CANCER REGISTRY

Dr. Maria Jessy Jose

Post Graduate Student
Department of Community Health
St. John’s Medical College
Bangalore
 Session plan
Presenter : Dr. Maria Jessy Jose

Chair person : Dr. Merlyn Joseph

P G teaching Activity : Discussion

Type of Session : Seminar

Topic : Cancer Registry

Date : 26-05-2018

Duration : 1 hour
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 Session plan
Method : Lecture Discussion

A-V aids : Power point presentation, Laptop, LCD-projector,

Blackboard and Chalk

Audience : Postgraduate students & faculty , Department of Community

health
Venue : New Research Laboratory

Time : 10:00 am

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Contents
SL.NO: CONTENTS DURATION

1. Introduction 10 min

2. Purpose of cancer registries 5 min

3. Types of cancer registries 15 min
4. Methodology and Quality checks 15 min
5. National Cancer Registry Program 10 min

6. Hospital Based Cancer Registry at St. John’s Medical College 5 min

Total duration 60 min

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University questions

1) Cancer registry (RGUHS, 2003)

2) Describe briefly the activities of cancer registries in India (RGUHS, 2006)

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Objectives
At the end of session you should be able to:

1) To list the differences between types of cancer registries.

2) To state the importance of cancer registries in cancer control

program.

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Introduction
• Cancer is the second leading cause of death globally.

• Estimated number of people living with the disease: around 2.5 million

• Every year, new cancer patients registered: Over 7 lakh

• Cancer-related deaths: 5,56,400

• Most common cancer: Lung cancer (men) and breast cancer followed by cervical

cancer (women).
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SOURCE: CANCER STATISTICS - NATIONAL INSTITUTE OF CANCER PREVENTION AND RESEARCH, 2017 7
Cancer registry

• Information system designed for collection, storage, management and

analysis of data on persons with cancer usually covering a hospital or a

group of hospitals.

Source: National cancer Institute - SEER Training Module

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Purpose of cancer registry

• To establish and maintain a cancer incidence reporting system.

• To investigate causes of cancer.

• To evaluate and plan cancer control programs.

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Types of cancer registries

CANCER REGISTRIES

Population based cancer registry Hospital based cancer registry

(PBCRs) (HBCRs)

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Cancer registries

3 Population Based Cancer Registries (PBCRs)

Bangalore, Chennai and Mumbai

3 Hospital Based Cancer Registries (HBCRs)

Chandigarh, Dibrugarh, Trivandrum

Currently 31 PBCRs and 29 HBCRs under the NCRP network .

source: www.ncrp.org
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Population based cancer registry
(PBCRs)

• Collects data on every person with cancer in a defined population,

usually comprising people resident in a well-defined geographical

area.

Incidence rates Mortality rates

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Population based cancer registry
(PBCRs)

• Sources: Government Hospitals, Private Hospitals, Nursing Homes,

Clinics, Diagnostic Labs, Imaging centers, and Registrars of Births &

Deaths.

• The coverage is about 10% of the population of India.

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Methodology

• The inclusion criteria for registration of cases is that patients who

have lived in the defined areas of Bangalore Urban for a minimum

period of one year at the time of fist diagnosis of cancer.

• Active registration method.

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Methodology
Registrar / Assistant staff

Visit sources to collect data

Interview patients/Scrutinize records

Collected data is send to NCRP every year

Data analyzed at base institution

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Main sources of registration in
Bangalore
• Kidwai Memorial Hospital of Oncology
• St. John’s Medical College and Hospital
• M.S.Ramaiah Medical College
• Manipal Hospital
• Bangalore Institute of Oncology
• Vydehi Hospital
• Apollo Hospital
• Narayana Hrudayalaya Health City

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Interpretation of data
• Number of incident cases of cancer by five year age group
• Cancer mortality rates
• Age adjusted rates
• Leading sites of cancer
• Sites of tobacco related cancers
• Childhood cancers
• Projection of disease

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Leading sites of cancer (females)

07/02/2021 www.kidwai.kar.nic.in 21
Hospital based cancer registries
(HBCRs)
• Recording of information on the cancer patients seen in a particular
hospital.
• Treatment methods and survival rates
• 29 HBCRs
2 projects are under this:
• Cancer Atlas of India
• Patterns of care and survival (POCSS)

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Objectives of POCSS
• To obtain identifying and diagnostic information in all patients in the
particular center/ Institution with cancer cervix/ breast/ head and
neck.

• To record details of clinical stage and types of treatment of patients.

• To have periodic follow-up and record the patient and disease status
in all patients suffering from these cancers

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St . John’s hospital based cancer
registry
Pathology reports

Medical Record Data

Filling of standardized core forms

Data entry

ICMR
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Interpretation of data

• Proportion of cancers by broad age groups

• Proportion of cancers by sociodemographic details

• Proportion of cancers based on diagnosis, type of treatment, intent to

treat at this institution

• Survival rates

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Survival rate

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NCDIR, ANNUAL REPORT 2016-2017
Basis of diagnosis codes

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Comparison between PBCRs and
HBCRs
Population based cancer registry
(PBCRs)
• 31 cancer registries
• All resident cases of cancer with
malignant tumors in a defined
geographical area.
• Primary source: Registration source
• Minimal data
• Magnitude of disease and trends
• Planning and preparedness
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Hospital based cancer registry
(HBCRs)
• 29 cancer registries
• All cancer patients attending that
particular hospital.
• Primary source: Medical records
• Extended data
• Treatment and survival rates
• Research purposes
29
Quality checks in cancer
registries

• Completeness of coverage

• Accuracy of data

• Timeliness

• Comparability of data

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National Cancer Registry
Program(NCRP)
• ICMR – December 1981
• The main objectives of this Programs were:
a) To generate reliable data on the magnitude and patterns of cancer.
b) Undertake epidemiological studies based on results of registry data.
c) Help in designing, planning, monitoring and evaluation of cancer
control activities under the National Cancer Control Program
(NCCP).
d) Develop training programs in cancer registration and epidemiology.

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Report of cancer registry - India
Consolidated reports of 27 population-based and 17 hospital-based
registries for 2012–14;
• Breast cancer is the most common cancer in India and continues to
increase in incidence.
• Cancers of the uterus, ovary, and lung are increasing in women in
urban areas.
• Overall incidence of cervical cancer is decreasing.

07/02/2021 THE LANCET:ONCOLOGY -WORKSHOP AT ICMR, MAY 2016 33

Challenges

• Shortage of manpower

• Poor support from hospitals

• Records of cases are incomplete

• Whole rural areas are not covered

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Software for cancer registries
• CanReg 5
• CanReg4 is a configurable computer program designed for cancer
registration in population-based registries
• The International Agency for Research on Cancer in collaboration with
IACR.
• Available FREE to members of the association
http://www.iacr.com.fr/canreg4.htm
• English, French, Russian, Chinese, Spanish, Turkish, and Portuguese.

07/02/2021 IACR (International Association for Cancer Registries) www.iacr.com 35

Objectives
• At the end of session you should be able to:

1) To list the difference between types of cancer registries.

2) To explain the importance of cancer registries in cancer control

program.

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