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Sot. Sci. Med. Vol. 38, No. 10, pp.

1347-1365, 1994
Copyright 0 1994 ElsevierScienceLtd
Printed in Great Britain. All rights reserved
0277-9536194 56.00 + 0.00

THE BOUNDARIES OF THE SELF AND THE


UNHEALTHY OTHER: REFLECTIONS ON HEALTH,
CULTURE AND AIDS
ROBERTCRAWFORD
University of Washington at Tacoma, 1103 “A” Street, Tacoma, WA 98402, U.S.A.

Abstract-Most accounts of the cultural stigmas associated with AIDS have not adequately considered
the meanings through which the stigmatizing self imagines his/her difference from the stigmatized other.
This paper argues that ‘health’ is a key concept in the fashioning of identity for the modem and
contemporary middle class and that the ‘unhealthy’ come to be represented as the other of this self.
‘Healthy’ and ‘unhealthy,’ however, must be understood both in their biomedical meanings and in their
implicit metaphorical meanings. The ‘unhealthy,’ ‘contagious,’ ‘sexually deviant,’ and ‘addicted-minority’
other-all condensed in the negative symbolism of AIDS-have become images which are mobilized as
part of a cultural politics of reconstructing the self in conformity with intensified mandates for self-control.
The expulsion of ‘unhealthy’ meanings from the self, an act of patrolling the borders of identity, finds
its projected physical location in the figure of the person with HIV-AIDS.

Key words-AIDS, culture, self

The AIDS epidemic has forced many of us working this politics. This contestation occurs befween ‘per-
in the fields of health and illness to re-examine our sons,’ that is, it entails conflicts over the represen-
work and to ask questions about its relevance to the tations by which individuals imagine others. Such
present crisis. For over a decade I have been inter- images are inseparable from the ‘group-fantasies’
ested in the culture of health in the United States and with which those others are identified. Critical actions
how health is a concept that provides valuable in- and critical non-actions follow from such represen-
sights into the socio-cultural order. I have argued, for tations. Contestation also takes place within the self,
example, that health is an important symbolic do- particularly in periods of rapid social change or crisis
main for creating and recreating the self. The pursuit when varying social forces make claims for ‘appropri-
of health, so much a part of the American cultural ate’ responses and the normative bounds of person-
landscape since the mid-1970s can be understood as hood are more assertively articulated. Responses to
a ritual of personal regeneration in which middle class tension between conflicting aspects of the self may
identity is secured and conspicuously displayed. If include a closing down or a tightening of the bound-
health, in its various meanings, is so important for aries of identity, uneasy accommodation, conflict or
constructing the social self, what then are the impli- confusion, or a self-reflexive opening. The two dimen-
cations for the cultural construction of the AIDS sions of contestation, between and within, are con-
epidemic, an event that has generated a multitude of nected. Images of self are crucial for determining how
highly charged meanings attached to individuals and the other is imagined. Thus, how individuals attempt
groups? The following is an attempt to answer this to resolve conflicts of self-definition will affect the
question and to apply my interpretation of health in outcome of conflicts about difference. Conversely,
contemporary American culture to discussions well how one imagines the other and how conflicts about
under way about the cultural politics that define the difference are resolved in practice affect the internal
social meanings of the AIDS epidemic. efforts to shape a viable self in the face of social crises
At the heart of the cultural politics of AIDS is a which are at the same time crises of identity.
contestation over the meaning of the self. It is a The AIDS epidemic is clearly both a social crisis
politics about identity and difference, about the and a crisis of identity. AIDS has been called an
boundaries of personhood which distinguish legiti- ‘epidemic of signification,’ which means in part that
mate from non-legitimate identities, and about the it lays bare questions of identity [l]. The epidemic has
meanings upon which identities are constructed, radically and urgently transformed the cultural poli-
managed, and reworked. How individuals meaning- tics over homosexuality in American society and may
fully shape their identities, what boundaries they soon do the same with respect to race.. It has altered
draw and thus what meanings are expelled as not both the politics of identity and recognition waged by
belonging to the self, and how experienced conflicts gay and lesbian movements and the conscious and
within the self are resolved all define the territory of unconscious responses of straight men and women to

1347
1348 ROBERTCRAWFORD

the identity implications raised by the apparent con- boundaries that secure the ‘healthy’ self-in both of
vergence of life-threatening disease with homosexu- the stated senses-are never secure. It is precisely the
ality. Identity work-protecting or reformulating self deployment of symbolic sentinels, including medi-
boundaries, reinforcing images or reimagining the cine, to patrol the boundaries of identity which needs
other-is required of people as they respond to fears to be uncovered. My work has taught me to appreci-
of contagion and stigma, as they adopt strategies to ate just how much ‘health’ has become a primary
protect themselves from implication, that is, symbolic means of signification by which borders are main-
connection to ‘infected’ others and the negative tained, threats, specified, and internal weaknesses
characteristics ascribed to them. It is also demanded shored up. The imagined identity of the ‘diseased
of people as they make decisions about their own other serves as a boundary-reinforcing device in ways
sexuality and sexual behavior and as they respond to I will review.
the infection of friends and family members. Finally, My point of departure, then, is health, for in our
identity work also becomes unavoidable as people concept and beliefs about health some of our most
attempt to develp their own political stance amidst powerful images of disease and images of people who
the politicizations swirling about them: as the media are seen as ‘diseased’ can be found. My argument will
continues to generate its outpourings of ‘infor- proceed as follows: First, the concept of health is
mation,’ stories, and coverage of AIDS ‘events’ both absolutely central to modern identity. This assertion
domestically and internationally, as public officials is premised on another: that health and the body
take explicit or implicit ‘positions,’ and as political imagined through it (or conversely the body and the
mobilizations from AIDS activists to right-wing, ‘health’ imagined through it) are not only biological
anti-gay organizing are all variously assimilated. My and practical, although they are meaningfully these,
argument is that the highly charged character of the but are also metaphorically layered, packed with
articulation of AIDS and identity should be under- connotations about what it means to be a good,
stood not only in terms of stereotypes of already respectable, and responsible person. These meanings
stigmatized groups associated with the disease but in are in turn connected to prevailing images of class,
terms of the social self that has a stake in continuing race, and sexuality. Second, since the mid-1970s
to generate such stereotypes. Valuable work examin- health and its pursuit have become increasingly val-
ing prevailing notions about ‘deviant’ sexuality, dis- ued and thus have become a crucial terrain upon
ease, and otherness-and their historically presumed which contemporary, personal identity is fashioned.
concurrence-has already been undertaken. The pre- Third, the ‘healthy’ self is sustained in part through
sent effort, indeed, relies upon this work. My point is the creation of ‘unhealthy’ others, who are imagined
that stigmatizing images of the other are founded in as embodying all the properties falling outside this
a social self which needs this other. health-signified self. Disease, especially contagious
In particular, images of the other associated with and sexually transmitted disease, is tainted with
HIV/AIDS can be better understood by considering otherness and in our healthiest culture is seen in terms
how they are incorporated into an identity structure of otherness itself. The ‘diseased’ as other and the
for which ‘health’ (and the meanings associated with ‘other’ as diseased is most easily imagined when the
it) has become a key, organizing symbol. I want to social distance between the perceiver and the per-
discuss how the self acquires a particular and power- ceived is great-for example, between middle class,
ful set of concrete meanings through the concept of white Americans and Africans, Haitians, the inner-
health; and how, by way of this self construction, city poor, etc. But interestingly, identity work may
disease takes on the symbolic weight of a negated self. become most active and intense, when the social
I believe this step to be necessary for understanding distance is close; for example, between middle class
how disease acquires the insidious and historically straights and middle class gays. Finally, I believe that
specific set of associations noted by so many observ- an adequate engagement with the stigmatizing prac-
ers. In this way, I hope to show how the identity tices and the perceptions on which they are founded
signified by HIV/AIDS comes to be seen as the other will be aided by re-thinking health itself, the meanings
of this ‘healthy’ self: an ‘unhealthy’ other who is expressed through it, and the ways which ‘health’ is
perceived not only as a physical danger, but as an employed as an implicit language of the self. The
equally threatening and dangerous identity. effort to rethink health, however, cannot be under-
The ‘healthy’ self should be seen in terms of an taken in isolation from the totality of social and
interrelated set of oppositions: (1) a biologically cultural relations in which we are enmeshed and
healthy set that is conceived in opposition to disease which provide the substance and boundaries for the
and death; and (2) a metaphorically healthy self by articulation between health and personhood.
way of which conventional beliefs about the self are The anxiety provoked by the AIDS epidemic
imagined as opposed to the qualities of ‘unhealthy’ among the so-called ‘general population’ is not only
persons already positioned as subordinate, outside, a fear of the epidemic ‘breaking out’ of the cultural
and stigmatized. This ‘healthy’ self is fashioned in and social ghettos in which it is, at present, largely
opposition not only because of the prevailing medical contained; it is also about preserving the social self as
dichotomization of health/disease, but because the it is structured in domination. The fear occasioned by
Reflections on health, culture and AIDS 1349

this disease and its epidemic character is simul- and epistemologically prepared by the Cartesian ob-
taneously a fear of the destabilization of the tenuous jectification of the body, health became from the
relations of identity--both within and between-by eighteenth century onward a social and individual
which self is insulated from other. At stake in the project of immense proportion. Health emerged as an
AIDS epidemic is a ‘spoiling’ of identity, a fluidity avowed goal of scientific investigations and medical
that dissolves ‘immunity’-the ability to distinguish practices, an object of public policies, institutional
self from non-self. Therein lies its perverse utility: and familial concerns, and a widely espoused and
AIDS provides a ‘natural alibi’ for the strengthening adopted, individual pursuit. Among the expanding
of defenses against dangerous identities-against sex- middle classes, health appeared as something that
ualities, addictions, vulnerabilities and the unsafe could be achieved. The extensive regiments of diet
meanings that threaten from within and without the and everyday practices advocated by Greek phys-
boundaries of legitimate selfhood. icians were revived, refashioned, and popularized
amid a new confidence about the efficacy of practical
activity [3]. By the nineteenth century, health-now
THE HEALTHY SELF
understood as the outcome of scientifically informed
In order to appreciate how health came to be practice upon a natural body-had become a ‘key
associated with, and indeed emblematic of modern, word,’ spoken and written about medically, socially,
Western identity, it is necessary to review its emer- and philosophically. Health became a social ideal, the
gence as an individual and social goal. As traditional axis of debates about the relative importance of
contours of identity were assaulted by the massive religious and secular world views, an essential foun-
social, economic and cultural changes of the modern dation of character for the middle class, and a widely
world, individuals recreated themselves by way of accepted responsibility of both the state and the
projects that represented the new order and their individual [2,4].
desired place within it. As Europe and America Several developments contributed to these changes.
modernized, health became one of those projects. One of them was the new religious individualism and
That it did so tells us something about those social asceticism of the Protestant Reformation, a trans-
orders and the modes of identity essential to their formation in culture that articulated with the radical,
formation and reproduction. For the expanding individualizing changes wrought by the growth of the
middle class of the commercial and industrial so- market economy. In the Calvinist conception, indi-
cieties of Europe and America, the goal of health vidual betterment and worldly pursuits were not
became an essential component of what it meant to simply ends in themselves but a duty to God, an
be modern, progressive, rational, and distinctive. The opportunity to demonstrate moral rectitude and to
language of health came to signify those middle class reassure oneself and others of being among those
persons who were responsible from those who were elected for eternal salvation. Protestantism placed a
not, those who were respectable from those were burden of constant doubt and therefore constant
disreputable, those who were safe from those who striving upon the devout. The result was the well-
were dangerous, and ultimately, those who had the known ‘Protestant temperament’ of austerity and
right to rule from those who needed supervision, denial of pleasure and a ‘work ethic’ that inculcated
guidance, reform, or incarceration. a predisposition toward applied entrepreneurial ac-
Health did not always occupy such a central place tivity and disciplined savings as well as a spirit of
in Western culture, though certainly health and its obedience, discipline, and self-denial in an unruly,
cousin, longevity, have a long history as cardinal factory proletariat [5]. The point to be emphasized is
values in Western thought. They have been the that Protestantism helped create a self that would
objects of philosophical and folk wisdom, religious become preoccupied with discipline and order, a
incantation and prayer, and the counsel and admoni- fixation that would serve as a defense against dangers
tions of healers. Before the eighteenth century, how- both from within the self and perils from ‘below’
ever, they were commonly believed to be more an during the chaotic changes wrought by industrializ-
outcome of good living, ritual observance, or divine ation and urbanization. At the heart of Calvinism, as
grace, and more likely to be considered as part of an philosopher Charles Taylor has written, was a “hor-
inclusive ‘good fortune.’ The Book of Common ror of disorder,” a fear of
Prayer originally contained the following passage:
a social disorder, in which undisciplined gentry and the
We have left undone those things which we ought to have unemployed and rootless poor, the underclass of rogues,
done; And we have done those things which we ought not beggars, and vagabonds, pose a constant threat to social
to have done; And there is no health in us. peace; a personal disorder, in which licentious desires and
the hold of intemperate practices make impossible all disci-
Here, as literary critic Bruce Haley comments, “the pline and steadiness of life; and at the connection between
word health means a life in perfect accordance with the two disorders and the way they feed on each other. What
the essential spiritual laws governing man” [2, p. 191. was needed was personal discipline; first, individuals capable
of controlling themselves and taking responsibility for
But sparked by the Enlightenment embrace of science their lives; and then a social order based on such people
with its promise of the discovery of the laws of life, [6, p. 2291.
1350 ROBERT CRAWFORD

Continuous striving and discipline of work were plify the self-defining and other-defining power of
instrumental to these ends; but so too was the pursuit ‘health’ in the modern world, naturalizing the socio-
of health which also called for a disciplined body. As moral agenda of the now dominant bourgeoisie.
Greven notes [5, p. 431, healthy “habits” were pur- This vast medicalization and the question of how
sued for their value in achieving and demonstrating health became such an important concept in the
regularity-“the daily, discipline of diet, dress, and modern West is also a question about how the body
manner.” Likewise, the pursuit of health became an became an object of scientific investigations. Along
“agency of discipline.” Anticipating the “muscular with other crucial changes, the emergence of scientific
Christianity” of the nineteenth century, John Wesley, medicine marked the advent of health as a primary
the founder of Methodism, saw no incompatibility social and personal goal. The foundations are trace-
between a Godly life and the individual pursuit of a able to Descartes, who provided modern culture with
this-worldly health. His Primitiue Physick (1747) was the epistemological capacity to see the body as an
among the first of a burgeoning literature of advice object, a thing that could be known and acted upon.
on how to achieve health. Like the pleasure of Pre-Cartesian philosophy, through premised on a
unrestrained eating, unhealthy habits were for Wesley soul-body distinction which privileged the former,
“an invitation to lust and unbridled sensuality” never perceived the body as purely ‘extended matter.’
[5, ~441. For these early health reformers, and for Corporeality was infused with significance, a manifes-
many reformers who would follow in this religious tation of spirit, inseparable from the essential self [8].
mode, health would become a weapon in the battle Cartesian thought, and the notion of a mechanical
against indolence and passion, and the persona1 and body that was premised on it, forged a series of
social disorder they were said to precipitate. Given a separations-first, the notion of “the separate self,
religious world view founded on the belief that the conscious of itself and of its own distinctiveness from
body was the source of depravity and corruption of a world ‘outside’ it” [9, p. 71; and second, the separ-
the soul, imminently susceptible to vices, the pursuit ation of the mind or soul from the body, the latter
of health provided a drama of denial and redemption. also now situated outside the place of subjectivity.
Further, the discipline of health was also useful for The self of a Cartesian world became a de-corporeal-
teaching and demonstrating the ‘habits of industry’ ized self.
so essential to the Protestant love of order. Finally, Conversely, the body, now separated from the soul,
Protestant-inspired healthiness helped bridge the took on a dual significance. On the one hand, this
more traditional conceptions of providential health, radical separation of mind and body laid the foun-
a health ultimately founded on the moral order of the dation for a new kind of knowledge, a cognition
church, with newer forms of practical knowledge aimed at mastery and control of the body, at maxi-
rooted in the sciences. mizing its potential, at putting it to more efficient and
Secular forces were also reworking the body. Nor- instrumental use [lo]. Medicine-or more accurately
bert Elias’ account of the reform of manners among the multiple scientific investigations that began to
the upper and then the middle classes and Mikhail coalesce under the umbrella of a medical purpose-
Bakhtin’s study of the containment and enclosure of developed as the science aimed at knowing this newly
medieval bodiliness (extravagant, carnivalesque, far- objectified body. It set out to do so with a repertoire
cical, risible, violent, sensual) both speak to the of conceptual and technical operations aimed at
process by which ‘civility’ was worked upon the body. description. When the body became an abstracted
The minimalization of gesture, the privatization of entity, identical to all other bodies, detached from
bodily functions, the constriction of the passageways living situations [l 11, health became a concept for
of the body-where ‘inside’ becomes ‘outside’ and, describing its normal state. The description became
conversely, where ‘outside’ threatened to penetrate the goal: the restoration or maintaining of normal
‘inside’-all contributed to changing self-definitions functioning. Thus, in unlocking the secrets of the
linked to emerging forms of social differentiation. body, medical science claimed to have discovered the
The point to be made here is that a new inwardness laws of health. These laws were to be subjected to
and self-reflexivity was externalized in the form a manipulation in behalf of the humanistic goals of the
struggle with ‘excess.’ The controlled body would Enlightenment-the extension of life and the elimin-
become the gauge in this struggle of a distinctive ation of suffering.
individuality which was rapidly becoming the hall- On the other hand, the sensate and sensual body
mark of bourgeois identity. The ‘health’ of the body appeared as a source of danger-the place of desire
provided the universally accepted ideal and practice and subversive sexuality to be banished from con-
by which this sense of class-coded individuality could sciousness and confined by a new bourgeois re-
be realized and demonstrated [7]. It should be no spectability and a deterrence in the quest for clear
surprise, then, that by the last half of the nineteenth thinking and certain truth. The objectified and con-
century other dimensions of an increasingly disci- trolled body, moreover, remained elusive. The body
pline-preoccupied culture, particularly sexuality, in pain, the body in illness, the dying body, and the
would be incorporated into the domain of health collective, epidemic body thwarted the projects of
practice. The ‘medicalization’ of deviance would am- control, transformation, and perfection undertaken
Reflections on health, culture and AIDS 1351

in the name of health. The body, made visible by the ensure their own good health. The imperative of
gaze of the biomedical sciences, simultaneously pro- health [became] at once the duty of each and the
jected a darkening shadow in its unconquerability. objective of all” [4, p. 1701.
The body in sickness became the locus of a menacing Foucault also emphasizes how the health of indi-
presence from which the healthy self would seek viduals came to be regarded as a criterion of a good
refuge through tactics of stigmatization increasingly society and a good government. The traditional
centered on images of lack of control. Interestingly, ‘pastoral’ power of the Christian church, power
control or its absence were the key judgments premised on the achievement of eternal salvation for
brought to bear in response to both the sexual and the the individual, acquired more secular forms and
diseased body. This articulation facilitated the in- worldly aims. A new discourse spoke of the enhance-
creasing condensation of health and ‘normal’ or ment of the individual. Health became one of these
controlled sexuality throughout the nineteenth and aims, a secular salvation promoted by secular insti-
twentieth centuries. The medicalized body was separ- tutions. One such institution was the family which
ated only to be reconnected to a complex web of became a primary site and agent of medicalization;
social and environmental ‘etiologies.’ These recon- that is, where medical notions of individual and social
nections laid the foundations for the social, environ- well-being and deviance were internalized and
mental, and behavioral ‘medicines’ which would diffused. Beginning in the nineteenth century, the
subsequently claim a multiplicity of social objects as family came to be seen as an institution which was
their proper domain of intervention. Medicine con- capable and, in fact, obliged to undertake the proper
tinually advanced its jurisdiction, armed with the development and protection of both child and par-
dual legitimacy of natural truths and individual and ental ‘health.’ The family was designated as a site
collective health. Health became the summum bonum where the physical body, increasingly mobilized into
by which the elaborate projects of categorizing the regimes of diet, sexual control, and physical develop-
normal and the pathological would proceed [12]. ment, would become the object of a more finely tuned
The work of Foucault has also directed attention attention and a more concerted, medically informed
to how projects of health were applied to multiple and directed, practice. Thus, the family assumed
aims of creating persons and populations compatible more of the burden of social control in the contain-
with emergent forms of power. He has demonstrated ment of a proliferating series of deviances [ 131.In this
how politics to protect, restore, and promote health way, health became the umbrella under which a
became an essential component of institutional activi- number of moral and disciplinary projects were in-
ties. The state, for example, assumed a more active itiated, a social objective for which the family acted
role in the control of people falling under its jurisdic- as an agent of surveillance, normalization and con-
tion and in providing supportive services for manu- trol. Historically, these projects have included the
facture and commerce, becoming increasingly regulation of sexuality and gender, the policing of
involved in what is now referred to as ‘human capital’ boundaries of class, ethnicity and race, and the
or ‘human resources management.’ Governments, in inculcation of the psychological and behavioral req-
other words, began to recognize the importance of uisites for an increasingly stratified work force.
collective human resources and to occupy themselves In the name of health, then, a number of con-
with the flow and location of people, the availability ceptions, aims, and practices converge, all of which
and productivity of labor, housing conditions, popu- contribute to shaping the modern individual. The
lation growth, and the protection of public health and new self, for which health would achieve an almost
safety [4]. Health became the sine qua non of these sacred quality, came to be understood as a discrete
demographic and political objectives. Certainly, epi- individual detached or abstracted from the ascribed
demics have been understood to produce economic roles and expectations of moral personhood rooted in
disruption and social and political disorder and from tradition. Paradoxically, this new ‘autonomous indi-
the late middle ages on governments have been active vidual,’ self-determining and self-responsible, would
in their control. At a more routine level, however, simultaneously become the object of new forms of
health became the cornerstone of policies aimed at power that would ‘discipline’ it. The ‘emancipated’
the production of ‘useful bodies,’ able to labor for the individual of modernity, in other words, was ab-
secular utopias of industrialism and empire. As Her- stracted only to be reincorporated and mobilized for
bert Spencer aptly put it, “To be a nation of good objectives initiated and controlled by forms of power
animals is the first condition to national prosperity” characteristic of the emerging economic and political
[2, p. 221. Thus, governments undertook programs of order. The goal of health became one means by which
public hygiene, sanitation, the supervision and subsi- the disciplinary ‘hold’ on the individual would be
dizing of medical activities, and the collection of advanced. Health legitimizied an expanding series of
‘medical’ information. For state administrators and practices throughout the social body. These practices
captains of industry, the body had to be made enhanced the observation and monitoring of individ-
healthy. In Foucault’s words, “Different power ap- uals, brought more of their behaviors, attitudes, and
paratuses [were] called upon to take charge of ‘bod- dispositions into the ‘benevolent’ sphere of concerted
ies’ . . . to help and if necessary constrain them to action for social and individual improvement, and
1352 ROBERT CRAWFORD

extended social control through a detailed identifi- demonstrating the appropriate concern for health,
cation of ‘deviances’ from the ‘healthy’ norm. And individuals identifying with this new class could
like other forms of disciplinary power, medical-moral display values previously associated with the Protes-
control in the name of health relied, in large part, and tant work ethic, an ethic which had by the late
continues to rely, on the self-observing, self-regulat- nineteenth century become increasingly secularized.
ing practices of the individual pursuing aims of Health-conscious people-both men and women-
self-enhancement. could also become the vehicles of progress through
Thus, throughout the nineteenth century, the pur- science and education. The progressive person would
suit of health became a route to the achievement of embrace these resources for the future and utilize
moral personhood for the rapidly expanding middle them for self-enhancement [17]. Health reform in-
class. As historian Bruce Haley writes, “Victorians spired by professionals would not only contribute to
used physical health as the mode1 for a higher human a more rational and efficient social order, but would
excellence, a way of envisioning it” [2, p. 2521. The become the hallmark of the reasonable and free
Victorian emphasis on character and will power, for individual. The body, abstracted as a composite of
example, could be demonstrated by healthy pursuits technical operations and functional capacities, could
like physical exercise, sport, and mountain climbing. be treated as a possession, something one ‘has’ and
The healthy person would employ up-to-date knowl- thus something for which one has responsibility to
edge to accomplish individual, team, and national ‘maintain.’ By following the advice of experts and
goals. The conditioning of behavior acquired through employing scientific knowledge, the individual could
sport, the pinnacle of healthy activity for men, sup- be transformed-a new body, a new self. Similar to
plied, according to American historian Donald the scientific management proffered to control the
Mrozek [14], a medium through which a “quest for workplace and reform the polity, the ‘life sciences’
meaning” and “a sense of renewal” could be promised a meliorative management of biological
achieved. Health, in other words, became a rich and social well-being. Rational control over the body,
source of metaphor, and this capacity to condense amplifying its capacities and enhancing its efficiency,
and express a wide range of meanings added momen- would bring the dream of technology to its personal
tum to its pursuit. Increasingly, a healthy mind was apotheosis. Making health a personal goal was to
said to depend on a healthy body-mens sana in turn the notion of progress into a practiced convic-
corpore sano. tion: the ‘perfection of man’ could be a personal
Health provided ample opportunities for the dem- project; and the body could become a site of measur-
onstration of character. The healthy individual, for able self-improvement. Thus, through objective
example, was a person who, in resisting immediate measures, one could gage oneself, comparing self to
gratification, took command of his or her life possi- others less diligent in their application of natural law.
bilities. The ‘new man’ would not only mobilize his The pursuit of health, then, in evoking the science
body for the competitive struggle, he would also that claimed to know and tame nature, became a
acquire a body and a longevity commensurate with practice that recreated the individual in the image of
his self-designated role in history. Thus, the pursuit the emerging, symbolic order. To be healthy was to
of health became an arena for the display of the be modern. Thus, as the middle classes in both
growing bourgeois ideal of taking responsibility for Europe and America created themselves as a class,
determining one’s future. In the thought of Herbert they created a class body-a distinctive sexuality,
Spencer, this ideal was to expand beyond the physical distinctive gestures, and distinctive bodily practices in
survival of the individual and apply to the evolution sport, drinking and eating habits, and health. My
of the ‘race:’ argument has been that since the eighteenth century
‘health has become a key symbolic marker by which
Take a part in your own evolution, [pleaded one health
reformer]. Select a mate of sound inherited constitution and the middle classes have defined the content, bound-
impeccable hygienic habits, pass your superior health on to aries, and otherness of their personhood.
your children, and natural selection would do the rest: this
was the millennial health message as revised by Darwinism
[15,p. 1561. THE NEW HEALTH CONSCIOUSNESS

Health, and the penalty of disease, assumed a central What was true of the expanding middle classes of
role in solidifying positions of class and race through the nineteenth and early twentieth centuries has
programs of ‘racial hygiene’ and eugenics [16]. Any reappeared with new force in the United States since
violation of the laws of health were described by the mid-1970s as the middle class embarked on
many health reformers not only as ‘physical sins’ but projects of personal reconstruction and renewal. The
as betrayals to the social body and to human pro- following interpretation of the new health conscious-
gress. ness was originally based on in-depth interviews I
The concept of health as a practice was much like conducted in the early 1980s. I have argued that the
the work required of the emerging professions-self- values expressed when people talk about health are
motivated, self-disciplined, sustained over a lifetime, not simply values considered essential in order to
and premised on new forms of knowledge. Through achieve health. Rather, such values constitute the
Reflections on health, culture and AIDS 1353

implicit meaning and the symbolic substance of included the breaking and weakening of unions, the
health. Health, in other words, may be pursued in closing of factories, and the shifting of production to
order to express these values. Contemporary popular lower-waged areas of the Americans south and the
thinking about health is complex, but in my inter- Third World. The professional middle class, however,
views a clear and consistent theme stood out from all has not escaped this economic tightening. Many have
others: health can be understood as a metaphor for faced lay-offs or the threat of lay-offs and most have
self-control, self-discipline, self-denial and will power experienced demands for higher output which have
[18]. This should be no surprise to the reader who has often translated into longer hours. Citing a Bureau of
followed my argument so far. In the late twentieth Labor Statistics report, Peter Kilborn of the New
century, health continues to be a moral discourse, an York Times wrote in June, 1990,
opportunity to reaffirm the values by which self is Among 88 million people with full-time jobs last year, nearly
distinguished from other. 24 percent-largely executives, professional, self-employed
Why the mid-1970s and since? Certainly, middle people, journalists, bureaucrats, and the secretaries and
class Americans have, for several reasons, become clerks who toil alongside them-spent 49 or more hours a
deeply concerned with real threats-both persistent week on the job . . Ten years ago only 18 percent worked
so much [19].
and emerging-to their physical health. They have
acquired a sense of somatic vulnerability largely as a Increased competition to acquire jobs or demands to
result of medical, political and commercial messages keep them have sent many back to school for ad-
sensitizing them to a plethora of hazards. Continued ditional course work and degrees: and the demand in
high rates of cancer, heart disease, and other chronic colleges for more vocationally related programs re-
diseases have, of course, provided tangible reasons mains high. In sum, a more serious and anxious
for paying close attention to the endless array of mood has descended upon working people in the
medical prescriptions and proscriptions. Health pub- United States. The recession of the last few years has
licity has also emphasized the importance of individ- served to reinforce this mood. It is in this climate that
ual responsibility and the requisite qualities of middle class Americans, experiencing what Barbara
discipline and denial claimed to be essential for Ehrenreich calls a “fear of falling” [20], have per-
protecting health. To an already predisposed middle ceived the need for a reconstructed, more disciplined
class, this constellation of health-promoting at- self-a perception that corresponds with the agendas
tributes and associated behaviors made sense. of economic and political leaders. This has also been
Millions of Americans have embarked on a health a period when middle class parents intensified per-
and fitness regimen that continues today, with dra- formance demands on their pre-school and school-
matic changes in smoking, diet, exercise, and alcohol aged children. In the American idiom, success will be
consumption. achieved only by applying more effort. It would
Concurrently, however, Americans began to ex- appear that as access to the symbols of class belong
perience a social and economic vulnerability that ing diminish, identity might be made more secure by
threatened their identities as secure members of the a display of those values traditionally associated with
middle class, a vulnerability that has continued into the middle class.
the 1990s. In 1974, real incomes began to fall and, for As in previous eras, health and fitness provide an
most of the middle class, have continued to fall or opportunity to mobilize symbolic resources. The
stagnate. Only temporary and modest gains have body is a tangible self that can be harnessed and
countered this trend. Although an increasing number transformed in conformity with consciously chosen
of working wives cushioned the fall for many (and designs. As the competitive struggle for jobs and
helped account for the meteoric, 1980s rise in income social position intensifies, the middle class immerses
of the more fortunate), economic distress has been itself in training, building resistance and extending
widely experienced. As the price of housing skyrock- endurance. The best selling, non-fiction book in the
eted, for example, the American dream of home spring of 1984 was entitled Tough Times Never Last
ownership became more distant, or at the very least, but Tough People Do [21]. “If you’re in shape, you’ve
it has consumed an increasingly burdensome portion got the edge!” proclaimed a 1980s television ad for
of family income. Costs of other items emblematic of deodorant. Portraying a 1976 photo of a disheveled
middle class status also dramatically increased, in- man under the heading “Hard Rock” alongside a
cluding big consumer items like automobiles, medical 1989 photo of the same man, now muscular, short-
care, and education. People from across a broad haired, and lifting weights and labeled “Rock Hard,”
eonomic spectrum have ‘tightened their belts’ and/or an advertisement for a health club intoned “You’ve
are working harder to maintain a desired level of got to face the music sometime. So listen up. No
consumption and a secure place in the middle class matter who you are or what your record is, it’s never
for their children. too late to get your act together . . . We can make it
The late 1970s and 1980s have also been years easier to get your show on the road. And keep it
when management in both the public and private there” [22]. In June of 1985, Hofstra University ran
sectors has undertaken a ‘disciplining’ of labor. One an ad featuring a woman running. The caption read,
aspect of this project targeted labor costs and has “What does it take to be the best? Determination,
1354 ROBERTCRAWFORD

hard work and the resources which place Hofstra and fitness consciousness, though politicized and
University [etc] . . . The ad. ends with the declaration: congruent with counter-cultural ideals, heralded an
“Hofstra University. We teach success” [23]. The early receptivity to the harsher climate of restraint
healthy body, a symbol of the value of the individual, that would settle in as the seventies progressed. Still,
has once again become a sign of individual achieve- the challenge to conventional social and political
ment and the value of the individual as a commodity values set in motion the expected reaction. Ellen
in the labor market. In “the war of each against all,” Willis reminds us how much was at stake [25, p. 1301:
body, and the identity it signifies, has become destiny.
The healthy body is the mark of distinction that . . women’s chastity policed by the dubious promise of
male ‘respect’and lifetime monogamy, backed by the with-
differentiates those who deserve to succeed from holding of birth control and the threat of social ostracism,
those who will fail. In pursuing health, the self is sexual violence and exploitation, forced marriage and moth-
reconstructed in conformity with a more intensely erhood, illegal abortion; men’s schizophrenia, expressed in
competitive and insecure world. hypocritical ‘respect’ for the frustrating good girl and
The turn toward disciplinary self-improvement in irrational contempt for the willing bad one, pride in their
lust as the emblem of their maleness and disgust with it as
the latter 1970s and 1980s cannot be adequately the evidence of their ‘animal natures’; homosexuality un-
explained without considering the unprecedented speakable and invisible.
challenge from middle class youth, who in the 1960s
and 1970s sought to redefine norms of sexuality, drug The response was immediate. Mobilizing around the
use, and ‘careerism, and the response to that chal- targeted symbols of ‘permissiveness,’ ‘promiscuity,’
lenge. Combined with the anti-war and civil rights and ‘perversion,’ the cultural right launched its coun-
movements of the era, the mood was one of social ter-attack in the name of discipline and traditional
and personal transformation and possibility. For the values. The backlash against gay liberation began
parents and elders of the ‘sixties generation,’ whose with Anita Bryant in 1977, and expanded to other
professional middle class identity depended on the sexual and anti-feminist issues with the Moral Ma-
delayed gratification and norms of achievement jority in 1978. Cultural conservatism lent critical
which had seemingly guaranteed their privilege, and support to the election of Ronald Reagan, which in
whose own ambivalence about the consumer lifestyle turn spurred the anti-gay, anti-abortion, and anti-
had engendered fears of ‘softening’ and downward drug organizing of the 1980s and early 1990s. More-
mobility, the counter-cultural and politicized youth over, the continuing sexism of ‘liberated’ men enlisted
of the sixties represented class betrayal and bred feminist opposition to the sexual ‘freedom’ that had
fantasies of a ‘lost generation’ [20]. The repressions served to guarantee sexual access without genuine
perceived to be requisite for class success and cultural mutuality or intimacy. Though limited by the “com-
stability, already feared to be weakened by post- mercialization of sex and the sexualization of com-
WWII abundance, appeared to be in jeopardy. When merce” [26], cultural conservatives had by the
middle class women asserted a new freedom from the mid-1980s made deep inroads into American media,
conventional boundaries of gender and demanded the education, and other community institutions. Along
right to sexual pleasure, anxieties about ‘the family’ with the self-disciplining response to performance
and unrestrained sexuality escalated. Additionally, as demands and class insecurity, increasing numbers of
if to verify the worst-case scenarios of cultural conser- middle class men and women began to assert the
vatives, the gay liberation movement began to assert values of sexual restraint, a drug-free society, and
its claims to rights and recognition and thousands of ‘family life’*ven if they were yet unwilling or unable
men came out of the closet celebrating the pleasures to live them. The energy that had powered the
of the body and same-sex love. boundary-stretching politics of the now-ageing sixties
The cultural movements of the 1960s and early generation could not be sustained. Once again, health
1970s were experiments in exceeding limits. The provided a readily available symbolic terrain upon
‘sixties generation’ contested many of the externally which the new disciplined self would be re-made or,
and internally imposed controls upon which conven- at least, publicly displayed. Before AIDS had
tional selthood had been premised (even though emerged as the weapon-of-choice against sexual ‘de-
many of the terms of relationship to others remained viance,’ herpes had been promoted as the ‘scarlet
unexamined; and even though the experiments had letter’ of the 1980s; marijuana was re-framed as a
been made possible by the culture of cornmodified health issue; and a proliferation of newly identified
pleasures which had come to compete with the ‘sur- hazards instilled an atmosphere of danger and the
plus repressions’ associated with ‘performance’) [24]. necessity for personal vigilance and control.
Contrary to current conventional wisdom, the ideals The somatic self-fashioning of the 1980s along
of self-discipline were never absent from the move- with the class-defining, moral regeneration it sig-
ment (for all those who ‘dropped out’ how many nified, formed the back-drop for the psycho-cultural
more ‘stayed in,’ trying to balance performance ex- response to the AIDS epidemic. The spirit of self-ex-
pectations with one or another aspect of the counter- perimentation had been derailed and it had been
cultural lifestyle? And how many experienced replaced by a more sober mood of ‘getting down to
anxiety, ambivalence or guilt?). Significantly, health business’ and mobilizing personal (marketable) re-
Reflections on health, culture and AIDS 1355

sources. In the lexicon of American individualism, utility for providing rationales for their subordina-
people were re-visioning their task as ‘taking respon- tion are relatively well known [30]. Less apparent are
sibility.’ At the very time that the AIDS epidemic the costs to the individuals who employ such de-
appeared in the United States-an epidemic quickly fenses: repression, fear and anxiety, self-hatred, and
associated with deviant persons and excessive behav- a refusal to be open to potentially valuable experi-
iors-health had reemerged as a moral discourse and ence.
as a symbolic site for the affirmation of conventional In this section, I will explore the dynamic whereby
personhood. Encased in the rhetoric of self-control, disease takes on the symbolism of a negation of the
self-denial and individual responsibility, the pursuit conventional self understood as ‘healthy.’ The ‘epi-
of health had become emblematic of a conventional demic of signification’ is a fear of a particular kind of
and approved self. HIV-AIDS was seemingly des- contagion, a fear that the boundaries which dis-
tined to become a disease that signified the negation tinguish self from other cannot be maintained. The
of that re-fashioned self. mark inflicted by AIDS, other sexualy transmitted
diseases, and to a certain extent, all serious affliction
is an inscription of otherness. The visible component
THE UNHEALTHY OTHER
of this otherness is the external object of abjection-
Disciplinary society is perpetuated through the production the ‘homosexual,’ the ‘addict,’ the ‘prostitute,’ or,
and deployment of the bifurcated self.. . One side of the simply, the seriously ill. The dynamic force of other-
self-the site of the free, self-interested, rational, and re- ness, however, is the projection of the internaI other-
sponsible agent--endorses the norms of the order as its own
postulates of reason and morality; and when it breaks experiences not permitted the recognition accorded
one of the codes to which it has consented, it is worthy of by identity. I am speaking about vulnerabilities-par-
being held responsible for the infringement. The second side titularly about disease, psychic disintegration, and
is ‘the other’ in the self, which does not fit neatly into this death-but also about desires, dependencies, addic-
affirmative construction; it is the locus of wishes, feelings,
and desires that escape articulation. To give these impulses
tions, and a range of experiences that are either
verbal expression today is to translate them into the excluded from legitimate selfhood or only tenuously
language of therapy, medicine, psychiatry, and moral per- integrated within it.
versity. The other side of the self is also a site of political
control; for behavior that escapes the self-control of reason, The biomedically healthy self and the unhealthy other
interest, and responsibility is located within categories that In all cultures, critical illness represents a danger
require bureaucratic intervention to control, reform, or
prevent it [27, pp. 1061071. both to the individual and to the social order and thus
is a symbolically charged event. For the healthy
The HIV virus has manifested itself in three constituencies
individual, illness threatens to disrupt the everyday
in the West-blacks, intravenous drug-users, and gay men.
The presence of AIDS in these groups is generally perceived activities, obligations and social roles upon which
not as accidental but as a symbolic extension of some identity largely depends [31]. Serious affliction also
imagined inner essence of being, manifesting itself as disease threatens individuals with the prospect of varying
[2& p. 81. degrees of disorientation and loss of control, Not
The modern, conventional formation of self and its least, the life-threatening shadow of illness sets in
contemporary reformulations cannot contain nor ad- motion a psychological defense. For Sandor Gilman,
equately allow for the expression of a range of this fear of death or dissolution and the defense it
experiences that are increasingly positioned as out- engenders provides an explanation for why the
side the realm of the ‘normal’ or the ‘self-responsible seriously ill person is so often seen as different:
individual.’ As I have suggested, experiences that fall
It is the fear of collapse, the sense of dissolution, which
outside the limits of legitimate selthood nonetheless contaminates the Western image of all diseases, including
press upon those boundaries and, at least, implicitly, elusive ones such as schizophrenia. But the fear we have of
bring them into question. Under certain social con- our own collapse does not remain internalized. Rather, we
ditions, one of which I believe to be the AIDS project this fear onto the world in order to localize it and,
indeed, to domesticate it. For once we locate it, the fear of
epidemic, conflicts within and between identities are our own dissolution is removed. Then it is not we who totter
intensified. The creation of an external other, people on the brink of collapse, but rather the Other [29, p. I].
and groups that are negatively stereotyped, deters
these conflicts from being openly and fully engaged. Thus, the individual’s fear of loss of control and loss
The experienced discomfort of internal conflict is of life engenders a defense: a perception of the
temporarily resolved by devaluing, denying, and re- afflicted as particularly susceptible due to their dis-
pressing the proscribed or conflicted aspects of the tinctive behaviors, emotional predispositions, social
self and by recreating an imagined and seemingly or geographic environment, or unexplained suscepti-
safer unity through externalization. Mosse, Volkan, bilities believed to be the property of groups. Death
Gilman and others have written about the dynamics is kept distant, far from the ‘natural’ or ‘normal’
of projection by which the other is imagined and vitality of the healthy self. Projection is a tactic of
distanced from the self [29]. The social and personal self-reassurance. Susan Sontag’s well known essay
costs of this tactic in terms of stigmatization of makes a similar argument. Thinking about illness in
scapegoated individuals and groups as well as its metaphorical terms-metaphors which usually blame
1356 ROBERT CRAWFORD

the victim-is a way of taming death in a secular age which that psychological distance is portentously
[32]. The statistical basis of attributions that connect closed. The afflictions of the other threaten to become
particular diseases to certain groups and behaviors one’s own. I may become an ‘innocent victim;’ or
only gives an appearance that rational inferences are another ‘innocent victim’ may become the source of
at work. These connections, however, often resonate infection that may reach me. Thus, contagious dis-
with deeply ingrained, implicit meanings and power- eases threaten to ‘break out’ of their imagined ghettos
ful moral judgments. The sick are not only made and enter the presumed zone of safety-designated,
responsible for their illness, they are also made in respect to AIDS, as the ‘general population.’ The
different. The person who is momentarily free of attempt to confine ‘contagion’ within its presumed,
illness is thus reassured; s/he is not like those who are originating groups becomes the rationale for calls for
sick. Thus, the tacit assumptions so frequently heard quarantine, immigration controls, and incarceration
in everyday conversations: “He has lung cancer.“/“Is of ‘reckless’ or ‘willful’ individuals. With serious,
he a smoker?” or “He was injured in an auto contagious disease, the source is still the other who by
accident.“/“Was he wearing a seat belt?” “He has his/her (im)moral nature lives in such a way as to
AIDS.“/“Is he gay?’ pose a physical threat to those who would not
The cholera epidemics of the nineteenth century otherwise be ‘exposed.’
challenged the somatic security of the middle class (as Gilman may be right that denial and repression of
well as a bourgeois identity premised on the progress- physical and psychic disintegration and projection of
ive march of technology). Reassurance (on both vulnerability onto an other is a universal human
scores) was achieved, however, by the observation process. There are strong reasons, however, for be-
that the hardest hit areas were the poor and over- lieving that the concept of health as it has developed
crowded districts of the industrial towns and the in the modern West reinforces this psychological
explanation that inhabitants of such areas were surely defense. Robert Romanyshyn has argued, for
‘degenerate’ and thus responsible for their fate [33]. example, that the Cartesian objectification of the
The logic offered to explain “why her” or “why body distances the body from the experiencing self-
them” provides an answer to the anxious query “why or in Barbara Duden’s terms, one comes to ‘have a
not me?’ or “why not us?” Conversely, displaying the body’ rather than ‘be a body’ [7]. Did the ‘re-birth’
culturally sanctioned signs of health provides a sym- ascribed to the Renaissance initiate a massive forget-
bolic shield: “I am healthy. I am not vulnerable ting, an attempted separation of self from the embod-
because I do those things one should do in order to ied experience of decline and death? Romanyshyn
be healthy.” The loss of health or simply the charac- suggests that transforming the ‘dead’ body, which
terization of a person as ‘high risk’ entails a setting was a body of remembrance, into a ‘corpse,’ the body
apart. Thus, the claim of health is simultaneously a of science, changed our relation to death. The scien-
declaration of identity: “I am responsible and tific objectification of the body constituted an epis-
rational.” “ I am in control of my body and my life.” temological flight from the body of experience, an
The healthy body is the property of a deserving experience of life and death, vitality and decline.
owner. Illness must have a reason located outside the Through the epistemology for which the health of the
normal self-in deviance from the rapidly expanding body would become the crowning achievement, the
mandates for healthy behavior, in a fatal flaw of figure of death was to be banished from a place in life,
character or personality defect, in an unconscious a figure with which one came to terms, to a figure on
predisposition toward illness, or in living a ‘high the other side of life, to be tamed and defeated. Was
stress’ life with poor ‘stress management.’ AIDS, in this the first step, Romanyshyn asks, toward the
its association with illicit drug use or an illicit, modern wish of life without death, a life where death
promiscuous, or extra-marital sexuality, powerfully is most easily imagined on the other side of a
reinforces this notion of health as the property of the television screen? Or as Illich has put it [34], has
normal self. Undoubtedly, significant degrees of pro- modern culture adopted a medicalized belief in a
tection do, in fact, follow from these medical and ‘natural death’-a life without illness or decline until
popular understandings. Yet, there is also a social the very end when one allows the care-takers to pull
distancing from the ‘unhealthy,’ a further stereotyp- the plug? Illich refers to a ‘cultural iatrogenesis’
ing of already stigmatized groups who then, because whereby a medicalized health undermines the cultural
of their ‘irresponsible’ habits, are confirmed in their and individual capacity to embrace and respond to
otherness. The healthy person who has come to invest pain and suffering. Health has become the expression
so much in her health buttresses her immunity against of a technological dream and serious illness has
illness by constructing a quarantine of identity increasingly become the shadow world of that dream.
against the ‘unhealthy.’ The guardians of the divide between life and death
If the sick and the ‘at-risk’ (those who are poten- are medical experts who ensure, with our responsible
tially sick by virtue of behaviors or even group cooperation, that we do not cross the boundary until
membership) are made different as a defense against finally we must-and even then the crossing will be
one’s own vulnerability, the ‘contagious’ or ‘poten- facilitated by the new therapeutic technologies [35].
tially contagious’ represent the dangerous bridge over Unable as a culture to maintain a close proximity to
Reflections on health, culture and AIDS 1357

illness, decline, and death, we are unable to mirror creasing frequency, excluded from the workplace.
our own fate. No longer living ‘toward death’ but in Deviance, constantly articulated about the self, be-
a flight from it, the healthy self mobilizes all available comes the opportunity for a social and self-disciplin-
resources to fend-off the threat of dissolution. The ing. The self as a composite of risks is the
unhealthy then come to represent the inevitability we contemporary extension of the self as defined by the
would deny. They disturb the dream of technology parameters of ‘health’-in both is denotative and
and its promises of health delivery. In the unhealthy, connotative senses. That deviance from a norm of
the seculr meliorism of a technical and scientific health is now characteristic of the self and not just the
world view confronts the reality of failed systems of other does not point to a loss of identity in the
management and control. As the ritual of rational healthy self nor a diminution of stakes in defining the
control moves ‘upstream’ toward prevention (in the healthy self in opposition to an unhealthy other. The
face of increasing doubts since the mid-1970s about other just becomes the person who, unlike self, does
the therapeutic and economic efficacy of ‘down- not properly manage risks once they (the risk and the
stream’ medical interventions), the unhealthy, labeled person) are identified. Risk awareness becomes the
as complicitous in their fate, and said to compromise opening gambit of a ritual which, in revealing dangers
the physical and economic well-being of all, are and simultaneously what must be done to protect
further stigmatized as obstacles to the achievement of against them, affirms the rational control which lies
health. And since the citizens of the healthy state are at the heart of technological culture and which claims
already and always complicitous as well, the stakes in the identities of its most ‘progressive’ members. Risk
differentiating the healthy self from the unhealthy consciousness increases the healthy anxiety for which
other are all the greater. risk management offers its healthy solution. The
One might reasonably doubt, as does William ritual thus distinguishes the responsible from the
Arney in a personal communication, whether the non-responsible individual.
healthy self must necessarily oppose itself to an Thus, I would argue that this discourse of insecu-
unhealthy other. The notion of risk and the elabor- rity, with its proliferation of threats and the somatic
ation of degrees of deviation from a norm, writes vulnerability it imparts, triggers an even greater
Arney, turns people into individuals with risk profi- defense. As the ‘mirage of health’ begins to lose its
les. We all become deviants all the time and thus clarity, as the medical promise of a somatic salvation
become the objects and subjects of ‘risk manage- recedes, and as antibiotics are no longer able to
ment. ’ “There is a constant threat that the ‘other’ provide a cordon sanitaire against the re-emergence of
may be ‘us’ (me!). . . . The problem is not that the self life-threatening epidemics, healthy identity comes to
is forcefully limited; the problem is that the self in depend even more on strategies of opposition. ‘Bor-
these times, has shown itself to be potentially limitless der anxiety’ demands a strengthening of immunity
and then there is serious question of what to do about (distinction of me from not me) and the mobilization
that” [36]. of personal resources so that the individual can
In contemporary health promotion discourse, the remain within the boundaries of normality. I am
healthy self is portrayed as a composite of risks-be- suggesting, in other words, that in a risk-conscious
haviors, ‘life events,’ and a host of other stress era, the ‘healthy’ self develops an even greater invest-
factors. The new health consciousness is, on a practi- ment in the delineation of boundaries: between
cal level, a response in part to this risk awareness. The ‘reasonable’ risks and ‘unreasonable’ risks, between
healthy individual has, in a sense, been converted into those who have an ‘internal locus of control’ and
a person who is potentially sick, even well on the way those who have an ‘external locus of control.’ If the
to becoming sick. Medicine has expanded the mean- biomedical individual has become an at-risk individ-
ing of illness beyond clinical manifestation of symp- ual, the social self is also at-risk. The unhealthy,
toms and therefore the boundary between health and risk-averse person sets a bad example. The out-of-
sickness has become blurred. The ‘at-risk’ self is control individual is also one of the causes of out-of-
vulnerable; and responsibility is currently said to control medical costs. As if to prove the case, the
consist of a willingness to monitor, confront and do emergence of a deadly, sexually transmitted disease in
something about that vulnerability. This is precisely epidemic proportions extends the moral lesson: the
what is mandated in the countless programs of sick suffer their fate because they have a fundamen-
risk-assessment and risk-management undertaken by tally different ‘risk portfolio,’ and, unlike me, they
public and private employers worried about the costs belong to a ‘risk group.’ The Spector of contagion
of medical care and worker productivity. only reinforces this sense of difference. The ‘epidemic’
Yet, if individuals are assessed at varying degrees is no longer a relic of the pre-antibiotic past or the
of deviance from the norm, it is the norm itself that tropical or the African present; it is in ‘our’ midst-or
is thereby strengthened. Deviance within the self must at least threatens to be. The entire notion of where the
be managed. Individuals with high-risk ‘profiles’ are boundary is to be located (present/past, here/there)
identified and reproached not only by medical prac- must be reformulated and the new delineation is
titioners but by employers, colleagues, friends and much closer to home.
family. The behaviorally ‘unhealthy’ are, with in- With respect to border anxiety, AIDS as an im-
1358 ROBERT CRAWFORD

mune system disease is doubly threatening. Not only day routine of more or less uncritical acceptance of
is it an epidemic against which defenses must be the meaning of life is sharply interrupted by serious
mounted, HIV is a contagion that undermines de- illness.” There is a ‘destructuring’ of conventional
fenses. The idea of resistance is essential to the notion understandings. What, the afflicted person tends to
of a ‘healthy self.’ Immune system strength is the last ask, are the personal, social and moral implications
line of defense; avoidance having failed, it is the of my misfortune? Why me? Why now? Illness fosters
defense that comes into play upon ‘exposure’-the a crisis of self-definition and in so doing raises
very exposure, for example, that the continuous, questions, despite the naturalizing categories of
medical-media identification of hazards has im- biomedicine, about the adequacy of the conventional
planted in the health conscious middle class. Perva- structures and expectations within which that self had
sive hazards do not permit avoidance. When I previously functioned. Life-changing illness can un-
interviewed people in the early 1980s-on the cusp of dermine acquiescence to difficult and oppressive life
public awareness of the AIDS epidemic-‘good re- situations, even if only in the form of providing an
sistance’ or its lack was frequently identified as a exit or a defense against them. That which is normally
quality that helped explain health [18]. While for tolerated may become untenable, the illness becoming
some, resistance seemed to be fixed or solid, for a symbol that life as previously lived in no longer
others it appeared to be variable, a flux that was bearable. Healing practices, including biomedicine,
related to personal experience and other personal act as agents of re-socialization, employing diagnostic
qualities. Immunity could be compromised: in explanations and therapeutic strategies to focus and
periods of stress, if one allowed oneself negative deflect problems in system-enhancing directions. In
attitudes, if one did not stay on course with the epidemics, the dangers posed by the dislocation of
proper diet, if one did not control one’s Type A experience and social life are magnified. Latent social
inclinations etc. The concept of individual suscepti- and political tensions may be exacerbated and resent-
bility has likely always been present in one form or ments activated. Public authorities are often held
another, but in the age of immune system disorders, accountable for the spread of the epidemic and
the biological self is susceptible to a Trojan Horse. resisted when they impose extreme measures of con-
The source of danger has shifted to a new locale: trol. So volatile are existing social arrangements and
inside the ‘fortress body.’ The immune system is the so enormous are the economic and political stakes
heart of the individual’s ‘control system.’ A compro- threatened that the word ‘epidemic’ is itself frequently
mised immunity is a compromised self-a self that is a matter of contention [39]. The ways in which
‘open’ to infections which are described as oppor- modern medicine conceives and treats illness through
tunistic. As Donna Haraway has argued, immune categories that both reproduce and insulate existing
health and immunity enhancement have become key social relations (and their ideological premises) has
health strategies. The goal is to strengthen the inside become an important line of inquiry in critical medi-
against the outside, self resources against threats cal anthropology [40].
posed by the other [37]. Citing an immunology What should be apparent is that at both individual
textbook, subtitled “The Science of Non-Self Dis- and social levels, there are strong motivations to
crimination,” Haraway writes that the author represent the sick as different. For the social order-
“defines ‘self as ‘everything constituting an integral that is, the configurations of power which dominate
part of a given individual.’ What counts as an its institutions and shape its social relations-the
individual, then, is the nub of the matter. Everything defensive move is one of deflection of social prob-
else is ‘not-self and elicits a defense reaction if lems, tensions and resentments away from their struc-
boundaries are crossed” [37, p. 301. HIV, in targeting tural social source and on to the pathologies of
and ‘killing off cells of the immune system, is easily individuals and groups. It is the disinherited and the
imagined as the supreme threat to the ‘healthy’ self. marginalized of any society, after all, who suffer
The unhealthy other in the person of an HIV ‘carrier’ most, psychically and somatically, from the pathol-
is conflated with the other within in the form of a ogies of social organization. For individuals the
compromised immunity. Without immunity the self is defensive move it not only a denial of vulnerability
overrun by other. The fantasy is one of ultimate loss and loss of control. The preservation of existing
of control and loss of self. social relations is at the same time a preservation of
Finally, there is yet another aspect of illness which individuals’ privileged place within those relations.
gives additional impetus to the attribution that the Though the moralization of health promotion has
sick are different. Serious affliction also poses a substantially increased among the middle classes
danger to the social order. The disorientation of the since the mid-1970s [41], the stigma of ‘self-induced’
individual is simultaneously a disordering of social disease and unhealthy behavior is more likely to be
relations: social roles are not performed, obligations modified among individuals who share a common
are not met, medical care may be costly, and the sick social space. As social distance widens, however,
may require extensive care giving, especially by family attributions of self-destructive disregard and irre-
members. The ‘deviance’ must be controlled. More- sponsibility also increase, even if couched in a
over, as Michael Taussig emphasizes [38], “the every- language of victimization from a destructive social
Reflections on health. culture and AIDS 1359

and physical environment. Such judgments easily greater stake in creating persons who represent trans-
converge with other victim-blaming ideas about the gressed boundaries. These cultures tend to develop a
poor and marginalized. ‘High-risk’ and its pathologi- fear, fascination, and sense of horror of the other-a
cal consequences are ascribed to individuals who, non-self who is believed to assume all of the charac-
unlike the privileged, are ‘locked’ into ‘cycles’ of teristics antithetical to conventional selfhood.
deviance and self-destruction. ‘Their’ very existence Howard Stein [42] argues that this culture’s preoccu-
as ‘self-inflicting’ agents becomes a screen for the pation with alcoholism and the alcoholic is precisely
projection of a putatively self-reproducing social this kind of cultural drama, the other side of a
world. The imagined distinction serves the socially cultural immersion in control and various escapes
sanctioned identity of health, responsibility and priv- (including alcohol) from control. The alcoholic is
ilege and the reassuring belief in their mutual re- characterized as a person who has lost control, who
inforcement. The otherness of the sick or the has in a sense been ‘possessed’ by a substance that has
high-risk individual is, in short, a boundary maintain- stolen the controlled self. Similar insights can be
ing device that serves multiple agendas. applied to the current ‘war’ on drug addiction. Thus,
crucial to the boundary-maintenance work of any
The metaphorically healthy self and the unhealthy system of hierarchical categories of persons is both
other the affirmation of the distinctiveness of the relatively
Given the complex fears and motivations aroused dominant groups and the identification of defiling
by serious illness, it is also important to consider how signifiers of subordinate group status. Defiling per-
affliction is mobilized symbolically and utilized in sons must be made conspicuous in ther defilement.
sustaining the ‘healthy’ self as an identity which has Pollution (symbolic contamination by a person or
been metaphorically encoded and ariculated with thing) is the first act in a drama of purification
class, race, gender, and sexual identities. In the first continually acted out in behalf of sustaining individ-
section of this paper I argued, in effect, that modern ual and group identities. The danger of the other
social life has narrowed the prescribed boundaries of proliferates to the degree that dominant identities
selfhood, even as it has, paradoxically, appeared to themselves are volatile or otherwise threatened [43].
widen them. The transformations worked upon and Once again, projection onto an other of incompatible
within the person have gradually restricted permiss- and denied aspects of personal experience provides
ible, bodily expressions in ways that roughly corre- the means by which group identity and cohesion are
spond to the ideal of the self-contained and secured. Self needs other.
self-controlled individual. In order for the individual It is my contention that the ‘diseased’ and ‘conta-
to obtain social recognition and acceptance appropri- gious’ other, the sexual other, and the addicted,
ate to privileged social position, and thus to some minority other-all condensed in the negative sym-
degree maintain a secure and stable sense of identity, bolism of AIDS-have become key images which are
the non-conforming aspects of the experiential self mobilized as part of a cultural politics of reconstruct-
must be repressed-or at the very least limited to ing the self in conformity with intensified mandates
relatively safe, approved, ritualistic expressions of for self-control. As health becomes a medium for
release in socially designated times and places-for expressing what is believed to be essential about the
example, holidays, period of acceptable inebriation, self, disease-which has always been employed as a
Christmas shopping, or the vicarious releases pro- device for stigmatizing outsiders-increasingly comes
vided by televised violence through war, sport, and to signify otherness within the self. Those aspects of
drama. As the surveillance of the village and church personal experience no longer in conformity with the
has declined, the individual has been increasingly mandate for ‘health’ (read self-control) are split off
expected to scrutinize him/herself. Such self-scrutiny from the self and projected onto the identity of the
is said to be constituent of modern, individual auton- other. Just as the sick are perceived as essentially
omy and freedom. As disciplinary methods are ex- different, lacking the discipline and will power to
tended, indeed as an essential mode of such methods, maintain or restore health, people who are character-
self-policing becomes an expected behavioral prac- ized for other reasons as lacking self-control (homo-
tice. My thesis has been that both historically and sexuals, addicts, minorities) are also perceived as
since the 1970s health consciousness and practice can diseased or as agents of disease. When, as in the
be understood in part in terms of its metaphoric AIDS epidemic, people who already carry the stigma
capacities for these self-disciplining requirements. of undisciplined sexuality and addiction, become sick,
A culture of self-surveillance, however, is unable to and moreover, when the disease they suffer is conta-
maintain requisite identities by purely self-referenced gious, the two forms of otherness are dangerously
and self-enhancing projects such as the ritualistic combined. The subordinate or marginalized other is
evocations of control that punctuate middle class life. culturally situated both as a physical danger to the
Cultures continually preoccupied with policing the healthy individual and as a symbolic danger to the
boundaries of legitimate selfhood become equally social self. Disease in the already stigmatized other is
obsessed with persons that do not conform to the the embodiment of a moral pollution. The self thus
mandated categories and, in fact, develop an even acquires-in the body of the other-a ‘natural alibi.’
1360 ROBERTCRAWFORD

A twin danger is then posed against the two-fold sexuality. Homosexuality was then linked with other
purity of healthy morality and moral health. Projec- sexual and psychiatric deviances by way of imagined
tion is most effective when corporealized just as causative chains. Only under political pressure did the
disease is most dangerous when it carries the signify- American Psychiatric Association formally de-medi-
ing power to ‘spoil’ identity. The symbolic conden- calize the disease of homosexuality in 1974 [46].
sation of disease and otherness suggests the more Further, both ‘prostitutes’ and unescorted women
general association, in Sandor Gilman’s phrase, of (especially black and working class women who were
“difference and pathology” [#I. Gilman’s explo- often stigmatized as prostitutes) were and are dispro-
ration of this connection has been highly suggestive portionately punished as carriers of disease. Also,
for me. The location of ‘pathology’ in stereotyped middle class women of the late nineteenth and early
others not only deflects attention from the pathol- twentieth centuries were perceived as either sickly or
ogies of self and social system; the pathologized other prone to sickness, particularly madness. Women of
becomes useful as a threat. Thus, in externalizing the any class have periodically had their sexuality and
problem in the stigmatized individual or social group, their putative seductiveness portrayed metaphorically
the ‘normal’ self is defensively opposed to the ‘patho- in terms of disease [47,29]. To enclose culturally
logical’ other. ‘Pathology’ externalized, in other threatening behaviors and persons in the language of
words, does not eliminate danger; the threat is merely health is to lend legitimacy to their surveillance and
displaced. As an external threat, pathology becomes regulation in the modern, secular order.
contagious. This is what I take to be Watney’s point The pathologized other is fantasized not only as
about why ‘heterosexuals’ need ‘homosexuals:’ as a diseased but also as dangerously sexual. Gay men,
pathologized deviant, the homosexual is an ever- Native Americans, Africans and African Americans,
threatening presence against whom a wall of exclusion Jews, the working class, the poor, and women have
must be constructed [28]. all been periodically characterized as hyper-sexual
In a society where people are preoccupied with and deviant [48,29]. Sexual excess, perversion, and
control and anxious about its loss, contagion carries seduction provide compelling symbolic media for the
a heavy symbolic load. Contagion is the opposite of guardians of sexual and political order. The other is
control. It evokes images of violating boundaries, thought to be inherently dangerous-which is pre-
wildness, and nature untamed. In contagion, cat- cisely the reason for his/her sexualization. Outside the
egories are shattered. If the symbolic logic of health reach of the familiar, traditions of deference, and nets
suggests purification, locating threatening elements to of surveillance, the other is imagined as inhabiting a
the outside, then disease, along with associated im- dark world of secrecy and conspiracy. What better
ages of contagion, provides a model for all feared conditions for prolific sexual fantasy? The chain of
threats. The pure inside is contaminated by the associations leads from violence to sexuality and back
impure outside. The Jew in anti-Semitic ideology, for again. Like contagion, sex is associated with the
example, has alternatively been perceived as a carrier violation of boundaries: the social self is penetrated,
of disease and a ‘germ’ contaminating the social contaminated, and diluted by proscribed identities. I
body. Throughout the nineteenth century, the indus- believe that Freud’s insight still holds: an undifferen-
trial working class was perceived by the bourgeoisie tiated, ‘polymorphous’ sexual drive is only imper-
as both a moral and physical threat. In the United fectly forced into object choices that conform to the
States, the notion of working class contamination cultural determinations of gender and is subordinated
was amplified by the imagined corruptions of foreign to the culture’s demands of repression only with
immigrants and the industrial city, combined in the considerable emotional costs to the individual. One
figure of “the teeming masses” [45]. Working class response to these costs is a projection of what is
districts were imagined as caldrons of disease result- experienced as an internal danger onto a sexualized
ing from physical degeneration, filth, overcrowding, other.
immoral conduct, and ignorance. Along with the fear Projection occurs not only because the individual
of imminent revolt and retributive violence, the re- experiences an unacceptable sexuality but because
spectable also feared for their health. Similarly, since since the nineteenth century sex has come to represent
the late nineteenth century, homosexuality has ac- a force undermining the bourgeois’ preoccupation
quired an association with disease. Not only have with ‘control over the world.’ Thus, the projection of
homosexuals been seen as agents or carriers of dis- sexual danger is, as Gilman argues, a distancing move
ease, they have also been both medically and popu- whereby anxiety about loss of control over diffuse
larly categorized as sick. As the control of sexuality aspects of the world and one’s experience in it are
became a preoccupation for the middle class family, metonymically condensed and discharged. The other,
sexual deviations became more threatening. Notions already represented as outside the domain of control,
of pathology were thus linked to pre-existing con- already dangerous, is thus identified as over-sexed: by
cepts of contamination, such as predation, moles- nature, homosexuals are pederasts, women
tation, and seduction, The authority of medicine was temptresses, and black men rapists. The internal
(and continues to be) employed to identify homo- struggle for control has its external location precisely
sexuality as fundamentally different from ‘healthy’ because within the social order control is also at
Reflections on health, culture and AIDS 1361

stake. Sex, as a force in opposition to control, reveals cited above, has provided iconographic evidence of
the true nature of the other, it becomes the other’s how syphilis and the ‘syphilitic’ have been key mark-
insignia. Like disease, then, sexual deviance (the sex ers of otherness-lower class women, Jews, homosex-
of the other) has immense utility for the regulation of uals-and how these images are currently extended to
subordinate groups. Sexuality provides the ground people with AIDS. The perceived threat of deviant
for a pervasive danger, for magnifying the inherent sexuality is attached to disease and is conveyed by it.
threat of the other, and for mobilizing highly charged The threat is to physical and moral well-being, to
components of personal and group identity. healthy bodies and persons-and by extension, the
Since the nineteenth century, the sexualization of health of the family, the health of the ‘race,’ and the
self and other has become medicalized [49]. Sup- health of the nation. The danger is heightened since
ported by the science of sexology, a new medical the homosexual or the ‘loose’ woman is close to
surveillance began to specify its object on a detailed home, difficult to identify, and imagined as seeking
grid of deviations. Contingent pathologies were then out the momentarily capricious, who then unwit-
elaborated: infertility, madness, social failure in one’s tingly become agents of infection. Sexuality and
designated role, etc. Sanctioned by medical authority, disease combined present a formidable adversary to
the family extended its internal supervision, purity the images of control upon which modern identity is
crusaders and social workers ‘reformed’ the lower founded. ‘Sexually communicated’ is an attribution
classes, and an increasingly active state extended its which signifies illicit association and thus provides a
legal and administrative control over sexuality. A powerful reinforcement for all forbidden associ-
proliferating medical advice literature linked health, ations. Thus, in the present epidemic, not only mis-
male success, and female reproductive responsibility trust of medical authorities is at work in the fearful
to proper sexual conduct. Later, sexual ‘health’ was imaginings of transmission of HIV from mere prox-
introduced into school curricula [48,49]. By re-fram- imity to suspected ‘carriers’ or even to the places they
ing sexuality in terms of health and disease, social may have been (including neighborhoods and entire
authorities were able to employ the commanding cities); ‘innocence’ is a demonstrative act by which
legitimacy of medicine for the construction and en- identity is purified in the name of prevention. ‘Safe
forcement of the normalized self, that is, a self sex’ become safe association becomes a safe self.
increasingly bounded by the disciplinary and self-dis- If the individual were, in fact, safe in the sense of
ciplinary mandates of the modern era. In this way, experiencing himself and his world within flexible and
homosexuality was pathologized as disease and as a secure boundaries of identity, the threat of contagion
predisposing cause of disease; homosexuals were sim- would perhaps not carry the double symbolic load I
ultaneously positioned as transmitters of disease. The have been suggesting. However, this cannot be the
threat to health and the threat to the social self were case when the contemporary cultural mandate for
thereby fused and magnified. self-disciplining proscribes experiences and pleasures
Since both disease and an excessive and deviant which since the 1960s have become so widely shared.
sexuality are said to characterize the other, their
combination in the representation of sexually trans- PLEASURES AND DENIALS
mitted diseases engenders a compelling symbol of
danger. From the close of the fifteenth century, Neither self-concept nor self-awareness are deter-
sexually transmitted diseases have become the terrain mined by a single, dominant voice. The prevailing
upon which fantasies of cantagion originating from mandates for legitimate selfhood, issuing from vari-
already stigmatized groups and various policies of ous social institutions and interests, may themselves
containment have been constructed. Social historians be splintered. Multiple and conflicting prescriptions
have extensively explored the relationships of class, can be a source of anxiety for individuals as they
race, gender, medicine, and morality in the control of attempt to negotiate the situational appropriateness
sexually transmitted diseases. Allan Brandt, for of such directives. Potentially inappropriate behav-
example, has shown how the languages of medicine iors and experiences that reflect upon the self must be
and morality have never been divorced in the preven- continuously managed. This is where projection be-
tion and treatment and how in the United States comes so useful. The other is said to display and
thousands of women were incarcerated in and im- express those attributes promiscuously, unrestrained
mediately after WWI in response to an imagined by good character or adequate ego controls. Through
“enemy at home” [47]. Dorothy and Roy Porter and ascriptions about the excessive or out-of-control
Judith Walkowitz have documented how the British behaviors of the other, conflicting mandates for
Contagious Disease Acts of the 1860s (later repealed) appropriate selfhood can be integrated, albeit provi-
targeted prostitutes and other women in a period of sionally. The integrity of the social self is thus
moral panic about venereal disease [SO].James Jones protected.
has described the syphilis experiments using black I will address my remarks only to one structural
sharecroppers and day laborers at Tuskegee Univer- source of such conflicting self-definitions: the necess-
sity between 1932 and 1972 and the racist beliefs that ary creation of a self that, at least at the moment of
justified them [51]. Much of Sandor Gilman’s work, commodity-directed desire, must abandon the very
1362 ROBERT
CRAWFORD

foundations of control on which it normally relies. I the most important markers of identity, all the more
want to suggest, in other words, that the self in so as the social value of the work performed in-
contemporary American culture is defined in part by creases. For the professional middle class, delayed
a tension between a configuration of meanings and gratification and internalized demands for sustained
values that cluster around the symbol of control and productivity and achievement continue to be defining
another configuration premised on release from those characteristics [20]. Second, experiences of disap-
controls. In the latter, identity depends on pleasures, pointment, emptiness, and a continuing hunger for
the satisfaction of desire, play, gratification, and meaning associated with a high consumption lifestyle
extricating oneself from the interdictions of a “renun- are probably more widely felt than is openly acknowl-
ciatory moral demand system” [52]. Here, the social edged. Third, an emerging awareness of the necessity
self is one that must be filled by acts of continuous for ‘limits’ has accompanied the increased commit-
consumption and the enjoyments of ‘lifestyle’ and ment to environmental protection and the widespread
‘leisure.’ The consuming self, however, coexists with apprehension about industrial health hazards.
a self that can only be realized through satisfactory Fourth, as previously discussed, in the 1980s a
performance and its attendant psychological and compelling, conservative ideology gained credibility
moral qualities, a self still rooted in the realm of which identified permissiveness and excess as the
production and the moral demands of work. cultural source of problems as diverse as marriage,
The postponed gratification and self-discipline as- the family, adolescence, downward mobility, and the
sociated with the Protestant work ethic and an indus- destruction of community. Permissiveness was
trializing capitalism have been forced to make room claimed to be responsible for declining standards and
for their antithesis. Immediate gratification and the performance in the public schools, for rising crime
proliferation of desire have become indispensable to rates, and for a ‘failed’ welfare policy which under-
advanced capitalist society. The flow of commodities mined motivation for work and self-improvement.
requires an entirely new psychology, one that Jackson Finally, ambivalence about a consumption-ori-
Lears has called ‘therapeutic’-a sense of well-being ented lifestyle has been deepened by the reactivated
tied to the purchase and use of commodities. Modern mandate for discipline and control. This mandate,
selthood is thus constituted as much by the pursuit of and the class vulnerability through which it is so
diverse pleasures as by their denial, a ‘fun morality’ readily internalized, induces dissatisfaction with those
as much as a morality of applied effort. Moreover, as parts of personal experience and desires that continue
Judith Williamson argues, advertising provides a to fall outside the new requirements for a more
prolific array of images with which, in our hunger for disciplined self. The revitalized mandate for a
a differentiated yet group-identified self, we can ident- disciplined self, however, comes up against the re-
ify by way of purchase, possession and use [53]. quirement for self-conceptions and personal predis-
The intra-psychic tensions between these two forms positions compatible with continuous consumption.
of identity-founded on the separate yet interlocking The social contradiction between production and
terrains of work and consumption-have never been consumption and the conflict within individuals issu-
resolved, despite claims about their complementarity ing from it are not easily resolved. The managers of
and the persistent attempts in everyday life to mediate production and the managers of consumption con-
their contradiction. Contemporary Americans are tend in shaping the identities of modern men and
caught between these two cultural mandates, each women. A disciplinary mandate derived from a re-
insisting on a complaint modal personality. The industrialization agenda must still make room for
uneasiness is fed by a continuing ambivalence about that ‘gorgeous variety of satisfactions’ without which
a consumption-oriented life and guilt about ‘ex- the whole edifice of production would collapse. The
cesses.’ The reform of leisure has been a recurrent decades devoted to building a consumption ethic, of
theme throughout the nineteenth and twentieth cen- engendering diverse needs and pleasures and tying
turies [54]. Intellectual, religious, and political com- these to a repertoire of cornmodified wants cannot be
mentary continues to focus attention on the easily reversed-and neither will the efforts of a
‘declining’ work ethic in American society-the ‘dis- generation to break through the limitations on self-
appearance’ of traditional values, the ‘softening’ and sexual expression. Contemporary Americans are
effects of abundance, the alleged ‘deterioration’ in attached to the pleasures.
workers’ willingness to work dutifully and diligently While there are numerous ways to persist in enjoy-
for their employers. I want to suggest that one of the ing one’s pleasures in the midst of a disciplinary
effects of the deepening ambivalence about the restructuring, the internal tension must somehow be
leisured, pleasured, and sexualized ideals of modern managed. The discordant elements of the self may be
consumption is an attempted reformulation of the experienced as an increasing source of discomfort and
self towards the ideal of control. Several possible even self-disparagement. Previously acceptable parts
explanations come to mind. of the self may now be felt to be out of sync.
First, the work ethic is more deeply ingrained than Individuals must now attempt to delineate between
is generally acknowledged. The kind of work a person desires presently held to be illegitimate and those that
does and how good he or she is at it are still among are still said to be authentic and to repudiate those
Reflections on health, culture and AIDS 1363

that are currently targets of social disapproval. The isolated so as not to morally infect the healthy self.
present mandate, it should be stressed, does not call The repressed will always return-but in disguise: in
for a banishment of desire nor a suppression of the stigmatization of an other who is assigned the role
pleasure. If anything, the effort to expel inappropriate of scapegoat for internal conflicts and self-judgments.
desires intensifies authorized ones. The reverse is also In such a culture, ‘sexually-deviant,’ ‘inner-city ad-
true: the ‘need’ to retain legitimate desires for both dicted’ and ‘unhealthy’ others will serve unexamined
social and individual ends intensifies the need to expel agendas, both personal and social.
desires that are held to be illegitimate. The contradic-
tion in social structure and the conflict in personal CONCLUDING REMARKS
experience compel acts of purification, a purging of
the illicit. If contemporary American culture draws a circle
Health has provided a symbolic domain through too narrowly around the legitimate self, deviance
which this tension is expressed and negotiated. Illegit- from which is thought to be irresponsible, unnatural,
imate desires are clearly those which threaten the ungodly, out-of-control, or sick, that which falls
body-and, increasingly, the fetus. The effort to outside the circle does not simply disappear. As I
expunge pleasures in the name of health has become have suggested, there is much in personal experience
a self-directed and peer-pressured preoccupation of and imaginative life that traverses such arbitrary
the middle class. But the effort falls short. Will power borders. To the extent that individuals are unable to
is lacking; time is not available; stress induces back- integrate ‘unruly’ experiences into self-concept or
sliding; addictions are difficult to break. My point has permit them acceptable expression, they will likely be
been that health promotion is the physical location of denied, repressed, and projected. Narrowly bounded
a much broader mandate for control. What then, persons will symbolically and literally push away
becomes of these self-judgments about not being individuals and groups that represent what they reject
good enough, responsible enough, or ‘healthy’ in themselves. The suffering of this other will be
enough? neither recognized nor embraced. The misfortune of
There is, of course, no simple answer. Many Amer- the other will be of no concern because they are
icans may simply reject the moralized demands for a persons outside that collective circle of identity called
more disciplined self. Others might find themselves community. Todorov reminds us that in demanding
unable to integrate the conflicting mandates and identity, that is, in excluding, subordinating or stig-
alternate between each, mobilizing disciplinary re- matizing difference, a community remains closed; in
sources during the week and “waiting for the week- such a community, difference will be treated as a
end” for “deserved” enjoyment [%I. My point is that transgression and cannot be permitted equality [30].
there are strong motives to conform at least publicly Moreover, the social and physical harm these others
to the new mandates and thus to externalize the endure may be seen as deserved, a mark signifying
experienced conflicts. ‘Unhealthy’ others take on the their fundamental inferiority or their incurable devi-
burden of the lack of control and the inevitable ance. Anti-gay and anti-black forces are able to
failures of ‘responsible’ behavior. It is ‘they’ who, in exploit such sentiments. These dangers are real and
not taking responsibility, deserve the diseases they immediate. The symbolic power of a “contagion’
contract and ‘spread’ their afflictions to ‘innocent seemingly on the verge of ‘breaking-out’ of America’s
victims.’ The gay subculture with their ‘fast lane’ social and cultural ghettos provides fantastical ma-
lifestyles, the underclass of the ghetto with its addic- terial for punitive reaction. The preoccupation with
tions, the blue collar worker polluting the air with self-protection-which I have argued is simul-
cigarette smoke, the overweight incapable of denial, taneously physical and psychological, a defense of the
are not only the pariahs of the health conscious; they body and the social self--engenders fear and hostil-
are the embodiment as well of an otherness signifying ity.
lack of control. The image of gay sexual excess An overly controlled, repressed, and vigilantly
functions not only as a projection of all that has gone defended self is a fragile self. If the culture that
wrong with the ‘sexual revolution,’ but also of the provides the ground of my moral being and by which
barely repressed desires that, having been activated I am recognized and recognize myself does not permit
and repeatedly incited, continue to seek expression. in its conception the prolific needs, desires, feelings,
The image of the sociopathic drug addict ‘feeding’ his and experiences that belong to my phenomenal per-
habit reveals a middle class disquiet with its own son, then I will have difficulty clearly recognizing and
dependence on commodity-driven pleasures-a life- respecting the separate difference of others. The
style that ironically includes similar dependencies on constricted self, intent upon policing boundaries, will
pharmacological aids for pleasure, elevating mood, not sanction and therefore will not serve those parts
reducing anxiety, aiding in sleep, amplifying pro- of experience that are excluded from socially sanc-
ductivity, and easing the transition to ‘off-hours.’ The tioned identity. Neither will such a self permit or
prized internal locus of control so essential to middle invite an encounter with those parts of experience
class identity is fashioned at the expense of a censured that are chaotic, disintegrating, and potentially
and disparaged other, blamed for his own demise and threatening. As Philip Rieff reminds us [52], one of
1364 ROBERTCRAWFORD

the most crucial functions of culture is to forestall the Spirit of Capitalism. Allen 8~ Unwin, London, 1930;
Thompson E. P. The Making of the English Working
impending, psychological collapse of the individual.
Class. Vintage Books, New York, 1966.
Without boundaries, there could be no self. The 6. Taylor C. Sources of the Self: The Making of Modern
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and His World. MIT Press, Cambridge, 1968. Duden B.
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cultural obsession with finding and maintaining iden- Eighteenth-Century Germany. Harvard University
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9. Bordo S. The Flight to Subjectivity: Essays on Cartesian-
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Routledge, London, 1989.
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regularly employ to talk about health and through 15. Whorton J. Crusaders for Fitness: the History of Amer-
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