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vi CONTENTS
References 333
Index 357
PREFACE
vii
PREFACE II
1
2 1 / PRINCIPLES OF HEALTH CARE ETHICS
or from experience (as in J. S. Mill, 1979). Thus, ethics is not the same as
moral theology or religious ethics, since ethics uses common human experi-
ence as its point of departure. For its final determination of right or wrong,
religious ethics ultimately appeals to a revelation to a particular group, while
philosophical ethics does not, or at least should not, invoke particular reli-
gious belief as a justification of its conclusions.
Ethics need not be taken as an attack on religiously founded morality,
which for the believer has a superior validity. Ethics is not, after all, capable
of judging the claims of divine revelation. Yet, since they are both concerned
with how a human life ought to be lived, ethics and religion often consider
the same problems and share important insights. Occasionally during the
course of this book, we will refer to various religious traditions in order to
broaden our discussion by providing alternative views or a different perspec-
tive. These references are to illustrate the complexity of the problem under
discussion, and do not provide a full discussion of that religious tradition.
The core of our approach will remain philosophical.
Nor is ethics the same as law, although the law is an important expression
of social judgment about the rightness or wrongness of actions that seriously
affect the public good. This social judgment is the result of a loosely organized,
society-wide ethics discussion (of which ethics books and ethics classes are a
small part), and the law presents certain conclusions of this discussion.
Whereas law is largely concerned with the public good and the protection of
individual rights, ethics not only includes these topics but goes beyond them
to look at the obligations of individuals to themselves, as well as to others and
to society.
Because it attempts to look beyond the opinions of the group to the his-
tory of critical discussions regarding more fundamental issues about human
nature and the nature of human activity in general, ethics is not sociology or
a mere description of what a given group thinks is right or wrong. At the
same time, ethics must recognize that contemporary public beliefs may point
to very important insights about the rightness or wrongness of particular
activities. In the context of professional ethics, public opinion has a great
deal to do with defining the role of the professional and in setting up expec-
tations for the profession. In chapter 4, which discusses justice, we will even
see how public opinion has a decisive role to play in the fair distribution of
health care.
One way of understanding the relation between ethics and contemporary
public beliefs would be to suggest that there is a continuing social ethics dis-
cussion that over time allows and encourages the public discussion of current
ethical dilemmas. This discussion brings together competing ethical theo-
ries, the variety of experts on the subject, and the sense of the community to
eventually form a consensus. This consensus may be then expressed in law
(for example, the prohibition and definition of murder, which is an issue
1 / ETHICS, PROFESSIONAL ETHICS, AND HEALTH CARE ETHICS 3
What really are we? Are we rational or animal, body and soul, or just body?
Do we have a mutable or an immutable nature? Are we individuals first or
members of a community? There are many clear, if divergent, answers to
these questions in the world of ideas. But the vitality and frustration of health
care ethics discussions mainly rests on the continued difficulties in gaining
mutually agreed upon answers to these questions. Health care and continu-
ing research into its possibilities focus on these issues because health care
focuses on us, our bodies, our minds, our hopes for both. Here the ethics
discussion is about how we act on us as living beings, not just on how we act
on principle.
THEORIES OF ETHICS
Ethical theories, that is, theories about the characteristics of human activity,
can be grouped in many ways. We will look at four particular theories: con-
sequentialism, Kantian deontologism, natural law, and virtue ethics. As in
philosophy itself, in ethics, theories state ways of evaluating actions that can-
not be reduced to one another. For example, evaluating an action by its re-
sults is very different than evaluating the action by its rational characteristics.
To say the end justifies the means is not to say the means are good. If the
means are not good, does that mean we should abandon the end? This is an
ethical dilemma. An ethical dilemma arises when an individual or a society
faces a choice of actions which are completely different, even completely op-
posite, yet seemingly each can be fully justified by an ethical theory. Under
these conditions, it seems that ethics can provide no guidance as we make a
choice. As we will see throughout this book, one of the key differences among
ethical theories is whether they recognize the possibility of ethical dilemmas,
and if so, how they handle them.
Consequentialism
The first class of ethical theories, consequentialism, sees the rightness or
wrongness of an action in terms of the consequences brought about by that
action. These consequences are generally evaluated according to the extent to
which they serve some intrinsic good; that is, a good that is good in and of
itself, independent of any further consequences. As such, this good is usually
considered to be external to the actions that bring it about.
The most common, but not the only, form of consequentialism is utili-
tarianism. Utilitarianism, or social consequentialism, holds that one should
act so as to do the greatest good for the greatest number. For example, the
good as defined by J. S. Mill would be the presence of pleasure and the ab-
sence of pain, so that for Mill determining the proper action involves adding
up the aggregate of pleasures and pains suffered by the members of the com-
munity. Mill allows that there are different qualities of pleasures and pains,
1 / ETHICS, PROFESSIONAL ETHICS, AND HEALTH CARE ETHICS 5
Case Example
To further illustrate the application of utilitarianism, we can briefly look at the
ethical analysis of contraception. Of course, the basic idea of contraception is
to prevent a pregnancy arising from sexual intercourse. A utilitarian will look
at contraception from the perspective of the concerns of the individual or the
society. The individual may want the pleasures of sexual activity without any
commitments to carrying or raising a child. Pleasure is understood as an ap-
propriate end, and thus contraception, as a means of preventing conception,
is a good to be chosen. A society may perceive population growth as a burden
because, for example, the added population is projected to exceed its capacity
to house or feed the increase. On the other hand, if the individual desires a
child, or the society wants to encourage population growth, contraception
would be a bad choice. Contraception itself is neither good nor bad; rather it
acquires its value because of the larger end that is pursued.
Kantian Deontologism
The second class of ethical theory, deontologism, is very powerfully expressed
in the work of Immanuel Kant. Kant thought ethics should be as clear and
firmly based as mathematical knowledge, and just as a mathematical truth
(two plus two is four) is universally true, so is ethical truth. The basic idea is
that an act can be described as good and what ought to be done because it
expresses certain characteristics such as universality or conformity with the
moral law. Kant used the principle of universality to identify appropriate ac-
tions: if the maxim or statement of an action could be universalized as appro-
priate for everyone, that action would be ethically permissible. This universal-
ity is thus the basis for considerations such as duty or justice or respect for an
individual’s autonomy. Since we can all reason, that is, think universally be it
mathematics or ethics, we are persons, beings of infinite value. As a result, the
deontologist considers the rightness or wrongness of at least some acts to be
independent of their consequences; that is, some acts are good or evil in and
of themselves. Formal rules are used in judging the rightness of an act, such as
“Do unto others as you would have them do unto you” or, to state the princi-
ple in Kant’s more focused and technical manner, “Act in such a way that you
always treat humanity, whether in your own person or in the person of any
other, never simply as a means, but always at the same time as an end.” This
last statement Kant called the “categorical imperative” (Kant, 1984, p. 36).
Unlike utilitarians, deontologists hold that lying is wrong even if a lie
would accomplish great good for individuals and society because lying in-
volves disrespecting the person to whom you are lying. In explaining this,
Kant talks about duties and draws a distinction between perfect and imper-
fect duties. A duty is a demand for action that respects the dignity of the
other person. When violating a perfect duty, the actor is treating himself or
herself or the other person as a thing, a means to accomplish the actor’s purpose.
1 / ETHICS, PROFESSIONAL ETHICS, AND HEALTH CARE ETHICS 7
Case Example
In a deontological context, contraception looks quite different. Sexual activ-
ity for the sake of pleasure is both intensely individual (the pleasure) and not
particularly in need of reason. The partner is a means to the end and need not
be accorded the respect due a rational being. Thus for a deontologist, it is
possible to look at contraception as wrong because it violates the obligation
to never use a person simply as a means. If contraception is used in the con-
text of marriage, or at least an abiding commitment to one’s partner, then it is
possible that the partner is respected as a person as well as an opportunity for
pleasure, in which case contraception might be acceptable. This is a difficult
analysis for the society, since as we suggested above, the deontologist would
find it difficult to talk of a common good that would trump the discussion of
the individual’s rights or personal dignity.
Natural Law
Classical (or scholastic) natural law takes the position that rational reflection
on nature, particularly human nature, will yield principles of good and bad
that can guide human action toward human fulfillment or flourishing. Since
it is concerned with human flourishing, that is, the actualization of potentials
inherent in human nature, classical natural law is teleological. Where Kant
emphasizes the universal demands of reason, natural law focuses on our abil-
ity to recognize the structured complexity and coherence of nature. For
example, central to a natural law ethics would be a definition of human
beings, such as Aristotle’s suggestion that we are rational animals. The study
8 1 / PRINCIPLES OF HEALTH CARE ETHICS
Case Example
Natural law theorists tend to condemn contraception as unethical. Species
survive through reproduction, and sexual activity is critical to reproduction.
Thus, there is a natural order that identifies the procreative consequences of
sexual activity as the key purpose of that activity; pleasure is simply a guise
that leads us to the true purpose. To allow the pleasure without the conse-
quent reproduction would subvert the natural order that preserves the exis-
tence of the species. Since that is what it does, contraception is unacceptable
in all cases, or, it is unethical in its very nature. This evaluation is not affected
by whether the analysis is for the concerns of the individual or the society.
Virtue Ethics
The fourth type of ethical theory may be labeled virtue ethics. Virtue ethics is,
unfortunately, a somewhat confusing term because it is used as a label for
two different approaches to ethics. What we call virtue ethics, narrowly
1 / ETHICS, PROFESSIONAL ETHICS, AND HEALTH CARE ETHICS 9
defined, states that “a virtue [is] a dispositional trait of character that is con-
sidered praiseworthy in general and in a particular role.” In this narrowly
defined approach, “a virtue ethics [is] a systematic formulation of the traits of
character that make human behavior praiseworthy or blameworthy” (Shelp,
1985, p. 330).
This view of virtue ethics reflects the tradition of the mentor in medical
education. The mentor would take a student under his wing and be the model
for the student’s education and career, while the student would pattern his
behavior after that of the mentor. But, virtue ethics narrowly defined does
not go far enough in setting up a framework for evaluating the rightness or
wrongness of individual activities. After all, how does a student recognize
whether his mentor is a good or bad role model? Or, what happens when the
student faces new situations never confronted by the mentor? Thus, although
we would agree that health care professionals should be compassionate,
truthful, and unselfish (traditional elements in physician mentoring), these
emotional dispositions do not guarantee correct decisions regarding what is
done to the patient. Such decisions must appeal to the knowledge and the
reasoning ability of the professional and rest on a specific relationship with
the client in a specific social context that identifies the nature and goals of
their relation. We turn then to virtue ethics broadly construed.
Virtue ethics more broadly defined involves not only the virtues, but the
integration of the virtues with what has been variously called practical wis-
dom or right reason. This practical wisdom is the ability to choose patterns
of action made desirable and revealed as desirable by reasoning that has been
informed not only by habits of emotional experience or virtues (Baillie, 1988),
but by consideration of the widest possible range of experience for the hu-
man person situated in society. Reasoned consideration of this wide range of
factors and the emotional dispositions are both influenced by cultural tradi-
tions about the common understanding of what would be a good and com-
plete life, and so need to be tempered by both logic and a healthy skepticism
about those traditions.1 This cultural background, made a real part of the
person’s life through training to the virtues of that society, is the basis from
which action and thought arise. For example, we try to be courageous be-
cause we have been taught that we ought to be courageous through models
that our society presents. These models are presented because our society
understands them to embody elements of what a good and complete human
life would be. Practical wisdom thus requires as a foundation the develop-
ment of virtues, that is, dispositions concerned with both the emotions and
the intellect. But as we grow in ability our dispositions open up to reflection,
that is, we take over the responsibility of perceiving and thinking about what
is good and bad.
The perceiving and thinking involved with practical wisdom involves a
developing recognition or intuition of what a human being is and what is
10 1 / PRINCIPLES OF HEALTH CARE ETHICS
good for that human being (Aristotle, bk 6, ch. 5). This involves not only the
recognition and application of patterns of action shown to be appropriate by
past experience, but the study and evaluation of all the reasonably known
proximate and remote consequences for the person and society. To act prop-
erly in a given set of circumstances involves knowing how one’s actions might
affect these circumstances, the societies of which one is a member, all of the
persons involved, and ultimately oneself. This knowledge is incomplete and
provisional, yet, because it is rooted in experience, it remains the soundest
basis of action. Furthermore, because it is incomplete and provisional, this
knowledge is capable of development, both in the sense that we can both
learn more through more experience and improve our understanding of pat-
terns of action by continuing to reflect on them and their results. In particu-
lar, their results can deepen or alter our understanding of ourselves and what
it means to be human.
What distinguishes practical wisdom from consequentialism is that, by
evaluating entire patterns of action, practical wisdom not only examines
actions and their consequences but also questions why we understand par-
ticular events to be significant at all; that is, why is this action or result
important for us as humans? Practical wisdom grows as a result of the abil-
ity of additional experience to enrich or alter our intuitions, which have
themselves been the product of previous experience and training. For ex-
ample, in chapter 2, we will discuss living wills as a means of protecting
patient autonomy. This raises questions such as, What is it about the patient
that a living will protects, and how is it that this protection can fail even
when all the formal or legal requirements have been met? Or, in chapter 9,
we will discuss how new methods of reproduction can fail to protect au-
tonomy even when they succeed in providing patients with what they want.
In our view, everything is judged in terms of its ultimate as well as immedi-
ate effects on the total development of the individual person living in a
community; yet our understanding of this total development constantly
changes and grows.
We also wish to stress the fact that ours is not an individualistic position,
for what harms other persons ultimately harms the agent. One’s own dignity
means very little if other persons do not have a similar value. As we shall see,
in discussing the common good, the basic reason for limiting one’s own free-
dom is the preservation of the dignity of others. This preservation of the dig-
nity of others is not merely a question of one-on-one relationships, but of
harms to society, which ultimately result in harms to individual dignity. For
this reason, social effects—that is, effects on the various communities of
which the individual is a member—are extremely important. What destroys
such social goods as the family, communication, clean water and fresh air, or
the health care delivery system, is ultimately if not immediately and directly
of great consequence for the individual.
1 / ETHICS, PROFESSIONAL ETHICS, AND HEALTH CARE ETHICS 11
The effects in question are not simply material effects, such as the loss of
a leg or of property or even of life itself, but of such intangible but extremely
important aspects of the person as human dignity and freedom of choice, as
well as freedom from unnecessary restrictions. Although it is not always easy
to specify everything that is demanded by human dignity, the authors, like
American culture itself, see attacks on freedom of choice and freedom from
unnecessary restrictions as attacks on human dignity and so as prima facie,
or presumptively, evil. That is, such attacks are seen intuitively to be wrong,
unless the opposite can be clearly established.
This broader definition of virtue ethics includes a consideration of the
emotional dispositions and cultural factors that influence dispositions, as
well as the development of reason so that it is capable of balanced consider-
ation of the consequences for the individual person in society. This holistic
approach pivots on practical wisdom as the primary virtue for ethical deci-
sion making. The present work might then be called a virtue ethics in this
broader sense. To avoid confusion, however, we shall call it the approach of
practical wisdom.
Case Example
The analysis of contraception in a practical wisdom approach, that is, virtue
ethics broadly defined, involves many components. This suggests that con-
traception in itself is neither good nor bad. Rather, to evaluate its use requires
looking at the particular circumstances at issue, with regard to the individu-
als involved, the social history of the practice, and the practical consequences
for both the individuals and society. The last issue is important, as that in-
volves the development of the character of both the individuals and the soci-
ety. What is the society’s attitude toward sexuality, the family, and children,
and what is its capability with regard to economic development, health care,
and providing the opportunities for individuals to flourish?
KEY ISSUES
Having located our theory relative to broad categories of ethical theory, we
now wish to stress some of the key notions that underlie our position.
have placed on this issue.2 Other traditions may locate the central ethical
concern elsewhere, for example, on community or service. This book, then,
will be a discussion, with particular focus on the American tradition, of how
human dignity is made present in medical care and how medical care can
help us to define dignity.
Consistent with the broad range of concerns under the review of practical
wisdom, this dignity resides not merely in the capacity for pleasure nor in the
ability to make free choices, but in the capacity for warm human interaction,
friendship, and family relations and for the most broadly based social life, as
well as for union with the whole of reality. Although these capacities are not
likely to be completely fulfilled, they are, nevertheless, at the core of the dig-
nity of the human person.
The individual person is not an abstraction that can be labeled simply as
“an autonomous being” or “a bearer of rights,” but is a concrete individual
whose life involves shared experience in a particular community and sharing
in a specific set of social roles in that community. Thus, individual and soci-
ety are not opposing concepts. They can be understood only in terms of one
another. Individuals are not simply individuals; they are also fathers, daugh-
ters, nurses, teachers, and wage earners. All these roles that entangle the in-
dividual in the lives of others and in the life of the community specify conse-
quences that must be considered.
It is important to note that partly because of the interdependence of the
individual and society, the concept of human dignity is not static. History
has affected the concept as it has revealed further dimensions of human-
kind and given deeper insights into what that dignity demands for the full
flowering of the person. Only in the nineteenth century did American so-
ciety recognize the full evils of slavery and child labor. In our own genera-
tion, we have seen progress as our society came to consider sexism, racism,
ageism, and the like as affronts to human dignity. The recognition of these
evils has not removed all of them but has begun the process of reform. Un-
fortunately, society can forget the consequences of such insults to human
dignity. Unfortunately, too, as resources become scarcer, societies are
tempted to downgrade the dignity of the sick, elderly, poor, and powerless.
Sometimes this happens because of selfishness and shortsightedness.
Sometimes it is a regrettable manifestation of the tragic in human life. We
will return to the tragic dimension shortly.
For these reasons, it is difficult to define precisely what is included in
the concept of the dignity of the individual. At various points in this book,
we will return to this question. For example, the implications of freedom of
choice as part of human dignity will be developed in chapter 2 in our dis-
cussion of the principle of autonomy. Our developing understanding of the
demands of human dignity are crucial in the consideration of the distribu-
tion of health care, abortion, death, and dying, as well as in the rationing of
1 / ETHICS, PROFESSIONAL ETHICS, AND HEALTH CARE ETHICS 13
organs and the use of new modes of reproduction. Each of these problems,
which will be treated in subsequent chapters, will reveal other aspects of
human dignity.
These range from major principles, like the claim that we are innocent
until proved guilty, to minor issues, such as the proper way to thank a host
for dinner. None of us ever escapes this influence of our society, nor could
we if we wanted to.