Sardjito hospital-based canreg

toward Sleman population-based

canreg

Pengembangan HBCR-PBCR RS Dr Sardjito-FK UGM Yogyak

anna Hilda Hutajulu, MD, PhD

Canreg nasional memerlukan data yang mencakup

13.9% populasi Indonesia

Daerah yang ditarget untuk merepresentasikan

PBCR skala nasional (13.9%)
1

North Sumatera Dist Deli Serdang

Area
Category
Rural

South Sumatera City Palembang

Urban

Banten

City South Tangerang

Dist
Tangerang

Urban

City
City
City
City
City
City

Central Jakarta
West Jakarta

Urban
Urban

South Jakarta

Urban

East Jakarta

Urban

North Jakart
Thousand Islands

Urban
Rural

No

Province

4
5
6

DKI Jakarta

7
8
9
10

West Java

11
12

City/District

Dist Bandung
City
Dist Imahi
Karawang

Rural

Rural
Rural
Rural

13
14
14

Central Java
DI Yogyakarta

City Semarang
City
Solo
City Yogyakarta

Urban
Urban
Urban

Populati
on
1.790.43
1
1.455.28
4
1.290.32
2
2.834.37
6
902.973
2.281.94
5
2.062.23
2
2.693.89
6
1.645.65
9
21.082
3.178.54
3
541.177
2.127.79
1
1.555.98
4
499.337
388.627

Landmass
(km2)
2.394,62
400,61
147,19
1.011,86
47,90
126,15
145,73
187,73
154,01

1.305,77
40,20
1.753,27
373,67
46,01
32,50

Rekomendasi WHO IARC-NCI kepada

Menkes (2014)

Rekomendasi WHO IARC-NCI untuk

penguatan Jakarta PBCR

Rekomendasi WHO IARC-NCI untuk

pendirian Sleman PBCR

Sleman District

Cancer Registration in Dr. Sardjito hospital

HOM-Tulip
(Organ
Specific)
Gynaecolog
y
Departmen
t
(Organ
Specific)

ENT
(Organ
spec-NPC)

Pathology
(Pathology
Based)

Pediatric
(Organ
specLeukemia)

Pathol
ogy

Pediatric

ENT

HOM
-Tulip

Gynaec
ology

Since
Type

1999

1999

2009

2012

2012

Patholog
y-based

Organ spec
- leukemia

Organ
Organ
spec-(NPC) spec 5
malignanci
es

Organiza
tion

Patholog
y depart

Div Hemato- ENTMed Onc

oncology

Funding

Selfpocke Self-pocket
t
YKI

KWF-NL

Organ
spec
cervical,
ovarian
ca

Div
National
Hematogynaecol
Med Onco, ogy reg
Intern Med
Self-pocket Selfpocket

Data dari dari registri yang ada kurang

menggambarkan data HBCR

TOP 10 TOPOGRAPHY 2014 (FEMALE)

Breast,NOS

211

Ovary

137

Cervix

97

Endometrium

56

Thyroid gland

40

Rectum, NOS

40

Nasopharynx, NOS
Skin, other & unspec parts of face
Unknown primary site
Sigmoid Colon

36
22
17
12

TOP 10 TOPOGRAPHY 2014 (MALE)

Nasopharynx, NOS

75

Urinary bladder, NOS

50

Rectum, NOS

33

Larynx, NOS

30

Prostate gland

28

Nasal cavity

16

Unknown primary site

12

Thyroid gland

10

Accessory sinus, NOS

10

Tongue, NOS

Tipe Canreg dan situasi terkini

Types of
canreg

Current
situation and
visions

Strength

Organ-specific
cancer registry

The existing
canregs we have

Basis for specific

assessment and
research

Hospital Based
(HBCR)

Short term target

(2015-2017)

Can be used to
upgrade Hospital
Management System

PopulationBased
(PBCR)

Long term target

(2016-2017)

True incidence of
cancer in a
particular area, can
be used as a frame
work for National
Cancer Control
Program

Perkembangan HBCR
Date

Activities

Commitment

April 2013

IARC and Jakarta-PBCR delegate visite to

FM UGM, Dr Sardjito Hospital

Problem assessment - Initiation of HBCRPBCR

May 2013

Stakeholder meetings

Problem assessment -Ideas of PBCR

Feb 2014

NCI repr visited FM UGM and discuss with

existing team

NCI support training for HBCR

development

June
2014

CEBU and director started establishment of

HBCR core team

Sept 2014

Meeting (I) with directors and deans

Approval for HBCR core team

Sept 2014

NCI supported canreg training to Shanghai

China

Commitment among MoH, Jakarta PBCR,

YKI, Dr Sardjito HBCR

Feb 2015

Meeting (II) with director for service

Continue activities of core team to establish

development concept

May 2015

Meeting (III) with directors, deans, hospital

advisors

Approval for HBCR core team and

resource persons to continue activities
Urged core team to regularly report

June
2015

NCI supports benchmark of HBCR team (6

staffs) to Dharmais NCH

Start up technical activities

Aug 2015

Visite of IARC, NCI, Jakarta PBCR

delegate, canreg training, meeting (IV) with
directors, deans, hospital advisors

- Commitment of directors and deans to

support activities of HBCR-PBCR;
attachment to ICC and CEBU

Laporan Perkembangan Kegiatan

dan Rencana Strategi

Problem assessment

Accessibility: office, equipments

Organization
Funding (secured from the beginning)
Dedicate human resources
Network (local stakeholders)
Technical trainings
Legal aspect
Ministry decrees
Hospital regulations
Stewardship
Confidentiality measurement

Lap perkembangan: office set up

Laporan Perkembangan:
melekat pada organisasi RS - FK

Tim penasehat
1. Direktur Utama RSUP dr Sardjito Yogyakarta
2. Dekan Fakultas Kedokteran Universitas Gadjah Mada
3. Direktur Medik dan Keperawatan RSUP dr Sardjito Yogyakarta
4. Direktur Umum dan Operasional RSUP dr Sardjito Yogyakarta
5. Direktur SDM dan Pendidikan RSUP dr Sardjito Yogyakarta
6. Direktur Keuangan RSUP dr Sardjito Yogyakarta
7. Wakil Dekan Bidang Keuangan, Aset, dan SDM Fakultas Kedokteran UGM
8. Wakil Dekan Kerja Sama, Riset, dan pasca sarjana
9. Kepala Instalasi TULIP RSUP dr Sardjito
10. Direktur Clinical Epidemiology & Biostatistics Unit Fakultas Kedokteran UGM
11. Prof. DR. dr Teguh Aryandono, SpB(K)Onk
12. Prof. dr. Adi Utarini, MSc, PhD
13. dr. Johan Kurnianda, Sp.PD, KHOM

Tim pelaksana
Narasumber:
1. dr. Achmad Ghozali, Sp.PA (K)
2. dr. FX. Ediati Triningsih, M.Sc, Sp.PA (K)
3. dr. Eddy Supriyadi, Sp.A, Ph.D
4. dr. Camelia Herdini, M.Kes, Sp.THT-KL
5. dr. Addin Trirahmanto, Sp.OG
6. dr. Wigati Dhamiyati, Sp.Rad(Onk)
7. dr. Artanto Wahyono, Sp.B
8. dr. Fatwa Sari Tetra Dewi, Ph.D (PBCR)
9. dr. Jarir At Thobari, Ph.D
10. Kepala Instalasi Catatan Medik RSUP dr Sardjito
11. Kepala Departemen Ilmu Kedokteran Forensik RSS
12. Ketua Komite Etik & Hukum RSUP dr Sardjito
13. Ketua Departemen Patologi Anatomi
14. Ketua Departemen Patologi Klinik
Pelaksana Harian:
15. dr. Susanna Hilda Hutajulu, Sp.PD, Ph.D (PI/koord)
16. dr. M. Lutfan Lazuardi, Ph.D (Co-PI)
17. dr. Nungki Anggorowati, Ph.D, Sp.PA (Co-PI)
18. dr. Fatwasari Tetradewi, MPH, PhD (Co-PI)
19. dr. Guardian Yoki Sanjaya, M.HlthInfo
20. Sjamsul Arifin, S.Hut
21. Sri Wahyuni, S.KM + registrar
22. Sekretaris (LO): dr Herindita
Fasilitator: dr Bestari

Network among local stakeholders

Sumber data untuk abstraksi:
1. ICM (MR pusat)
2. Tulip
3. Radiologi
4. Radioterapi
5. Laboratorium PK
6. Laboratorium PA
7. Instalasi kamar jenazah
8. Unit paliasi
Perlu otoritas registrar untuk masuk ke semua
lokasi kegiatan abstraksi canreg.

Alur kegiatan cancer registry-HBCR

Berbagai sumber
data
Abstraksi
(canreg5)
Verifikasi I
(umum)
Verifikasi II
(khusus)
Database adopsi
dari Canreg5
(IARC)
Analisis

Interpretasi

Laporan

Rencana anggaran 3 tahun kegiatan HBCR-PBCR

Year 1
Items
Office Set Up
IT Equipment
Technical Coordination
IT system development
Technical Workshop
Salaries for administrative and registrars
Total Budget
Year 2
Items
Technical Coordination
IT system maintenance
Technical Workshop
HBCR Training Workshop
PBCR Training Workshop
Salaries
Total Budget
Year 3
Items
IT system maintenance
Technical Workshop
PBCR Training Workshop
Salaries
Total Budget

Proposed Budget (IDR)

88.350.000
167.650.000
12.000.000
36.000.000
18.000.000
63.710.000
385.710.000
Proposed Budget (IDR)
24.000.000
6.000.000
18.000.000
39.000.000
40.000.000
127.420.000
254.420.000
Proposed Budget (IDR)
6.000.000
18.000.000
40.000.000
127.420.000
191.420.000

Potensi sumber dana

Annual budget from institutions, Kemenkes (?)
IARC dan NCI - trainings
PBCR Dinkes, Pemda
Grant fundings

Timeline

Sardjito
Hospitalbased
canreg

2015-2017

Sleman
populatio
n-based
canreg

2016-2018

National
populatio
n-based
canreg

Coverage of
13.9 %
Indonesian
population

GANTT chart Activity Report (3 year plan)

Target Activities

3 mo

6 mo

12 mo

Administrative
Office Set Up

HBCR Staffing

PBCR Staffing
HBCR Advisory Committee
Meeting

PBCR Advisory Committee

Meeting

Decrees and legalities

Progress Report (Mid & Annual)

Data system
Adopting CanReg5
Site Specific
System Networking Across
Health Facilities
Training and workshop
Management
Registry Tool
IT System
Data Management

V
V
V

V
V

V
V

V
V

Initiation of Case Finding

Process

Data Compilation

24 mo

36 mo

Interim results
Design (+)
1 registrar, 2 candidates

V
V

V
V

First, December 16th

Draft ready, need advisors

approval
V

V
Adoptation done
Under construction

V
V

V
V
V

V
V

Under construction

CRF/ abstract ready

Need directors approval to
intiate activity
V

interim

Planning of advisory
meeting

Sultan/Governor Representative
Director level from Dr Sardjito Hospital and FM UGM
Public Health (HDSS): Fatwasari Tetra Dewi, MD, PhD
Clinical experts: Prof. Teguh Aryandono, MD, PhD, Johan
Kurnianda, MD, Kartika Widayati, MD, Artanto Wahyono,
MD, Wigati Dhamiyati, MD
Academic Communities: Prof. Adi Utarini, MD, MSc, MPH,
PhD
Ministry of Health, Health Office (Provinve: Head of Prov
Health Office, District: All Head of District and City Health
Office)
Indonesia Cancer Society, Yogyakarta Special Province
branch: Mrs. Narsih
Data and Statistics Bureau
Directors of Major Hospitals and Laboratories

Terima kasih