#HPM Tweet Chat 12:14:11

#hpm - Healthcare Social Media Transcript
6/27/12 12:46 PM
#hpm transcript
Healthcare Social Media Transcript
From: To: Wed Dec 14 18:00:00 PST 2011 Wed Dec 14 19:15:00 PST 2011 change time period
New ! Explore analytics for this time period: #hpm analytics Explore the world of healthcare social media: Healthcare Conferences - Healthcare Tweet Chats - Disease Hashtags Learn more about #hpm at The Healthcare Hashtag Project
aliciabloom
welcome to #hpm chat! please introduce yourself to the group. our topics tonight are inspired by the holiday seasonhope, peace, and joy.
Wed Dec 14 18:00:19 PST 2011
renee_berry
RT @aliciabloom: welcome to #hpm chat! please introduce yourself to the group. our topics tonight are inspired by the holiday seasonhop ...
Wed Dec 14 18:00:52 PST 2011
jordangrumet
Hello...Jordan Grumet #HPM friendly PCP

Wed Dec 14 18:01:19 PST 2011
MarksPhone
Mark here #hpm

Wed Dec 14 18:01:51 PST 2011
aliciabloom
MSW, LSW practicing in #hospice & #palliative care (inpatient & outpatient). clinical educator. i'm your host tonight! #hpm
Wed Dec 14 18:01:55 PST 2011
schwartzbrown
RT @aliciabloom: be prepared for a flurry of #hospice & #palliative care related tweets...its almost #hpm chat time! #hpm
Wed Dec 14 18:02:07 PST 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?ha&smin=0&tdate=12-14-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 1 of 42
6/27/12 12:46 PM
milhealth
@aliciabloom #hpm hi all, how's everybody doing? #hchlitss (not sure which # # we're using...?) #healthlit
Wed Dec 14 18:02:27 PST 2011
KathyKastner
#hpm Hi all. Health blogger/curator sm poster on jour pall med :) and hoper for peace and joy
Wed Dec 14 18:02:28 PST 2011
schwartzbrown
Hi everyone. Mindy, social worker from NJ here. Practicing retirement badly. #hpm
Wed Dec 14 18:02:45 PST 2011
KathyKastner
LOLRT @schwartzbrown: Hi everyone. Mindy, social worker from NJ here. Practicing retirement badly. #hpm
Wed Dec 14 18:03:02 PST 2011
renee_berry
--> hopeful more people will access palliative care earlier in the trajectory of their illness, work @gobemore, hello all! #hpm
Wed Dec 14 18:03:03 PST 2011
aliciabloom
welcome @renee_berry, @jordangrumet, @MarksPhone, @schwartzbrown @kathykastner & @milhealth! glad you're all here! #hpm
Wed Dec 14 18:03:23 PST 2011
equijada
Hi Earl here - medical director for VNA and hospice of So CA. Opinions are mine. Christmas shopping at the mall #hpm
Wed Dec 14 18:03:35 PST 2011
_lizzy_
Hi, I am a MSW, hospice volunteer and (hopefully) future PhD specializing in end-of-life communication #hpm
Wed Dec 14 18:03:38 PST 2011
aliciabloom
@milhealth we use #hpm, although feel free to tweet to the #healthlit followers, too :) #hpm
Wed Dec 14 18:04:09 PST 2011
milhealth
@renee_berry #hchlitss #hpm I saw something good re: #Palliative care (e-mail/RSS I read) have 2 check/hate when I can't remember :-)
Wed Dec 14 18:04:13 PST 2011
milhealth
@aliciabloom #hpm cool, thanks! If you have 2 use more, takes more characters! :-)
Wed Dec 14 18:04:45 PST 2011
JenMarsh2
Hi everyone, I'm Jen, therapist and educator for a hospice in CA. #hpm
Wed Dec 14 18:04:54 PST 2011
CarolynMcC
Listening in for the first time @CarolynMcC physician and blogger for @Forbes #hpm
Wed Dec 14 18:05:15 PST 2011
Page 2 of 42
6/27/12 12:46 PM
AnkurB_MD
Hi All.., Fellow in Geri and PC-- passionate about Palliative Care #hpm
Wed Dec 14 18:05:33 PST 2011
aliciabloom
hi @equijada and @JenMarsh2! @_lizzy_ i'm passionate about improving communication, particularly around EoL. glad you're here! #hpm
Wed Dec 14 18:05:41 PST 2011
renee_berry
@_lizzy_ nice, didn't know all that, love it! Hi Earl, Mark, LIzzy, Kathy, Jen & Mindy! #hpm
Wed Dec 14 18:05:57 PST 2011
aliciabloom
@CarolynMcC welcome! hope you'll do more than listen! #hpm

Wed Dec 14 18:06:02 PST 2011
aliciabloom
@AnkurB_MD glad you're here, you're in the right place! #hpm

Wed Dec 14 18:06:23 PST 2011
JenMarsh2
Hi all! RT @renee_berry: @_lizzy_ nice, didnt know all that, love it! Hi Earl, Mark, LIzzy, Kathy, Jen & Mindy! #hpm
Wed Dec 14 18:06:57 PST 2011
KathyKastner
#hpm Oh boy! Great gang here!

Wed Dec 14 18:07:20 PST 2011
aliciabloom
our topics are centered around seasonally inspired themes. we'll start with hope and peace, then finish up with joy. let's get started. #hpm
Wed Dec 14 18:08:04 PST 2011
aliciabloom
@KathyKastner you're actually inspiring topic 1! #hpm

Wed Dec 14 18:08:29 PST 2011
_lizzy_
@renee_berry @aliciabloom I tried clinical but I think I fit better w/research. Love tweetchat - thank you for hosting #hpm
Wed Dec 14 18:08:34 PST 2011
JenMarsh2
I seem to be having some technical difficulties, so please forgive any slow responses. :-) #hpm
Wed Dec 14 18:08:53 PST 2011
aliciabloom
T1: @KathyKastner wrote "Hope & 'false hope': who benefits, who doesn't." Share your thoughts about hope & it's role in serious illness #hpm
Wed Dec 14 18:09:04 PST 2011
KathyKastner
?! RT @aliciabloom: @KathyKastner you're actually inspiring topic 1! #hpm

Wed Dec 14 18:09:05 PST 2011
Page 3 of 42
6/27/12 12:46 PM
renee_berry
RT @aliciabloom: T1: @KathyKastner wrote "Hope & 'false hope': who benefits, who doesn't." Share your thoughts about hope & it's role in serious illness #hpm
Wed Dec 14 18:09:51 PST 2011
aliciabloom
@_lizzy_ clinical & research are like peanut butter & jelly. can't have one without the other. #hpm
Wed Dec 14 18:10:02 PST 2011
KathyKastner
#hpm T1 @aliciabloom Yay!

Wed Dec 14 18:10:13 PST 2011
JenMarsh2
@aliciabloom @KathyKastner Wow....that's a big one to start! #hpm

Wed Dec 14 18:10:41 PST 2011
renee_berry
T1 I think hope is always important, it's just crucial to know each person defines hope in their own way & even that changes over time #hpm
Wed Dec 14 18:10:50 PST 2011
renee_berry
T1 There is more to hope than curative treatments #hpm

Wed Dec 14 18:11:02 PST 2011
aliciabloom
just in case anyone missed it...here is the link to @KathyKastner's JPM blog post: http://t.co/iaJ2A9KY. #hpm
Wed Dec 14 18:11:25 PST 2011
_lizzy_
RT @aliciabloom: clinical & research are like peanut butter & jelly. cant have one without the other. #hpm
Wed Dec 14 18:11:31 PST 2011
crgonzalez
I made it! Hi everyone. Carmen Gonzalez, clinical trial patient recruitment strategist #HPM
Wed Dec 14 18:11:33 PST 2011
JenMarsh2
Agreed RT @renee_berry: T1 There is more to hope than curative treatments #hpm

Wed Dec 14 18:11:49 PST 2011
jordangrumet
T1: Hope is that whether one lives or dies they will do it with grace. #hpm
Wed Dec 14 18:12:15 PST 2011
equijada
t1: I think the role is to find hope, however defined by pt/family, and catalyze it. #hpm
Wed Dec 14 18:12:16 PST 2011
KathyKastner
TY! RT @aliciabloom: just in case anyone missed it...here is the link to @KathyKastner's JPM blog post: http://t.co/kBzl0d0d. #hpm
Wed Dec 14 18:12:16 PST 2011
Page 4 of 42
6/27/12 12:46 PM
aliciabloom
@crgonzalez welcome! #hpm

Wed Dec 14 18:12:28 PST 2011
MarksPhone
Is hope intrinsic in the person or do HCP help to bring it forward in the person with illness? #hpm
Wed Dec 14 18:12:30 PST 2011
JenMarsh2
I second @renee_berry - hope is subjective and can't be projected onto another #hpm
Wed Dec 14 18:12:52 PST 2011
colleen_young
Hi all. Sorry I'm late. We had a brief blackout. Did it reach your neighbourhood @KathyKastner? #hpm
Wed Dec 14 18:13:00 PST 2011
MeredithGould
RT @equijada: t1: I think the role is to find hope, however defined by pt/family, and catalyze it. #hpm
Wed Dec 14 18:13:04 PST 2011
KathyKastner
#hpm What happens when carer has different different ideas about what should be hoped for ?
Wed Dec 14 18:13:06 PST 2011
aliciabloom
RT @MarksPhone: Is hope intrinsic in the person or do HCP help to bring it forward in the person with illness? <-- interesting question #hpm
Wed Dec 14 18:13:07 PST 2011
MeredithGould
@MarksPhone Some people are more hope-oriented than others, it seems. #hpm
Wed Dec 14 18:13:34 PST 2011
FDALawyers
hey all. Just made it. I am Darshan. FDA reg/ pharma/device/bio compliance pharmacist & attorney. #hpm
Wed Dec 14 18:13:42 PST 2011
jordangrumet
t1: Hope allows us to look forward to something even when facing death. #hpm
Wed Dec 14 18:13:45 PST 2011
schwartzbrown
RT @MarksPhone: Is hope intrinsic in the person or do HCP help to bring it forward in the person with illness? Can HCP "take it away?: #hpm
Wed Dec 14 18:13:45 PST 2011
renee_berry
@JenMarsh2 I think that can be a struggle for clinicians, where they may not see what to hope for, often patients & families can #hpm
Wed Dec 14 18:13:47 PST 2011
aliciabloom
RT @KathyKastner: #hpm What happens when carer has different different ideas about what should be hoped for ? <-- another interesting ? #hpm
Wed Dec 14 18:13:48 PST 2011
Page 5 of 42
6/27/12 12:46 PM
JenMarsh2
Hope can be a myriad of things, depending on stages of illness, values and beliefs #hpm
Wed Dec 14 18:13:52 PST 2011
KathyKastner
@colleen_young No blackout here. T1 based on my jpm blog : hope and false hope #hpm
Wed Dec 14 18:13:59 PST 2011
renee_berry
@JenMarsh2 but the clinician may project their lack of ability to be creative in finding more hope than another clinical trial to offer #hpm
Wed Dec 14 18:14:17 PST 2011
MarksPhone
Can we open those hope receptors in patients? #hpm

Wed Dec 14 18:14:22 PST 2011
crgonzalez
RT @JenMarsh2: Hope can be a myriad of things, depending on stages of illness, values and beliefs #HPM
Wed Dec 14 18:14:22 PST 2011
renee_berry
Wed Dec 14 18:14:31 PST 2011
apjonas
Hi all, Pat Jonas, MD, Holsitic Family Physician in Ohio #hpm

Wed Dec 14 18:14:37 PST 2011
colleen_young
@KathyKastner Your short blog on hope in the Journal of Palliative Med and ensuing comments was extremely powerful. #hpm
Wed Dec 14 18:14:51 PST 2011
equijada
I tend you sue the word "hope" in my clinical interview often #hpm
Wed Dec 14 18:15:08 PST 2011
equijada
err use #hpm

Wed Dec 14 18:15:14 PST 2011
renee_berry
I think it's possible, often missed opportunities RT @MarksPhone: Can we open those hope receptors in patients? #hpm
Wed Dec 14 18:15:14 PST 2011
milhealth
@renee_berry #hpm <sorry> isn't on topic but didn't want 2 forget: Muscular Dystrophy #Patienthealth http://t.co/DTLaIqsC
Wed Dec 14 18:15:16 PST 2011
KathyKastner
#hpm one of the comments on blog was: patients don't want to disappoint docs by seeming to give up hope (!)
Wed Dec 14 18:15:24 PST 2011
Page 6 of 42
6/27/12 12:46 PM
jordangrumet
t1: HCP cultivate hope by easing fears and allowing it to flourish and grow. #hpm
Wed Dec 14 18:15:25 PST 2011
JenMarsh2
@renee_berry Yes and sometimes clinicians have a completely different sense of what hope "should" look like #hpm
Wed Dec 14 18:15:27 PST 2011
KathyKastner
RT @JenMarsh2: @renee_berry Yes and sometimes clinicians have a completely different sense of what hope "should" look like #hpm
Wed Dec 14 18:15:34 PST 2011
aliciabloom
welcome to the folks who have just joined us! we're talking about hope in serious illness: http://t.co/iaJ2A9KY #hpm
Wed Dec 14 18:15:48 PST 2011
MeredithGould
T1 When "hopes" collide? Probably important to find out how different participants are defining hope. #hpm
Wed Dec 14 18:15:49 PST 2011
MarksPhone
And further what role does hope play in outcomes has it been studied, can it be associated with epatients #hpm
Wed Dec 14 18:15:52 PST 2011
renee_berry
@AliciaBloom, as a social worker do you often deal with conversations in helping families redefine their connection to hope? #hpm
Wed Dec 14 18:15:54 PST 2011
JenMarsh2
Wed Dec 14 18:16:02 PST 2011
KathyKastner
RT @MeredithGould: T1 When "hopes" collide? Probably important to find out how different participants are defining hope. #hpm
Wed Dec 14 18:16:13 PST 2011
JenMarsh2
RT @KathyKastner: #hpm one of the comments on blog was: patients dont want to disappoint docs by seeming to give up hope (!) #hpm
Wed Dec 14 18:16:14 PST 2011
equijada
"How are you hoping we can help", "what do you hope will happen", "what are you hoping for" etc... #hpm
Wed Dec 14 18:16:25 PST 2011
crgonzalez
@MeredithGould Exactly. I think the tipping point varies among people when acceptance can take hold #HPM
Wed Dec 14 18:16:41 PST 2011
Page 7 of 42
6/27/12 12:46 PM
MeredithGould
T1 What one person defines as "giving up hope," another might define as being "realistic." #hpm
Wed Dec 14 18:16:49 PST 2011
colleen_young
@renee_berry redefine their connection to hope and/or re-focus on where to put hope or on what. #hpm
Wed Dec 14 18:17:04 PST 2011
KathyKastner
Ah RT @MeredithGould: Good to hear from you T1 What one person defines as "giving up hope," another might define as being "realistic." #hpm
Wed Dec 14 18:17:18 PST 2011
aliciabloom
Hope is something people hold tightly to-- instead of losing it, we have to reframe it. #hpm
Wed Dec 14 18:17:29 PST 2011
JenMarsh2
@KathyKastner AHHHH!! The "giving up hope" idea!! Makes hospice people cringe :-) #hpm
Wed Dec 14 18:17:34 PST 2011
MeredithGould
@KathyKastner I've been MIA for a while...that getting married thing & book writing thing! #hpm
Wed Dec 14 18:17:44 PST 2011
colleen_young
@MeredithGould I think realism would play a role in where to focus hope. #hpm
Wed Dec 14 18:17:52 PST 2011
MarksPhone
@JenMarsh2 #hpm good point to reframe it

Wed Dec 14 18:17:52 PST 2011
_lizzy_
T1 After identifying discrepancies in hopes, aiding the family/patient to talk about differences would be ideal #hpm
Wed Dec 14 18:17:55 PST 2011
renee_berry
From Cure to Quality of Life: The Shifting Meaning of Hope at the End of Life http://t.co/fdpxnJtk #hpm (Can I quote an entire article) :)
Wed Dec 14 18:18:07 PST 2011
AnkurB_MD
T1: Hope is the very essence of survival... its the light at the end of the tunnel..our role is to keep it alive within our patients! #hpm
Wed Dec 14 18:18:11 PST 2011
_lizzy_
RT @aliciabloom: Hope is something people hold tightly to-- instead of losing it, we have to reframe it. #hpm
Wed Dec 14 18:18:14 PST 2011
KathyKastner
#hpm hope isn't always a solitary emotion, lots of diffrent hopers to manage
Wed Dec 14 18:18:28 PST 2011
Page 8 of 42
6/27/12 12:46 PM
MeredithGould
@colleen_young But even "reality" varies among people and shifts over time. #hpm
Wed Dec 14 18:18:33 PST 2011
milhealth
@renee_berry #hpm as long as U cite it.... ;-)

Wed Dec 14 18:18:35 PST 2011
renee_berry
RT @MeredithGould: T1 What one person defines as "giving up hope," another might define as being "realistic." #hpm
Wed Dec 14 18:18:41 PST 2011
MeredithGould
@renee_berry Wow, you've stopped waving! #hpm

Wed Dec 14 18:19:00 PST 2011
milhealth
RT @MeredithGould: T1 What one person defines as "giving up hope," another might define as being "realistic." #hpm/good point.
Wed Dec 14 18:19:07 PST 2011
MarksPhone
But hope alone is not enough it needs to be tied to action and behavior not just hoping to get better. #hpm
Wed Dec 14 18:19:11 PST 2011
KathyKastner
RT @aliciabloom: Hope is something people hold tightly to-- instead of losing it, we have to reframe it. #hpm
Wed Dec 14 18:19:13 PST 2011
JenMarsh2
@MarksPhone Absolutely! #hpm

Wed Dec 14 18:19:21 PST 2011
aliciabloom
Hope is an emotion, a focal point, a goal. It's many different things to people. Ask: "what do you hope for?" #hpm
Wed Dec 14 18:19:31 PST 2011
KathyKastner
+1 !!RT @aliciabloom: Hope is an emotion, a focal point, a goal. It's many different things to people. Ask: "what do you hope for?" #hpm
Wed Dec 14 18:19:53 PST 2011
MeredithGould
@MarksPhone My big hope is always to manage illness more gracefully & with more humor. Getting better is not exactly an option. #hpm
Wed Dec 14 18:19:59 PST 2011
aliciabloom
RT @MarksPhone: But hope alone is not enough it needs to be tied to action and behavior not just hoping to get better. <-- agree! #hpm
Wed Dec 14 18:20:03 PST 2011
crgonzalez
@MarksPhone I agree. The companion piece of action allows for confidence and
Page 9 of 42
6/27/12 12:46 PM
semblance of control #HPM

Wed Dec 14 18:20:13 PST 2011
jordangrumet
RT @aliciabloom: Hope is an emotion, a focal point, a goal. It's many different things to people. Ask: "what do you hope for?" #hpm
Wed Dec 14 18:20:15 PST 2011
KathyKastner
I took note, too. Figuring hand got tired RT @MeredithGould: @renee_berry Wow, you've stopped waving! #hpm
Wed Dec 14 18:20:44 PST 2011
schwartzbrown
How is hope different from optimism or pessimism? #hpm

Wed Dec 14 18:20:48 PST 2011
GodtheHealerDev
What does #hpm stand for?

Wed Dec 14 18:20:48 PST 2011
renee_berry
@AnkurB_MD agree this is important for #hpm, do you think sometimes people let their own ideas fog straightforward communication?
Wed Dec 14 18:20:48 PST 2011
renee_berry
RT @AnkurB_MD: T1: Hope is the very essence of survival... its the light at the end of the tunnel..our role is to keep it alive within our patients! #hpm
Wed Dec 14 18:20:53 PST 2011
KathyKastner
RT @renee_berry: @AnkurB_MD agree this is important for #hpm, do you think sometimes people let their own ideas fog straightforward comm ...
Wed Dec 14 18:21:03 PST 2011
hollyby
Great crowd tonight! Hi there! Arriving late. Holly Yang, doc with @SanDiegoHospice. All tweets are my own. :) #hpm
Wed Dec 14 18:21:07 PST 2011
colleen_young
@GodtheHealerDev Hospice and palliative medicine. #hpm

Wed Dec 14 18:21:11 PST 2011
nursefriendly
Hello Everyone, Andrew Lopez, RN from #newjersey #hpm

Wed Dec 14 18:21:14 PST 2011
MeredithGould
@GodtheHealerDev #hpm = hospice and palliative medicine

Wed Dec 14 18:21:14 PST 2011
renee_berry
RT @aliciabloom: Hope is an emotion, a focal point, a goal. It's many different things to people. Ask: "what do you hope for?" #hpm
Wed Dec 14 18:21:14 PST 2011
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=12-14-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1
Page 10 of 42
6/27/12 12:46 PM
milhealth
@renee_berry #hpm cultures play lrg role 2, -whether family even discusses/issues. Cuban-Am cult/some diseases aren't 'talked about'
Wed Dec 14 18:21:16 PST 2011
apjonas
T1 I sense a difference in types of hope. Most seem to imply hope for life. I see lots who hope for wholeness of self or oneness w/God #hpm
Wed Dec 14 18:21:18 PST 2011
MarksPhone
@MeredithGould #hpm I am not thinking better per se but more about the movement emotionally w/the illness a touch stone w/management #hpm
Wed Dec 14 18:21:25 PST 2011
hollyby
For the next 40 min, my tweets will be from the #hospice and #palliative medicine tweetchat. #hpm
Wed Dec 14 18:21:34 PST 2011
nursefriendly
Hospice, Palliative Care Medicine :) RT @GodtheHealerDev: What does #hpm stand for? #hpm
Wed Dec 14 18:21:35 PST 2011
aliciabloom
@hollyby glad you're here! we're finishing up topic 1 about hope. #hpm
Wed Dec 14 18:21:48 PST 2011
MeredithGould
@MarksPhone Ah, okay...that makes sense. You always make sense! #hpm
Wed Dec 14 18:21:55 PST 2011
aliciabloom
@GodtheHealerDev hospice & palliative medicine #hpm

Wed Dec 14 18:22:02 PST 2011
MarksPhone
@crgonzalez #HPM thanks you are excellent at making me sound 25 points higher on my IQ
Wed Dec 14 18:22:03 PST 2011
hollyby
@aliciabloom Thanks! Always a good topic. #hpm

Wed Dec 14 18:22:38 PST 2011
colleen_young
@nursefriendly @hollyby Gosh I forgot to introduce myself. Plain language writer and community moderator at VirtualHospice.ca. #hpm
Wed Dec 14 18:22:38 PST 2011
renee_berry
good question! I think it's so different but will have to think abt RT @schwartzbrown How is hope different from optimism or pessimism? #hpm
Wed Dec 14 18:22:54 PST 2011
crgonzalez
@milhealth Right.Same for Mex-Amer. and discussions of dementia. #HPM

Wed Dec 14 18:22:58 PST 2011
Page 11 of 42
6/27/12 12:46 PM
KathyKastner
#hpm I heard about caregivers (family/friends) withdrawing support bcause dying friend keeps on hoping for a miracle !
Wed Dec 14 18:23:01 PST 2011
aliciabloom
sometimes clinicians are so afraid of taking away hope that they give patients/families a false sense of hope. it's a fine balance. #hpm
Wed Dec 14 18:23:07 PST 2011
MarksPhone
The emotional content of the patient is like a chem panel use it as part of the long term management #hpm
Wed Dec 14 18:23:08 PST 2011
crgonzalez
@MarksPhone You are quite the wise dude. #HPM

Wed Dec 14 18:23:19 PST 2011
KathyKastner
RT @aliciabloom: sometimes clinicians are so afraid of taking away hope that they give patients/families a false sense of hope. it's a fine balance. #hpm
Wed Dec 14 18:23:22 PST 2011
milhealth
RT @crgonzalez: Right.Same for Mex-Amer. and discussions of dementia. #HPM/right! & "abuela/lo doesn't know (e.g. Cancer). < >
Wed Dec 14 18:23:46 PST 2011
jfclearywisc
jim cleary joining (late) hospice & palliative med tweetchat for the next 35 min #hpm
Wed Dec 14 18:23:59 PST 2011
milhealth
@crgonzalez #HPM was going 2 say "hispanic" but didn't want to 'generalize' but I thnk it's fairly common/across the board.
Wed Dec 14 18:24:30 PST 2011
KathyKastner
@crgonzalez Hey Carmen #HPM

Wed Dec 14 18:24:34 PST 2011
schwartzbrown
I don't believe clinicians can confer or take away hope. #hpm

Wed Dec 14 18:24:39 PST 2011
MeredithGould
RT @schwartzbrown: I don't believe clinicians can confer or take away hope. #hpm
Wed Dec 14 18:24:51 PST 2011
crgonzalez
@KathyKastner Have you ever chosen a healthcare provider / caregiver because of an enlightened view of HPM? #HPM
Wed Dec 14 18:24:54 PST 2011
renee_berry
RT @aliciabloom: sometimes clinicians are so afraid of taking away hope that they give patients/families a false sense of hope. it's a fine balance. #hpm
Wed Dec 14 18:25:09 PST 2011
Page 12 of 42
6/27/12 12:46 PM
KathyKastner
It's the patient/caregiver who wants to hear RT @schwartzbrown: I don't believe clinicians can confer or take away hope. #hpm
Wed Dec 14 18:25:23 PST 2011
renee_berry
@aliciabloom what would you say to non #hpm professionals trying to grapple with that balance, what's most important?
Wed Dec 14 18:25:27 PST 2011
MarksPhone
@schwartzbrown #hpm I disagree HCP can leverage emotions through actions behavior a touch and response to questions
Wed Dec 14 18:25:38 PST 2011
equijada
RT @schwartzbrown: I dont believe clinicians can confer or take away hope. #hpm
Wed Dec 14 18:25:42 PST 2011
AnkurB_MD
@renee_berry Yes!! sometimes we may fog a straightforward conv. - fearing "taking away hope" but infact we need to "redirect that hope" #hpm
Wed Dec 14 18:26:11 PST 2011
jfclearywisc
One of my favorite papers. Tulsky's "hope or Hubris" Hope is "trust and reliance" rather than "expectations" #hpm
Wed Dec 14 18:26:12 PST 2011
nursefriendly
One who has had a good life, hopes for a good death. MT @jordangrumet: T1: Hope is that whether one lives or dies they w #hpm
Wed Dec 14 18:26:15 PST 2011
renee_berry
RT @MarksPhone @schwartzbrown I disagree HCP can leverage emotions through actions behavior a touch and response to questions #hpm
Wed Dec 14 18:26:25 PST 2011
GodtheHealerDev
@MeredithGould I have no idea what palliative means. Guess I will just hang back. #hpm
Wed Dec 14 18:26:32 PST 2011
JenMarsh2
RT @aliciabloom: sometimes clinicians are so afraid of taking away hope they give pts/families false sense of hope. its a fine balance. #hpm
Wed Dec 14 18:26:35 PST 2011
KathyKastner
@crgonzalez I haven't been in the situation yet (needing a hcp who believes in #HPM
Wed Dec 14 18:26:50 PST 2011
crgonzalez
@milhealth That is a topic for HPM chat right there: cultural inhibitions regarding hospice #HPM
Wed Dec 14 18:26:51 PST 2011
#hpm here's a study (2011) across US re: #palliativecare prgms (eval) http://t.co/fShtjtAS
http://hashtags.symplur.com/healthcare-hashtag-transcript.php?h&smin=0&tdate=12-14-2011&thour=19&tmin=15&ssec=00&tsec=00&img=1 Page 13 of 42
6/27/12 12:46 PM
milhealth aliciabloom
Wed Dec 14 18:26:53 PST 2011
@renee_berry there is always something to hope for, even in the absence of cure-- find it & focus on it. #hpm
Wed Dec 14 18:27:03 PST 2011
nursefriendly
T1 At a very basic level, patients will realize that the end is near. Some despair, many others make peace, prepare themselves #hpm
Wed Dec 14 18:27:23 PST 2011
schwartzbrown
The same info can devastate one person, and not touch another's outlook. The info has to be given. #hpm
Wed Dec 14 18:27:43 PST 2011
hollyby
Hope is something that can continue no matter what the reality. The focus of the hope may change, but hope is always possible. #hpm
Wed Dec 14 18:27:49 PST 2011
KathyKastner
#hpm What about hope for that which we all strive for: a 'good death'
Wed Dec 14 18:27:51 PST 2011
aliciabloom
loving this rich discussion on hope! let's share some final thoughts & move on to topic 2. #hpm
Wed Dec 14 18:27:57 PST 2011
renee_berry
@nursefriendly agree, but I think our #healthcare system places too much burdon on families having to figure all of it out #hpm
Wed Dec 14 18:28:14 PST 2011
KathyKastner
RT @schwartzbrown: The same info can devastate one person, and not touch another's outlook. The info has to be given. #hpm
Wed Dec 14 18:28:15 PST 2011
crgonzalez
@KathyKastner I wasn't referring to situation where it arose, but prospectively as in a regular PCP. I'm thinking more critically #HPM
Wed Dec 14 18:28:20 PST 2011
renee_berry
RT @aliciabloom: @renee_berry there is always something to hope for, even in the absence of cure-- find it & focus on it. #hpm
Wed Dec 14 18:28:26 PST 2011
milhealth
@crgonzalez #hpm absolutely! when things R discussed/resolved, then at end/life U can just 'be' w/your loved one.
Wed Dec 14 18:28:26 PST 2011
nursefriendly
@MarksPhone Think hope lies mostly within the #patient and #family. Our roles is chiefly to listen, support. #hpm
Page 14 of 42
6/27/12 12:46 PM
Wed Dec 14 18:28:37 PST 2011
nursefriendly
RT @JenMarsh2: I second @renee_berry - hope is subjective and can't be projected onto another #hpm
Wed Dec 14 18:28:50 PST 2011
gina_LJ
RT @hollyby: Hope is something that can continue no matter what the reality. The focus of the hope may change, but hope is always possible. #hpm
Wed Dec 14 18:29:02 PST 2011
aliciabloom
Wed Dec 14 18:29:06 PST 2011
jfclearywisc
@GodtheHealerDev Palliative comes from latin "pallia" a cloak. Palliative care: care directed at comfort in people with major illness #hpm
Wed Dec 14 18:29:11 PST 2011
apjonas
@schwartzbrown I've seen people with dashed hopes or squished but not killed hopes from interaction w/doctor #hpm
Wed Dec 14 18:29:23 PST 2011
AnkurB_MD
YES!!!! RT @renee_berry: there is always something to hope for, even in the absence of cure-- find it & focus on it. #hpm
Wed Dec 14 18:29:25 PST 2011
jordangrumet
t1: hope is the kindness and beauty we show eachother while we allow the uncontrollable in life to happen. #hpm
Wed Dec 14 18:29:33 PST 2011
KathyKastner
@crgonzalez Ah. Well. As it turns out my PCP loves what I'm doing (mobile app for e-o-l decisions) and ikes to learn from me! #HPM
Wed Dec 14 18:29:35 PST 2011
nursefriendly
@JenMarsh2 Yep, #hope is like #pain, very subjective and in the eye of the beholder. Ours is not to judge or or criticize. #hpm
Wed Dec 14 18:29:36 PST 2011
equijada
Hope isn't an expectation. It's a context that moves one forward #hpm
Wed Dec 14 18:29:36 PST 2011
aliciabloom
T2: Holidays are challenging after a loss or when seriously ill. How can patients find peace at EoL & families find it after the death? #hpm
Wed Dec 14 18:29:39 PST 2011
renee_berry
Wed Dec 14 18:29:54 PST 2011
Page 15 of 42
6/27/12 12:46 PM
MarksPhone
I think the bigger issue here is not the exceptions but the issue of tapping into the soft science of medicine #hpm
Wed Dec 14 18:30:23 PST 2011
nursefriendly
Our chief concern is the #patient. MT @KathyKastner: #hpm What happens when carer has different different ideas about what should be h
Wed Dec 14 18:30:29 PST 2011
crgonzalez
@KathyKastner Aren't you the lucky dog! I haven't had the conversation with my new doc and I think I ought to. #HPM
Wed Dec 14 18:30:36 PST 2011
KathyKastner
#hpm T2 both my parents died round this time. We sibs get together and tell stories, shed tears. disagree about perspectives. Hug. Kiss. Joy
Wed Dec 14 18:30:58 PST 2011
aliciabloom
thanks to @KathyKastner for inspiring T1 on hope & for all of the engaged responses. I've just sent T2 out.... #hpm
Wed Dec 14 18:31:08 PST 2011
doclake
Plain Speaking at the End of Life http://t.co/Lv8d2ACr #hpm

Wed Dec 14 18:31:18 PST 2011
renee_berry
RT @aliciabloom: T2: Holidays are challenging after a loss or when seriously ill. How can patients find peace at EoL & families find it after the death? #hpm
Wed Dec 14 18:31:22 PST 2011
nursefriendly
@KathyKastner Encounter #families #caregivers frequently that have different "plans" than the #patient. Need to reconcile pt wishes #hpm
Wed Dec 14 18:31:44 PST 2011
milhealth
#hpm here's a state/state report card/ #Palliativecare http://t.co/uzzHwn4h (tweeted a new JAMA article 2 :-)
Wed Dec 14 18:31:48 PST 2011
KathyKastner
RT @nursefriendly: @KathyKastner Encounter #families #caregivers frequently that have different "plans" than the #patient. Need to reconcile pt wishes #hpm
Wed Dec 14 18:32:06 PST 2011
MarksPhone
This my first Thanksgiving w/o Donna and now Christmas it is important for me at least to live each emotion go through it not around #hpm
Wed Dec 14 18:32:07 PST 2011
mdTalk
Hope isn't an expectation. It's a context that moves one forward #hpm http://t.co/505rz6vO
Wed Dec 14 18:32:08 PST 2011
Page 16 of 42
6/27/12 12:46 PM
GodtheHealerDev
RT @equijada: Hope isn't an expectation. It's a context that moves one forward #hpm
Wed Dec 14 18:32:08 PST 2011
_lizzy_
T2 It seems to me that patients find peace sooner than families. With families, peace needs time. #hpm
Wed Dec 14 18:32:15 PST 2011
nursefriendly
@renee_berry How so? Can you give an example of what #families need to figure out on their own? #healthcare #hpm
Wed Dec 14 18:32:24 PST 2011
MarksPhone
@mdTalk #hpm yes!

Wed Dec 14 18:32:24 PST 2011
AnkurB_MD
I sometime frame it as: The 3Cs of HOPE - "Hope for Cure - If not then Hope for Control, If not then Hope for Comfort" #hpm
Wed Dec 14 18:32:25 PST 2011
JenMarsh2
T2 To many people, peace is about acceptance. I like to think of it more as acknowledgement #hpm
Wed Dec 14 18:32:41 PST 2011
aliciabloom
when i think about peace for patients & families, i immediately think about the importance of advance care planning (@NHDD) #hpm
Wed Dec 14 18:32:53 PST 2011
KathyKastner
@MarksPhone I think the first everyting after brings fresh stuff. My heart's with you. #hpm
Wed Dec 14 18:33:01 PST 2011
GodtheHealerDev
RT @AnkurB_MD: I sometime frame it as: The 3Cs of HOPE - "Hope for Cure - If not then Hope for Control, If not then Hope for Comfort" #hpm
Wed Dec 14 18:33:10 PST 2011
nursefriendly
@KathyKastner It is difficult to tell #families, that is not what the #patient wants. As a #patientadvocate, it is a duty we owe #hpm
Wed Dec 14 18:33:16 PST 2011
colleen_young
This is brilliant! Thx RT @doclake: Plain Speaking at the End of Life http://t.co/cDhWBQOd #hpm
Wed Dec 14 18:33:19 PST 2011
crgonzalez
@MarksPhone Being present is powerful. You are a hero! #HPM

Wed Dec 14 18:33:23 PST 2011
KathyKastner
RT @colleen_young: This is brilliant! Thx RT @doclake: Plain Speaking at the End of Life http://t.co/cDhWBQOd #hpm
Wed Dec 14 18:33:31 PST 2011
Page 17 of 42
6/27/12 12:46 PM
KathyKastner
RT @nursefriendly: @KathyKastner It is difficult to tell #families, that is not what the #patient wants. As a #patientadvocate, it is a duty we owe #hpm
Wed Dec 14 18:33:42 PST 2011
KathyKastner
Wed Dec 14 18:33:55 PST 2011
JenMarsh2
Wed Dec 14 18:34:05 PST 2011
nursefriendly
Yes, can be problematic ethically. RT @MeredithGould: @MarksPhone Some people are more hope-oriented than others, it seems. #hpm
Wed Dec 14 18:34:11 PST 2011
aliciabloom
+1 RT @JenMarsh2: T2 To many people, peace is about acceptance. I like to think of it more as acknowledgement. #hpm
Wed Dec 14 18:34:25 PST 2011
renee_berry
T2 I find peace when grieving through creativity, sometimes collages, sometimes video projects, also creating & maintaining traditions #hpm
Wed Dec 14 18:34:25 PST 2011
crgonzalez
RT @_lizzy_: T2 It seems to me that patients find peace sooner than families. With families, peace needs time. #HPM
Wed Dec 14 18:34:25 PST 2011
nursefriendly
@MeredithGould Yes, how often have you seen a pt "ready" to go, but hanging on in misery because #family can't let go? #hpm
Wed Dec 14 18:34:38 PST 2011
MarksPhone
Each one of us is different I consider my emotions about this like a teenage girl who is a cutter the rawness of it is my connection #hpm
Wed Dec 14 18:35:11 PST 2011
nursefriendly
Welcome :) RT @FDALawyers: hey all. Just made it. I am Darshan. FDA reg/ pharma/device/bio compliance pharmacist & attorney. #hpm
Wed Dec 14 18:35:12 PST 2011
jfclearywisc
RT @mdTalk: Hope isnt an expectation. Its a context that moves one forward #hpm http://t.co/ebFdAWgJ #hpm
Wed Dec 14 18:35:14 PST 2011
renee_berry
@aliciabloom so important #hpm I've been honored to participate in #NHDD the past few years
Wed Dec 14 18:35:28 PST 2011
Page 18 of 42
6/27/12 12:46 PM
GodtheHealerDev
@JenMarsh2 Acceptance vs acknowledgement. Difference? #hpm

Wed Dec 14 18:35:40 PST 2011
hollyby
T2: Holidays, anniversaries, etc. are tough. Keeping a family tradition, or keeping a part of a tradition, while making it new helps. #hpm
Wed Dec 14 18:35:44 PST 2011
nursefriendly
It does, meeting your "maker" can bring peace RT @jordangrumet: t1: Hope allows us to look forward to something even when facing death. #hpm
Wed Dec 14 18:35:55 PST 2011
MeredithGould
@nursefriendly Right. #HPM

Wed Dec 14 18:35:59 PST 2011
KathyKastner
RT @crgonzalez: RT @_lizzy_: T2 It seems to me that patients find peace sooner than families. With families, peace needs time. #HPM
Wed Dec 14 18:36:12 PST 2011
aliciabloom
@renee_berry finding a way to express grief can lead to peace. way to honor the loved one & memories. #hpm
Wed Dec 14 18:36:14 PST 2011
renee_berry
interesting RT @JenMarsh2: T2 To many people, peace is about acceptance. I like to think of it more as acknowledgement #hpm
Wed Dec 14 18:36:16 PST 2011
nursefriendly
RT @renee_berry: @JenMarsh2 I think that can be a struggle for clinicians, where they may not see what to hope for, often patients & families can #hpm
Wed Dec 14 18:36:23 PST 2011
equijada
t2: Peace comes from spiritual growth. Rather than finding it, let it find you. Counterintuitively, growth comes from being still. #hpm
Wed Dec 14 18:36:24 PST 2011
NHDD
@aliciabloom thanks for #hpm the shout out Alicia!

Wed Dec 14 18:36:46 PST 2011
aliciabloom
MT @hollyby: T2: Holidays, anniversaries are tough. Keeping a family tradition, or part of a tradition, while making it new helps. #hpm
Wed Dec 14 18:36:48 PST 2011
NHDD
RT @aliciabloom: when i think about peace for patients & families, i immediately think about the importance of advance care planning (@NHDD) #hpm
Wed Dec 14 18:36:51 PST 2011
nursefriendly
@renee_berry Clinicians as in #doctors grabbing at straws for new treatments, refusing to

Page 19 of 42
6/27/12 12:46 PM
"give up" ? #hpm

Wed Dec 14 18:37:00 PST 2011
renee_berry
RT @equijada: Hope isn't an expectation. It's a context that moves one forward #hpm
Wed Dec 14 18:37:12 PST 2011
renee_berry
RT @equijada: t2: Peace comes from spiritual growth. Rather than finding it, let it find you. Counter-intuitively, growth comes from being still. #hpm
Wed Dec 14 18:37:14 PST 2011
NatriceR
RT @KathyKastner: #hpm T2 both my parents died round this time. We sibs get together and tell stories, shed tears. disagree about perspe ...
Wed Dec 14 18:37:15 PST 2011
MarksPhone
If we tie T1 and T2 together what is the hope for a family member post EOL? It is now different. Hope become self centered #hpm
Wed Dec 14 18:37:19 PST 2011
hollyby
MT @equijada: t2: Peace comes from spiritual growth. Rather than finding it, let it find you... growth comes from being still. #hpm
Wed Dec 14 18:37:23 PST 2011
nursefriendly
RT @renee_berry: @JenMarsh2 but the clinician may project their lack of ability to be creative in finding more hope than another clinical trial to offer #hpm
Wed Dec 14 18:37:29 PST 2011
NatriceR
RT @nursefriendly: @KathyKastner Encounter #families #caregivers frequently that have different "plans" than the #patient. Need to reconcile pt wishes #hpm
Wed Dec 14 18:37:34 PST 2011
KathyKastner
#hpm What about regrets at life's end? Does that get in the way of peace and joy?
Wed Dec 14 18:37:45 PST 2011
crgonzalez
@renee_berry And it comes from accepting what "is" #HPM

Wed Dec 14 18:38:00 PST 2011
aliciabloom
have seen patients struggle to find peace at EoL because their families are conflicted, which then impacts the grieving process. #hpm
Wed Dec 14 18:38:08 PST 2011
JenMarsh2
@GodtheHealerDev I think so. I don't accept that my mom had to die from cancer, but I acknowledge that it happened. #hpm
Wed Dec 14 18:38:21 PST 2011
KathyKastner
RT @aliciabloom: have seen patients struggle to find peace at EoL because their families are conflicted, which then impacts the grieving process. #hpm
Wed Dec 14 18:38:24 PST 2011
Page 20 of 42
6/27/12 12:46 PM
nursefriendly
@renee_berry In the end, it is not the clinicians decision. The #patient and #family decided on further treatment, or not #hpm
Wed Dec 14 18:38:34 PST 2011
_lizzy_
T2: Of all the grief theories, Worden's Four Tasks of Mourning is my favorite. It seems to resonate with families #hpm
Wed Dec 14 18:38:35 PST 2011
NatriceR
RT @nursefriendly: @KathyKastner It is difficult to tell #families, that is not what the #patient wants. As a #patientadvocate, it is a duty we owe #hpm
Wed Dec 14 18:38:37 PST 2011
renee_berry
@nursefriendly in @Frontline "Facing Death" a few oncologists had direct quotes showing their discomfort being straightforward w/pts #hpm
Wed Dec 14 18:38:49 PST 2011
crgonzalez
@nursefriendly In nursing school, are there exams that explore competency related to issues of hospice? #HPM
Wed Dec 14 18:38:50 PST 2011
KathyKastner
Linkd?RT @_lizzy_: T2: Of all the grief theories, Worden's Four Tasks of Mourning is my favorite. It seems to resonate with families #hpm
Wed Dec 14 18:38:58 PST 2011
JenMarsh2
@GodtheHealerDev To me, acceptance implies some sort of permission, like it was okay that it happened. #hpm
Wed Dec 14 18:39:19 PST 2011
renee_berry
@nursefriendly often the patient & family don't understand their full options #hpm
Wed Dec 14 18:39:24 PST 2011
nursefriendly
@renee_berry #doctors don't like to hear it, but many of them have a "hang-up" about throwing in the towel (most oncologists get it) #hpm
Wed Dec 14 18:39:37 PST 2011
_lizzy_
@KathyKastner http://t.co/UxxTnOkF #hpm

Wed Dec 14 18:39:52 PST 2011
NatriceR
RT @nursefriendly: It does, meeting your "maker" can bring peace RT @jordangrumet: t1: Hope allows us to look forward to something even when facing death. #hpm
Wed Dec 14 18:40:14 PST 2011
JenMarsh2
@KathyKastner @_lizzy_ We'll be talking a little bit about Worden's Task theory tomorrow on #eolchat #hpm
Wed Dec 14 18:40:19 PST 2011
Page 21 of 42
6/27/12 12:46 PM
nursefriendly
Of course not, that is our job to explain RT @renee_berry: often the patient & family don't understand their full options #hpm
Wed Dec 14 18:40:25 PST 2011
CarolynMcC
@renee_berry They should read the book "Fierce Conversations" Teaches us how to have hard conversations #hpm
Wed Dec 14 18:40:43 PST 2011
hollyby
@MarksPhone That is a very interesting thought Mark. I wonder if by turning focus outward by supporting other family/friends helps. #hpm
Wed Dec 14 18:41:05 PST 2011
KathyKastner
@_lizzy_ Thanks especially since I won't be at tomorropw's #EOLchat (fooey) #hpm

Wed Dec 14 18:41:09 PST 2011
NatriceR
RT @KathyKastner: #hpm What about regrets at life's end? Does that get in the way of peace and joy?
Wed Dec 14 18:41:21 PST 2011
nursefriendly
@renee_berry Yes, see that every day. Some #doctors will insist, it wasn't the "treatment" that killed them, it was the #cancer #hpm
Wed Dec 14 18:41:30 PST 2011
MarksPhone
@KathyKastner #hpm thanks for the lead

Wed Dec 14 18:41:39 PST 2011
renee_berry
@CarolynMcC will have to look that up! #hpm

Wed Dec 14 18:41:53 PST 2011
schwartzbrown
Can we be at peace at the end of life if we're not during life? #hpm
Wed Dec 14 18:41:53 PST 2011
MeredithGould
@KathyKastner Holding it all simultaneously -- regrets & joy & peace -- is a spiritual practice. #hpm
Wed Dec 14 18:42:05 PST 2011
_lizzy_
@KathyKastner FYI that was just a random link that had the info... just googled it quickly #hpm
Wed Dec 14 18:42:14 PST 2011
GodtheHealerDev
@JenMarsh2 That makes sense. I would think the patient would need both, though acceptance is the harder one. #hpm
Wed Dec 14 18:42:14 PST 2011
nursefriendly
@MarksPhone Of course we can. Give them an idea of what to expect, not to expect from treatment. Give other options. #hpm
Wed Dec 14 18:42:19 PST 2011
Page 22 of 42
6/27/12 12:46 PM
renee_berry
RT @CarolynMcC: @renee_berry They should read the book "Fierce Conversations" Teaches us how to have hard conversations #hpm
Wed Dec 14 18:42:22 PST 2011
pamressler
Sorry to be checking in so late...teaching tonight #hpm

Wed Dec 14 18:42:28 PST 2011
aliciabloom
the language we use in EoL discussion can impact the level of peace & comfort people have in decision making #hpm
Wed Dec 14 18:42:40 PST 2011
_lizzy_
RT @schwartzbrown: Can we be at peace at the end of life if were not during life? #hpm
Wed Dec 14 18:42:42 PST 2011
_lizzy_
RT @schwartzbrown: Can we be at peace at the end of life if were not during life? #hpm
Wed Dec 14 18:42:42 PST 2011
KathyKastner
@_lizzy_ thanks :) #hpm

Wed Dec 14 18:42:49 PST 2011
KathyKastner
@pamressler Hey Pam! #hpm

Wed Dec 14 18:43:02 PST 2011
crgonzalez
@schwartzbrown Now you are getting deep. That is the trick, isn't it? Being alive and present in the now. #HPM
Wed Dec 14 18:43:03 PST 2011
nursefriendly
@MarksPhone Every #oncologist worth their salt, will give percentages, chances of success, with treatments. Not many are rosy. #hpm
Wed Dec 14 18:43:08 PST 2011
equijada
@schwartzbrown yes but difficult. #hpm

Wed Dec 14 18:43:10 PST 2011
renee_berry
RT @aliciabloom: the language we use in EoL discussion can impact the level of peace & comfort people have in decision making #hpm
Wed Dec 14 18:43:11 PST 2011
crgonzalez
@pamressler I saved a seat for you. ;) #HPM

Wed Dec 14 18:43:14 PST 2011
_lizzy_
Wed Dec 14 18:43:21 PST 2011
Page 23 of 42
6/27/12 12:46 PM
KathyKastner
RT @_lizzy_: RT @aliciabloom: the language we use in EoL discussion can impact the level of peace & comfort people have in decision making #hpm
Wed Dec 14 18:43:27 PST 2011
MarksPhone
@hollyby #hpm 4me I hope that there is peace for Donna but me my hope is about finding work etc which feels selfish and self centered #hpm
Wed Dec 14 18:43:30 PST 2011
nursefriendly
Hello Pat, glad you could make it :) RT @apjonas: Hi all, Pat Jonas, MD, Holsitic Family Physician in Ohio #hpm
Wed Dec 14 18:43:31 PST 2011
aliciabloom
EoL process can be a time of healing for patients & their families. That is something to hope for that can lead to peace. #hpm
Wed Dec 14 18:43:40 PST 2011
nursefriendly
RT @colleen_young: @KathyKastner Your short blog on hope in the Journal of Palliative Med and ensuing comments was extremely powerful. #hpm
Wed Dec 14 18:43:45 PST 2011
NatriceR
RT @nursefriendly: Of course not, that is our job to explain RT @renee_berry: often the patient & family don't understand their full options #hpm
Wed Dec 14 18:43:55 PST 2011
KathyKastner
RT @aliciabloom: EoL process can be a time of healing for patients & their families. That is something to hope for that can lead to peace. #hpm
Wed Dec 14 18:43:55 PST 2011
jfclearywisc
Wed Dec 14 18:44:03 PST 2011
nursefriendly
RT @crgonzalez: @nursefriendly In nursing school, are there exams that explore competency related to issues of hospice? #HPM
Wed Dec 14 18:44:07 PST 2011
equijada
@schwartzbrown i used to think no, but have revised by stance. #hpm

Wed Dec 14 18:44:16 PST 2011
aliciabloom
@pamressler as they say...better late than never! #hpm

Wed Dec 14 18:44:17 PST 2011
ShahinaLakhani
The Sands Of Time http://t.co/jqCshevW #wellness #wellbeing #artofliving #livingwell #livingpowefully #HPM #nurse
Wed Dec 14 18:44:32 PST 2011
@crgonzalez Thanks :-) #hpm

6/27/12 12:46 PM
pamressler CarolynMcC
Wed Dec 14 18:44:46 PST 2011
@nursefriendly In my experience, too many still use euphemistic terms such as "your cancer will respond" which means it will shrink #hpm
Wed Dec 14 18:44:51 PST 2011
crgonzalez
@MarksPhone baby, it is about fetching water and chopping wood, as the Buddhists say. You go on with your bad self. #HPM
Wed Dec 14 18:44:52 PST 2011
apjonas
@nursefriendly Hi back. Just had hospice situation w/pt. hpm helps w/ processing #hpm
Wed Dec 14 18:45:02 PST 2011
KathyKastner
RT @CarolynMcC: @renee_berry They should read the book "Fierce Conversations" Teaches us how to have hard conversations #hpm
Wed Dec 14 18:45:02 PST 2011
equijada
Totally RT @aliciabloom: the language we use in EoL discussion can impact the level of peace & comfort people have in decision making #hpm
Wed Dec 14 18:45:04 PST 2011
nursefriendly
@crgonzalez Not when I went to school. It was mentioned theoretically,that's about it. It is very much a specialty you learn on the job #HPM
Wed Dec 14 18:45:10 PST 2011
_lizzy_
T2 From my experience, patients seem to find peace with help from communication from the other side. Anyone else observe that? #hpm
Wed Dec 14 18:45:25 PST 2011
renee_berry
@Nursefriendly @NatriceR agree, unfortunately so many people miss out on that part of their job & overlook the importance of #healthlit #hpm
Wed Dec 14 18:45:46 PST 2011
apjonas
RT @aliciabloom: EoL process can be time of healing for patients & families. That is something to hope for that can lead to peace. #hpm
Wed Dec 14 18:45:54 PST 2011
nursefriendly
@crgonzalez Learned most of what I know from my wife (RN, OCN) and taking care of #hospice #patients in #longtermcare #HPM
Wed Dec 14 18:45:58 PST 2011
aliciabloom
@schwartzbrown @equijada it's where we see the reality of the dying process as being physical, emotional & spiritual. #hpm
Wed Dec 14 18:45:58 PST 2011
colleen_young
@CarolynMcC Agree about euphemisms. Recommend reading this about plain language at end of life. http://t.co/lyPYIbqB #hpm
Page 25 of 42
6/27/12 12:46 PM
Wed Dec 14 18:46:04 PST 2011
MarksPhone
@crgonzalez #HPM I am reading some buddhist text and I agree everyday I make the bed feed nina give her insulin etc routine #hpm
Wed Dec 14 18:46:10 PST 2011
crgonzalez
@nursefriendly talk about re-creating the wheel. That is so 20th century ass-backward #HPM
Wed Dec 14 18:46:12 PST 2011
MeredithGould
@renee_berry Do NOT get me started on health literacy!! #healthlit #hpm

Wed Dec 14 18:46:14 PST 2011
schwartzbrown
RT @aliciabloom EoL process can be a time of healing for patients & families. That is something to hope for that can lead to peace. #hpm
Wed Dec 14 18:46:26 PST 2011
nursefriendly
RT @CarolynMcC: @nursefriendly In my experience, too many still use euphemistic terms such as "your cancer will respond" which means it will shrink #hpm
Wed Dec 14 18:46:27 PST 2011
hollyby
@MarksPhone Maybe, but your work helps others, no? You are an educator. Teaching is about helping others grow. #hpm
Wed Dec 14 18:46:39 PST 2011
aliciabloom
@_lizzy_ actually, yes! i witnessed a patient actively dying conversing with his wife who died 3 years prior. beautiful. awe-inspiring. #hpm
Wed Dec 14 18:46:43 PST 2011
NatriceR
RT @nursefriendly: Hello Pat, glad you could make it :) RT @apjonas: Hi all, Pat Jonas, MD, Holsitic Family Physician in Ohio #hpm
Wed Dec 14 18:46:55 PST 2011
renee_berry
@CarolynMcC agree, also often hear "treatment or hospice" ... drives me crazy #hospice is a treatment option #hpm
Wed Dec 14 18:47:05 PST 2011
nursefriendly
@CarolynMcC So you think these euphemistic terms give a false sense of hope? I'd tend to agree with your example. #hpm
Wed Dec 14 18:47:08 PST 2011
renee_berry
RT @CarolynMcC: @nursefriendly In my experience, too many still use euphemistic terms such as "your cancer will respond" which means it will shrink #hpm
Wed Dec 14 18:47:09 PST 2011
NatriceR
RT @aliciabloom: EoL process can be a time of healing for patients & their families. That is something to hope for that can lead to peace. #hpm
Wed Dec 14 18:47:22 PST 2011
Page 26 of 42
6/27/12 12:46 PM
AnkurB_MD
@schwartzbrown @_lizzy_ Peace: It's all about "Letting Go" and shedding all those "Emotions..etc" whether in life or at EOL.. #hpm
Wed Dec 14 18:47:23 PST 2011
renee_berry
:) I'm always down for chatting abt #healthlit RT @MeredithGould: @renee_berry Do NOT get me started on health literacy!! #hpm
Wed Dec 14 18:47:45 PST 2011
NatriceR
RT @crgonzalez: @nursefriendly In nursing school, are there exams that explore competency related to issues of hospice? #HPM
Wed Dec 14 18:47:47 PST 2011
apjonas
@_lizzy_ have seen comfort from pt commo w/deceased loved ones. Also family reassured by hearing about it from pt #hpm
Wed Dec 14 18:48:01 PST 2011
crgonzalez
@nursefriendly Sterile terms create a distance between practitioner and patient. It's a copout #HPM
Wed Dec 14 18:48:03 PST 2011
MarksPhone
@hollyby #hpm I've discovered I want to find work in HPM but is that just transferring & projection but it all fits in this discussion #hpm
Wed Dec 14 18:48:11 PST 2011
_lizzy_
@aliciabloom very cool. It is a gift to be present and witness the conversations. #hpm
Wed Dec 14 18:48:18 PST 2011
aliciabloom
euphemisms allow patients, families & clinicians to avoid real talk. they can give a false sense of hope. #hpm
Wed Dec 14 18:48:24 PST 2011
CarolynMcC
@nursefriendly I think these terms are unfair to the patient and delays their dealing with other important issues. #hpm
Wed Dec 14 18:48:36 PST 2011
colleen_young
Yes, let's get started on health literacy :) RT @MeredithGould: @renee_berry Do NOT get me started on health literacy!! #healthlit #hpm
Wed Dec 14 18:48:41 PST 2011
MeredithGould
@colleen_young Funny. #healthlit #hpm

Wed Dec 14 18:48:52 PST 2011
KathyKastner
Right onRT @CarolynMcC: @nursefriendly ...too many still use euphemistic terms such as "your cancer will respond" = it will shrink #hpm
Wed Dec 14 18:48:54 PST 2011
Page 27 of 42
6/27/12 12:46 PM
crgonzalez
@MarksPhone You're workin' it, Mark. #HPM

Wed Dec 14 18:48:55 PST 2011
nursefriendly
@crgonzalez How do you figure? #nursingschools have a tough enough time covering the basics of #nursing, can't expect #specialties too #HPM
Wed Dec 14 18:48:55 PST 2011
_lizzy_
My favorite experience so far - changed my outlook: http://t.co/PkC8mrH2 #hpm

Wed Dec 14 18:49:03 PST 2011
jfclearywisc
RT @aliciabloom: euphemisms allow patients, families & clinicians to avoid real talk. they can give a false sense of hope. #hpm
Wed Dec 14 18:49:11 PST 2011
CarolynMcC
@nursefriendly I think these terms are unfair to the patient and prevents them from dealing with more important issues #hpm
Wed Dec 14 18:49:16 PST 2011
aliciabloom
please share any final thoughts on how we can help people find peace. we'll move on to topic 3 in a moment. #hpm
Wed Dec 14 18:49:35 PST 2011
NatriceR
RT @colleen_young: Yes, let's get started on health literacy :) RT @MeredithGould: @renee_berry Do NOT get me started on health literacy!! #healthlit #hpm
Wed Dec 14 18:49:38 PST 2011
nursefriendly
Sterile terms like? RT @crgonzalez: Sterile terms create a distance between practitioner and patient. It's a cop-out #HPM
Wed Dec 14 18:49:48 PST 2011
hollyby
Sometimes peace and hope come from granting each other compassion (and ourselves a bit of self compassion). #hpm
Wed Dec 14 18:49:55 PST 2011
colleen_young
@MarksPhone This very chat helped me find work in #hpm. It's exactly what I want to be doing. Good luck to you.
Wed Dec 14 18:50:15 PST 2011
MeredithGould
T2 First, find out how they define peace and hope. Don't make assumptions! #hpm
Wed Dec 14 18:50:18 PST 2011
nursefriendly
RT @CarolynMcC: @nursefriendly I think these terms are unfair to the patient and delays their dealing with other important issues. #hpm
Wed Dec 14 18:50:23 PST 2011
crgonzalez
@nursefriendly Dude, death is a basic. We will all get there. Shouldn't it be part of the curriculum? #HPM
Page 28 of 42
6/27/12 12:46 PM
Wed Dec 14 18:50:28 PST 2011
NatriceR
RT @KathyKastner: Right onRT @CarolynMcC: @nursefriendly ...too many still use euphemistic terms such as "your cancer will respond" = it will shrink #hpm
Wed Dec 14 18:50:30 PST 2011
aliciabloom
RT @hollyby: Sometimes peace and hope come from granting each other compassion (and ourselves a bit of self compassion). #hpm
Wed Dec 14 18:50:34 PST 2011
KathyKastner
RT @CarolynMcC: @nursefriendly I think these terms are unfair to the patient and delays their dealing with other important issues. #hpm
Wed Dec 14 18:50:36 PST 2011
pamressler
Agreed RT @hollyby: Sometimes peace and hope come from granting each other compassion (and ourselves a bit of self compassion). #hpm
Wed Dec 14 18:50:46 PST 2011
KathyKastner
RT @aliciabloom: RT @hollyby: Sometimes peace and hope come from granting each other compassion (and ourselves a bit of self compassion). #hpm
Wed Dec 14 18:50:49 PST 2011
crgonzalez
@nursefriendly "Your cancer is not responding" = our treatments aren't working #HPM
Wed Dec 14 18:51:03 PST 2011
renee_berry
@colleen_young @marksphone that's pretty incredible cc @ctsinclair #hpm

Wed Dec 14 18:51:07 PST 2011
apjonas
RT @MeredithGould: T2 First, find out how they define peace and hope. Dont make assumptions! #hpm
Wed Dec 14 18:51:08 PST 2011
nursefriendly
@CarolynMcC I tend to shoot straight from the hip. Ask what they think, doctor thinks, then give my point of view. #hpm
Wed Dec 14 18:51:13 PST 2011
aliciabloom
Weve talked hope & peace, now lets talk joy for topic 3... #hpm
Wed Dec 14 18:51:18 PST 2011
renee_berry
RT @colleen_young: @MarksPhone This very chat helped me find work in #hpm. It's exactly what I want to be doing. Good luck to you.
Wed Dec 14 18:51:37 PST 2011
aliciabloom
#hpm is often seen as "depressing." believe me, i know. i'm the cocktail party buzzkill. what about your work in #hpm brings you joy?
Wed Dec 14 18:51:56 PST 2011
Page 29 of 42
6/27/12 12:46 PM
MarksPhone
@colleen_young #hpm its more being in hospice for four weeks with Donna & the amazing clinicians etc but they need mkt edu etc help #hpm
Wed Dec 14 18:51:57 PST 2011
nursefriendly
@CarolynMcC When a #patient on #hospice is actively #dying, I'll call the family and say it is time to "circle the wagons" #hpm
Wed Dec 14 18:52:08 PST 2011
hollyby
@MarksPhone There is plenty of education and other work that needs to be done in #hpm. Many of us come to it thru personal experience. #hpm
Wed Dec 14 18:52:12 PST 2011
colleen_young
Later takes burden of blame off of patient. RT @crgonzalez: "Your cancer's not responding" = our treatments aren't working #HPM
Wed Dec 14 18:52:17 PST 2011
CarolynMcC
@nursefriendly Good and it is important for the entire health care team to be on the same page so there are no mixed messages. #hpm
Wed Dec 14 18:52:30 PST 2011
nursefriendly
RT @KathyKastner: #hpm one of the comments on blog was: patients don't want to disappoint docs by seeming to give up hope (!)
Wed Dec 14 18:52:46 PST 2011
NatriceR
RT @aliciabloom: RT @hollyby: Sometimes peace and hope come from granting each other compassion (and ourselves a bit of self compassion). #hpm
Wed Dec 14 18:52:59 PST 2011
renee_berry
@nursefriendly family in the ED abt a month ago, clinician asked fam thoughts, but there was so much more not discussed #hpm
Wed Dec 14 18:53:13 PST 2011
aliciabloom
T3: #hpm is often seen as "depressing." believe me, i know. i'm the cocktail party buzzkill. what about your work in #hpm brings you joy?
Wed Dec 14 18:53:20 PST 2011
crgonzalez
@colleen_young Exactly and simpler more direct terms are easier to understand #HPM
Wed Dec 14 18:53:28 PST 2011
colleen_young
@renee_berry It is and I have especially you, @ctsinclair @KathyKastner @hollyby and @jodyms to thank. #hpm
Wed Dec 14 18:53:38 PST 2011
NatriceR
RT @colleen_young: Later takes burden of blame off of patient. RT @crgonzalez: "Your cancer's not responding" = our treatments aren't working #HPM
Wed Dec 14 18:53:38 PST 2011
Page 30 of 42
6/27/12 12:46 PM
renee_berry renee_berry
@CarolynMcC soooo important, but unfortunately I feel like it's so rare #hpm
Wed Dec 14 18:53:48 PST 2011
RT @CarolynMcC: @nursefriendly Good and it is important for the entire health care team to be on the same page so there are no mixed messages. #hpm
Wed Dec 14 18:53:51 PST 2011
pamressler
@crgonzalez Unfortunately hospice care is not part of nursing training that I know of, it is also not part of medical school training #hpm
Wed Dec 14 18:53:52 PST 2011
nursefriendly
@KathyKastner Had an interesting discussion on #positive attitudes,how some are so focused, that they rob themselves of time to prepare #hpm
Wed Dec 14 18:53:55 PST 2011
KathyKastner
RT @nursefriendly: @KathyKastner Had an interesting discussion on #positive attitudes,how some are so focused, that they rob themselves of time to prepare #hpm
Wed Dec 14 18:54:17 PST 2011
_lizzy_
T3: The interdisc. team brings me joy. Diff professions working together for a common goal: compassionate care for patients & families #hpm
Wed Dec 14 18:54:27 PST 2011
MeredithGould
T3 Probably good to distinguish joy from happiness. I've experienced joy but not happiness when someone I'm with dies. #hpm
Wed Dec 14 18:54:28 PST 2011
equijada
Being real brings joy - in IDG today, we laughed, we cried. We experienced joy. #hpm
Wed Dec 14 18:54:33 PST 2011
MeredithGould
RT @equijada: Being real brings joy - in IDG today, we laughed, we cried. We experienced joy. #hpm
Wed Dec 14 18:54:41 PST 2011
nursefriendly
@crgonzalez We learn lots about death and #dying, but as much about #hospice as #emergency or #operatingroom or #ICU #HPM
Wed Dec 14 18:54:46 PST 2011
crgonzalez
@pamressler That is a crime. We all go through births and we all transition through death #HPM
Wed Dec 14 18:54:49 PST 2011
colleen_young
Agree. MT @MarksPhone: @colleen_young #hpm hospice amazing clinicians, but need mkt edu etc help #hpm
Wed Dec 14 18:54:55 PST 2011
CarolynMcC
@renee_berry Totally agree. And this is where the medical care home concept can change the game in the future. #hpm
Page 31 of 42
6/27/12 12:46 PM
Wed Dec 14 18:55:01 PST 2011
renee_berry
RT @pamressler: @crgonzalez Unfortunately hospice care is not part of nursing training that I know of, it is also not part of medical school training #hpm
Wed Dec 14 18:55:06 PST 2011
JenMarsh2
T3 Seeing the comfort pts and families receive always brings me joy #hpm
Wed Dec 14 18:55:08 PST 2011
crgonzalez
@pamressler Oh, and I forgot to add taxes! #HPM

Wed Dec 14 18:55:08 PST 2011
apjonas
@pamressler The 4 med schools I relate to all have hpm experiences. #hpm
Wed Dec 14 18:55:12 PST 2011
nursefriendly
Not a teacher huh? RT @crgonzalez: Dude, death is a basic. We will all get there. Shouldn't it be part of the curriculum? #HPM
Wed Dec 14 18:55:12 PST 2011
hollyby
T3: The people who work in #hpm, the volunteers, & the patients & families bring me joy. Selfless, loving, deep, compassionate people. #hpm
Wed Dec 14 18:55:17 PST 2011
schwartzbrown
Knowing how fragile life is makes one appreciate the moment. #hpm
Wed Dec 14 18:55:17 PST 2011
equijada
RT @MeredithGould: T3 Probably good to distinguish joy from happiness. Ive experienced joy but not happiness when someone Im with dies. #hpm
Wed Dec 14 18:55:18 PST 2011
aliciabloom
Wed Dec 14 18:55:19 PST 2011
renee_berry
RT @aliciabloom: T3: #hpm is often seen as "depressing." believe me, i know. i'm the cocktail party buzzkill. what about your work in #hpm brings you joy?
Wed Dec 14 18:55:21 PST 2011
_lizzy_
@pamressler Perhaps depends on the school? At Ohio State there was a palliative nursing class (I do think it was elective) #hpm
Wed Dec 14 18:55:23 PST 2011
hollyby
RT @equijada: Being real brings joy - in IDG today, we laughed, we cried. We experienced joy. #hpm
Wed Dec 14 18:55:55 PST 2011
Page 32 of 42
6/27/12 12:46 PM
nursefriendly
I'd have no trouble making those statements. RT @crgonzalez: "Your cancer is not responding" = our treatments aren't working #HPM
Wed Dec 14 18:55:56 PST 2011
KathyKastner
#hpm T3 OK. Perhaps I'm wierd, but totally grooving on learning about e-o-l, hpm> perhaps bcuz it's for educatrion, not in IRL
Wed Dec 14 18:56:06 PST 2011
renee_berry
T3 For me joy comes in making small steps towards more people understanding all their options, understanding it's ok to go home #hpm
Wed Dec 14 18:56:07 PST 2011
KathyKastner
RT @renee_berry: T3 For me joy comes in making small steps towards more people understanding all their options, understanding it's ok to go home #hpm
Wed Dec 14 18:56:16 PST 2011
hollyby
Wed Dec 14 18:56:19 PST 2011
NatriceR
RT @nursefriendly: Not a teacher huh? RT @crgonzalez: Dude, death is a basic. We will all get there. Shouldn't it be part of the curriculum? #HPM
Wed Dec 14 18:56:32 PST 2011
pamressler
@_lizzy_ Yes, I was referring to core curriculum and not electives in nursing programs #hpm
Wed Dec 14 18:56:34 PST 2011
aliciabloom
for me, the joy is in the beauty & reality of the human experience. finding light in the darkness. #hpm
Wed Dec 14 18:56:35 PST 2011
nursefriendly
@crgonzalez Many #doctors would have great difficulty admitting their plans of care, treatments are ineffective. #HPM
Wed Dec 14 18:56:36 PST 2011
crgonzalez
@nursefriendly I can tell you as a lay person, there's an expectation that all medical providers have a grounding in end of life issues #HPM
Wed Dec 14 18:56:41 PST 2011
KathyKastner
RT @nursefriendly: @crgonzalez Many #doctors would have great difficulty admitting their plans of care, treatments are ineffective. #HPM
Wed Dec 14 18:56:44 PST 2011
MeredithGould
RT @aliciabloom: for me, the joy is in the beauty & reality of the human experience. finding light in the darkness. #hpm
Wed Dec 14 18:56:47 PST 2011
@_lizzy_ #awesome, hope those programs grow, passionate about engaging young people
6/27/12 12:46 PM
renee_berry
to aspire to work in --> #hpm

Wed Dec 14 18:56:48 PST 2011
hollyby
Amen! RT @aliciabloom: for me, the joy is in the beauty & reality of the human experience. finding light in the darkness. #hpm
Wed Dec 14 18:57:08 PST 2011
JenMarsh2
I'm also always happy when one of my classes opens people's view of hospice or eol care #hpm
Wed Dec 14 18:57:10 PST 2011
nursefriendly
@KathyKastner Misplaced loyalty to her #doctor, she needs to get selfish and think of herself #hpm
Wed Dec 14 18:57:19 PST 2011
aliciabloom
@equijada today, a trauma surgeon walked by our #palliative care team in the ICU & said: you guys have fun? #hpm
Wed Dec 14 18:57:28 PST 2011
MarksPhone
I tried to write to each HCP to thank them I held a celebration for Donna this week and invited them their joy in my words #hpm
Wed Dec 14 18:57:30 PST 2011
nursefriendly
RT @CarolynMcC: @nursefriendly Good and it is important for the entire health care team to be on the same page so there are no mixed messages. #hpm
Wed Dec 14 18:57:34 PST 2011
renee_berry
RT @aliciabloom: for me, the joy is in the beauty & reality of the human experience. finding light in the darkness. #hpm
Wed Dec 14 18:57:38 PST 2011
KathyKastner
+1 RT @crgonzalez: @nursefriendly s a lay person, there's an expectation that all med providers have a grounding in end of life issues #HPM
Wed Dec 14 18:57:51 PST 2011
aliciabloom
another joy? the privilege of being present. learning about people's lives & hearing amazing stories. #hpm
Wed Dec 14 18:58:02 PST 2011
nursefriendly
@CarolynMcC Yet, there are many mixed messages that contribute to #patient #confusion, #indecision - unfortunate. #hpm
Wed Dec 14 18:58:10 PST 2011
MeredithGould
RT @aliciabloom: another joy? the privilege of being present. learning about people's lives & hearing amazing stories. #hpm
Wed Dec 14 18:58:12 PST 2011
JenMarsh2
RT @aliciabloom: for me, the joy is in the beauty & reality of the human experience. finding
Page 34 of 42
6/27/12 12:46 PM
light in the darkness. #hpm

Wed Dec 14 18:58:21 PST 2011
MarksPhone
@aliciabloom #palliative #hpm Tell you tell him to bite me? I would have that's why I am not allowed out alone
Wed Dec 14 18:58:31 PST 2011
hollyby
RT @aliciabloom: another joy? the privilege of being present. learning about peoples lives & hearing amazing stories. #hpm
Wed Dec 14 18:58:40 PST 2011
equijada
Why do people in Ferrari's seem to always frown? Related: I'm at Fashion Island, Newport Beach #hpm
Wed Dec 14 18:58:44 PST 2011
equijada
@aliciabloom lol #hpm

Wed Dec 14 18:58:52 PST 2011
renee_berry
ha RT @aliciabloom @equijada today, a trauma surgeon walked by our #palliative care team in the ICU & said: you guys have fun? #hpm
Wed Dec 14 18:58:55 PST 2011
KathyKastner
RT @nursefriendly: @KathyKastner Misplaced loyalty to her #doctor, she needs to get selfish and think of herself #hpm
Wed Dec 14 18:58:59 PST 2011
JenMarsh2
YES! RT @aliciabloom: another joy? the privilege of being present. learning about people's lives & hearing amazing #hpm
Wed Dec 14 18:58:59 PST 2011
milhealth
@aliciabloom #hpm my mom passed away-in a beautiful hospice facility, better than what we went thru w/my Dad at home (w/hospice2)
Wed Dec 14 18:59:03 PST 2011
renee_berry
@MarksPhone hahaha omg, love it #hpm

Wed Dec 14 18:59:23 PST 2011
nursefriendly
@crgonzalez As a #nurse and #HCP, I can tell you that the majority of us out there do not, not taught in school or job. #hpm
Wed Dec 14 18:59:27 PST 2011
pamressler
@crgonzalez Unfortunately not as true as we would like -- many new MDs and RNs have never seen a "natural death" #hpm
Wed Dec 14 18:59:33 PST 2011
aliciabloom
@MarksPhone haha! i actually said: why wouldn't we have fun? we do awesome work! #hpm
Wed Dec 14 18:59:36 PST 2011
Page 35 of 42
6/27/12 12:46 PM
apjonas
T3 Since it's a personal question, I get joy when people say "thanks". #hpm
Wed Dec 14 18:59:48 PST 2011
MeredithGould
@aliciabloom Great response! #hpm

Wed Dec 14 18:59:49 PST 2011
GodtheHealerDev
T3: As one who has seen her friends die young due to poor immune systems caused by various disabilities (MS,CP), joy comes in w peace. #hpm
Wed Dec 14 19:00:01 PST 2011
nursefriendly
Thanks for hosting by the way :) Great discussions, though it will take me a while to catch up. #hpm
Wed Dec 14 19:00:09 PST 2011
aliciabloom
@milhealth i hear you. sometimes an inpatient setting is a better option. allows family to be family, not health care providers. #hpm
Wed Dec 14 19:00:16 PST 2011
KathyKastner
Nice ! RT @apjonas: T3 Since it's a personal question, I get joy when people say "thanks". #hpm
Wed Dec 14 19:00:20 PST 2011
crgonzalez
@nursefriendly I weep! I'm really sad about that for you, the field, and the rest of us. #HPM
Wed Dec 14 19:00:36 PST 2011
AnkurB_MD
T3: Joy is bringing Hope and Peace in your patient's eyes... It's being there in that moment that makes it all worthwhile!! #hpm
Wed Dec 14 19:00:41 PST 2011
renee_berry
RT @JenMarsh2: YES! RT @aliciabloom: another joy? the privilege of being present. learning about people's lives & hearing amazing #hpm
Wed Dec 14 19:00:43 PST 2011
JenMarsh2
@aliciabloom - great topics for tonight! Thank you for hosting!! #hpm
Wed Dec 14 19:00:48 PST 2011
KathyKastner
RT @crgonzalez: @nursefriendly I weep! I'm really sad about that for you, the field, and the rest of us. #HPM
Wed Dec 14 19:00:48 PST 2011
colleen_young
+1 RT @JenMarsh2: @aliciabloom - great topics for tonight! Thank you for hosting!! #hpm
Wed Dec 14 19:01:01 PST 2011
MarksPhone
@aliciabloom #hpm He's a surgeon and well subtle language skills are not ingrained.
Page 36 of 42
6/27/12 12:46 PM
someone to say that at that time is a knuckle dragger

Wed Dec 14 19:01:05 PST 2011
colleen_young
@MarksPhone On @VirtualHospice, I'm hoping to build #hospice20 the next frontier of #med20 & peer-to-peer health. #hpm cc @elderpages
Wed Dec 14 19:01:21 PST 2011
hollyby
@aliciabloom Thanks so much for hosting a great tweetchat! Hugs to you all! Good night! #hpm
Wed Dec 14 19:01:34 PST 2011
nursefriendly
Don't weep for me, weep for the #patients RT @crgonzalez: I weep! I'm really sad about that for you, the field, and the rest of us. #HPM
Wed Dec 14 19:01:36 PST 2011
_lizzy_
RT @JenMarsh2: @aliciabloom - great topics for tonight! Thank you for hosting!! #hpm
Wed Dec 14 19:01:37 PST 2011
renee_berry
T3 I find it grounding when people show appreciation for the simple act of being present #hpm
Wed Dec 14 19:01:38 PST 2011
aliciabloom
our time is coming to an end, #hpm friends! thank you all for participating tonight. i hope that we all find peace & joy. everyday.
Wed Dec 14 19:01:38 PST 2011
schwartzbrown
@aliciabloom Thank you. Great job! #hpm

Wed Dec 14 19:01:39 PST 2011
equijada
@aliciabloom BOOM! great job! Thanks. #hpm

Wed Dec 14 19:01:41 PST 2011
jdp2222
interesting perspective on an important topic Thx @colleen_young @doclake: Plain Speaking at the End of Life http://t.co/6nPqEFeo #hpm#in
Wed Dec 14 19:01:48 PST 2011
MeredithGould
@MarksPhone Surgeon. Says it all. #hpm

Wed Dec 14 19:01:48 PST 2011
crgonzalez
what she said -->RT @JenMarsh2: @aliciabloom - great topics for tonight! Thank you for hosting!! #HPM
Wed Dec 14 19:01:59 PST 2011
KathyKastner
#hpm @aliciabloom Fab job. Of course I think topicvs were great :) Thank you so much for riffing on my post. Much appreciated.
Wed Dec 14 19:02:00 PST 2011
Page 37 of 42
6/27/12 12:46 PM
CarolynMcC
Thanks for letting me hang... good stuff. #hpm

Wed Dec 14 19:02:01 PST 2011
KathyKastner
@CarolynMcC How terrific that you were interested #hpm

Wed Dec 14 19:02:21 PST 2011
hollyby
Well said, Earl. :) RT @equijada: @aliciabloom BOOM! great job! Thanks. #hpm
Wed Dec 14 19:02:22 PST 2011
pamressler
RT @renee_berry: T3 I find it grounding when people show appreciation for the simple act of being present #hpm
Wed Dec 14 19:02:24 PST 2011
crgonzalez
@MeredithGould LOL... surgeon! #HPM

Wed Dec 14 19:02:27 PST 2011
aliciabloom
thanks, @JenMarsh2 & @schwartzbrown! glad you were both here. #hpm
Wed Dec 14 19:02:30 PST 2011
nursefriendly
@renee_berry When you're in an Emergency Dept., in shock, it isn't the best time to have a "heart to heart" discussion. #hpm
Wed Dec 14 19:02:31 PST 2011
KathyKastner
RT @pamressler: RT @renee_berry: T3 I find it grounding when people show appreciation for the simple act of being present #hpm
Wed Dec 14 19:02:32 PST 2011
MeredithGould
Ditto-->RT @crgonzalez: what she said -->RT @JenMarsh2: @aliciabloom - great topics for tonight! Thank you for hosting!! #HPM
Wed Dec 14 19:02:40 PST 2011
MarksPhone
Thank you all. Be well and remember hope falls external #hpm
Wed Dec 14 19:02:42 PST 2011
apjonas
@aliciabloom Thanks for hosting. Great Chat! #hpm

Wed Dec 14 19:02:43 PST 2011
milhealth
@aliciabloom #hpm (thanks:-)), my sister is RN, but at home, no IV/meds. Do they do meds at home now? (My Dad '92, mom in 2010).
Wed Dec 14 19:02:45 PST 2011
aliciabloom
@CarolynMcC thanks for hanging! hope you'll join us again! #hpm

Wed Dec 14 19:02:49 PST 2011
JenMarsh2
Yep. RT @MeredithGould @MarksPhone Surgeon. Says it all. #hpm #hpm

Page 38 of 42
6/27/12 12:46 PM
Wed Dec 14 19:02:58 PST 2011
ctsinclair
The #hpm Daily is out! http://t.co/hXekg5Al Top stories today via @thelizabethhosp @rachellenorman @salixpharma @_lizzy_ @aahpm
Wed Dec 14 19:03:05 PST 2011
KathyKastner
RT @apjonas: @aliciabloom Thanks for hosting. Great Chat! #hpm

Wed Dec 14 19:03:35 PST 2011
nursefriendly
@crgonzalez You might want to do some research on #nursingschool #curriculums, and how little #hospice #palliative care is mentioned #HPM
Wed Dec 14 19:03:36 PST 2011
pamressler
@aliciabloom Thanks for hosting! #hpm

Wed Dec 14 19:03:46 PST 2011
milhealth
@aliciabloom #hpm I could see your job (very difficult) but very rewarding. Our social worker/4 Mom was WONDERFUL! Everybody was!
Wed Dec 14 19:03:52 PST 2011
aliciabloom
@milhealth no RN can do a 24/7 shift. every hospice provider is different, but many do IV meds at home now. #hpm
Wed Dec 14 19:03:53 PST 2011
nursefriendly
@crgonzalez To be fair, #hospice, #palliative care is a relative new specialty, field of #medicine #HPM
Wed Dec 14 19:04:07 PST 2011
aliciabloom
RT @hollyby: Well said, Earl. :) RT @equijada: @aliciabloom BOOM! great job! Thanks. <- that's awesome :) thank you both! #hpm
Wed Dec 14 19:04:18 PST 2011
KathyKastner
#hpm heading for tequila. Feeling hope, peace and joy. What an amazing buncha tweeps. Thanks all.
Wed Dec 14 19:04:33 PST 2011
crgonzalez
@nursefriendly Are you asking me to become even more depressed? Your description is revelatory and disappointing #HPM
Wed Dec 14 19:04:43 PST 2011
milhealth
@aliciabloom #hpm that's good. B-cause 4 my Dad, only morphine/supp. he had melanoma/very bad.
Wed Dec 14 19:04:58 PST 2011
aliciabloom
@milhealth thank you #hpm

Wed Dec 14 19:05:03 PST 2011
Page 39 of 42
6/27/12 12:46 PM
crgonzalez
@nursefriendly To be fair, death has been around before health care providers #HPM
Wed Dec 14 19:05:08 PST 2011
aliciabloom
thanks, @KathyKastner! your blog post was my springboard :) #hpm

Wed Dec 14 19:05:28 PST 2011
milhealth
@aliciabloom <sorry> #hpm you come home from work & I'm talking shop!
Wed Dec 14 19:05:51 PST 2011
aliciabloom
@milhealth #hospice has come a long way since the early 90s. #hpm
Wed Dec 14 19:05:52 PST 2011
nursefriendly
Yes, but not #hospice #palliative care. RT @crgonzalez: To be fair, death has been around before health care providers #HPM
Wed Dec 14 19:05:53 PST 2011
nursefriendly
@crgonzalez Care to guess when #palliative medicine was recognized as a specialty? #HPM
Wed Dec 14 19:06:21 PST 2011
aliciabloom
@pamressler thanks for joining! #hpm

Wed Dec 14 19:06:24 PST 2011
goBeMoRe
Topics, Participants & Transcripts #hpm hosted by @aliciabloom http://t.co/fKlEOkpy

Wed Dec 14 19:06:28 PST 2011
milhealth
RT @aliciabloom: #hospice has come a long way since the early 90s. #hpm/but has always been (imho) the best option!
Wed Dec 14 19:06:36 PST 2011
aliciabloom
@milhealth not at all! i talk it all the time & participate in this chat almost every week. hopefully you'll join us again! #hpm
Wed Dec 14 19:07:01 PST 2011
aliciabloom
RT @goBeMoRe: Topics, Participants & Transcripts #hpm hosted by @aliciabloom http://t.co/HmV1Empc #hpm
Wed Dec 14 19:07:14 PST 2011
crgonzalez
@nursefriendly I'm afraid to ask. I feel like we're in the dark ages #HPM
Wed Dec 14 19:07:19 PST 2011
InpatientMed
RT @renee_berry: From Cure to Quality of Life: The Shifting Meaning of Hope at the End of Life http://t.co/fdpxnJtk #hpm (Can I quote an ...
Wed Dec 14 19:07:25 PST 2011
Page 40 of 42
6/27/12 12:46 PM
AnkurB_MD
Dr Berwick: "Luckily, Palliative care....has grown at its best into a fine art and a better science" via @EWidera http://t.co/JfCccKrc #HPM
Wed Dec 14 19:07:30 PST 2011
renee_berry
RT @aliciabloom: RT @goBeMoRe: Topics, Participants & Transcripts #hpm hosted by @aliciabloom http://t.co/HmV1Empc #hpm
Wed Dec 14 19:07:44 PST 2011
KathyKastner
RT @crgonzalez: @nursefriendly To be fair, death has been around before health care providers #HPM
Wed Dec 14 19:07:51 PST 2011
milhealth
@aliciabloom #hpm where my Mom was, U could take the family pet (dog/w/shots), huge fish aquar. (wish my mom could have seen it).
Wed Dec 14 19:08:09 PST 2011
nursefriendly
Was a twinkle in mom's eye in 1967. RT @crgonzalez: I'm afraid to ask. I feel like we're in the dark ages #HPM
Wed Dec 14 19:08:12 PST 2011
nursefriendly
@crgonzalez In terms of modern medicine, that's barely a teenager. #HPM

Wed Dec 14 19:08:40 PST 2011
milhealth
@aliciabloom #hpm thanks, I will! I admire the work you/colleagues do! You don't know how helpful you are to us families! :-)
Wed Dec 14 19:09:17 PST 2011
aliciabloom
thanks everyone for being so engaged tonight-- you all made it so fun to host! appreciate @goBeMoRe for sharing a transcript. #hpm
Wed Dec 14 19:09:21 PST 2011
crgonzalez
@nursefriendly Back to the leeches! #HPM

Wed Dec 14 19:09:29 PST 2011
nursefriendly
Palliative medicine wasn't till 20th. RT @crgonzalez: @nursefriendly To be fair, death has been around before health care providers #HPM
Wed Dec 14 19:09:36 PST 2011
AnkurB_MD
Dr Berwick: "Enough of death panels! How about all of us all of us in America becoming a life panel" http://t.co/JfCccKrc #HPM #EOL
Wed Dec 14 19:10:30 PST 2011
nursefriendly
Defining expectations is a start. MT @MeredithGould: T1 When "hopes" collide? Probably important to find out how different pa #hpm
Wed Dec 14 19:11:00 PST 2011
RT @nursefriendly: Don't weep for me, weep for the #patients RT @crgonzalez: I weep! I'm
6/27/12 12:46 PM
NatriceR aliciabloom
really sad about that for you, the field, and the rest of us. #HPM
Wed Dec 14 19:11:05 PST 2011
we missed you, @ctsinclair ! #hpm

Wed Dec 14 19:11:27 PST 2011
GodtheHealerDev
Thanks for putting up with me #hpm. I enjoyed the discussion as one studies how one is healed physically, psychologically, & spiritually.
Wed Dec 14 19:11:46 PST 2011
nursefriendly
@MarksPhone Loss of hope "anectdotally" can be associated with poor outcomes, as extraordinary hope can extend lives. #hpm
Wed Dec 14 19:12:38 PST 2011
aliciabloom
@GodtheHealerDev please join us again! #hpm

Wed Dec 14 19:12:42 PST 2011
aliciabloom
RT @ctsinclair: The #hpm Daily is out! http://t.co/hXekg5Al Top stories today via @thelizabethhosp @rachellenorman @salixpharma @_lizz ...
Wed Dec 14 19:13:08 PST 2011
nursefriendly
@MarksPhone Hope does not lend itself to easy measurement or quantifiable outcomes. It is too subjective #hpm
Wed Dec 14 19:13:25 PST 2011
nursefriendly
Good opening questions RT @equijada: "How are you hoping we can help", "what do you hope will happen", "what are you hoping for" etc... #hpm
Wed Dec 14 19:14:12 PST 2011
GodtheHealerDev
@aliciabloom: @GodtheHealerDev please join us again! #hpm I hope too! Wednesdays 8pm - 9pm CT?
Wed Dec 14 19:14:40 PST 2011
MarksPhone
Repairing an aorta is delivering Health treating a NSCLC patient at stageIV for two years is healthCARE there is a difference #hpm
Wed Dec 14 19:14:50 PST 2011
Page 42 of 42

#HPM Tweet Chat 12:14:11

Uploaded by

Document Information

Original Description:

Original Title

Copyright

Available Formats

Share this document

Share or Embed Document

Sharing Options

Did you find this document useful?

Is this content inappropriate?

Copyright:

Available Formats

#HPM Tweet Chat 12:14:11

Uploaded by

Copyright:

Available Formats

#hpm - Healthcare Social Media Transcript

Hello...Jordan Grumet #HPM friendly PCP

Mark here #hpm

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

@CarolynMcC welcome! hope you'll do more than listen! #hpm

@AnkurB_MD glad you're here, you're in the right place! #hpm

#hpm Oh boy! Great gang here!

@KathyKastner you're actually inspiring topic 1! #hpm

?! RT @aliciabloom: @KathyKastner you're actually inspiring topic 1! #hpm

#hpm - Healthcare Social Media Transcript

#hpm T1 @aliciabloom Yay!

@aliciabloom @KathyKastner Wow....that's a big one to start! #hpm

T1 There is more to hope than curative treatments #hpm

Agreed RT @renee_berry: T1 There is more to hope than curative treatments #hpm

#hpm - Healthcare Social Media Transcript

@crgonzalez welcome! #hpm

#hpm - Healthcare Social Media Transcript

Can we open those hope receptors in patients? #hpm

Hi all, Pat Jonas, MD, Holsitic Family Physician in Ohio #hpm

err use #hpm

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

@JenMarsh2 #hpm good point to reframe it

#hpm - Healthcare Social Media Transcript

@renee_berry #hpm as long as U cite it.... ;-)

@renee_berry Wow, you've stopped waving! #hpm

@MarksPhone Absolutely! #hpm

#hpm - Healthcare Social Media Transcript

semblance of control #HPM

How is hope different from optimism or pessimism? #hpm

What does #hpm stand for?

@GodtheHealerDev Hospice and palliative medicine. #hpm

Hello Everyone, Andrew Lopez, RN from #newjersey #hpm

@GodtheHealerDev #hpm = hospice and palliative medicine

#hpm - Healthcare Social Media Transcript

@GodtheHealerDev hospice & palliative medicine #hpm

@aliciabloom Thanks! Always a good topic. #hpm

@milhealth Right.Same for Mex-Amer. and discussions of dementia. #HPM

#hpm - Healthcare Social Media Transcript

@MarksPhone You are quite the wise dude. #HPM

@crgonzalez Hey Carmen #HPM

I don't believe clinicians can confer or take away hope. #hpm

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

Wed Dec 14 18:26:53 PST 2011

#hpm - Healthcare Social Media Transcript

Wed Dec 14 18:28:37 PST 2011

#hpm - Healthcare Social Media Transcript

Plain Speaking at the End of Life http://t.co/Lv8d2ACr #hpm

#hpm - Healthcare Social Media Transcript

@mdTalk #hpm yes!

@MarksPhone Being present is powerful. You are a hero! #HPM

#hpm - Healthcare Social Media Transcript

#hpm - Healthcare Social Media Transcript

@JenMarsh2 Acceptance vs acknowledgement. Difference? #hpm

@nursefriendly Right. #HPM

@aliciabloom thanks for #hpm the shout out Alicia!

@renee_berry Clinicians as in #doctors grabbing at straws for new treatments, refusing to

#hpm - Healthcare Social Media Transcript

"give up" ? #hpm

@renee_berry And it comes from accepting what "is" #HPM