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Research Updated Febuary 19.
Research Updated Febuary 19.
Research Updated Febuary 19.
McArthur Highway, Brgy. Kiagot, 8002 Digos City, Davao del Sur,
Philippines
May 2024
ii
APPROVAL SHEET
bers”. has been prepared and submitted by Eden Claire P. Relacion, Dhana An-
This nursing research became a reality with kindness, support, and help.
The researchers would like to extend their sincere thanks to all of them.
First of all, the researcher would like to thank Almighty God for His endur-
ing grace, guidance and protection that He has bestowed upon us during this re-
search project.
We would like to express our sincere gratitude to our adviser, Ma’am, Mar-
ilou C. Diana, for her continuous support, patience, motivation, and immense
knowledge. Her guidance helped us throughout this research and writing our the-
sis.
We are incredibly grateful to our parents for their love, prayers, caring,
patiece, and sacrifices to educate and prepare us for our future. Also, the finan-
cial aid they gave us from the start to the end of this project. The shelter, food,
and water you provided us to survive the months of preparation and development
The Researchers
iii
DEDICATION
iv
ABSTRACT
tion deficits and restricted and repetitive behaviors, which can significantly impact
family dynamics in various ways such as increased stress levels among family
ties experienced by individuals with ASD (Ibanez et al., 2018). This thesis aims at
investigating how families with ASD members behave emotionally and interact
(ABC) (Krug et al., 1980) and qualitative interviews (N = 20) with parents and sib-
lings of individuals with ASD aged between 5-18 years old. The study will explore
the impact of Autism Spectrum Disorder on family relationships, the role of family
support systems, and the effectiveness of interventions for families with Autism
Spectrum Disorder members. The findings of this study will provide insights into
the complexities of family dynamics in Autism Spectrum Disorder and inform the
Page No.
TITLE PAGE i
APPROVAL SHEET ii
ACKNOWLEDGEMENT iii
DEDICATION iv
TABLE OF CONTENTS v
LIST OF FIGURES vi
Research Design 14
Sampling Technique 14
Subjects/Respondents of the Study 14
Research Locale 15
Research Instrument 15
Data Gathering Procedure 15
Data Analysis 17
Ethical Considerations 18
REFERENCES 18
APPENDICES
Appendix A. Letter to Dean of Nursing 20
Appendix B. Letter to the Skill Hive Therapy Center 21
Appendix C. Letter to the Respondents 22
Appendix D. Questionnaires 24
CURRICULUM VITAE 26
LIST OF FIGURES
3 Questionnaire 24
LIST OF APPENDICES
APPENDIX DESCRIPTION
A LETTER OF THE DEAN
CHAPTER 1
THE PROBLEM AND ITS SETTING
INTRODUCTION
Adult and young people on the autism spectrum disorder with their par-
ents’ face issues and challenges on a day-to-day basis. Persistent difficulties with
social communication and social interaction, they may not understand social
rules such as how to stand from somebody else, or they may find it difficult to
make friends. Collaborating with the families of these children in therapy ses-
sions is fast becoming best practice in many countries (Thompson & Mcferran,
2015). Mothers expressed emotion and were coded as significantly more critical
and less warm towards their child with ASD than the sibling (Griffith, Hastings,
consequences on their transport across the blood barrier and their availabil-
ity during brain development (Cascio et al., 2019). Due to no indirect effect
through social aid becoming observed for any member of the family and no
and is not the fault of the individual with the condition (Hu, Han, Bai &, Gao,
levels.
This research aims to determine the behavior, emotions and relational interaction
of autism spectrum disorder in Bansalan, Davao del Sur. Specifically, this study
Child Demographics
1.1 Gender
1.2 Age
1.3 Sex
Family Demographics
2. What are the experiences and struggles of the family having a member that
2.1 What are the behavior, emotions and relational interaction of family
3. What are the challenges encountered by the family having a member with
4. What are the coping mechanisms did the family apply to cope up with the
5. What are the insights they share to inspire there family member having Autism
Spectrum Disorder?
Theoretical Framework
This study is anchored by are the following theories, first, is the Family
System Theory of Bowen (1966). This theory connects the multiple roles an indi-
vidual possesses within the family systems as being responsible for an individ-
(2001). This theory examines how human behavior and development are influ-
enced through cognitive, behavioral, and environmental factors. Also, the Attach-
ment theory which focuses on how individuals learn from their environment and
how they develop beliefs, attitudes, and behaviors. Next theory is Stress and
Coping theory by Krohne (2002). This theory explains how individuals respond to
stress and how they cope with challenging situations. And the last theory is So-
cial Support theory by Luther et.al (2005). That acquiring social support and re-
Family Systems Theory This theory states that families are interconnected and
that the behavior of one family member can affect the behavior of others. In the
case of a family with a member with Autism Spectrum Disorder (ASD), this theory
can help in understanding the complex interactions within the family system and
how it can affect the behavior, emotions and relationships of everyone involved.
Social Cognitive Theory: This theory focuses on how individuals learn from
their environment and how they develop beliefs, attitudes, and behaviors. In the
context of ASD, this theory can be applied to understand how parents and sib-
lings learn to cope with the challenges that come with having a family member
with ASD and how their attitudes and behaviors towards ASD can affect the indi-
shape the nature of relationships throughout one's life. In the context of ASD, this
theory can be applied to understanding how the attachment style between the in-
dividual with ASD and his/her family members can affect their behavior, emo-
Stress and Coping Theory: This theory explains how individuals respond to
stress and how they cope with challenging situations. In the context of families
with a member with ASD, this theory can help in understanding the stressors that
families face, how they cope with them, and how their coping strategies can af-
Social Support Theory: This theory emphasizes the importance of social sup-
port networks in coping with stress and challenging situations. In the context of
ASD, this theory can help in understanding the role of social support networks,
The scope of our research focuses on the behavior, emotions, and rela-
tional interaction of families who have a member with Autism Spectrum Disorder
(ASD). The study will explore the experiences of families with children or siblings
tus. The research will also examine the impact of ASD on the family's daily rou-
This research will focus on families who have a member with ASD and will
not include families with members who have other developmental disorders. The
study will also exclude families who do not reside in the same household with the
ASD member. The research will not look into the medical or clinical aspects of
ASD, but instead, concentrate on its social and emotional implications. Further-
more, the study will not cover the effects of interventions or therapies on the fam-
Therapist. The Findings of this study, as well as the method used, can be bene-
ficial to both children and adults, who wish to find a solution and possible treat-
Immediate Family. The data gathered in this study would be of great help to ev-
eryone, especially to those families who have a member with autism spectrum
disorder wherein the treatment discovered in this study would be used as their
Relatives. Everyone may benefit significantly from the data gained in this study,
but it would be especially helpful for family members of those with autism spec-
trum disorders to learn how to manage when faced with the challenges of inter-
Future researchers. This research will be a useful reference for the researchers
who would plan to make any related study about determining the behavior, emo-
tions, and relational interactions of autism spectrum disorders in the nursing pro-
gram.
Definition of Terms
The following terms are defined relative to their use in the study.
fear).
cate with each other or reaction of ASD children towards other people.
This part of the research paper will discuss the studies, Review of Related
Literature by those individuals who have mental imbalance range issue or ASD.
mediate the relations between parents’ emotional abilities and parenting behav-
iors. That is, parents’ own emotional difficulties might lead to more maladaptive
and less adaptive parenting because such difficulties limit the emotional re-
sources available for dealing with chronic parenting stress (such as the stress as-
sociated with the long-standing role as primary caregivers of a child with ASD).
Such associations might further correlate with a wide array of risks for maladap-
tive parenting. Indeed, given that perceived parenting stress varies greatly
among parents, emotion regulation abilities might set the tone for how much par-
believes she or he has experienced, the less likely they are to provide optimal
Another study found related to the parents’ emotions with ASD child, par-
enting a child with an autism spectrum disorder (ASD) can be highly challenging.
Extensive behavior problems associated with the disorder may contribute to poor
are related to parental well-being and that may be amenable to intervention. The
current study investigated mindful parenting amongst parents of children with
problems, parental stress, depressive and anxiety symptoms, and mindful par-
enting, along with open-ended questions about mindful parenting practices and
lower levels of depressive symptoms and stress. There was no relationship be-
tween mindful parenting and anxiety symptoms. Higher levels of child behavior
problems were associated with more severe parental depressive symptoms, anx-
iety symptoms and stress and lower levels of mindful parenting. Contrary to ex-
parenting did not mediate the relationship between child behavior problems and
tions yielded four main themes: examples of mindful parenting practices, specific
ent and family problems, positive feelings towards the child and parenting ap-
proaches. Mindful parenting may have benefits for parents’ psychological health.
warranted.
Another study reveals that sibling with ASD experienced stressful life con-
that a group home will be a relief, physical violence made siblings feel unsafe
spectrum disorder (ASD) were shown to experience more stress than parents of
typically developing peers, although little is known about risk factors predicting
stress in this population. The aim of this study was to evaluate parental stress
with ASD as compared to typically developing (TD) peers and to investigate the
role of several factors, including the severity of autistic symptoms, adaptive skills,
Results confirmed that parents of children with ASD experience higher stress lev-
els than parents of TD and that children with ASD show more behavioral and
emotional problems than controls. Moreover, our results showed that behavioral
and emotional problems are strong predictors of parental stress, while stress re-
behavioral and emotional problems affecting parental stress in ASD and TD sam-
preschool children with ASD have a strong impact on parental stress, profoundly
affecting the well-being of the entire family. Therefore, strategies aimed at the
early detection and management of these behavioral and emotional problems are
10
crucial to prevent parental stress and to develop the most appropriate treatment
interventions.
well-being and stress problems than parents of typically developing (TD) chil-
dren. However not all parents present these problems. These problems can be
rately contribute to explain parents’ well-being and stress can have implications
for intervention programs. The aim of this study was to explain parents’ subjec-
tive well-being and physiological stress by considering whether they had a child
with ASD or not and their child’s negativity (environmental antecedents), their
perception of their child’s problems (person antecedents), and their use of reap-
praisal (mediating processes) Costa, A. P., Steffgen, G., & Ferring, D. (2017).
Children with autism commonly have trouble controlling their emotions. Al-
skills, not all children improve. It is important to identify the factors that influence
(1993). One way that parenting can be measured is through parents’ general pat-
or disrupt their “optimal parental bonding” with their children and can be broadly
similar data, showing that Parents who demonstrate more care/affection tend to
be more positive during their interactions with their children and exhibit more
emotional warmth, closeness, and empathy toward their children, whereas over-
protective parents tend to control every aspect of their children’s lives and en-
et al. 1979; Rubin et al. 2002).Another evidence shows that parental behavior
plays a role in the development of children with ASD as it does with TD children.
Some of the earliest studies examining parent-driven effects and parenting be-
Moreover, studies have shown mixed results relating to the impact upon
autism may be more at risk than siblings of children with other disabilities. In the
present study, data were gathered on 22 siblings of children with autism. These
children were rated by their mothers as having more behavior problems and
ing sibling behavioral adjustment revealed that boys with siblings who have
autism, and those younger than their sibling with autism, engaged in fewer proso-
cial behaviors. Psychological adjustment of mothers (stress) and the child with
which multiple genetic and environmental factors play roles. Symptoms of deficits
early in a child's development. While parents do not cause these difficulties, im-
pairments in social relatedness can strain parent child interactions and parental
stress can have negative transactional effects that impede children development.
Conversely, as with typically developing children, parental behavior can also en-
hance development in ASD and parents play a role in many interventions. In this
parent and family characteristics that may impede development so they can be
with young children with autism are recognized as important intervention targets
that interventions that combine motivational and social components can create
parent delivery of such strategies can invoke increases in these core social be-
ined the way parents acquired and used a set of responsive parenting techniques
with their young children with fidelity and investigated the associations of fidelity
use of these techniques with changes in child joint engagement outcomes. Al-
though parents began the training phase demonstrating low levels of responsive
parent techniques with their children with ongoing fidelity, and the use of these
in two of the three participant children. Implications for research and practice are
evidence that private events can strongly influence parent behavior and training
outcomes, the topic has received minimal attention in the behavioral literature
dren with ASD. A nonconcurrent multiple baseline design across participants was
rected parent behavior were observed for all participants. Gains maintained post-
training, with the greatest effects observed more than 6 months post-training. Ex-
ploratory data suggested possible decreases in parental experiential avoidance
CHAPTER III
RESEARCH METHODOLOGY
data and analysis which are relevant to the research. The methodologies will in-
clude areas such as the location of the study, research designs, sampling and
sample size, types of data, data collection method and its management.
Research Designs
ences. The data are generally non-numeric. It is used to capture expressive infor-
mation not conveyed in quantitative data but about beliefs, values, feelings, and
motivations that underlie behaviors. This design was used since the main pur-
pose of the study is to know the behavior, emotions and relational interaction of
family having a member with autism spectrum disorder at Bansalan Davao del
Sur.
Sampling technique
15
method will be used and selection amongst family having a member with autism
spectrum disorder.
The respondents of this study will be held at Skill Hive Therapy Center in
Bansalan Davao del Sur. In which the researchers will interview five (5) family
Research Locale
Davao del Sur, Philippines. The respondents will be interviewed in the waiting
area at the therapy clinic, or any comfortable place that the respondent will
choose to.
vide sufficient and essential information to answer the questions raised in this
study.
Research Instrument
searchers will conduct one on one interviews. Using this technique, the re-
searcher will ask the participants some questions and they will be able to open
their feelings and perceptions about the topic. The researchers were able to un-
cover their unfiltered thoughts hidden for a long time and help understand their
to perform this research. Mr. Morsid K. Tulao, CHA, Phd, the head of the nursing
department, will be the first to provide approval. The approval of the participants
is the next permit required in this investigation. Also, the approval of the CEO of
Skill Hive Therapy Clinic at Bansalan, Davao del sur to conduct research. Then
lastly the approval of the research director Ma’am Marilou C. Diana, MaEd will
also be requested.
dents to get data needed for this research. The researchers will conduct inter-
views with the family having a member with ASD based on the problem question
Data Analysis
Thematic analysis was used, which allowed in determining gave insights into the
Ethical Considerations
crucial role. First and foremost, obtaining informed consent from participants is of
pate, comprehending the study’s purpose, potential risk and their right to with-
privacy and showing respect for emotional boundaries must be a priority. Ethical
approval, cultural sensitivity, and transparent research practices are vital compo-
semination of results should adhere to ethical guidelines and acknowledge the di-
surface during the study. The research should ultimately aim to benefit both the
related to the balance between academic demands and personal life. By adher-
ing to these ethical considerations, researchers can conduct their study responsi-
bly, respecting participants’ rights and well-being, while also contributing valuable
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APPENDIX A
LETTER TO THE DEAN OF NURSING
Dear Sir,
In order to do so, we would like to ask your approval for us to conduct our study
ENTITLED “Autism Spectrum Disorder: An interaction on the Behavior, Emotions
and Relationship among family members” at the Skill Hive Therapy Clinic cur-
rently to those who are enrolled.
Noted:
MARILOU C. DIANA, MAED
Approved by:
APPENDIX B
Sir/ Madame:
Good day!
We are writing to request your kind assistance for our research entitled “Autism Spec-
trum Disorder: An interaction on the Behavior, Emotions and Relationship among
family members” This research aims to investigate how families with a member who
has autism spectrum disorder (ASD) cope with the challenges associated with their con-
dition and how they interact with each other.
As part of our study, we are planning to conduct research interviews with families who
have a member with Autism Spectrum Disorder. The interviews will serve as a means to
gather information about the experiences and perspectives of families in dealing with this
condition.
If possible, we would like to conduct research interviews with families within your organi-
zation. We would ensure that all information gathered would be kept confidential and
that the data would be used for research purposes only.
Thank you for your time and consideration. We look forward to hearing from you soon.
Very Truly Yours,
DHANA ANGELA RUBELLANO
EDEN CLAIRE RELACION
REI LOUIE G. SENAJON
Researchers
Noted:
MARILOU C. DIANA, MAED
Research Adviser
22
APPENDIX C
Sir/ Madame:
Good day!
We would like to invite you to participate in our research study entitled “Autism Spec-
trum Disorder: An interaction on the Behavior, Emotions and Relationship among
family members”. The purpose of this study is to gain a better understanding of the ex-
periences and challenges faced by families who have a member with ASD.
Your participation in this study is entirely voluntary, and you have the right to withdraw at
any time. We will be conducting interviews with family members, observing family inter-
actions, and collecting data through surveys and questionnaires. All data collected will
be kept confidential, and your identity will remain anonymous.
By participating in this research, you will be contributing to the knowledge of ASD and
helping us to better understand the experiences of families affected by this disorder.
Your participation will also deepen our understanding of how ASD affects family dynam-
ics and the impact it has on familial relationships.
We appreciate your willingness to be involved. Thank you for your time and interest.
Very Truly Yours,
DHANA ANGELA RUBELLANO
EDEN CLAIRE RELACION
REI LOUIE G. SENAJON
Researchers
23
Noted:
MARILOU C. DIANA, MAED
Research Adviser
SPOT MAP
FIGURE 1. Spot Map. The Skill Hive Therapy Clinic, is located in the heart of
Mother Ignacia, Bansalan, Davao del Sur, Philippines, offers specialized thera-
peutic services for individuals with Autism Spectrum Disorder (ASD). The Skill
Disorder (ASD).
APPENDIX C
QUESTIONNAIRES
Child Demographics
Gender: MALE: FEMALE: DOB: ___/___/______
Age of Diagnosis:
Family Denmographics
Parents/ Sibling Highest Level of education: ________________________
Siblings: Yes, how many? ____ Older/Younger No
1. How has having a member with autism spectrum disorder affected the
2. What specific struggles and challenges have you faced as a family in rais-
3. How do you think autism spectrum disorder has affected family dynamics
4. How does having a sibling with autism affect the other sibling?
5. Having a sibling with autism spectrum disorder, how does it impact your
1. How would you describe the coping mechanisms that your family member
3. What coping mechanisms have you and your family developed to deal
with the stress and demands of caring for a family member with autism
spectrum disorder?
1. Have you noticed any patterns in your family member's behavior or triggers
that may be helpful to understand and manage? How have you addressed these
patterns?
2.What are the effective ways that you have done in improving the behavior in
5.How have you sought support for your family and your family members with
Objective 4 : Insights
1. What are the positive insights and responses from parents toward the sib-
2. What are some uniques qualities or strengths that you admire having a fam-
3. As a Parent/Sibling what are some strengths that you see in your family
4. Is there anything else you would like to share about insights and experi-
PERSONAL INFORMATION
EDUCATIONAL BACKGROUD
CURRICULUM VITAE
Name: Rei Louie G. Senajon
Address: 1767, Purok Pag-asa, Tres de Mayo,
Digos City, Davao del Sur
Phone Number:
Email: reilouie229@gmail.com
PERSONAL INFORMATION
EDUCATIONAL BACKGROUD
2018 – 2019
Rizal Avenue, Digos City
CURRICULUM VITAE
Name: Dhana Angela Rubellano
Address: #1786, Luna Extension, Digos City
Phone Number: 09501663144
Email: da.rubellano@gmail.com
PERSONAL INFORMATION
EDUCATIONAL BACKGROUD