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PALGRAVE STUDIES IN THE FUTURE
OF HUMANITY AND ITS SUCCESSORS
Series Editors
Calvin Mercer
East Carolina University
Greenville, NC, USA
Steve Fuller
Department of Sociology
University of Warwick
Coventry, UK
Humanity is at a crossroads in its history, precariously poised between
mastery and extinction. The fast-developing array of human enhancement
therapies and technologies (e.g., genetic engineering, information tech-
nology, regenerative medicine, robotics, and nanotechnology) are increas-
ingly impacting our lives and our future. The most ardent advocates
believe that some of these developments could permit humans to take
control of their own evolution and alter human nature and the human
condition in fundamental ways, perhaps to an extent that we arrive at the
“posthuman”, the “successor” of humanity. This series brings together
research from a variety of fields to consider the economic, ethical, legal,
political, psychological, religious, social, and other implications of cutting-
edge science and technology. The series as a whole does not advocate any
particular position on these matters. Rather, it provides a forum for experts
to wrestle with the far-reaching implications of the enhancement tech-
nologies of our day. The time is ripe for forwarding this conversation
among academics, public policy experts, and the general public. For more
information on Palgrave Studies in the Future of Humanity and its
Successors, please contact Phil Getz, Editor, Religion & Philosophy: phil.
getz@palgrave-usa.com.
© The Editor(s) (if applicable) and The Author(s), under exclusive licence to Springer Nature
Switzerland AG 2022
This work is subject to copyright. All rights are solely and exclusively licensed by the
Publisher, whether the whole or part of the material is concerned, specifically the rights of
translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on
microfilms or in any other physical way, and transmission or information storage and retrieval,
electronic adaptation, computer software, or by similar or dissimilar methodology now
known or hereafter developed.
The use of general descriptive names, registered names, trademarks, service marks, etc. in this
publication does not imply, even in the absence of a specific statement, that such names are
exempt from the relevant protective laws and regulations and therefore free for general use.
The publisher, the authors and the editors are safe to assume that the advice and information
in this book are believed to be true and accurate at the date of publication. Neither the
publisher nor the authors or the editors give a warranty, expressed or implied, with respect to
the material contained herein or for any errors or omissions that may have been made.
The publisher remains neutral with regard to jurisdictional claims in published maps and
institutional affiliations.
This Palgrave Macmillan imprint is published by the registered company Springer Nature
Switzerland AG.
The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland
This book is dedicated to Trevor William Greenwood (1935–1986),
my greatest inspiration.
Preface
Nine years ago, my friend’s daughter Annie, aged 18, died suddenly. At
the time of her death, Annie had an active Facebook page where she regu-
larly posted photographs of friends and family. Even today, Annie remains
‘socially alive’ on her live Facebook page. Following Annie’s death, I
became interested in why my friend—and many others—still spoke to her
on Facebook in the present tense as though she were reading the posts. At
the time, Facebook allowed the memorialisation of pages following the
death of the user. However, some inheritors of these pages—who have
access to the accounts—chose not to do this, enabling their deceased
loved ones to remain socially active in a digital afterlife.
Some tech companies are moving into the Digital Afterlife Industry
(DAI) using intelligent algorithms that enable us to create digital doppel-
gängers of us when we are alive, which they claim could continue to inter-
act with the world following our biological death. These technologies
provide new ways for us to communicate with the dead and foster ongoing
relationships in our digitally mediated societies. Following initial research
on digital inheritance I began to wonder if this type of posthumous digital
endurance would affect how people grieve; moreover, I wanted to under-
stand if these digital artefacts of the dead were experienced differently
from physical keepsakes by those who inherit them. My Dad had died over
30 years earlier, and I began to think about how it would feel to possess
digital memories and messages from him and whether this would have
been a comfort or disruption to my grief. I thought this ethnographic
study had begun; however, when I told Katie, my daughter, about the
vii
viii PREFACE
ix
x ACKNOWLEDGEMENTS
Weaver, the ‘knower of all things’, your enthusiasm has contributed to the
finished product. They say the older you get, the more you need people
around who knew you when you were young: sincere thanks and love to
my childhood friend Sharon Habib, your guidance and advice has always
been filled with laughter and tears. You may be geographically on the
other side of this planet, but you are always by my side.
The reviewers of this book gave me much to think about, and I would
like to thank them for their time, valuable comments and most of all for
their belief that the book was worth writing. For me, writing anything for
publication is both mentally and emotionally challenging. So here I would
like to show my appreciation to the author Stephen King for writing the
short story ‘Rat’ which is about an author who toiled over each and every
word of his novel and, shackled by the rituals involved in writing, made a
deal with the devil in order to get the book finished—you saved me from
thinking it was just me.
Without my family’s support and encouragement, I would not have
started, let alone completed my PhD, or this book, thank you all for your
never-ending belief in me. Finally, I would like to acknowledge the time
and emotional energy given by all those who took part in this research—
thank you for sharing your darkest moments, deepest grief and undying
love for those you have lost.
Contents
xi
xii Contents
Index189
About the Author
xv
Abbreviations
AI Artificial intelligence
AVAs Ancestor Veneration Avatars
DAI Digital afterlife industry
DC Digital Creator
DDNR Digital do not reanimate
DI Digital Inheritor
DMAM Digital memories and messages
DNR Do not resuscitate
SNS Social network sites
SP Service Provider
STS Science Technology and Society
TSD Thanatosensitive design
UK The United Kingdom
USA The United States of America
xvii
List of Figures
Fig. 6.1 The Dual Process Model of Coping with Bereavement. (Schut
and Stroebe 1999) 133
Fig. 6.2 Expanded model of the Dual Process Model of bereavement 139
Fig. 7.1 Remembering and forgetting the dead 153
Fig. 7.2 Stakeholders involved in the creation and inheritance of digital
memories and messages 159
xix
List of Tables
xxi
CHAPTER 1
Did you know that a man is not dead while his name is still spoken? (Going
Postal – Terry Pratchett)
We are all going to die, but in the words of Freddie Mercury ‘Who Wants
to Live Forever?’ We live in a digital era, where social media is a part of the
everyday lives of many. Social media platforms were designed for the liv-
ing; however, they are being used to nurture ongoing relationships with
the dead and are increasingly being used to discuss death, dying and griev-
ing. In this digitised world, technology exists which enables us to create
avatars allowing us to ‘live forever’ and advise future generations as reani-
mated digital zombies. The convergence of death-related issues and tech-
nology has become a growing and important area of study across many
disciplines, including Sociology; Human-Computer Interaction (HCI);
Science, Technology and Society (STS); Cyberpsychology; Death Studies;
and Psychology. In our digital society, ubiquitous smart technology
ensures the dead permeate into the everyday lives of the living; as some-
times they wait patiently in a state of suspension for the swipe of a finger
or the click of a mouse to conjure them back into existence. Adopting
qualitative methods and a constructivist grounded theory methodology,
this study explores the nature and impact of the creation and inheritance
of digital afterlives.
Diffuse Sclerosis.
The various forms of sclerosis thus far considered were at one time
considered as varieties of chronic myelitis, and under different
names, founded on leading symptoms, were considered to be
merely local, and perhaps accidental, variations of one and the same
morbid process. More accurate clinical and pathological analysis has
separated from the general family of the scleroses one clearly
demarcated form after another. Tabes dorsalis, disseminated
sclerosis, amyotrophic lateral sclerosis, and the combined forms of
sclerosis have been successively isolated. Still, a large number of
cases are left which cannot be classified either with the regular
affections of the cord, limited to special systems of fibres, or with the
disseminated form last considered. They agree with the latter in that
they are not uniform; they differ from it in that they are not
multilocular. Not a few modern authors have neglected making any
provisions for these cases, while others treat of them in conjunction
with acute myelitis, of which disease it is sometimes regarded as a
sequel. The term diffuse sclerosis is here applied to those forms of
chronic myelitis which follow no special rule in their location, and to
such as are atypical and do not correspond in their symptomatology
or anatomy to the more regular forms of sclerosis. In regional
distribution the foci of diffuse sclerosis imitate those of acute myelitis:
they may be transverse, fascicular, or irregular.
FIG. 33.
The so-called myelitis without softening, or hyperplastic myelitis of
Dujardin-Beaumetz, which is ranked by Leyden and Erb among the
acute processes, properly belongs here. It is characterized by a
proliferation of the interstitial substance, both of its cellular and
fibrillar elements. The nerve-elements proper play no part, or at best
a very slight or secondary one. In the sense that this affection occurs
after acute diseases and develops in a brief period it may be called
an acute myelitis, but both in its histological products and its clinical
features it approximates the sclerotic or chronic inflammatory
affections of the cord. As far as the clinical features are concerned,
this is particularly well shown in the disseminated myelitis found by
Westphal after acute diseases, such as the exanthematous and
continued fevers.
If, while the leg is slightly flexed on the thigh, the foot be extended,149
so as to render the Achilles tendon and the muscles connected with
it tense, and the hand while grasping the foot suddenly presses the
latter to still further extension, a quick contraction occurs, which, if
the pressure be renewed and kept up, recurs again and again, the
succession of the involuntary movements resembling a clonic
spasm. This action is termed the ankle-clonus or foot-phenomenon.
Gowers has amplified this test of exaggerated reflex excitability by
adding what he calls the front-tap contraction. The foot being held in
the same way as stated above, the examiner strikes the muscles on
the front of the leg; the calf-muscles contract and cause a brief
extension movement of the foot. It is believed that the foot-clonus
and the front-tap contraction are always pathological, but a few
observers, notably Gnauck, leave it an open question whether it may
not occur in neurotic subjects who have no organic disease. Gowers
considers the foot-clonus found in hysterical women as spurious,
and states that it differs from the true form in that it is not constant,
being broken by voluntary contractions, and does not begin as soon
as the observer applies pressure. But I have seen the form of clonus
which Gowers regards as hysterical in cases of diffuse sclerosis.
With regard to the front-tap contraction, its discoverer150 admits that
it may be obtained in persons in whom there is no reason to suspect
organic disease. It is significant only when unequal on the two sides.
149 By extension the approximation of the dorsal surface to the tibial aspect of the leg
—what some German writers call dorsal flexion—is meant.
150 Gowers, The Diagnosis of the Diseases of the Spinal Cord, 3d ed., p. 33.
The drift of opinion to-day is to regard pain in the spinal region as not
pathognomonic of organic spinal affections. It is true that pain is a
frequent concomitant of neuroses, and that it is more intense and
characteristic in vertebral and meningeal disease; but in denying a
significance to pain in the back as an evidence of diffuse disease of
the cord itself, I think many modern observers have gone to an
extreme. It is particularly in diffuse sclerosis that a dull heavy
sensation is experienced in the lumbo-sacral region; and in a
number of my cases of slowly ascending myelitis and of tabes
dorsalis the involvement of the arms was accompanied by an
extension of the same pain, in one case associated with intolerable
itching, to the interscapular region. It cannot be maintained that the
pain corresponds in situation to the sclerotic area. It is probably, like
the pain in the extremities, a symptom of irradiation, and
corresponds in distribution to that of the spinal rami of the nerves
arising in the affected level.
As the posterior columns are usually involved in transverse myelitis,
the same lancinating and terebrating pains may occur as in tabes
dorsalis. As a rule, they are not as severe, and a dull, heavy feeling,
comparable to a tired or a burning sensation, is more common. A
belt sensation, like that of tabes, and as in tabes corresponding to
the altitude of the lesion, is a much more constant symptom than
acute pains.
The main difference between the diffuse sclerosis and acute myelitis,
clinically considered, consists in the gradual development of
symptoms in the former as contrasted with their rapid development
in the latter disease. Acute myelitis is established within a few hours,
days, or at most, in the subacute forms, a few weeks; chronic
myelitis requires months and years to become a clearly-manifested
disorder. It is the essential correspondence of the symptoms of both
conditions, intrinsically considered, which renders it impossible to
distinguish clinically and in the absence of a history of the case
between some cases of acute myelitis in the secondary period and
the processes which are primarily of a sclerotic character.
There is one point in which spinal and cerebral disease involving the
motor tract differs in the majority of cases, which may be utilized in
distinguishing obscure affections of the former from those of the
latter kind. In cerebral paralysis of any standing the superficial
reflexes, such as the cremaster and abdominal reflexes, are usually
diminished or abolished, while the deep or tendon reflexes are
exaggerated. In spastic conditions due to spinal disease—say
sclerosis of any kind affecting the lateral column and leaving the
motor nuclei of the anterior cornua unaffected—the deep reflexes
are similarly increased, but the cremaster reflex is increased also.154
This feature of the superficial reflexes is significant in the case of
cerebral disease only when unilateral.
154 Attention has been called, I believe, by Westphal, to the fact that the cremaster
reflex may not be demonstrable when reflex excitability is at its highest, because the
cremaster muscle is already in extreme spastic contraction.
FIG. 34.
Secondary Degeneration of Interolivary Layer: D Ds D, degenerated
area; r, the distorted raphé.