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Patients' Experience of Privacy and Dignity. Part 2 - An Empirical Study
Patients' Experience of Privacy and Dignity. Part 2 - An Empirical Study
T
his is the second article in a series of two on the 1. To identify what patients understood by the notion of
subject of patients’ experience of privacy and dignity privacy and dignity
in hospital. The first article (Whitehead and Wheeler, 2. To explore patients’ thoughts on whether they felt their
2008) reviewed the literature relating to patients’ privacy and dignity were met within a mixed gender ward,
privacy and dignity and set the scene for the current article, any problems they felt stood in the way of their privacy
which reports a research study carried out to ascertain what and dignity and how these needs could be met.
a sample of patients on a cardiothoracic ward thought about
privacy and dignity. In particular the study attempted to Study design, including sample
identify patients’ experience of how they thought their privacy In May–June 2006, a self-report questionnaire, comprising
and dignity needs were met, and how they felt the caring two open and 16 closed questions, was given to a convenience
environment could enhance patients’ privacy and dignity sample of 40 elective coronary artery bypass graft patients (9
during their stay in hospital. women and 31 men) from a cardiothoracic ward. Self-report
Whitehead and Wheeler (2008) concluded that interest questionnaires were chosen over alternatives, such as interviews
in the topic of privacy and dignity goes back to psychiatric and focus groups, for convenience of the respondents and the
patients in the 1960s, although the 1990s saw a shift to all researchers. Also with one of the researchers being a nursing
hospitals. Key findings revealed that current United Kingdom sister working on the ward concerned, it was considered
(UK) government policies advocate the need for researchers that the use of questionnaires was less likely to introduce the
and healthcare professionals to focus on the issues of patients’ risk of work-observer bias (Clifford, 1997). Moreover, the
questionnaire approach guaranteed respondents’ anonymity,
and probably contributed to more honest, objective answers.
Juliet Whitehead is Professional Development Sister, University Hospital
Underlying the rationale for using a mixture of open and
Birmingham NHS Foundation Trust; and Dr Herman Wheeler is
closed questions was the belief that the respondents would
Lecturer in Health Sciences, School of Medicine, Dentistry and Health
Sciences, University of Birmingham, England
more readily respond to a combination of closed and open
questions, the latter requiring construction of the patient’s
Accepted for publication: March 2008 own narrative. Moreover, the open questions presented a
more exploratory qualitative slant, providing opportunity
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PATIENT WELFARE
for free expression, rather than just selecting from a list of researchers felt necessary to address, from the point of view of
predetermined alternatives. Porter (2000) believes that open objectivity in both obtaining the data and making sense of it.
questions are more likely than closed ones to explore ideas in However, the authors concluded that these two issues would
depth. According to Playle (2000), a single method approach be addressed by appropriate sensitivity in the data gathering;
shows the researcher only one side of the topic, whereas a moreover, additional expert help with data analysis would be
design comprising both open and closed questions gives a sort if considered necessary to help enhance objectivity.
more accurate picture. Orb et al (2001) make the point that Another concern was whether the patients would feel
a combination of both closed and open questions works best, inhibited in terms of the answers they gave, from the point
as together both are more likely to adequately cover all the of view of producing socially desirable answers, rather than
responses that respondents wish to give. expressing what they truly felt. Although the researchers did
not feel they could exert any really measurable control to
The questionnaire test patients’ tendency towards expressing socially desirable
The questionnaire gathered biographical data, such as age, responses, they nevertheless chose the day before discharge
gender, number of hospital admissions and length of stay. to ask participants to complete the questionnaire.
Closed questions attempted to ascertain the degree of The authors looked for any evidence of tension and anxiety
importance respondents attached to privacy and dignity; in patient’s willingness to participate. At the pilot study
their view of the ward’s ability to respect their privacy and stage one patient declined to take part after he had seen the
dignity; whether they were informed prior to admission that questionnaire, expressing the view that he was not comfortable
they would be nursed on a mixed gender ward and how they with the open nature of the questions and would have preferred
felt about this; and whether they had raised concerns about more closed ‘yes’ and ‘no’ questions. No other patients declined
the mixed gender ward with the staff. The closed questions nor expressed any anxiety about participating.
also required respondents to declare whether they felt their Contact numbers for the researchers as well as for Trust’s
privacy and dignity were compromised, the degree of respect research and development officer were provided to the
accorded to them by nursing staff, and whether they felt participants, who were advised to raise any concerns they had
curtains positioned between beds provided adequate privacy. about the study, at any time. Participants were also reassured
One of the closed questions required respondents to state that anonymity would be kept at all times.
whether they at any time overheard staff conversations giving
personal information about other patients and who was giving Data analysis
the information. The final question ascertained whether Quantitative analysis
respondents needed to talk to a doctor or nurse about sensitive Quantitative data were coded and analysed using Microsoft
issues and where such conversations took place. Each closed Excel. As most of the variables in the analysis were ordinal
question additionally asked respondents to comment on their and dichotomous, Fisher’s exact test was used to ascertain
answers. The two open-ended questions required respondents significant associations between two dichotomous variables.
to supply their own narrative on their understanding of privacy Kendall’s tau-b was used to test for significant associations
and dignity, including stating what each meant to them. between one ordinal variable and one dichotomous variable,
Piloting: The questionnaire was piloted on three patients and between two ordinal variables. Spearman’s correlation
from the population from which the sample was drawn, was used to identify significant associations between the
although these patients were excluded from the main study discrete variable, age, and ordinal variables.
to avoid the risk of contaminating data.The sample was asked
to critique the questionnaire on: (a) clarity and intelligibility Qualitative analysis
to them; (b) whether they thought the questionnaire was For the qualitative data obtained, a combination of
user-friendly; (c) appeal of the length of the questionnaire; Leininger’s (1998) theoretical model and Burnard’s (1991)
(d) their views on the content and whether in the light of recommendations for analysis of qualitative data was used.
the study’s aims and objectives, they felt there were major Both theoretical approaches have foundations in grounded
omissions, or necessary additions and deletions they would theory (Glaser and Strauss, 1967; Strauss, 1986) and the
have made. A senior nursing colleague from the Trust who has literature on content and qualitative data analysis (Fox, 1982;
a nurse consultant brief, including research responsibilities, Field and Morse, 1985; Couchman and Dawson, 1990).
and the Trust’s statistician were invited to offer a critique of Validation of the researchers’ interpretation of the data
the questionnaire, particularly the suitability of the scales for was undertaken by colleagues experienced at qualitative data
the proposes intended. Responses were used to evaluate the analysis. There was complete agreement that the findings
suitability and credibility of the questionnaire, which was accurately reflected respondents’ open-ended responses.
modified to produce the final version used in this study.
Results of the study
Ethics Forty questionnaires were distributed and all were returned
Ethical approval for the study was secured from the Local (response rate of 100%). Thirty-one (77%) respondents were
Research Ethics Committee. An ethical concern that arose male and 9 (23%) were female.
was the that one of the researchers involved in the research Figure 1 gives the age distribution for the respondents. A
was also a member of the nursing staff where the study would two-sample t-test was performed to establish if age differed
take place. How this may affect the research was a question the significantly for groups. There were no significant differences
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Figure 1. Age distribution. one respondent did not state a preference. Kendall’s tau-b
test was carried out to establish if there were any differences
10
Standard deviation = 10.18 between days in hospital and gender. All respondents had
Mean = 65.3 been in hospital for a variation of days and results show no
8 n = 40 significant difference between male and female respondents
for days in hospital (P=0.848). These findings indicate that
6
Frequency
9
–3
–4
–4
–5
–5
–6
–6
–7
–7
–8
–8
associations between genders in terms of how they perceive
35
40
45
50
55
60
65
70
75
80
85
privacy. Statistical differences were found between male and
Age (years) female in relation to the importance of privacy. Symmetric
Figure 2. ‘First time in hospital’ by gender.
measures show a positive relationship of P=0.037, indicating
a significant difference between male and female respondents.
35 Female respondents thought of privacy as ‘very important’
compared with ‘important’ by the males. Thus, female patients
30
Yes valued their privacy more highly than the men. Nevertheless,
25 No men also clearly valued their privacy (Figure 4; Tables 1 and 2).
Count of gender
Not stated
20
Dignity
15 Figure 5 shows the importance respondents attach to dignity.
10 There were no statistically significant difference between
genders (P=0.39); male and female respondents both saw
5
dignity as either ‘important’ or ‘very important’ (Table 3).
0 In relation to respondents being asked to rate their ward’s
Female Male ability to respect their privacy and dignity, 27.5% (11) rated
First time in hospital the ward ‘excellent’, 47.5% (19) ‘very good’, 15% (6) ‘good’,
and 10% (4) ‘fair’.
because age was normally distributed.The 40 respondents were With respect to whether respondents had been informed,
between 35 and 85 years, with a mean age of 65.3 years. prior to admission, that they would be nursed in a mixed
With respect to whether respondents had previous admissions, gender ward, 72.5% (29) reported not to have been informed,
of the 9 female respondents, 8 had previous admissions and whereas 22.5% (9) admitted to have been, and 5% (2) did
one did not. Eighteen male respondents had been in-patients not report either way. Despite of this, with respect to how
previously, and 12 for the first time. One male respondent did respondents felt about being nursed on a mixed gender ward,
not state whether this was his first admission (Figure 2). 27.5% (11) were either ‘very unhappy’ or ‘unhappy’, 52.5%
Figure 3 shows the number of in-patient days for all (21) ‘neither happy nor unhappy’, 17.5% (7) ‘very happy’ or
respondents: 1–7 days = 33% (13); 8–14 days = 34% (14); 15– ‘happy’ and 2.5% (1) did not give a response. Table 4 contains
21 days = 15% (6); 22–28 days = 5% (2); > 28 days = 10% (4); the cross tabulation for sensitive issues by gender.
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PATIENT WELFARE
Table 1. Cross tabulation for gender Table 2. Symmetric measures showing significant values
and privacy importance (n=40) Asymp. Approx. Approx. Exact
Value Std. error a T b Sig. Sig.
Count Privacy
1.00 2.00 3.00 Total
Ordinal by ordinal 0.347 0.071 3.254 0.001 0.037
Gender Female 9 9 Kendall’s tau-b
Male 19 11 1 31 Number of valid cases 40
Total 28 11 1 40 a Not assuming the null hypotyesis; b Using the asymptotic standard error assuming the null hypothesis
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PATIENT WELFARE
and confidentiality (Nursing and Midwifery Council, 2004). promoting government initiatives. Foss (2006) points out that
Healthcare professionals should realize that even though the Government has decided to impose a new duty on nurses,
disclosure of confidential information may be an unwitting act that of the ‘dignity nurse’, and criticized the move on the basis
on their part, they may still be liable for breach of confidence, that all nurses have a responsibility to promote patient privacy
and for failure to respect patients’ right to confidentiality. and dignity. Moreover, having a ‘dignity’ nurse insults all nurses,
Of particular interest is that although the respondents were all of whom should possess capacity and readiness to promote
fairly positive about their ward’s ability to respect their privacy privacy and dignity in all aspects of care. Creating another tier
and dignity, their theoretical conceptualization of patient of healthcare professionals under the title of ‘dignity nurses’
privacy and dignity reveals their deep-seated fear that their would be a waste of resources, argues Foss (2006).
sick-role disposition leaves them vulnerable. Chochinov et al The study demonstrates that admission to hospital leaves
(2002a; b) support this finding that healthcare professionals patients feeling vulnerable and open to medical scrutiny, which
need to be sensitive to the need for patient dignity, may cause a loss of privacy and dignity, a finding supported
demonstrating levels of skills that reflect how they would like by Doyal (1997), McParland et al (2000) and Leino-Kilipi et
to be treated even in the end-of-life situation. al (2001). It is hoped that the findings of the present study
At a theoretical and conceptual level of definition, some will help healthcare professionals develop clear, sensitive
of the positive ways the respondents characterized patient understanding of how privacy and dignity are viewed by
privacy and dignity (and the preconditions for their reality patients, how they may be compromised, or how they may be
within the ward) were not always borne out by some of promoted in the clinical environment. Healthcare staff who fail
the activities within their ward. This made the researchers to promote patients’ privacy and dignity are contributing to
postulate that in the non-threatening and ‘safe’ theoretical an unnecessarily high level of patient stress and anxiety, which
zone, the patients were actually being critical of some of the may force patients to make complaints against Trusts that they
ward’s shortcomings in its ability to maintain their privacy may not have otherwise done. Clearly, if patients are distressed
and dignity. If the researchers’ analysis of the results is accurate, over the level of privacy provided to them, this will adversely
and reflects what the patients in the study actually feel, even if affect their recovery. Moreover, this would impact negatively
not what they overtly expressed, then the conclusion may be on their perception of their Trust. It must be encouraging to
drawn that at a psychological level some of the patients saw healthcare staff to realise that respect for privacy and dignity
their privacy and dignity being compromised in hospital. brings improvements in care standards (Woogara, 2001).
Previous research about patients in rehabilitation care
settings relate how nurses perceive the challenges faced in Patients’ experience of privacy and dignity
ensuring patients’ dignity (Stabell and Naden, 2006). Similar on a mixed sex ward
challenges also arose in earlier studies by Gallagher and Despite the recommendation by the DH (1997a; b; 2005)
Seedhouse (2002) and Jacelon (2003) regarding patients’ for separation of male and female patients and for single sex
needs and the strategies they used to affirm their dignity. The occupancy bays, the findings from this study revealed that
most important findings of these studies is the view expressed 52.5% of the respondents were neither happy nor unhappy
by patients that in the presence of adequate staffing the being nursed on a mixed sex ward:
conditions that foster privacy and dignity were more likely to
‘I could see by the quantity of patients there was
be in place. Research findings related to inadequate provision
no alternative to the situation.’ (P32)
for patients’ privacy and dignity are worrying as it is now
many years since the publication of the Essence of Care (DH,
‘I thought it was general policy to have mixed sex
2001), Privacy and Dignity for Hospital Patients (DH, 1997a)
wards, but in my ward the best efforts had been
and The Patients Charter: Privacy and Dignity and the Provision
made to achieve separation.’ (P40)
of Single-Sex Hospital Accommodation (DH, 1997b). Although
a previous study (Woogara, 2005) of patients’ privacy in the Given that the mixed sex ward was not viewed as particularly
NHS adopted a different methodology to the present research problematic by 52.5% of the sample leads one to conclude
and had taken place in different clinical settings, both studies that perhaps modern planners and designers of hospitals ought
have identified that there are some cases where healthcare to stress to government the need to commission hospital
staff and ward designs are compromising patients’ privacy designs that would suit the differing views and needs of the
and dignity. All healthcare professionals need to address the patients who would occupy them. Hospitals made up purely
problem even if at present it is not obviously bad. of single rooms may not be the answer since some patients
The present research is the only one the authors are aware of may prefer to be with others in bays, and value togetherness.
that has shown patients also define privacy and dignity in terms Patients should have a choice between single rooms and bays.
of their right to creating conditions for them to worship. With If modern hospital designs cater for a substantial number of
respect to patients’ definition of privacy and dignity the present single rooms then this would be ideal not only to afford better
study suggests that it is difficult to establish straightforward, privacy, but would be more effective at controlling infection
single and narrow definitions of patient privacy and dignity. and promoting sleep.
Both privacy and dignity share some common and overlapping
characteristics and are therefore closely intertwined. Recommendations for future research
The literature relating to patients’ privacy and dignity suggest The authors hope that the current findings will not only
that these issues are sparking debate in many circles, as well as be read by healthcare professionals but will stimulate debate.
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