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Communicating Across Cultures and Languages in The Health Care Setting Voices of Care 1St Edition Claire Penn Full Chapter PDF
Communicating Across Cultures and Languages in The Health Care Setting Voices of Care 1St Edition Claire Penn Full Chapter PDF
Communicating Across Cultures and Languages in The Health Care Setting Voices of Care 1St Edition Claire Penn Full Chapter PDF
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C O M M U N I C AT I N G I N P R O F E S S I O N S A N D O R G A N I Z AT I O N S
Communicating Across
Cultures and Languages in
the Health Care Setting
Series Editor
Jonathan Crichton
University of South Australia
Adelaide, SA, Australia
This ground-breaking series is edited by Jonathan Crichton, Senior Lecturer
in Applied Linguistics at the University of South Australia. It provides a
venue for research on issues of language and communication that matter to
professionals, their clients and stakeholders. Books in the series explore the
relevance and real world impact of communication research in professional
practice and forge reciprocal links between researchers in applied linguis-
tics/discourse analysis and practitioners from numerous professions,
including healthcare, education, business and trade, law, media, science
and technology. Central to this agenda, the series responds to contempo-
rary challenges to professional practice that are bringing issues of language
and communication to the fore. These include:
Communicating
Across Cultures and
Languages in the
Health Care Setting
Voices of Care
Claire Penn Jennifer Watermeyer
Health Communication Research Unit, Health Communication Research Unit,
School of Human and Community School of Human and Community
Development Development
University of the Witwatersrand University of the Witwatersrand
Johannesburg, Gauteng, South Africa Johannesburg, Gauteng, South Africa
The Researchers The work and insights described in this book reflect the
efforts, vision and energy of a wonderful team of researchers and research
assistants whose ‘lived’ experience with qualitative research methods in
some very demanding contexts has added great texture and understand-
ing to this field. Our deep thanks go to Victor de Andrade, Paula Diab,
Melanie Evans, Berna Gerber, Carol Legg, Motlatso Mlambo, Joanne
Neille, Lesley Nkosi, Dale Ogilvy, Jai Seedat, Samantha Smith, Gabi
Solomon and Tina Wessels, for their pioneering work in health commu-
nication across cultures in South Africa.
The Advisers and Mentors Srikant Sarangi, Neil Prose, Tom Koole,
Leslie Swartz, the late Chris Candlin, Brett Bowman, Garth Stevens,
Hanna Ulatowska, Audrey Holland, Elisabeth Ahlsén, Jens Allwood.
1 Prologue 3
ix
x Contents
Appendix 347
Index 359
List of Abbreviations or Acronyms
xi
xii List of Abbreviations or Acronyms
xiii
xiv List of Figures
xv
xvi List of Tables
Introduction
Communication has been identified as the single biggest barrier to health
care in a global world, and the provision of culturally and linguistically
appropriate services is a top priority, particularly in the light of the
increased migration patterns and complex illness burden imposed by dis-
eases such as HIV/AIDS.
Responding to such complex challenges of communication, within the
past decade, the Health Communication Research Unit at the University
of the Witwatersrand in South Africa has produced a body of research
which has had a significant influence on ways in which intercultural
health interactions can be viewed.
Using methods from the social sciences and linguistics, this project has
explored, in detail, same- and cross-language interactions in the health-
care setting, the role of the mediator in such settings and ways in which
interactions can be modified to improve communication.
This text presents these findings and shows how the methods we have
developed are unique and have wide potential application. The text is
intended for health professionals, language specialists, medical educators,
researchers and practitioners, and includes a range of theoretical, meth-
odological and empirical considerations. We have developed a set of rec-
ommendations for reframing the notion of ‘cultural safety’ in health care.
This will hopefully influence both individual and systemic practices for
managing diversity.
There is a clear relationship between effective communication practices
and outcomes which can be measured in tangible benefits for patients,
the health professional and the institution. Among documented benefits
for the patients are increased accuracy of diagnosis, understanding of
treatment, improved adherence to treatment and research protocols,
Introduction 7
Emergent Themes
In this text we highlight some of the themes which have emerged from
the research and which have a cohesive potential, in terms of both theory
and practical import.
Some examples link to:
voice to be heard? What barriers to care exist for women, and how can
the clinical relationship assist in resolution of these issues?
• The interaction between disease, poverty and communication. We are
interested in exploring what Paul Farmer et al. (2006, 2013) refer to as
“structural violence” imposed in a context of poverty and how tempo-
ral and spatial factors interface with health communication.
• Why do community structures of support sometimes have limits?
• How do the voices of different generations interface in the health con-
text? Our body of research on grandmothers, for example, has high-
lighted a number of differing models of illness causation.
• The delicate tension between the emergence of established organiza-
tional routines in healthcare interactions, in a context of fluidity and
uncertainty and scarce resources.
Fig. 1.2 The voice of medicine and the voice of the lifeworld (Photographs by
Yeshiel Panchia)
Emergent Themes 13
We have some really pleasing evidence for how such factors enhance
communication, reduce barriers to mutual understanding and promote
concordance even in the most challenging intercultural contexts. It is in
the initial and subsequent interface between the health system and the
patient that lives can be changed or that paths are set. We have begun to
see the emergence of what we call ‘magic moments’ in clinical settings—
points at which the participants collaborate and show evidence of mutual
understanding and intention. Such moments mostly occur around non-
medical topics and are characterized as having greater interaction, being
more informal and personalized, demonstrating more coupling and mir-
roring behaviours, facial animation, increased eye gaze, forward body
posture and increased gesture. Such findings have major implications for
medical education.
Interwoven into this discussion is a consideration of biomedical ethics
and the role that communication factors play in this field. We consider,
for example, how communication variables are central to determining
and enhancing autonomy, self-efficacy and decision-making capacity and
can be actively enhanced in cross-linguistic research trial settings.
Other questions and solutions are more complex. How, for example,
can communication dimensions interface with the barriers to care which
continue to exist in the context of HIV/AIDS? What are the language
dimensions of the process of disclosure? Why do fewer than 30% of
women take up counselling services and why is there no apparent decline
in new infections in pregnant women? The fact that staying alive depends
on maintaining high adherence rates to ARV regimens in order to pro-
mote treatment success requires a detailed understanding of the language
of the pharmacy which is considered in depth in this text. Similarly, com-
munication is implicated in the complex treatment regimens and in rec-
ommended nutritional practice for patients.
How can some of our findings influence confidence and effectiveness
of young doctors working in contexts of cultural and linguistic diversity?
What mechanisms will best aid and assist systems and settings to cope
with what has been termed ‘organizational shock’ brought about by the
rapid and profound demographic changes and the complexity and sever-
ity of the diseases encountered?
14 1 Prologue
Emerging Solutions
This text aims to address some of the above issues and offer some concep-
tual and some practical proposals for individuals, institutions and policy.
Amongst some of the issues we explore (and which inform the last section
of the book) are the following:
how they have flourished, retained integrity and dealt with the challenges
in meaningful ways.
The intention here is not to harp on the bad-luck stories, the global
pattern of health inequities, the overwhelming disease profile, and the
health budget and mismanagement that beset clinical practice. These are
well described and acknowledged and hopefully will be systematically
addressed in the future on a global level. Rather, what we hope to do is
show humanization within such systems and show that despite, or
perhaps because of, these systems, interpersonal and systemic evidence
emerges which point the way for us all. There is space for care and it
emerges when suffering is recognized and responded to.
Thus, a focus of this text is about the discovery and analysis of such
islands of good practice—settings or individuals where intercultural
communication is demonstrably effective, where patients are satisfied
and where indices of success (such as adherence to treatment and return
to the clinic) are remarkable. An examination of these interactions has
considerable promise: understanding the features characterizing such
interactions has the potential to yield a number of important directions
for future clinicians. We highlight eight features of good care common to
them all.
Five such examples of islands of good practice are described in detail in
the text:
• The first is the interactions between patients and one particular doctor
in the context of a paediatric HIV/AIDS clinic in the Western Cape.
We observed a number of his sessions and were able to interview him
about his perceptions of his practice and the individual sessions
observed. He worked both with and without interpreters and his par-
ticular style seemed to facilitate a number of positive interactions. His
management of disclosure (in the case of an adolescent girl) is a keynote
exemplar. A detailed description of this session is used in the text to
focus on this complex issue.
• The second context in which exceptional practice has been observed is
in a small rural village in the Eastern Cape. We spent some time at the
Keiskamma health programme (linked to the internationally recog-
nized art programme of this area), interviewing members of the
16 1 Prologue
Spatial Aspects
Spatial aspects of the clinical setting also seem important for communica-
tion goals. They incorporate seating, privacy and comfort levels. We have
studied what organizational routines occur in different health settings—
when these occur spontaneously and when they are imposed by the sys-
tem. We are also interested in the use of props—how they are used in
multiple ways to help in getting the message across, as gifts and dona-
tions, in dispensing pills, and in the organization of clinics.
In one of our studies, for example, which involved an analysis of the
communication between pharmacists and patients, we examined in
detail the use of props (pills, pill containers, pictures, brown-paper
bags) in the interactions and the role that they played in facilitating
the interactions. This study demonstrated the various functions of
such props—to differentiate ARV from non-ARV drugs, to reinforce
and supplement verbal instructions, to verify the understanding of
dosage instructions, to facilitate communication across barriers and to
facilitate closings.
18 1 Prologue
Time
Implementation Research
overty and violent crimes (Daviaud and Chopra 2008; Mayosi and
p
Benatar 2014). Once such inequities and imbalance are recognized, there
is an ethical imperative to step over the line and to effect some meaning-
ful change. How to do that of course is a dangerous minefield especially
in a complex context marked by its unique history, cultural and linguistic
diversity and persistently two-tiered health system. As with any qualita-
tive research paradigm, the rules of engagement are different. There is a
risk to both researchers and participants in this research and the need for
recognizing constantly the thin line between paternalism and authentic-
ity, between researcher and practitioner, between participant and specta-
tor and between balancing one’s own ignorance and supposed expertise.
Perhaps this is best reflected in the concept of ‘entanglement’ described
by Fitzgerald and Callard (2016), who argue that Medical Humanities
needs to address the shifting boundaries that constitute moments of ill-
ness and healing and to actively engage in the realism of the interface
between medicine and the humanities.
“Continuing to ignore the effects of culture on health is not an option: not only
will we fail to address the biggest health problems faced by the world today, but
the resulting waste of public and private resources will continue to cripple
health care delivery worldwide.”
We argue that cultural safety is a human rights issue and will depend
on health professionals continuing to feel culturally incompetent (Daniels
and Swartz 2007) and actively striving to address that feeling through
reflexivity and openness. Some principles might include the adoption of
culturally attuned methods, the recognition that patients are experts of
their own lifeworld and that cultural beliefs regarding illness have a per-
vasive impact on medical interactions and outcomes. The research sug-
gests that facilitators and barriers to care are identifiable and can be
addressed effectively through a focus on communication and process
aspects and the adoption of new methods for deriving information and
checking understanding. New models of training and partnership linked
to principles of social advocacy hence emerge.
Conclusions
We believe this text offers a unique approach to understanding the com-
plexities of communication in the context of health care. Many prior
approaches to the issue of communication appear to have been predi-
cated within a so-called cross cultural framework in which beliefs and
practices of different cultural and ethnic groups are contrasted. This ter-
minology implies an ‘othering’ of clinical and cultural groups rather than
an awareness both that cultural factors impinge on all clients regardless of
language or ethnicity (Daniels and Swartz 2007), and that both health
professionals and clients bring their own values, beliefs and experiences
to an interaction. Rather than examining such difference, our focus is on
the space of interaction between individuals which implies a move
towards a more culturally embedded model of communication. We argue
that South Africa with its very diverse cultural and linguistic heritage
provides an exceptionally fruitful testing ground for the study of such
issues and the development of local rather than universal models of prac-
tice is both conceptually desirable and achievable.
Although most of the research has been conducted in South Africa, we
feel that this text has a much broader appeal and application. The discus-
sion of the methods and the approach has wide potential resonance, as do
the multiple case examples. We will suggest that in the context of the
22 1 Prologue
References
Bamberg, M., & Georgakopoulou, A. (2008). Small stories as a new perspective
in narrative and identity analysis. Text & Talk, 28(3), 377–396.
Behforouz, H. L., Farmer, P. E., & Mukherjee, J. S. (2004). From directly
observed therapy to accompagnateurs: Enhancing AIDS treatment outcomes
in Haiti and in Boston. Clinical Infectious Diseases, 38(5), S429–S436.
Charon, R. (2008). Narrative medicine: Honoring the stories of illness. London:
Oxford University Press.
Daniels, K., & Swartz, L. (2007). Understanding health care workers’ anxieties
in a diversifying world. PLoS Medicine, 4(11), e319.
Daviaud, E., & Chopra, M. (2008). How much is not enough? Human resources
requirements for primary health care: A case study from South Africa. Bulletin
of the World Health Organization, 86(1), 46–51.
Farmer, P. E., Nizeye, B., Stulac, S., & Keshavjee, S. (2006). Structural violence
and clinical medicine. PLoS Medicine, 3(10), e449.
Farmer, P., Yong Kim, J., Kleinman, A., & Basilico, M. (2013). Reimagining
global health. Los Angeles: University of California Press.
References 23
Introduction
No account of illness or health would be complete without what Paul
Farmer et al. (2013) refer to as ‘historically deep’ and ‘geographically
broad’ understanding of political realities, social forces and global eco-
nomic conditions. “Social justice is a matter of life and death…inequi-
ties in health arise because of the circumstances in which people grow,
live, work and age and the systems that in place to deal with illness. The
conditions in which people live and die are in turn shaped by political,
social and economic forces. Achieving health equity within a generation
is achievable. It is the right thing to do” (Commission on Social
Determinants of Health 2008). This chapter will discuss culture and
health in the global sense and highlight some of the central constructs
which frame the methods and evidence of the next section. Some chal-
lenges of communication in health will be considered.
For example, within the context of Global Health Risks (as defined by
the WHO) the two main leading causes of death in the world currently
are ischemic heart diseases and cardiovascular disease and will remain so
by 2030. The disability-adjusted life years also reflect these figures. Clear
differentiation is noted between income level and 19 leading global risk
factors for disability. In contexts of extreme poverty, the issue of multi-
morbidity is a particularly interesting one (Sambo and Kirigia 2014;
Barnett et al. 2012). Most chronic diseases are associated with major risk
factors such as tobacco use, unhealthy diets, physical inactivity and alco-
hol abuse. Often cultural accounts of illness point out the disproportion-
ate representation of such issues among minority groups, but such
cultural taxonomies are unsafe and pejorative as they may cause labelling
and stereotyping, and clearly mask the real social determinants of these
issues such as power imbalances, poverty and access.
Probably the most comprehensive current perspective of culture and
health comes from the recent Lancet Commission published in November
2014 (Napier et al. 2014). This important piece highlights the relative
neglect, yet the centrality of culture, in health and promotion. It makes
far-reaching suggestions which are imperative to the achievement of
health worldwide—and which “constitute an agenda for the reversal of a
systematic neglect of culture in health, the single biggest barrier to
advancement of the highest attainable standard of health worldwide”
(p. 1608). As a culturally and linguistically diverse country with a unique
disease profile, South Africa provides a fertile space for illustration and
realization of some of these suggestions.
Disease Profile
Communicable diseases (CDs) (e.g., HIV and TB) and NCDs (e.g., dia-
betes mellitus (DM) and hypertension) have been identified by the
Department of Health in South Africa as key areas of focus (Mayosi and
Benatar 2014). Further, more attention is being paid to the rise of NCD
and CD co-infection. Co-morbidities burden the healthcare system and
have adverse effects on clinical manifestations, treatment complexity and
patient prognosis (Bates et al. 2015).
Over the past few decades, HIV/AIDS has spread with astounding rapid-
ity. The impact of this epidemic has been particularly high in Eastern and
Southern Africa where there are approximately 19 million people living
with HIV and AIDS. This disease has become one of the most important
public health problems in South Africa and has created more challenges
to science and medicine than any other single disease. South Africa has
the largest HIV/AIDS epidemic in the world with an estimated seven
million people living with HIV. As of 2015, the adult prevalence rate is
19.2% and about 29% of all pregnant women in the country have HIV/
AIDS. Thus, while the country is home to 1% of world population, it
carries 19% of the global health burden. More than half of all HIV cases
involve children and it has become a disease of women living in poverty.
The majority of new infections are in women, with a female to male
prevalence ratio of 1:5. The life expectancy for women in the country is
now 64.3 years. It is estimated that four million women aged 15 and
older are living with the disease, and that there are now over 240,000
children younger than 15 years living with HIV in South Africa. Globally,
there are about 5700 new cases of HIV infections per day in both adults
and children, 400 of which are among children. Of these new cases of
HIV infections per day, 66% are in sub-Saharan Africa (Statistics South
Africa 2016; UNAIDS 2016a).
As a consequence of government policy, there was a delay in the intro-
duction of ARV drugs in South Africa in the public sector. The rollout
Disease Profile 31
was finally approved in April 2004, amidst much controversy and a strug-
gle for accessibility (Nattrass 2006), and South Africa currently has the
largest ARV treatment programme globally. Since then, there have been
decreased mortality rates, a significant increase in adult life expectancy, a
huge reduction in mother-to-child transmission and hope for many.
Voluntary counselling and testing (VCT) and ARV treatment pro-
grammes are now freely available (UNAIDS 2016b).
Importantly, however, these programmes are not necessarily accessed
by people living with HIV/AIDS (Plazy et al. 2015). There remain barri-
ers to care which are felt to link mainly to psychosocial variables. The
demographic profile, the complexities of treatment and the envelope of
stigma which surround the disease present a particular challenge to the
health practitioner (Castro and Farmer 2005). Issues of disclosure, gen-
der inequalities, gender-based violence, poverty, culture and tradition all
impinge on access to ARVs. Uptake of VCT is low in some contexts;
there is often a significant drop-out rate from Prevention of Mother-To-
Child Transmission (PMTCT) services and no apparent decline in new
infections in pregnant women, although the epidemic has stabilized
(Meyers et al. 2007; Woldesenbet et al. 2015). Staying alive depends on
maintaining high adherence rates to antiretroviral therapy (ART)
(75–95%) in order to promote treatment success. Treatment regimens
are sometimes complex (especially in the case of combination therapy or
highly active antiretroviral therapy (HAART)) and patients are burdened
by the cost of transport, food, supplemental medicines, herbal remedies
and hospital fees associated with the disease (Rosen et al. 2007).
There are a number of things about this epidemic that we still don’t
understand well. Despite huge campaigns about prevention, there seems
to be limited efficacy to these programmes. Prevention works, but only a
little. There is also a mystery as to why some patients achieve poor adher-
ence, but this issue is clearly a complex one and linked to a number of
variables. Some of these may include the influence of poverty, poor
literacy levels, stigma, discrimination and the discourse of silence that
surrounds this disease, access to treatment, migration, suspicion around
efficacy of ARVs, intergenerational conflicts, marginalization, sex prac-
tices, the role of disability grants, the role of traditional healers in these
issues, and religion and its interface with both biomedical and traditional
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