
In fervid vigour through their frame shall run;
Their science leaps the bounds of straiter space,
Whose crude dimensions curbed their growing grace;
Whose inefficiencies allowed not verge
For rich research their lofty souls would urge;
To them the keys of life and love are given,—
The love that lifts the life from rank of earth to heaven.
LXII.
And “winged words on which the soul would pierce
Into the height of love’s rare Universe”
Shall native flow from them as mother tongue
In softest strain to listening infant sung;
Till, the sad memories of unmeant wrong
Solving in music of conciliant song,
Man’s destiny with woman’s blended be
In one sublime progression,—full, and strong, and free.
LXIII.
L’Envoi.
NOTES, &c.
I.
“Woman was the first human being that tasted bondage. Woman
was a slave before the slave existed.”—August Bebel (“Woman,”
Chap. I.).
Id.... “From the very earliest twilight of human society, every
woman (owing to the value attached to her by man, combined with
her inferiority in muscular strength) was found in a state of bondage
to some man.”—J. S. Mill (“The Subjection of Woman,” Chap. I.).
Id.... “In every country, and in every time, woman, organically
weaker than man, has been more or less enslaved by him.”—
Letourneau (“The Evolution of Marriage,” Chap. XI.).
Id....
“It raised up the humble and fallen, gave spirit and strength to the poor,
And is freeing from slavery Woman, the slave of all ages gone by.”
—C. G. Leland (“The Return of the Gods”).
“The mind of man is infinite. Beyond this, man has a soul. I do not
use this word in the common-sense which circumstances have given
to it. I use it as the only term to express that inner consciousness
which aspires.”—Richard Jefferies (“The Story of My Heart,” Chap.
IX.).