Professional Documents
Culture Documents
Ethics of DNA Databasing
Ethics of DNA Databasing
Ethics of DNA Databasing
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DNA Databasing
Thesis
Benefits: Reducing False Convictions Studying Disease Expanding Access to DNA data Consequences:
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DNA Databasing
UK
April 1995
France
1997 October 1997 April 1998 September 1999 End of 1999 July 2000 July 2000
DNA Databasing
99 years
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DNA Databasing
Study of Disease
Case Study:
Ariel and Deborah Levy Portland, Oregon Legacy Emanuel Hospital & Health Center Claim conducted a botched test, for $3 million - the amount they believe they will have to pay over Kalanit's lifetime for her care.
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DNA Databasing
Study of Disease
Human Genome Project Studies began providing benefits before the project was completed. Studies showed predisposition of:
Breast cancer
Cystic fibrosis
Liver disease
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DNA Databasing
Accessibility
Hypotheticals: o Knowledge of diseases before contracted o Tailored Medicine instead of broad drugs for certain diseases like Advil o Speed o Unable to communicate in a critical situation
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DNA Databasing
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DNA Databasing
Data Theft
Case Study:
Iceland passed a bill in 1998 to create a centralized DNA database of its citizens. People may opt out of the database but the previous information before the withdrawal will stay in the database. Iceland gave an exclusive contract to deCODE which allowed the company full access of the Icelandic peoples records.
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DNA Databasing
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Discrimination
Tay-Sachs Disease
Mainly found in the Jewish population.
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DNA Databasing
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Discrimination
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DNA Databasing
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Discrimination
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Cost
Human Genome Project:
30,000 unique genes out of hundreds of thousands Human chromosomes range from 50 million to 300 million base pairs Cost of 2.7 billion dollars to sequence one set of DNA
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Conclusion
Benefits
Reduction of False Convictions
Consequences
Possibility of Theft
Study of Disease
Discrimination
Accessibility
Cost
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