Professional Documents
Culture Documents
Integrating A Palliative Approach
Integrating A Palliative Approach
Integrating a Palliative
Approach: Essentials for
Personal Support Workers
Workbook
nd
2 Edition
2. A. Identify two key changes in the way that people die differently now
than they did 100 years ago.
1. The development of hygienic methods, medications, treatments, and
rehabilitation therapies has extended the human life span and the
dying process.
2. People way of living is different from 100 years ago, now there is a lot
of chemical and substances that our body intake from our food and
medications compared to 100n years ago.
B. Considering the aging population and changes to the way people die,
what are two challenges in providing care for dying people now.
The two challenges in providing care for dying people now are First,
they have the right to refuse to the care regardless how much they
need it. Second, family members are involved in providing care for
dying people.
2. Observe without
judgement.
Record
observation
Slow decline 1. natural death 1. cannot see 1. collaborate with
2. will not experience declining team, discuss
challenging health slowly needs and
crisis 2. may think advocate when
person is necessary.
close to 2. Provide holistic
death care.
Sudden death 1. no time to say 1. Forced to 1. Comfort
goodbye make 2. Support
2. unexpected death decisions
2. Unprepared
and struggle
12. The palliative approach principle in Tom’s text are: Considers the
dying person and family- determined by the dying person – to the unit
care. May positively influence illness but doles not intend to speed or
delay death. Is holistic, person-centered care to help manage all
symptoms and sources of distress-physical, psychological, spiritual and
social.
13. To access a specialty palliative care provider when the team is unable to
manage symptoms is to talk to nurse or to the physician where the client can
get a palliative care provider or specialist. PSW or a family member can
provide a palliative care.
14. Addressing the following barriers to accessing and receiving palliative
care can open the doors to better quality of life for the dying person and
family.
15. Review the palliative competencies identifies for PSWs where you work,
and develop a learning plan to achieve those competencies. Discuss ways
that PSWs can participate in team meetings and collaborate in the
development of the care plans.
16. A. What is a palliative approach to care?
An approach that integrates the principles, practices and philosophy of
palliative care into the care of a person with any life-limiting illness and
their family early in the disease process, across all setting, and is
provided by all members of the team.
B. What is palliative care?
Holistic, person-centered, supportive care available to a person with a
life-limiting illness, and their family, to manage physical, emotional.
Spiritual and psychosocial symptoms associated with a life limiting
illness and dying. Such care maybe provided at the same time as acute
curative treatments and is beneficial for people from early in the
disease process through death and bereavement.
C. Who is on the care Team?
The people who are on the care team are the doctors, nurses. PSW,
physiotherapist, social workers, Occupational therapist.
My preferences WHY
Steady Decline will be a good death as it is explaining that it is natural
for me death and the fact that as we grow
older our body get weaker to death.
Stuttering Decline is a bad death for it shows that you will be undergoing
me a health crisis or a lot sufferings as
you are fighting for any chronic
diseases slowly weakening your body
to death.
3. Dying
The beliefs and baggage that I need to acknowledge and put aside
when caring for dying people is my feelings and emotions. I need to
maintain my professionalism with the client even I got connected
attached to the person.
14. Sympathy
Sympathy
Bad Death Good Death
Sudden death Natural Death
Death in health crisis Death receives good care
Died alone Died with proper goodbye
Empathy
Sympathy
Empathy
15. C.
16. In pairs or small group discuss the following:
17. In small groups, describe ways to incorporate the indigenous
Wellness Framework as you are providing care.
18. A vision board is a visualization tool which refers to board of any
sort use to build a collage words and pictures that represent your
goals.
19. In small groups discuss the story about the homeless woman on
page 32 in the text.
20. Work in pairs or small groups to explore one of the Truth and
reconciliation Commission Canada’s call to action Identified for
health care, summarized on pp. 30-31 of the text.
21. Work in pairs in the role play described.
22. I want my family and the team to know about my perspective in life,
beliefs and my likes and dislikes when it comes to a thing, food and
opinions. I want them to know what are the things that needs to
consider when giving care to a palliative patient.
23.
25. The two eyed seeing will be helpful on providing care without biased
and racism Looking both in views in providing culturally safe and
person-centered care.
26. System bias and racism are present in the health care system.
Option 1: Work in groups
Option 2: Discuss in small groups
2. A. Ambulation
B. Activity and evidence of disease
C. Self-care
D. Intake
E. Consciousness level or mentation
5. A. If the Frailty Value from the CHSA Clinical Frailty Scale increases it
means the PPS or Palliative Performance Scale is lower and might
severely ill and completely dependent on others for activities of daily
living.
8. The interactions might help me to provide support and space for rituals
and practices from mine is using an open box to make it possible to
write responses to facilitate and gather information and record and
update goals-care-conversations for best practice interactions.
9. Report:
I call the nurse to report about Eileen’s pain and ask is she can come
today to see Eileen.
6. True
7. D. nausea/vomiting, constipation, drowsiness, confusion
8. A. Fear of the Symbolism – if he is taking morphine, it means he is
dying
B. Fear of Developing Tolerance- if he becomes used to this dose of
medication, then it will not work for him when his pain increases.
C. Fear of Becoming Dependent – he will become dependent on this
medication.
D. Fear of Developing a substance use disorder – I don’t want to
become addicted.
E. Fear of Being Judge
F. Fear Of developing Respiratory Depression
10. True
14. Eating nutritious foods can help the body regain strength and
improves health, but you need to take a look to each food that
concerning to your health. In some health issues there are foods that is
needed to avoid like people with hyperthyroidism they need to avoid
foods that rich in iodine. Some food might help you to get in good
condition but some of it will make your condition more worsts. You
need to be careful and take a look to each food if it is good to your
health or not.
15. A. Yetta ate whipping cream. She decided to eat and drink only
what she loved, nibbling small bits of anything she felt eating and
nothing else.
B. I. As a PSW, I will ask Yetta what she loves to eat and select what is
best for her health and prepare it for her.
II. As a PSW, I will ask Yetta culture and ask her to tell some stories
about her country of origin.
III. I will do research of an alternative way of traditional healing based
on her culture for somehow to give her comfort.
IV. I will give her different way of giving comfort until the end of her
life.
V. I will help her to do what she loves to do that is possible to do.
16. The things that I can do for the family of a person experiencing
anorexia and cachexia is educate them first about the disease and
condition of their family member so they are going to be aware of it.
Then make a care plan for the person ADL with the team and the
family to e courage the client to eat and gain weight as possible.
18. Constipated
changes in bowel
and bladder
function.
3. may 3. when did 3. involve the 3. recording the
experience constipation person in chair date and a
vomiting, incontinence exercises that description of the
nausea, begin? use abdominal person’s BMs.
abdominal pain muscles and PSWs should
and distention exercises that proceed in a
and generalized move the legs to culturally
pain. encourage sensitive manner
intestinal when
mobility. approaching
topic with family.
19. Dehydrated
When you might What you might Comfort Ways to support
observe if a ask a dying measures that Family
person is person to better might be helpful
dehydrated understand their
needs
1. dry mouth, 1. How frequent 1. make sure 1. You can invite
tongue and lips is your urinating? person’s favorite family to
drinks are within participate in
reach to providing
encourage comfort to the
frequent person who is
drinking. experiencing
dehydration and
show the to do
so.
2. Dry skin 2. How do you 2. encourage 2. the person or
feel? Can you person to avoid their family
describe it? dehydrating maybe
liquids. concerned that
dehydration is
causing or will
cause
discomfort.
3. loss of skin 3. which do you 3. provide 3. encourage
firmness prepare to drink? excellent mouth them to walk
care to prevent with the nurse or
discomfort to the physician to
mouth. learn some
options
managing or
preventing
dehydration.
20. Delirium
When you might What you might Comfort Ways to support
observe if a ask a dying measures that Family
person has person to better might be helpful
delirium understand their
needs
1. Refusing to 1. when did you 1. provide a 1. Listening to
take medication first notice the quiet, familiar, their concerns
change? safe environment and reporting
with adequate these to the
lightning. nurse
2. inability to 2. How severe is 2. maintain the 2. providing
carry on a this experience person’s daily reassurance that
conversation with delirium? routine as much the loved one’s
as possible delirium does not
mean they are
crazy.
3. Confusion 3. what do you 3. be alert of 3. Providing a
think might be signs of delirium. space for the
helpful? Report delirium family to nap and
as soon as regain their
possible. strength during
the delirium or
after settles.
21.
Delirium Dementia
causes Metabolic problems, Damage to braincells
medication related
Time frame of onset temporary Life time
Brain changes- Reversible Permanent
permanent or
reversible
Cause by body Yes No
changes (yes/No)
Presence of anxiety, Yes Yes
fear or paranoia
22. Tools can be help as I prepare to talk to a health care team are
the SBAR form to gather information and the OPQRSTUVW form to
Assess the person to develop a care plan for the person, family and the
community.
23. The risk factors for developing depression are living with life-
limiting illness, chronic pain, or declining abilities as well as living in
long-term or residential care.
25. Depression
When you might What you might Comfort Ways to support
observe if a ask a dying measures that Family
person has person to better might be helpful
depression understand their
needs
1. are 1. when did you 1. help the 1. educate family
uninterested in first notice the person and about depression
their usual change? family to
activities understand that
depression is a
symptom that
can be treated
even in a
terminally ill
person.
2. Frequently 2. How do you 2. ask the person 2. teach the
express sadness, feel? Can you what they feel family for the
anger and describe it? would be helpful medication
frustration at this time and treatment for
record their depression.
response.
3. are socially 3. what do you 3. are present 3. ask the family
withdrawn think might be when the person to support and
helpful? needs a listening always be with
ear. the person in
times of
problems.
How you might What you might What you might Comfort
prevent difficulty observe if a ask a dying measures that
with breathing person has person to better might be helpful.
difficulty understand their
breathing needs.
1. do not over 1. gasp for air 1. How do you 1. gathering
worked yourself when moving or feel? Can you information
at rest describe it? about possible
triggers that lead
to difficulty
breathing
2. remover 2. open their 2. when do you 2. planning ways
covers in air mouth wide to notice feeling to avoid these
ways when doing get more air. breathless. triggers as much
exercise or as possible.
physical activity
3.Limit extreme 3. reduce to 3. how severe is 3. making sure
activities when participate in this experience the unnecessary
having a heart activities to with airway irritants
problem. avoid or reduce breathlessness? are not used
breathlessness. around the
person.
28. Fatigue
How you might What you might ask a Comfort measure that
prevent fatigue dying person to better might be helpful
understand their
needs
1. Get right 1. How do you 1. discuss about
amount of sleep feel? Can you fatigue to the person.
describe it?
2. Eat properly 2. When did you 2. you may want to
notice feeling be quiet, gentle and
tired? positive rather than
energetic and
enthusiastic in
conversation.
3. Exercise 3. what do you 3. support a person by
Family
Love & Self-Love
Friends
Good Health
Passion
Food, Water and Sleep
B. Write about what you would do if you only have three months to live.
If I only have 3 months to live, I will “live each day like as it is the
last” day of my life. I always thank GOD for each day for the
blessing of life he gave me.
I will call my parents and family regularly and make sure that I
always tell them that I love them. I will spend time cooking for
friends and family and take time to go to almost every party,
wedding, and funeral I am asked to attend. People are important
and I want them to know it.
Thinking with only the 3 months that I only have left to live will
be very frustrating and stress at first, I don’t know what I am
going to think or do but I decided to live life with good and happy
moments with my love ones and giving happiness to them as
well and to the people around me.
C. Write about what you would do if you had only three days to live.
If I only have three days to live. I will spend those three days with
my family and friends in a very relaxing place like the most
beautiful beach resort where I will live for 3 days with no stress
and not thinking any problems. I will live life to its best with
them. Telling stories, talking about life eating the best food we
could ever had and have fun with them until my 3 days ended.
D. What were your feelings as you wrote in the large box? The medium box?
The small circle? What thoughts do you associate with these feelings?
F. How would you feel if you were not able or not allowed to do what you
identified in the circle? Consider how dying during the Covid-19 pandemic,
affected the ability of the person to do what they wanted in their last weeks
and days and hours. If you had been dying and unable to see family or
friends in the last days, how would that be for you? What might have been
helpful?
d. What might you say to or do for the person and the partner to show
compassion?
What I am going to do is show my compassion to my job and that
I am willing to do whatever I can do to give him comfort. I will
make them feel that I am always here if they need me.
6. What principles of providing culturally safe care will help you and the
team share information in a most helpful way?
Listening to the person and empathizing with them about their
concerns and questions and connecting them with the
appropriate team member for support.
Communicating with the team when the person or family do not
understand the information that has been shared with them.
Identifying and working to share information in line with the
person’s and family members preferences for receiving and
sharing information.
Ensuring that the person and family know how to contact the
team any time of the day or week.
Working with the team to identify other people who can provide
support to the person and family if the health care team is not
available at night.
8. List three formal assessment processes that the physician, nurse and
social worker might use to gather information about a person’s values,
beliefs and preferences for care.
Using assessment techniques and professionals from other disciplines can
widen the assessment process. Professionals that could be utilized include:
a. Speech therapists, physical therapists, and occupational therapists to
determine functional issues
b. Social workers, case managers, and vocational rehabilitation specialists
for lifestyle and practical issues
c. Other specialists, such as audiologists, other medical specialists,
religious and spiritual influences, and so forth
9. Identify eight ways that PSW’s can support advance care planning
a. Validate their desire to talk about their personal wishes and hopes.
b. Acknowledge the lack of interest in discussing end-of-life issues, and at
the same time share a healthy attitude toward advance care planning
conversations.
c. Encourage them to discuss their goal of care.
d. Help the person learn about medical procedures.
e. Help the person think what is right for them.
f. Help the person talk with their health care professionals about
medication or treatment concerns.
g. Help the person record conversations. You might say.
h. Encourage the person to talk with their health care professionals and
provide them with the relevant contact information. You might say.
10. As a PSW you can sign legal documents including wills, legal
forms, and documents.
FALSE
11. Write five things you learned about grief that you did not know
before reading the text.
1. Grief is a whole-person experience.
2. Grief is a natural, healthy response to loss that helps people adapt
to living in a change world.
3. Grief is a hope wish for something that is important to the person.
4. People grieve in a different unique way.
5. People grieve differently over time.
12. Describe ways to support children who’s loved one is dying.
Prepare children for what they will see.
Be honest
Use correct language
Invite children to participate in caregiving
Include children when possible.
Recognize children’s grief and grief together
13. EXERCISE
-Extreme Activities - Limit foods that I like
I will feel sad, need to do something for myself to get back on
track and help my self to get well and live healthy as I can.
15. Review pages 167 to 167 text about grief being a whole person
experience.
a. Mark illustration
whole
b. Reflect on how grief is a whole person experience.
2. Caring for the body after death is one of the most important part in
some traditions and cultures like mine. They held a burial that last for 9
3.
Physical Changes Comfort for the Dying Comfort measures for
Person the family.
Decreases physical Sleeping may be more Acknowledge that it is
strength and increased important than a daily common for people to
drowsiness bed bath, and visiting sleep more as death
with family may be nears. You might say, it
more important than is normal for dying
visiting with friends. person to sleep more
and more as time
passes. If the family
expresses concern that
medications may be
causing their loved
one’s drowsiness,
encourage them to talk
to the nurse or
physician.
Reduced intake and Give the person Encourage the family to
difficulty swallowing thickened fluids if talk or ask questions of
directed by the nurse the nurse, physician, or
or dietitian. Remind the dietician when they
person to swallow if have concerns about
they forget. the effects od
decreased intake on
their loved one and
what the experience
may be like for that
person.
Delirium or confusion Promptly report early Encourage family
signs of delirium to the members who are
nurse. Consider caring for a dying loved
whether it would be one to try to find ways
helpful to reorient this to care for themselves,
person, given their for example, by having
cultural perspective a nap or going for a
about delirium. Allow walk, while are in the
the person to be in home.
their delirium
orientation if they
appear to be
comfortable.
Agitation or Report agitation and Encourage the family to
restlessness restlessness promptly discuss their concerns
to the nurse so that this with the nurse and
symptom can be physician. Share
manage quickly. information. Explain
that restlessness is a
common experience
that you will experience
in the last days and
hours,
Unresponsiveness You support the person You can help family
when you reposition members ex[lore ways
them regularly to to connect with their
protect their skin and loved one by using
increase their comfort. touch or music, by
It maybe comforting to simply being a quiet
person if you continue presence, or by
talk with them as reminiscing and
though they were able recalling family stories
to hear you. in the presence of the
dying person.
Irregular breathing You can help by Show the family how to
positioning the person freshen and moisten a
in a way that supports dry mouth if the person
their breathing and by is breathing through
providing verbal their mouth. If the
assurance. family is interested in
helping with care, show
them how to used
atomizer and apply lip
balm.
Congested breathing Provide a calm and Encourage the family to
reassuring presence. contact the nurse if
Use pillows to support congestion increases of
the person to help open if the person shows
airways. signs of discomfort. The
Help the person into a nurse can address
semi-supine position if questions about the
they are very use of suctioning to
congested relieve the congestion.
Changes in skin color If the person is Consult with the nurse
and temperature sweating, you can about the person’s
provide clean clothing physical need to be
4. A. Preparing Yourself
B. Preparing the family and other staff.
C. Developing a Plan for the time of death and Providing compassion
6.
Decreased physical strength and increase drowsiness
Reduce intake and difficulty swallowing
Delirium or confusion
Agitation or restlessness
Irregular breathing
Congested breathing
Changes in skin color and temperature
Muscle twitching
Dry eyes
Lack of urinary output or bowel and bladder incontinence
7.
Care of the body Ways to support family
Home setting Long-term care At all locations
facility
a. place and a. place and Make sure the family has easy access
incontinence pad incontinence pad to the contact information of the
under the buttocks under the buttocks nurse.
in case of further in case of further
incontinence incontinence
b. change soiled b. change soiled Prepare the body as respectfully as
linen linen you would if the family is present.
c. dresses the c. dress the person Put in the person dentures as this is
person in a fresh in a fresh gown or important to the family.
gown or clothing clothing as
as appropriate appropriate
d. position the d. position the Infor the nurse and the family as
person lying flat person lying flat soon as possible.
with a pillow under with a pillow under
their head their head
e. Close their e. Close their Gather person’s things as it is
eyelids if their eyelids if their eyes important to the family.
eyes are open. are open.
f. Follow the f. Follow the Do as the family wish with respect.
procedures set out procedures set out
for. for.
8. True – As this will help you to provide the best care and understanding
for the client.
9. A. offer nourishment
B. invite individual people to sit beside with their loved ones.
C. Consider the needs of people who are not present
D. caring for the body.
10. A. Provide culturally self- care and support when you identify
whether your facility has a policy regarding the length of time a person
can remain in their room.
B. Support the family whether your facility has a special space to
which the person and their family might move.
B. Yellow
C. Things are not as smooth as they were. I feel more tired working
full-time in the morning and studying at night. I am sad when
people tell me their problems. I ignore problems for a while that I
cannot fix right away. But I am still doing my best to things that I
needed to do.
4. Drawing
6. A. Embracing the End of life: Help for those Who Accompany the Dying
The End of Your Life Book.