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More Than Words
More Than Words
“My child has just been diagnosed mean “usual” as in “the words people usu-
with an autism spectrum disorder, and I know ally use.” It means “understood in common,”
that communication is her biggest challenge. that is, understood by the people in a group,
Now that I have a diagnosis, what do I do even if that group is made up of only two
next?” people. Think “twin language,” for example.
It’s a question most families have asked To illustrate, let’s take a scenario in which
at one time or another, and a good one to each person understands that a smile means,
address in this newly-focused column on “I like your thinking,” and that a glance at
communication! the clock means, “What time is it?” Simple
A common first step parents take is to begin a enough, right? But a smile might also mean,
search for answers, a search that may take you “That’s so ridiculous.” Or that glance at the
in as many directions as you have resources. clock might mean, “This is taking forever.”
So many ideas sound promising, and parents Tricky, this communication! And far more
often feel too stuck to choose any strategy at all. dependent on shared understandings than
Our goal is to get you unstuck and help meets the casual eye!
you make good decisions based on the needs
of your child! Let’s start with some basic Now let’s turn to communicating with your
Consider what principles: child with autism. The following four questions
begin an assessment you can do yourself to bet-
communication is, • Your child is the same child you have always ter understand your child’s current communi-
and is not, known, before and after the diagnosis. cation skills.
Nothing has changed in your child because
before you do of this new label, and you don’t need to start 1. What does your child do, or say, that you
anything else. over with your child. You already know understand, that communicates? For exam-
more about his communication than anyone ple, can you distinguish your child’s hun-
else, and more than you might realize! gry cry from his tired one? Or her frustrated
• Consider what communication is, and is cry from her frightened one? Sure you can,
not, before you do anything else. By defi- because you know your child! This is success-
nition, “communicate” means to “transmit ful communication!
information, thought, or feeling so that it What percentage of the time are you right?
is satisfactorily received or understood.” It’s not 100%, of course, because our kids have
Communicating involves a sender and a coordination and other physical challenges
receiver, so, like the tango, it takes two to that disguise their communicative attempts.
communicate! One of these two people is But as you’ve learned to read between the lines
your child with ASD, and the other one is - of modulation and timing, we’re willing to bet
well - you! your percentage is admirable, and better than
• This next part is important! The informa- anyone else’s! Remember that the percentage of
tion shared is “exchanged between individu- time you are correct in receiving your child’s
als through a common system of symbols, message is the percentage of time your child is
signs, or behavior.” And, “common” doesn’t communicating successfully!
We love words, it’s true. And we fooled by empty talk…and neither are our kids.
want our kids to talk, to talk more, and espe- If we teach them “happy” and “sad” without an
cially, to talk to us! “Use your words,” we index of internal feeling, they learn to use the
remind them. This is fair. But, even more than labels, often in the context they learned them,
just using words, we want our kids to commu- but communicate nothing. “How do you feel?”
nicate with words! How do we get there? we ask. “Happy” comes the rote reply, but the
This column will help! But we won’t start with nonverbal body language says otherwise. We
a list of words kids tend to acquire first, or even suffer the delusion that because we teach a child
the functional words we really do want our to “use his words” – in this case, “happy” – the
kids to learn. Rather, we will focus on what’s child who says it is happy!
behind the words your child will use first to Now, let’s turn this communication pyramid
communicate! You will learn to help your child upside down. Instead of starting with words,
become a verbal communicator by discovering let’s start with the individual! How does your
which words he wants to say. How? By watch- child feel? How do you know how he feels? How
ing your child and reading the signs that tell is he communicating that feeling? What are
you, “I would be saying, ‘That is so cool!’ or you picking up, noticing, seeing, and hearing
‘Whooooa!!’ if I could.” You will learn that that conveys this message? We know commu-
“actions speak louder than words” until chil- nication involves a sender and a receiver. (Refer
... your child looks dren acquire the words that are right – for them! back to last issue’s column for more detail.) So,
blissfully happy As intuitive as it sounds, the words anyone for instance, your child looks blissfully happy as
uses ought to be the ones the speaker wants he’s swinging up high. It’s “written all over his
as he’s swinging up to say! Unless the words we say are the right face.” You show him you appreciate his joy by
high. It’s “written all words – for us – they are like a foreign lan- laughing with him, and, by adding a receiver,
guage, empty words learned without context you’ve completed a “circle of communication!”
over his face.” or personal meaning. We all know how words Next you add, “I am sooo happy!” You put
sound when they don’t ring true: hollow, like words, real words, to your feelings…ones that
a clanging cymbal. When body language is in mirror those of your child! By doing so you
conflict with verbal language, we just don’t bridge from nonverbal communication to ver-
believe the words. If there’s a mismatch, we go bal communication by mapping language onto
with the nonverbal message every time! feeling and action! You create an entry in your
“I feel fine,” says your friend in a lackluster child’s dictionary of meaningful words he may
voice. “What is she trying to hide?” you won- begin to use in real life!
der. “I don’t feel good,” announces your child Now it’s time to apply these principles to your
with more drama than fatigue, pleading with own child! Here’s your To Do list:
you to let him stay home from school. “Oh,”
you reply, cutting to the chase, “then instead 1. Take some time this next week and watch,
of checking out the TV schedule, you’d better really watch, your child. You might do this
march yourself off to bed.” when someone else is available to play
Other aphorisms: A picture’s worth a thou- with your child, or better yet, to film your
sand words; seeing is believing. We’re not child playing with you. Being an observer
Not the word? Think again. True, we his mother. Possessing both the need to survive
usually regard conversation as something kids and faith in his mother, the infant’s intent is to
work up to after years of learning the “build- reconnect with the source of his support. Once
ing blocks” - the sounds, the words, the sen- life-giving nurturance is given, the circle is
tences, and finally taking turns with sentences. complete, and the child/parent dance of reci-
But that’s just verbal conversation. Actually, we procity begins. This infant’s communicative
were using conversation long before we used “turn” begins the first of many nonverbal con-
words. But it was nonverbal conversation then. versations of his life. And, beautifully, this first
Think about the fact that we understood and circle leads seamlessly to other conversations:
used facial expressions, gestures, vocal calls, nonverbal and verbal.
and eye gaze to communicate long before we In the beginning was the intent to create a
learned to talk. We engaged in the give-and- circle. In the beginning was the conversation.
take of asking and responding, giving and It started with the child. The mother “followed
receiving, showing and appreciating, doubt- her child’s lead” and reciprocity was born. Yes,
ing and reassuring, demanding and placating many of our children are delayed in motor
long before we knew there were words for such behaviors, suckling and otherwise. And, yes,
expressions. And even after the words came, we often need to jump-start the system, and to
if they were out-of-sync with the nonverbals, support fulfilling that intention. But that doesn’t
Successful the words never “rang true,” and the nonver- change the basic order of things: the child takes
conversations require bals still did the communicating. the first turn.
So what is the structure of a conversation, We do not pretend that it’s easy for our kids…
two persons to be nonverbal or verbal? It’s a circle. In fact, the or for you, their parents, friends, and advocates.
meaningfully “circle of communication” between sender and But, let’s return here to the experience of James
receiver of a message is the basic unit of mea- MacDonald and the evidence he and his col-
connecting sure of social reciprocity. Stanley Greenspan’s leagues have amassed over the years. “Our
with each other. Floortime model, for example, is built around ultimate goal is that children enjoy turn-taking
creating circles of communication, first non- with any behaviors they can do so that they
verbal, then verbal. have the freedom to build relationships when
James MacDonald’s Communicating Partners they wish…We have found that when we join
(CP) program provides a useful step-by-step into the child’s world of sensation and action
protocol, helping parents become part of play- and respond nonjudgmentally, most children
ful, communicative dyads with their children. do enjoy the connection and will communicate
Parents learn to follow children’s lead, and with whatever behavior they can do.” (p. 115)
respond to what their children can do and want Our experience is the same. And I would add
to do. In our clinic, too, we find this to be the that in our clinic, there are two concepts we
key to successful conversational interactions. have found to be crucial for the connections to
Let’s go back to the beginnings of reciproc- happen: safety and sincerity. It must feel safe to
ity to see why this should be so. Each baby’s a child to put himself “out there”, and know that
initial intention to nurse is a beginning point. what will come back will be kind and thought-
It is his first intention: to seek nurturance from ful. Our kids are sensitive and vulnerable, with
The title of this issue’s column talking in the next room? Or how a teenager
was the theme of a cartoon I saw some years sounds when he grunts, “I don’t know” with-
ago. It showed a bevy of happy children run- out opening his mouth? It’s like that…and it’s
ning and laughing, wordlessly communicat- the “goo goo goo goo” of baby talk.
ing their pleasure through the “language” of We have underestimated babies, it seems to me,
shared sound that underlies verbal language. when we say they are “just” babbling. We tend
Let’s examine how this works. to ignore their “music language” for months and
months, until one day, seemingly out of the blue,
The Sounds of Speech they say their first isolated word. We celebrate
To begin with, kidspeak is melodious. It is that day, of course, but rarely do we rewind the
the sing/song we mimic when we speak to movie to re-live how it evolved. With our ASD
our children in “motherese.” Around the kids, we do remember, though. The years leading
globe, the tonal patterns of speech have up to the first word are often agonizingly long,
some surprising consistencies. For example, but when the great event occurs, we often have
the musical interval within different words considerable data to show what the path looked
for “Mommy” is a third, and the interval for like. We can replay our kids’ voices in our minds,
“Daddy” is a fourth. Who knew we all shared and hear the sound strings when they were all
such a universal song? slurred together, when talking sounded like a
Kidspeak is Enter cacophony, however, and the picture is jumble of vowel sounds, something like “goo goo
melodious... much different. Distress calls have little music goo goo” but not as clear.
in them. The sounds of pain hurt our ears; tan- In the field of Speech-Language Pathology,
and is the “language” trum is deafening. So, to truly build a “sound” we refer to the intonational string of sound as
or shared sound foundation for our kids’ verbal language, we “suprasegmental” (meaning above the segmen-
have to find the laughter! I know this is not tals) and to the speech sounds themselves as
that underlies easy with many of our children, and I have “segmentals.” From a purely sound standpoint,
verbal language. seen how confounding the twists and turns of this makes sense. Think about your experience
the road can be. But, when we get there, and a when you hear a foreign language. You can’t
child experiences safety, pleasure, and freedom segment the sound stream, having no idea
from pain, we discover the joy-filled, intona- where one word ends and the next begins. From
tional underpinnings of verbal language. We a developmental perspective, this also makes
have the stuff that words can ride on, and from sense. In the early years of life, it’s all about the
which verbal communication is born. sensory context. Sound plus the other senses
Let’s look more closely at this “sound wave.” within the experience form a gestalt, a whole,
Sound comes from our air stream; breath is and meaning is embedded in that context. But
released from the relaxing of the muscle at our once kids are ready, bits of it become isolated,
core, the diaphragm. As it rushes through the and individual words are born.
larynx in our throat, it is vibrated into differ-
ent musical pitches. And it can be shaped into The Meaning of Sounds
pitch contours that sound like real talking! What is meaning to a young child? The work
You know how people sound when they’re of Jean Piaget provides a useful answer. Until
It seems like we’ve waited forever to sound with a variety of inflections? And did
hear our children’s first words. And we have you surprise yourself when you understood
such hopes pinned on them. But where do they some of it…not as words, but as meaning?
come from? Can we hasten their appearance? Looking back, we often realize that our
Does it make sense to try? What do first words kids were talking far earlier than their first
really mean to language development? This identifiable, understandable word. And we
column will look at these questions, and offer even sense, in retrospect, that words actually
some practical advice for addressing this criti- emerged from the haze of language develop-
cal stage of your child’s language development! ment that occurred beforehand!
2. Consider your child now. Does he have some
Where Do First Words words that were not specifically taught? Does
Come From? he have some that developed naturally? And
Let’s start by addressing a common presump- do they sound like any of the pre-word talk-
tion, that first words form the foundation of ing your child did?
expressive language development. When we In other words, did some of his words
honestly appraise our language-delayed chil- become separated from the whole strings of
dren, it seems more like words emerge from his sound-making? Although none of those
somewhere - only after months or years of earlier sound strings made it into the baby
hard-earned language development. So, how book, something emerged that sounded like
are first words interwoven with the language a word…and, in our heart-of-hearts, we real-
development that comes before them - and ize those sound strings were actually whole
after them? phrases, sentences, and songs!
We know that our kids were communicating 3. What if your child does not have identifiable
long before they used words. And even though words yet? Does he produce some recogniz-
Our kids were we didn’t understand them, most of our kids able sound strings: phrases or sentences, or
talking far earlier were talking! When our child reached towards songs or slogans? Can you detect a slurred
a cookie with a plaintive “Uh uh!” she stretched version of, “Barney is a dinosaur…” “Let’s get
than their first...word. our definition of talking. Even though it didn’t outta here” or “It’s a clue; it’s a clue!” Can you
sound like a word, we knew what she meant! almost hear words that are about to break
Talking predates first words, and we under- off from the sound strings they are embed-
stand its general importance. But if our child ded in?
was already talking, what was she talking with,
and where do words fit in? What we are talking about here is the stage
To answer this question, let’s look more of language development where kids pick up
closely at children’s pre-word talking: whole language chunks from their environ-
ment. Known as “gestalt language process-
1. Did your child continue to use “jargon” ing,” we commonly call it echolalia, and it is
after you expected him to outgrow it? Did a hallmark of autism. Actually, all children go
your child utter strings of undifferentiated through a stage when they process sound – and
Let’s begin our grammar discussion with 2. Processing commonalities (phrases) among
remembrances of school winter pageants, and those wholes. Mixing-and-matching these
the endearing ways kids interpret the words to phrases to create semi-unique sentences:
the songs they sing. “Sleep in heavenly peas” “It’s…no idea”; “It’s…something for you”; “I
is one of my favorites. Think about how “Let have…a clue” “I have…time for you to go to
it snow…” might become, “Lettuce – no!” in bed.”
the mind of a child who doesn’t recognize the 3. Processing commonalities (single words)
intended grammar, but does recognize “let- among these phrases. Isolating words: It,
tuce.” As cute as these kid-meanings are, we no, idea, something, you, I, have, clue, bed.
want to think carefully about language devel- Mixing-and-matching these words to create
opment in our kids and avoid as many pitfalls unique, two-word phrases: “It…idea”; “It…
as possible. Sentences hit our ears all slurred something”; “I…clue”; “I…bed.”
together, and unless we recognize word bound-
aries and how words can fit together with Stage 3 is a magic time for all kids, on or off
grammar, they can be misunderstood, or not the spectrum. Even kids who experience a rela-
understood at all. tively short, even imperceptible, time at Stages
So, what do we need to know to help our kids 1 and 2, broaden their thinking when they
decipher grammar? How and when do we help spontaneously combine single words. As they
them fashion their own meaningful sentences? form unique linguistic combinations, they play
We first want to direct you to prior AADigest with concept combinations at the same time.
columns that will help. Please see “First Take this example from speech and language
Words: Their Real Significance to Language literature: “Mommy” + “sock.” Combining these
Development” in the Sept-Oct 2010 issue for a two words in either order, kids can juxtapose
description of the stages that precede grammar. concepts to mean everything from, “Mommy,
Our kids process, and Earlier Communication columns, available on can I wear those socks?” to “Pink socks are
use, what they are the author’s website*, discuss pre-verbal devel- exceptionally pretty, Mommy.” Albeit fraught
opment of communication, speech, and social with misunderstanding without the grammar
ready for – reciprocity. to tell which version of “Mommy sock” a child
naturally. Preceding grammar, there are three stages of means, from his perspective each message is
Natural Language Acquisition (NLA) in our clear! Meaning pre-dates grammar…and this
kids with ASD: is part of the answer to our original question,
and key to the next part.
1. Processing strings of sounds at a holistic Yes, our kids need grammar eventually, to
level (echolalia). Deriving meaning from make their messages clear to everybody else.
the context of sentences, songs, and sound. Stages 4-6 on NLA are about grammar – in a
Understanding what sound strings mean in developmental sequence. That sequence has
the situations where they were first heard: been reported in myriad sources, and the ver-
“It’s a clue!”; “It’s time for you to go to bed”; sion we use in NLA is Development Sentence
“I have no idea”; “I have something for you!” Scoring (DSS), a longitudinal compilation of