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Foreword
I
n the past two decades, informatics as a terminology has been widely dissem
inated. Within the health sciences context, medical informatics and bioinfor-
matics have played an important role in advancing the health services domain
as well as in discovering biological associations and informing new treatment
discoveries. Population health informatics is a newer emerging science that prom-
ises to influence global health dynamics in a unique and significant way. This
text elucidates the underpinnings of this terminology, and explains its unique
parameters and singularly effective applications both from descriptive and inter-
ventional dimensions. The readership of this text will gain new insights and will
be able to use newly acquired knowledge in both theoretical and applied context.
Knowledge gained through this text will inform large data users, health scientists
and researchers, health administrators, and policymakers, as well as economists and
modelers. Many of the challenges associated with population health informatics
relate to difficulties in assembling data, combining data sources, identifying inno-
vative approaches to data analysis, and finally, extracting the most relevant and per-
tinent information toward predicting and resolving emergent and prevalent health
problems. Many of these challenges are addressed and demystified in this text, in a
way that is accessible to students, researchers, and practitioners in the field.
vii
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Acknowledgments
T
his book would not have been possible without the wholehearted support
and participation of several individuals. First, we would like to thank the
Dean of the CUNY Graduate School of Public Health and Health Policy,
Dr. Ayman El-Mohandes, for his motivation and invaluable support and commit-
ment to helping us bring this book to its completion.
We would also like to thank Chioma Amadi, Research Associate and a doc-
toral student of Epidemiology of CUNY Graduate School of Public Health and
Health Policy, for her valuable assistance in writing a chapter and reviewing the
content of the book. Further, we would like to thank Princy Bhardwaj, MPH,
Environmental and Occupational Health Sciences, and Rinzin Wangmo, MPH,
Health Policy and Management, who provided assistance in reviewing the references
included in the book and gave us valuable insight about their level of understanding
of the content of the book.
In addition, we acknowledge the extraordinary competence of our Executive
Editor, Michael Brown, and Associate Editor, Danielle Bessette, at Jones & Bartlett
Learning, who guided us through the publication stages and provided valuable
advice. Our Senior Production Editor, Amanda C lerkin, and her colleagues adeptly
dealt with a number of challenges to make this book look better than it would have
otherwise.
Finally, we would also like to acknowledge the chapter contributors who
played a very significant role in making this book possible. Despite their hectic
work commitments, they shared their expertise by writing the chapters, responding
to inquiries, and modifying the draft chapters as suggested. We are very thankful
to these esteemed contributors who come from various areas of population health
informatics.
viii
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Contributors
Chioma Amadi, MPH Hadi Kharrazi, MD, PhD
Research Associate, Doctoral Student Research Director
in Epidemiology Center for Population Health IT
CUNY Graduate School of Public Johns Hopkins Bloomberg School of
Health and Health Policy Public Health
New York, New York Baltimore, Maryland
Luk Arbuckle, BSc, MSc Harold P. Lehmann, MD, PhD
Research Manager Associate Professor
Children’s Hospital of Eastern Johns Hopkins Bloomberg School of
Ontario Research Institute Public Health
Ottawa, Ontario, Canada Baltimore, Maryland
Ann Cavoukian, PhD Edward Mensah, PhD
Executive Director Associate Professor
Privacy and Big Data Institute, Health Policy and Administration,
Ryerson University School of Public Health
Toronto, Ontario, Canada University of Illinois at Chicago
Chicago, Illinois
Michelle Chibba, MA
Strategic Privacy/Policy Advisor Katharine H. McVeigh, PhD, MPH
Privacy and Big Data Institute, Director of Research
Ryerson University Division of Family and Child Health,
Toronto, Ontario, Canada NYC Department of Health and
Mental Hygiene
Brian E. Dixon, PhD, MPA, FIMMS
Queens, New York
Associate Professor
Richard M. Fairbanks School of Saurabh Rahurkar, BDS, DrPH
Public Health Researcher Postdoctoral Public Health Informatics
Center for Biomedical Informatics, Fellow
Regenstrief Institute Center for Biomedical Informatics,
Indianapolis, Indiana Regenstrief Institute
Indianapolis, Indiana
Khaled El Emam, PhD
Professor
Department of Pediatrics, Faculty of
Medicine, University of Ottawa
Ottawa, Ontario, Canada
ix
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x
About the Editors xi
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Introduction
T
he rapid growth in digital data due to the increased usage of mobile phones
and wearable sensors has created an urgent need to develop new, innovative
tools and technologies that can make data meaningful. Population health
informatics is an emerging field that aims to utilize technology to put into practice
evidence-based solutions to improve population health outcomes across diverse set-
tings. The goal of this book is to present a practical, step-by-step approach on how
to implement evidence-based, data-driven informatics solutions to enhance popu-
lation health. We aim to engage students and professionals across various disciplines
who are interested in using technology as a medium to reduce health disparities
and improve healthcare access and delivery in diverse settings.
The book is broadly divided into four parts:
Part 1: Overview of Population Health Informatics
Part 2: Setting the Stage for Population Health Informatics
Part 3: Specialized Population Health Informatics Applications
Part 4: Other Population Health Informatics Topical Areas
Part 1 begins by describing the need for population health informatics
( Chapter 1) and then discusses the workforce’s needs, competencies, and the various
training programs (Chapter 2). Part 2 discusses differences among data, information,
and knowledge (Chapter 3); health information exchange and related interopera-
bility (Chapter 4); informatics-enabled population health surveillance (Chapter 5);
statistical issues (Chapter 6); and opportunities and challenges related to big data
due to the rapid increase in data volume, velocity, and variety (Chapter 7). Chapter 7
also examines the role of cloud computing and population health visual analytics
to facilitate population health data storage, data analysis, and data visualization in
a meaningful format. Part 3 describes the specialized population health informat-
ics applications such as design, development, and system evaluation (Chapter 8);
electronic health records and telehealth applications (Chapter 9); personal health
records (Chapter 10); and the opportunities, challenges, and applications related to
mobile health interventions (Chapter 11). Lastly, Part 4 discusses other key popu-
lation health informatics topics related to the economic value of informatics appli-
cations in population health (Chapter 12); issues related to privacy, confidentiality,
security, and ethics (Chapter 13); and the role of innovations and sustainability in
population health technologies (Chapter 14).
xii
Introduction xiii
We hope that the information and resources provided in this textbook help
readers to better understand the utilization of information and communication
technology–enabled interventions and innovations in the United States and beyond.
The book fulfills a key component of the new Association of Schools and Programs
of Public Health recommendations for “Critical Components for the Core of a 21st
Century MPH Degree.” The book also equips a new generation of the workforce
with the expertise necessary to make data meaningful and to design, develop, and
evaluate accessible and affordable technology-enabled solutions to effectively
address the population health challenges of the 21st century.
1
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CHAPTER 1
Emerging Need for
Population Health
Informatics
Ashish Joshi
KEY TERMS
Affordable Care Act (ACA) Health information technology
American Recovery and Reinvestment Act Population health
of 2009 (ARRA) Population health informatics (PopHI)
Cognitive fit theory Public health informatics (PHI)
Electronic health records (EHRs) Social determinants of health
Geographic information systems (GISs)
LEARNING OBJECTIVES
■■ Describe the growth of the Internet and social media in the 21st century.
■■ Define population health and its determinants.
■■ Distinguish between population and public health informatics.
■■ Assess the importance of social determinants of health data.
■■ Examine the intersection of technology and health care.
■■ List the challenges and opportunities related to population health
informatics solutions.
■■ List the factors to consider in the adoption and implementation of
population health informatics solutions.
3
4 Chapter 1 Emerging Need for Population Health Informatics
CHAPTER OUTLINE
I. Population Health and Its Determinants
II. The Growth of the Internet and Social Media
III. The Intersection of ICTs and Health Care
IV. The Emerging Role of Population Health Informatics
V. Challenges and Opportunities Related to PopHI
VI. Adoption of PopHI Solutions
VII. SMAART: An Innovative PopHI Conceptual Framework
VIII. Conclusion
D
rivers of health outside the traditional medical care include social,
behavioral, and environmental determinants and need to be addressed
to improve health and diminish health disparities. The section below
highlights the s ignificance of these factors in the improvement of population
health outcomes.
Improve health and reduce health Health Canada. (1998). Taking action
inequalities of diverse populations on population health. Ottawa, Ontario:
Health Canada.
Focuses on factors that influence the Dunn, J. R., & Hayes, M. V. (1999). Toward
health of populations over the life course, a lexicon of population health. Canadian
variations in their patterns of occurrence Journal of Public Health, 90, S7.
resulting in actions, and policies to improve
health and well-being of populations
Highlight[s the] role of social and Kreuter, M., & Lezin, N. (2001). Improving
economic forces in combination with everyone’s quality of life: A primer on
biological and environmental factors that population health. Atlanta, GA: Group
shape the health of entire populations Health Community Foundation.
Improve[s] the health of populations Berwick, D. M., Nolan, T. W., & Whittington, J.
as one element in the Institute for (2008). The triple aim: Care, health, and
Healthcare Improvement’s (IHI) Triple Aim cost. Health Affairs, 27(3), 759–769.
Approach that fosters decision making Bostic, R. W., Thornton, R. L., Rudd, E. C., &
by policymakers, allowing them to assess Sternthal, M. J. (2012). Health in all
the implications of non-health-related policies: The role of the US Department
policies of Housing and Urban Development and
present and future challenges. Health
Affairs, 31(9), 2130–2137.
■■ Is less associated with health departments at the government level (Stoto, 2013)
■■ Includes the healthcare delivery system and is seen as separate from govern-
mental public health (Stoto, 2013)
■■ Is more than the sum of its individual parts (Stoto, 2013)
■■ Includes a broader array of the determinants of health than is typical in public
health (Stiefel & Nolan, 2012)
■■ Has outcomes that go beyond state and local public health agencies and health-
care delivery systems (Ayana, 2016)
6 Chapter 1 Emerging Need for Population Health Informatics
Improve access to
Expand insurance
coverage
Population Health healthcare delivery
system
The Affordable Care Act (ACA) addresses population health in several ways
(ACA, 2011; see FIGURE 1.1). The ACA defined the affordable care organization
(ACO), which includes clinicians, hospitals, and other healthcare organizations. They
share mutual responsibility for the population of patients with the goal of improv-
ing health outcomes and reducing health costs and inefficiencies. A critical change
is required by key stakeholders at the cultural, operational, and financial levels to
improve population health. Collaboration among a variety of stakeholders (patients,
providers, health plans, employers, government, the private sector, and the local
community) is a vital component of the population health approach to strengthen
care delivery and improve the well-being of individuals and families.
Environmental Multiple
factors (built stakeholders
Cultural context
environment, housing)
Multi-sector
Health behaviors Mortality and
collaborations
(diet, physical life expectancy
activity, smoking)
Technology Continuous
Healthcare services monitoring
(access, quality, and evaluation
and cost) Overall
well-being
Biology and genetics Programs and policies
(age, gender, family
Interventions
history, disease status) Outcomes
Innovations
assessment
are commonly associated with the lower social and economic position of a popu-
lation or community. Poor education, lack of affordable housing, and insufficient
income affect not just the individuals and families who have fewer resources, but also
all the communities in which they live. Researchers estimate that access to quality
medical care may prevent less than 20% of avoidable deaths. The remaining 80%
of avoidable deaths are attributable to genetics (20%), and social, behavioral, and
environmental determinants of health (60%; Taylor et al., 2016). Improvements in
healthcare resources and other determinants are likely to have a large impact on
prevention and the management of some illnesses (Starfield, 2006).
Gathering social determinants of health data would result in effective risk
assessment to ultimately support population health management. It can help health-
care professionals to identify care gaps. Healthcare organizations can also get better
insight into individual drivers of patient engagement and can match individuals
to specific interventions, preventive services, or resources that are most likely to
enhance outcomes. Social determinants of health have not been sufficiently recog-
nized despite the knowledge of their impact on health outcomes and longevity. The
interventions that address social, behavioral, and environmental determinants of
health are also less developed. There is a need to generate integrated, e vidence-based
approaches to have a better impact on health outcome and lowering of healthcare
costs. This gap has slowed health policymakers in promoting innovative models of
care, even though these nonmedical determinants of health are worthy of attention.
Several challenges limit the integration of social determinants of health data. These
impact evidence-based decision making, resulting in barriers to improving overall pop-
ulation health. Some of these challenges are (Robert Wood Johnson Foundation, 2016):
8 Chapter 1 Emerging Need for Population Health Informatics
are now available at much lower, affordable prices. The Internet is a massive net-
work, connecting millions of computers (FIGURES 1.3 and 1.4). The World Wide Web
allows individuals to access information via a computer, mobile telephone, tablet,
gaming device, or digital TV (Internet Live Stats, 2017).
4 billion
3 billion
Internet users
2 billion
1 billion
0
93 95 97 9 9 01 03 05 07 09 11 13 15
19 19 19 19 20 20 20 20 20 20 20 20
Year (as of July 1, 2017)
10.3% 9.3%
8.6%
50.2%
Asia 50.2%
Europe 17.1%
Lat Am/Carib. 10.3%
Africa 9.3%
North America 8.6%
Middle East 3.8%
Oceania/Australia 0.7%
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
Penetration rate
80
65%
61%
60
46%
40 43%
38%
29%
27%
20 16%
8%
13%
9%
2%
0
2005 2006 2007 2008 2009 20010 2011
Ever
Within the past 24 hours
FOOTNOTES:
[4] In the Garret.
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