Professional Documents
Culture Documents
Mnuc Palliative Care of The Dying
Mnuc Palliative Care of The Dying
THE DYING
E.MUGI
Intro
• Many people living with a cancer diagnosis will ultimately die of their
disease
• Oncology care providers are uniquely prepared to care for those
patients who are in their final days of life.
• Furthermore, oncology nurses understand the psychological and
spiritual distress expressed by these patients and their families and
are able to address these concerns.
• Oncology nurses often have long-term relationships with these
patients and their loved ones, thus providing continuity of care during
what can be a very stressful time
Cont…
• Oncology providers can ensure a peaceful death for these patients,
ultimately improving the experience for the patient as well as for all
the loved ones in attendance during this process.
Symptoms during the final days of life
• A wide range of symptoms are common during the final stages of life.
• Oncology providers with knowledge and skills regarding palliative care
can effectively manage these symptoms, reducing the prevalence of
the “difficult death” and ultimately relieving distress experienced by
patients and their families.
• Furthermore, oncology nurses can educate family caregivers providing
assistance to loved ones in the home to reduce symptom distress.
1.Pain
• Nonpharmacological
a. Pad side rails with pillows
b. Provide calm, soothing, and safe environment
c. Instruct family and caregivers not to place items in mouth
4. Dyspnea
• Common during the final days of life and includes altered perception,
impaired memory, emotional lability, hallucinations, incoherent
speech, and disorientation to time, place, and person.
• These symptoms may be misdiagnosed as anxiety or depression,
particularly when mild or in the early stages.
• Common causes of delirium at the end of life include medications,
such as opioids, corticosteroids, benzodiazepines, and adjuvant
analgesics, as well as metabolic changes resulting from hypercalcemia
and hyperglycemia, sepsis, central nervous system involvement by
tumor, encephalopathy, and other organ system failure
Cont delirium
3. Need to give and receive love from other persons, such as wanting to
make the world a better place and protecting one’s family from
knowing you suffer.
4.Need to review spiritual beliefs, often initiated by wondering if one’s
religious beliefs are correct, or by asking “why?” questions.
5. Need for meaning and fi nding purpose, such as “getting past asking,
why me?” and remembering that there are others worse off.
6. Religious needs, such as to have quiet time and space, pray, read
scripture, worship (eg, by watching a religious program on television).
7. Need to prepare oneself for death, for example, by balancing
thoughts about death with hoping for health.
Why address spirituality
The pathways which may explain the contribution of R/S to physical and mental health include:
• R/S creates a sense of meaning, and meaning in life is related to psychological and physical
well-being.
• Social support, which is inherent in affi liating with a religion, is linked with health—especially
when experienced within a faith community.
• Body sanctification or pursuing a lifestyle that appreciates the sacredness of one’s body or
health (eg, viewing
• Health locus of control, or how one believes self, others, chance, or God control their health,
may have an impact then on health behaviors.
• Gratitude, hope, optimism, and compassion may contribute to a sense of meaningfulness
and social connection, which as discussed above appear to enhance well-being.
• Health behaviors such as prayer and meditation, in addition to the religious proscriptions
mentioned above, appear to have stress-buffering effects which can also contribute to
health.
• Positive religious coping and other aspects of religion that produce a positive affect also
appear to have a stress-buffering effect.
PROVIDING SPIRITUAL CARE
• Although not a spiritual care specialist, the provider can be a spiritual care
generalist.
• A provider must possess basic spiritual assessment skills, be able to provide
fundamental spiritual care such as presencing and empathic listening, and
be able to make referrals to diverse spiritual care experts when unable to
address spiritual needs adequately.
• Experts who nurses may consult, or to whom they can make referrals,
include chaplains, clergy, folk healers, lay ministers, spiritual directors,
parish nurses, mental health professionals with sensitivity toward
spirituality, or others with knowledge about various spiritual practices such
as meditation.
• Any persons with cancer do want their physicians to inquire about their
spirituality and possibly address spiritual concerns
Cont. spiritual support
• The two skills that are probably the most fundamental to providing
spirit-nurturing care are
a. Empathic listening and
b. presencing.
Four levels of empathic listening have been identifi eg:
a. Listening intellectually;
b. Listening intellectually and emotionally;
c. Listening intellectually, emotionally, and physically; and
d. Listening intellectually, emotionally, physically, and spiritually.
A holistic listener, one who listens at this fourth level, is a “holy”
listener.
Supporting spiritual or religious coping
• After assessment, the nurse may determine that religious beliefs or practices need to
be supported.
• Prayer is likely the most frequent religious practice benefi ting from support.
• Other religious beliefs and practices may need to be respected or incorporated in the
plan of care.
The following are guidelines developed by an ethicist and nurse:
a. First, try to understand the patient’s spiritual needs, resources, and preferences
b. Employ religious practices with permission; respect the patient’s expressed wishes
c. Do not prescribe or push religious beliefs or practices
d. Strive to understand your own spiritual beliefs and needs, before addressing
others’
e. When it is appropriate to employ religious practices with patients, do so in a
manner that is authentic and in harmony with your spiritual beliefs.
• Dying entails facing an unknown, the loss of self, the desire to leave a
legacy, the yearning to know that life— and death—possess purpose,
and many other experiences that are inherently spiritual.
• Williams in a meta-analysis identified the following themes:
• Spiritual despair (alienation, loss of self, dissonance)
• Spiritual work (forgiveness, self-exploration, search for balance)
• Spiritual well-being (connection, self-actualization,
DEATH
• Death is a irreversible cessation of circulatory, respiratory function or
the irreversible cessation of all functions of the entire brain.
• Two “roads” to death have been described.
• The “usual death” includes a continuum where patients become
sleepy and withdrawn, lethargic, and obtunded, gradually progressing
to coma and death.
• The “difficult death ” is one where the patient develops confusion and
restlessness, followed by hallucinations, delirium, myoclonus,
seizures, and eventually, coma and death.
• The degree to which patients travel each of these roads is not known,
yet even if less common, clinicians need to be prepared to manage
the disturbing “difficult death.”
Signs of Death
1. Rigor mortis
• Stiffening of the body that occurs about 2-4hrs after death.
• Results from a lack of ATP, which causes the muscles to contract,
which in turn immobilize the joints It starts in the involuntary
muscles( heart, bladder) then progress to head, neck, trunk ,
extremities.
2. Algor mortis
• Gradual decrease of the body temperature after death.
• When blood circulation terminates and hypothalamus ceases to
function , body temperature falls down.
Cont…
3.Livor mortis
Discoloration of body after death. After blood circulation has ceased ,
the RBC broken down , - leads to discoloration of surrounding tissues
4. Decomposition
Tissues after death become soft and eventually liquified by bacterial
fermentation . The hotter the temperature, the more rapid the change.
So bodies are stored in cool places / embalming
DIFFICULT SITUATIONS
1. SUDDEN DEATH
• From events such as hemorrhage, or intractable symptoms including
pain, dyspnea, nausea, and vomiting
• For patients with hematological malignancies, bleeding from any
orifice, such as the mouth, nose, eyes, rectum, urethra, or vagina can
be due to thrombocytopenia or other coagulopathies.
• Sudden death also may involve massive hemoptysis due to pulmonary
or aerodigestive tumors or external hemorrhage from carotid
involvement by tumor.
cont
2.PALLIATIVE SEDATION
• Benzodiazepines, such as lorazepam or midazolam, produce sedation
and can treat neurotoxicity related to opioids. Both have short half-
lives.
Death Confirmation
7. Palpate the carotid artery for a pulse: after death, this will be absent.
8. Perform auscultation in an attempt to identify any heart or respiratory sounds:
• Listen for heart sounds for at least 2 minutes.
• Listen for respiratory sounds for at least 3 minutes.
• The recommended amount of time to listen for heart and respiratory sounds can vary, but it is
generally accepted that a minimum of five minutes of auscultation is required to establish that
irreversible cardiorespiratory arrest has occurred. 1
9. Wash your hands, dispose of PPE appropriately and exit the room, making sure the relevant
doors and/or curtains are closed/drawn behind you.
Death Confirmation
• Care of dead body ,often depends upon the customs and religious
beliefs. Nurses provide dignity and sensitivity to the client and family
1. Check orders for any specimens
2. Ask for special requests to family (eg: shaving , a special gown , Bible
in hand )
3. Remove all equipments , tubes , supplies and dirty linens.
4. Cleanse the body thoroughly , apply clean sheets
5. Brush and comb the hairs
6. The eyelids are closed and held in place for a few seconds , so they
remain closed.
7. Dentures should be in the mouth to maintain facial alignment.
Cont…Procedure
• Denial
• Despair
• Anger
• Bargaining
• Depression
• Acceptance
WHY IS IT DIFFICULT?
• There are several strategy for braking bad news are described in
various articles.
• The important protocols are SPIKES, ABCDE & BREAK.
SPIKES: A SIX STEP STRATEGY
• Advance preparation,
• Building a therapeutic setting /relationship,
• Communicate well,
• Deal with patient and family responses,
• Encourage and authenticate feelings
BREAK MODEL