FMD Chat Together 2013

Where Weve Been, Where Were Going Sarah E. Kucharski CEO/Chairman & Founder @FMDChat #FMDAware facebook.com/fmdchat

Visit FMD Chat at facebook.com/fmdchat.

Closed FB group = 214 members

Visit rareconnect.org >> Fibromuscular Dysplasia

Visit fmdchat.org

Overall Pageviews = 33,738 Pageviews Last Month = 1,365

Added to 37 lists including: Society for Interventional Radiology, Mayo Clinics Center for Social Media, CardioRad (Cedars-Sinai & UCLA), UVA Health System, and Boston Childrens

Learn more about the Healthcare Hashtag Project at symplur.com.

Visit FMD Chats YouTube channel via fmdchat.org >> Connect

Rare Disease Day Feb. 28, 2013

Visit rareadvocates.org

Alternating Hemiplegia of Childhood Jeff Wuchich

Histiocytosis Association of America Jim & Leisa Greathouse FMD Chat Sarah E. Kucharski

Rare Disease Day Feb. 28, 2014 rarediseaseday.org

NIH Rare Disease Day

Visit nopw.org.

MedCity News ENGAGE Washington, D.C. June 5-6 medcitynews.com

The Walking Gallery of Healthcare @ReginaHolliday reginaholliday.blogspot.com

Visit medicinex.standford.edu.

Visit bcrenalagency.ca.

Goals for 2014

Participation in RDLAs RDD in DC & RDD at NIH Monthly chats on Facebook and Twitter Website redesign 501c3 status NORD membership Research funding FMD Chat 2014 4th Annual US Conference on Rare Diseases and Orphan Products